I took a day’s holiday to attend Park Avenue Resource Centre, Enfield, on Thursday with Elizabeth and new friend.  Things have been dragging on for so long now as regards a move and Elizabeth is still stuck in temporary accommodation she has been in since December.  There seems to be no support in this area for people who are autistic I’m sad to say.

I highlighted that I took Elizabeth away from a scheme called Reservoir House where there was 5 fumigations and still a problem of bed bugs and Elizabeth was accused of bringing these bed bugs into the scheme by someone on the panel at the Manager’s Hearing.   I’m glad to say Elizabeth spoke up for herself and said no way did she bring these in but someone else – a former resident had admitted that she did.

Anyway I tried once again to have Elizabeth home.   We had no support once again and we are a working family.  At first things were OK but then Elizabeth, who was on a CTO started to show signs of distress and needed counselling.    She was turning to churches, she was phoning helplines.  She was disturbing my sleep wanting to talk in the early hours of the morning as she desperately needed counselling and Elizabeth would get angry if you misunderstood her.   I remember back when she was at Reservoir House coming up to Xmas Elizabeth was stressed out and this was displayed in her behaviour.   Same at home, Xmas 2018, as at Xmas Elizabeth was going to stay with other family members. Anything new/changes can affect her.  Just before Xmas, something happened at home that resulted in Elizabeth being given a temporary scheme in the community which is some distance away from the family home.  Elizabeth struggled to settle in at first and then seemed to get used to it there and find her way around.  She was meant to go and engage with her psychiatrist and team as she was on a CTO but Elizabeth did not wish to stick to appointments and visit the Park Avenue Centre but on one occasion she did attend and was short listed for a one bed flat in a block housing chronically ill and when I looked it up there was a picture of elderly people walking around with zimmer frames.  It was also a place where there was community alarm.   She did not get the property in the end and I did not think this was suitable in any case.  Whilst at the Park Avenue Resource Centre Elizabeth made a new friend who is also vulnerable and in need of support and care in the community but Elizabeth helped her on a few occasions but at the same time Elizabeth’s way of communicating and understanding situations is different to everyone else’s and this needs some guidance.   Basically,  Elizabeth is currently in an attic at the top of the house, there is no proper kitchen, lounge/TV room the current environment is not good for Elizabeth to remain so I took time off work to learn the bidding process and to see what was on offer but sadly nothing suitable on this occasion as a high rise block is not suitable for Elizabeth.

Once again Elizabeth has been discharged from Chase Farm Hospital without anything up and running in the community to support her and it would seem that the team she is currently under is not the right team as they are not offering the specialist help that she needs.   If Elizabeth is to remain in the community which I hope she will, Elizabeth will need to access therapy and I had written in desperation copying lots of people as I do not think that Enfield is providing the specialist support in the community for Elizabeth.  I wrote to Jinger Kandola (CEO) and Cllr Nesil Kaliskan along with other councillors and I copied in Enfield Community Rehab Team and Bindi Nagra Director of Soc. Services even Simon Wesselley and the Health and Social Care Commission.   That’s how desperate I am to try and get the right support for Elizabeth which includes a speech and language therapist.  There is no way that Elizabeth should remain within mental health services.   She needs something more specialised and there is no way she should be put back on Section or CTO which was being used to threaten and bully her into engaging with the team.   In Australia there were no such threats and Elizabeth could just do things at her own pace.

There needs to be proper communication and liaison between social services teams of both friends.  I am in despair as Police took Elizabeth home after a situation this evening where there was misunderstanding/anxiety which both suffer, which is why it is important a speech and language therapist and possibly psychotherapist  Elizabeth has a report stating she has complex PTSD  PTSD is injury and can be reactionary so this is why it is crucial for Elizabeth to have the right kind of care, after all she suffered terrible abuse under a local scheme

Enfield is an area that have money to burn when it comes to court /legal action I am wondering what can be done to help Elizabeth.   She gets angry if no one understands her and needs talking therapy.

I feel that no one is listening.  There is no acknowledgement to my emails and I now feel I wish to publicise this in order to try and obtain what is needed and I can only hope that this can be put in place.

It is negligent to discharge Elizabeth into the community with nothing in place and also negligent to ignore the fact that if Elizabeth is to remain in the community which is better than any hospital then she needs therapy – therapy should take priority before any drugs.  She was after all abused so badly under care provided by Enfield Council that they should thorough ensure everything that is on offer should be provided so as to tackle underlying trauma that is reactionary to certain situations and needs addressing urgently.




My most recent email to Marc Allera CEO of EE copying in the employees including Arib Ahmed of Oxford Circus highlighted the fact I had not as yet received the deadlock letter I was promised on 3rd May.   My email also highlights that there is no way I would have requested a tablet and that I did not receive either the tablet or iPhone X the above state was delivered to my home address on 26 February 2018.   In my email I stated that I had requested to see the delivery note several times with signature but no record of this had been kept with EE and they reckon the courier firm also would not have kept a record.

The alleged delivery date of 26 February 2018 would have been mid-week and I would not have been at home to sign for this.  I knew nothing about tablet or IPhone X and always go to a branch to do business.   All this time up until 3rd April 2019 (when I visited Oxford Circus branch attracted by the offer of an iPhone 8 for renewing the contract early for my daughter) I have been using an old iPhone 5S.   I was misled at Oxford Circus Branch as I made a point of asking if there was a tablet on my contract that pushed up the price astronomically.  I was told no by them but it was Enfield Branch that told me otherwise and I was therefore thinking that the huge bill was as a result of Elizabeth who had very little data on her phone contract.

I reiterated the fact that the last phone I had that was new was a Samsung Galaxy A3 which I gave to my daughter.

I have asked for all paperwork especially with regard to this contract as even if I had taken out a contract verbally there should be paperwork on this with my signature on. I most certainly have not spoken to customer services based in Dundee like alleged.

On the advice of my bank I tried to cancel my most recent contract and return the iPhone 8 but this was refused.  The direct debit is now cancelled on their advice whilst their Fraud Dept investigate.   I have given EE consent to deal with my Bank and to deal with Police.

If I end my contract officially Ive been told I will have to pay £529.34 for my contract and £880.90 for my daughter’s.

I have since purchased two Vodafone chips for myself daughter and Elizabeth is no longer using the EE chip.   I have had to set up a new phone and transfer all my contacts over without using the PAC code to my Vodafone chip.  The contract duration for this is just 12 months.   I get 100GB of data   Certainly a better deal than with EE.

DEADLOCK LETTER ARRIVED 18th MAY 2019 dated 3rd May 2019.

This letter is from Josie Edmead – Exec Cust Resolution Team.  The address on the letterhead is Sunderland Type and Wear.

She lists lots of dates when I first contacted customer care stating there was a tablet on my account I had no knowledge of and that perhaps this was fraud as I did not request a tablet.  EE sent the information to their Fraud team and on 25 April their investigation came to an end, the Fraud Team deemed this as non-fraudulent by stating the Ipad was accepted on the same date as delivery of an iPhone X which I also knew nothing about for my mobile phone network and that they were delivered to my home address.   These would have been delivered whilst I was out work on the date that EE state so no I did not receive the iPad or iPhone X and no one in the household signed for it either.  I knew nothing about its delivery and most certainly would not have requested an iPad as I once had an EE tablet which I did not even use.  So I maintain that as I have not received these devices or requested them there could be a possibility of fraudulent activity.   EE’s response was to deny this and accuse me of receiving these devices and ordering them.  I don’t know what on earth Josie Edmead means when she says “You were advised via email on 27 April 2019 this was not fraudulent activity on the account as it was delivered to your home address on the same day as an iPhone X which had not been disputed”  What on earth is Josie Edmead talking about “which had not been disputed” .  Only an iPad was mentioned in the first place and suddenly I am told about the iPhone X that I would have received both at the same time.   So in order words I am being accused of theft of two expensive devices I have not received which would account for my bill being around £130 which I thought was extremely high for two phone contracts.  I should have queried it sooner rather than trusting EE and thinking that my daughter was running up an enormous bill on her phone which had very little data on it.   Then EE tried to bribe me with the following:

“You were offered an immediate disconnection for the table and 2 months line rental back amounting to £90 inc VAT.”     

I have refused the above offer as I have been overcharged for a service for quite some months I have not received which would amount to far more than their paltry bribery offer.

Josie Edmead then goes on to say I contacted the customer care team on 27th April 2019 to dispute the response I received and expressing my concern and disappointment /data usage and tablet on my account.   She goes on to say that the customer care advisor stated they could not contact Police on my behalf regarding this and I have therefore logged the matter with police.  Josie Edmead then goes on to say that an Executive Advisor responded to my email received on 24 April reiterating the findings from the fraud team that on 26 Feb 2018 I upgraded my service and on 1st May 2019 another executive advisor agreed with the findings.  In other words the Executive Advisors all accuse me of upgrading my service and receiving an iPhone X and iPad when I was at work.   In other words thief and liar springs to mind but whilst they are accusing me of this they are not saying this in so many words.   They are all desperately sticking together because they cannot provide any paperwork to prove I or anyone else at my address signed for these devices.  However by giving an offer of a paltry £90 and free disconnection for a full and final settlement looks very suspicious.  Why offer anything whatsoever for a settlement when there is a dispute of someone being accused of stealing because that is what is amounts to when you are called a liar.  I have not accepted their offer of £90 as my bills have been very high all along and I believe I should be compensated as I can honestly say that I’ve been using an old iPhone 5S up until recently and I most certainly would not have gone back to EE to take out another contract if they had honestly told me that there was a tablet.  No way did I request such a tablet and when I have requested paperwork to back this upgrade they seem unable to provide it.

So the letter states “This is our final position on the matter.  If you feel the matter is not resolved we will have reached a position of deadlock.  This means you may now refer your complaint to Ombudsman Services free of charge.   Ombudsman Service is there to help resolve disputes between EE and our customers.  The service is completely independent.”   They are based in Warrington and I have already written to them prior to the deadlock letter being received as I was promised this by EE quite some time ago and have only just received it.    “It is important to note there are some exceptions to the scheme which means that some complaints may not be eligible for independent arbitration and in order for your complaint to be considered you must make contact with Ombudsman Services within 12 months of the date of this letter”       which is what I’ve done.

Your sincerely

Josie Edmead  (Executive Customer Resolution Team)

Registered Office based in Hatfield and the address is in Tyne and Wear

So I’ll be sending this letter on to the Ombudsman Services and will keep you informed but I want everyone to know that I have been a customer of EE since 2013.  Today I have asked for absolutely everything they have under GDPR rules.  I want voice mail messages, emails and text messages and signed contracts and delivery notes but on every occasion I have called at the branches to collect the devices.

We once tried to change all the services ie Broadband, TV, home phone to EE but they could not the service up and running and this was all cancelled.

I would say I am extremely disappointed at the way EE has dealt with me after all these years.   I had no intention of going elsewhere and wanted to remain loyal but now I could not recommend this company to anyone when they treat you like dirt, gang up backing one another accusing you of receiving something you did not and arguing about this.  I will never forget receiving a call on my way to work on a crowded train with EE arguing with me that I had received the devices whereas I can swear on the Bible and on my life that neither the iPad or iPhone X was received.


My daughter Elizabeth is now on her second week at Suffolk Ward, Chase Farm Hospital, Enfield.  She had been doing OK in the community, despite the most dreadful conditions at one scheme after another she was left to cope with without any psychological help.

Elizabeth has psychological problems going way back as she was in the first instance abused (not family related).  The answer is clearly not drugs as they  do not work for someone that has PTSD.  The problems began when Elizabeth was prescribed Prozac by her GP and that was the first time we ever saw aggression.    Elizabeth would throw things in frustration and when she was withdrawing from the Prozac 30mg a day she took herself off in one go and we had glasses, plants, crockery being thrown around at home so I took Elizabeth to Barnet Hospital as  she was withdrawing from this awful drug and what I hoped was that counselling, and something to help calm her down could be given as she was  beyond the stage of reason and I was hoping to bring her home but she had flared up in public and police took her away and she ended up on the ward at Edgware.  Whilst I worked part time then,  Elizabeth was not in a fit state to work and was alone at home all day and seemed unhappy.  She had been on a waiting list for activities at Day Hospital, Chase Farm Hospital Enfield.

This was the start of worse to come – even way back then what was on offer under Enfield was virtually nothing.    When eventually Elizabeth got a place at the Day Hospital I noticed that activities were cut when staff off sick and mostly saw outpatients sitting around socialising amongst themselves with nothing to do.

One day another person came to socialise amongst the day patients.  Elizabeth it would appear had a new “boyfriend”.  This boyfriend was much older than Elizabeth who by this time was given a label of Schizophrenia and was on the second Antipsychotic Aripiprazole which again had no effect – in fact I noticed this awful drug seemed to make her worse.   She had difficulty swallowing.  Every meal she was ill and I thought this drug was making her suffer from an eating disorder.   I was told this drug Aripiprazole was better than others because the last one, Risperidone left Elizabeth with an allergic rash so the next was produced.  I was most concerned with the way this Aripiprazole was affecting Elizabeth and I thought she had Bulimia like never before.

Anyway, Elizabeth was seen by a member of the PALs team leaving the Day Centre Chase Farm Hospital with this new boyfriend but no one stopped her.  Elizabeth was voluntary and she was at the time living at home.  That led to Elizabeth going missing and being voluntary who cares.     The response was that because she was voluntary and an adult she had a right to come and go as she liked.   Sometimes I would sit amongst the patients in the foyer –  I would listen and join in with their conversations.  I complained that groups were cut and that there was nothing much for them to do.  I was sorry to hear that so little was on offer in my local area.    Anyway when Elizabeth went missing I received call after call throughout the night demanding money of about £100 for her safe return.  So against Police advice I decided to go along with this ransom money.  Elizabeth was not in good company – she was with a patient from one of the wards who was described as “one of the worst”.  He had promised Elizabeth a day out at the coast.  I offered to meet him to give him the money for the safe return of my daughter as no one seemed to be doing anything to find her and I was up all night taking calls from this patient.  Then suddenly the calls ceased and that was the most worrying time of all because I waiting to hear where I could meet him.  The next day I went into work –  I just didn’t know where to start looking for Elizabeth and neither did the Police.  We thought she was by the coast somewhere.   She was found wandering the grounds of Chase Farm Hospital the next day with ripped trousers in a daze and I got a call whilst at work right at the end of the day so I went straight to the hospital.  I was told by a member of staff that when found she looked OK “no harm done” –  I thought that was a strange comment and based on assumption.  How can anyone comment in this way – how would they possibly know?    Elizabeth did not speak. She was sleeping and I stayed with her all night whilst we waited for the forensic doctor to arrive. The other patient described as a predative male was on a criminal charge – described as one of the worst, but now had been returned to the ward.   To this day Elizabeth has not spoken about what happened but I felt the hospital was negligent as she was seen leaving with a patient who apparently should have been escorted everywhere.  Elizabeth was promised a nice day out at the coast but instead ended up in  a dingy hotel and I don’t want to think about the rest – she was dreadfully abused and none of this would have happened if there was proper supervision and activities provided.  Because of this I did not like her going to the Day Hospital any more but the problem was there was nothing to do in the community either – no support and when you work, you are not there during the day to supervise or help.   Elizabeth was around 19 but needed support to go out and do things.  There was nothing in my local area of Enfield.   I would try and encourage her to go out,  to look for a voluntary job etc, to join other groups in the community not mental health related because I felt her to be vulnerable to predatory men as Elizabeth was slim and attractive looking and it was a constant worry.  I was called over-protective but all the time I was concerned due to what happened at the day hospital and that something similar could occur.   My concerns were later recognised as far from unfounded.

So when I listened to other patients’ stories about being on the wards I was horrified and thought I am glad Elizabeth is not on the wards but I noticed the prescription level of these drugs being increased and I had also seen the effects of withdrawal twice at home which I could not cope with – this was not a psychotic incident due to illness – this was full drug withdrawal and the effects of drug withdrawal from extremely powerful medication and try doing that at home.  Things were broken and there was risk of injury – her withdrawal from Aripiprazole was even worse than that from Prozac.  She withdrew from 10mg of Aripiprazole.

With increased decline in behaviour due to steep drug withdrawal and violence aggression, resulting in things being thrown around at home/broken especially if this behaviour continues in the community this can lead to arrest and incarceration.  All I wanted for Elizabeth was counselling, not drugs and because she had such bad reaction to the drugs I was supportive in her not being on them but I was blamed as the instigator encouraging Elizabeth to stop taking the drugs. It was Elizabeth who wanted to come off the drugs yet this could have been done if there had been proper facilities and supervision but there is nowhere in the UK that provides this kind of facility.   The more I heard about the terrible pain and side effects she was suffering from this medication the more I felt this treatment was wrong.

So the first scheme in the community was Moti Villa.  This is based in the local area of Enfield in a very nice area – The Ridgeway.   I was glad for Elizabeth to be discharged from Somerset Villa Chase Farm Hospital where there had been yet another serious incident on the ward I got to hear about.

I thought the studio flat was nice, I thought the care support worker was nice too.  I was pleased the house, shared by others was in a nice area and I liked one of the residents too.    The team behind Elizabeth at the time was Enfield Community Rehab.  Everything started well but then things went from bad to worse.   The  nice support worker left  and things were not the same afterwards.  I didn’t want her to go to a MH scheme as it had been noted previously that Elizabeth had Aspergers when she took herself off Prozac and ended up at Edgware Hospital.  So staff slept through the night at Moti Villa and no one was supervising who came in and out of the building.   Elizabeth was also on huge levels of drugs which affected her ability to clean and look after the flat and most certainly would have affected her capacity to stop what happened there.  When I used to visit I would wash up, tidy up etc.    We used to have Elizabeth round at the weekend but her behaviour on nearly 800mg Quetiapine was volatile and she once nearly kicked a door off the hinge so we felt there was no other solution at the time as I had others to consider at home.   Little did I know that Elizabeth had been so badly abused at this scheme because she couldn’t speak about it being on such a huge level of drugs.     I tried to find myself a job where I could work at night and be with Elizabeth during the day.   I tried to get into security work did courses and past exams but then I thought about the Police.   At the time Elizabeth was at Moti Villa I was on the Police training course at Hendon and one evening I came to visit only to see that Elizabeth was being questioned by the Sapphire and Drugs Squad.   All her possessions had gone missing but I was told  Elizabeth had invited strangers she had met on a bus to her flat and lent the possessions out which she did not get back.    None of this is true and Elizabeth being so drugged up at the time could not talk about what happened effectively.  Now we know everything.   According to files Police could not find the CCTV –  I think that no one could be bothered as what kind of witness would Elizabeth have made in a court and whilst safeguarding took place I honestly think that the main concern was towards the 14 year old drug pusher who was on the premises as Elizabeth who was only 20, like a child herself was not recognised as anything other than an adult said to have had full capacity.    Its funny how they say someone has capacity when it suits them.   Here was a major incident that happened on premises in a very nice area of Enfield and I quite rightly was far from happy and was becoming more and more outspoken.  What led to me being banned from Moti Villa was the fact that Elizabeth told me about an email she had written and wanted a copy of it.  I went up to the office and insisted that Elizabeth was given a copy. The email requested a reduction and to come off medication which they did not want me to see.  I was described as being rude and aggressive by insisting she had a copy.  When I called to visit Elizabeth one evening at Moti Villa I had not received the letter stating I was banned from visiting and came into the building with a friend to visit Elizabeth who had contacted me and asked me to come.  Elizabeth was volatile and unstable because she was upset that she could not have visitors at “her home”.   Police were called by staff and I was told politely to leave the premises which I did but Elizabeth flared up and threw a glass bowl in the hallway.  After that I had to visit Elizabeth sitting in my car outside and she would come out  in her dressing gown to see me.  It was only in 2016 we all got to hear the dreadful story of what happened in depth at Moti Villa going back to 2010.   This was explain 100% the behaviour of my daughter Elizabeth and the frequent admissions to the ward.    Social worker AMHP DM who was later to be the nominated NR in yet another attempt to get rid of me was assigned to answer the PHSO’s investigation and one of the things she had put was that the frequent admissions were as a result of the mother interfering –  there was no mention of the bad things that had happened to my daughter at the scheme and no admission that things had gone dreadfully wrong at this scheme and I started to pressurise for Elizabeth to be moved into a little flat in a road virtually opposite where I lived, so she could live independently but be closer to the family home.  I used to take the residents to a running club, liked the staff, was impressed that these people were being integrated into society unlike MH and I wanted Elizabeth to be with this other team but that was ruled out when she was given an assessment  which pointed at mental health not learning/developmental/Aspergers.  Since then there have been about 4 or 5 disputes with diagnosis that dispute schizophrenia the most recent being Huntercombe who took Elizabeth to one side and said “you have high spectrum aspergers”.   It is insulting to read that the current mental health team say low intelligence and personality disorder and paranoid schizophrenia.   It is totally wrong and what has let Elizabeth down is the fact that this team have not provided the right kind of support in the community needed.   They have instead centred on spending vast sums of public money in taking me to court time and time again to get rid of me as the Nearest Relative – the most recent was to displace me with the Local Authority’s own Nearest Relative DM.  When I saw who this was going back to Moti Villa I decided to represent myself in court which I did.   Temporarily I was displaced because I was given the wrong court details and ended up missing the proceedings which took place in another court within Royal Courts of Justice.  I was given virtually no time to get up there either.    Previously, I was taken to Court of Protection to force return Elizabeth to a care home Phoenix House Stepping Stones rated good by the CQC in Northampton – transferred from Cambian Wales.     I was suspicious as I could not get through on the phone to talk to Elizabeth at this dreadful place then they refused to let me have the Clozapine when I offered to go and pick it up.   We then had to endure bullying by community social services –  ENFIELD COMMUNITY REHAB.  Elizabeth was not on a CTO and wanted to stay at home and even if she was on a CTO I would not have returned her as she had no food at the weekend at Phoenix House care home.  The fact was Elizabeth was upset at pressure being put on her to choose between Mum and Dad.  Elizabeth chose to stay at home but no one wanted to help me get the chemical Clozapine.  My story “Get Her Back We Are Paying for that” relates.   Court of Protection slated Enfield Council and I was allowed to keep Elizabeth and during those two years without any support other than through friends and family Elizabeth began to reveal more and more especially when I reduced the Clozapine due to the fact that Elizabeth was complaining of loss of control of her tongue (Neurolepotic Malignant Syndrome) and again had difficulty in swallowing.  I saw at first hand the effects of this awful drug and had to make special arrangements for someone to pick up the blood packs and sit with Elizabeth for hours in waiting rooms for the blood test.    Elizabeth was on next to nothing of this chemical down from 350mg and the zapping in her head had stopped because I had changed her diet with the help of someone who went out of his way and had extensive knowledge on nutrition.  I remembered what the private orthomolecular psychiatrist I appointed said at Moti Villa “this is the wrong environment to come off the drugs”  –  how very right he was but home was the correct environment but it was not easy and I managed to juggle the reductions with my job.  Everything was going was well until Elizabeth developed a bad cough and then I sought private help.   I had spotted a farm house in Kent that offered support in terms of rehab so although it was about £10000 per week I thought that this would get Elizabeth through the worse of the withdrawal for a few weeks with proper counselling and support that I could not offer myself at home but unfortunately, waiting around for ages to be assessed for this private facility led to Elizabeth flaring up and to my horror we were then in the back of an ambulance heading for an NHS hospital which is not what I had planned.  This also led to Elizabeth being admitted to a Cygnet Hospital – one of the worst I had ever seen –  The cygnet hospital would have been ideal with Elizabeth to withdraw from the drugs but in these institutions it is all about drugging to the hilt.  I managed to get her out of there but they had doubled the drug Aripiprazole and she was unstable when she came out.     There was no one to turn to in the community as like I say the top priority of ENFIELD COMMUNITY REHAB has been the displacement of me as the Nearest Relative at a cost of thousands of pounds of public money.


What has let Elizabeth down most of all has been lack of care and support in the community and a team who cut you out as a mother because they do not like you.

Before the recent admission to hospital Elizabeth was able to venture out and use a bank card, cook, clean and she was starting to go even further afield, even come up to see me after work one evening on her own.  She was back living at home and had been assessed for a council place because she is now 32 and it was not easy having  Elizabeth at home.   She was crying out for counselling and therapy but the hospital clinical psychologist Dr M said no to this and how very wrong she was.   Elizabeth resorted to trying to find her own counselling and visiting churches, phoning my friends and Samaritans etc.  Suddenly a wonderful opportunity had come up.  A friend of mine – a former qualified mental health nurse was keen to live in the local area to be near to her son and whilst Elizabeth had been assessed for a one bedroom flat I asked if it was possible for a two bedroom flat to be provided so that Elizabeth could live with this friend.  Every night I came home from work to see Elizabeth happy and there was laughter in the house.   There is only me in the family who is being supportive no matter what yet social services Enfield constantly sought to displace me with the next person deemed to be closest relative.   Unfortunately, this person has not been supportive and did not want to help when it came to the wonderful private care I provided in Australia or anything else come to that.  When someone behaves in a way that is negative and reacts in a way that is not right for society, I personally believe you should not turn your back as a family but this is how people can end up on the street because there is also nothing provided in the community as vast sums of money are spent in the wrong direction and I believe if only there was open dialogue in Enfield, inclusion and listening instead of dictating then this is the only solution to improve matters in this Borough.     Leading up to Xmas Elizabeth went downhill to the point that  temporary accommodation was provided.  On New Years Day I tried to bring the family together again with a view to having Elizabeth back home but she behaved in such a way that it was her wishing to go back to the scheme.   She refused to sit round the table to discuss things etc.  It was heartbreaking as I made a lot of effort to try and get things right but part of the reason was that nothing was progressing with the housing situation for Elizabeth with no help being provided by ENFIELD COMMUNITY REHAB at the time.  There was also a mix up with the pin number and then I tried to go for what I thought would be a great solution when someone I knew, a former MH nurse wanted to move in with Elizabeth.   This was immediately brushed aside by ENFIELD COMMUNITY REHAB.  So I started to complain and copy in loads of people including the leader of the council to try and get things moving with the housing.   To date, we still have a wardrobe, chest of drawers and most of Elizabeth’s possessions at home.  At the scheme in Wood Green are yet more possessions so just like in Reservoir House where there were bed bugs possessions all over the place.  Nothing moving, no help to get a permanent place of her own.  For someone with autism it is not very nice to have possessions all over the place and it is like my father with Alzheimers –  familiarity is important not changes and having things in good order but how can this be when Elizabeth was distressed at not being able to find her possessions etc that are all over the place.    Living at home, Elizabeth would get upset it anyone moved her possessions and she could not find things.  She was also in need of counselling and I tried to listen to her – sometimes she would come and ask to speak to me throughout the night too and would get up the next day for work feeling awful.    We have had no support in the local area of ENFIELD for many years and as a mother I have tried to look at all solutions and have spent a lot of money only to prove that with the right care – therapy someone can get well.

The only place Elizabeth has been short listed for was a one bedroom flat in a block housing dementia suffers and those with chronic illness.

There has been no other bidding or any help or support in my local area to get her housed quickly.    Now she is back on Chase Farm Suffolk Ward still under the same team as ENFIELD COMMUNITY REHAB.


Suffolk is an acute locked ward but in no way compares with some of the shocking private prisons such as Cygnet and Huntercombe which were dreadful places to be and a patient could only  have a tray of possessions.   At least Elizabeth can have her phone.  She was allowed out on her own at first but that has stopped because Elizabeth has not only tried to run away from her scheme in the community where she had a tiny room at the top of a house – no proper kitchen facility and no lounge facility.   Elizabeth had found a new friend.    She is 32 and who can blame Elizabeth for wanting to go out and enjoy herself and not be ordered under CTO to have to see a team who should have by now got her moved into accommodation.    The temporary scheme must be costing about £450 per week and is now empty apart from her possessions which I hope will not be thrown out.    Elizabeth had been missing for about 4 days from the scheme before I was notified. I knew she was not alone and with a friend and I was not too concerned apart from the fact she should have been bidding for properties.    Elizabeth had gone to the coast for a holiday with her new friend but just prior to this, I could see Elizabeth was throwing things out of frustration and was not happy –  with nothing to do – no activities or support she was going downhill.  When I asked where her personal budget was going I was told this was being spent on the temporary accommodation that give in-house support but what Elizabeth needed was support in the community and not only that, to be with others who could understand her and communicate with her.   She is under a mental health team who do not possess the skills of say Baroness Hollins in terms of communication.  In other words Elizabeth felt that no one understood her or were listening to her and wanted to get away and mentioned that she wanted a new team that understood Aspergers.  Elizabeth came back briefly and went away again with this friend but this time stayed with a relative and that did not work out.


Elizabeth has developed a deep hatred towards men.   It has been men who have abused her which has brought her under MH care in the first place, combined with prescribed drugs which have done nothing for her.   Sadly, all that was needed and not provided was counselling but of the right kind and this was not given on discharge or even recommended by Suffolk Ward’s clinical psychologist Dr M.


Elizabeth has recently resorted to throwing things around in frustration and this has led to her admission to Suffolk Ward especially since she is not at home now.

The care on offer on Suffolk Ward is mainly drugs and if drugs are refused, injections.  If anyone acts up on the ward they are injected or put into the seclusion room sometimes the seclusion room is used all day and all night for one patient.

Because Elizabeth tried to run away she is not allowed out on her own now.

I can take her out escorted and yesterday I took both  her and her new friend out for drive in my car.  It was the first time I had met the new friend.  I had the roof down on my car and took them out for lunch and coffee and cakes in a very nice place.    Today I am debating what to do as without me Elizabeth would be stuck like a prisoner on the ward all day long.  Again I will offer to take her out with her friend off the ward for a few hours.  It is Bank Holiday weekend so tomorrow I will do the same as there is nothing to do on the ward at the weekend.

I am disappointed that Elizabeth has so far been injected twice and is suffering twitching of eyes and arm plus stomach pains – probably tardive dyskinesia as a result of these injections.  I have yet to hear what she was injected with and hope  it was not highly dangerous Haloperidal.  Yesterday I was told the medication was only prn Lorazepam but this is a highly addictive drug and my concerns are now that unless ENFIELD COUNCIL step in to help Elizabeth will be stuck on the ward a very long time simply because of her housing situation and being stuck on the ward for a long time will lead to further decline and ENFIELD COUNCIL MUST NOW GET THEIR ACT TOGETHER AND DO SOMETHING TO HELP MY DAUGHTER WHO WAS TERRIBLY ABUSED UNDER THEIR CARE LEADING TO DECLINE IN HER CONDITION.  IT IS ENFIELD COUNCIL WHO HAVE SPENT A FORTUNE ON PUBLIC MONEY IN THE WRONG DIRECTION AND NOW I WANT SOMETHING DONE ABOUT IT BECAUSE I AM APALLED AT THE TREATMENT OF MY DAUGHTER UNDER ENFIELD COUNCIL AND UNDER ENFIELD BARNET AND HARINGEY MENTAL HEALTH TRUST.   

Yesterday, I called into the EE store in Oxford Circus where I had taken out my contract.   I had, prior to this, called into my bank and told them all about my dispute with EE.  They suggested that I call into an EE store and cancel my contract.  I thought I was within the time limit of a month in order to do this.   I found out my mobile phone bill had increased from c£130 to £186 pm.    The Bank felt that since this was under investigation due to EE insisting I request an iPad and now they are saying in addition, an iPhone X.  Since I do not like being called a liar I have decided to make the whole complaint public.  This also serves as a warning to others seeing as EE have tried to put several investigators onto the case all agreeing with one another and all hiding behind GDPR when I have agreed for my Bank and Police to Liaise with EE and vice versa when EE said they couldn’t.

I came into the Oxford Circus to cancel my contract and severing all ties with this mobile phone provider.   I took the iPhone 8 and said they could have it back but this was refused.  The Manager not only refused to take the phone back but to cancel my contract like I requested.

So I made enquiries of other providers and had outstanding service inside the O2  store when I made enquiries.

I also requested all bills and contracts be sent to me.

I received an email from Josie Edmead today.  Her title is Executive Customer Resolutions Team.   03.05.19

“Thank you for taking the time to respond to my email.   This is acknowledgement we have received your email dated 1 May.

As discussed on the phone with my colleague yesterday we were unable to come to an agreement to get your complaint to a close.  Therefore I have issued you with an ADR letter that you are able to take to the Ombudsman Service.  This will be delivered to you by post within the next couple of working days.  Please note, we are due a Bank Holiday this Monday and because of this there may be a delay in receiving the letter.  I am sorry that on this occasion we were unable to come to a resolution.         JOSIE EDMEAD  EXECUTIVE CUSTOMER RESOLUTIONS TEAM.”





Re: GDPR Rules I have given Police and my Bank HSBC permission to liaise with yourselves and likewise vice versa so no Company Policy has been broken seeing as I give consent on all sides to liaise with one another.

No worries about the letter.

When I came into your Oxford Circus Branch I thought I had been contacted because my contract was coming to an end and that you were offering a good deal and I saw this as an opportunity to discuss my extortionate bill.  I asked the branch or rather joked “why is my bill so high” – higher than that of any people I know  (FROM C £130 PM TO £186PM).  I was worried my daughter was running up this high bill – she has MH problems and was living in the community. I requested Oxford Circus Branch to look into this and make sure premium rate numbers were barred – something I did myself a while back.  I then joked “I’m not paying for a tablet I cancelled still am I?  I was assured Is not so I took out another contract which would get me an iPhone 8 and increased the data for Elizabeth’s phone (she has a Samsung Galaxy J2 she bought herself.   I thought Elizabeth had been running up my high bill.  All along I had been using my old iPhone 5S which Oxford Circus Branch would have seen.  I wanted a new phone as gave the last one in 2017 to my daughter, a Samsung Galaxy A3.

If I had received an iPhone X and iPad I would have queried this straight away.  I did not know the details.  I did not know the number but obtained these details through Enfield Branch.  They told me I was paying for a tablet going back to 2017 not 2018.  I did not want a tablet and cancelled it as never used it.

I was falsely led to believe I was getting a good deal and would save money on my bills but instead the bill was high which prompted my visit to Enfield Branch who told me I had a tablet on contract – no way did I order it or the iPhone X.  My daughter is currently using a Samsung  Galaxy J2.

My bill has gone from £130- – £186 therefore wish to cancel this contract as no way would I have renewed my contract if i’d known about the tablet and now all of a sudden the iPhone  I neither ordered or received.  No way would I have ordered this if I knew this could lead to an extortionate bill of £186 pm.

When I tell people about the amount you seek to charge, they burst out laughing and tell me about their mobile phone providers and advise me that I am being ripped off. 

Anyway, as much as I rely on my phone service, I feel I cannot possibly carry on as I was led to believe my bills would be cheaper not hugely more expensive.  Like I say, I therefore cancel my contract forthwith.

My daughter Elizabeth is ill in hospital and I note with interest on your site you feature MH and I attach something that might be of interest with some interesting links. You are only featuring men’s MH but I feature more broadly based on advice by leading professors that I have obtained.  

Being incarcerated in a mental health acute ward right now means Elizabeth is not using her phone much at all but even if she was, how can you justify this huge hike in extortionate costs and then more recently my data was cut.  What a joke and I could only use the service via wireless.

Yours sincerely


So the matter will now be going to the Ombudsman.


I have been a customer of EE for quite a few years now.  Most recently I regret with all my heart taking out a new contract with them as they are implying I am a liar and I would not be going to this trouble of writing a blog if I was:  

  • On 15.05.15 at Hammersmith EE Branch  EE tablet 10GB of data.  Hardly used – gave  to Elizabeth and cancelled on 19th April 2017.
  • On 29.09.2016 cancellation of EE Home Services  and returned the wifi router – without broadband and services for weeks before turning to Virgin Media.
  • On the 30.09.17 I renewed my mobile phone contract and obtained a Samsung A3.  I took out a sim only contract for Elizabeth but with hardly any data.  I retained my old iPhone 5S, giving to Elizabeth the new Samsung A3.   However this phone was stolen at Elizabeth’s scheme.  I then bought a second hand Samsung J2 for Elizabeth and had to get a replacement sim in order to continue the sim only service.
  • On 03.04.19 I took out another contract early so I could get a new iPhone 8 through Oxford Circus Branch increasing data on the Sim only contract for Elizabeth.

So those are the contracts, all of which done in store for which I have paperwork.

Anyway, I took the opportunity of querying why my bills were so enormous and I had put this down to Elizabeth’s usage as there was not much data and I honestly thought that Elizabeth was running up a high bill, so I was checking to see that premium rate calls were barred etc and I questioned as to whether there was anything else on my bill pushing the price up so high.   I was assured this was not the case and felt that I was making a saving in the cost of my monthly mobile phone bill.  This was not the case after I took out the new contract in April and I called in to Enfield Branch again querying why my bill was so high.

I was told that I was paying for a tablet but I had cancelled the EE in good time and I did not want another tablet as I did not use this.

EE are saying that in 2018 an iPad was delivered to my home address and that I signed for it and ordered it on contract.   Now they are saying in addition there was also an iPhone 8 that I ordered back in 2018 and both were delivered by courier to my home address and signed for.

The above came with a contract which was added to my bill but I have only just this year (last month) renewed my contract with EE at Oxford Circus Branch.

It is not nice to be called a liar by customer services representatives who are all sticking together and come out with differing accounts.

I have spoken to various customer services officers but one particularly stood out.  I was on a crowded train going early morning when EE rang as I had queried my enormous bill.  In front of everyone I found myself having a conversation I did not want to have first thing in the morning with a customer services agent who was adamant that I had left messages demanding the tablet – there was no mention of IPhone also at this stage.   I was quite upset because it was as though she was saying I was lying and that I had received the iPad, signed for it and demanded the contract when I hadn’t.  She then said it would be passed over to EE’s Fraud Department.  I felt happier in thinking they would thoroughly investigate and look at the signature and contract indepth and liaise with the courier firm.

I am going to share with you now the responses I have had from three members of the Executive Office of EE (  Trident Place, Mosquito Way, Hatfield, Herts, AL10 9BW  Tel 01707315000

I may be wrong but under the title of Chief Executive is the name Marc Allera (  so I thought I would write the following to Marc Allera.

Email:  From me to Marc Allera dated 25 April 2019


“I have obtained your details via the internet and would be most grateful if you could look into my complaint above.  The Fraud Office need to look into matters further as I never received, signed or requested or made any phone calls to EE asking for a new tablet and my bills have been very high which I put down to my disabled daughter who lives in a scheme in the community but who is currently in hospital.  I increased data on my daughter’s phone and in good faith renewed my contract querying whether I was in fact still paying for the contract which I had cancelled on a previous tablet in good time years ago.  I do not use a tablet so did not request one and it came as quite a shock to find out I had been paying for this since 26 February 2018.  I’d like a refund of my bill and a thorough investigation undertaken as to who signed for the tablet and how such a request could have been made without my knowledge. There is no way my daughter would have known my password or have been capable to order a tablet using my account.   Her sim only comes under my account and I pay for this so how can it be that a tablet has been requested in the first place that I am paying for and have known nothing about.  I assumed she was just running up high data usage on her sim only which I tried to rectify by putting a block on premium rate numbers on her phone number on the letter attached.  I look forward to hearing from you in this respect.”



Email from  27.04.2019 at 10:39

“Good morning Susan    –   Re: A/c No. ………..

Thanks for taking the time to contact Marc about the additional line on your account.  I’ve been assigned this complaint as your case handler and will do all I can to help.

With devices which cost hundreds and sometimes thousands of pounds we will always do what we can to prevent fraud from occurring.  As such we follow our security procedures in full with each new line and upgrade request.  Along with asking your account password we can ask additional security questions.  Further we will only ever deliver equipment to the address registered on your EE Account.  From reviewing your account I can see we did order an iPad 9.7 free of charge on 26 February 2018 . This was accompanied with a new 24 month contract which runs to 26 February 2020.  This line was ordered at the same time we upgraded the line ending 824 to an iPhone X.  Both parcels were delivered by the same courier company to your address on the same day on 27 February  2018 (a Tuesday and I would not have been at home to sign then).  Our records show the iPhone was received and has been used since which would reflect that the iPad was also delivered although I am concerned to hear you had no knowledge of this.  At this stage we do not have a copy of the call recording which we only hold for three months.  However given the circumstnaces Im afraid  that we wouldn’t deem this to be a case of fraud as such and given the cost of equipment to us we wouldn’t usually be able to cancel the line.  Although this is the case I would like to offer something to bring this matter to a close.  This would effectively reduce the contract length to 12 months which would mean:  

Refunding the last two months line totalling £90 inc VATG

Cancelling the line with immediate effect without charge.

If you would like to accept this offer please let me know within the next 14 days.  In the meantime Id like to say thanks again for your time Susan.  

Kind regards


So I wrote back to EE for the attention of LEE MCCABE ON 29.04.19.    COMPLAINT LETTER RE TABLET NEVER RECEIVED OR REQUESTED

“Just to let you know Ive contacted my bank to investigate and police and may also contact solicitors as you are calling me a liar!

Please supply copy contract and signature in my name.

I was told by your cust servs I was paying for a table as long as Feb 2017 (corr 2018).  Ive only just received iPhone 8 direct from Oxford Circus Branch.  I received the Samsung Galaxy A3 through Enfield Branch.

I never received Ipad or iPhone in Feb 2018 and request courier details and signature.

Im giving your name personally to my Bank, Police and solicitors.  I always do business via your stores.

Please send me signed contract.  Ive got all other paperwork.  

I then list details of contracts and cancellations.

Please forward proof of contract you are accusing me of taking out on 26.02.18 which I received received either iPhone or Ipad – as well as courier concerned. 

Yours sincerely,   Susan Bevis”  

On 29.04.19 I wrote again to LEE MCCABE

“Dear Mc McCabe, please note I have contacted the Met Police.  Ref No. CN ……………………………..29.04.19 via their website.

Please do liaise with Met Police.  Ive passed on all details of Ipad which I knew nothing about but asked for when I called in again to Oxford Circus Branch who I queried my bill with.  Despite asking I was not informed of the tablet by them so I took out another contact on my mobile and sim only card.  I’ve checked all paperwork and can find nothing relating to the iPad and I have only ever had an EE tablet.  Who signed for this tablet and when exactly was it delivered. No iPhone was delivered and No Ipad was received.  The iPhone I have now was only just obtained through your Oxford Circus Branch.   I cant remember whether the Samsung Galaxy A3 was delivered by post.  No way did I receive an iPhone or Ipad by post.  Ive renewed  my contract before expiry date and got a new iPhone 8 via Oxford Circus store.  I only ever do business via your stores.  I’m gong to contact solicitors as you are accusing me of being a liar and I’m going to put all of this on social media too as I never received any iPhone or Ipad.  I suggest you liaise with Police on this matter.  I suggest you check with your Oxford Circus Branch as I have only just renewed my contract. I do not accept your officer and want full refund of the payments I have made for the Ipad I knew nothing about in 2018.  Your letter will go on my blog via social media.


He writes 30.04.19  hi my name is Leonard and I am taking the time to reply as my colleague is out of the office to avoid further delay in our response.  Thank you for providing this information and I have reviewd the original order for both iPad 32GB and I Phone X,  Due to length of time since order was placed I cannot confirm signature received on delivery of both devices.  Ive reviewed the delivery address and confirm both products were delivered to your home address.  I confirm we sent a text message on the date or order 26.02.18 as follows “Hi from EE.  As requested weve ordered your additional device – if you didn’t request this please contact us asap on 150.  Pleased advise who used the number ……….. which is my number.  Can you explain why this has not been brought to our attention sooner?

I appreciate this may not have been the response you’d have hoped for at this stage however I look forward to your reply.  Yours sincerely Leonard Wade.”  

I then write on the 30th April 2019 to LEONARD WADE, LEE MCCABE AND MARC ALLERA

I again say I have not received the devices at my home address and ask for courier firm details, details of iPhone used in 2018 and explanation on why suddenly they are saying not just an Ipad but iPhone which I never received.

Matter is with Bank’s fraud team – please send copies of all my EE accounts relating to this.

I would not have been at home on this particular date to sign for parcels and I suggest they are are accusing me of lying – the last new phone was the Galaxy A3 from Enfield Branch.  I ask for copy of signed contract going back in 2018 as I have nothing in my records. I accuse them of suggesting I am lying by insisting I received the devices when I didn’t and stating I may have to take legal action and have reported to Police details.  I ask for iMEI  of iPhone in 2018 allegedly sent and asking all three to clarify the discrepancy and requesting copies of statements going back to 2017.

I feel like I am being bullied and treated like a criminal by EE who I have been a loyal customer for so long.  Whilst my Bank’s Fraud Dept investigate I have no choice but to pay EE’s extortionate bills in the meantime as the bill is one for all and if I put a stop on this now then I lose my phone service – not just mine but Elizabeth’s that I am paying for but it is no wonder I was paying so much –  I never requested the iPhone or Ipad.  Because of my daughter Elizabeth being ill and she is currently in hospital I had not been thoroughly checking bills and I never thought my mobile phone provider would treat me in such a bad manner.

Unfortunately I am tied in for another two years with them and it is strange that first of all an Ipad was mentioned and now all of a sudden both iPad and iPhone back in 2018.  I have renewed my contract a bit early this time taking advantage of the offer they had to get a new phone as I had been using the old iPhone 5S for a long time.

It is not very nice to be accused of receiving something they insist was delivered when you say you have not got it and never received it – in other words they are suggesting I am a liar and I want everyone to know on social media that is not the case and whilst I was discussing my dilemma with EE on the bus, several others chimed in that they had also had bad experiences with EE.

I hope this will be rectified and I will keep you informed of whether I get justice in this matter – I don’t mind paying for something I have got that I ordered but it is an absolute liberty to accuse someone of telling lies and insisting these devices were sent and signed for by me.

I rely so much on my phone service what with Elizabeth in hospital.  If she wasn’t in hospital and I was not so dependent I would ask my Bank to put a stop on all payments until matter resolved.

Today 1st May 2019 at 12.57 I received another email from this time from Josie Edmead Executive Customer Resolution Team  0800 079 0232. She writes as follows and explains that since Leonard is current out she is taking the opportunity of responding on his behalf.

I would like to apologise for the experience you have received in regards to said iPad being added to your account.  I have taken time to read the email thread attached to your respond and am up to date with the situation at hand.

Looking on your account I can confirm the information Leonard gave you is correct – on 26 February 2018 your mobile phone number ending 824 was upgraded from iPhone 5S to an iPhone X.  During this call an additional line for an Ipad was also accepted.  An SMS was sent to the number ending 824 regarding the additional line.

The courier services we use are DPD but with the timescale from February 2018 and today they may also have an issue finding your signature on delivery that you are requesting.  The sim only number ending 69 was upgraded in an EE store (Oxford Circus) store on 3rd April 2019 and upgrade to iPhone 8 not iPhone X.

Due to GDPR we are unable to contact Police or your Bank on your behalf.  If you feel this is something they should be informed of it is your choice to contact them.  We as agents, are unable to discuss customers accounts with third party services even if they are of high authority.

I do sincerely apologise if you feel EE have called you a liar – this was never our intent.  As a company we need to assure we are giving customers the facts we can see on their account.  If they do not match to what you believe, this is when our Fraud team investigate.  On this occasion because the device was delivered to your address along with a handset it was not deemed as fraudulent activity.

If you wish to have a copy of your bills dating back to Feb 2017 there are ways we can do this.  You can download your last 12 months of bills free of charge on the MyEE App.  If you require any dated earlier than this we can send you them in the post at a fee of £2.56 each.

On 27 April 2019 my colleague Lee to cover £90 of the last two months line rental charges for the iPad and an immediate cancellation avoiding the early termination fee.  This is our full and final settlement on the matter.  If you do not wish to accept this offer we have exhausted our complaints process and I could then issue a Deadlock letter where you are then able to seek advice from the Independent Ombudsman Service. 

My Response dated 01.05 2019

Dear Josie, Marc, Leonard and Lee

You are the fourth person from the Fraud Office trying to make excuses.

There’s no way I requested an upgrade to iPhone X8 at the time my contrct to iPhone 5S ended.  How can you explain this contract was taken out by Dundee Customer Services, Scotland.    I did not phone Scotland.  I called into Enfield Branch in 2017 to renew the contract, not 2018 so my daughter could choose a phone and she chose Samsung Galaxy A3 which I gave her through my contract and I was left to use the iPhone 5S.  How many times do I have to tell you.  I set up a sim only account for my daughter.  I was in the Branch at Enfield so made no call whatsoever.  I only do business via branches.

You are all so far from up to date its unbelievable.  I have all the paperwork and want to see a copy of yours and delivery note of iPhone X never received.  I’ve never received an iPad.

I renewed my contract in 2017 not 2018.  I got the Samsung Galaxy A3.

I visited Oxford Circus Branch in 2019 to renew contract, get iPhone 8 and increase data on sim only contract.

I’ve notified Police and my bank as when I say I have not received iPad or  iPhone X I mean it.  As my daughter’s account had only 1gb as arranged by Enfield I asked Oxford Circus branch to increase this.

Im accusing you all of implying and suggesting I received something I didn’t and now I want to see proof of signature.

Ive already breached GDPR rule by going public and want this complaint made open and transparent and want everyone to see how ive been treated on social media.  Now my Bank’s fraud team are involved.





Elizabeth is currently on a Section 3 -not because she has hurt anyone or damaged anything.

Elizabeth is on Suffolk Ward Chase Farm Hospital Enfield.  RC is Dr Helen Moorey and the Community RC is Dr Ilyas Mirza.

After all our efforts it’s sad to see Elizabeth back on the ward.  We know and have seen  that with the right care Elizabeth can get well but that depends on the right environment.   She came home unrecognisable from Australia after the wonderful care we provided ourselves for four months.

Anyway, I do not think an acute ward is right for anyone to get well and the longer people are held in such noisy, volatile surroundings they become more and more distressed and go downhill and I have seen this at first hand.

Elizabeth is allowed out three hours a day so there is no concerns that she is a danger to self or others as she is allowed out on her own daily.  However, I was shocked when I saw Elizabeth today as she looked drugged up so the first question was “what have you taken” .  She said “Lorazepam”  –  I thought not again!   this is a highly addictive drug and totally ineffective and she looked dreadful.  She looked dazed.   So I thought that I would come and take Elizabeth back to Suffolk Ward later.    Elizabeth said the food is not nice and my concerns are that she is spending a lot on takeaways –  I was quite alarmed by this and feel that this is another reason why Elizabeth needs to be discharged because it is unhealthy and she is stressed in that environment amongst others who are acutely unwell to the point she has gone back to smoking – albeit  vaping which I do not think is healthy at all.    So the answer is clearly not a ward for anyone long term so what justification is it for Doctors to keep someone on a ward for many months/years at huge cost to the public.

Last Friday, I attended the CPA meeting as Nearest Relative.   I was far from happy on arrival when I heard that Dr Moorey RC was trying to switch medication to a poisonous blue dyed haloperidol and I have read all above this chemical and have posted a You Tube video on this as a warning to others.  Several patients on the ward were very supportive as they had the misfortune to have been prescribed this harmful chemical and they chased after Dr Mirza who had nowhere to escape at the time and argued “dont give her haloperidol”.   The other drug choice was Aripiprazole –  for goodness sake! this drug I have had to report by Yellow Card because of shocking adverse reactions.  I have an email from Dr Moncrieff to say in her experience (and I would thoroughly agree) that this chemical results in increased agitation and aggression so the drugs themselves can affect people in different ways and it so happens that Elizabeth does not benefit from any of these drugs.  There is no excuse now for Suffolk Ward to drug my daughter up to  her neck like previously as there is nothing now to cover up as we all know what happened to Elizabeth under care (Moti Villa) to result in such trauma which has not been dealt with for many years by proper care by way of therapy.  If therapy was provided I would have no objection to treatment as I have seen that therapy was very helpful.

So, at the CPA was a new clinical psychologist who I quite liked –  at least at the moment – I might change my mind if I see incorrect records from him.     Dr Moorey, Dr Mirza and care coordinator Paula were smiling – I do not know why?  perhaps they can enlighten me.   I attended on the ward at 10.00 am and Elizabeth was pleased to see me.  She had asked me to bring some things for her on the ward which I did and she was immediately allowed out.   They didn’t try their normal tactics of calling her in first and saying “you don’t want your mother to see the files do you?”   Well I have so many files now and records and have had to  correct most of them as they are full of errors and some are a mass of black ink particularly the safeguarding minutes when I requested the other two copies.  As you can imagine it took me a long time to go through these and do the corrections.

The meeting itself went considerably well I have to say and I was particularly impressed by the new clinical psychologist who spoke sensibly.   None of them wanted to hear the recorded messages of support from Elizabeth’s new friend but we insisted.    I have always been accused by the team of interfering in the care so I have stood back and not shown concern and made a fuss even when Elizabeth went missing for 5 days before even being notified.   I could see that Elizabeth was on holiday so I thought that is nice for a start and she had only gone away for a few days.  The reason Elizabeth is back on the ward is simply because she tried to stop taking Risperidone too steeply and I want everyone to know that this drug along with every other drug has no effect on Elizabeth and I do not agree with steep withdrawals but I would remind Suffolk Ward that they themselves allowed Elizabeth to come off 2.5mg Aripiprazole before Dr Moorey took over as RC and so did Trent Ward Edgware so there was sufficient doubt about her diagnosis to allow this to happen on NHS wards but it was too steep a withdrawal and in the wrong environment.  Had the environment been a peaceful location – no pressure – no noise – psychotherapy provided and relaxation, fresh air and most important diet.   So this is the right environment to get well and when someone is “treatment resistant” then Doctors should not ignore the fact that people like Elizabeth cannot metabolise the drugs and I have had to turn to professors who are pharmacologists for proper advice.   I see  care on such wards to be practically all about drugs and if a patient does not take the drugs they force injections upon that person and this is not done in a reasonable manner – in other words the care is brutal whether it be private unaccountable prisons or NHS public wards –  it is nearly all about drugs and not a place to get well.

The whole system is hopelessly inadequate.  CTOs are being used as a means of punishment, to bully and control vulnerable people’s lives.  In the CTO papers they are full of threats of recall.  I hoped so much that Elizabeth would not end up on Suffolk Ward or any other ward but the care in the community lets people down badly.

Elizabeth was not happy at home with family members out at work all day and at the time lack of friends –  she needs her own space at 32 now but Elizabeth had found a new friend at the drop in centre and seems very happy lately.  I am due to meet this new friend at the weekend.   So basically a CTO does not work at all for someone like Elizabeth who countless other Drs say has high spectrum Aspergers.  Given the right help and support Elizabeth could do well but there simply is not the right kind of help and support in the community because too much money is being wasted in the wrong direction and Elizabeth says no one understands her.

At home,  Elizabeth was getting distressed if I misinterpreted or anyone else what she was trying to say and at other times she could be clearly understood.  She would also get distressed if people did not have time to sit down and listen so I agree it would be nice to see Elizabeth settled in a place of her very own and one of the things I was pleased about was that leave was given immediately and three hours a day isn’t too bad.  At weekends there is absolutely nothing to do on the ward so Elizabeth came home.

The other thing I was pleased about was the fact that Dr Moorey said she would let Elizabeth go hopefully in ten days but I’m hoping for miracles now in terms of her own accommodation as assessed for.  We have all her furniture, her possessions absolutely everywhere in the house and it has been like this for so long now.  I would be so happy if Elizabeth had somewhere in the local area to be nearer to us and close to her new friend. I feel that with a place of her very own she could settle down and particularly the fact that she has made a friend.

The one thing that worries me is the drugging that goes on within acute wards and that the drug Risperidon will be increased and another introduced – this is not the answer.  They want her to take 1.5 mg of Risperidone now which is what Dr Mirza prescribed in the community but the reason I would like Elizabeth to be on 1mg is that sometimes chemists cannot provide the entire prescription and it means having to go back and pick up part of it and also I am not having anything with coloured dyes or aluminium lake in.

The white tablets are not good but better than those with coloured dyes as I have extensively researched this and the ingredients.

So I gave Elizabeth a lift back to the ward – this was just after 8.00 pm as I wanted to check what chemicals were being given and have told Elizabeth to thoroughly check every occasion.     NO LORAZEPAM IS NEEDED AND NO COLOURED DYE HALOPERIDAL AND NO ARIPIPIPRAZOLE SHOULD BE GIVEN.  As Dr Ann Blake Tracy told me – any changes in medication can affect anyone.  It is no wonder that at the National Psychosis Unit that Elizabeth went downhill.  I have found all their files of truly shocking content and of public interest.   Anyway I shall write about that another time.

Tonight I saw about 8 Police Officers and a van arrive at the Section Suite and I was interested to see what was going on before I took Elizabeth on the ward.   I wanted to check how Police – so many of them – dealt with the person in this caged van.  They were  obliging towards me.  I didn’t see anything bad to report on this occasion but I know of cases where there are some police officers who give everyone a bad name.

Anyway after this I went with Elizabeth on the ward and the nurse refused to budge on the 1.5 mg Risperidone.    I pointed out that there was a landmark case X v Finland 2012 ECHR so therefore Elizabeth was not obliged to take any of these chemicals however I thought that 1mg was better than 1.5 simply because of our difficulty in getting this quantity and the inconvenience of this.   She wouldn’t budge so I will have to phone the ward tomorrow.

The new Clinical Psychologist mentioned about another meeting this coming week.  I think now’s the time to see how Elizabeth gets on with 1mg white tablet only.  So I shall phone Dr Moorey tomorrow.

Elizabeth seemed OK when I dropped her off to the ward today but I will keep you all closely informed.



Elizabeth is now 32.  I took her to see the show Tina which I would recommend  to everyone.

Since Xmas we have seen Elizabeth decline but then this is a time of year can affect some people badly.  It is not a happy time for everyone, though for others a time of joy and opportunity to get together with family.   With dark evenings and cold climate and the stress of Xmas, this all contributed to her decline.   Elizabeth stayed with her sister over Xmas.

Leading up to Xmas Elizabeth was having trouble sleeping and in need of someone to talk to.  She was re-living her nightmares and has been going into graphic details into everything that has happened even going back to school days.    She needed to talk but there was no-one except me to speak to so I was disturbed several times during the night and I have to get up early too.  When she tried to explain things misinterpretation would lead to her getting really upset.  Absolutely no counselling provided by Enfield who are saving money this way.

It was concluded Elizabeth needed her own space.  Elizabeth would get upset if she could not find things, if people misunderstood her or disagreed with her.

At 32 I would agreed she needs her own space but this is proving impossible under the London Borough of Enfield. Since November 2018 prior to huge misunderstanding where no pin number was granted and a letter came stating she was not entitled to one despite being assessed successfully.   So since November only 1 property has been bid for and Elizabeth was unaware this was for dementia sufferers and chronically ill with a warden and community alarm facility.    Elizabeth placed a bid unaware of  this until I showed her a picture of elderly people walking around with zimmer frames.  Of course this is not the kind of place Elizabeth wanted to live in and was a fair distance away from the family home where she likes to call in to see her cat.

Last week Elizabeth went to Park Avenue Resource Centre and was given a piece of paper and instructions on how to bid but Elizabeth needs help in bidding.   Elizabeth went to look at the property and area which this time was closer but it would seem everyone is on holiday at the same time so who can help Elizabeth to bid if there is noone there or they are all busy out at meetings.

Elizabeth has said she would like to move and I will feel so happy when that day comes.   The current accommodation is very much temporary and there is not a proper kitchen.  The kitchen extends into the staff’s bedroom as does the fridge.  There is no lounge to sit down and watch TV and Elizabeth is stuck in an attic room at the top of the house.   Today I contacted the Manager of the team concerned ECRT  and I mentioned about a conference that Elizabeth wanted to go to coming up soon at Kingsley Hall on 1st April  I mentioned how this wonderful conference could be of huge benefit to the team at Enfield MH.   As I have not seen any care provided I contacted the manager in the hope that the team could provide some of Elizabeth’s personal budget on this wonderful conference that has brilliant speakers.  Of course the answer was “no” and that £400 per week of the personal budget was being spent. I assume that this £400 pw is going on the scheme that provides temporary accommodation but what about the care.  Elizabeth actually refused a care package as what she really needs is help in the community but this is not given under these supportive living schemes because staff are not allowed to leave the premises.   I was astonished that this department who have spent –  I dread to think how much could turn around and say no!  How much money has been spent on court action against me –  Ct of Protection – this wonderful court ruled in our favour but this action could not have been cheap then the most recent court case at the RcJ -how much did that cost and I represented myself until I got threatened with massive costs and bullied out of the proceedings.  I had to amend the consent order manually and send it back “The Respondent shall pay the Applicant’s costs”   –  I then presented huge evidence which the judge commented upon.  I discovered lies in the court papers which I drew to the Judge’s attention.  It also turned out that Elizabeth’s solicitors advised her to go with her sister to displace me as the NR.   So both girls were advised I would get enormous costs.   I was forced to delegate my role for one term but it is incredible how dishonest things can get within teams desperate to get rid of a very good Nearest Relative such as myself or for instance to keep someone on a CTO then what they do is to make that person out to be bad.  I am very pleased that Elizabeth has shared everything with me as the Nearest Relative and I feel like sharing everything right here on Twitter.   I had such brilliant support from some of my readers who asked if we would like to be live streamed.  Elizabeth and I jumped at the chance but unfortunately my solicitor told me that this was not possible because it was too late.   I am keen to see openness and transparency within court proceedings and this time both Elizabeth and I swore affidavits.

Moving on from all this going back to November last year Elizabeth was assessed for a 1 bed council flat. I can remember feeling so happy as we have all her furniture and possessions in the living room and all over the house.    After all that has happened in the past I felt that being allocated a home of her own was a huge step forward.   The accommodation provided in the past has been a disaster –  every single place has had problems but the previous scheme had a problem with bed bugs and I was pleased Elizabeth spoke up for herself at the recent Manager’s Hearing when being accused of bringing them in when another resident admitted this.

Elizabeth was not sleeping around Xmas wanting counselling for her trauma and she is revealing new things all the time such as being restrained face down at the Bethlem which would explain massive bruising all over her face which the team deny.

She has also revealed a serious incident on Suffolk Ward where she was attacked by another patient and that it took five members of staff to pull the other patient off her.

So after all this time there is nothing positive –  she can now start bidding as she was unsuccessful last time.   I hope this situation is not going to drag on forever as someone needs to sit down with Elizabeth and help her to bid for more properties and please no more elderly persons schemes  or for the chronically ill.  Elizabeth needs proper integration into society as well as direct payments which is something ECRT does not wish to give as this department is all about restrictive practices and control from what I can see.   I am also far from happy that nothing has been altered within the files and defamatory comments remain.   I am going down to St Ann’s Hospital where I want to go through everything with their legal team to make sure everything is corrected.  I want to do the same with Huntercombe as I am concerned they  have been looking at the wrong files – there are literally so many mistakes not even date of birth correct.  I think this will take me about two days to correct in person at their wards and offices.

So tomorrow I have advised Elizabeth to go down to Park Avenue to start bidding.  I was disappointed that they refused to contribute towards the wonderful conference coming up at Kingsley Hall on 1st April through Compassionate MH   – this could benefit the entire team!

I was told £400 pw was being spent on Elizabeth so I asked for a breakdown of this and exactly what this is for as nothing is being provided for her to do.   There are huge funds as I see it as when it comes to taking people to court like myself there is a bottomless pit of money being misspent.  What better Nearest Relative could there be than someone who thoroughly investigates everything and wishes to correct records as how on earth can the correct care be provided with so many errors.

The situation seems to be never-ending and all I can do is hope that something will eventually come up for Elizabeth.

Under S117 after care is supposed to be given but Enfield Community Team seems to retain this for themselves.  How many others are treated this way?

Elizabeth’s story – My Wonderful Care is on Rightful Lives Exhibition –  this relates to the wonderful care we provided.   In file records social workers try to say she was “forced” to go and stay with private MH professionals Working to Recovery and I would right here this is a pack of lies.

I feel the least Enfield can do is to provide what is promised in terms of housing to Elizabeth rather than leave her in a situation which is causing her distress.

So tomorrow I have told Elizabeth to go and place a bid and I will keep you all informed if she is told there is no one to help because they are all on holiday.

I can see no other way round it – if nothing is done about the bidding the second week running I will take a day off and go down to their offices myself and then I will go to St Anne’s to ensure their records are amended correctly.

As I have mentioned before the very best way forward is Open Dialogue – openness and transparency.  I would have nothing to complain about if this was on offer in my local area of Enfield but unfortunately there is nothing good like this.

I also suggested that the team themselves attend :

As this is the way forward to improvement in my opinion.

It is awful to get calls at work from Elizabeth in distress.  She is phoning all my friends and some are kind enough to give her counselling when nothing is provided locally.  Elizabeth has been trying out some meditation called Sha-Om.  This seems to be getting to the root of the problems which Enfield MH have tried to block through plying massive dosage of mind altering chemicals.

I will end by saying Meditation not Medication.   This beyond doubt is the answer.












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