Today’s ward round took place this morning delayed by technical problems meaning whereby I could not join the meeting despite having the calendar link and had to re-join using another link.
I heard yesterday that it has been discovered Elizabeth had a lump/lumps on her breast and my first thought was about long waiting lists for such assessments due to covid. I therefore offered to pay privately but this was dismissed as being unnecessary and they tried to reassure me that her appointment would be within a couple of weeks. I do not feel reassured as I have no idea how long the lump/s on her breasts have been evident but was told this was only recently discovered. I then enquired regarding the MRI scan previously refused by Dr Afolafi when I offered to take her back to London. Dr Shahpasendy also had refused a blood test for his own Limbic research but hopefully this can now go ahead too. This was the reason why Elizabeth was admitted to hospital in the first instance under S136 when she called into her GP surgery in the former area demanding an MRI scan. No she did not smash up the surgery or jump over the desk as documented. There is a pack of lies documented in file notes regarding this incident. It is hard to trust a single thing that the NHS does in light of this and when you ask for corrections to be made this is ignored.
Section 17 leave was discussed and once again refused by Dr Shahpasandy and team so Elizabeth continues to be held in the most restrictive manner like a prisoner without even the most basic human rights. How degrading is it to drive for over an hour for a meeting just for half an hour, the to call Elizabeth in for five minutes to accommodate the other half an hour allowed. I was advised that the entire Disciplinary Team were in agreement with this to make it look like it was everyone concerned but I doubt this is true and have seen evidence this is not the case but there is clearly a culture of bullying under Lincolnshire Partnership Trust.
I only saw a few present at today’s meeting but here is an example of how many “professionals” you are up against who are invited as a matter of course.
There are 4 other doctors, some of which are trainees.
I dont know who half these are but they are perhaps on video link:
G J S
There is just myself invited from family but excluded from the main part of the meeting which is conducted in secret as they do not want to reveal their true agenda, secret meetings held by a multi disciplinary team to discuss their plans against us as a family. Safeguarding would appear to be continuing behind my back. It is all about protecting one another, plans to get rid of me as a Mother, carer and Nearest Relative who they use bullying tactics against – I can’t think of a worse punishment than restricting contact in the way they are doing.
When I tried to discuss Section 17 leave Dr Shahpasandy said that there would be no change – supervised escorted grounds visits only. I told him that this was in breach of Art 8 and 3 but he responded that everyone was in agreement because of their collective concerns against me but I sense this is not true. He refused to discuss S26 MHA when you as nearest relative are entitled to explanation as to why such restrictions are in place. We see it as punishment.
To deprive someone of their religious needs and going to church is discrimination and then when Reverend Machell tried to contact confidentiality was being played upon and it is impossible to get through sometimes on the phone.
CODE OF PRACTICE
Treat people in places that are safe and help them get well – “I will never get well in here” Elizabeth stays in her room most of the day according to male nurse called Fred. She has not been in any trouble. She lies in bed a lot to avoid noise and seems to be up late night as this is when I get her calls. Elizabeth has also phoned to say she was freezing but Dr Shahpasendy denies this. She says the bed in uncomfortable and her back hurts. I brought blankets for her to the ward but was told these are not allowed from outside the ward. I had to advise staff as Elizabeth finds it difficult to ask for things. She often tells me that “the doctor/or staff are putting words in her head”. If you dont ask you do not get in that facility.
Think about patient’s physical health as well as their mental health. Elizabeth has been refused various physical health appointments – one most recently in London by Dr Afolafi which was a Neurologist appointment in London recommended to attend by the new GP. (“it is a doctor’s absolute duty to investigate abnormal findings on a scan as mentioned on Discharge note from previous hospital.“
The scan was consistently refused by her doctor who has only just reconsidered this now that I have pointed out re his research into the Limbic System.
Work together to give you good safe mental health services and the right support when you leave hospital. No this is the not the case at all. Quite the opposite as you are up against so very many all backing you. This facility is very distressing to Elizabeth which is probably why she spends much of her time in her room. She cannot stand noise and has sensory issues. Their plans have changed since Xmas as Elizabeth returned to the ward distressed. The leave was a tremendous success but she was distressed at going back and being thrown into meetings and tribunal now everything has changed and the restrictive visiting rights are most probably just the tip of the iceberg and I assume leading to even more restrictions and banning of contact. This has been done to me before. I thought doctors were meant to do no harm. In fact it puts you off ever seeing a doctor again as there is no thought, no compassion towards you as a carer or towards a family who are trying to provide a decent living accommodation that is safe and comfortable and all they can think of is to get rid of you. After all these months nothing has been provided by the community MH team whose agenda is to gang up against you and take you to court to get rid of you. They are situated in Stamford and Lincoln from what I can see.
Patients’ Rights The Code says patients should have a say in their care and be treated with dignity and respect – Voiceability are supposed to the advocates but are never there to support Elizabeth at meetings. Even when her advocate did telephone a member of staff, namely Katy remained present at all times so even advocates are only allowed supervised contact at Ash Villa by the sound of it. Elizabeth finds meetings stressful especially where she is constantly questioned. She is refusing to attend such meetings and when she has done, she has stormed out because staff fire question after question at her – same questions all the time about where she wants to live. Constantly she says she wants to come home. What dont they understand but perhaps this is not their agenda and they know nothing about the family. There is no dignity and no say at all. Only a CTR in the former area provided Elizabeth with a chance to say what she wanted and be listened to but not under Lincolnshire Partnership Trust where it is like going backwards.
Work together to keep patients in hospital for as short a time as possible This is definitely not the case. All this length of time, going back to September and still nothing provided in the community. Elizabeth has been detained in facilities totally wrong for her due to noise, extreme restrictive practices and deprived not only of her liberty but fresh air and exercise with physical health appointments dismissed and ignored that should have been dealt with from the very start of detention. In addition, she has been deprived of having quality time with her family except for just a few days at Xmas which was a great success but on her immediate return to Ash Villa she had a tribunal and meetings which greatly affected her to which she reacted. This put back her discharge back as it was originally planned for her to come home but now there seems to be other secret plans going on behind our backs and care homes have been mentioned more than once. There is currently an attempt to get rid of myself and Mr Bevis as Power of Attorney and we are being investigated right now. I am being accused of stopping/encouraging to stop treatment which is not true and I can prove it. They are also slating my character detrimentally in other ways and in general trying to discredit me in particular. They are also trying to get rid of me as NR, stating Elizabeth does not want me as such and denying me having a Manager’s Hearing and displacing me with my younger daughter. What kind of a system is this!
Services must stick to laws about treating people equally and fairly. There is no fair treatment under Ash Villa because not only are visiting rights totally restrictive, she is not allowed out for fresh air whilst during my visit. It is so degrading to have two members of staff stand over you in the same room listening to every word of conversation treating you like a criminal and it is not a nice experience for Elizabeth either.
§ The Code says patients should have a say in their care and be treated with dignity and respect. There is no dignity as per the above Code and with such restrictive practices akin to Dols there is no respect either for carers or patients alike. Their Charter looks good on the surface but you are not treated accordingly so why even bother to display this on the wall. You are treated in a condescending, patronising and degrading manner, made out to be someone who is rude and aggressive by some staff members. You cannot always get through on the phone, a patient is denied religious rights to go to church which is discriminative. Elizabeth has been denied fresh air and exercise also. With the excuse of covid, the little dog that brought much joy to Elizabeth is now no longer allowed in the visitor’s room. All my daughter has is the window of her bedroom to look out at the outside world and the birds outside where she spends most of her time indoors like a prisoner. She has named all the birds. She has asked to go swimming and asked me to get a costume just in case but this is denied and even going out around the grounds has been denied on my visits as mother and carer at times. It takes me over an hour to drive for just 1 hour’s visit and the visits are very upsetting because my daughter has said “I will never get better in this place”.
If you are treated under the Mental Health Act and do not have capacity, your Attorney or Deputy can make some decisions for you. HOWEVER ELIZABETH DOES HAVE CAPACITY AND HAS PUT A PRAYER ON LINCOLN CATHEDRAL’S WEBSITE BEGGING GOD TO ALLOW HER TO COME HOME. With such restrictive measures in place I believe they are either trying to go down the DoLs/ MCA route because Elizabeth does not like the depot as she has a fear of needles unsurprisingly, having been dragged from one end of a former ward to another by four male nurses and forcibly injected and has had needles broken in her by rough treatment under Elysium. They are trying to blame us as attorney’s for encouraging her to stop taking the depot or from stopping it. It could also be safeguarding to make me, her father look out to be unfit parents and they want to put my younger daughter in place of me as NR and are threatening all kinds of court action which is bullying. With regard to compliance they fail to note Elizabeth did not refuse their treatment in the community in London previously and there was never a problem and she was not on a CTO either. She was being slowly and gradually reduced off the Clopixol by the former area of Enfield who produced a letter detailing this as well as a discharge note pointing only to physical health conditions.
There are some times where hospital managers may restrict visitors, refuse to let them in or ask them to leave. Managers should have a policy (plan) for the times when they can limit visits to patients. Covid being the excuse. I am restricted with no answers given as to why but they are trying to make out I am threatening and aggressive. There seems to be a culture of bullying under Ash Villa. I did hang around on her birthday, not expecting to visit the ward due to covid but since Elizabeth was out of isolation I just wanted to hand her the Birthday presents. She did not know I was there and now states she was upset at being kept a prisoner. Unfortunately they called Police and I was not even parked in their car park at the time. Nobody could get through to Elizabeth several days later. I had dropped her cake in and dropped the presents in that were just dumped in a store room and Elizabeth says now that she did not know I had waited outside just to hand her the presents. She was apparently not feeling well enough to go out anywhere as she was recovering from covid and felt weakened. I was not pressurising her to go out but not even a phone call – no one else could get through to her for several days and she did not know about the presents and card I dropped in.
I have asked for the reason for my restrictive visiting rights under S26 MHA but no-one will give a reason. When Police were called I asked if Police could do a welfare check on my daughter as she seemed to be really upset and was looking forward to my visit the day before and she was acting out of character but Police said they were not allowed on the ward.
I have also been refused information as to whom the Hospital Managers are. I have received a letter from AMHP Andrew Morrans about getting rid of me as NR and displacing me with my younger daughter but I want a Manager’s hearing first and so does Elizabeth as I have explained this to her.
Policy: This should be clearly displayed on the ward so staff and patients can read it. All there is displayed on the wall is a Charter and unfortunately Ash Villa do not act in accordance with their own Charter.
They have to write down why they stopped the visitor coming and show there is a good reason for this. Hospital managers must check when staff are stopping visitors. They should have a policy on when visits are not allowed. This is not done. However I have had the phone put down on me and been treated with rudeness myself. I have not always been able to get through as her phone is charging or switched off. I have then called the ward to see if her phone is charging and the Policy is to put the phone down as I should only have 1 point of contact. They will say they ” i will see if she wants to speak t or not.” I have had the phone put down on me more than once but I am never threatening or swearing towards staff but they are trying to make me out to be this way. It is because I am asking for information and they have been told not to give it. The Carers Champion firmly states she is my only means of contact and I get a 15 minute slot only but in that 15 minute slot the only answer I got was “no” to the Neurologist appointment in London and that it was not necessary.
The hospital manager must make sure the patient and their family can be involved and understand what is happening
This is not being done.
Services have to think about these safeguards if they give you any care or treatment that deprives (takes away) a person’s liberty. This means where you are not free to leave and where you may be watched or controlled all the time.
This is what I think they are doing as she is not even allowed outside of the grounds and is watched and controlled at all times and it is so utterly degrading.
They must tell the local authority (council) and the Care Quality Commission (CQC) if they use the Deprivation of Liberty Safeguards so they can check what they are doing. Sometimes people have to decide whether to keep a person in hospital under the Mental Health Act or the Deprivation of Liberty Safeguards. Both cannot be used at the same time. It is as though this is being done at the same time although denied when I asked.
Elizabeth has called the CQC more than once herself stating she is being abused and has been unable to contact her advocate and they have not been helpful in this respect as the number would not work when she tried. She was asleep on one occasion when the Advocate wanted to see her and on another a member of staff sat in and listened to the video linked meeting. There does not seem to be any contact with her and her advocate now as she is completely outnumbered in meetings and increasing of numbers of staff invited which is intimidating for both of us.
I think they are using both MHA and DoLs at the same time against Code of Practice though DoLs has been denied however they are in fact depriving her liberty and it should be the least restrictive care. They are trying to get rid of her Attorneys (myself/her father) by saying they are not fit for purpose under Health & Welfare and depriving or encouraging deprival of her depot injection with a view to displacement and Guardianship under no doubt an AMHP.
The NHS should try to place patients as close as is reasonably possible to their home. If it is difficult for the patient’s carer or family to visit a patient because of the distance they need to travel, then the NHS should think about what support they can provide.
Elizabeth has in the past been sent all over the country even Wales but this journey is over an hour for just an hour’s visit and the visit is absolutely degrading and restrictive against human rights. It is so upsetting that my daughter is being punished when she has been so badly abused and as someone who reviews MH services/carers rep myself, I have never come across anything as bad as Ash Villa.
People with learning disabilities or autism. A person cannot be detained and treated under the Mental Health Act just because they have a learning disability or autism. Whilst said to be border-line LD – all screenings have come out positive re: autism but they do not want her to have an autism diagnosis. There was enough evidence for NAS to get involved in the provision of a CTR that took place whilst back in London where the Independent Chair of that meeting commented “the whole thing stinks”.
People with autism can find changes difficult or upsetting. Being kept in hospital can be difficult for them so they need support from staff who understand autism. The staff should listen to carers and other people who know the person well and can say if they understand the decision.
“I am desperately waiting to come out of this dreadful hospital”
Firstly the former area of Enfield declined to admit Elizabeth was a multiple rape victim and they refused a CTR and autism diagnosis – nothing was done fairly and we moved in the hope there would be fairer treatment here. Staff do not listen to carers and the information sent by myself does not appear to have been read or else dismissed such as the Discharge Notice indicating only physical health concerns along with the letter from former area detailing the reduction plan off medication. Doctors are ignoring physical health and will not acknowledge the fact my daughter’s breathing is very bad – will not give any answers but in past files she is noted to be of high risk of mortality and choking. They have not once listened to me as a mother and carer and even got the dosage of the drugs wrong to begin with virtually calling me a liar when I said she was due a reduction down to 250mg. My daughter finds it very distressing to be in that hospital.
§ Doctors should think about the patient’s wishes when they plan their treatment and care. They are not listening at all so thank goodness Access Charity are involved. She says “the doctor keeps putting words in my head re care homes”.
§ In certain cases the Court of Protection may have a power to order that doctors must not give the treatment. The CoP treated us both fairly in 2014 when Elizabeth was being forced back to a care home where she had no food at the weekend and where a CTO and DoLs was planned plus severance of contact.
care for patients in safe places that are not noisy or upsetting Elizabeth says she cannot stand the noise on the ward at Ash Villa. She is clearly unhappy there so why isnt an entire team of “professionals” listening.
Think about physical healthcare and not just mental health. Not allowed to take her to appointments or assessments re physical health and she has missed all her appointments which the new local GP recommended she attend. Now has possible breast cancer only just been discovered, an urgent referral has just been made.
Local authorities and clinical commissioning groups must make sure patients get the right care in the community after they have been kept in hospital for treatment. This is called after-care and the Mental Health Act says what this means. Absolutely nothing is being done otherwise Elizabeth would not still be incarcerated suffering no end to the point where she has said she cannot stand any more of her life and that no one understands her. She is missing fresh air and exercise. She is missing her cat and her family. She is becoming weakened physically. She is in pyjamas all day long and sleeps during the day and all night awake judging by her messages.
Guardianship: The rules should not mean you are watched and controlled all the time. They should not stop you leaving the place where you live. AMHPS from this area of Lincolnshire have already tried to put her under Guardianship and displace me as NR and even appoint the Official Solicitor over the head of her solicitors Ringrose Law and Dr Shapasandy said measures are being put in place to a get rid of me as NR and admitted safeguarding on concerns (by whom exactly?) – total breach of confidentiality has gone on to discuss my displacement behind my back which has got back to me.
If you lack capacity to make some or all decisions about your treatment and care, your doctor should think about whether to use the Mental Capacity Act instead. Elizabeth clearly has capacity about where she wants to live and has said time and time again “home”. Their agenda is into a care home or supported living and housing where no doubt her liberty would be deprived and so would contact with her family as has been done in the past. Elizabeth has also suffered the most terrible abuse under past schemes which is why we as a family moved to provide a separate living accommodation for her so she can be independent and this has been architecturally designed and the environment of the surrounding area is perfect as it is quiet and peaceful and overlooks the sea.
Hospital managers’ discharge powers The hospital manager is the person or organisation in charge of the hospital. They can arrange for a panel (or group of people) to carry out their powers. Have asked who the Hospital Managers are but have been refused that information. Have now called a Manager’s Hearing and explained this to Elizabeth who is in agreement but the Manager of the MHA has not got back to me and Pals are taking along the lines of code of conduct and my delegation of my role of NR.
§ Hospital managers should tell patients about their decision and the reason for them. They are not giving information and playing on confidentiality and putting Elizabeth under pressure to sign papers but she is sharing information with her family.
§ Attorney If you find it difficult to make some decisions for yourself, an attorney or deputy can help you. A Lasting Power of attorney is someone who you have said can make certain decisions for you in the future when you do not have capacity to make that decision. You must follow the rules in the Mental Capacity Act 2005 to create a lasting power of attorney. The person you choose is called an attorney. As Deputies who they want to get rid of, we are trying to provide everything so that Elizabeth is supported and looked after including a home of her very own. We are not stopping contact with MH professionals and have not interfered with current treatment but have a letter stating that she was being taken off the drug in the former area and this is not being continued here in Lincolnshire as this has all been disregarded by professionals.
§ Deprivation of Liberty Safeguards (DOLs) Safeguards in the Mental Capacity Act for people who lack capacity are deprived of their liberty. Services have to think about these safeguards if they give you any care or treatment that takes away your freedom. They tried to put me under safeguarding – I have had to inform my employers and called for a Section 42 meeting that was not granted. The safeguarding is brought about through “concerns” by nursing staff who are maliciously accusing me of encouraging or stopping treatment which in this case is a depot and in fact all the time I have evidence to the contrary that I did everything to get this continued and in place. I have nothing against safeguarding but this should not be done behind your back as I believe is the case under Lincolnshire Partnership Trust.
Anyway I did not get a chance to say all I wanted to say as this meeting was disrupted by technical problems.
I am now going to write to my one point of contact in this respect right now.