Archive

Uncategorized

There seems to be a problem with Elizabeth’s phone.  She phoned me tonight on the office phone from Ruby Ward.  Sounded disorientated.  On such a lovely day it is so hard to think of my daughter and others cooped up on wards such as this and it has been some time now since Elizabeth has had fresh air.   If she was here now I would take her for a drive to the coast but feel in total despair particularly when I finally heard from her tonight talking about an injection.   I decided to phone the ward and it sounded like Haloperidal.   Either she had had an injection or was about to.   I’m glad I did phone the ward as I heard the plan was to put her on depot injections tomorrow apparently.  Elizabeth’s condition is complex PTSD.   Under NICE Guidelines the following is stated:

Drug treatments for adults

  • Drug treatments for PTSD should NOT be used as a routine first-line treatment for adults (in general use or by specialist mental health professionals) in preference to a trauma-focused psychological therapy.

Elizabeth has been crying out for therapy not drugs and was trying to arrange this herself in the absence of any care whatsoever provided by the local area of ENFIELD.   I cant believe that Ruby Ward is considering this especially when they know that Elizabeth is “treatment resistant” and cannot metabolise the drugs.

She has twice now been put in the community without any care in place.

She has been let down by the PRIMARY CARE in ENFIELD.

I am going to write to Dr Sarkar who is the Responsible Clinician to voice my concerns tonight.   I have seen better things on offer at this hospital than in Enfield for instance Psychodynamic Psychotherapy.

Up until now I do not think that Elizabeth has had any therapy and has been drugged up on Clonazepam to the point that you could hardly hear what she was saying,as she was talking in a slurred manner.

My concerns are that under Secondary care due consideration is not being given to a patient’s physical health and I would like something done about this.  Elizabeth needs a thorough check on her physical health and it is negligent of any Doctors to ignore this.  I have already proven there are physical health problems.

Before any thought of depot injections is given Elizabeth’s physical health concerns need to be addressed by Doctors who specialise in the field of Neurology and Endocrinology as Elizabeth has a full report by Dr Bob Johnson stating Complex PTSD –  Dr Mukherjee from Enfield had to agree to this following the Wonderful care I provided for Elizabeth in 2016 when she came back from Australia well.   So it is not drug treatment that is the right thing for someone with complex PTSD and I have seen that at St Pancreas Hospital they have the right treatment on site.  Never before has Elizabeth had EMDR but Dr R D Laing’s friend and former colleague wrote to me: Psychiatrists are usually just physicians and not trained psychoanalytically.  Denis Berke and R D Laing were psychoanalysts.  It might take longer to treat someone with psychoanalytical psychotherapy and without drugs but it is successful.  It is up to a psychoanalytical psychotherapist to assess someone as suitable for that NOT A PSYCHIATRIST.”  “I was once asked at Kings College Hospital London what drugs I used when treating patients with psychosis.  When I said that as a psychoanalyst I did not use drugs they were shocked.  I was shocked that they were shocked”.

Today was a meeting at the hospital which in the end I was included but what I find happens is that Doctors try to say that the patient does not want to share information.  On so many occasions Doctors hide behind “confidentiality” only this time there were witnesses to the contrary.   If only there was a better system over here like in Norway and Finland with Open Dialogue.   I’m writing about this at the moment in my book.  Transparency, openness and honesty are the key and inclusion rather than exclusion.

Elizabeth has been totally damaged by her treatment under the mental health and right now it is worrying as no visitors are allowed on the ward and meetings are on line.

I am going to write now to Dr Sarkar as it is therapy not drugs that is needed and referrals to an Endocrinologist and Neurologist.  You cannot treat someone with a physical health condition with psychiatric drugs of any description and therefore these physical tests need to be done first as primary care comes first or should do and this is certainly not the case in Enfield.

Finally the GP surgery locally had been stating that all non emergency appointments had been put on hold but when something is bothering someone so much like Elizabeth who was suffering from chronic pain this should be another matter.  No it is not true that no scans were taking place because I enquired and these could have been done.

The other thing is Elizabeth has constantly complained that no one understands her and I cannot wait until the mandatory training is put in place.  How many like Elizabeth are lumped together with MH and there is a language barrier.  This training can’t be soon enough as far as I am concerned.

https://www.learningdisabilitytoday.co.uk/prevent-avoidable-deaths-by-making-autism-and-learning-disability-training-mandatory

Due to the Cornavirus crisis Elizabeth was discharged from Section 3 by Chase Farm Hospital Enfield.  She had ended up on section 3 through no  care provision in the community since July 2019.  She withdrew “cold turkey” from “medication” that was giving her terrible side effects and , as  seen before, too steep a withdrawal led to withdrawal syndrome.

I was initially going round  to help her within her in the flat with cooking etc and taking her out for drives plus assisting with shopping.  I took her to an emergency chiropody appointment but, once again, no support locally.

With nothing to do in the community what with social distancing/isolation Elizabeth was back in the same situation as she was previously.

Now she is in a worse position.  I could see her going downhill because of the steep withdrawal. With no doctors wishing to help in terms of slow, gradual withdrawals  for convenience sake vulnerable people like Elizabeth are kept on these drugs long term.  This is done with disregard to Manufacturer’s instructions of up to 6 weeks and has resulted in injury to physical health.

I have been challenging the diagnosis for many years now as there are so many different diagnoses in the files and would dispute Schizophrenia.  The term “treatment resistant”  (poor/non metaboliser) has been dropped since the Bethlem (Bedlam) where Elizabeth was prescribed 2 x bnf levels of drugs.

It has been like a brick in the wall trying to tell certain Doctors that there are underlying physical health conditions clearly recorded in the files as follows:

Anterior Region Medial Temporal Compromise –  2009  is a brain injury.  This is in a report from UCL.

Headway stated this  was the “wrong kind” of brain injury but what it boils down to is funding.  Their funding is through North Central London CCG and they provide brain injury/trauma services for Enfield so I told them a brain injury is a brain injury and NOT a psychiatric illness and was discovered way back.    I astonished that I as just a mother have to point out these facts to professionals.

Having come off the drugs cold turkey, Elizabeth was suffering from chronic pain, no doubt as a result of having been on these drugs for so many years. She did not feel at all well and being isolated without care and support she started to phone Police again who she regarded as “friends” then Ambulances were called and Elizabeth did not want or need an ambulance.  Eventually the care coordinator started to visit her home but just visiting was not enough  as there was no structure in care. If Elizabeth was in a place like Camphill Community Trust that offered activities then she would not be back to square one.  Elizabeth would be better placed in one of the Camphill Community Trust’s projects or a care farm and this would be a much nicer environment than a PICU ward and could benefit all the patients as Elizabeth loves animals.   There would be no need to drug her if she was in the right environment.  Whilst the flat is the best accommodation she has ever had without any support whatsoever this is not good.   The accommodation provided under supported living and housing in Enfield has been awful.

I spoke to Elizabeth today currently on Ruby Ward, St Pancreas Hospital.  She has got her phone back after being it without for about a week whilst held in seclusion from around 12 May to 16 May in a Section 136 suite at Chase Farm Hospital which is dreadful.  I sat in the foyer of Chase Farm waiting for news but was not allowed any contact then after she had been moved without the chance of even saying goodbye,  the phone was left behind in the safe on Dorset Ward so I had to travel all the way up to St Pancreas Hospital.  The nearest station was closed and so I had to get a bus part of the way.   I was not allowed to enter the building neither  I am not allowed to visit Elizabeth so I just left a bag of food and clothing and handed her phone to the support worker. Elizabeth has not been tested for Covid 19 yet as normally patients are kept in isolation whilst results are sent back between 24 – 48 hrs.

At least we can get through to her on the phone now but from the phone call I received today, Elizabeth  does not sound too good and sounded very drugged up and her voice was slurred.  She is apparently on Clonazepam again.

One reassuring thing is that a former patient has said good things about this hospital that there is far more going on than locally and I think I have heard good reports about the RC Dr Sarkar from a friend but I will check later to make sure this is the same Dr Sarkar. I was told he reads all his emails which is a good thing as I have sent lots of attachments including the P450 liver enzyme test results of NON METABOLISER.

I will probably go and visit later on in the week with some more things  but I am concerned that she should not be on the clonazepam for too long and that she needs to be referred to the Psychodynamic Psychotherapy Department that I spotted on my way out of hospital premises.

Dr R D Laing’s friend/former colleague told me: “I was once asked at Kings College London what drugs I used when treating patients with psychosis.  When I said that as a psychoanalyst I did not use drugs they were shocked.  I was shocked that they were shocked”.    I have sent these important comments on to Dr Sarkar.  Now I have spotted the kind of care onsite,  I hope that Elizabeth will be given the opportunity of a visit from a psychodynamic psychotherapist.     I have informed Dr Sarkar that Psychotherapy helped Elizabeth enormously in Scotland and Australia.   Therefore she needs to be on next to nothing of drugs and on the day of such visit, must not be given y Clonazepam at all.

I have also told Dr Sarkar that in light of Anterior Region Medial Temporal Compromise an  MRI Scan needs to be done.  Unfortunately Carlton House Surgery wrongly said  no scans were taking place right now so I have seen this in their text message.   Well I have looked into this – that is not true at all, as I was looking to pay for the scan.   With a brain injury how can this be treated with any anti-psychotic drugs and I do not wish for Elizabeth to suffer further injury when I have proven that in Australia and Scotland psychotherapy worked and EMDR should also be tried.  It seems to be that funding is the big issue but in my opinion enormous money has been wasted by provision of wrong care and treatment  so now I would like to see the right care and treatment provided, as if this was provided in the first place Elizabeth would not be in the current situation.

What is letting so many  vulnerable people down is total lack of care and support in the community which leads to them ending up back on the acute wards which could not be a worse place for them in my opinion as drugs given which are NO CURE.

The answer is to send such patients to nice quiet peaceful natural environments in the countryside and there needs to be more centres like Camphill Community Trust or Care Farms.  These are the right environments for Elizabeth to get well and I have proven this already  @Rightful Lives “My Wonderful Care” by Elizabeth.

Message for the RC  Dr Sarkar and Team: 

  • Elizabeth needs an MRI scan and special emphasis on the pituitary glands and candida/parasites
  • An Endocrinology examination follow up by a specialist which I will detail in my next email.
  • Referral to the Professor – an expert on PTSD in Lincoln.
  • A referral to Brain Injury Specialists and provision of the specialised trained support workers needed in the community
  • A referral to the Psychodynamic Psychotherapist on site and to try EMDR
  • I would point out that Hypnotherapy was more effective than the drugs and if any medication should be given it should be natural medication –  If Elizabeth is suffering from chronic pain then she needs to be referred to this clinic in Manchester.   I can take her there myself.

Britain’s first medicinal cannabis clinic opens in Greater …

https://http://www.theguardian.com/society/2019/mar/09/britains-first…

09/03/2019 · Britain’s first medicinal cannabis clinic opens in Greater Manchester A new private clinic in Greater Manchester has become the UK’s first specialist medicinal cannabis centre.

Instead of all the antispychotics previously prescribed stated as having “NO EFFECT”  medical cannabis is well worth a try.  This coupled with the Endocrinology and MRI tests and Psychodynamic therapy will be the cure of Elizabeth.   It might be a good thing to offer hypnotherapy as this treatment was most effective.

What is needed is to look at individual cases.  There might be some patients who may benefit from drug treatment and are happy to take it but when someone gains no effect from these drugs and are treatment resistant then other alternatives need to be found.

Also Physical health should be of prime importance.

Most of all we need the facility like Chy-Sawel where safe drug withdrawals in the UK can take place.  None exist in the UK so we need more therapeutic communities offering the facility and assistance for vulnerable patients who are not getting on well with the drugs to withdraw from them safely and proper assessments on physical health prior to mental health diagnosis.

PHYSICAL HEALTH MUST COME BEFORE MENTAL HEALTH LABELS AND PROPER ASSESSMENTS NEED TO BE DONE PLUS THE p450 LIVER ENZYME TEST THROUGH LIVERPOOL UNIVERSITY.

 

 

 

Ive been at Chase Farm Hospital Enfield most of the day waiting for news as none of us in the family can get through to Elizabeth who is without her phone and held in seclusion in the 136 ward whilst on Section 2.

Elizabeth was upset when she called into the GP surgery.  There has been dispute between the GP Surgery (Carlton House) and Enfield CCG about funding for an MRI scan. Elizabeth has been complaining of chronic pain not surprisingly when you have been put on massive dosage of drugs and 2 x bnf levels for instance at the Royal Bethlem Hospital as documented in the files.

Not only should an MRI scan be done but also Endocrinology and ECG and this is the responsibility of the GP but when someone is autistic defined as LD such vulnerable patients get ignored and this is what has happened so I had to get involved.  Same old story about confidentiality and I have POA too but no one would speak to me but I did get to hear that it was not the GP surgery but Enfield CCG who had refused the funding. Then Enfield CCG said it was not them but the GP Surgery so I have had to write to everyone about this important matter as the correct ward is a brain injury ward in order that all the correct assessments can be made and at the same time checks on the endocrine disorder that I have proven.

So I found out she was put on a mixed ward which was a big mistake and I said so but no one listened then left on the Section 136 ward in seclusion so today I have been up with some clothes and a phone charger and some food but none of us have been able to speak to Elizabeth to see how she is.

The little ward for brain injury trauma would have been the correct ward at Edgware for her to be assessed but now I have heard ENFIELD MH are looking for a PICU bed and this is not good.  Could be far away and I am not well and now I will have to travel a long distance.

No visitors are allowed on the ward and I did not see staff dressed in PPE yet the procedure should be that someone is tested for Covid 19 and put in isolation for between 24 – 48 hours which is fair enough but what if that person has got Covid 19 and none of the staff are wearing any protective clothing.  They might have a flimsy mask or gloves but not PPE.  I am extremely worried as they want to send her a long distance away.  The furthest she has been sent is Wales to Cambian and none of these private institutions have offered the right kind of care.  At Huntercombe she was so drugged up she could barely stand or see.  She spent most of the time asleep which I suppose is convenient to the staff.   She was prescribed massive dosage of drugs they knew full well she was allergic to so it is no wonder why people die in these places so today I wrote the following email to the following:

———- Original Message ———-
From: Susan Bevis
To: enquiries@braininjurygroup.co.uk, matt.hancock.mp@parliament.uk, boris.johnson.mp@parliament.uk, Jeremy Corbyn <corbynj@parliament.uk>, HSCCOM@parliament.uk, rosena.allinkhan.mp@parliament.uk, feryal.clark.mp@parliament.uk, NPL.Consulting.Ltd@gmail.com, carltonhouse@nhs.com, enfccg.communications@nhs.net, enfccg.patientenquiries@nhs.net, “KANDOLA, Jinjer (BARNET, ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST)” <jinjer.kandola1@nhs.net>, nora.brennan@headwayeastlondon.org, concerns <concerns@cqc.org.uk>
Date: 14 May 2020 at 22:27
Subject: DEPRIVATION OF LIBERTY CHASE FARM HOSPITAL ENFIELD – ELIZABETH BEVIS

My daughter is stuck on a section 136 ward since 12 May 3.00 pm in seclusion not allowed a telephone and not allowed to go out for any exercise.   None of us in the family can contact or speak to her to see if she is OK.

It seems like money is being put before the wellbeing of the most vulnerable people like my daughter in the UK when she has been refused an MRI scan and should have been checked with ECG and endocrinology and nothing has been done under Enfield.

 

Anterior Region Medial Temporol Compromise is NOT  a mental illness it is a brain injury and I want my daughter placed on the correct ward – (nearest I believe is Edgware) so that she can have all the correct assessments done on her brain injury and whilst she is on a Section 2, thorough assessments should be done on her PHYSICAL HEALTH including Endocrine System.    She has physical health problems that cannot be cured with antipsychotic drugs and is a poor/non metaboliser of the drugs so they do not work in any case.

I do not want to see her injury deteriorate further and would therefore like everything addressed in Parliament as to the Mental Health Act which is not fit for purpose and failing to protect vulnerable people like my daughtrer.  Physical health must come first after all it is stated in the DSM.

In Norway they have got it right thanks to Professor Goetszche – no forced drugging of mental health patients.  There needs to be better facilities – noisy/volatile wards are not the right place for my daughter to be sent to.  There has been no care in the community because so much money is being wasted on private sector institutions such as Cygnet and Huntercombe even the RCs there agreed that this was the wrong environment and is costing the public £14000 per week when this should be spent on community care and improving the care under the NHS.

I am not supposed to be going out because I am regarded as being extremely vulnerable but have no choice as I might have to travel to visit the hospital wherever my daughter is sent even if it is hundreds of miles away-  there are no decent facilities in the UK so at least please look into providing the right facilities to investigate the brain injury.

It is a really bad to put someone with LD/autism/PTSD and brain injury onto an acute or picu mental health institution and keep her like a punishment held in the Section 136 ward all this time.  Then I heard she is being sent to a PICU ward and I am most upset about this. PICU wards have not helped in the past and has been a complete and utter waste of public money.

I would like something done urgently before my daughter is moved God knows where because this is affecting my health severely and I have had a stroke because of having to fight for the right kind of care in this country that should be treating people in a humane manner but this is not happening.  She has been sent as far as Wales by the Royal Bethlem Hospital in the past.

I totally disagree with the email from Headway (Nora Brennan)  –  a brain injury such as detailed in a report going back to 2009 should NOT be dismissed and should be properly assessed not ignored. I feel my daughter is being discriminated against under the Equality Act as she has a brain injury.   If the brain injury was discovered as far back as 2009 then why has my daughter been experimented on and given 2 x bnf levels of drugs at the Royal Bethlem Hospital National Psychosis Unit in 2012 where she contracted tachycardia on Clozapine?   Doctors should do no harm and you need to look into some of the doctors who are prescribing dangerous levels of drugs to vulnerable patients and killing them – take a look at the attached example of polypharmacy and shocking degrading research on clozapine.   There needs to be tighter guidelines on prescribing and accountability.  When the GP and CCG do not wish to provide the assessments on physical health I am having to turn to everyone as this needs to be sorted out as my daughter visited countless times to Carlton House Surgery Enfield to ask for help as she was suffering from chronic pain.  Also no way should she have been left in the community in a flat on her own without any support whatsoever.  What is needed is more support in the community for vulnerable people, direct payments helped keep my father with Alzheimers out of home for years and this was refused by Enfield Community Rehab.  Once again down to funding.

I look forward to hearing from you.

 

Kind regards

 

SUSAN A BEVIS –  Mother, Nearest relative and McKenzie Friend

 

 

 

Dear Susan,

As I said in an email last August, Headway East London is commissioned by Enfield CCG to deliver the Enfield Brain Injury Service.

Under our contractual obligations with Enfield CCG we are limited by very strict criteria. In order to accept a referral we need documented evidence of an aquired brain injury. This must include scan results, date of injury, mechanism of injury eg: road traffic accident, assault. This can be a discharge report from acute admission following an injury or a therapy discharge report.

 

 

 


From: Susan Bevis
Sent: 11 May 2020 11:48
To: Nora Brennan <nora.brennan@headwayeastlondon.org>; carltonhouse@nhs.com <carltonhouse@nhs.com>
Cc: feryal.clark.mp@parliament.uk <feryal.clark.mp@parliament.uk>;  NPL.Consulting.Ltd@gmail.com <NPL.Consulting.Ltd@gmail.com>
Subject: ANTERIOR REGION MEDIAL TEMPORAL COMPROMISE

Dear Ms Brennan

I refer to your email back in 13 June 2019 at 16:29 in which you stated“unfortunately Headway are unable to diagnose brain injury or influence any medical investigations.”You also went on to state “we are only able to accept referrals for those who have a confirmed diagnosis of brain injury and can provide evidence of this”.

I have had a chance to look extensively at the file records I have and check with Headway where I spoke to a former mental health nurse who confirmed to me that Anterior Region Medial Temporal Compromise is in fact a brain injury whereas my daughter has been treated for a mental health condition by maximum amounts of anti-psychotics 2 x bnf level when all along she had a brain injury.

I have had extensive Endocrinology tests done on my daughter Elizabeth Bevis to prove that she has PCOS and is insulin resistant.  With a faulty endocrine system and being treatment resistant to anti-psychotic drugs the entire pituitary glands could be blocked and in addition cyst was discovered in an MRI scan and I am trying to get up to date scans done.

My daughter also has Neurology reports stating mild tardive dyskinesia as she was making sharp arm movements when she was walking.

She now has chronic physical health condition and suffering joint paints and has balance problems and this as affected her eyesight too.

I do not like the way my daughter has been dismissed or the way her physical health for many years has been ignored by doctors in favour of a mental health diagnosis that none of us can accept.  I would appreciate your comments in this respect.

Attention of The Rt Hon Feryal Clark MP

Please can you help get the referral to brain injury specialists Headway along with the services of specially trained brain injury support workers in who can assist and communicate effectively with her to enable her to live independently within her own flat and wider community  None of this is being provided under mental health services who are not specialists in brain injury.    I think it needs to be recognised that there are many more people like my daughter under mental health services who need more specialist input and if hospital admissions are necessary, then this should be on a specialist ward for brain and trauma injury not an acute mental health ward where antipsychotics are given to suppress not cure the symptoms that are not of mental illness but of brain injury.  After all, how can you treat a brain injury with anti-psychotic drugs?

I also feel that under the mental health, physical health is largely unexplored or ignored and not assessed properly and I am just a mother but have had extensive tests done privately to prove that there are underlying physical health conditions in this case and the diagnosis therefore can not be Schizophrenia.

It should be addressed in Parliament that vulnerable people who sustain injury or in Elizabeth’s case had a pre-existing injury identified from the beginning should have access to proper assessments before a mental health prognosis is given.

To Whom It May Concern – Carlton House Surgery

Please refer Miss Elizabeth Bevis  to Headway brain injury specialists as, it is clearly mentioned in files going back to 2009 in the report by Dr Diana Caine UCL that she has Anterior Region Medial Temporal Compromise.  In addition please refer her to an open scanner for MRI and to a Reproductive Endocrinologist specialist as recommended by Professor Hooper for the necessary check up on the PCOS already identified which should be done on an annual basis.  Also she will need ECG tests due to tachycardia sustained through the titration of clozapine – the irregular heart beat should be monitored regularly.   The Neurologist, Dr Kennedy also mentioned tests for Wilsons Disease but these were not done and should also include Ehlers Danloss Syndrome due to balance problems.  Everything should be explored as after all, it is stated in the DSM that a mental health diagnosis should NOT come before any physical health condition or in cases of drug induced/withdrawal psychosis as was the case due to Prozac withdrawal cold turkey which was prescribed by Carlton House Surgery in the first instance.

Att:  Sir Norman Lamb

As Chair of South London and Maudsley Foundation Trust I would comment on the fact that there needs to be much improvement at the National Psychosis Unit who prescribe drugs at 2 x BNF levels and did not carry out the drug free period of assessment recommended correctly and then sent Elizabeth to Wales where attempts were made to displace me as Nearest Relative and isolate Elizabeth from her family.   This is supposed to be a world renowned hospital but I am afraid I have not got a good word to say and have all the files on this hospital that I would rate rock bottom.  No contra indicated drugs should be given to treatment resistant patients like Elizabeth as I have proven that she cannot metabolise the drugs and what should have been done is extensive endocrinology tests which I paid for myself which revealed underlying physical health conditions.

Yours sincerely

Susan Bevis

 

What lengths do you have to go to in order to highlight what is wrong under the NHS in this Country.    I could not see that staff were being protected and patients and as I sat there in the foyer nearly all day long requesting that Elizabeth be sent to a ward where they can investigate the brain injury and refer to other specialists only to hear she is being sent to a PICU ward which has already in the past been a complete waste of money and these wards isolate patients and they are put on high levels of drugs such as Huntercombe Roehampton –  Every single drug has been tired on Elizabeth and Clozapine was one of the worse.  To this email I attached an example of meds prescribed at Cygnet and horrific research on Clozapine that caused tachycardia and also the P450 liver enzyme tests that showed NON METABOLISER.  Now that I have seen and studied the files going back to 2009 I want to know why Elizabeth’s physical health has been ignored and in addition why is everyone’s physical health being ignored under the mental health system especially when it is proven there are underlying physical health problems that the GP should have investigated.

ON two occasions now Elizabeth has been discharged from hospital to her flat where she lives independently but she had NO SUPPORT under ENFIELD.  This is an area that have spent a fortune on legal action against me and now in despair I have had to contact everyone as when a vulnerable person goes time and time again to the GP and is calling ambulance and police out this person needs to have their PHYSICAL HEALTH investigated especially when they are complaining of chronic pain.

I would also like to see accountability in terms of prescribing because such drugs cause injury.

I feel Elizabeth has been discriminated against – to be told by a brain injury specialist that this is not the right kind of brain injury is not satisfactory.  A brain injury is a brain injury and I have checked the condition Anterior Region Medial Temporal Compromise.

The care coordinator has sent me the following but I have responded with:

.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2927029/

https://pubmed.ncbi.nlm.nih.gov/9276847/

“I am sceptical about the brain study for a number of reasons.  The cohort is not, as the article suggests matched to the control by the very presence of neuroleptics.  In my school we would consider that a major confounder similar to the ADHD study done some years ago.  Neuroleptics significantly alter brain function and the study has not properly accounted for that as a factor in the MRI results.

Brain scans are notoriously inaccurate in determining mental functionality.  I was involved in a study like this some years ago where there was all an indication of ‘abnormal’ pre-frontal activity.  It was totally inconclusive and a number of us considered the study itself unethical.  

One of my students has just done a research project on how SSRI’s prescribed long term affect brain architecture.  Long term use of neuroleptics alters brain function significantly.  In short it would have been extremely unusual if the MRI scans of the cohort and the control matched.  The age range of the patients (18-65) is far too broad and is again a major confounder in considering brain function.  Some of those patients will have been on neuroleptics for decades including hideous drugs like Largactyl and Stelazine.  Extrapyramidal side effects in that group would be highly pronounced and not in the control.  Matching the images is therefore useless.   

The study talks of impaired cognition in the patients in the cohort.  The neuroleptics given over such a period would cause that just as acutely as any suggested lesion.  Once again this means the control is not matched.

The Harrow study has carried out a proper comparison of cognitive function between patients with psychoses continually medicated and a properly matched control of those who had psychotic episodes but were not medicated.  The cognitive function in the non medicated group was higher than that of long term medicated.  

My overall assessment is the study is flawed in the absence of a proper evaluation of the confounders.

I, by the way do not consider the ‘diagnosis’ of schizophrenia to have any scientific merit at all and no longer classify patients with this label.  ”   

A real life case of medication prescribed to just one person below – how is this allowed to go on in the UK with no accountability? 
Regular Medication:
Sertraline 200mg mane;
Depakote 750mg BD;
Mebeverine MR 200MG BD; Metformine 1G
bd; Atorvastatin 40mg OD; Omeprazole 20mg
mane;
Furosemide 50mg mane; Dapaglifozin
10mg mane; Diazepam 5mg TDS;
Colecalciferol T OM; Kwells 300mg TDS;
Clozapine 225mg BD .
PRM Medication:
Ibrufen 200-400mg up to QDs;
Epipen 0.3mg
up to 0.9mg; Cyclizine tab 50mg up to
150mg;
Procyclidine 5mg PO max in 24 hrs
10 mg; Olanzapine 2.5-5mg max 200mg (PRN
+ regular); Promethazine 25-50mg max dose
100mg in 24 hrs;
Salbutamol 100mcg;
Glucogel/Glucsgon T; Corsodyl ; Lactulose;
Stat dose of Clopizol Acuphase given on 3
occasions since admission – forcibly injected.
Estimated stay at Cygnet 2 – 3 years but this
young person has been in there 8 years.

 

THE LABEL OF SCHIZOPHRENIA SHOULD THEREFORE BE ABOLISHED AND I have the most accurate report from Dr Bob Johnson (complex PTSD)  Intensive trauma therapy required and then Dr Moncrieff suggested Endocrine tests so why aren’t these tests being given to all MH patients first before a mental health label is given that is highly inaccurate and damaging in that the treatment caused injury when there are underlying physical health problems.   Why does autism now come under MH?  Under MH there is not the specialist care needed for brain injury, LD or autism and this is where something needs to be done.  If there is a shortage of beds under MH then Elizabeth could have been referred to the brain injury and trauma ward to have the referrals/assessments she requested which was not provided by her GP.

The MHA should be there to protect vulnerable people but vulnerable people are not being protected and their lives put at risk especially during this disturbing time and- every effort should be made to enable family contact which is not being done especially when you can no longer visit on the ward.

I will let you all know when or if I hear from any one of the above in this important matter that concerns so many under mental health.  This is certainly a test to see who really cares about the weak and vulnerable in the UK and this goes to the CQC – this is not just an individual case to be investigated as many people are being affected especially those who lack communication skills because they have a brain injury.

enquiries@braininjurygroup.co.uk, matt.hancock.mp@parliament.uk, boris.johnson.mp@parliament.uk, Jeremy Corbyn <corbynj@parliament.uk>, HSCCOM@parliament.uk, rosena.allinkhan.mp@parliament.uk, feryal.clark.mp@parliament.uk, NPL.Consulting.Ltd@gmail.com, carltonhouse@nhs.com, enfccg.communications@nhs.net, enfccg.patientenquiries@nhs.net, “KANDOLA, Jinjer (BARNET, ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST)” <jinjer.kandola1@nhs.net>, nora.brennan@headwayeastlondon.org, concerns <concerns@cqc.org.uk>

 

 

Just before Xmas I was admitted to hospital and underwent major surgery with intensive care in January.    I experienced the very best of NHS care and have since then made good recovery.

On my return from an outpatient’s appointment Elizabeth called in distress to say a professional had turned up at her home stating they had a warrant and that she had to go to Chase Farm Hospital for assessment and was subsequently held under S 5.2.  I do not know if relevant paperwork was in fact produced or the full details of what actually happened.   I did witness a prior visit from the community Consultant Psychiatrist and AMHP a week prior to Elizabeth’s flat where they assessed her as going downhill as she emotionally reacted in front of them.    Elizabeth had been calling Police who she trusted but unfortunately they would then call for an ambulance and Elizabeth would end up at the Horizon Suite, North Mid Hospital, where on one occasion they restrained her and forcibly injected her.    We all  dispute the MH diagnosis due to considerable conflict in the files and feel that Elizabeth has been misdiagnosed.  She spends a great deal of her time analysing what she believes to be her condition which is autism/Aspergers.  However, she has a full report by Dr Bob Johnson of accurate content which points to complex PTSD.

Before Xmas Elizabeth requested a  transfer to the Integrated Learning Team, River Front Enfield but the application was declined by a Doctor there without proper assessment/face to face consultation.

With Elizabeth sectioned once again solicitors were appointed for the forthcoming Tribunal which was cancelled twice.   I discovered paperwork was drawn up unlawfully which meant Elizabeth spent c7 days on the ward before correct paperwork was produced.    Elizabeth had won the grand sum of £1 in compensation for a previous illegal detention of 16 hours but now the same thing has occurred again but for a longer period this time.    I as  Nearest Relative looked into the unlawful paperwork thoroughly and Elizabeth shared with me section papers and reports for court purposes which I had a mammoth task in correcting.  I feared the hospital RC was deliberately trying to exclude Elizabeth from her own Tribunal so I as Nearest Relative sent all the corrected reports directly for the attention of the Judge, together with the most recent capacity assessment reports and others, which all pointed to the fact that Elizabeth had full capacity.    A different way of communicating confuses professionals to come to the conclusion that a patient does not have capacity when in fact it is the team who do not understand as they have not had the correct training.  This is why I support the campaign below by Paula McGowan for mandatory training for autism care.   Elizabeth’s mental health team were doing exactly the same, prescribing  Risperidone, Elizabeth was previously found allergic to and ignoring the evidence of this in the medical files.   The unscientific label of Schizophrenia is contested throughout her medical files which the team choose to ignore and stick with this label for their own convenience.  I would perceive this diagnosis as to be an umbrella label for underlying physical health problems that comes with it a treatment of harmful anti-psychotic drugs which some psychiatrists wrongly feel should be given for life.  Certainly they ignore the manufacturers instructions of 6 weeks.   It is clearly recorded that none of the drugs work as Elizabeth is “treatment resistant” – poor/non metaboliser.

A mother’s campaign for autism care equality for all – BBC …

https://http://www.bbc.co.uk/news/av/uk-politics-45941597/a-mother-s-c

22/10/2018 · A mother’s campaign for autism care equality for all Paula McGowan’s son Oliver died aged 18, after hospital staff gave him a drug that he had pleaded not to be prescribed, having previously suffered a bad reaction

Paula told BBC Politics Live she believed the death of Oliver, a high functioning autistic teenager from Bristol, could have been avoided if the nurses and doctors were trained about learning disabilities and autism.

Since his death, she has campaigned tirelessly for mandatory training for NHS staff. Her campaign will be debated in Parliament on Monday afternoon.

 

Covid 19 – Mental Health Care

The current situation of lockdown this has made things extremely difficult for those with mental health problems as well as many who have never had mental health problems previously because of social distancing.   Elizabeth is stuck under the mental health team and is supposed to get a phone call twice a week from her care coordinator.  Her trust has been understandably damaged in a team who have drawn paperwork up illegally for sectioning and not provided any support and the priority has been to get rid of her mother as the Nearest Relative when in fact her mother has thoroughly looked into everything in the best interest such as Open Dialogue for instance.

Elizabeth has been coping reasonably well at this awful time.  My life as a carer has always been under “lockdown” in terms of having little time to myself, juggling work with caring responsibilies.    As for social distancing as I am a carer I give Elizabeth practical help, such as shopping, cooking etc that enables her to be in the community but even with this support there are times when it is difficult.   It is practical help that is needed and also if Elizabeth could have psychotherapy over the phone.  This is something I have been looking into with the Free Psychotherapy Network as I am sometimes deluged with calls from her. With everything at a standstill all appointments are on hold – the mental health team are keeping their distance which perhaps is a good thing as their visits disturb Elizabeth who thinks they are going to section her.

Physical health is neglected on the acute ward and Elizabeth had been in agony with her feet.   I did manage to get a chiropody appointment and an operation which took place about a week ago.

I can understand social distancing in terms of professionals keeping away but this is a time during which even those who have never had mental health problems can suffer.

Elizabeth is not so anxious about Covid 19 but about getting her diagnosis for autism completed and a Neurology appointment to look at the benign tumour which is disputed most recently in the files.   I feel sure that Elizabeth’s condition is physical.

I feel sorry for those who are trapped right now in mental health institutions not allowed out or to have visitors and also care homes.    Elizabeth would quickly go downhill in such environment and also an institution where psychiatric drugs are given that compromise the immune system and are contra indicated to physical health treatment.

Certain drugs could raise the risk of serious coronavirus …

https://http://www.dailymail.co.uk/health/article-8109453/High-blood-pressure…

2:32

13/03/2020 · ACE inhibitors and angiotensin receptor blockers are medications take by at least 13 million Americans who have high blood pressure or diabetes  Coronavirus binds to cells by attaching to ACE2…

 

  • Author: Mary Kekatos Senior H

 

  1. Do you want results only for rsxsk drugs compromise immune system covid 19?
  2. Living With a Compromised Immune System and COVID-19 …

    https://http://www.everydayhealth.com/infectious-diseases/what-you-need-to…

    16/03/2020 · A weakened immune system can be at a greater risk of developing severe symptoms from COVID-19. iStock

https://www.gov.uk/government/publications/covid-19-guidance-for-the-public-on-mental-health-and-wellbeing

https://www.rcn.org.uk/clinical-topics/mental-health/covid-19-guidance

Inside a COVID-19 ward for mental health patients

https://http://www.msn.com/en-gb/video/news/inside-a-covid-19ward-for-mental

2:00

22/04/2020 · Inside a COVID-19 ward for mental health patients Sky’s Jason Farrell meets staff and patients inside Claybrook Centre, the UK’s first COVID-19 ward for mental health patients. msn back to msn home…

  • Author: Sky News

As a carer have to help Elizabeth in her home to cook, clean, look after the flat.  She can do some things for herself but suffers from anxiety and needs reassurance and so the phone is ringing frequently.  I would rather Elizabeth be in the community than on a mental health ward right now during lockdown.  The setting of an acute ward is totally wrong for someone like Elizabeth and right now she would go downhill on such a ward because of increased security and control and she would not be allowed out or have visitors right now.  However when you point this out she has been so damaged by her treatment that it is hard for her to appreciate as she is locked in her mind due to  injury caused by wrong treatment of psychiatric drugs at huge levels over so many years.

Doctors do not read past medical files and they try to justify such treatment as being best interest when the case of Oliver McGowan speaks for itself.

The main treatment is anti-psychotic drugs on the ward, not therapy.  Physical health is overlooked.   I was lucky to get an appointment for chiropodist as Elizabeth complained of having trouble to walk as she was in so much pain.  They even carried out an operation which I was able to take her too and bring her home.

Elizabeth is distressed right now that things are at a standstill not because of Covid 19.  Only half an assessment has been undertaken on autism and she would like this completed.  She also requires an an MRI scan.

Whilst Elizabeth has been fine,  yesterday evening she was not happy.  I had been preparing meals for her to take over to her flat and arrived later than usual.  She was disturbed by noise as the flat overlooks a car park.   She is hypersensitive to noise.  I did not stay long, just long enough to prepare her meal then I left to go home as she was not so happy and given space I hoped Elizabeth would settle down.

Today an ambulance was called but not by Elizabeth.  The ambulance crew were marvellous despite all the pressures they are under, visited Elizabeth who had been phoning me all morning and I had promised to go and see her in the afternoon.

For so long now I have been saying that Elizabeth’s condition is physical and I have pointed this out on many occasions.  Luckily the ambulance did not take her to hospital as that is the last place she needs to end up or referral to an acute MH ward right now.

I heard later that Elizabeth had a phone call from an AMHP from the mental health team  who we as a family know well who goes back to Cambian where attempts were made to displace me as NR and the care home Phoenix House where she had no food at the weekend where CoP allowed Elizabeth to come home thankfully.

Following the ambulance visit she had calmed right down but what should be provided to those like Elizabeth in the community I believe should be an on line counsellor but instead it has been me who has taken the brunt of phone calls today since 5.00 am.

Lockdown for me means less stress and more time to spend with Elizabeth.  Lockdown for Elizabeth is both good and bad.  Good in terms of the streets being virtually empty –  bad in terms of the cafes and shops not being open and not being able to see friends or move forward with appointments.

The appointments needed are an MRI Scan to check on the benign tumour that the Bethlem tried to dismiss – again conflict in the file as this was discovered back in 2009 where a report stated “Anterior Region Medial Temporal Compromise”.   I see this as a brain injury not a mental health condition and I am not even a Doctor or a Nurse to conclude this.

I do not trust Royal Bethnal Hospital and their dismissal of the tumour and want this to be clarified and so does Elizabeth.  The reason I do not trust them is that back in 2012 Elizabeth was given Clozapine against her wishes and Advanced Declaration.  She was seriously ill during the titration with a mews score of 3 but no ECG machines were in working order in that specialist hospital.  They were not working due to not being  charged and there was no paper.    So with reports of chest pain, high pulse, dizziness she could not be monitored due to the machinery being out of order.   How then can I trust their report of no tumour when there is reports of this nature recorded in the files.

When Dr Moncrieff suggested Endocrinology tests I had them done privately which proved a faulty endocrine system, insulin resistant –  if a faulty endocrine system then the entire pituitary glands can be affected.  None of this was done at the Bethlem from what I can see yet Metformine was prescribed off label and Bisoprolol given to counteract tachcycardia contracted during titration of clozapine.

https://www.hormone.org/your-health-and-hormones/glands-and-hormones-a-to-z/glands/pituitary-gland

The above is why I cannot accept Elizabeth’s mental health condition because I have had extensive tests done which point to a physical health condition and full hormone tests were recommended to be done at a previous Tribunal.    This takes more than a blood test.   This needs referral to an expert on hormones

https://www.wellness.com/blog/13277367/5-experts-who-are-wrong-on-menopause/beth-rosenshein

Real menopause experts would recognize menopause as a disease

Not one of these doctors showed an understanding of basic human physiology. Menopause happens because of organ failure not because the human body ever loses its need for its hormones. A person’s body works the same way at the age of 105 as it does at the age of 25. Our DNA and what fuels it (hormones, vitamins, and minerals) never changes. This means your body needs the same thing at 105 as it does at 25 to stay healthy. This means treatment should be lifelong.

What such treatment entails would need careful consideration but I have just now contacted a private clinic who are more than happy to help with any tests that the NHS may have omitted and I need to find out about these blood tests and what have been done so far.    I am awaiting a call from the GP at Carlton House Surgery in this respect.

There is no way I can accept a mental health diagnosis when it is clear the condition is  physical and I have taken top advice on this.   How many more people under the NHS are stuck under secondary care with a mental health label and told to take psychiatric drugs for the rest of their life when in fact they have an underlying physical condition and I have proven it.  Now I want the right treatment for Elizabeth in the circumstances especially when a previous tribunal panel recommended this some time ago and nothing has been done.

In light of Covid 19 it is all the more important to review and assess properly psychiatric patients for any underlying physical health conditions urgently.

 

 

 

 

 

 

 

 

 

 

 

 

Summary Prior to Lockdown:

Elizabeth called me on 21 January, 2020  that she was being held on Suffolk Ward.  Prior to that EH , Social worker had drawn up an Application for admission dated 21 January following Dr M’s visit on 17th January when he recommended Elizabeth be sectioned.   Elizabeth texted me “Mum you had better come to Chase Farm, I am being held”.   A warrant had been obtained so she told me.  I was concerned as I knew both environment and care would be wrong there.  In the absence of any care and support in the community under Enfield Elizabeth had been going downhill but this was evident leading up to Xmas and there was a lot she had to cope with including my operation.

I was suspicious by the  Application paperwork. Previously Elizabeth had been held unlawfully detained but when I challenged this I did not know about the Bostridge case: https://publiclawtoday.co.uk/litigation-and-enforcement/311-litigation-articles/22472-unlawful-detention-and-nominal-damages and we were offered the grand sum of £1 in settlement which I have had framed as a souvenir.  I have calculated the amount of compensation this time to be much more than just £1!    I was right to be suspicious as two tribunal cancellations brought this all to light.   For a  Tribunal a lot of time consuming paperwork has to be drawn up and it was even more time consuming on my part to correct all the errors contained therein on the Inpatient Nursing Report,  Inpatient Responsible Clinician Report and  Social Circumstances Report.   It took me hours and then I decided to correct the Responsible Clinician’s report full of inaccuracy.  When I saw the reports I thought here we go again!  I looked at the worst scenario – my Displacement of NR case and I thought I had better prepare all my court papers well in advance so I produced all the templates for this also.   It is very important to get the records correct and I am pleased Elizabeth showed me these papers in order that I could amend them correctly.

Elizabeth has been only just released from hospital after being detained on 21 January.  I am relieved especially in light of current circumstances.   Elizabeth is back on 2mg Risperidone –  previously found allergic to and (pink tablets too).   I am going to have to write requesting the 1.5mg of the white tablets but this should never have been prescribed in place of therapy and to ignore certain file evidence. This drug makes Elizabeth tired, she is complaining of neck pains,  problems with her eyes and joint pains.  I’ve always suspected underlying physical health condition.   An autism/Aspergers assessment was carried out but not sure if this was completed.  I am relieved she is out because of the Coronavirus and strict restrictions that could be imposed on patients under “care”  deprived of liberty and not allowed visitors and held just like a prisoner.

Covid 19 – UK

Up until this week I had been travelling to Central London on public transport but this is left open for critical workers travel to and from work.  Contrary to newspaper works showing photos of packed tubes and trains I did not experience anything like this this.   I took precautions and wore gloves to wear and mask and noticed others likewise doing the same. There was no cause for concern on social distancing as the tube carriages I travelled on were empty.  The tubes do not stop at quite a few stations now that do not have interconnecting services.  On the final day of travel I was the only one in the carriage.  On arrival  home I would further take precautions of washing clothes and showering  as apparently the virus can survive on surfaces at differing lengths of time dependent on which type of surface.

https://www.businessinsider.com/how-long-can-coronavirus-live-on-surfaces-how-to-disinfect-2020-3?r=US&IR=T

In the central area of London where I work, pubs are now closed, cafes and restaurants and now hairdressers.  It is like a ghost town – people are taking this seriously.  Supermarkets can be seen with queues waiting outside and security guards monitoring the amount of people allowed in to the store at any one time.  The area where I work is normally teeming with people and has markets on during the week but now there is like an eerie silence, deserted streets, very few people and cars on the road.   Most employees now working remotely from home abiding by Government guidelines.   Elizabeth’s sister no longer lives in London but works for a nursery school –  all schools now closed for the foreseeable future.

Restrictions on movement even greater now than before  with Police issued with greater powers.   https://www.express.co.uk/news/uk/1259275/uk-lockdown-fine-can-police-arrest-coronavirus-lockdown-boris-johnson-statement  “you should not be meeting family members who do not live in your home”.  “you should not be out except shopping for anything essential”   

I have just looked at the map where you can track local cases and can see that the numbers are up from when I last looked from 60 to 110 cases.  Looking at London as a whole, there is no doubt that this area is worst affected and because it is densely populated it is no wonder.  I would agree the necessity of the Government’s actions of self-isolation and measures in place for social distancing but where does this leave people like Elizabeth.

Elizabeth was discharged only recently and it would not appear that she has any care in place whatsoever.

The care Elizabeth needs in particular is help with budgeting, managing her flat in terms of paying bills, a buddy, help with attending some appointments.  All Ive heard from Elizabeth is that there are two people considered as being a “buddy”.  At the moment nothing has been provided and no one communicates with the family to let them know.  I only hear directly from Elizabeth.  Because I am her only carer right now I have no choice but to go out and get her shopping, bring the shopping to her flat because she is currently without a bank account due to disturbing transactions.  A vulnerable person might be taken in to a cheap foreign website for instance offering cheap goods but unwittingly doesn’t realise that regular money to the tune of £100 is coming out for a subscription –  thank I have Power of Attorney but if I was not checking on this who would?   This has left Elizabeth without her bank card and would have left her in a very difficult position if I had not stepped in to help with the shopping and money needed for food and to pay bills.  Elizabeth would have quickly gone downhill.   The new bank card has still not been received and due to the Coronavirus situation everything is virtually at standstill but over £300 had been deducted by scam companies and hopefully hopefully the dispute raised will be dealt with fairly in due course.

The current situation is disturbing to me but even more disturbing to many other people who perhaps have not had to deal with situations such as having a relative under mental health care in the UK who has been sent to the most atrocious institutions as far afield as Wales.   My heart goes out to people who have their relatives in such institutions right now – there has got to be a better solution as I know from the desperate phone calls I used to receive from Elizabeth that at times she was on the verge of giving up.    Visiting was very restricted in some of these prison-like private “hospitals”.   You had to book for a slot to visit as they did not have the facility, then a member of staff would stand over you recording every word.   Right now it must be even worse and I see other desperate parents writing on Twitter and look back to when Elizabeth was at Cambian in Wales. Now everyone is under lockdown and restricted with their freedom but for some, this has been the case for many years.    I am talking about the patients who are deprived of their liberty for sometimes as long as 12 years in these institutions and the knock-on effect to their families/relatives.

Current news is bleak and worsening but I keep an open mind and always look beyond for the real truth and notably there have been plenty predictions.

https://www.msn.com/en-gb/news/coronavirus/nhs-to-move-nurses-to-london-to-help-with-coronavirus-tsunami/ar-BB11L9sW?ocid=spartandhp

Coronavirus: London’s Excel centre set to open 500 hospital beds next week

https://www.express.co.uk/news/weird/1254439/Coronavirus-death-toll-rises-COVID19-Bible-prophecy-Book-of-Revelation-latest-news

https://www.express.co.uk/news/weird/1218614/ible-warning-end-world-2020-new-year-book-of-revelation-jesus-second-coming-spt

https://www.express.co.uk/news/weird/1260158/Nostradamus-2020-predictions-true-coronavirus-COVID19-latest-news

A few years ago I had persistent cough with temperature which I could not rid of. I’d never experienced anything like it before and thought I may have contracted this through travelling on packed tubes/trains.  Elizabeth was at home then and having to  cope without support probably led to decline in health and recovery from this viral infection took a long time.

Whilst I listen to mainstream news both papers and media I see far beyond this and what is “allowed” to be reported but cannot dismiss the current situation as being most disturbing:

https://talentrecap.com/bill-gates-has-been-warning-us-about-possibility-of-coronavirus-for-years-we-didnt-listen/

 

https://www.nbcnews.com/tech/social-media/coronavirus-conspiracy-video-spreads-instagram-among-black-celebrities-n1158571

Coronavirus conspiracy video spreads on Instagram among black celebrities

Instagram and Facebook have made a concentrated effort to rid their platforms of false information, but some conspiracy theories have proven hard to stop.
Image: Bill Gates

Bill Gates speaks about viruses in a 2015 Ted Talk.Courtesy TED

By Brandy Zadrozny

A video pushing the unfounded conspiracy that Bill Gates is responsible for creating the coronavirus has gone viral on Instagram, propelled by some black celebrities including comedians Cedric the Entertainer and D.L. Hughley, and professional fighter Derrick Lewis.

This video has been viewed more than 2.2 million times, according to data from CrowdTangle, a social media analysis tool owned by Facebook, which also owns Instagram. The current iteration of the video originated from the account @thefallbackup, a self-described “influential mystic” with 69,500 followers. The video was reposted by 20 verified Instagram users, and more than 50 other users.

“Bill Gates either predicted or planned the coronavirus outbreak,” the text on the video reads, before playing a clip from a 2015 TED Talk in which Gates explains that a highly infectious virus could be more deadly than war.

Cedric the Entertainer posted the video to his Instagram account and wrote, “So they knew!!!”. The video has been viewed 367,000 times since he posted it Thursday. “Watch out for Big Pharma,” he added.

“Hmmmmm….” Hughley wrote next to his post along with an emoji of a face with a monocle.

“Ok this is scary. Looks like someone or some corporations knew this would happen. Coincidence?? I’ll let you guys decide,” wrote Gary Owen, a comedian who once hosted the BET comedy show Comic View

https://www.bing.com/search?

q=american+university+funds+bill+gates+funding+into+compter+simulation+into+covid+19&form=EDGEAR&qs=HS&cvid=7733cc6eb7b042abb100e740fd8528b5&cc=GB&setlang=en-GB&plvar=0&PC=MSE1

COVID-19 Coronavirus: A Fake Pandemic? Who’s Behind It? Global Economic, Social and Geopolitical Destabilization

Unbelievable — Gates Foundation Predicted 65 Million Deaths Via Coronavirus 3 Months Ago!!!

https://www.bing.com/videos/search?q=David+Icke+Interview&FORM=VDMHRS

 

Breakthrough: Roche develops first commercial test for coronavirus

This scientific breakthrough may hold the key to defeating the coronavirus

https://www.fiercepharma.com/pharma-asia/china-turns-roche-arthritis-drug-actemra-against-covid-19-new-treatment-guidelines

United Kingdom cases:
Updated 27 Mar at 07:46 local

https://finolamoss.wordpress.com/2020/03/13/coronavirus-a-tool-of-global-control/

How I agree with what Finola Moss and David Icke report.

Today has been a busy day getting together all the food for Elizabeth’s Birthday party and fortunately I had help in doing this.

I’d ordered pizzas, from Sainsburys vegetable curry and rice.  It is not the weather for cold food but I prepared  a Greek salad – a nice mixture of food and cakes and healthy drinks.

I was grateful for the assistance by a friend in carrying so many bags onto the ward and everyone sang Happy Birthday.  This was a bit overwhelming for Elizabeth.

Suffolk ward Chase Farm Hospital kindly allowed me to do the little party for Elizabeth and all her friends.  She has made some very nice friends in the short time that she has been back on the ward.

It was last week I received a text message from Elizabeth to ask me to call and see her that she had been taken from her home to Suffolk Ward a- warrant had been obtained. I do not agree with the way that recall to hospital is conducted as a result of negligence by non provision of any kind of care in the community.

I had received a phone call from a social worker claiming to be an AMHP about a week prior to say that 2 Drs and 1 AMHP had recommended Section 2.

Since July 2019, Elizabeth had been living in a very nice flat –   the only decent accommodation she has ever had in the local area.    The flat is spacious, she has all her possessions together and it is within walking distance of the family home which means I can help her at weekends when I am around but I had not been well since Xmas and for a few weeks was unable to go round to help Elizabeth.

Friendships Elizabeth had formed in the community have not been good and have brought her down.  Some of these friendships have been disastrous and Elizabeth who has a different way of interpretation can take things the wrong way and this can push friends away.  Very sadly this has led to isolation with no help and support in the community since July 2019 decline was evident.  At this time of year many people can feel affected by the weather which is miserable, bleak and cold.

With nothing provided to do in the community – no support worker/mentor Elizabeth was turning to Samaritans, to my friends, then sadly Police to talk to as well as myself of course.  Police not knowing Elizabeth personally would hear that she was desperate for f help/support.   She had never self-harmed before but may have said that she did not feel like living.   Police would call for an ambulance and she would end up in A&E when all she wanted was someone to talk to.  Sometimes she would get brutal treatment under the MH suite of the A&E.   The last time Elizabeth told me she was injected and that she was pinned down by several staff and overheard them talking about resusc. in another room as this was a face down restraint which is appalling.   When Elizabeth’s friendship had ceased, a toxic friendship which was detrimental to both,  Elizabeth made other friends who also had issues and lack of understanding can arise without any guidance in the community from the professionals involved.  This friendship also appeared to be a disaster which led to isolation, a feeling of desperation as Elizabeth had told me that she had trouble processing information and that no one understood her.  For instance she could say something and mean the opposite.

Elizabeth was under the Community MH team again and they were contacted presumably by Police or Ambulance who sent round the Crisis Team.    The Crisis Team just sit and chat and what is needed is a mentor or buddy or support worker to give practical help even it is simply to do with socialising and social skills.   I am quite astonished that this was once again not provided because it was certainly promised and documented in the care plan that Elizabeth had full support to maintain the tenancy, to budget, and other forms of support which was not true at all.  This was not being provided by her care coordinator.    She certainly needed help with budgeting and most things fell on me.

Elizabeth called in to the Learning Disibility/Autism Group office.      She had tried to get a referral and when I heard that she seemed to be getting nowhere with this I tried to help.     The GP referred her.   I then helped her complete the forms and everything seemed to be going OK.   Elizabeth was waiting for an assessment by them in the hope  some provision could be made in the form of a mentor in the community who could understand and communicate with her effectively.    The content of the form completed was applicable in every way to Elizabeth in terms of developmental disability which goes way back in the files and since Elizabeth was off all medication she spoke very clearly that she had problems that went way back to primary school not secondary school –  the problems she described were developmental and this had been identified when I provided private care for four months.

I was with Elizabeth at her flat when the care coordinator called along with the Responsible Clinician of the community care team who hardly ever sees Elizabeth.   Elizabeth was not calm in their presence and flared up when she saw them and unknown to her they were there for the purpose of doing a MHA assessment.  She had trusted them and let them into her flat.  I could hear them talking about recalling her back on the ward and supportive housing was mentioned but look at the shocking places that Elizabeth has been provided under the local area.    Elizabeth told me this was  not what she wanted but she did want support in the community.    The care plan stated  S117 aftercare but this was never provided.   I had managed to obtain the new care plan.

In the new/current care plan it says No to S117 which I have found out is illegal following  Section 3 and that she should be entitled to such care.

I had also heard an Agency was approached to work with Elizabeth but declined and this led me to believe that under a MH team Agencies they used may not have the specialist communication skills of say a Learning Disibility nurse and I have seen Paula McGowan’s campaign that such training should be made mandatory which I could not agree with more.   This is why we both wanted the referral to the other team as it is not impossible to find someone to work with Elizabeth but if they are not correctly trained and do not have the right communication skills then the effect of such professionals can be as  toxic as the  friendships Elizabeth had formed.

It is sad that she is back on the ward and the ward is no place long term for Elizabeth  who also suffers from complex PTSD.

The entire family put in effort to making her flat nicer so she can now listen to music, play videos, watch TV.  We have done this for her Birthday and now she is stuck on the ward again and we are back to square 1.

I think Elizabeth enjoyed the little party today and I have to commend Suffolk Ward for allowing this to take place.    There was music and staff got up and danced and so did the patients.  They provided her with a Birthday cake.   I saw Elizabeth smiling a lot and one consolation is the fact she has made some lovely friends on the ward.  When you talk to these friends I feel what on earth are they doing on the ward and many are highly intelligent.

My view is that such wards should not be used long term and many end up on the wards because of lack of community care and I think they become isolated in the community  with nothing to do except go shopping and in this awful weather too it can affect anyone not just those with mental health conditions.

I believe community care is lacking and totally lets people down – there needs to be more investment in this area.  A solution would be a network of peer support workers is  and open dialogue so that people like Elizabeth do not become isolated and go downhill.  If someone called on people like Elizabeth to take them out in the community, to help build up their social skills and confidence this would be brilliant.

There used to be a very nice group where Elizabeth would be picked up and taken out in the evening for quiz nights, meals –  a little social group and this is where funding should be going on, not court and displacement of the Nearest Relative cases.   Funding needs to be spent in the right way and a start would be finding out the right things that are required by giving every patient a questionnaire to see what they would like provided in the community, not just dumping them back to their schemes/accommodation unsupported in any way.   The answer is certainly not medication –  in Elizabeth’s case the answer is friendship and help in terms of friendship and socialising, then practical support which should have been given in the first instance.

My final comments go on the new care plan.   I do not feel it should be allowed that strangers such as admin officers make entries that are completely untrue and misleading.   Records need to be accurately maintained and the new care plan is a disgrace.

I am having to correct this new care plan as it is totally inaccurate.   The admin assistants work at St Ann’s Hospital and I have previously complained about the inaccuracy of the care plan and some disturbing false comments therein.     No-one has taken any notice and I have had to complain to the Chief Executive of the Trust.

I now want these comments taken out of the care plan completely and I am correct it myself to ensure total accuracy.

 

 

Today I spent an entire day trying to determine what was going on with Elizabeth’s referral to another team.  Nothing seemed to go right today and nothing was achieved but it is very effective if you go in person to these offices and to the GP in order to get things sorted.

First of all I visited the GP surgery and  enquired  how the referral was progressing.   I was told the referral had been made to Learning Disability/Autism Team based in the town.    I then visited this team and advised they knew nothing about any referral.  I requested to see a duty social worker but whilst waiting, the receptionist was really helpful and advised that the GP had failed to return a form  necessary in respect of  the referral.  She gave me the form which I commenced completing, leaving parts for the GP  as, after all, the referral was from them.  It was suggested I include relevant information I had so I then returned home and searched through the extensive records until I found the opinions of other professionals disputing the diagnosis of “paranoid schizophrenia” and stating LD/Aspergers.  Under this team there seemed more support than what was on offer under  the mental health who are providing nothing, despite producing a care plan stating incorrectly that Elizabeth was receiving assistance in budgeting, and numerous other areas which was not the case.  Whilst doing all this running about I was waiting for the Council’s heating and plumbing engineers T Brown to call me to say they were approaching Elizabeth’s flat but now it was getting late and I still had received no call from them.   So I contacted them on hearing they turned up and put a card through the door once again and this was the fourth time they had not acted upon instruction because I had explained that someone needed to be with Elizabeth when they visited.  Elizabeth now has to wait until the 20th and I wonder if the same thing will occur.

Due to no support in the community things are bound to go wrong like this but it has been stressful and on my day off not once have I had the chance to do anything other than run around chasing up appointments and things that had not been done.

I returned to the GP surgery one more time and presented them with the partially completed form and other papers to accompany this but the GP’s admin staff were not prepared to take a copy of  about three pages so I asked to speak to the manager and  the admin assistant told me she had suddenly left the premises.

Then came the numerous phone calls from Elizabeth who was distressed as she had been out in a crowded place which had affected her.  Sometimes out of fear she will react badly to certain situations such as the recent blood tests.   This is why she needs a support worker so if the team (Enfield Community Rehab) cannot provide any support then clearly she is within the wrong team.  To place someone like Elizabeth in the community with nothing is negligent.

I was so fed up that I visited solicitors – community care solicitors as no one is taking any notice and this whole situation has been dragging on since July.   I am the one who is doing all the things the care coordinator takes credit for.   I am the one helping with the shopping, trying to ensure her account does not go overdrawn in the absence of any necessary support in budgeting.  I am the one who took her to the blood test but we had to leave as she got in such a state.  I have not had a chance to see Elizabeth today as I’ve been so busy trying to sort out the non-existent community care and driving all over the place to see what the latest position was and requesting a referral to another more suitable team.

Enough is enough and I feel she should be with the other team but I have come across some extremely helpful staff today.    After I had returned to the LD/Autism offices and presented them with additional information that the GP surgery refused to copy,  I noticed some leaflets.  I was reading one called “Shared Lives”.   This seemed to be a very good project so  I telephoned them and again they were very helpful suggesting that Elizabeth could be re-assessed by the Adults social care  team.   I would be happy if there was a support worker just twice a week – that is not asking too much.  When they say S117 Aftercare is being provided –  what aftercare exactly?  Aftercare is in my opinion an assistant who can accompany Elizabeth out shopping, appointments midweek.  What good are assistants that just remain in the home as in supported living/housing.   The only thing that Elizabeth needs is someone of her choice that can support and help her attend appointments.  Even getting on a bus is stressful and lack of understanding/communication skills complicate matters further.

Now the heating cannot be looked at until the 20th Dec.   I am going to have to chase up the GP and check to ensure they have this time dealt effectively with the referral.

If I found this day of running around, chasing up things that should have been dealt with stressful, then how is someone like Elizabeth meant to cope.  Total lack of communication can arise and there should be good communication when it comes to dealing with people like Elizabeth.

None of these incidents would have arisen if Elizabeth had been allocated a support worker who MUST have experience of  Aspergers/LD in order to be able to communicate effectively.

 

 

They took her away last night.  Don’t know where.  Noone has phoned us as promised.  Not been able to sleep last night.  At 4 a.m went round to Elizabeth’s flat to make sure the lights were off and the door had been locked.

The team responsible for the neglect to my daughter are Enfield Community Rehab and they are based at Park Avenue in Bush Hill Park Enfield.

Elizabeth has been in her own flat since July and not a scrap of support has been provided leaving her to turn to emergency services.    I had been going round at the weekend to help her in the flat but I was astonished that nothing whatsoever was provided.    She is with the wrong team –   they have had ample time to put in a support worker and I have been trying to get direct payments so I can provide a “buddy” / support worker myself which I would have done well and truly before now.

All this had led to Elizabeth’s decline.   She has no support in going to get blood tests done, no support in budgeting, no support in going out to groups and expected to do everything on her own.   She is off medication after 14 years and suffering from chronic pain.   She is treatment resistant – a non metaboliser of the drugs.

Elizabeth has been sent to one private “prison” style hospital after another and all they have done is drug her.

Now I am most concerned as to where she is as no one tells you a thing.

I would like my daughter to be transferred to another team.  It is constantly mentioned throughout the files she is autistic and mild LD but at Huntercombe she was mentioned as having high spectrum aspergers.

It surely does not cost much to supply a support worker to someone who has suffered enormous abuse not only on their local wards and under private sector but under community care also.  At Moti Villa Elizabeth was dreadfully abused and this was covered up.  I have the files to prove it and then Enfield council tried to appoint the very social worker who has written nastily in the files about me as the Nearest Relative.

So Elizabeth was not on a section or CTO and living in the community for the first time had nice accommodation.  I’m absolutely heartbroken by the neglect of this team who have written so nastily in the files behind our back and done nothing to support Elizabeth as what was needed was a support worker and one who can communicate with someone who has aspergers.

It grieves me I am having to write this not even knowing where my daughter is right now.

Just to reflect Enfield Community Rehab is the team who have wasted so much public money with the emphasis on getting rid of me as Nearest Relative and trying to deprive liberty and even sever contact back in 2014.   Prior to the Ct of Protection case I had to threaten legal action against individuals because medication was being deprived for FOUR not 2 days.

They wanted her returned to a care home hundreds of miles away in Northampton where she had no food at the weekend and was expected to manage on £30 per week or else go without food.   CQC rated good and the inspector disgracefully put her own viewpoints down which is recorded in the files.

They were slated in the Ct of Protection – I wonder how much this cost.

Prior to this Bromley Court because I disagreed with Section 3.

Then Royal Ct of Justice where they tried to get rid of me as NR but I presented the Judge with enormous evidence of bullying and proved lies written in the court papers.   No Elizabeth’s sister was not consulted as mentioned.  I had to spend a lot of time altering these court papers and presenting my own when I represented myself in court.

All of these court Hearings and Tribunals cost a fortune.   To force Elizabeth onto a CTO was a waste of time and she went missing on both CTO and S3 from the hospital.

Elizabeth is so mixed up and damaged by drugging of 14 years or so and being drugged on a drug previously found to be allergic to that is Risperidone.   None of the Doctors seem to care.    The worst culprits were Huntercombe Roehampton where Drs were informed that not only was Elizabeth allergic to Risperidone and had to be taken off it but also that she was a poor non metaboliser because I had unique tests done (P450 liver enzyme).    They couldn’t have cared less and then the drugging continued on Suffolk Ward.

The drugs given at enormous dosage over many years have caused injury – this is not a case of “illness” but injury.

What I would like to happen now is that Elizabeth is discharged back to her flat with a support worker in place to begin with on a daily basis even if it is only a few hours a day.

The care provided in these schemes is not right.   There is a support worker within who dishes out medication yet they are not qualified nurses and have little idea and all they do is learn on line.  The support workers provided in schemes under MH do not accompany someone out in the community and this is what Elizabeth needs.   She needed someone to go out with her and help her in the community during the week.

At the weekend I was going round, helping her in the flat, taking her shopping.  I would also take her swimming.

Surely a support worker would be cheaper than a private prison style hospital or even the local ward where it is all about medication.

Not a word as to where Elizabeth is right now sadly.

It is coming up for Xmas and I hope she will not be detained on a ward during this time.

So 14 years of long term drugging at enormous quantities is bound to affect someone when suddenly they cannot think straight any more,  do not know who they are any more.   This is the effect of long term drugging and care available under both NHS and private sector and to force vulnerable patients to take drugs previously found to be allergic to is disgusting.

Frequent injection of addictive of lorazepam on Suffolk Ward has come to my attention.

Anyway all this could have been avoided if the team under ENFIELD COMMUNITY REHAB had provided the basics ie support worker but since July nothing.    Elizabeth just started psychology but had only been going on two occasions.    Why does it take so long to put the basics in place.

Shockingly I have an email stating “its all about proving yourself as CC as to why institutional care would benefit Elizabeth.   That was written to CC Monowara Ahmed by Norma Johnson.    Apalling because I suppose this is where they get out of paying anything whatsoever.

Then GP at Carlton Hse Surgery Enfield cannot find the blood test results.   The blood test centre went out of their way to help.

Parts of the NHS is working well.    The Paramedics, the Police even but what is failing so many people like Elizabeth is care in the community and something needs to be done about this urgently.

 

 

 

 

Following on from two previous blogs, finally matters have been resolved in relation to my dispute, although not quite.

To summarise, EE accused me of ordering/receiving an Ipad and iPhone 8 and to begin with the Communication Ombudsman took their side and agreed that EE had done nothing wrong.  I was treated like a criminal and liar by my mobile phone provider who I had been a loyal customer since 2013.

The only thing I did wrong was to trust EE and I should have been thoroughly checking my bill.  I have been swamped with caring responsibilities with Elizabeth in and out of hospital that unfortunately I did not check my bill  as I should have done but that is no excuse for EE to state “you should have checked your text messages and responded if the devices (Ipad and iPhone X) were not for you.”.  I did not receive such a text message as I looked back to see if I had.

One customer services officer after another from their Head Office in Hatfield accused me of ordering an iPhone X and Ipad and receiving these devices at my home address which I did not.   Unfortunately  I took out a contract in April this year which I deeply regret and took the opportunity to query my bill which was high and I thought that Elizabeth was running up the high bill as she hardly had any data.  I wanted a new phone and the upgrade was for an iPhone 8.  When I queried my bill at Oxford Circus Branch  I specifically queried why the bill was high and did I have anything added to my account I was unaware of?  I was not told the truth.  I was led to believe I would be making a saving.  I found out towards the end of the month via a local branch of EE that I had been not only paying for the two contracts I agreed to but also for an iPhone X and Ipad that I never received and when my bill shot up to extortionate levels I cancelled the  the direct debit which was for everything.   I was faced with shocking treatment.     I received threatening letters that my credit rating would be ruined by EE and then EE got debt collection agency Arvato involved who were sending me frequent text messages demanding payment and phone calls during the day when I could not talk.    The debt was accruing to circa £1000.  I realised my once good credit rating was ruined and went to Experian for a full report and of course the reason for this was down to EE and the disputed debt.

To begin with Communication Ombudsman took EE’s side and I had to complain at inaccuracies within their investigation.   They kept saying that the courier firm could not produce a signature as this went beyond the time that they as well as EE could produce any verbal recordings of agreement to the contract I was alleged to have taken out.

I had been offered a deal of paying £90 by EE to back out of the contract I never entered into for the iPhone X and Ipad which I refused.

So in desperation, after getting nowhere with so many different customer services officers all sticking together with the same opinion and ignoring that I constantly stated I had not received the devices, I turned to courier firm DPD who, unlike EE, keep brilliant records that go back to January 2018 of all deliveries made.    I obtained a case reference number and submitted this to the Communication Ombudsman but when I was still being bombarded with demands for payment I went back to DPD couriers and spoke to two more customer services officers who were most helpful and sent me two separate emails stating that nothing was ever delivered to my home address on the disputed date.

After this proof, the Communication Ombudsman backed down and demanded that EE repay the amounts of the two devices and backdate this payment and sever the lines free of charge for the iPhone X and my own personal line.    However I am stuck in a contract – being what I took out in April this year in order to get the iPhone 8.  I am stuck in this contract for two years and am also paying for Vodafone contracts which are for one year.  I would never have taken out the EE contract had I known about the devices.

I then get a cheque from EE for just £615 and had to go through and check their figures only to find that they owed me an extra £275 –  I then had to report again to the Ombudsman I had not received the £275 and they suggested giving EE another 7 days.    I would advise that still no cheque for £275 has been received from EE despite allowing for these extra 7 days.

https://psychiatricabuseuk.com/2019/05/19/latest-position-with-ee/

https://psychiatricabuseuk.com/2019/05/04/you-cant-be-serious-ee-my-former-mobile-contract-provider/

I have written on numerous occasions to  CEO Marc Allera only to have a response from yet another customer services agent.  Not once has he had the courtesy to respond himself.

My treatment by EE has surmounted to bullying and being called a liar and thief in not so many words.

The whole matter has been so stressful and upsetting having to prove your innocence and then have your credit rating ruined.  This has now been put right but the lengths I have had to go to in this matter and not once did EE budge and raise their hands and say sorry until they were forced to by the Ombudsman.

So if any of you are customers of EE I would advise strongly to check thoroughly your bills and if devices are not received the courier firm DPD  are brilliant and have been so helpful.   I understand that EE produce wrong paperwork sometimes and my case has not been the only case of devices going missing.

I now have two contracts –  I hardly use the EE contract but the data on my Vodafone contract is far greater.

It would have been nice if EE had made even the slightest gesture to compensate for the hours I have spent looking into this matter and checking their figures but they have only apologised because they were forced to by the Ombudsman then I get an email saying they would be guided by the Ombudsman “that’s that then!”.    NO IT ISNT EE –  YOU STILL OWE ME £275 and whilst this is not much money it is the principle that counts.  I feel that EE should do better than that.

I would compare EE to BEHMHT in the way I have been treated when I stood up against  Elizabeth’s shocking treatment of enormous quantities of mind altering chemicals.

I have also had to chase up the compensation for Elizabeth’s false detention and this amounts to £1.   The figure calculated was far more than this because this went back to 2012 and the illegal detentions under X v Finland so this is a case where professionals in the NHS are well and truly protected when a vulnerable person spends time imprisoned but since TW v LBE and the Bostridge case it looks like the £1 cannot be challenged however we have been told that it could take a long time to receive the cheque for £1 which I wish to frame as a souvenir.

Message to Marc Allera of EE:  If I do not receive the £275 I will be calling at your Head Office in person.   I would be nice if EE could support some good causes such as Working to Recovery and Chy-Sawel

Message to BEHMHT –  Elizabeth would like the cheque ASAP for £1 for hours of illegal detention.

 

 

 

 

 

 

I can only spend weekends with my daughter Elizabeth but try to make the most of it. I try and take her out places and yesterday was a brilliant day.  In the morning I had a few things to do and took Elizabeth along with me.   I went to BMW for my car to be booked in.   I took Elizabeth with me to the town and had various things to sort out.  I then tried to help Elizabeth with budgeting which she finds impossible to do.  It is all too easy to spend money in shops not realising how this can accumulate.  Elizabeth has never had to manage money before – care under supported housing/living schemes do not offer the right kind of care/support to those who have been institutionalised for years such as Elizabeth in order that they can  live an independent life in the community.      Staff mainly would stay in their private rooms/office and not engage with residents.  Elizabeth has communication difficulties in any case and can take things the wrong way.     If a vulnerable person did not ask for help they would not receive it.    Basics of in-house help are given, such as towards preparing and cooking meals if requested but nothing that is relevant for living in the community outside such as taking someone out shopping, helping them budget, helping them relate to other people particularly when I have been saying all along that my daughter is with the wrong team as she is autistic.

After a nice time looking round the town we drove to Barnet.  The shops were closing but there was still time to take Elizabeth shopping and as I am trying to help her with budgeting I took her to Waitrose.    There were so many things being sold at reduced prices and perfectly good.    I helped Elizabeth select the items she wanted but because Elizabeth has once again overspent so I am having to help her out.   She has generously brought presents as well as children’s items for Halloween, presents for her sister/for me and as a result she has no money.

Today I offered to take Elizabeth swimming even though I did not feel like this myself.    We went swimming to a lovely pool just outside our local area.   I was swimming in the lanes but noticed Elizabeth was not doing much swimming but talking to people.  I had remembered to bring her water as last time she flatly refused to go in and swim without any water.  I tried to explain to Elizabeth that people are there to swim not to chat and listen to the kind of talk Elizabeth can give which is quite heavy.   I had to put up with listening to depressing music in the car and Elizabeth was singing along to a band called Nightwish that I had taken her to see once and nearly got arrested because we had been conned by Viagogo for last minute tickets that were not accepted at the venue. I have written all about this in a separate blog.   I could see Elizabeth was not her happiest today and tried not to engage with in-depth conversation whilst we were out.  So I did my 20 lengths then went in the sauna/steam whilst Elizabeth waited for me.     After that Elizabeth wanted to go somewhere to get something to eat and I thought of a local sports centre nearby which I thought would be more peaceful as they have a terrace and a nice restaurant.  I bought lunch but had no appetite myself as Elizabeth was clearly not happy.  I decided to take her home after that – maybe she had not had a good night’s sleep –  this could be a trigger point.  Soon after I arrived home  I received a call from paramedics who had been called out once again.  I was in despair about this.   I have hardly had any time to myself this weekend but still feel better than if Elizabeth was back on a ward or in a distant care home or scheme.  I would rather give up what little time I have to keep Elizabeth where she is for the time being rather than her ending up in another dreadful supportive housing or living scheme or worse still a care home or hospital where they drug people like my daughter to the hilt.   So I spoke to the Paramedics and explained the situation.  Elizabeth already said she did not wish to go to hospital.    She is not a risk to self/others but needs company or something in terms of care that is for sure.

This whole situation is getting to be a nightmare and the problem is that the community mental health team do not recognise anything other than personality disorder or schizophrenia.    What is constantly being dismissed is “learning /developmental disability/Aspergers and she was told at Huntercombe Roehampton she had high spectrum Aspergers.

The paramedics and police have been marvellous in the London Borough of Enfield but the community mental health team combined with GP which is Carlton House Surgery Enfield should be referring Elizabeth for assessment for autism and placing her with a Learning Disibility/autism community team as Elizabeth says no one understands her and there clearly is no training under the MH to understand about autism/aspergers.   In fact the paramedics today suggested LD/team.

Despite the fact Elizabeth can look after herself and cook and shop she needs a team who will provide something in the community in terms of support and this is where the community MH team are failing.

So I believe that there has been a recent visit by her Psychiatrist Dr IM of Enfield Community Rehab Team plus care coordinator PM.   If this is true what Elizabeth told me I am saddened –  medication was suggested plus going back into supportive living/housing during their visit.    Also, the Crisis Team are supposed to visit regularly – they suggested going back to hospital and this is totally wrong.

Why should the above apply at all when it is quite simple what is needed and would be far less costly.   Elizabeth needs a group of young friends to go out with who might be students who study psychology or nursing or even social work.  I would personally pay for such a night out for everyone if they could include Elizabeth for one evening.  If these young  “friends” are studying to go into the profession I would like them to see at first hand how lack of care in the community is affecting someone like my daughter.

When it was suggested by Dr IM medication – the answer was clearly no.

When it was suggested by PM – care home/supported housing or living the answer was clearly no and just look at was Enfield have provided in that connection in the past.

When it was suggested to Elizabeth “do you need to go back into hospital – the answer was clearly no and Crisis Team the answer will always be NO.   This same answer has been given more than one time to Police and to paramedics.

So keeping someone like my daughter who has been so dreadfully damaged by the care provided to her over a period of 14 years in dreadful institutions is perhaps all too convenient for the team but it is not the answer at all.

No way would Elizabeth have once called out ambulances and police.   No way would she be so disabled as she is now had she not been prescribed so many concomitantly prescribed drugs at 2 x bnf level so it stated in the files.   It is the NHS under mental health care that has dished out the apalling “treatment” resulting in such disablement.  Then they palm her onto institutions such as Cygnet, Cambian, Bedlam, Huntercombe all offering enormous quantities of mind altering drugs and none of the local.

MESSAGE TO THE TEAM:

I would like my daughter assessed properly NOT BY YOUR DEPARTMENT, ENFIELD COMMUNITY REHAB, but by Specialists in LD/autism who can properly communicate with her.   As nothing is being provided for Elizabeth of the correct kind of care needed ie  budgeting, shopping, friendships etc according to your good care plan, the first reasonable care plan you have ever produced, then I would like Elizabeth transferred to a more appropriate team who can provide the very basics or could I have the direct payments so I can arrange myself.   The right care is NOT – taking Elizabeth away from her home and dumping back into supported housing and living where a Death Plan was produced by one,  cutting out her family.   The right care is also not a hospital or ATU when Elizabeth can do shopping, can clean, can cook – she has qualifications in this respect.    You know what help is required as identified in your care plan but you are failing to provide this.  Most of all my daughter needs an assessment that is carried out completely independent of your department and can only be done by experts in the field of  LD/Developmental Disbility/high spectrum aspergers.    This is mentioned many many times in the files AND not forgetting the wonderful Expert Witness report for Cambian by Dr Bob Johnson.    This report was deprived to Elizabeth and I got hold of a copy of it and showed it to her.   It says PTSD.  It recommended trauma therapy –  so Enfield Community Rehab team where is the specialist treatment my daughter needs as a result of the abuse she has suffered in certain community care home provisions?   Here is one of them RATED GOOD BY THE CQC  PHOENIX HOUSE STEPPING STONES NORTHAMPTON “Elizabeth must manage her foods as she will be without food at the weekend.”   I’ve got it all in writing and everyone’s conversation including the CQC inspector who I feel like naming right here on Twitter.


ILLEGAL DETENTION UNDER ENFIELD:


I  also wish to tell everyone how Elizabeth challenged her illegal detention under ENFIELD CHASE FARM HOSPITAL SUFFOLK WARD.   Elizabeth was detained 16 hrs illegally but, following the case of :

TW v Enfield Borough Council [2014] EWCA Civ 362, [2014 …

http://www.mentalhealthlaw.co.uk/TW_v_Enfield_Borough_Council_(2014)_EWCA_Civ…

TW v Enfield Borough Council [2014] EWCA Civ 362, [2014] MHLO 26. TW v LB Enfield [2013] EWHC 1180 (QB), [2013] MHLO 59; Appeal status. This claim was subsequently settled for £27,000. Thanks to Helen Curtis of Garden Court Chambers and Michael Paget of Cornerstone Chambers for providing this information (emails 9/6/16 and 10/6/16). ICLR

TW v LBE I was totally unaware –

To protect TrustS/lAs there has been changes in law which now makes it impossible to challenge further.  Below is the example.

https://www.weightmans.com/insights/bostridge-v-oxleas-nhs-foundation-trust/

Elizabeth was awarded £1 compensation for 16 hours illegal detention.

The above together with lack of humane mental health care sums up the disgrace of how the most vulnerable people are being treated and abused under the UK.

I do not want Police and Paramedics further bothered by Elizabeth’s calls when Elizabeth, a product of failure under the NHS care, should be receiving a proper assessment and being transferred to a team that can at least provide something in the community the current care plan recommends.    A visiting support worker who is properly trained in autism would be good,   even unqualified “friends” of about her age to take her out  who are studying for nursing/psychology.

To me there is nothing complex whatsoever in what is needed here.   Also it is much cheaper to provide the care my daughter needs in the community than send her off to horrific “prison” environments –  you have tried and failed at this so now Elizabeth needs something better provided and the kind of therapy that should be provided that worked in Scotland and Australia was psychotherapy and a perhaps EMDR should be tried.

Dr R D Laing’s colleague and former colleague told me he never ever used mind altering psychiatric drugs and that psychotherapy was all that was needed and he is absolutely right.  I thoroughly agreed with him and that is why I sought the correct care that I provided privately thanks to Working to Recovery.   More funding needs to be given to wonderful organisations such as this to set up therapeutic communities and recovery houses on a small scale throughout the UK.

I would commend Norway and Professor Peter Gotzsche –  it is a pity the UK is so behind the times when it comes to forced treatment.  Elizabeth was getting daily injections of Lorazepam on Suffolk Ward and it is no wonder she has suffered such trauma all down to an area of the NHS that is not working and could learn from Norway’s wonderful example and not forgetting Working to Recovery.

Forced Drugging with Antipsychotics is Against the Law …

https://www.madinamerica.com/2019/05/forced-drugging-antipsychotics-against-law

In Norway, the Ombudsman concluded in December 2018, with reference to the Psychiatry Act, that it violated the law to use forced treatment with an antipsychotic in a concrete case.

  • Author: Peter Gøtzsche, MD

This is where the funding should be directed to organisations like Chy-Sawel and Working to Recovery in order to provide the correct care and a community involvement to help people like Elizabeth from feeling isolated and abandoned then instead of providing what is right they say “how about hospital or how about a care home or how about supported living.”

 

The way Elizabeth has been treated is a disgrace but the Paramedics and the Police have been wonderful in ENFIELD.

 

%d bloggers like this: