“If Elizabeth is sent back to a specialist unit, they can claim £13,000 per week, as opposed to £7,000, so it is to their advantage.
You are right to be worried, as this can only lead to more medication, which she will then eventually have to be weaned off.
As to her attacking, whilst difficult to cope with, all it shows is that their present ‘treatment’ is not working as this is a reaction to her dire situation.
I hope you get somewhere with Press, as revealing appears the only check/oversight and thank you for mentioning the information here.
Please let me know what happens and wish you all the best in the circumstances
Finola”
That is a lot of money for the specialist unit and this could be why the team in ENFIELD wish to keep her where she is on an entirely unsuitable ward (Suffolk) where she has been beaten up by another patient and constantly hit around the head so I have been told by a member of staff.   She has been forcibly injected.   What kind of treatment is this!   Also RC Dr Kunal Choudhary said that if she did not choose her Dad as next of kin she would be thrown out on the street homeless” .  What is the point of putting her back on huge dosage of drugs that do not even work as she cannot metabolise them as proven in the P450 liver enzyme test.   I do agree that Elizabeth should take minimal amount of drugs and could function on these but in a hospital setting Doctors do not care for the physical wellbeing of their patients on a psychiatric ward especially if they have a diagnosis of Paranoid Schizophrenia but now Huntercombe Hospital – Dr Ahmad and Ramadani confirm Aspergers and treatment seems to be different.
Anyway I was today advised Section 2 coming to an end on Sunday.  I received a call from Sandra Muschette AHMP based at 65cPark Avenue, Bush Hill Park, Enfield.  She asked me if I had objection to Section 3 and put it in such a way there was no choice in  as it was felt by Dr Moorey and Dr Al-Allaq that Elizabeth has Schizophrenia and needs “treatment”  however she is already medicated and not causing problems but what we as a family are upset about is that they have totally ignored the most recent diagnosis by Dr Ahmad and Dr Ramadani from Huntercombe as well about three other local doctors mentioned in the files.  If Elizabeth needs continued treatment I believe this should be further explored as the environment of Suffolk Ward is far from right and neither was Cygnet, Cambian or Huntercombe.  To be imprisoned and not allowed out, cooped up and “punished” – this is supposed to be care?    If someone who has been terribly abused under their scheme in the community called Moti Villa situated in the Ridgeway they needs compassionate care not enforced drugging and abuse.
This social worker (AHMP) was recently involved in safeguarding and she said she would be imposing some section 5 to stop Elizabeth from going out and she would be seeking to displace me on the grounds of being unreasonable as NR – here we go again!  How many times have this department gone to court – about 6 times now.  I have no doubt of their huge powers especially when they do not like you. THE TRIBUNAL“YOU ARE NO LONGER THE NEXT OF KIN” – “WE’RE NOT SPEAKING TO YOU ANY MORE – MR B IS NOW NEXT OF KIN”HUNTERCOMBE ROEHAMPTON AND THE FAILED TRIBUNAL
Elizabeth has told a few people that she has been told that paranoid schizophrenia is the diagnosis and this is hereditary.  Please can Sandra be more specific and provide evidence of this – to whom does she refer.
I had two calls from her today whilst at work first of all asking me for my opinion on Section 3.   She explained that Elizabeth had been sent to Huntercombe because she was unmanageable on the ward – she was originally drug free.  Elizabeth could not settle in the scheme in the community after being on acute wards for 15 weeks.  I think she missed the company of others and was feeling unhappy and lonely in the scheme.  On the surface it looks nice but it was regimented full of control and she didn’t bond with the staff “no one understands me Mum”.  There were incidents where Elizabeth showed her anxiety and also I do not think she was eating healthily there as she was at home.  Staff could not cope and the immediate action was to call Police.  There was one outstanding support worker but sadly she was no longer working at the scheme.  No young friends or things going on socially.  She would have been better off in her own place with her own choice of support workers or better still in a community –  I think somewhere like Camphill Community Trust.
I am appalled at the way we as a family have been treated by Enfield Barnet and Haringey MH Trust where there is no accountability so it seems, where everyone protects one another judging by the conversations I have seen in the files.
Huntercombe echoed the views of the private MH professionals who said “Elizabeth sees things very differently  –  “has a difference way of seeing the world”.  Her treatment by MH professionals in Enfield has been abusive, cruel, discriminating, forget the Equality Act – this does not apply as Enfield are a law unto themselves.  Only if they are forced will they apologise.  I do not know why they even bother to employ a Director of Quality – what Quality is there exactly?
Whilst I was not happy Elizabeth was in Huntercombe and put on so much Clonazepam she could hardly speak, there were some things that were good in this private hospital – therapy for a start, food was nice.  The RC agreed with everything I said.  He agreed this was the wrong environment.   Past RC’s on Suffolk ward agreed likewise.  The acute ward was not the right environment for Elizabeth.  She has not been allowed out for three weeks and now Sandra is disallowing leave and imposing what she says is a Section 5 to stop Elizabeth from absconding    – exactly where is Elizabeth going to go –  it is not like treating someone as a human being but an object.  I shall be looking into the law properly before the meeting on Tuesday.,   The law on capacity can be manipulated.    When I confronted her about the comments on schizophrenia being hereditary –  this is not a word Elizabeth would even come out with.  Now I would like to see evidence as I am aware that my daughter needs some kind of treatment but certainly more in terms of therapy rather than enormous quantities of drugs as has been given in the past.  Surely it is good practice for Doctors to give the minimal amount of drugs but this is not so under Enfield MH.  When there is conflict of opinion, this should be explored, not denied as wrong treatment can be given as a result and this can be harmful.  All I am asking is for fairness.
Enfield are using private sector expensive hospitals under the MH.  I cant help but think that taxpayers money could be better spent on care within the local area which in my opinion is appalling and I am saying this in terms of resources, facilities, lack of the correct care and assessments.  It is mainly all about drugs and there is not enough therapists but at Huntercombe there were therapists.
Tomorrow is a get together with Joan Ryan MP and I hope to attend this and I want to talk about this situation.
Meanwhile I am sorry I live in this area and am ashamed I live in the UK where they treat the weak and vulnerable in the most abusive and cruel manner.  I am sorry Elizabeth came home when she would have been better off away from this area.
I have had to take another day off to attend ward round meeting on Tuesday.  Once again displacement is mentioned- once again spending vast sums of money –  how many more times when for a fraction of the price we provided the most wonderful care with caring professionals who tried to help Elizabeth’s trauma.   Being on a ward like this is enough to make anyone traumatised.  This is far from a therapeutic environment unlike Scotland, travelling to some of the most beautiful parts of the world and Australia.
Elizabeth has retreated to being a teenager but because her emotions have been suppressed for so long by enormous quantities of drugs, this is where she needed psychotherapy  but we had no help on this or a previous occasion. As a teenager she was immaculately behaved and polite.  She wanted to be a chef.  She loved her stay in Finland.  She loves animals and children and enjoyed travelling she enjoys music.  Elizabeth could hardly walk when she went away but came back well and able to talk about what happened to her under care in this area.    It upsets me that she is now back in this area where instead of working with the family Professionals wish to split the family using their powers to achieve their aims in what they think is the best interest.   The last “best interest” was a care home hundreds of miles away  where Elizabeth got no food at the weekend.  Elizabeth has agreed to take a small amount of drugs –  but there is now dispute over diagnosis as Huntercombe have identified the care that could benefit Elizabeth provided she is in the right environment and I do not think any locked ward or prison facility is correct for her as she was doing so well in a quiet peaceful and unspoilt part of the UK.
As for “hereditary” in terms of Schizophrenia I have asked for proof of this and for scientific proof of the diagnosis they insist upon and why they are not acting on or dismissing Huntercombe’s recommendations?  When confronted there was a denial of having ever said this.
I will keep you all informed.
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I have just received a letter from the CQC MHA enquiries and I am quite pleased with this letter.

Your Concerns – Huntercombe Hospital/Chase Farm.”

Elizabeth was discharged from Huntercombe on Wednesday 05 July and I waited in the foyer of the MH department of Chase Farm Hospital for her arrival.  She arrived at around midnight and was brought back to Suffolk Ward.

“The information you have given us is extremely valuable in helping us decide now or in the future if people using a service are receiving safe, compassionate and high quality care.  What people using services tell us informs our decision making and helps focus on areas of a service that may need attention by a provider.”

Definitely not in the case of Chase Farm Hospital where my daughter has been beaten up, forcibly injected so harshly her slippers broke, threatened by Dr Kunal Choudhary to be thrown out on the street homeless if she did not choose her father as next of kin.   It was already decided that an acute ward and PICU ward are the wrong environment for Elizabeth in any case.

I will notify you of the previous dates of section to Suffolk Ward.

Actually the majority of concerns relate to Chase Farm Hospital –  Elizabeth is not at Huntercombe any more and they have given recommendations for referral to Maudsley specialist unit for Aspergers.

My complaint is against Chase Farm is that someone cancelled the appeal against Section 2 without Elizabeth’s knowledge.  It is not true that she phoned the MHA office herself to do this.   That is what the MHA officer tried to say but I would dispute this and I would like to know why she cancelled the appeal and who told her to.  No way was this Elizabeth.

The letter gives the option of contacting the PHSO to undertake independent investigations into complaints about poor treatment.  I am very pleased with the PHSO’s recent investigation.

 

Elizabeth was first of all transferred from Suffolk Ward on the 19th June.  She was first of all placed on Upper Richmond Ward but then transferred to Lower Richmond Ward but she is not happy there and neither are we as a family.

Whilst probably the food and facility is better than local Chase Farm wards, it is a largely restrictive environment like prison where you have to book a room and where your visiting time is limited to just 1 hour.    This is no place to get well and should only be used short term.  I noticed a big poster on the wall stating on average they keep men for just 12 days and women for 18 –  I wondered why the difference and that both men and women should surely be treated the same.  So this is the second week and not once has Elizabeth been taken out.

Her religious needs are not being met either in this private hospital but I understand that this needs extra funding.   So despite the huge amount paid to Huntercombe in order to escort Elizabeth to the local church you need to pay extra so since Enfield have so much money surely they can provide this extra funding for religious needs.

Food is supposed to be better.

Elizabeth said the staff are OK.

On the therapy side they have much better provision –  it makes you think why this is not being provided on local wards.

The things I do not like are the smoking in a small garden area.

It can be noisy and other patients can flare up but Elizabeth is doing OK and has settle down so I am saddened but not surprised her Tribunal failed today.  She already had solicitors and I do not understand why they were replaced at the very last minute.  None of us want her to remain on this mental health PICU ward as we feel she is not being treated fairly.

Assessments:

They are supposed to carry out an assessment at Huntercombe when there are more than one diagnosis but I do not think this has been done or that they have the expertise on this particular ward geared for mental health to assess Aspergers for instance and they are dismissing complex PTSD.

All they want to do as they are being paid by ENFIELD is to confirm the diagnosis of paranoid schizophrenia treatment resistant.  None of us accept this as we feel she has Aspergers and complex PTSD after what happened to her at Moti Villa, The Ridgeway Enfield, where Elizabeth was terribly abused and this had been bottled up for all these years and suddenly on her return from Australia she started to open up about it.  Not once have ENFIELD provided anything in terms of specialist counselling.  However Dr Kajori Mukherjee – Clinical Psychologist actually did not deny the possibility of complex PTSD and Aspergers which is mentioned in files by more than one expert locally.

ENFIELD want to take the easy way out and drug her up but none of us in the family are just going to sit back and do nothing about this shocking treatment of my daughter.    I am happy to speak to every newspaper about the way my daughter has been treated locally by people who call themselves “professionals”.

I have just heard from Elizabeth that there will be a ward round this week – possibly tomorrow or Wednesday and I am phoning on both days to Lower Richmond Ward to speak to Dr Ahmad.    I want to know what expertise he and other doctors have when it comes to Aspergers which is something quite specialised and he is a specialist in mental  health.

Elizabeth has been on the same drugs they at trying to put her on now at Huntercombe and none have worked.   I am concerned at what they are doing.    I accept that Elizabeth needs “treatment” to tackle post traumatic stress disorder.    She talks in terms of not being fully grown.  She has retreated back to childhood and dissociates herself from recent incidents and does not know why she is on the ward.    It is wrong of the Doctors from Lower Richmond Ward to not properly look into the other diagnoses.

The whole facility is completely wrong for my daughter and I now want to know exactly what their expertise is in the area of learning/developmental/aspergers and complex PTSD.

Totally ignored in this hospital is the P450 liver enzyme tests.

Also being ignored is physical health and wellbeing in terms of endocrinal, heart, cyst, infection with MRSA, other tests for allergies as Elizabeth was severely ill physically as a child.

I feel this hospital is ignoring Elizabeth’s physical health and failing to do proper assessments as they promise.   This is therefore the wrong facility for Elizabeth.    If Elizabeth has been found in need of being sectioned please move her away from a prison environment that has only made her worse and to somewhere where she will get well like The Retreat or Khiron House.    I am sure that this facility must be astronomic in price so there cannot be much difference between this and the facilities I have mentioned set in beautiful grounds.  It is not a waste of money when the care provided is correct.

Even if these facilities are farther away from home if they are providing the correct treatment then this is what counts.  Sadly Cambian did not and neither did the Bethlem or Cygnet.   I just cant believe that this hospital wanted to put her back on Aripiprazole and I want a full enquiry as this drug I have reported for adverse reaction.

When I look at what wonderful weather it is outside I really feel for those patients who are kept prisoner on such wards and no way are facilities like this the place to get better or should they be used long term.

The public have a right to know that money is being misspent in the local area who are failing to produce the correct facilities to deal with conditions such as complex PTSD as well as assess people for other conditions when it is mentioned in the files by other professionals.

If they take Elizabeth off the Clonazepam I feel they should just leave her on the current dosage even though it is a drug that brought her out in a rash as noted in the files.  All want is for her to be on a low dosage.

Elizabeth would thrive in a natural environment such as Camphill Community Trust.  There are such facilities near to where the rest of the family live and I do not feel she has ever been treated fairly in this area of ENFIELD.

 

 

 

I thought long and hard before writing this post, as I did not want it to appear to condone in any way, the atrocity of life and death in an Adult Treatment Unit. Atrocities like the 7 year ‘treatment’ of 18 year old Stephanie Bincliffe in an Huntercombe ATU, paid £1761 a day to lock and […]

via Adult Treatment Units to ‘Community Living’ – Turf War for Billions ? — finolamoss

“They should take a hard line approach to the £13,000 paid to Huntercombe to lock up and drug Stephanie Bincliffe in a windowless cell.
Absolute fury at all this.””
“Simple question, why are companies being paid a minimum of £975 a day and up to £13,000 a week whilst your vulnerable daughter is chastised for spending £30 on living for 5 days?”  –  A very good point –  these comments referred to Phoenix House Stepping Stones Care Home costing circa £70000 per year.
“Will write again but am mighty sick of the state getting away with this with our money for these ‘services’ with our most vulnerable.”     Please do and I look forward to reading more of your true comments.

I have received a letter in response to our complaint relating to safeguarding.  The letter of apology is written by Dionne Grant Statutory Complaints Manager.

There was someone else that should have received apology but it was suggested that this person contacts the relevant organisation directly.

I have requested copies of the other minutes and copy of a particular letter written by a Consultant Psychiatrist.

“Mental health services in Enfield are integrated with and managed by Barnet Enfield and Haringey MH Trust which is a separate organisation from the Council.   You will need to liaise directly with them regarding copies of information required.

“What measures are in place to change safeguarding procedures?”

“discussions are now taking place between both Council and Trust Head of Safeguarding.

They disagree that people involved should not be involved in future safeguarding and state as part of improving our service “the professionals involved have reflected on our experience which will help develop their practice as they continue to deal with safeguarding issues.”

Concerns about Placement:

“You need to contact the external provider directly.  The Trust is aware of the concerns and will discuss these matters directly. ”    As yet no discussions have taken place regarding the placement.

Reference was made to the joint complainant GH “The Trust is aware and will consider matters accordingly.  A joint apology has been given on behalf of both Council and Trust.  This covers all 0parties involved so there would not be further contact from individual officers on this same matter.”

Concerns on Medication

“The Trust is aware of your concerns and will liaise directly with you on matters”.

The latest drug is once again Rispiriedon being prescribed by Huntercombe which according to early files Elizabeth had to be taken off due to allergic reaction.

If only Elizabeth was in a peaceful environment away from London such as The Retreat and receiving the right counselling then there is hope she could get well.  It is worth trying something completely different away from this area such as Camphill Community Trust.   The London environment may well not be the right environment for Elizabeth as going away to a peaceful natural environment was the answer previously and reason she came back so well.

We will keep trying to find out when we can pick up the possessions and what is going on as regards the scheme in the community as this is clearly not suitable if staff could not get on with my daughter and she was not happy there.  Now is the time to look alternative solutions.   I have no objection to Elizabeth going away from this area if only she is receiving the correct care and not being forcibly drugged and her need for the right kind of therapy addressed.

Elizabeth has retained happy memories of her time away with private MH professionals through “Working to Recovery” and at art group at Huntercombe she is drawing upon those memories of beach, surfing, her time travelling and staying in Scotland.  I am so happy that we provided this wonderful care and that at least she has some happy memories in her life.    A hospital environment such as Huntercombe PICU and other similar places should not be used to hold patients for many years but only for short term periods.

 

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