Tag Archives: Clozapine

Elizabeth phoned today. She did not sound too good. She sounded confused and disorientated and a little hyper.

Elizabeth told me she had been out but suffered a bad panic attack. I asked how often did she go out under Cambian’s care and the answer was about once a week. Maybe there is not the staff to take patients out more often but I am deeply worried as she is beginning to suffer these panic attacks more and more whenever she goes out. When we were in Cardiff last week on more than one occasion Elizabeth was not feeling good outside around people.

This leads me to believe that the longer she is kept in Cambian’s hospital this is not going to do her any good.

I have just received wonderful advice from someone I met at the protest at the IOP. I am going to make sure that everyone can share in with this advice and as Mr Jeremy Hunt could not care less to even respond to my letters I have been writing instead to Mr Norman Lamb who does seem to care – the Tribunal will be coming up soon and I am going down to Wales next week to see Elizabeth.

Now I am going to turn my attention to Novartis, the manufacturers of Clozapine.

I have not a good word to say about this drug.

So far Elizabeth has suffered dizziness, disorientation, has had trouble thinking and mentions a very dangerous complaint when on this drug that can lead to death – constipation and also palpitations and strain to the heart. I want the world to know that this drug is not doing any good to my daughter and the team have also got her on Metformine – you may ask but this is a diabetes drug however the Bethlem gave it off label for weight loss as Clozapine is notorious for weight gain. Elizabeth begged not to go on Clozapine and was promised a drug free period of assessment by Professor Murray. I narrowly missed seeing him when I went into the Maudsley Debates. I want to know from Professor Murray why he abandoned my daughter when I begged for help and where are the one or two contacts. These contacts should be helping my daughter right now to be reduced off this shocking drug.

I think it is right that Novartis and all the other drugs companies that I will give publicity to should pay something for my daughter and other victims. If they were a decent company they would set up a fund and provide some kind of help to the victims that their drugs make worse in order my daughter can go to Finland (Tornio) the only place in the world that has decent care from what I have heard. You can be sure I am shall contact Novartis personally to say exactly what I think.

I must say that I am impressed with what would appear to be a new manager at the Bethlem. This manager has responded well to me when I enquired where the oils from Dr Tracy were and the supplements that had been prescribed by the private orthomolecular psychiatrist that I had appointed. This manager is at least being helpful which makes a change compared to what I have come up against. This is the kind of manager that should be within all hospitals – one who listens and one who at least tries to help without being dismissive.

Over the weekend I intend to write some more letters regarding Finland – I must find out how I can get my daughter there for the decent care or else the Government should provide the funding for Chy Sawel/Root & Branch and Soteria offering holistic care with minimal drugs in a humane way.

This is what I think of the care in the UK:



I went to see a fabulous show last night connected to my younger daughter’s school and afterwards went to the fabulous restaurant called Jamie’s Italian. I have been thinking back to when Elizabeth wanted to be a chef and to when she visited the Restaurant 15 which I booked for her and her sister when it first opened and also

I remember back when Elizabeth was young and her only ambition was to be a chef. As a mother I thought this was great and she chose catering at school and college as subjects. She then went on to study catering – at the local college the tutor chose to send her to Finland and to this day she speaks of the most happy memories of this country where she said she would like to re-visit. It was not evident at this time that there was a problem with Elizabeth and I remember taking her out shopping to buy suitable clothes as she would be going out to a country that would be freezing in climate compared to here in the UK or so I thought. I have never visited Finland before but would like to as I have heard all about the fabulous care on offer in a place called Tornio. Anyway, Elizabeth had a great time in Finland and even made some friends there who I later invited to come and stay with me in the UK. I cannot believe that this happy time has since altered and that Elizabeth is now in a situation beyond my imagination as she had so much going for her back then.

How can someone who had ambitions and dreams to succeed like everyone else go downhill to the extent of ending up in the worse places and her personality changing beyond recognition? This I put down to the care in the UK. I never had a problem with Elizabeth and supported her ambitions to be a chef which I though was great. At the time of studying though something was wrong especially in the latter college – Elizabeth became withdrawn, she had become a vegetarian and then vegan – I did not think she was eating well. I did not think that her memory was good at this time. She was losing things and forgetting times of appointments. I have witnessed this kind of behaviour before with someone else in the family who was diagnosed with just mild depression. Such behaviour can be attributed with depression. At the time Elizabeth was doing too much – learning to drive, going to college on a demanding course, studying French – she had also become very interested in nutrition which I though was good. However Elizabeth was out a lot – she was hardly at home and at the time I was caring for my father who had Alzheimers and this was taking up a lot of my time. I still did not fear anything bad had happened to Elizabeth – I told her to cut down on some of her activities such as the additional studies and staying out late and concentrate on her course at college. Of course suddenly Elizabeth seemed to be different to her once immaculate behaviour all through her teens. Elizabeth was coming up to 19 and there seemed to be a problem. I saw her once with her eyes dilated and questioned as to whether she had taken any drugs however I then got to find out she had been to see her GP who had prescribed her with Cipralix. I knew nothing about these drugs then but now of course having read the book by Dr Ann Blake Tracy Prozac Panacea Pandora and by Dr Candace Pert, Molecules of Emotion, I have become knowledgeable and I had no idea how harmful the drugs were which affected Elizabeth’s behaviour so badly. Suddenly I discovered she was not doing well at college, her writing once immaculate was scruffy and her appearance was very different to previous and she was having learning support there. I thought she had taken other drugs. I cannot believe how ignorant I was not to question the drug prescribed by her Doctor. I now know what drug was affecting Elizabeth whilst at college and got to hear far, far worse but because of the sensitive nature of this which involved Police I cannot publicise the details however eventually justice was achieved but this took place a year afterwards. Anyway you can gather that she was on a highly dangerous drug that was affecting her to the point of making her unrecognisable as well as I had found out disturbing things about what had happened to my daughter whilst I was too busy looking after my father as well as my younger daughter who was sectioned and in hospital and I wish I had been more watchful and will always regret this, plus I fully trusted the doctors thinking they were experts. Elizabeth was barely able to concentrate at college so I booked her hypnotherapy in the belief that this may help her. She said it was like floating on air but after one visit to the local hypnotherapist Elizabeth seemed too busy to wish to go back again and this is a great shame as I believe this could have helped her. What can you achieve in just one session and after the fuss that Enfield Mental Health made of the hypnotherapist Susan Hepburn in Harley Street I have heard that hypnotherapy is available at local level and would like to know why my daughter was not offered this. Instead of course she got drug after drug and label after label. Taking herself off Cipralix 30mg was not my idea – it was Elizabeth’s – the drug had caused her to suffer terrible skin problems with itchiness and other serious side effects plus she had the chance of a lifetime to get away from the country and work abroad as simply a companion – her job had failed due to not being able to concentrate properly and Elizabeth seemed to go to pieces about this. The trip abroad was a complete disaster and by this time she was on a waiting list having been on the waiting list 9 months and the psychiatrist locally had recommended the trip as it was felt the problem lay with the home and family. I pointed out and gave other information to the team but they continued to point the finger at myself as a mother – home and family and I believe this is because I had complained about not getting the support/counselling etc etc. I felt excluded as I was being open with them as the team by giving them information and they were not likewise communicating with myself.

Once she had taken herself off the drugs in one go that was when I experienced major problems at home and had never been in such a situation where I could not cope. An incident led to matters being taken out of my hands and her being placed in hospital following her return abroad from this disastrous trip. AT the time she did not have a label apart from behavioural problems. Little did I know that the psychosis she was going through was caused by her coming off the drug too steeply and that was withdrawal. Noone from the team would give me suitable advice as to this effect. Instead they just wanted to go on and give the ultimate label – Schizophrenia and to tell my daughter she would be on the drugs prescribed for the rest of her life. How disgusting and untrue when I know of many who have come off the drugs and gone back to work and live a normal life. I did not know anything about these drugs and how a withdrawal should be made – how they drain the body of nutrients and minerals. I started to research things myself and to my horror I found out the truth! I started to look for decent care for my daughter in the UK and to my horror found there was NONE. I started to look and see what there was abroad in desperation. There were centres in the States and I desperately tried to get her accepted but of course they all wanted referral from Enfield social services and they were barely speaking to me as I had further complained after a serious incident and when I took Elizabeth away from their care and she was at home the local team distanced themselves and then I tried to get a decent social worker from the Adults Division like I had for my father and this was not allowed – why ever not when I knew there were more than 1 decent social worker under this division yet this was refused! so there is not a drug that has worked for my daughter and all have had devastating side effects.

I had then turned to experts like Dr Ann Blake Tracy and Dr William Walsh and I have just had the private test results and they are not good! I am not a doctor but I have once again had to seek the advice of specialists and this highlights that the doctors involved in the treatment of my daughter have not had her best interest at heart.

It is a good thing that I am the Nearest Relative yet the team wish for me to be replaced as they do not see me fit to be the Nearest Relative yet I have done all this research and contacted experts. I have spoken to Dr Ann Blake Tracy over the telephone and want to go and visit her in Arizona to personally thank her for her advice. I also wish to meet with Dr Walsh when he comes over here to train up 12 doctors. I hope as many as possible with book for the next Chy Sawel Conference so that they can learn by the research of Dr Walsh and together something can be done about the shocking cruel and inhumane care of the UK. I wish that a centre can be set up followed by others around the country and when I went to the fabulous Jamie Oliver Restaurant which I would recommend to anyone it gave me an idea. Elizabeth has been to the Fifteen Restaurant and was going to sign up to become a chef working there before she became ill as a result of the Cipralix prescribed. I spoke to the manager there as this is most relevant. There are many people like my daughter right now being held on lengthy sections and mothers like myself who are in despair with the whole rotten system and want to see change. I can prove this as I am in touch with many. Then there are the patients who I am in touch with /former patients who speak of the most shocking abuse and care on offer under acute wards. It is essential that someone under the mental health should be given a proper nutritional plan individually and an assessment by Dr Walsh himself – this is where Jamie Oliver could help turn around the whole system and work alongside Dr Walsh and parents as well as educating the patients. I spoke to the Manager and asked the manager of Jamie’s Italian if she could get in contact with him and I would be willing to pay for his appearance at the forthcoming Chy Sawel Conference which is quite near I believe to his “Fifteen” Restaurant as this is situated in Cornwall – I really hope that Jamie Oliver can do something that the Government is failing to do to help so many under the mental health system alongside Dr William Walsh which could result in the ultimate dream of mine to see humane care such as that in Tornio, Finland. It could lead to some patients becoming well again and taking a look at decent food rather than junk food and hospitals improving the catering for such patients within the hospitals on acute wards. Peter Bennett (Rehealth) has already conducted research and proven that diet and nutrition are essential and can affect behaviour. If a patient is on these drugs, they need to be all the more watchful of diet and this is an area that these experts can help with and with Jamie Oliver on board also people can be educated that a mental health patient suffering from say Schizophrenia is not as portrayed in the press so negatively. There are many people locked away for years on end on neverending prison sentences under this inhuman that are NO risk to the public whatsoever and by doing a documentary on this and involving patients, carers, doctors involved in the programme of Chy Sawel, other organisations who likewise want to set up alternative care centres such as Root and Branch and Soteria – LESS DRUGS AND MORE HOLISTIC AND THERAPEUTIC CARE AS WELL AS THERAPEUTIC COMMUNITIES. THIS IS WHAT IS NEEDED IN THE UK THAT IS FOR SURE AND COULD SAVE THE PUBLIC A LOT OF MONEY AND OTHER PATIENTS DIAGNOSED WITH SHOCKING LABELS WHO HAVE MANAGED DESPITE THIS TO REBUILD THEIR LIVES AND WHO WISH TO HELP OTHERS SHOULD BE EMPLOYED AS PEER SUPPORT.

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