My website is dedicated to my 27 year old daughter who, after years of hospitalisation is back home again as she did not want to return to the care home who were asking her to choose between her Mum and Dad as “next of kin”. I have welcomed Elizabeth home again and she is improving since being home and is not on such a huge quantity of drugs which we were unaware she was on and this had been going on for some time so I have just found out.
Elizabeth I now recognise as having had severe adverse reactions to some of the drugs – in the files she is stated as being “treatment resistant” and I have since found out this is where someone cannot metabolize the drugs and in addition to campaigning for more humane mental health care I would like to see a proper National Drug Metabolizing Scheme as the drugs could be doing more harm than good not just for Elizabeth but for everyone. I understand there is a programme in Liverpool going on but I think there should be a nationwide programme as this could save money to the NHS as well as protect patients from harm to their physical health if the drugs given are wrong for them.
At home Elizabeth does not have to take Lorazepam as and when required whereas at the care home – she has her cat and this is more therapeutic than all the drugs in the world.
Elizabeth can manage in the home and has not forgotten things learned during catering course. However she needs to rebuild her confidence in going out. This is something I believe only a group of young people of around her own age could help with. It is not a matter of qualifications – it is a matter of understanding and caring. I would like Elizabeth to make decent friends and have a life and since being at home there has been no sign of any wrong behaviour. I think also nutrition and exercise are very important and minimal drugs.
I also think that Open Dialogue would be the best way forward as they have 95% success rate in Finland and patients can be on minimal amounts of drugs.
I think that CTOs and enforced drugging should be replaced by Open Dialogue and the National Drug Metabolizing Programme as someone could be having an adverse reaction to the drugs which is mistaken wrongly for “symptoms”. The most accurate of diagnoses given is PTSD – however this is being ignored by the entire team and according to NICE Guidelines Clozapine is the wrong treatment for PTSD.
I would like to see change in the current system which is completely inhumane. No proper assessment are done and why should patients have a lifetime of drugging – where is the proof of these diagnoses in any case as I have seen so many different ones in the files. I would like to see facilities such as Chy Sawel set up offering choice to patients and facilities where patients who cannot metabolise the drugs can be safely reduced. The minimal amount of drugs should be given but unfortunately in the UK it is the other way round. Whilst A&Es and maternity wards are being closed down the mental health wards are overflowing and I have seen the same patients return time and time again and that is because a patient needs more support in the community and down to the mind altering drugs in some cases and adverse reactions to these that are completely overlooked. Physical health is also overlooked too and should be paramount.