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Elizabeth has not long since moved into a new flat.  It’s local and close us.  It is a lovely flat and in an area that is familiar to Elizabeth.

Elizabeth was recently released from Section 3, prior to that a CTO where she was under the team of Enfield Community Rehab but the system of forcing people to engage is wrong and not “care” in my opinion.   Both CTO and S17 leave and underlying terms were completely ineffective with Elizabeth and waste of time and money.   It was used like a form of punishment ie “if you don’t do what we say you will end up back in hospital”.

Moving to a new flat was never going to be easy for Elizabeth and has been complicated by a friendship she made through the local mental health resource centre where people like Elizabeth are encouraged to go and engage with services but not everyone wishes to engage which could well be due to lack of trust.

What should be provided is assistance in respect of integration into society and people under mental health care become isolated to the point they just go downhill.   There seems to be no care in the community.   What is provided all too often is substandard accommodation provided by private landlords with “care” provided by untrained support workers who dish out medication.   When it comes to a case like Elizabeth who suffers from complex PTSD and attachment issues it is not untrained support workers that Elizabeth should be working with but qualified experienced professionals offering psychotherapy.

Elizabeth had a dreadful time under section 3 at Chase Farm Hospital Enfield (Suffolk Ward) where main care provided is “medication”.   She was given frequent lorazepam injections on the ward due to becoming distressed.  Not once was Elizabeth referred for an MRI scan or receive any referrals for physical health.  At a recent tribunal it was suggested she had assessments on hormone imbalance which I believe most certainly is an underlying cause or perhaps a damaged Thymus but nothing has been done.  I’ve already proven there are other issues that are underlying such as endocrine disorder having spent £1000 on tests privately.   Physical health under Enfield is ignored in favour of a mental health diagnosis as this is the easy way out.

Elizabeth was discharged into an unfinished/partially furnished flat in the community.    The bed was not even properly assembled. I had arranged for her possessions to be delivered to the new address which is a beautiful one bedroom flat in a block.  The flat looked fabulous once carpets were laid.   I bought a Chinese rug.  I spent a lot of time and money bringing together Elizabeth’s possessions for the first time as these were all over the place because there was nowhere to put such possessions.  All Elizabeth had been offered previously was one room in a shared house full of others suffering from MH problems.    The most recent scheme did not even have a proper kitchen or lounge to sit down and watch TV and was  situated in Wood Green, a fair distance away.   Elizabeth was unhappy there.   Prior to that, a bed bug infested scheme called Reservoir House situated in a nice area of Oakwood and they tried to blame Elizabeth for bringing in the bed bugs.   Prior to that, Mays Cottage – one small room in a shared house, whose Landlords were Inclusion Housing and the “care” provided by Craegmoor (part of the Priory Group).   Care consisted of support workers that stayed upstairs in an office.  I have on several occasions taken Elizabeth away from care and had her at home but there have been issues with other family members and I could not sleep because Elizabeth needed someone to talk to and kept coming in and out to discuss her confusion which is always the same thing “who am I, what am I, why am I here.   This is the outcome of so many years of being prescribed powerful mind altering chemicals that have done nothing to help Elizabeth.

I do not think the bulk of supported housing/living schemes are adequate or understanding towards someone like Elizabeth.   Vulnerable people are just dumped together in such schemes that have complex problems and they are not integrated into society leaving them isolated which is so very wrong.

Now for the first time Elizabeth has a lovely flat.   This is the first accommodation that is comfortable, not shared with others resulting in possessions going missing and with Elizabeth having to share accommodation with untrained support workers, not all of whom knew how to communicate with her.   The first thing they do when someone is distressed is to call the Police and then that person once again ends up sectioned, on a ward where brutal treatment goes on adding further to the trauma of that person.

On Suffolk Ward Chase Farm Hospital, there were daily injections of Lorazepam to the point I called the CQC.   When I heard of this treatment and how it was affecting Elizabeth this I tried my best to get the flat up and running without support from Enfield Community Rehab.   I spent my lunch hours trying to sort out benefits in order to obtain Housing Benefit which you can only get if you qualify for if you get Severe Disability Premium but this was not easy to obtain as you could not get through on the phones.  Then having to deal with endless email correspondence and be assessed for the council tax payments of which a portion goes to social care.  None of this has been easy to get   in place.

So carpets were laid, possessions delivered.  I’d given Elizabeth her bed from home.  I bought a small table and two chairs for her balcony.    I bought pigeon netting as the balcony, despite being cleaned by the Council, had become filthy with pigeons nesting.   I then had to clean the balcony myself as re-cleaning refused.  I then had to sort out the electricity supply and had trouble getting hot water up and running.  There was no cooker -despite Enfield Community Rehab stating a grant had been applied absolutely nothing was provided for Elizabeth and when I recently that I should expect nothing to be provided.   So I have had to purchase essential things for the flat myself such as cooker and I recently bought from a company called Made.com a nice sofa bed so that other members of the family who have moved away can come and stay.

So far, only Elizabeth’s sister has been to visit the flat briefly when she came down for my Birthday.

The next essential appliance is a washing machine which I will get next month as it has been expensive to provide all of this myself without any assistance.  She already has a fridge but I want to get a fridge freezer also.   I also would like to make the balcony look beautiful like a little garden with artificial grass and plants.   I bought some paint yesterday to paint the balcony.

Elizabeth’s is in distress:

Despite the lovely flat, Elizabeth has been in distress lately.   She has nothing provided in care by ENFIELD COMMUNITY REHAB – a mental health team whose emphasis has been on court action in the matters concerning displacement of me as Nearest Relative.

Encouraged to attend the mental health resource centre at Park Avenue Elizabeth made a new friend there.   The two friends kept going missing all the time.  It didn’t matter whether Elizabeth was on CTO or even on Section 17 leave.  Neither were happy in their temporary schemes so I was so happy when Elizabeth finally won a bid for the one bedroom council flat of which she had been assessed months ago however by this time Elizabeth had gone downhill due to being in temporary accommodation where she was unhappy.    Elizabeth’s friend also moved locally to a MH scheme where emphasis was on “medication” and she was not happy there.  This friend was spending more and more time at the flat both kept stopping medication and Elizabeth has now been off the drugs for quite some time.     These friends seemed to be looking after one another and supporting, or trying to support, one another but both had complex issues.  Without guidance or assistance such friendship can end up being destructive and, unfortunately,  when things are not going well with the friendship Elizabeth has gone downhill.  To  act as a “carer” for someone else when that person has complex PTSD and has issues of their own is not an easy thing and when faced with additional physical disabilities such as for instance epilepsy this is not a good situation.

Yesterday, I went round to visit Elizabeth who was on her alone at the flat.  She was not happy and I gathered that things were not going well with regard to her friendship.  Because Elizabeth had been constantly attending A&E because of her friend crying out for attention to physical health this led to one/both being sectioned.

I despair, as now, only yesterday, Elizabeth’s front door was been broken by Police who because of a phone call allegedly from Elizabeth stating she felt “half dead” but Elizabeth is autistic (though it was pointed out by care coordinator PM she had never had a formal diagnosis).   I then pointed out that throughout the files  it was  consistently mentioned  “learning/developmental disability” and there is a report by Dr Bob Johnson on complex PTSD totally dismissed by Enfield Community MH Rehab team leading to totally wrong treatment of psychiatric drugs.   I visited Elizabeth’s flat yesterday because she needed a padlock to lock the front door.    Yesterday there was drama.  A family friend had gone round to the flat to assist for access for workmen to attend but  Elizabeth then discovered that she had been locked in completely with a padlock secured to the front door.   The care coordinator explained instructions were given to break down the door because of reports Elizabeth felt half dead when in actual fact she was not in but out with her friend.    It is a shame the front door was broken down when spare keys to the flat were available locally with a family friend that could have been contacted to avoid this situation.    The front door which has been badly damaged is another thing I have to sort out during the week.   I might get a key box in order to avoid any reoccurrences.  When Elizabeth says she feels half dead in actual fact this is not the case and dialling 111 should not have to mean an ambulance being called out when in fact all she needs is someone to talk to which is what I  tried to do yesterday.  I went round to her flat bringing plenty of food.  I offered to take her for a drive in the country.  I got the impression that Elizabeth had not slept well or had eaten anything.  Not sleeping or eating is a trigger point.   Elizabeth kept phoning to see where I was but I was sorting out the padlock and was in B&Q and when I arrived she was sounding distressed.  It really is bad the way she has been discharged from hospital without a single thing in place.

Elizabeth has the best accommodation in terms of the flat she could ever wish for – not just a tiny room in a shared house full of other disturbed vulnerable people where possessions go missing and there is likelihood of her clashing with other people.    She is very close by but I cannot be around every second and that is why I am so disappointed with care provided under Enfield and feel she is under the wrong team as it is not the first time that nothing whatsoever has been provided and all they do is drag her back to hospital time and time again and refused to give anything in the community.  I have now turned to the GP as I feel Elizabeth’s physical health all along has been ignored especially when Elizabeth has called at A&E with joint pains, back pain and even her eyesight  – blurred vision and pain which is not mental illness –  this is what you get when you have been on psychiatric drugs for so many years and develop chronic pain then Doctors then try to prescribe another drug to counteract this.   We all believe Elizabeth has chronic brain impairment caused by her treatment.     Like never before Elizabeth suffers from anger issues whereas once she was pleasant, polite – a quiet person who had friends.  Then along come a team of MH professionals  who start writing in nasty terms about family background when these professionals do not see the full picture and do not communicate in a decent manner with the family.

Yesterday, after seeing Elizabeth I called to see the GP who is open Saturday and Sundays.    They operate a service called “The Hub” but this service is like a skeleton service.    It might sound good on the surface but it is not because a Doctor cannot access  notes written by the regular team of Doctors so what good is this?   I have told Elizabeth about The Hub and that it would be best for her to visit the local GP surgery than make calls to Police and 111.  At least Elizabeth can talk to a properly trained doctor to address her anxiety about her physical health.  This doctor made notes which will go to her regular GP.      A service such as this should have full access to all the computer file records -something should be done about this.    Just like the new Urgent Care Centre at the local hospital, replacement for what was once an A&E department, whilst it is a nice modern newly-built facility they are very limited to what they can do to help people and that means travelling a fair distance to another hospital which does have full facilities.

I have written several emails to Carlton House Surgery because Elizabeth is not getting basic care in the community and a lot of trust has been lost in mental health services.  the local MH team which is  (Enfield Community Rehab) are providing nothing and have refused direct payments on numerous occasions. Elizabeth wishes for her physical health to be examined thoroughly.  She does not want to be drugged up once again on psychiatric drugs which do not work.   Calling emergency services is a cry for help and Elizabeth is a product of NHS failure under MENTAL HEALTH CARE.   So now I have requested a referral to another team ie HEADWAYS or similar that deal with chronic brain injury which is what we all feel she has.   They provide support in the community.  The GP should also look at her neglected physical health needs and examination of a cyst in her head that has been neglected for years, ignoring the recommendations of the recent Tribunal for hormonal tests.   The last I heard that they were having another meeting but priority now needs to be given to correct assessments as having read the DSM no psychiatric labels should be given until a full and thorough physical test assessment is done.    We cannot accept a MH diagnosis because in the first instance Elizabeth came under MH services because of Prozac induced psychosis caused by withdrawal of this highly dangerous drug which led to false label after false label.

I have requested countless times direct payments in order that I can provide what Elizabeth wants.  At least she would have some care in place if I was arranging it like I did for my father with Alzheimers who had a good team of social workers who worked with not against the family as they have done under MH for Elizabeth.   I had 24 hour care with my father in his own flat which benefitted him.  This was better that ending up in a care home or any kind of hospital.

It is cheaper to provide a bit of support in the community than just keep admitting someone like Elizabeth to hospital and placing them on section after section when all along the community mental health teams are not providing what is necessary and where is the money going?   I think the money is being wasted – a waste of money going on legal action and waste of professionals time in attending tribunal after tribunal when all that is needed is direct payments to provide a companion for someone like Elizabeth as she can do things for herself in the house and can go shopping but needs help with budgeting and especially help when it comes to forming friendships –  someone to talk to and confide in and to gain valuable advice when it comes to friendship is what I feel is needed.

What would be good is for the students of around Elizabeth’s age to be involved – those   studying for mental health nursing and psychology would be of more benefit than a “mainstream” psychiatrist.  The answer is not to supply yet more drugs but to provide the very basics –  the right kind of friendship that could give valuable guidance by other young people, not by a team who wish to push drug after drug which is clearly not the answer in Elizabeth’s case.

 

 

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Elizabeth has been discharged from hospital into an unfinished flat not quite up and ready.   I was trying to get this ready and put carpets down and had furniture and possessions delivered.  I bought a cooker and I bought a sofa bed but still need to get a fridge freezeer and washing machine.   I am pleased I have just finally managed to sort out the hot water in the flat and now Elizabeth has this facility.

Tonight I  am  upset as I took Fluffy the cat to visit Elizabeth in her new home – a one bedroom council flat which is situated nearby.

Elizabeth requested I bring Fluffy the cat to see her but unfortunately she opened the door to the cupboard under the sink and Fluffy has disappeared.

I have phoned various people including Enfield Council out of hours repairs as|I hoped they could arrange to rip the furniture out but the Council do not see this to be their responsibility.  I can only hope that Fluffy the cat will be able to come out from his hiding space in time.   I am going to call out the RSPCA tomorrow to see if they can help but they have advised for me to put food down and water which I have done inside the cupboard.

Earlier Elizabeth had called 111 regarding pain to her back and ambulance had been called out by 111 and Elizabeth got distressed at the amount of time I was talking to the ambulance paramedic.  Fluffy the cat has taken refuge I hope under the cupboard and hope he comes out on his own accord.

Today I have been out today to celebrate as it is my Birthday with Elizabeth’s sister.  The things I can celebrate is that Elizabeth is no longer on a CTO or any kind of section.  It is pointless putting Elizabeth on a CTO or section as she kept going missing on both.   At long last Elizabeth has her own council flat.   At least she will not be going missing all the time as previously.

I have been out today with my other daughter for afternoon tea at the Ambassadors Hotel in Bloosmberry.   I have further been out with her to Alchemis in Old Street for some fabulous cocktails .  Now I feel my day has been spoiled with Fluffy the cat going missing and can only hope and pray he will be found safe and well.

I have told Elizabeth to keep the door open of her sink unit.  I have put food and drink down for Fluffy.  This loyal caring and compassionate cat has been part of our lives for quite sometime.   He has calmed Elizabeth when she was in hospital and allowed home and became distressed and now he has gone missing and I am really worried.

I want to get someone to rip out the furniture tomorrow but I am worried how far the cat could have been trapped and hope that he is in her flat and not elsewhere.  I hope he is just underneath the sink unit.  I must try to sort this out and I now wish I had not brought him.

There seems to be one drama after another in my life and this is one I could do without.

There seems to be no help in the community in respect of Elizabeth.   No-one  responds to emails.  No-one informs what is going on if anything.  You are treated like nothing as a carer but for the first time I do not have to fight a section and feel happier about this.  I was bracing myself thinking I would end up yet again in court as a Litigant in Person with the team trying to displace me as the Nearest Relative but I think they have finally realised that neither section or CTO worked for Elizabeth who kept going missing time and time again.

Tomorrow I will not be celebrating.  Tomorrow all I hope for is good news that Fluffy  is found to be safe and well.

 

 

 

 

 

The Good News:

Elizabeth has won bidding for a one bed flat.   We went to look at it on Friday following the CPA and Elizabeth really liked it.  It is on third floor level and has beautiful views from the balcony.  What a difference this will make to Elizabeth as opposed to all the shared accommodation which has proved to be no good.

Past Accommodation Provision Under Enfield.

2012 Moti Villa – The Ridgeway Enfield EN2.   MH scheme studio flat GF.  Terribly abused captured on CCTV whilst staff slept.  24 hr “support” failed to protect Elizabeth who was on 800mg Quetiapine at the time.

2014 Phoenix House Stepping Stones Northampton.  Care home rated “Good” by CQC. According to files Elizabeth went without food at weekend, as she could not manage money.  They refused to give Clozapine when Elizabeth did not wish to return resulting in safeguarding and led to Ct of Protection DoLs case and the Deprival of Medication – community care where Enfield Community Rehab tried to deprive liberty but Ct of Protection allowed Elizabeth back home in accordance with her wishes.

Mays Cottage – Inclusion Housing / care provided by Craegmoore (Part of the Priory Group).  Low level support – no staff throughout the night.  Support workers upstairs in office and Elizabeth had small room on GF that had broken lock and was told to sleep on settee and wait for staff to arrive in the morning.  House residents mainly men and Cannabis offered to Elizabeth.

Reservoir House – Oakwood –  Shared house –  support workers meant to study on line.    Nice house, nice area, nice garden – double room.  Essential services not up and running  following hospital discharge.  Bed bugs, Elizabeth falsely blamed for bringing them in and after 5 fumigations problems still persisted.  Elizabeth sleeping on floor and settee and covered in bite marks.

Solway Road N22 – temporary scheme meant for short term stay provided since December 2018.  Shared house in quiet residential road.  Support workers slept overnight downstairs  –  Small attic room.  No dining room/no kitchen – kitchen partly in staff bedroom/office. Elizabeth fair distance from home – access to GP difficult/virtually impossible.

During the time spent at Solway Road I became concerned that if this were to continue long term Elizabeth would go downhill as she appeared to be deteriorating in this environment.  Cooking preparing meals very difficult.  No table to sit and eat meals.

Elizabeth’s assessment for a one bedroom flat was way back in 2018 but nothing appeared to be progressing. So in the end I got involved in the bidding in desperation at seeing her going downhill.

CTO Revoked – Elizabeth held on Section 3 MHA

The above is the current position.  Elizabeth is held prisoner on Chase Farm Suffolk Ward not being allowed any leave even escorted.  I telephoned Suffolk Ward late on Friday to enquire whether Elizabeth could come out with me but a nurse who refused to give her name said that “no leave was granted” and therefore Elizabeth could not come out even escorted.     I immediately wrote to Jinjer Kandola – Chief Executive Officer of Barnet, Enfield and Haringey MH Trust.  Not once has Ms Kandola replied to any of my emails and I copied in the Health and Social Care Commission,  CQC, PALS, amongst others.  I believe that once again there is violation of  human rights on Suffolk Ward, Chase Farm Hospital Enfield where so many detrimental things have happened to Elizabeth.

Forcibly injected with such force her slippers broke;

Threatened with homelessness by former RC Dr KC if she did not choose her father as Next of Kin;

Detained illegally under the MHA for which an apology was given;

Beaten up around the head so badly she had to be transferred to Trent Ward Edgware.

Not allowed contact off the ward previously under S17 leave when presenting no risk.

Suffolk Ward it would appear is a law unto themselves.

Recently Elizabeth has been given two Lorazepam injections which has led to physical health problems, severe discomfort and numbness in her hands and has added to the PTSD she already suffers from.

Suffolk Ward is an example of the brutal treatment under Public Sector Care in the UK

So far, programmes like Panorama have featured private institutions but from Suffolk Ward – whilst under care by RC Dr Helen Moorey,  Elizabeth was previously sent for rapid tranquilisation at huge public expense to Huntercombe Roehampton who disagreed with the mental health diagnosis of “Paranoid Schizophrenia” stating high spectrum Aspergers which is mentioned by other doctors too throughout the file.  At Huntercombe Elizabeth was given enormous quantities of drugs previously found to be allergic to to the point she could barely see or stand.  She looked totally traumatised at this dreadful hospital where they could not even get her date of birth correct in the file records (subject of ICO investigation) however the treating doctors disagreed with the diagnosis that Suffolk Ward stick to as does every single person in the family disagree.

NORTH MID HOSPITAL HORIZON SUITE

Elizabeth called an ambulance as she was suffering from physical chronic pain no doubt as a result of the forced injections from Suffolk Ward which indicated nerve damage when Elizabeth could barely walk as her big toe hurt and her back and stomach hurt also.    See above link regarding our treatment from this General Hospital A&E.

Elizabeth was not allowed to join myself and close family friend for a meal out and had only had just 1 sandwich all day, kept prisoner whilst staff looked for a bed which took well over 12 hrs.

When a CTO has been revoked – the detention reverts to a Section 3 and loss of S17 leave in Elizabeth’s case.   Elizabeth is now held prisoner on Suffolk Ward, not allowed out even escorted but was allowed some leave on Friday in order to view the new flat which has been offered to her.

Friday 6th June – CPA Meeting.

I was invited to attend the meeting by Elizabeth in the morning and had prior arranged for Elizabeth to be allowed out to view the new flat in the afternoon but attempt was made to stop me from going into the CPA meeting which I as Nearest Relative had to point out I had proof by way of text message this is what Elizabeth wanted.

At the CPA meeting was Dr Jeremy Greening, Dr Helen Moorey,  staff nurse Cecile Shalo and a student.  Elizabeth’s S17 leave has been cut because Elizabeth did not go back to the Hospital for a meeting due to her feeling unwell and she was apparently in bed complaining of terrible pain to her big toe (sign of nerve damage).  Elizabeth was also complaining of back pain and blurred vision/ temporary blindness and headaches. I had offered to take Elizabeth to the hospital previously for the discharge meeting as I had a day off but that day off was to go and help Elizabeth with the bidding process as nothing was moving forward and she was just stuck in temp accommodation.  Elizabeth had called an ambulance as she was in so much physical pain and she was being prescribed a drug called Risperidone for well over the period of time  Manufacturers recommend, despite the fact previously found to be allergic to this drug for which the team are fully aware.  I am also aware Elizabeth has been offered mood stabilisers recently so I immediately got in touch with a leading Professor about this, an expert on drug adverse reactions and I was told mood stabilisers were a “dangerous fashion” in Psychiatry.   Take Sodium Valporate – this is currently going through Class Action through Leigh Day and Co Solicitors.  Likewise other firms of solicitors are now getting involved in similar cases against the drug companies just like in the US.    It seems there are firms of solicitors in the UK interested in psychiatric injury and negligence in prescribing as I have discovered.  PTSD is most certainly an injury that most Psychiatrists like to dismiss as irrelevant and drugs are ineffective for PTSD.   I have been warned about Mirtazepam and Carbamazepine that these drugs can actually cause psychosis.

Here is what Drs don’t inform the patient of:

Mineral Mood Stabilizers

Lithium is commonly used to treat depression and mania in bipolar disorder. It was approved by the FDA in 1970 and is still used in a number of cases today. It can be prescribed alone or along with other medications that treat bipolar disorder. Commercial brand names for lithium medicines include Eskalith, Lithobid and Lithonate.

Lithium is highly effective when used to stabilize mood, but it can cause side-effects. These include:

  • Nausea
  • Fatigue
  • Tremor
  • Weight gain
  • Confusion
  • Diarrhea

High levels of lithium in the blood can be dangerous, so doctors will routinely monitor your health via blood tests if you take lithium medications.

Anticonvulsant Mood Stabilizers

Anticonvulsants are commonly prescribed to patients with epilepsy, but they are also highly effective at reducing the severity and frequency of bipolar episodes. There is a long list of mood stabilizers in this category, but commonly prescribed medicines include:

IF The following anticonvulsants are sometimes used “off-label,” meaning they are not officially approved for the treatment of bipolar disorder, but the FDA approves them for other purposes. Doctors can prescribe off-label medications for the benefit of a patient’s care.   BUT IF SOMETHING IS NOT APPROVED THEN IT IS NOT OFFICIALLY RECOMMENDED THEREFORE ANY DOCTOR PRESCRIBING OFF LABEL IS AT RISK OF NEGLIGENCE AND LEGAL ACTION IN THE EVENT OF HARM BEING CAUSED.

  • Oxcarbazepine (Oxtellar, Trileptal)
  • Gabapentin (Horizant, Neurontin)
  • Topiramate (Qudexy, Topamax, Trokendi)

Common side-effects of anticonvulsants are similar to those of lithium, but they may also include headaches, sexual problems, abdominal pain, fever, confusion, blurred vision and abnormal bruising and bleeding.

Antipsychotic Mood Stabilizers

Antipsychotics are another medication type on the mood stabilizers list. In some cases, they are prescribed alone, but they may also be taken with other mood stabilizing drugs. Medications in this category that are approved for the treatment of bipolar disorder include

Antipsychotic medications can cause side-effects. These may include:

  • Tremors
  • Blurred vision
  • Weight gain
  • Dizziness
  • Rapid heartbeat
  • Sensitivity to sunlight

All side-effects should be reported to your doctor. If you experience swelling of the hands or face, difficulty breathing, body rash or irregular heart rhythms, you should seek medical assistance immediately. Some drugs on the mood stabilizers medication list can also cause adverse mood symptoms, such as suicidal thoughts and behaviour, hallucinations and problems with memory.  If any of these occur, it’s important to seek immediate medical advice.   Yes this applies to Elizabeth but no one takes any notice under ENFIELD.

Which Drug on the Mood Stabilizers Medication List Should I Choose?

If you are diagnosed with bipolar disorder, your doctor will examine your symptoms, medical history, allergies, intolerances and other general health factors to determine which course of treatment is right for you. You may need to try different medications from the mood stabilizers list to determine which works best.  Elizabeth is not diagnosed with Bipolar Disorder yet has been offered mood stabilisers.

During this time, it’s important to meet with your doctor regularly to report any side-effects and see how well your treatment is working. Your doctor can then make periodic adjustments to your medication to keep your side-effects and symptoms under careful management.

Elizabeth does not have Bipolar or Schizophrenia.  Elizabeth has been prescribed all of the drugs highlighted in bold and has suffered all of the symptoms above but when seeking medical attention for her physical health she has been treated like a criminal and none of this is taken into consideration by Psychiatrists in the local area of ENFIELD.  I will give you an example of how certain Doctors dismiss physical health in favour of continuing with the “treatment of drugging” when they are supposed to do NO HARM and deny proper assessments.   Above it states that patients need to try different medication to established which works best but in Elizabeth’s case none of them work and they have been given at maximum levels causing harm and injury for which there is no accountability.  Doctors are supposed to DO NO HARM.  That is not the case under Psychiatry.

SELYES GENERALISED ADAPTATIONAL SYNDROME

NMS – Neuroleptic Malignent Syndrome

THE INVISIBLE HOLOCAUST

 THE WORRIED WELLTHE WORRIED WELL

THE OUTDATED MH LAW AND CARE OF THE UKTHE OUTDATED MH LAW AND CARE OF THE UK

I am wondering if the drug below is what is being recommended for Elizabeth but this is for Epilepsy so I would once again question what the hell is going on that Doctors are allowed to experiment with someone’s life.

Lamotrigine 25mg Tablets – Patient Information Leaflet …

27/04/2015 · If you are taking Lamotrigine tablets for epilepsy, to stop taking Lamotrigine tablets, it is important that your dose is reduced gradually, over about 2 weeks. If you suddenly stop taking Lamotrigine tablets your epilepsy may come back or get worse

  1. Psychiatric drug-induced Chronic Brain Impairment (CBI …

    https://breggin.com/psychiatric-drug-induced-chronic-brain-impairment-cbi

    Psychiatric drug-induced Chronic Brain Impairment (CBI): Implications for longterm treatment with psychiatric medication. International Journal of Risk & Safety in Medicine, 23: 193-200. Peter R. Breggin, MD Abstract: Understanding the hazards associated with long-term exposure to psychiatric drugs is very important but rarely emphasized in the scientific literature and clinical practice. Drawing on the …

  2. Chronic Brain Impairment & Psychiatric Drug Withdrawal …

    https://http://www.youtube.com/watch?v=hia6z6uNCfs

    1:10:59

    04/02/2018 · Dr. Breggin‘s speech was delivered on September 18, 2015 via Skype to a conference sponsored by CEP, the Council for Evidence-based Psychiatry in Great Brita…

    • Author: Peter Breggin MD
    • Views: 12K
  3. Psychiatric drug-induced Chronic Brain Impairment (CBI …

    http://www.ectresources.org/ECTscience/Breggin_2011_Chronic_Brain_Impairment · PDF file

    Psychiatric drug-induced Chronic Brain Impairment (CBI): Implications for long­ term treatment with psychiatric medication. l . Peter R. Breggin* Director ofthe Centerfor the Study of Empathic Therapy and Private Practice, Ithaca, New York, USA . Abstract. Understanding the hazards associated with long-term exposure to psychiatric drugs is very important but rarely

 

DR HELEN MOOREY’S REPORT 

Dr  Helen Moorey (Responsible Clinician) Suffolk Ward report dated 31 May 2019 contains disturbing statements,  which I will summarise, from which you can draw your own conclusions:

Sources of information listed are medical records, team discussions and patient interviews.

The report is worded in the most negative terms in respect of Elizabeth and her behaviour but I will leave it up to the reader to draw their own conclusions as to why reports are written in such a way and also why a patient goes downhill to such an extent thanks to the brutal treatment they get on wards such as SUFFOLK.   We feel that because Elizabeth absconded she is now being punished yet Elizabeth has declined and suffered injury as a result of her treatment under ENFIELD.

I must correct the following lies “…………. appeared perplexed and said she believed Police were trying to frame her and that her mother was injecting her friend with Cocaine”    A false misleading statement completely taken out of context either by Dr Moorey or whoever from the treating team?  

Risperidone is mentioned  to try to justify such treatment.   when Elizabeth started Risperidone on the ward she became much calmer and her behaviour more manageable, no longer expressing paranoid thoughts and thinking more logical”

Contradictory remarks that dismiss other professional opinions and that of her family who witnessed agitation, distress, confusion in fact all of the symptoms below whilst ON THE DRUG. 

  • Tremors
  • Blurred vision
  • Weight gain
  • Dizziness
  • Rapid heartbeat
  • Sensitivity to sunlight
  • confusion
  • agitation
  • aggression
  • thought impairment
  • chronic pain
  • headaches

Risperidone – Wikipedia

https://en.wikipedia.org/wiki/Risperidone
  • Risperidone, sold under the brand name Risperdal among others, is an antipsychotic. It is used to treat schizophrenia, bipolar disorder, and irritability associated with autism. It is taken either by mouth or by injection into a muscle. The injectable version is long-acting and lasts for about two weeks. Common side effects include movement problems, sleepiness, dizziness, trouble seeing, constipation, and increased weight. Serious side effects may include the potentially permanent movement disorder tardive dyskinesia, as well as neuroleptic malignant syndrome, an increased risk of suicide, and high blood sugar levels.[2][3] In older people with psychosis as a result of dementia, it may increase the risk of dying.[2] It is unclear if it is safe for use in pregnancy.[2] Risperidone is an atypical antipsychotic.[2] Its mechanism of action is not entirely clear, but is believed to be related to its action as a dopamine antagonist and serotonin antagonist.[2]

    Study of risperidone began in the late 1980s and it was approved for sale in the United States in 1993.[2][5] It is on the World Health Organization’s List of Essential Medicines, the most effective and safe medicines needed in a health system.[6] It is available as a generic medication.[3] The wholesale price in the developing world is between $US 0.01 and $US 0.60 per day as of 2014.[7] The cost for a typical month of medication in the United States is between $US 100-200 as of 2015.[3] In 2016, it was the 159th most prescribed medication in the United States, with nearly 4 million prescriptions.[8

    I as mother and Nearest Relative and next of Kin am accused of influencing Elizabeth’s decision not to return to the ward but Elizabeth was unwell and in bed and as I had a day off I contacted her to say I was present and could she come to the meeting on the ward but apparently Elizabeth was in bed, undressed and suffering from chronic pain.   What a pack of lies!

    On 29th May Elizabeth presented to A&E about concerns re her eyesight and this is not the first time I have heard that.  Yes Blurred vision is mentioned as a side effect and also sensitivity to sunlight and headaches so Elizabeth it would appear had reasonable concerns related to the side effects of this powerful drug.

    Since returning to the ward she appears perplexed and preoccupied with physical issues”  – well she is suffering from withdrawal effects because Elizabeth has been ignored by Drs when she talks of chronic pain and side effects on the drugs.  They do not seem to care less despite the fact it clearly states that they should take notice of serious side effects but it is much easier to ignore.

    Elizabeth has been in temporary accommodation she has not been entirely happy with amongst others in confined space with no lounge or proper kitchen facility.  This is hardly the right environment to get well and she had made a new friend.  Neither were happy with their accommodation and Elizabeth had chosen not to go back or rather was too late to go back because the door was locked at 10.00 pm.  She is made out to be confused and that she did not understand the buses –  Elizabeth and friend were not returning to their scheme but sleeping rough.

    “Since her return to the ward ………….has refused to accept any medication.”

    Well it is about time it is recognised that in Elizabeth’s case medication is clearly not the answer and part of the main problem.   How on earth can you “cure” someone with more and more experimental drugs (most of which have already been tried and tested to no avail) on someone who has been so badly abused at Moti Villa for instance.   This is clearly not the right approach and can have far reaching consequences of brain injury which has been noted in Elizabeth.   It takes her so long to respond to questions and you can see she is struggling to think and communicate unlike before.

    Tardive Dyskinesia is a serious irreversible condition which the drug Risperidone is associated with.  

    There has been aggression and confusion WHILST ON vast quantities of  concomitantly prescribed drug cocktails which should never ever be prescribed for so very long.  This is against guidelines and drugs have been given off label by Doctors knowing full well they are doing wrong yet they are totally unaccountable for the harm they cause to patients like Elizabeth.

    Once again, Past History is recorded incorrectly and full of errors.    It states early traits of borderline personality disorder since age 16.   Instability of mood and poor impulse control.  Not true!   Elizabeth was immaculately behaved at age 16 but was having some problems at school with certain subjects and found it difficult to ask for help so I provided private lessons.    Elizabeth was unhappy at secondary school when her close friend moved to another area.

    MRI scan showed benign tumour at the apex of left petrous temporal lobe.  It is extremely negligent of ENFIELD MENTAL HEALTH PSYCHIATRISTS AND NURSING PERSONNEL to dismiss this as nothing when as stated in file records this needs to be regularly assessed through MRI Scans but this is not being done.  “Lets rule out anything organic” is the response from ENFIELD MENTAL HEALTH.This is why I have turned to brain injury specialists/charities as I feel that Elizabeth is being totally neglected and is not receiving proper assessments on physical health.  They are taking a keen interest as it seems now to be recognised that injury can be caused by faulty prescribing. 

    It is referred to in the report an admission to A&E with disturbed behaviour but completely wrongly recorded that the admission was to Chase Farm when in fact it was to Edgware Hospital where a Doctor had a completely different opinion on diagnosis however it is very much debateable that the real truth of the matter is this is NOT mental illness but “drug induced psychosis” when Elizabeth took herself off Prozac prescribed by her GP at 30mg a day.   This was the first time we saw aggression – the behaviour that is mentioned throughout reports, so in actual fact the damage had been done going way back to circa 2008, when Elizabeth was prescribed Prozac and took herself off “cold turkey” due to the most terrible side effects.  This led to ward admission, labelling and experimentation with vast quantities of dangerous psychiatric drugs prescribed on a trial and error basis.

    I do not like the comments around frequency of admissions whilst at Moti Villa Scheme.

    The true facts are that Elizabeth was forced to remain living at this scheme with no alternative provided and to have to live on ground floor level next to the neighbour who was bringing in all his friends to the scheme who abused Elizabeth in the early hours of the morning whilst staff slept, as captured on CCTV that duly went missing – Police could not find the CCTV.  Elizabeth lost all her valuable possessions.    Not once has there been an apology and Elizabeth was under ENFIELD COMMUNITY REHAB TEAM at the time.    There was a 14 year old drug dealer on the premises who offered Elizabeth drugs.  She was taking 800mg of Quetiapine at the time and could barely function.    The OT (Occupational Therapist) KL was more concerned for the 14 year old streetwise drug dealer than Elizabeth judging by her comments warning Elizabeth that it was against the law to have a relationship with a 14 year old drug dealer allowed to visit the premises of MOTI VILLA, THE RIDGEWAY ENFIELD EN2.  It is also suggested that Elizabeth’s disturbed behaviour by AHMP DM was as a result of wishing to escape her mother.     NO IN FACT ELIZABETH WAS TERRIFIED TO GO BACK TO THE SCHEME AND WAS DOING EVERYTHING TO AVOID THIS AND FELT SAFER IN HOSPITAL  – HOW VERY SAD!   HER BEHAVIOUR WAS TOO UNSTABLE FOR THE FAMILY TO  HAVE HER BACK HOME AND THAT WAS ON 800 mg of QUETIAPINE.

    Interestingly slight irregular EEG background noted but this did not stop Elizabeth from being sent to the shocking Royal Bethlem Hospital for the sole purposes of prescribing Clozapine.   I’ve found all the file notes on this –  it is horrifying and so many disturbing things at this Institution – no wonder it was shrouded in secrecy and Elizabeth was covered in bruises which they deny yet I have it all in the file records Royal Bethlem FM2 Ward.  This is where Elizabeth was referred by Professor Robin Murray  for a drug free period of assessment but this was not done properly and the intention was for Clozapine to be introduced as Elizabeth was showing signs of severe adverse reaction to Quetiapine at 800mg.

    “On 27 March 2012 she was admitted to National Psychosis Unit, Royal Bethlem Hospital Beckenham FM2 Ward where a formal diagnosis of schizophrenia was made.  No! The diagnosis was Treatment Resistant which means poor/non metaboliser which I proved by way of P450 liver enzyme tests. 

    Elizabeth and I would like to thank members of SPEAK OUT AGAINST PSYCHIATRY for their support in a demonstration staged outside this institution where Elizabeth developed tachycardia on titration of Clozapine and where Elizabeth was covered in bruises as a result of restraint.  Finally the truth is coming out – it is no use them stating that they saw no bruises because Nurse AC commented “Im happy with that”.   Well now we all know what happened as I can read all about it and the other most disturbing things at this hospital regarding vital equipment not working etc etc. in the extensive file records I have acquired.

    From NPU Elizabeth was sent to Cambian St Teilo House where the drugging regime continued and Clozapine increased by Dr Alyson Witts who banned Elizabeth from coming home at Xmas stating she was too ill yet allowed a visit just prior and awarded more visiting rights to the rest of the family allowing escorted only visit home to see myself.  I was never included in meetings, I was the Nearest Relative they sought to displace and even tried to arrange vital meetings when I was not informed.   The Tribunal took place over two days and Elizabeth had a brilliant report done by Dr Bob Johnson.  Fortunately Cambian’s luxury offices could not be more conveniently situated for me to visit at Fulham Reach so I visited their offices.

    “YOU ARE OVERTURNING THE APPLE CART”

 

From Cambian to Phoenix House Stepping Stones Care Home where the priority was arranging a CTO and displacing myself as the Nearest Relative.  Got all your shocking conversations especially that Elizabeth had no food at the weekend.  SHAME ON YOU CQC to rate this care home as Good.

I would thoroughly praise the Court of Protection who allowed Elizabeth to come home but we were constantly harassed by ENFIELD COMMUNITY REHAB AND Dr Moorey is mentioned in the file notes.    Dr Moorey facilitated the visits for Enfield Community Rehab Team to infiltrate the CHTT on their visits  home.  My accurate account of our experience is below:

“GET HER BACK WE’RE PAYING FOR THAT”     

 

They were reporting for court purposes negatively backing one another up and Elizabeth was told (overheard by one of my appointed carers) “It wont be long before you are back at Phoenix House – a care home where Elizabeth was unhappy in.”

This is abuse on a par with the recent Panorama Programme on Cygnet so as you can see you do not even have to be referred to such institutions as abuse goes on everywhere and ENFIELD is a prime example.   To deprive medication to force return to a care home hundreds of miles away from home and family where Elizabeth had no food at the weekend.

For any Doctor to knowingly prescribe dangerous drugs for well and truly over the manufacturer’s guideline period is negligent.

Not much mention is made of the wonderful care I provided through Working to Recovery and how psychotherapy benefitted Elizabeth – that when she came home we did not recognise her.  She was confident, she could talk indepth without losing her temper, she looked good and has lost weight, was suntanned after coming back from Australia.  She was petrified of heights and going downhill whilst at Mays Cottage where she was forced to attend safeguarding meetings against myself as mother brought about by the local community treatment MH team.    The minutes were sent to the LGO/PHSO who stated breach of code of conduct on the part of the Trust and Enfield Council.

We have seen problems with Elizabeth through neglect –  take for instance “NO TO SECTION 117”  –  This is aftercare so what has been happening is Elizabeth has been dumped into the community time and time again without support.  There is certainly no support under a CTO as this is just being used to abuse a vulnerable person.    The CTO papers are written deliberately negatively so as to fail tribunals and to ensure that the CTO continues providing extra funding to the community team who threaten the vulnerable person with constant mention of recall to hospital where there is a shoestring of staff – it is noisy and volatile and not the right environment to get well in.   Professionals write in the most dreadful manner and like to play on confidentiality using gaslighting techniques and coercion to stop a relative such as myself from seeing the files and that is because it is protection for them to remark that “she doesn’t want you to see the files”  Well I have them and it is no wonder my daughter is not getting the right treatment when there is such a pack of lies written in these files and facts and information incorrect which can only be rectified if there was openness and transparency.

Skimming through this report by Dr Helen Moorey –  it is all deliberately written negatively and all about medication and its importance when the report/previous reports does mention that the medication had no effect whatsoever on Elizabeth.  Talk about contradiction!

It is mentioned that Clopixol Acuphase was injected into Elizabeth, most recently Lorazepam and it was attempted yet again to give Haloperidal to Elizabeth on Suffolk Ward.  The reason they have difficulty in managing patients – I will give you a prime example:

I was just leaving Suffolk Ward when a patient was knocking on the window.  A nurse said “I will report you to Dr Moorey if you keep doing this as we only have two members of staff on duty.   So on these wards patients are neglected just like under private institutions because of staff shortages, lack of therapy – main emphasis on drugs and at the weekend there will be nothing for Elizabeth to do.

They talk about inappropriate behaviour and comments but there is never any mention as to the inappropriate behaviour and comments by the Professionals themselves and this is why I am highlighting this important fact.

There is no mention of the fact that Elizabeth was badly beaten up on Suffolk Ward and had to be transferred to Edgware Hospital Trent Ward with head injury.  A member of  staff from Suffolk Ward told me all about this incident and that is happened in the yard outside.  I very must appreciated the honesty of being informed.

It is mentioned About Section 2 lapsing and put under Section 5.2 but there is no mention of the fact that Elizabeth was ILLEGALLY DETAINED AND HAS AN APOLOGY LETTER.

Attempts were made yet again to displace me as NR as I objected to Section 3.     So an Order was made by AMHP SM under Section 29 MHA to displace the nearest relative  Susan Bevis.  The London Borough of Enfield failed to appoint AHMP SW Debbie Morgan at the Royal Cts of Justice.    Ms Bevis NR was given the wrong court details and was threatened with enormous costs to back out of proceedings when she represented herself in court and provided enormous evidence against the London Borough of Enfield including their safeguarding minutes as an example of how much bullying goes on.   The Judge was most interested in the P450 liver enzyme test results which showed “poor/non metaboliser of psychiatric drugs.”   I then found out that the legal advisers of Enfield Council had not gone back to court –  I was forced to delegate my role which I did for one term only but I was wary of the fact that the underlying S3 was about to expire so I applied as Nearest Relative for Elizabeth’s release only to find out I was indeed the NR and I would most definitely query the previous tribunal  –  at this tribunal I was completely disregarded and no one wanted me up there in the MHA office of Chase Farm Hospital and that is because I corrected their CTO reports which showed Debbie Morgan as NR when in actual fact it was Elizabeth’s sister OR COULD IT HAVE BEEN ME ALL ALONG AS I WAS THREATENED WITH ARREST SIMPLY FOR NOT WISHING TO GO DOWNSTAIRS AND WAIT.   Security was called and when my amended report was submitted to the MHA Office and dismissed like a piece of rubbish when I had spent so much time amending all the errors – the biggest being the wrong Nearest Relative on the report.   So I am questioning the fact that I could have been the NR all along judging by their reaction.

 

So is it any wonder that Elizabeth has trouble in expressing herself and communicating – the condition of CBI and post traumatic stress disorder is not a mental illness but in fact INJURY.

Constantly behaviour is mentioned relating to Elizabeth – constantly this is wrongly associated with stopping medication when so many of us have noted that Elizabeth is having trouble processing information – that her thinking ability has been impaired because of INJURY and she is being denied physical healthcare under the NHS.

Current Prescribed medication

Risperidone 1.5 mg nocte    NO it is in fact 1mg of the white tablet only and I have the prescription to prove it.

No Elizabeth was not nursed in a Special Care baby unit as mentioned in this report.

She has a folder of qualifications and studied catering but whilst at Westminster College she was on Prozac and could not manage on this drug which totally changed Elizabeth in her appearance and personality like never before.

Capacity and Consent to Treatment and Risk:

Under the Informed Consent Act Elizabeth has not been given full information on the drugs.   She was given Clozapine when she lost capacity at the Royal Bethlem Hospital because she objected to going on this drug in the first place so they just mixed Olanzapine at max BNF levels with Quetiapine causing instability and loss of capacity so that the Clozapine could be introduced with Metformine – contra-indicated drugs.

Elizabeth is refusing treatment at present by way of drugs because they cause physical side effects of pain and severe side effects as mentioned above.   X v FINLAND  ECHR 2012 FORCED DRUGGING WITHOUT INFORMED CONSENT IS A LANDMARK CASE,  which Dr Helen Moorey has been made fully aware of.   Elizabeth has FULL capacity in refusing treatment.   It is in fact “lack of capacity and insight” on the part of her treating team to ignore the physical health of my daughter and deny extensive MRI tests to establish the extent of injury when instead they like to “rule out anything organic”.

The fact of the matter is in the US many of these drugs are going through class action and it is only a matter of time until the UK catches up – this shows that the drugs are unsafe and have caused substantial injury – drugs like Risperidone, Aripiprazole, Olanzapine, Clozapine, Prozac – it is not a case of Elizabeth being unwell – it is a case like with so many others under the MENTAL HEALTH CARE OF THE UK THEY HAVE SUFFERED INJURY AND CBI – CHRONIC BRAIN IMPAIRMENT so it is highly negligent of any Doctor to ignore such evidence and now the RcPsych has had to admit about the dangers of anti-depressants and difficulties in withdrawing.

The Opinion is that Risperidone is the answer in well controlling such “symptoms” of thought disorder and delusions when in fact Elizabeth is INJUURED BY THEIR TREATMENT OVER MANY YEARS AT MAX LEVELS OF CONCOMITANTLY PRESCRIBED DRUGS.

Recommendations by Dr Helen Moorey:

“It is my recommendation that …………..has a further period of inpatient treatment.  If discharged from S3 today it is my opinion that ………… will choose to leave hospital and will not stay in her supported accommodation or agree to start treatment and that under these circumstances her health is likely to further deteriorate and she is likely to place herself in situations where she may be vulnerable and pose a risk to others.

The main problem was the environment and accommodation, which was temporary however circumstances have now changed.   Elizabeth has come out as top bidder for a council flat.  She was nervous about the viewing but loved the flat when she saw it.  So this report is dated 31st May and the viewing of the flat was on Friday and Elizabeth now has the keys for her very own flat after all this time and that is because I got involved in assisting her with the bidding as she was losing interest after so very long of being in temporary accommodation miles from home.     It is very important for someone to have stability and at the age of 32 Elizabeth should not be kept in supportive housing/living accommodation as one of the problems is that Elizabeth’s condition of CBI can affect her communication skills and interactions with others so when you put someone like Elizabeth in a shared house, staffed by untrained support workers this is not a brilliant solution.    All the personal budget was going on this scheme and others providing nothing for Elizabeth to do in the community.    What a shambles community care is when it is simply not provided and a hospital in need of their beds just dump people into the community after weeks/months/years on their wards without any proper support in place and I have the discharge procedures of Chase Farm Hospital which I will include on another blog.   So now that Elizabeth has her own peaceful flat and not shared accommodation there is hope for recovery.   My father with Alzheimers had his own flat and with direct payments I employed regular staff. which benefitted him.     

THERE IS ALSO AN INPATIENT NURSING REPORT BY CECILE SHALO CHASE FARM HOSPITAL ENFIELD.

Cecile comments that Elizabeth gets irritated when staff prompt her to comply with oral medication –     X v Finland 2012 ECHR – Drugging without Informed Consent!  The question is who wouldn’t be irritated to be offered a drug previously found to be allergic to which is totally ineffective and we have seen that at first hand having had Elizabeth at home and that goes for all the other drugs as mentioned in a file note that none of them have had any effect.  Professionals should in my opinion try the drugs themselves so that THEY have insight but how many of them would wish to risk their lives.

The ward have put her on 15 minutes of observation –  I think that is appalling – just imagine how anyone would feel being on 15 minutes of observation.  How restrictive is this is this classed as care ?  Of recent the Dad started keeping in touch by calling? – this is not what I heard from Elizabeth.

It is not true to say that Elizabeth’s friend visits her on the grounds as now currently she is not allowed out at all and is kept a prisoner on Suffolk Ward.

Report states that Elizabeth keeps a low profile with minimal interaction with both staff and other patients Good! – as having read these reports how can you possibly trust anyone.  So why in that case is she on 15 minutes watch?

Cecile comments she has no insight of her illness.    Her personal care is OK.    It is the team who choose not to have any insight due to the fact an MRI scan is long overdue.  Elizabeth apparently becomes more paranoid when prompted to engage with ward activities.     This is why her own flat is the best solution and a CTO completely wrong – there are at least 5 mentions of Aspergers in the file but there is even greater evidence when you look at the vast quantities of drugs prescribed that injury has occurred.  So it all seems to be about drug pushing in breach of human rights, lack of proper assessments in terms of MRI scans, injections and threats.   Elizabeth is terrified of injections.    Elizabeth has the condition of complex PTSD which only recently has been admitted under Enfield for the first time but PTSD is an injury.   Elizabeth gets terrified if someone gets too close to her – it is noted she has not been secluded or restrained but how else was Elizabeth injected then?

So once again Cecile feels a CTO is the right course of action so she can be better managed and not only that she suggests a depot injection although it is unclear what depot injection she refers.   So how much does a CTO cost and this would go to the community team who state “NO TO SECTION 117” AFTERCARE.     

Before any Depot Injections are forcibly given – the Brain Injury Charities need to do their assessments  as reading through the file records points to gross inaccuracy and error.

“GET HER BACK WE’RE PAYING FOR THAT”     

 

Cecile refers to affects on “hearing” but seems to be confused mixing up he with she –  who on earth is “he”?   It must be costing at least £900 per night and there is no way Elizabeth will ever get better in this environment of Suffolk Ward.

WE TOTALLY DISAGREE WITH THE INTRODUCTION TO A DEPOT INJECTION CECILE AND I HAVE CONTACTED THE BRAIN INJURY SPECIALISTS WHO TRULY WOULD UNDERSTAND THE EXTENT OF DAMAGE CAUSED BY FAULTY TREATMENT OVER MANY YEARS UNDER PSYCHIATRIC CARE AND I WOULD BE GUIDED BY THE RESULTS OF MRI SCANS CARRIED OUT BY THESE CHARITIES AS IN LIGHT OF THE BARBARIC TREATMENT ON SUFFOLK WARD AND INACCURACIES IN FILE RECORDS HOW CAN WE HAVE ANY TRUST OR FAITH IN THIS RESPECT? ALSO THE BRAIN INJURY SPECIALISTS WOULD HAVE A GOOD IDEA OF WHAT CARE IS NEEDED IN THE COMMUNITY UNLIKE A MENTAL HEALTH TEAM.

Perhaps detention on Suffolk Ward may have been long and drawn out due to her being unsettled in her temporary accommodation however now Elizabeth has got a great start ahead.   I would like her care transferred following a proper assessment to any one of three brain injury specialist charities who can assess the extent of injury caused and then I would feel rest assured that finally Elizabeth is getting the right treatment in the community.

 CECILE SHALO recommends to detain Elizabeth and force drug her with depot injections in breach of X v Finland ECHR 2012 – being kept a prisoner on such a ward is enough to make anyone feel distressed that is for sure.   

This attitude of continuance with a drugging regime previously found to be ineffective and of a nature that has caused INJURY is most certainly negligent and to ignore the evidence is causing MORE HARM THAN GOOD and I  want there to be accountability if anything happens to my daughter because of her “treatment” by these Professionals who discard research and evidence by Psychiatrist Dr Peter Breggin and even by the ROYAL COLLEGE OF PSYCHIATRY WHO AFTER ALL THESE YEARS HAVE HAD TO ANNOUNCE AND ADMIT THE TRUTH ABOUT ANTI-DEPRESSANTS.   These professionals are in breach of the law – the Informed Consent Act 2017.  

The best thing would be for Elizabeth to be referred to the RADAR project to be under Dr Joanna Moncrieff who is researching the true effects of withdrawal from powerful medications prescribed long term.

https://joannamoncrieff.com/2016/03/02/new-research-into-antipsychotic-discontinuation-and-reduction-the-radar-programme/ 

It is a great pity that more Doctors do not consider the harm they are doing.

I would also point out that it is not true that Elizabeth does not want to share information with me.   This is the latest information she has shared and also it has been suggested that Elizabeth may not be happy with my blog but Elizabeth knows all about it and I have her opinion in text message.   She has also written on the blog itself.

At the recent CPA meeting I was nearly stopped from going in when I could produce evidence by way of text message.

The system is so very wrong when professionals and secrecy is played upon to avoid any legal action if harm is caused to anyone which in this case is Elizabeth whose treating team totally dismiss the fact that Elizabeth is a poor/non metaboliser of psychiatric drugs, prone to adverse drug reaction and past reports that state that the drugs have no effect and do not work.     They also dismiss conflict of opinion on diagnosis in favour of “Paranoid Schizophrenia”.   

 

Dr Helen Moorey

Dr Jeremy Greening

Cecile Shalo

 

If Depot Injections are given to Elizabeth they will be against the Informed Consent Act 2017 and in breach of X v Finland ECHR 2012 Drugging without informed consent.  The UK is without doubts in breach of human rights and patients like my daughter are knowingly being drugged on dangerous medications that do not work and have no benefit whilst Psychiatrists try to justify their use but I have read Dr Peter Breggin’s research and there is must dishonesty within Psychiatry and much money being made out of misery. 

The best thing that could have happened to Elizabeth is being awarded her own flat so the longer Dr Moorey detains Elizabeth the more wastage of public money when for a fraction of money by way of direct payments were awarded Elizabeth could be helped moved successfully into her very own home.   

Elizabeth has just contacted me to ask me to come to the ward to bring some clothes but I have been so busy today.   I am gradually taking things round to her beautiful new flat and I am trying to sort out her housing benefit.  How on earth could Elizabeth manage without some help in this respect.  She has been damaged with CBI as a result of her treatment.

 

 

 

 

 

 

 

SECTION 17 Leave

TREATED LIKE A CRIMINAL

Under Mental Health patients are treated like criminals (see full document of S17 leave) so are their families if they dare to challenge and you should have seen how many people turned up on the Horizon Ward of North Mid Hospital A&E to escort me off the premises like a criminal tonight because I had come to collect Elizabeth (who is viewed as a commodity rather than a person) in their eyes.  Staff on Horizon Suite flatly refused to let go on the orders of SAMUEL ASAMOAH AND A MYSTERY CONSULTANT WHO STAFF NURSE KATIE YAWE REFUSED TO DISCLOSE AND HERE THEY ALL ARE LISTED BELOW FOR YOUR INFORMATION ON DUTY TONIGHT. 

Dr Jebrell – St Anne’s

Dr Tobiansky – Barnet

Dr Cushion – Enfield

We all dispute Elizabeth has “paranoid schizophrenia” as Elizabeth has been multiply abused under care for which I can prove but there is arrogance in the profession with some Psychiatrists who flatly refuse to accept the findings of other Doctors and just stick to their own beliefs, despite the fact they are supposed to do no harm.  This is far from true.   They refuse to acknowledge they are doing “more harm than good” as they are blinded by ideology and their belief’s (just like a religion) they wrongly believe they are actually helping a patient but this is far from true.  All they are doing is suppressing the real truth and in Elizabeth’s case the real truth is she has been abused by lots of men under the care of a former scheme called MOTI VILLA situated in the Ridgeway Enfield that finally, the team (ENFIELD COMM REHAB) are having to acknowledge because Elizabeth can speak again as she is not drugged to the hilt like before so as to disguise and cover up the real truth which now so many people are witness to.

My Visit to Horizon Suite, North Mid Hospital, Edmonton N18

I had a call from Elizabeth in distress, witnessed by several friends late last night but  Elizabeth’s distress was because she was suffering from physical chronic pain and so she had called an ambulance.   She was taken to North Middx Hospital (featured in a very informative article recently by award-winning journalist Martyn Halle who I am in touch with).  So Elizabeth was there all day long and in distress because of physical pain.    She was kept alone and only given 1 sandwich in the course of the day.   I spoke briefly to a member of staff but no one bothered to call me back despite my request.
Anyway I told Elizabeth that I as Nearest Relative, Next of Kin, Mother and McKenzie Friend would be coming to collect her and take her back to her scheme and I had planned to take her out for a meal so I immediately drove to North Mid Hospital accompanied by a close family friend as witness.  I couldn’t believe what happened next.

I have to praise security staff. I myself used to have security licences for everything at one time -I tried to change my career to obtain more flexible working hours  then I applied to the Police and I have nothing but praise for Police in our case.  I cannot say that in respect of other services under  mental health..

On arrival, I  was politely shown through the locked doors of the A&E ward and directed to Horizon Suite where Elizabeth was held and on the desk were staff – the only courteous member of staff was Katie Yawe Staff,  MH Nurse but the other person on the desk seemed to be having  a joke and kept smiling, not in a nice way, so perhaps we can   feature here on Twitter this joke – perhaps Eric Ansah can tell us all what he found so very funny!  Because the latter refused initially to give me his name which every MH professional should be obliged to give I took a photo but unfortunately my photography isn’t very good and my photo didn’t come out properly.  I have seen many times before mental health staff smugly smiling in the same way this professional did and I am just curious to know what was so funny that’s all.

I came at the end of the day at Elizabeth’s request without having had anything to eat or drink but imagine what it must be like to be a patient under their care and all she had was a sandwich all day long and no solicitor’s were called.  Elizabeth, who an entire team of Huntercombe diagnosed as autistic, must have been extremely frightened by this experience.   However, I have been researching more and more the real truth about Elizabeth’s diagnosis that is because she has been in fact injured by enormous drug treatment that has exceeded BNF levels and I have the most extensive records in this respect to be able to state this.   I have no end of witnesses to state that  Elizabeth really has CBI -CHRONIC BRAIN IMPAIRMENT.    No-one will wish to admit under the NHS that they have caused harm/injury but this is fact and I can prove it.

YOU ARE TRESPASSING ON HORIZON SUITE NORTH MID HOSPITAL – YOU HAVE BEEN REQUESTED TO LEAVE THE WARD”

The staff on the reception desk namely Katie Yawe Staff Nurse MH and Eric Ansah refused to divulge the name of the Consultant who stated that on no account was Elizabeth to leave Horizon Suite and she was to be transported to a MH ward when in actual fact she had called an ambulance in good faith because she is suffering from chronic pain as a result of past treatment of vast quantities of concomitantly prescribed mind altering psychiatric drugs against BNF guidelines.

When I insisted on taking Elizabeth out to get her something to eat, to transport her safely to her scheme what happened next was a disgrace in the name of “CARE”.  I’m more sure this was legal.

I was threatened that if I took Elizabeth off the ward Police would be called.  Oh my God! – I have every respect for Police but I could not believe the way they were roped into this sordid treatment of my vulnerable daughter who has been damaged by NHS care provided.

I informed I would be taking her off the ward and back to her scheme because she was quite stable, she was willing to come with myself and a close family friend.  She commented that she wanted to come away as she had been held a prisoner on Horizon Suite all day long.  I was told by Katie Yawe Staff Nurse that I could not take Elizabeth off their ward.  North Mid is a General Hospital by the way and they had done nothing to help her physical health whatsoever.

So already one security guy was present who was sticking up for them of course but acting very professionally I have to say.  Then they called the Police to have me escorted like a criminal off the ward with the threat that I was trespassing and of course would likewise face arrest.   What was astonishing was how many police were present to present a significant threat towards me that if I did not comply with their request they would physically take me off the ward.   I wish now that I could have experienced how the police would handle me in those circumstances and how this compared with the training I myself had when I decided to apply to the police and was at Hendon.   I decided not to argue but when I turned back it was heartbreaking Elizabeth was crying witnessed by my friend.

Here are the Police Officers concerned and they behaved in a professional manner:

PC Reilly  3662NA

PC Brown 2690NA

PC Carter 1653NA

PC Sandercombe 2393NA

I personally have nothing but respect for Police as I have not had a bad experience other than back in 2010 they did not investigate Elizabeth’s abuse properly.   Where was the CCTV – just because Elizabeth was a vulnerable adult who had been multiply abused under Moti Villa did not mean they should ignore matters and not bother to question anyone.   Fortunately I did as a trainee police officer questioned them all.  I want to know why Police could not find the CCTV – there was one as documented in the files.  So what happened to the CCTV camera and why was there a 14 year old drug dealer on the premises?   I am waiting to hear ENFIELD.  instead an AHMP tried to switch blame on home and family especially me, the mother who wants to see justice and honesty, openness and transparency.  I presented all the evidence to the Judge at the RcJ when I represented myself in court recently.       All I want is honesty – is that too much to ask?  Why is there so much unaccountability under MH – the reason is because people are either too ill to challenge or unable to.   Well I am happy to challenge a system rotten to the core that allows abuse that does not receive enough public attention.    In the UK we should be ashamed at the abuse of the most vulnerable people in society and I think this should be exposed thoroughly.   I as a mother wish to see change and there will not be such change unless people are challenging such a rotten system.  It is also shameful how the power goes to professional’s heads so they think it is funny and smile sarcastically.

I can see how people incarcerated on wards where brutal treatment is carried out and most importantly forcible drugged can turn aggressive.  When such prescribed drugs are dished out like sweets providing profit and disablement to vulnerable people like my daughter they are done so without due regard to consequences and without due regard to BNF guidelines it is no wonder people like my daughter become victims of the pharmaceutical industry and discarded by society like RUBBISH.

People only want to see what they want to see but the one thing I learned on the Police training course was never to judge a book by its cover.  I look at the all round picture and have spent hours researching my daughter’s true condition which is Chronic Brain Impairment.  In the Uk Parliament has allowed the drugs companies to draft medical laws – no wonder why there is so much injustice in the UK.

X v Finland ECHR 2012 – a very interesting case.  

In 2012 Elizabeth was at Royal Bethlem Hospital whose one goal was to introduce Clozapine with contra indicated Metformine, Bisoprolol, Senna and you name it – one drug to counteract another before discarding Elizabeth to Cambian Wales where the current local team of ENFIELD COMMUNITY REHAB sought to displace me as the NEAREST RELATIVE.

I won the Court of Protection Case in 2014 to keep my daughter Elizabeth at home in accordance with her wishes  and Enfield were slated in court.  It soon became evident that Elizabeth was suffering from  Chronic Pain and Chronic Brain Impairment.

Taking her off the Clozapine myself revealed the whole truth and everything that happened to her going way back to school days was revealed that had been suppressed for so many years by these useless drugs that caused tachycardia at the Bethlem.  This makes nonsense of all fictitious labels given when this is only for social control that’s all and making huge sums of money out of misery.

My daughter Elizabeth has been suffering as a result of two enforced brutally inflicted injections of Lorazepam on Suffolk Ward.   Elizabeth told me she had made complaints about this and so have I.

After the visit on Horizon Ward Nrth Midd Hosp by so many Police there to arrest me if I did oblige and depart peacefully off this ward I had challenged as to whether it was in fact  LEGAL what they are doing.  However KATIE YAWE and ERIC ANSAH refused to divulge the name of which Consultant demanded Elizabeth must be detained Under S3 thereby revoking S17 leave when no paperwork was signed – no solicitors contacted for Elizabeth –  IS THIS LEGAL?  WHAT IS THIS TREATMENT IN THE NAME OF CARE.   SHAME ON THE UK.

I have no idea where Elizabeth is right now.   I have no idea if she has been offered anything else to eat -just 1 sandwich is all you get and treated like a prisoner under NORTH MID HOSPITAL A&E HORIZON SUITE. I have no idea whether she has been allocated a ward but no one will tell you as you are treated like dirt as a mother/relative also.

Staff Nurse Katie Yawe read some of what Elizabeth was alleged to have said that has been recorded in yet more inaccurate file notes,  which did not tie in with what myself and friends have heard today so I would conclude fictitious and I would appreciate a response to my FOI request to the most shocking comments in the care plan written by JANE HOBDEN.  Who on earth is JANE HOBDEN – if anyone knows of her at St Anne’s where the others are based please do inform what she means about abuse to a child when this a PACK OF ABSOLUTE RUBBISH AND LIES but I suppose they have to do this in order to keep someone as a CUSTOMER and continue with their abuse of ignoring the physical health problems and mask over them by the prescribing of mind altering psychiatric drugs which do not work and which have caused more harm than good and Elizabeth cannot metabolise them and has suffered injury as a result of rotten treatment which is negligent on their part when in fact the NHS on two wards (‘Trent and Suffolk) allowed Elizabeth to come off the 2.5mg aripiprazole in one go.

ELIZABETH HAS SUFFERED INJURY AS A RESULT OF YOUR CARE ENFIELD BARNET AND HARINGEY MENTAL HEALTH TRUST  

    

 

 

 

 

Right now Elizabeth is in A&E  accompanying her friend who is unwell.  Not many people see the caring side of Elizabeth because of communication difficulty.   This is due to CBI, the result of extensive drugging over many years and chronic pain which is dismissed by Doctors under the mental health system who do not wish to admit the truth.

Tomorrow afternoon Elizabeth advised that she has been requested to attend a meeting at Chase Farm Hospital by Dr Helen Moorey.  Such meetings always seem to be sprung at short notice and this is too short notice to abide by the Trust’s Code of Conduct so I have had to write to remind the Trust that not long ago both Council and Trust had to apologise to me because they were in breach of their own Code of Conduct.

I thought it best to advise the solicitors also.

t would be much easier in terms of communication if all correspondence could be  by email -this is where communication is lacking and I had to write to Dr Moorey this evening copying in the team.   I know that this meeting is for the purpose of putting Elizabeth back on a CTO (Community Treatment Order) which we disagree with.

Why I am opposed to CTOs:

  • They are expensive to operate and funding goes to the community team who fail to provide any care for instance “NO TO SECTION 117”
  • CTOs are not only expensive but a complete waste of public money.  They are used to threaten and bully a vulnerable person.
  • Pack of lies are written against S126 MHA perversion of the course of justice so as to retain on CTO indefinitely.   For example wrong Nearest Relative was put on the CTO papers but luckily I spotted this and I then had to amend the entire report before presenting this to the MHA Office at Chase Farm Hospital where I was threatened with arrest if I did not go downstairs.     I had taken the time and trouble to correct the many errors in the report and suspected all along I was the NR who was not allowed in the Tribunal so I took a photo of the sign on the door and I could not believe the reaction – next thing I am escorted downstairs like a criminal and it is referred in the report about “my behaviour”  –  I like the way that it is never anyone else’s bad behaviour other than someone who has dared to correct and alter a report that contained an AMHP as NR falsely.
  • I am against CTOs – Tribunal is expensive and can go on for hours and even days like at Cambian.    Present are professionals who would be better off attending to their duties than wasting a day in some cases at a Tribunal when either patient/their solicitor or Nearest Relative challenges the CTO.  Present is a Judge, a lay person and the psychiatrist, an independent psychiatrist, community psychiatrist and care coordinator and representative from hospital. Sometimes two sets of solicitors are present representing both patient and nearest relative.  They must cost thousands and solicitors reap the benefit.   I believe that CTOs should be banned.
  • CTOs are used to bully and threaten vulnerable people – the CTO reports are full of threats of recall and they try to make the person out to be really bad yet a CTO does not provide better care in the community – far from it. A CTO provide nothing.  It is all about abusive control ie “if you do not see the Dr you will be recalled.  If you do not take your medication you will be recalled.  You have to live at your designated premises and do as you are dictated.   This describes what a CTO is about – control!

Elizabeth recently went missing from her scheme about 4 days before I was told whilst on CTO.  Elizabeth was recalled to hospital and right now she is on S17 leave.

SECTION 17 Leave

It is a like treating someone as a criminal.

Elizabeth was discharged back to her temporary scheme but there is one good piece of news.  It looks as though Elizabeth has done well with her bidding for the one bedroom flat.   I have no idea on what is the next procedure if a bid is won.

So tonight I as NR/Next of Kin have written to Dr Helen Moorey.  I asked for the discharge meeting to be postponed.  Solicitors should be invited and so should I as the Nearest Relative, Next of Kin and McKenzie Friend.   It is surely in breach of the Trusts Code of Conduct if this meeting went ahead without any kind of advocate present and luckily I found out all about this.

So I understand the team want to put Elizabeth on a CTO  but I do not agree, neither does Elizabeth, as absolutely no care has been provided in the community, so why waste public money on extra funding when nothing is provided of benefit.  The only thing they do is push mind altering drugs instead of offer therapy.

Because Elizabeth is suffering from chronic pain and in particular, pain to her big toe which I am aware is nerve damage and many other side effects, some of which could be relating to the forced injections given whilst on Chase Farm’s Suffolk Ward not to mention the symptoms of chronic pain such as joint pains which are being completely ignored.  I would conclude that Elizabeth’s condition is physical unfortunately physical health conditions are ignored under the mental health and that is why I would like Elizabeth transferred to a team where they do not over look things “lets rule out anything organic”.   Well how can you achieve an accurate diagnosis unless you thoroughly look into underlying causes which could be of a physical nature.

Elizabeth’s physical health has been neglected since being in temporary accommodation some distance from home and her GP but it looks like Elizabeth may be moving hopefully.

I will be so happy if Elizabeth gets this flat back in the local area of which she is familiar and closer by.

In case my email and letter does not reach everyone (especially Dr Moorey) as I do not have Dr Moorey’s email address – THE MEETING TOMORROW AFTERNOON IS CANCELLED.  The meeting will need to be re-arranged to a time when solicitors and the Nearest Relative and McKenzie friends can attend in accordance with the Trust’s Code of Conduct.

And please –  no more coercion in tricking Elizabeth into signing renewal papers for the CTO.   Such papers will need to be sent to the solicitors and McKenzie Friends for their records.

So, when can this meeting be re-arranged and can everyone be copied in via email? and can it be live streamed also.

The best outcome is to discharge Elizabeth from CTO and from Chase Farm Hospital as Elizabeth will hopefully be moving soon and the ward does not offer the right care either –  Elizabeth should not be with a mental health team as she has CBI and not paranoid schizophrenia.

 

 

 

 

I took a day’s holiday to attend Park Avenue Resource Centre, Enfield, on Thursday with Elizabeth and new friend.  Things have been dragging on for so long now as regards a move and Elizabeth is still stuck in temporary accommodation she has been in since December.  There seems to be no support in this area for people who are autistic I’m sad to say.

I highlighted that I took Elizabeth away from a scheme called Reservoir House where there was 5 fumigations and still a problem of bed bugs and Elizabeth was accused of bringing these bed bugs into the scheme by someone on the panel at the Manager’s Hearing.   I’m glad to say Elizabeth spoke up for herself and said no way did she bring these in but someone else – a former resident had admitted that she did.

Anyway I tried once again to have Elizabeth home.   We had no support once again and we are a working family.  At first things were OK but then Elizabeth, who was on a CTO started to show signs of distress and needed counselling.    She was turning to churches, she was phoning helplines.  She was disturbing my sleep wanting to talk in the early hours of the morning as she desperately needed counselling and Elizabeth would get angry if you misunderstood her.   I remember back when she was at Reservoir House coming up to Xmas Elizabeth was stressed out and this was displayed in her behaviour.   Same at home, Xmas 2018, as at Xmas Elizabeth was going to stay with other family members. Anything new/changes can affect her.  Just before Xmas, something happened at home that resulted in Elizabeth being given a temporary scheme in the community which is some distance away from the family home.  Elizabeth struggled to settle in at first and then seemed to get used to it there and find her way around.  She was meant to go and engage with her psychiatrist and team as she was on a CTO but Elizabeth did not wish to stick to appointments and visit the Park Avenue Centre but on one occasion she did attend and was short listed for a one bed flat in a block housing chronically ill and when I looked it up there was a picture of elderly people walking around with zimmer frames.  It was also a place where there was community alarm.   She did not get the property in the end and I did not think this was suitable in any case.  Whilst at the Park Avenue Resource Centre Elizabeth made a new friend who is also vulnerable and in need of support and care in the community but Elizabeth helped her on a few occasions but at the same time Elizabeth’s way of communicating and understanding situations is different to everyone else’s and this needs some guidance.   Basically,  Elizabeth is currently in an attic at the top of the house, there is no proper kitchen, lounge/TV room the current environment is not good for Elizabeth to remain so I took time off work to learn the bidding process and to see what was on offer but sadly nothing suitable on this occasion as a high rise block is not suitable for Elizabeth.

Once again Elizabeth has been discharged from Chase Farm Hospital without anything up and running in the community to support her and it would seem that the team she is currently under is not the right team as they are not offering the specialist help that she needs.   If Elizabeth is to remain in the community which I hope she will, Elizabeth will need to access therapy and I had written in desperation copying lots of people as I do not think that Enfield is providing the specialist support in the community for Elizabeth.  I wrote to Jinger Kandola (CEO) and Cllr Nesil Kaliskan along with other councillors and I copied in Enfield Community Rehab Team and Bindi Nagra Director of Soc. Services even Simon Wesselley and the Health and Social Care Commission.   That’s how desperate I am to try and get the right support for Elizabeth which includes a speech and language therapist.  There is no way that Elizabeth should remain within mental health services.   She needs something more specialised and there is no way she should be put back on Section or CTO which was being used to threaten and bully her into engaging with the team.   In Australia there were no such threats and Elizabeth could just do things at her own pace.

There needs to be proper communication and liaison between social services teams of both friends.  I am in despair as Police took Elizabeth home after a situation this evening where there was misunderstanding/anxiety which both suffer, which is why it is important a speech and language therapist and possibly psychotherapist  Elizabeth has a report stating she has complex PTSD  PTSD is injury and can be reactionary so this is why it is crucial for Elizabeth to have the right kind of care, after all she suffered terrible abuse under a local scheme

Enfield is an area that have money to burn when it comes to court /legal action I am wondering what can be done to help Elizabeth.   She gets angry if no one understands her and needs talking therapy.

I feel that no one is listening.  There is no acknowledgement to my emails and I now feel I wish to publicise this in order to try and obtain what is needed and I can only hope that this can be put in place.

It is negligent to discharge Elizabeth into the community with nothing in place and also negligent to ignore the fact that if Elizabeth is to remain in the community which is better than any hospital then she needs therapy – therapy should take priority before any drugs.  She was after all abused so badly under care provided by Enfield Council that they should thorough ensure everything that is on offer should be provided so as to tackle underlying trauma that is reactionary to certain situations and needs addressing urgently.

EMAIL TO MARC ALLERA CEO EE

FAO: OF JOSIE EDMEAD, LEE McCABE, LEONARD WADE, KELLY DOHERTY, BETHANY 

My most recent email to Marc Allera CEO of EE copying in the employees including Arib Ahmed of Oxford Circus highlighted the fact I had not as yet received the deadlock letter I was promised on 3rd May.   My email also highlights that there is no way I would have requested a tablet and that I did not receive either the tablet or iPhone X the above state was delivered to my home address on 26 February 2018.   In my email I stated that I had requested to see the delivery note several times with signature but no record of this had been kept with EE and they reckon the courier firm also would not have kept a record.

The alleged delivery date of 26 February 2018 would have been mid-week and I would not have been at home to sign for this.  I knew nothing about tablet or IPhone X and always go to a branch to do business.   All this time up until 3rd April 2019 (when I visited Oxford Circus branch attracted by the offer of an iPhone 8 for renewing the contract early for my daughter) I have been using an old iPhone 5S.   I was misled at Oxford Circus Branch as I made a point of asking if there was a tablet on my contract that pushed up the price astronomically.  I was told no by them but it was Enfield Branch that told me otherwise and I was therefore thinking that the huge bill was as a result of Elizabeth who had very little data on her phone contract.

I reiterated the fact that the last phone I had that was new was a Samsung Galaxy A3 which I gave to my daughter.

I have asked for all paperwork especially with regard to this contract as even if I had taken out a contract verbally there should be paperwork on this with my signature on. I most certainly have not spoken to customer services based in Dundee like alleged.

On the advice of my bank I tried to cancel my most recent contract and return the iPhone 8 but this was refused.  The direct debit is now cancelled on their advice whilst their Fraud Dept investigate.   I have given EE consent to deal with my Bank and to deal with Police.

If I end my contract officially Ive been told I will have to pay £529.34 for my contract and £880.90 for my daughter’s.

I have since purchased two Vodafone chips for myself daughter and Elizabeth is no longer using the EE chip.   I have had to set up a new phone and transfer all my contacts over without using the PAC code to my Vodafone chip.  The contract duration for this is just 12 months.   I get 100GB of data   Certainly a better deal than with EE.

DEADLOCK LETTER ARRIVED 18th MAY 2019 dated 3rd May 2019.

This letter is from Josie Edmead – Exec Cust Resolution Team.  The address on the letterhead is Sunderland Type and Wear.

She lists lots of dates when I first contacted customer care stating there was a tablet on my account I had no knowledge of and that perhaps this was fraud as I did not request a tablet.  EE sent the information to their Fraud team and on 25 April their investigation came to an end, the Fraud Team deemed this as non-fraudulent by stating the Ipad was accepted on the same date as delivery of an iPhone X which I also knew nothing about for my mobile phone network and that they were delivered to my home address.   These would have been delivered whilst I was out work on the date that EE state so no I did not receive the iPad or iPhone X and no one in the household signed for it either.  I knew nothing about its delivery and most certainly would not have requested an iPad as I once had an EE tablet which I did not even use.  So I maintain that as I have not received these devices or requested them there could be a possibility of fraudulent activity.   EE’s response was to deny this and accuse me of receiving these devices and ordering them.  I don’t know what on earth Josie Edmead means when she says “You were advised via email on 27 April 2019 this was not fraudulent activity on the account as it was delivered to your home address on the same day as an iPhone X which had not been disputed”  What on earth is Josie Edmead talking about “which had not been disputed” .  Only an iPad was mentioned in the first place and suddenly I am told about the iPhone X that I would have received both at the same time.   So in order words I am being accused of theft of two expensive devices I have not received which would account for my bill being around £130 which I thought was extremely high for two phone contracts.  I should have queried it sooner rather than trusting EE and thinking that my daughter was running up an enormous bill on her phone which had very little data on it.   Then EE tried to bribe me with the following:

“You were offered an immediate disconnection for the table and 2 months line rental back amounting to £90 inc VAT.”     

I have refused the above offer as I have been overcharged for a service for quite some months I have not received which would amount to far more than their paltry bribery offer.

Josie Edmead then goes on to say I contacted the customer care team on 27th April 2019 to dispute the response I received and expressing my concern and disappointment /data usage and tablet on my account.   She goes on to say that the customer care advisor stated they could not contact Police on my behalf regarding this and I have therefore logged the matter with police.  Josie Edmead then goes on to say that an Executive Advisor responded to my email received on 24 April reiterating the findings from the fraud team that on 26 Feb 2018 I upgraded my service and on 1st May 2019 another executive advisor agreed with the findings.  In other words the Executive Advisors all accuse me of upgrading my service and receiving an iPhone X and iPad when I was at work.   In other words thief and liar springs to mind but whilst they are accusing me of this they are not saying this in so many words.   They are all desperately sticking together because they cannot provide any paperwork to prove I or anyone else at my address signed for these devices.  However by giving an offer of a paltry £90 and free disconnection for a full and final settlement looks very suspicious.  Why offer anything whatsoever for a settlement when there is a dispute of someone being accused of stealing because that is what is amounts to when you are called a liar.  I have not accepted their offer of £90 as my bills have been very high all along and I believe I should be compensated as I can honestly say that I’ve been using an old iPhone 5S up until recently and I most certainly would not have gone back to EE to take out another contract if they had honestly told me that there was a tablet.  No way did I request such a tablet and when I have requested paperwork to back this upgrade they seem unable to provide it.

So the letter states “This is our final position on the matter.  If you feel the matter is not resolved we will have reached a position of deadlock.  This means you may now refer your complaint to Ombudsman Services free of charge.   Ombudsman Service is there to help resolve disputes between EE and our customers.  The service is completely independent.”   They are based in Warrington and I have already written to them prior to the deadlock letter being received as I was promised this by EE quite some time ago and have only just received it.    “It is important to note there are some exceptions to the scheme which means that some complaints may not be eligible for independent arbitration and in order for your complaint to be considered you must make contact with Ombudsman Services within 12 months of the date of this letter”       which is what I’ve done.

Your sincerely

Josie Edmead  (Executive Customer Resolution Team)

Registered Office based in Hatfield and the address is in Tyne and Wear

So I’ll be sending this letter on to the Ombudsman Services and will keep you informed but I want everyone to know that I have been a customer of EE since 2013.  Today I have asked for absolutely everything they have under GDPR rules.  I want voice mail messages, emails and text messages and signed contracts and delivery notes but on every occasion I have called at the branches to collect the devices.

We once tried to change all the services ie Broadband, TV, home phone to EE but they could not the service up and running and this was all cancelled.

I would say I am extremely disappointed at the way EE has dealt with me after all these years.   I had no intention of going elsewhere and wanted to remain loyal but now I could not recommend this company to anyone when they treat you like dirt, gang up backing one another accusing you of receiving something you did not and arguing about this.  I will never forget receiving a call on my way to work on a crowded train with EE arguing with me that I had received the devices whereas I can swear on the Bible and on my life that neither the iPad or iPhone X was received.

 

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