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Yesterday, I called into the EE store in Oxford Circus where I had taken out my contract.   I had, prior to this, called into my bank and told them all about my dispute with EE.  They suggested that I call into an EE store and cancel my contract.  I thought I was within the time limit of a month in order to do this.   I found out my mobile phone bill had increased from c£130 to £186 pm.    The Bank felt that since this was under investigation due to EE insisting I request an iPad and now they are saying in addition, an iPhone X.  Since I do not like being called a liar I have decided to make the whole complaint public.  This also serves as a warning to others seeing as EE have tried to put several investigators onto the case all agreeing with one another and all hiding behind GDPR when I have agreed for my Bank and Police to Liaise with EE and vice versa when EE said they couldn’t.

I came into the Oxford Circus to cancel my contract and severing all ties with this mobile phone provider.   I took the iPhone 8 and said they could have it back but this was refused.  The Manager not only refused to take the phone back but to cancel my contract like I requested.

So I made enquiries of other providers and had outstanding service inside the O2  store when I made enquiries.

I also requested all bills and contracts be sent to me.

I received an email from Josie Edmead today.  Her title is Executive Customer Resolutions Team.   03.05.19

“Thank you for taking the time to respond to my email.   This is acknowledgement we have received your email dated 1 May.

As discussed on the phone with my colleague yesterday we were unable to come to an agreement to get your complaint to a close.  Therefore I have issued you with an ADR letter that you are able to take to the Ombudsman Service.  This will be delivered to you by post within the next couple of working days.  Please note, we are due a Bank Holiday this Monday and because of this there may be a delay in receiving the letter.  I am sorry that on this occasion we were unable to come to a resolution.         JOSIE EDMEAD  EXECUTIVE CUSTOMER RESOLUTIONS TEAM.”

MY RESPONSE HEADED:

£186 PM ” YOU CANT BE SERIOUS”

TO EXECUTIVE OFFICE@EE.CO.UK

FOR THE ATTENTION OF JOSIE EDMEAD, MARC ALLERA, LEE MCCABE AND LEONARD WADE AND ARIB AHMED OXFORD CIRCUS BRANCH.

Re: GDPR Rules I have given Police and my Bank HSBC permission to liaise with yourselves and likewise vice versa so no Company Policy has been broken seeing as I give consent on all sides to liaise with one another.

No worries about the letter.

When I came into your Oxford Circus Branch I thought I had been contacted because my contract was coming to an end and that you were offering a good deal and I saw this as an opportunity to discuss my extortionate bill.  I asked the branch or rather joked “why is my bill so high” – higher than that of any people I know  (FROM C £130 PM TO £186PM).  I was worried my daughter was running up this high bill – she has MH problems and was living in the community. I requested Oxford Circus Branch to look into this and make sure premium rate numbers were barred – something I did myself a while back.  I then joked “I’m not paying for a tablet I cancelled still am I?  I was assured Is not so I took out another contract which would get me an iPhone 8 and increased the data for Elizabeth’s phone (she has a Samsung Galaxy J2 she bought herself.   I thought Elizabeth had been running up my high bill.  All along I had been using my old iPhone 5S which Oxford Circus Branch would have seen.  I wanted a new phone as gave the last one in 2017 to my daughter, a Samsung Galaxy A3.

If I had received an iPhone X and iPad I would have queried this straight away.  I did not know the details.  I did not know the number but obtained these details through Enfield Branch.  They told me I was paying for a tablet going back to 2017 not 2018.  I did not want a tablet and cancelled it as never used it.

I was falsely led to believe I was getting a good deal and would save money on my bills but instead the bill was high which prompted my visit to Enfield Branch who told me I had a tablet on contract – no way did I order it or the iPhone X.  My daughter is currently using a Samsung  Galaxy J2.

My bill has gone from £130- – £186 therefore wish to cancel this contract as no way would I have renewed my contract if i’d known about the tablet and now all of a sudden the iPhone  I neither ordered or received.  No way would I have ordered this if I knew this could lead to an extortionate bill of £186 pm.

When I tell people about the amount you seek to charge, they burst out laughing and tell me about their mobile phone providers and advise me that I am being ripped off. 

Anyway, as much as I rely on my phone service, I feel I cannot possibly carry on as I was led to believe my bills would be cheaper not hugely more expensive.  Like I say, I therefore cancel my contract forthwith.

My daughter Elizabeth is ill in hospital and I note with interest on your site you feature MH and I attach something that might be of interest with some interesting links. You are only featuring men’s MH but I feature more broadly based on advice by leading professors that I have obtained.  

Being incarcerated in a mental health acute ward right now means Elizabeth is not using her phone much at all but even if she was, how can you justify this huge hike in extortionate costs and then more recently my data was cut.  What a joke and I could only use the service via wireless.

Yours sincerely

SUSAN BEVIS”

So the matter will now be going to the Ombudsman.

 

I have been a customer of EE for quite a few years now.  Most recently I regret with all my heart taking out a new contract with them as they are implying I am a liar and I would not be going to this trouble of writing a blog if I was:  

  • On 15.05.15 at Hammersmith EE Branch  EE tablet 10GB of data.  Hardly used – gave  to Elizabeth and cancelled on 19th April 2017.
  • On 29.09.2016 cancellation of EE Home Services  and returned the wifi router – without broadband and services for weeks before turning to Virgin Media.
  • On the 30.09.17 I renewed my mobile phone contract and obtained a Samsung A3.  I took out a sim only contract for Elizabeth but with hardly any data.  I retained my old iPhone 5S, giving to Elizabeth the new Samsung A3.   However this phone was stolen at Elizabeth’s scheme.  I then bought a second hand Samsung J2 for Elizabeth and had to get a replacement sim in order to continue the sim only service.
  • On 03.04.19 I took out another contract early so I could get a new iPhone 8 through Oxford Circus Branch increasing data on the Sim only contract for Elizabeth.

So those are the contracts, all of which done in store for which I have paperwork.

Anyway, I took the opportunity of querying why my bills were so enormous and I had put this down to Elizabeth’s usage as there was not much data and I honestly thought that Elizabeth was running up a high bill, so I was checking to see that premium rate calls were barred etc and I questioned as to whether there was anything else on my bill pushing the price up so high.   I was assured this was not the case and felt that I was making a saving in the cost of my monthly mobile phone bill.  This was not the case after I took out the new contract in April and I called in to Enfield Branch again querying why my bill was so high.

I was told that I was paying for a tablet but I had cancelled the EE in good time and I did not want another tablet as I did not use this.

EE are saying that in 2018 an iPad was delivered to my home address and that I signed for it and ordered it on contract.   Now they are saying in addition there was also an iPhone 8 that I ordered back in 2018 and both were delivered by courier to my home address and signed for.

The above came with a contract which was added to my bill but I have only just this year (last month) renewed my contract with EE at Oxford Circus Branch.

It is not nice to be called a liar by customer services representatives who are all sticking together and come out with differing accounts.

I have spoken to various customer services officers but one particularly stood out.  I was on a crowded train going early morning when EE rang as I had queried my enormous bill.  In front of everyone I found myself having a conversation I did not want to have first thing in the morning with a customer services agent who was adamant that I had left messages demanding the tablet – there was no mention of IPhone also at this stage.   I was quite upset because it was as though she was saying I was lying and that I had received the iPad, signed for it and demanded the contract when I hadn’t.  She then said it would be passed over to EE’s Fraud Department.  I felt happier in thinking they would thoroughly investigate and look at the signature and contract indepth and liaise with the courier firm.

I am going to share with you now the responses I have had from three members of the Executive Office of EE (executive.office@ee.co.uk).  Trident Place, Mosquito Way, Hatfield, Herts, AL10 9BW  Tel 01707315000   https://www.ee.co.uk.

I may be wrong but under the title of Chief Executive is the name Marc Allera (mark.allera@ee.co.uk)  so I thought I would write the following to Marc Allera.

Email:  From me to Marc Allera dated 25 April 2019

TABLET NEVER RECEIVED OR REQUESTED 

“I have obtained your details via the internet and would be most grateful if you could look into my complaint above.  The Fraud Office need to look into matters further as I never received, signed or requested or made any phone calls to EE asking for a new tablet and my bills have been very high which I put down to my disabled daughter who lives in a scheme in the community but who is currently in hospital.  I increased data on my daughter’s phone and in good faith renewed my contract querying whether I was in fact still paying for the contract which I had cancelled on a previous tablet in good time years ago.  I do not use a tablet so did not request one and it came as quite a shock to find out I had been paying for this since 26 February 2018.  I’d like a refund of my bill and a thorough investigation undertaken as to who signed for the tablet and how such a request could have been made without my knowledge. There is no way my daughter would have known my password or have been capable to order a tablet using my account.   Her sim only comes under my account and I pay for this so how can it be that a tablet has been requested in the first place that I am paying for and have known nothing about.  I assumed she was just running up high data usage on her sim only which I tried to rectify by putting a block on premium rate numbers on her phone number on the letter attached.  I look forward to hearing from you in this respect.”

RESPONSE FROM LEE MACCABE EXECUTIVE CUSTOMER RESOLUTIONS EE

TABLET NEVER RECEIVED OR REQUESTED 

Email from executive.office.ee.co.uk  27.04.2019 at 10:39

“Good morning Susan    –   Re: A/c No. ………..

Thanks for taking the time to contact Marc about the additional line on your account.  I’ve been assigned this complaint as your case handler and will do all I can to help.

With devices which cost hundreds and sometimes thousands of pounds we will always do what we can to prevent fraud from occurring.  As such we follow our security procedures in full with each new line and upgrade request.  Along with asking your account password we can ask additional security questions.  Further we will only ever deliver equipment to the address registered on your EE Account.  From reviewing your account I can see we did order an iPad 9.7 free of charge on 26 February 2018 . This was accompanied with a new 24 month contract which runs to 26 February 2020.  This line was ordered at the same time we upgraded the line ending 824 to an iPhone X.  Both parcels were delivered by the same courier company to your address on the same day on 27 February  2018 (a Tuesday and I would not have been at home to sign then).  Our records show the iPhone was received and has been used since which would reflect that the iPad was also delivered although I am concerned to hear you had no knowledge of this.  At this stage we do not have a copy of the call recording which we only hold for three months.  However given the circumstnaces Im afraid  that we wouldn’t deem this to be a case of fraud as such and given the cost of equipment to us we wouldn’t usually be able to cancel the line.  Although this is the case I would like to offer something to bring this matter to a close.  This would effectively reduce the contract length to 12 months which would mean:  

Refunding the last two months line totalling £90 inc VATG

Cancelling the line with immediate effect without charge.

If you would like to accept this offer please let me know within the next 14 days.  In the meantime Id like to say thanks again for your time Susan.  

Kind regards

LEE MCCABE EXECUTIVE CUSTOMER RESOLUTIONS EE. “

So I wrote back to EE executive.office@ee.co.uk for the attention of LEE MCCABE ON 29.04.19.    COMPLAINT LETTER RE TABLET NEVER RECEIVED OR REQUESTED

“Just to let you know Ive contacted my bank to investigate and police and may also contact solicitors as you are calling me a liar!

Please supply copy contract and signature in my name.

I was told by your cust servs I was paying for a table as long as Feb 2017 (corr 2018).  Ive only just received iPhone 8 direct from Oxford Circus Branch.  I received the Samsung Galaxy A3 through Enfield Branch.

I never received Ipad or iPhone in Feb 2018 and request courier details and signature.

Im giving your name personally to my Bank, Police and solicitors.  I always do business via your stores.

Please send me signed contract.  Ive got all other paperwork.  

I then list details of contracts and cancellations.

Please forward proof of contract you are accusing me of taking out on 26.02.18 which I received received either iPhone or Ipad – as well as courier concerned. 

Yours sincerely,   Susan Bevis”  

On 29.04.19 I wrote again to LEE MCCABE

“Dear Mc McCabe, please note I have contacted the Met Police.  Ref No. CN ……………………………..29.04.19 via their website.

Please do liaise with Met Police.  Ive passed on all details of Ipad which I knew nothing about but asked for when I called in again to Oxford Circus Branch who I queried my bill with.  Despite asking I was not informed of the tablet by them so I took out another contact on my mobile and sim only card.  I’ve checked all paperwork and can find nothing relating to the iPad and I have only ever had an EE tablet.  Who signed for this tablet and when exactly was it delivered. No iPhone was delivered and No Ipad was received.  The iPhone I have now was only just obtained through your Oxford Circus Branch.   I cant remember whether the Samsung Galaxy A3 was delivered by post.  No way did I receive an iPhone or Ipad by post.  Ive renewed  my contract before expiry date and got a new iPhone 8 via Oxford Circus store.  I only ever do business via your stores.  I’m gong to contact solicitors as you are accusing me of being a liar and I’m going to put all of this on social media too as I never received any iPhone or Ipad.  I suggest you liaise with Police on this matter.  I suggest you check with your Oxford Circus Branch as I have only just renewed my contract. I do not accept your officer and want full refund of the payments I have made for the Ipad I knew nothing about in 2018.  Your letter will go on my blog via social media.

SUDDENLY EE HAVE APPOINTED A NEW CUST SERVS OFFICER LEONARD WADE

He writes 30.04.19  hi my name is Leonard and I am taking the time to reply as my colleague is out of the office to avoid further delay in our response.  Thank you for providing this information and I have reviewd the original order for both iPad 32GB and I Phone X,  Due to length of time since order was placed I cannot confirm signature received on delivery of both devices.  Ive reviewed the delivery address and confirm both products were delivered to your home address.  I confirm we sent a text message on the date or order 26.02.18 as follows “Hi from EE.  As requested weve ordered your additional device – if you didn’t request this please contact us asap on 150.  Pleased advise who used the number ……….. which is my number.  Can you explain why this has not been brought to our attention sooner?

I appreciate this may not have been the response you’d have hoped for at this stage however I look forward to your reply.  Yours sincerely Leonard Wade.”  

I then write on the 30th April 2019 to LEONARD WADE, LEE MCCABE AND MARC ALLERA

I again say I have not received the devices at my home address and ask for courier firm details, details of iPhone used in 2018 and explanation on why suddenly they are saying not just an Ipad but iPhone which I never received.

Matter is with Bank’s fraud team – please send copies of all my EE accounts relating to this.

I would not have been at home on this particular date to sign for parcels and I suggest they are are accusing me of lying – the last new phone was the Galaxy A3 from Enfield Branch.  I ask for copy of signed contract going back in 2018 as I have nothing in my records. I accuse them of suggesting I am lying by insisting I received the devices when I didn’t and stating I may have to take legal action and have reported to Police details.  I ask for iMEI  of iPhone in 2018 allegedly sent and asking all three to clarify the discrepancy and requesting copies of statements going back to 2017.

I feel like I am being bullied and treated like a criminal by EE who I have been a loyal customer for so long.  Whilst my Bank’s Fraud Dept investigate I have no choice but to pay EE’s extortionate bills in the meantime as the bill is one for all and if I put a stop on this now then I lose my phone service – not just mine but Elizabeth’s that I am paying for but it is no wonder I was paying so much –  I never requested the iPhone or Ipad.  Because of my daughter Elizabeth being ill and she is currently in hospital I had not been thoroughly checking bills and I never thought my mobile phone provider would treat me in such a bad manner.

Unfortunately I am tied in for another two years with them and it is strange that first of all an Ipad was mentioned and now all of a sudden both iPad and iPhone back in 2018.  I have renewed my contract a bit early this time taking advantage of the offer they had to get a new phone as I had been using the old iPhone 5S for a long time.

It is not very nice to be accused of receiving something they insist was delivered when you say you have not got it and never received it – in other words they are suggesting I am a liar and I want everyone to know on social media that is not the case and whilst I was discussing my dilemma with EE on the bus, several others chimed in that they had also had bad experiences with EE.

I hope this will be rectified and I will keep you informed of whether I get justice in this matter – I don’t mind paying for something I have got that I ordered but it is an absolute liberty to accuse someone of telling lies and insisting these devices were sent and signed for by me.

I rely so much on my phone service what with Elizabeth in hospital.  If she wasn’t in hospital and I was not so dependent I would ask my Bank to put a stop on all payments until matter resolved.

Today 1st May 2019 at 12.57 I received another email from executive.office@ee.co.uk this time from Josie Edmead Executive Customer Resolution Team  0800 079 0232. She writes as follows and explains that since Leonard is current out she is taking the opportunity of responding on his behalf.

I would like to apologise for the experience you have received in regards to said iPad being added to your account.  I have taken time to read the email thread attached to your respond and am up to date with the situation at hand.

Looking on your account I can confirm the information Leonard gave you is correct – on 26 February 2018 your mobile phone number ending 824 was upgraded from iPhone 5S to an iPhone X.  During this call an additional line for an Ipad was also accepted.  An SMS was sent to the number ending 824 regarding the additional line.

The courier services we use are DPD but with the timescale from February 2018 and today they may also have an issue finding your signature on delivery that you are requesting.  The sim only number ending 69 was upgraded in an EE store (Oxford Circus) store on 3rd April 2019 and upgrade to iPhone 8 not iPhone X.

Due to GDPR we are unable to contact Police or your Bank on your behalf.  If you feel this is something they should be informed of it is your choice to contact them.  We as agents, are unable to discuss customers accounts with third party services even if they are of high authority.

I do sincerely apologise if you feel EE have called you a liar – this was never our intent.  As a company we need to assure we are giving customers the facts we can see on their account.  If they do not match to what you believe, this is when our Fraud team investigate.  On this occasion because the device was delivered to your address along with a handset it was not deemed as fraudulent activity.

If you wish to have a copy of your bills dating back to Feb 2017 there are ways we can do this.  You can download your last 12 months of bills free of charge on the MyEE App.  If you require any dated earlier than this we can send you them in the post at a fee of £2.56 each.

On 27 April 2019 my colleague Lee to cover £90 of the last two months line rental charges for the iPad and an immediate cancellation avoiding the early termination fee.  This is our full and final settlement on the matter.  If you do not wish to accept this offer we have exhausted our complaints process and I could then issue a Deadlock letter where you are then able to seek advice from the Independent Ombudsman Service. 

My Response dated 01.05 2019

Dear Josie, Marc, Leonard and Lee

You are the fourth person from the Fraud Office trying to make excuses.

There’s no way I requested an upgrade to iPhone X8 at the time my contrct to iPhone 5S ended.  How can you explain this contract was taken out by Dundee Customer Services, Scotland.    I did not phone Scotland.  I called into Enfield Branch in 2017 to renew the contract, not 2018 so my daughter could choose a phone and she chose Samsung Galaxy A3 which I gave her through my contract and I was left to use the iPhone 5S.  How many times do I have to tell you.  I set up a sim only account for my daughter.  I was in the Branch at Enfield so made no call whatsoever.  I only do business via branches.

You are all so far from up to date its unbelievable.  I have all the paperwork and want to see a copy of yours and delivery note of iPhone X never received.  I’ve never received an iPad.

I renewed my contract in 2017 not 2018.  I got the Samsung Galaxy A3.

I visited Oxford Circus Branch in 2019 to renew contract, get iPhone 8 and increase data on sim only contract.

I’ve notified Police and my bank as when I say I have not received iPad or  iPhone X I mean it.  As my daughter’s account had only 1gb as arranged by Enfield I asked Oxford Circus branch to increase this.

Im accusing you all of implying and suggesting I received something I didn’t and now I want to see proof of signature.

Ive already breached GDPR rule by going public and want this complaint made open and transparent and want everyone to see how ive been treated on social media.  Now my Bank’s fraud team are involved.

 

 

 

 

Elizabeth is currently on a Section 3 -not because she has hurt anyone or damaged anything.

Elizabeth is on Suffolk Ward Chase Farm Hospital Enfield.  RC is Dr Helen Moorey and the Community RC is Dr Ilyas Mirza.

After all our efforts it’s sad to see Elizabeth back on the ward.  We know and have seen  that with the right care Elizabeth can get well but that depends on the right environment.   She came home unrecognisable from Australia after the wonderful care we provided ourselves for four months.

Anyway, I do not think an acute ward is right for anyone to get well and the longer people are held in such noisy, volatile surroundings they become more and more distressed and go downhill and I have seen this at first hand.

Elizabeth is allowed out three hours a day so there is no concerns that she is a danger to self or others as she is allowed out on her own daily.  However, I was shocked when I saw Elizabeth today as she looked drugged up so the first question was “what have you taken” .  She said “Lorazepam”  –  I thought not again!   this is a highly addictive drug and totally ineffective and she looked dreadful.  She looked dazed.   So I thought that I would come and take Elizabeth back to Suffolk Ward later.    Elizabeth said the food is not nice and my concerns are that she is spending a lot on takeaways –  I was quite alarmed by this and feel that this is another reason why Elizabeth needs to be discharged because it is unhealthy and she is stressed in that environment amongst others who are acutely unwell to the point she has gone back to smoking – albeit  vaping which I do not think is healthy at all.    So the answer is clearly not a ward for anyone long term so what justification is it for Doctors to keep someone on a ward for many months/years at huge cost to the public.

Last Friday, I attended the CPA meeting as Nearest Relative.   I was far from happy on arrival when I heard that Dr Moorey RC was trying to switch medication to a poisonous blue dyed haloperidol and I have read all above this chemical and have posted a You Tube video on this as a warning to others.  Several patients on the ward were very supportive as they had the misfortune to have been prescribed this harmful chemical and they chased after Dr Mirza who had nowhere to escape at the time and argued “dont give her haloperidol”.   The other drug choice was Aripiprazole –  for goodness sake! this drug I have had to report by Yellow Card because of shocking adverse reactions.  I have an email from Dr Moncrieff to say in her experience (and I would thoroughly agree) that this chemical results in increased agitation and aggression so the drugs themselves can affect people in different ways and it so happens that Elizabeth does not benefit from any of these drugs.  There is no excuse now for Suffolk Ward to drug my daughter up to  her neck like previously as there is nothing now to cover up as we all know what happened to Elizabeth under care (Moti Villa) to result in such trauma which has not been dealt with for many years by proper care by way of therapy.  If therapy was provided I would have no objection to treatment as I have seen that therapy was very helpful.

So, at the CPA was a new clinical psychologist who I quite liked –  at least at the moment – I might change my mind if I see incorrect records from him.     Dr Moorey, Dr Mirza and care coordinator Paula were smiling – I do not know why?  perhaps they can enlighten me.   I attended on the ward at 10.00 am and Elizabeth was pleased to see me.  She had asked me to bring some things for her on the ward which I did and she was immediately allowed out.   They didn’t try their normal tactics of calling her in first and saying “you don’t want your mother to see the files do you?”   Well I have so many files now and records and have had to  correct most of them as they are full of errors and some are a mass of black ink particularly the safeguarding minutes when I requested the other two copies.  As you can imagine it took me a long time to go through these and do the corrections.

The meeting itself went considerably well I have to say and I was particularly impressed by the new clinical psychologist who spoke sensibly.   None of them wanted to hear the recorded messages of support from Elizabeth’s new friend but we insisted.    I have always been accused by the team of interfering in the care so I have stood back and not shown concern and made a fuss even when Elizabeth went missing for 5 days before even being notified.   I could see that Elizabeth was on holiday so I thought that is nice for a start and she had only gone away for a few days.  The reason Elizabeth is back on the ward is simply because she tried to stop taking Risperidone too steeply and I want everyone to know that this drug along with every other drug has no effect on Elizabeth and I do not agree with steep withdrawals but I would remind Suffolk Ward that they themselves allowed Elizabeth to come off 2.5mg Aripiprazole before Dr Moorey took over as RC and so did Trent Ward Edgware so there was sufficient doubt about her diagnosis to allow this to happen on NHS wards but it was too steep a withdrawal and in the wrong environment.  Had the environment been a peaceful location – no pressure – no noise – psychotherapy provided and relaxation, fresh air and most important diet.   So this is the right environment to get well and when someone is “treatment resistant” then Doctors should not ignore the fact that people like Elizabeth cannot metabolise the drugs and I have had to turn to professors who are pharmacologists for proper advice.   I see  care on such wards to be practically all about drugs and if a patient does not take the drugs they force injections upon that person and this is not done in a reasonable manner – in other words the care is brutal whether it be private unaccountable prisons or NHS public wards –  it is nearly all about drugs and not a place to get well.

The whole system is hopelessly inadequate.  CTOs are being used as a means of punishment, to bully and control vulnerable people’s lives.  In the CTO papers they are full of threats of recall.  I hoped so much that Elizabeth would not end up on Suffolk Ward or any other ward but the care in the community lets people down badly.

Elizabeth was not happy at home with family members out at work all day and at the time lack of friends –  she needs her own space at 32 now but Elizabeth had found a new friend at the drop in centre and seems very happy lately.  I am due to meet this new friend at the weekend.   So basically a CTO does not work at all for someone like Elizabeth who countless other Drs say has high spectrum Aspergers.  Given the right help and support Elizabeth could do well but there simply is not the right kind of help and support in the community because too much money is being wasted in the wrong direction and Elizabeth says no one understands her.

At home,  Elizabeth was getting distressed if I misinterpreted or anyone else what she was trying to say and at other times she could be clearly understood.  She would also get distressed if people did not have time to sit down and listen so I agree it would be nice to see Elizabeth settled in a place of her very own and one of the things I was pleased about was that leave was given immediately and three hours a day isn’t too bad.  At weekends there is absolutely nothing to do on the ward so Elizabeth came home.

The other thing I was pleased about was the fact that Dr Moorey said she would let Elizabeth go hopefully in ten days but I’m hoping for miracles now in terms of her own accommodation as assessed for.  We have all her furniture, her possessions absolutely everywhere in the house and it has been like this for so long now.  I would be so happy if Elizabeth had somewhere in the local area to be nearer to us and close to her new friend. I feel that with a place of her very own she could settle down and particularly the fact that she has made a friend.

The one thing that worries me is the drugging that goes on within acute wards and that the drug Risperidon will be increased and another introduced – this is not the answer.  They want her to take 1.5 mg of Risperidone now which is what Dr Mirza prescribed in the community but the reason I would like Elizabeth to be on 1mg is that sometimes chemists cannot provide the entire prescription and it means having to go back and pick up part of it and also I am not having anything with coloured dyes or aluminium lake in.

The white tablets are not good but better than those with coloured dyes as I have extensively researched this and the ingredients.

So I gave Elizabeth a lift back to the ward – this was just after 8.00 pm as I wanted to check what chemicals were being given and have told Elizabeth to thoroughly check every occasion.     NO LORAZEPAM IS NEEDED AND NO COLOURED DYE HALOPERIDAL AND NO ARIPIPIPRAZOLE SHOULD BE GIVEN.  As Dr Ann Blake Tracy told me – any changes in medication can affect anyone.  It is no wonder that at the National Psychosis Unit that Elizabeth went downhill.  I have found all their files of truly shocking content and of public interest.   Anyway I shall write about that another time.

Tonight I saw about 8 Police Officers and a van arrive at the Section Suite and I was interested to see what was going on before I took Elizabeth on the ward.   I wanted to check how Police – so many of them – dealt with the person in this caged van.  They were  obliging towards me.  I didn’t see anything bad to report on this occasion but I know of cases where there are some police officers who give everyone a bad name.

Anyway after this I went with Elizabeth on the ward and the nurse refused to budge on the 1.5 mg Risperidone.    I pointed out that there was a landmark case X v Finland 2012 ECHR so therefore Elizabeth was not obliged to take any of these chemicals however I thought that 1mg was better than 1.5 simply because of our difficulty in getting this quantity and the inconvenience of this.   She wouldn’t budge so I will have to phone the ward tomorrow.

The new Clinical Psychologist mentioned about another meeting this coming week.  I think now’s the time to see how Elizabeth gets on with 1mg white tablet only.  So I shall phone Dr Moorey tomorrow.

Elizabeth seemed OK when I dropped her off to the ward today but I will keep you all closely informed.

 

 

Elizabeth is now 32.  I took her to see the show Tina which I would recommend  to everyone.

Since Xmas we have seen Elizabeth decline but then this is a time of year can affect some people badly.  It is not a happy time for everyone, though for others a time of joy and opportunity to get together with family.   With dark evenings and cold climate and the stress of Xmas, this all contributed to her decline.   Elizabeth stayed with her sister over Xmas.

Leading up to Xmas Elizabeth was having trouble sleeping and in need of someone to talk to.  She was re-living her nightmares and has been going into graphic details into everything that has happened even going back to school days.    She needed to talk but there was no-one except me to speak to so I was disturbed several times during the night and I have to get up early too.  When she tried to explain things misinterpretation would lead to her getting really upset.  Absolutely no counselling provided by Enfield who are saving money this way.

It was concluded Elizabeth needed her own space.  Elizabeth would get upset if she could not find things, if people misunderstood her or disagreed with her.

At 32 I would agreed she needs her own space but this is proving impossible under the London Borough of Enfield. Since November 2018 prior to huge misunderstanding where no pin number was granted and a letter came stating she was not entitled to one despite being assessed successfully.   So since November only 1 property has been bid for and Elizabeth was unaware this was for dementia sufferers and chronically ill with a warden and community alarm facility.    Elizabeth placed a bid unaware of  this until I showed her a picture of elderly people walking around with zimmer frames.  Of course this is not the kind of place Elizabeth wanted to live in and was a fair distance away from the family home where she likes to call in to see her cat.

Last week Elizabeth went to Park Avenue Resource Centre and was given a piece of paper and instructions on how to bid but Elizabeth needs help in bidding.   Elizabeth went to look at the property and area which this time was closer but it would seem everyone is on holiday at the same time so who can help Elizabeth to bid if there is noone there or they are all busy out at meetings.

Elizabeth has said she would like to move and I will feel so happy when that day comes.   The current accommodation is very much temporary and there is not a proper kitchen.  The kitchen extends into the staff’s bedroom as does the fridge.  There is no lounge to sit down and watch TV and Elizabeth is stuck in an attic room at the top of the house.   Today I contacted the Manager of the team concerned ECRT  and I mentioned about a conference that Elizabeth wanted to go to coming up soon at Kingsley Hall on 1st April http://compassionatementalhealth.co.uk/  I mentioned how this wonderful conference could be of huge benefit to the team at Enfield MH.   As I have not seen any care provided I contacted the manager in the hope that the team could provide some of Elizabeth’s personal budget on this wonderful conference that has brilliant speakers.  Of course the answer was “no” and that £400 per week of the personal budget was being spent. I assume that this £400 pw is going on the scheme that provides temporary accommodation but what about the care.  Elizabeth actually refused a care package as what she really needs is help in the community but this is not given under these supportive living schemes because staff are not allowed to leave the premises.   I was astonished that this department who have spent –  I dread to think how much could turn around and say no!  How much money has been spent on court action against me –  Ct of Protection – this wonderful court ruled in our favour but this action could not have been cheap then the most recent court case at the RcJ -how much did that cost and I represented myself until I got threatened with massive costs and bullied out of the proceedings.  I had to amend the consent order manually and send it back “The Respondent shall pay the Applicant’s costs”   –  I then presented huge evidence which the judge commented upon.  I discovered lies in the court papers which I drew to the Judge’s attention.  It also turned out that Elizabeth’s solicitors advised her to go with her sister to displace me as the NR.   So both girls were advised I would get enormous costs.   I was forced to delegate my role for one term but it is incredible how dishonest things can get within teams desperate to get rid of a very good Nearest Relative such as myself or for instance to keep someone on a CTO then what they do is to make that person out to be bad.  I am very pleased that Elizabeth has shared everything with me as the Nearest Relative and I feel like sharing everything right here on Twitter.   I had such brilliant support from some of my readers who asked if we would like to be live streamed.  Elizabeth and I jumped at the chance but unfortunately my solicitor told me that this was not possible because it was too late.   I am keen to see openness and transparency within court proceedings and this time both Elizabeth and I swore affidavits.

Moving on from all this going back to November last year Elizabeth was assessed for a 1 bed council flat. I can remember feeling so happy as we have all her furniture and possessions in the living room and all over the house.    After all that has happened in the past I felt that being allocated a home of her own was a huge step forward.   The accommodation provided in the past has been a disaster –  every single place has had problems but the previous scheme had a problem with bed bugs and I was pleased Elizabeth spoke up for herself at the recent Manager’s Hearing when being accused of bringing them in when another resident admitted this.

Elizabeth was not sleeping around Xmas wanting counselling for her trauma and she is revealing new things all the time such as being restrained face down at the Bethlem which would explain massive bruising all over her face which the team deny.

She has also revealed a serious incident on Suffolk Ward where she was attacked by another patient and that it took five members of staff to pull the other patient off her.

So after all this time there is nothing positive –  she can now start bidding as she was unsuccessful last time.   I hope this situation is not going to drag on forever as someone needs to sit down with Elizabeth and help her to bid for more properties and please no more elderly persons schemes  or for the chronically ill.  Elizabeth needs proper integration into society as well as direct payments which is something ECRT does not wish to give as this department is all about restrictive practices and control from what I can see.   I am also far from happy that nothing has been altered within the files and defamatory comments remain.   I am going down to St Ann’s Hospital where I want to go through everything with their legal team to make sure everything is corrected.  I want to do the same with Huntercombe as I am concerned they  have been looking at the wrong files – there are literally so many mistakes not even date of birth correct.  I think this will take me about two days to correct in person at their wards and offices.

So tomorrow I have advised Elizabeth to go down to Park Avenue to start bidding.  I was disappointed that they refused to contribute towards the wonderful conference coming up at Kingsley Hall on 1st April through Compassionate MH

http://compassionatementalhealth.co.uk/   – this could benefit the entire team!

I was told £400 pw was being spent on Elizabeth so I asked for a breakdown of this and exactly what this is for as nothing is being provided for her to do.   There are huge funds as I see it as when it comes to taking people to court like myself there is a bottomless pit of money being misspent.  What better Nearest Relative could there be than someone who thoroughly investigates everything and wishes to correct records as how on earth can the correct care be provided with so many errors.

The situation seems to be never-ending and all I can do is hope that something will eventually come up for Elizabeth.

Under S117 after care is supposed to be given but Enfield Community Team seems to retain this for themselves.  How many others are treated this way?

Elizabeth’s story – My Wonderful Care is on Rightful Lives Exhibition –  this relates to the wonderful care we provided.   In file records social workers try to say she was “forced” to go and stay with private MH professionals Working to Recovery and I would right here this is a pack of lies.

I feel the least Enfield can do is to provide what is promised in terms of housing to Elizabeth rather than leave her in a situation which is causing her distress.

So tomorrow I have told Elizabeth to go and place a bid and I will keep you all informed if she is told there is no one to help because they are all on holiday.

I can see no other way round it – if nothing is done about the bidding the second week running I will take a day off and go down to their offices myself and then I will go to St Anne’s to ensure their records are amended correctly.

As I have mentioned before the very best way forward is Open Dialogue – openness and transparency.  I would have nothing to complain about if this was on offer in my local area of Enfield but unfortunately there is nothing good like this.

I also suggested that the team themselves attend :http://compassionatementalhealth.co.uk/

As this is the way forward to improvement in my opinion.

It is awful to get calls at work from Elizabeth in distress.  She is phoning all my friends and some are kind enough to give her counselling when nothing is provided locally.  Elizabeth has been trying out some meditation called Sha-Om.  This seems to be getting to the root of the problems which Enfield MH have tried to block through plying massive dosage of mind altering chemicals.

I will end by saying Meditation not Medication.   This beyond doubt is the answer.

 

 

 

 

 

 

 

 

 

 

 

Elizabeth, at the age of c32, has been assessed in terms of having her own place to live but nothing appears to be moving forward.

The stress of Xmas had affected Elizabeth so badly and she has moved into this scheme which is meant to be temporary.  What Elizabeth needs is not being provided in the community in terms of counselling.   What is provided is 1.5mg Risperidone – drug previously found to be allergic to.

We tried to help Elizabeth having taken her away from previous care where she was living in appalling conditions whilst under CTO.   Unfortunately I was not too happy this evening when I went to look properly at Elizabeth’s new scheme.

Its a mid-terraced house, housing  c7 vulnerable women plus 1 support worker.   Elizabeth believes that residents come from a different area -Tower Hamlets.

I gave staff a bit of background re Elizabeth who moved there just prior to Xmas.  I told them there was conflict of opinion on diagnosis. Huntercombe Roehampton diagnosed high spectrum Aspergers.  She already had a diagnosis of complex PTSD.  However, we believe that Elizabeth has cbi (chronic brain injury).  Having had extensive genetic tests done there is no way Elizabeth has got Schizophrenia.

Anyway, today I have had Elizabeth come over on her own.  I had cooked dinner but Elizabeth was not happy as she was expecting to be taken out,  so we went for a drive to a nice pub in the country as Elizabeth had not eaten anything at home. I bought her a meal at the pub and Elizabeth did not feel comfortable as it was busy inside. She hardly ate anything.  Once home she proceeded to follow me everywhere in the house and you could not have a proper conversation with her.   Elizabeth had also been to church  previously on her own today.

I drove her back this evening and was interested to see more of the facility.   I heard from Elizabeth there was no oven working and was concerned.   I brought a two ring hot plate for the scheme that Elizabeth and others could use if they wished.   I then spoke briefly to a member of staff and complained there was only a microwave to cook in.  I had taken a small saucepan and small frying pan to the scheme and asked how do people cook there.   Both microwave and the very small oven were not in the tiny kitchen but in the bedroom of the staff member which I thought was not good.

I also could not see any fire extinguishers or emergency exit signs.  I could not see a fire extinguisher in the kitchen and looking at her tiny room I wondered-  how on earth would Elizabeth get out if there was a fire? she is terrified of heights and has been put on the top floor of the building.

I tried to write to the Community Rehab Team last week but have received no reply so I will write again as Elizabeth has given us all consent.

I would like to know how long the oven has been out of order and when a new one is coming as it is inadequate to have the ovens in someone elses’s bedroom in my opinion.

I can imagine a scheme like this brings huge profits to its owners but I am not convinced that everything was OK in terms of health and safety and I would like to see the Health and Safety and Fire Risk Assessment.

As you can imagine such basic facilities in my opinion should not be used for more than a month and it has now been more than a month and today we saw signs of distress in Elizabeth.   Yes I agree she should be living independently and had issues at home/with sharing things in accommodation, but I do hope it will not take months before she is moved.

There was confusion about the pin number last year that had not been given but now Elizabeth has this.   Elizabeth can shop, can go on public transport but not too far – but whilst she is independent wishes to be closer to home.

I’ll keep you all informed  –  I will be pleased when Elizabeth moves from here but she will need support in obtaining permanent accommodation (not of supported housing/living schemes).

Brief Summary of Email sent today  14.01.19

I had already written to Elizabeth’s care coordinator (PM) twice but received no response so I today wrote again.  Elizabeth’s sister tried to ring but there was no response also.

Email to the care coordinator PM,  JK  CEO of mh Trust, all the local councillors applicable, LO of ECRHT.   IM Consultant Psych, BN Director of Soc Servs

Heading Accommodation : ………………….

No counselling in place  – where is budget being spent?

H&S concerns in event of fire and procedures in place.  Elizabeth would not get out.  I am most concerned.

No oven/hob working so I brought two rings to cook on.   Kitchen in two tiny halves –  small tiny area sink and kettle in one half and the rest of appliances in the bedroom of staff member,   ie microwave and small electric oven.

How long will it take to move Elizabeth into permanent accommodation as nothing seemed to be happening.

One option that was good was dismissed as this would require a two bed place so that Elizabeth could move in with a retired MH nurse who would like to live in this area but this was not agreed at recent meeting.

A one bed flat has been allocated but there is no communication with the family.  Bidding for properties can take time as you are up against hundreds so it would be nice just to get a call to say when this will take place.

Proper assessment. Benign tumour not monitored for years.

Counselling required as Elizabeth is phoning my friends for this and is totally mixed up.

Consent form signed by Elizabeth so team can correspond and we do not hear “we cannot talk to you as L does not give consent”  –  L has given her consent so that cannot be an excuse of holding things up.

I hope that Elizabeth is not kept at this property for months on end and I am questioning whether fire inspections have taken place.  This is a place for vulnerable people but that does not excuse bad standards.  I want to know Enfield how my daughter will get out of this accommodation as I can only see the velux windows as she is on the top floor.  She is petrified of heights.

I could not see any fire extinguisher or fire blanket in the kitchen.  The oven should be replaced and there should be a proper hob but now I have brought along one saucepan and one frying pan together with the two rings that anyone can use.

I have requested sight of health and safety fire risk assessment reports and wonder when the property was last inspected.

I have requested a proper assessment on diagnosis and MRI scan.

I have not had one acknowledgement to my email sent today from anyone so I will keep writing on here my record of the communication by London Borough of Enfield.

This may well be temporary accommodation but still, the kitchen arrangement is surely not in keeping with health and safety standards.

My Email Today:

I wrote to everyone plus Head of Council/Trust, because unless something is being done Elizabeth will go downhill.  I’ve had her on the phone this evening saying it is noisy but Elizabeth is hyper sensitive to sound and also scent

I questioned when bidding would commence?    as we were advised there was no hope of what we would really like to see, which is Elizabeth move in with a family friend who is a former MH nurse to a two bed flat.   According to Elizabeth’s sister tonight, her care coordinator has other ideas but since my two emails had been ignored I had to resort to copying absolutely everyone in as nothing would otherwise move forward so I thought.

I addressed my main concerns which is that Elizabeth had been in this temporary accommodation now for about a month and how much longer would it take to move her as nothing had been done regarding bidding despite the fact a pin number was issued in November last year.   If you are having to bid for housing when there is very little housing available this procedure could take some time as you are bidding against 164 applicants for only 150 homes so it says in the letter but already much time has been wasted.    Elizabeth would need help to bid for a flat and this help did not appear to be forthcoming.

In addition, Elizabeth has been turning to friends who have acted as counsellors because nothing is being done to help her psychologically or meet her physical needs as she has no GP whilst she is living outside the area so this is very neglectful in terms of duty of care.

The other issue is that Elizabeth needs an assessment for the other diagnoses as well as MRI scan.

I spoke briefly to the scheme manager who was very nice.  I told her that my main issue was with the CMHT who appeared to be doing nothing about the situation despite more than one visit by them to the scheme.

I mentioned I was concerned as to how Elizabeth would get out in the event of fire as she was afraid of heights and could only see the Velux windows as a way out onto the roof but how would Elizabeth fit through these?    The Manager said they had an up to date Health and Safety Risk assessment but I still had concerns about fire evacuation procedures.

I pointed out the oven and hob were not working but apparently this is turned off as a health and safety precaution because of other residents due to risks so there was a microwave and a small grill oven but not altogether as the rest were in a bedroom which doubled up as an office.   Anyway for temporary accommodation it is not that bad – at least there are no bed bugs but Elizabeth has been there a month now and I want something done about it by the ECRT.

Elizabeth had been in a previous scheme for over 1 year, then problems with bed bugs and 5 fumigations persisted.  At a recent Manager’s Hearing someone on the panel seemed to accuse Elizabeth of bringing in the bed bugs and I was so proud of her to speak up for herself and say it was another resident who admitted to this fact.

Because Elizabeth is nearly 32 she is in need of a place of her own and her own space and she is not in need of a care home or supported housing as with her condition of autism Elizabeth sees things in a different way and has problems with communicating with others which can lead to clashes.   She is under a MH team yet she has been diagnosed more than once by other professionals as having high spectrum Aspergers. Though I believe it is CBI because of the enormous quantities of drugs given in the past and I would now like a high resolution MRI scan to look for signs of inflammation, to check on the cyst that has been ignored for so many years.   There is no care package for Elizabeth within this scheme and the pin number for bidding has been a long time forthcoming due to some mix up by Enfield Council who erroneously stated she was not entitled to a pin number despite an assessment that said she was.  This has held matters up even further than necessary.   We finally received the pin number in November 2018

I also added my concerns to the issue of inaccurate healthcare records that contained defamatory comments written by complete strangers in the care plans which were completely untrue.  I have had to go through and re-write these care plans myself to ensure accuracy and take out the lies.   I further decided to investigate where these strangers were based and traced two to St Ann’s Hospital.  The one who has written the worst comments seems to be invisible and I would like to know exactly where this woman is based.  Despite asking for these defamatory comments to be removed they still remain and I am far from happy about this.

My email to everyone was very effective I am pleased to say to the point that the care coordinator is now asking for the pin number but it is not good when you have to fight for things like this and what vulnerable people who are drugged up would have the energy to fight for things like I do.    I am more than happy to feature everyone’s account of similar dealings with their local areas as my guest bloggers so lets hear how many other similar cases there are elsewhere and I need to know which area so that this can be clearly recorded and posted to the right people via Twitter.

Before Elizabeth was assessed for the council placement, I was with registering for private accommodation/housing benefit.  She was meant to live at this previous accommodation due to terms of her CTO but was faced with eviction because of my justified complaints.    Despite 5 fumigations the bed bugs persisted  I came round one evening to find there was no bedding or anything comfortable for Elizabeth to sleep on as she quite rightly refused to go back to her bed bug infested mattress.  No furniture was allowed on the business premises so we were told.  This is in my lounge at the moment and it would be nice if we could have it delivered to Elizabeth’s new scheme. I will never forget the comments by one of the advisers at the housing office  “how did you manage that”  he said in terms of getting her out of this previous scheme where there was no front door key either.   So I told him how I had no choice but to complain but still he looked astonished that I had managed to get her out of a place that was clearly meant to last a lifetime, especially since they had issued a Death Plan questioning Elizabeth at age 31 as to what kind of music would she like at her funeral and how would she like to be buried and would she like to be resuscitated or not.    We as a family were excluded so I wonder how many more councils have issued similar death plans for young people –  I would like to hear which areas issue death plans and wonder how many areas are doing this kind of thing.

Following my email to everyone including MP Joan Ryan MP I am very happy to tell everyone that  bidding will now commence but it means Elizabeth will have to go over to a special centre in order that she can bid and who knows how long this will take but at least something is being done about it.

I will keep you all informed as to progress and I hope this will not take forever as Elizabeth has waited long enough.

I have asked to see my local MP, Joan Ryan not just about this but I have grave concerns about another area where there is serious abuse going on and I want the whole matter raised in Parliament.

 

 

 

 

 

 

 

 

 

 

 

 

 

Since 2017 Elizabeth has been in a supported living scheme, a house shared by two others and support worker but when discharged from Chase Farm Hospital Suffolk Ward there was no running water or toilet facility working or any utensils.   Water was not restored until mid-day the next day.   Elizabeth is now facing eviction due to the fact I have complained as she was sleeping on settee and floor due to bed bug infestation that has persisted over several months.

Elizabeth was drug free when discharged from Chase Farm Hospital.

 

Elizabeth was admitted to Cygnet Beckton in February 2017 because she stopped taking the Aripiprazole which led to severe withdrawal symptoms.

The NHS –  Suffolk Ward – Chase Farm Hospital allowed her to stop taking the Aripiprazole without titrating it down slowly/gradually leading to incidents that resulted in re-admission to hospital on two occasions when each time she was transferred back into the community drug free but on the second time support workers tried to give lorazepam regularly which Elizabeth refused.

Cygnet Beckton –  Feb 2017

Suffolk Ward – Chase Farm circa March 2017:

  • Beaten up by another patient around the head;
  • Threatened with homelessness by her RC if she did not choose her father as NR;
  • Dragged forcibly by three members of nursing staff into the seclusion room breaking her slippers for throwing another patient’s bag out when disturbed during the night by a male nursing member of staff bringing in another patient.

Trent Ward Edgware – transfer due to being beaten up by another patient around the head in the yard outside

Suffolk House – recovery house – transferred by Trent Ward.

Chase Farm Suffolk Ward – further admission.

Back into supported living scheme with different support worker again (drug free) and completely traumatised.

Suffolk Ward again with different RC  Dr HM (previously known to the family back in 2014 when Home Treatment Team infiltrated the Community Rehab Team for court purposes –  2014 “Deprival of Medication – community care”  followed by “DoLs – Ct of Protection case).  Elizabeth found to have full capacity and where care home manager CT of Stepping Stones – Phoenix House Northampton refused to give the drug Clozapine.  Noone under Barnet Enfield & Haringey MH would either supply the drug Clozapine leaving Elizabeth to the point of withdrawal after FOUR days (not two) without it.  My story “Get Her Back We Are Paying For That” refers.

Dr HM referred Elizabeth to Huntercombe Roehampton who diagnosed “high spectrum Aspergers.”   Elizabeth was so drugged up at Huntercombe on Clonazepam and Risperidone she could hardly see or stand.   Apparently the care is about choice of tablet or injection.   Huntercombe lost her camera phone held in their office.  Eventually due to proof  they paid £35.     Huntercombe Roehampton produced a report full of inaccuracy  documenting wrong medication/wrong date of birth/contradiction in diagnosis.

Transferred back to Suffolk Ward – illegally detained (apology letter) and held like a prisoner Section 5.2.

Deprived of seeing her family under Section 17 leave  “no to seeing mother off the ward”.  Elizabeth was deprived of going on holiday and to the Livestock Festival in 2017.

Once back from Huntercombe Elizabeth was still on Clonazepam plus Risperidone and of no risk to self/others.    She was held for months on end on Suffolk Ward under Section 3 by Dr HM.  All the time she was of no risk whatsoever but going downhill on the ward which is completely the wrong environment for her to be in.  From June to September Elizabeth was held on Suffolk Ward Chase Farm Hospital.   Elizabeth was then given leave again go back to the Simik Baytree Care – supported living scheme for the third time.

Throughout 2017 I was taken to RcJ (Displacement of NR) which I have already documented.  Enfield Community Rehab Team – AMHP SM took me to court – barring me as NR from preventing Section 3.   First Hearing went on without me as I was not given correct details for Court.  Second Hearing I attended despite court papers being wrongly addressed.    The Judge wanted to meet Elizabeth but I was forced to delegate my role as NR to Elizabeth’s sister who was not asked in the first place whether she wanted to be NR as documented.    Both girls were told that I was going to get enormous costs in court and would lose by the legal adviser appointed by Elizabeth who was found to have full capacity.  I was given a Consent Order and agreed to the delegation for a fixed term only.

In March this year Elizabeth appealed against her CTO and reports and care plan were produced by professionals under Enfield MH of the most disturbing nature – reported to Police.   Strangers had written on the care plan suggesting the very worst allegations and yet these reports were signed by two Doctors –   Dr IM and Dr NA.   I traced one of these people to St Ann’s Hospital and spoke to her and she said she had no idea that this was recorded under her name.

The kind of allegations are of a serious defamatory nature and this is evident throughout the file records designed to fail a tribunal by presenting the very worst picture of the vulnerable person concerned and her family – all done behind their back.    However I have acquired all the files and the decision of the most recent tribunal.

Because of the reaction of one of the staff in the MHA Office who shouted “get downstairs you are not the NR” this made me look thoroughly at my paperwork realising that the underlying section 3 was due to expire in July I decided to appeal and when I asked for the Barring Certificate –   I realised there was no Barring Certificate and that all along I have been NR and no one went back to court on 12th January and 4th June.   I had been requested to sign another consent order but could not understand why – I sent the original back which I thought was good enough but I had crossed out “The Respondent shall pay the Applicant’s costs”.     I heard no more except “thanks I will file that in court on 4th June”.

So for the past year Elizabeth has been deprived of her liberty – the conditions of the CTO is that she lives at the supported living scheme and they have done this by not giving a front door key.    A few days ago Elizabeth could not get into the scheme as no one answered the front door and this is so degrading not to give a front door key to the three adult residents assigned to live there.   For the past year Elizabeth has had nowhere to store her possessions and has been living out of suitcases and when we bought nice furniture this was not allowed onto premises by the businessman owner of the scheme. Then there was the bed bug infestation which Elizabeth was absolutely covered in bite marks.  It took months to sort out and Elizabeth says there is still a problem despite five fumigations and she is sleeping in another room.     Her possessions are all over the place in the bin vault, most at the family home, some in her room.  It is no way to live and this has been going on for quite some time and she is virtually living back at home and has mentioned her desire to come back home but we are waiting to see if Elizabeth can be provided with her very own place –  not a supported housing or living scheme but somewhere where she can live independently as now she has been out in the community for quite some time and seems to have settled down.

Now that I have established I am in fact the NR  I have appealed against the underlying Section 3 as no one agreed with the CTO in the first place and this is just being used to threaten Elizabeth and since she is complying with the drug Risperidone (previously found to be allergic to) none of us can see any reason why she should remain on a Section any more.   She is not as described in the files and the reports are truly shocking written by care coordinators such as BQ, MA and doctors who just put their signature on such inaccuracy probably without even reading the reports that cant even decide on the gender of the person – error after error recorded.

No to Section 117

No SOAD

Conflict of opinion in diagnosis where local area dismiss the findings of other professionals.

The latest is that every day and every weekend Elizabeth comes over to the family home.  She has applied for a voluntary job and college without any help.

Unlike the supported living scheme we have given Elizabeth a front door key and trust her to come and to look after her cat.

Noone got back to us regarding the medication.    Elizabeth was struggling to cut a tiny piece of the drug into four and was offered liquid form but first of all refused then agreed but her RC is on holiday right now.     A while back he agreed to a further reduction in the drug but Elizabeth was not ready but now she is on 150mg due to not being able to cut the tiny portion into four.

The latest is having appealed for the release of Elizabeth from Section 3/CTO a Managers Barring Hearing is being called.

The amount of time taken up by professionals at these Tribunals/Hearings is incredible.  I was not invited despite having proven I am in fact the NR but Elizabeth told me about it.

I will let you all know how everything goes and whether I am once again dragged back to court and treated like a criminal by the social worker who has written in the most disturbing manner and I can honestly say that evidence to the court has been untruthfully presented and I can prove it.

Elizabeth is fully aware of everything right now because I explain things to her and treat her like a person not like an object.

Some people have a NR who does not bother to ask for release and that person becomes totally trapped in the system.    Elizabeth has been sent all over the place, the furthest has been Cambian in Wales.  None of the institutional care has helped her in any way yet professionals say it has.   This is far from true because in these hospitals patients are drugged enormously.

Recently I attended an event at Doughty Street Chambers where I met other parents who had relatives kept prisoner for 8 years or so.  Elizabeth came out of Cambian after 18 months and sent to a care home where they tried to deprive her liberty.

Its all down to money but money is being wasted in the wrong direction.

A vulnerable person sent hundreds of miles away from home and family is totally wrong then they get drugged and go downhill.

So Elizabeth tells me that her current RC is amazed at her recovery.

I would add that we have more than proven by sending her away with private MH professionals for four months that given the right care someone can get well and we did not recognise her when she came back on a fraction of the drugs but she was able to talk for the first time and tell us all what happened to her under care going back to 2010.

Elizabeth has said she just wants to do things in her own time and cannot be rushed – she cannot take in too much information at one time but it is when she is left to do things without being pushed to do so she has shown inner strength.

What I would like to see is Elizabeth given a place of her own where she can live independently.

I would like to see her being given the opportunity to see a SOAD.    She is under a MH scheme in the community and she says that people do not understand her.

We as a family have learned a lot in terms of communicating with Elizabeth and seeing her on a daily basis and that is why we are all getting on so well right now.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

ECT statistics

Mental Health Today (MHT) has been trying to get some statistics about electroconvulsive (ECT) use from NHS Digital. Although MHT asks for donations on their website, it is not a charity but rather a publishing company, Pavilion Publishing and Media Ltd. MHT has taken their case to the Information Commissioner’s Office: “an investigation involving Mental Health Today and the Information Commission enters its eighth month”.

NHS Digital (the new name of the Health and Social Care Information Centre) apparently wanted £21,000 to provide MHT with statistics. They are quoted as saying:

“ECT is within [our] scope. However, we do not have statistics available for use of ECT and this is not currently a priority agreed with NHS England and the Department of Health and Social Care for development. In theory, if ECT is used by providers it should be being submitted to [NHS Digital] by providers. However we cannot confirm…

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