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A CTR for Elizabeth is a most important meeting and Elizabeth has been told this is going ahead tomorrow.

No way will this be done fairly.

For a start she has had no support from any advocacy and the advocates are supposed to be PowHer Icas who are funded by Barnet Enfield and Haringey MH Trust. They are supposed to help prepare someone like my daughter for the CTR but have done nothing.

I was so happy to hear from National Autistic Society to say that matters had gone higher. I was told that there would be an advocate appointed by NHS England who had specialist communication skills re learning disability or autism. What good are advocates who give no support. How is this fair?

I was full of hope that matters would be dealt with fairly and that Elizabeth would be assisted with the CTR by advocates. Instead all the RC of Suffolk Ward has done is keep asking for the completed forms which are with the National Autistic Society. The reason the last CTR was called off was for the same reason – total lack of support – yet this CTR has been allowed to go ahead. How can that be right?

The CTR should be cancelled a second time because of the fact that the CTR has not been organised properly or fairly and this has been done by the RC of Suffolk Ward Dr HM.

Bearing in mind the level of dispute on treatment and everything no CTR should take place until an appropriate independent advocate through NHS England is appointed.

The CTR was scheduled to take place between 10.00 am and 3.00 pm. Elizabeth has said she does not wish to attend and who can blame her because she would have wanted to attend if a CQC inspector or an appropriate advocate had been invited.

I have notified the CQC as it is apalling how vulnerable people are treated, initially declined by commissioners the CTR is only being allowed thanks to the involvement of Mencap and NAS and this is why it is important that I highlight why correct advocacy needs to be in place in a case like this to ensure someone is fairly treated and that something good can come out of the CTR.

To: feryal.clark.mp@parliament.uk
info@bihr.org.uk, cllr.nesil.caliskan@enfield.gov.uk
Date: 16 March 2021 at 11:41
Subject: Replace the Coronavirus Act – Disabled and older people’s rights (Case Ref: FC7433)

FAO  The Rt. Hon. Feryal Clark

Thank you for your letter.

I am disappointed to note that you did not vote against the replacement of the Coronavirus Act.   

I am apalled by what you say “care workers must be provided with the pay and training they deserve but what about the weak and vulnerable and their human rights being abused by care workers who dish out brutal treatment and are totally oblivious to human rights backed by those at the top of the Trust.

I think Enfield comes rock bottom of human rights in my opinion. 

How many deaths have there been to people like my daughter who is now obese and a size 24 and force injected with clopixol depot at max level?  What is being done about this in Enfield and why are patients on Suffolk Ward still being denied basic human rights of fresh air and exercise.  Surely that is draconian?   Is that in line with Human Rights?

There is clearly no proportionality, rationality, fairness and total discrimination in Enfield, an area rife with bullying.

There is no respect for someone’s sexuality – and no accountability in this area.  There is no decent care and provision in the community yet so much money to be spent on wrong facilities out of area whilst a vulnerable person’s human right to a fair assessment and humane care is abused yet you declined to vote against the Government and their extraordinary powers of abusing the weak and vulnerable.   There is nothing necessary about this whatsoever.

There are also different rules for different hospitals within Enfield which need scrutiny  North Mid Hospital for instance allows visiting  to dementia sufferers and for people with learning disability so why doesn’t this apply to Chase Farm Hospital Enfield?  My daughter would come into this category.  Why it is OK for a nurse not to wear a mask come in close contact with the likes of my daughter when I am being punished and discriminated against?  There are different visiting rules applying to other parents who are allowed greater contact as i have witnessed first hand. 

So my daughter was multiply abused in the community and now is being further abused under the mental health d) and has had brutal treatment.   It was dreadful to hear details of administering of a depot injection by four male nurses – Do you think that is good care?   I suppose you feel this is justified?  No fresh air/exercise, no contact with family and discrimination re visiting rights?

When you talk about training perhaps – what training!  What they need is training in human rights and perhaps the BIHR should be contacted with regard to this.  There is clearly no training or human rights.  If there were human rights then patients like my daughter would be able to get the humane care THEY deserve if everyone in this Borough was educated in this way, none of this abuse would be going on to the weak and vulnerable.  SHAME ON ENFIELD.

How can you hold the Government to account if you do not vote against such draconian measures?

I once heard in church a very interesting speech “silence is consent”.   How very true this is.   Here are examples of complete breach in rationality, fairness and discrimination under Enfield where nobody cares:

https://psychiatricabuseuk.com/2021/03/14/treatment-on-suffolk-ward/

https://psychiatricabuseuk.com/2021/03/06/cetr-cancelled/

https://psychiatricabuseuk.com/2021/03/04/cetr/

https://psychiatricabuseuk.com/2021/02/25/my-letter-and-a-wall-of-silence-by-the-appgs/

https://psychiatricabuseuk.com/2021/02/12/elizabeths-birthday-3/

https://psychiatricabuseuk.com/2020/12/26/prisoners-on-suffolk-ward/

https://psychiatricabuseuk.com/2020/10/14/vexatious-complainant-by-amanda-pithouse-chief-nurse-and-mehdi-veisi-medical-director-behmhtnhs/

Yours sincerely

Susan Bevis

———- Original Message ———-
From: Feryal Clark MP <feryal.clark.mp@parliament.uk>
To: susanb25@virginmedia.com
Date: 16 March 2021 at 09:39
Subject: Re: Replace the Coronavirus Act – Disabled and older people’s rights (Case Ref: FC7433)

Dear Susan Bevis, 

Thank you for contacting me regarding the Coronavirus Act.

The first six-month review of the Act took place on 30 September 2020 when the renewal of the temporary provisions within the Act was approved.

This legislation contains some of the most draconian powers ever seen in peacetime Britain. I worked closely with my colleagues in Parliament to scrutinise this legislation when it was introduced in March to ensure that any exercise of executive power or administrative action is measured against human rights and common-law standards. These include necessity, proportionality, rationality, fairness, and non-discrimination.

We have seen over 125,000 deaths in the UK, lives altered in ways unimaginable a year ago, and our economy facing one of the worst recessions on record. I accept the challenge that presents, and I recognise that in a pandemic any government needs extraordinary powers available. With a heavy heart, facing the highly unsatisfactory situation of an all-or-nothing motion brought before the House of Commons on 30 September, I did not vote to block its passage.

Nevertheless, I understand the concerns you raise about the effect this has had on social care provisions. I believe that there must be greater parliamentary scrutiny and accountability for the Act.

With such strong powers available, the need for accountability is even more important than in ordinary times. I am therefore pleased that in response to pressure, the Government announced that, where possible, Parliament will be consulted on any future significant measures that take effect across the whole of England or the UK.

The Government must, in my view, commit to publishing a monthly review of any disproportionate impact of the Act on individuals or groups and give Parliament the time to debate and hold votes on regulatory changes.

More widely regarding social care, we need a long-term plan of far-reaching reform to establish a properly funded social care system that works for older people and working age-adults. This is vital to increase access to care and to protect people from high care costs. Care workers must also be provided with the pay and training they deserve, which is essential to addressing widespread vacancies across the sector.

Thank you once again for contacting me about this important issue. I assure you I will continue to hold the Government to account and ensure that this emergency legislation is kept under regular review and I will bear in mind the points you have raised

Yours sincerely,

Feryal Clark MP
Member of Parliament for Enfield North





________________________________________
From: Susan Bevis
Sent: 10 March 2021 15:26
To: CLARK, Feryal
Subject: Replace the Coronavirus Act – Disabled and older people’s rights

Dear Ms Clark,

I am writing to urge you to vote to repeal the draconian powers in the Coronavirus Act and replace them with measures that support everyone to stay safe.

The Government has attempted to police its way out of a pandemic. While the roadmap out of lockdown is positive, it does nothing to help the people who have been left behind by the Government’s harmful approach. It’s time to change course.

Voting to repeal the Coronavirus Act does not automatically leave us without laws and regulations – it creates a three-week window to devise a replacement. That hard work has already been done. Expert charities, NGOs and lawyers have come together to create the Coronavirus (Rights and Support) Bill, also known as the Protect Everyone Bill – https://www.libertyhumanrights.org.uk/fundamental/coronavirus/https://www.libertyhumanrights.org.uk/fundamental/coronavirus

The Bill replaces the dangerous powers in the Coronavirus Act with measures that provide support for everyone to safely follow public health guidance.

The Coronavirus Act allows local authorities to strip back social care, disproportionately impacting disabled and older people. In the first national lockdown, research from Mencap showed that almost 70 per cent of people with a learning disability reported having their care cut.

The Protect Everyone Bill scraps the parts of the Coronavirus Act that allow local councils to strip back social care provision for adults, and education, health and care (EHC) provision for children and young people.

And it makes sure public coronavirus broadcasts are fully accessible to disabled people, including by requiring sign language interpretation. News updates and regulations must be published with Easy Read versions.

The Government has said it wants to build back better. We can do so by repealing the Coronavirus Act and replacing it with the positive measures of the Protect Everyone Bill.

Yours sincerely,
Susan Bevis

Whether it be mental illness or learning disability/autism, if you are unlucky enough to be on a section 3 you can be sure that the treatment under the NHS is nothing less than brutal.

This treatment can result in increased trauma and this ward does not budge on diagnosis and when a patient in their eyes becomes unmanageable they are sent far away and all is funded by the commissioners of Enfield to facilities such as Cygnet, Huntercombe, Elysium and what was once Cambian as far away as Wales.

Here is some of the treatment my daughter has received under Barnet Enfield and Haringey MH Trust rated good by the CQC:

Most recently Elizabeth has been put on drugs that the RC of Suffolk Ward says is helping her and that she is better on them. This is maximum levels of Clopixol depot. The drug has been administered roughly on occasions not just by Enfield but by other institutions funded by Enfield out of area to the point the needle has broken. It sometimes takes a while before Elizabeth will talk about an experience but this could be due to the trauma which is ever being increased the longer she is held in unsuitable institutions such as locked wards.

Nothing really shocks me but will perhaps shock others, that is anyone other than this current Government who could not care less.

Elizabeth thinks she is where she is right now because she is being punished. I wouldn’t disagree with that and also her family are being punished by Chase Farm hospital Enfield, as no-one is allowed leave even for a few hours or granted visiting rights. You can only see someone through a narrow pane of glass in the void between two locked doors where it is difficult to speak because of wearing masks. Yesterday, Elizabeth was upset because her sister was visiting briefly and she was stuck on the ward and so the answer is always medication to any patient who becomes distressed on the ward. Imagine what it must be like to be held on a ward like this with two locked doors preventing escape. A few days ago I witnessed another patient charging at the doors in vain trying to break them down. No doubt she was covered in bruises in her attempts to break free from a ward that allows no fresh air or exercise and so Elizabeth’s visit to the optician which was allowed to get glasses fitted was a treat for her, having been locked up since Xmas and the only reason this was allowed was because a previous appointment with the hospital had to be cancelled because no-one took her and I only received a call too late to be able to take her to North Mid Hospital for her appointment myself.

So I am going to give examples of the care and treatment vulnerable patients receive on Suffolk Ward. I might add to this as it is important to highlight that this kind of treatment goes on within NHS care of the UK not just private sector.

I have heard that Elizabeth has been given prone injections which can be potentially life threatening.

I have heard that Elizabeth was chased round the ward by several male nurses who wanted to administer the depot injection. They grabbed hold of her and tried to take her handbag away and rip this off her shoulders. She retaliated and kicked one of them in the leg. They took her to a seclusion room and all four male nurses she did not know from other wards administered the injection and one kicked her in the leg in retaliation. I suppose using nurses from other wards is done to protect themselves but it has all got back to me.

I have heard on two occasions Elizabeth has been refused fresh air in the garden below.

Abuse is when a team of professionals overlook physical health needs yet NHS promote the very opposite of what is on offer under the MH and could not care less when a patient becomes obese through lack of fresh air and exercise. It is this rather than lack of priority of covid injections which is killing people like my daughter who is on max levels of drugs forcibly and brutally injected to the point needles break, is being ignored by doctors when there is conflict of opinion and ignored by the commissioners who refuse a CTR. Elizabeth is obese now – a size 24 through lack of exercise and fresh air with the excuse of Covid.

I have been left to explain what a CTR is to Elizabeth because she has no advocacy. Barnet Enfield and Haringey fund PowHer Icas who have done nothing to help my daughter. The CTR has been cancelled because of such lack of support and thanks to the involvement of NAS. Why fund an organisation such as PowHer Icas who do not want to get involved in this case and straight away I am thinking it is not just this case but others who are not being represented properly and are not being treated fairly.

I had to prompt Elizabeth to complete the forms for the CTR and asked that she sends them to her advocate through Nat Autistic Society and Elizabeth told me she had asked for an inspector from the CQC to attend.

The other thing is that doctors are not supposed to be racist or come out with comments that are inappropriate towards someone’s sexuality but there is absolutely no understanding towards this on Suffolk Ward as I found out.

I still have not been invited to the CTR but I understand Dr HM is chasing the forms that Elizabeth has sent to NAS already.

So once someone is on a depot injection they do not like taking the NHS brutally holds on to that person and treats them in the most cruel and despicable manner and totally ignore underlying physical health concerns as that person is treated like an object. That person is NOT protected under the MHA.

Reports for court purposes are written in such a way by professionals who want to keep hold of someone like Elizabeth whose “care” is costing £3000 + per week.

I have a letter in front of me from Judge M Sutherland Williams. “Personal misconduct relates to a member’s behaviour, for example a Judge shouting or speaking in a sarcastic manner or misuse of judicial status. Personal misconduct does not relate to how the tribunal member has managed a case of hearing or to any decisions or judgements made. ” In other words you have no hope in any complaints procedures and the law protects those in authority. It is not enough to say that a judicial office holder was rude. It is like a losing battle wherever you go as the protection goes towards officials and these officials and their decisions lead to the most weak and vulnerable people being abused. It is no wonder they have anger issues especially if there is a learning disability and autism identified by other professionals and ignored by the current treating team.

Then in defence he goes on to say “I am not entirely sure that the panel have been profusely critical and they have explained why they took the decision they did but appreciate that this may be a matter of interpretation. It would be helpful if you could explain on what you mean by “I have never encountered such disregard to the NR and patient. I am unclear what your experience is or what you are comparing it to./ I understand it can be unsettling if you are feeling ignored but was there anything specific that might amount to judicial misconduct that you are referring to?”

I have not bothered to respond and cannot emphasise on which court hearing I am referring to as I have been threatened with prison. What is upsetting is that these people of authority should be protecting people like my daughter from professionals who lie within court papers time and time again because of their ulterior motives and then Judges can threaten you with a prison sentence when you expose the truth honestly and transparently.

I get calls from my daughter to say she no longer wishes to be alive. All I hear is people panicking about Covid and a Government going on and on about vaccinations to the point I do not even look at the mainstream news any more. It is the same repetition whilst it is not on people’s minds what abuse is going on with the excuse of Covid to people like my daughter under the NHS.

Looking back to the past there was a Doctor who suddenly resigned as RC namely Dr KC in charge of Suffolk Ward. I had asked if I could have the assessment for Elizabeth on Professor Belinda Lennox’s research into antibodies attacking the immune system. He said “you scratch my back and I will scratch yours”. He chaired a CPA including other members of the family and said “if you do not choose your father as NR I will throw you out on the street homeless” . I got to hear about this from Elizabeth’s sister.

Being a abuse victim to be disturbed in the night with a male nurse entering a shared bedroom on the ward with another patient led to reaction of Elizabeth throwing the bags out and being dragged into a seclusion room to be forcibly injected by three members of staff on Suffolk Ward so forcibly her new slippers broke.

Abuse does not extend just to the patient but to their family if they complain and that abuse is done through an entire team backed by senior professionals leading to the very top of the Trust sticking together and protecting themselves and then bullying which amounts to being ignored and up against a wall of silence and labelled as vexatious instead of trying to tackle things face to face and coming to conclusion certain senior members of staff cover up their failings in this manner.

UPDATE 16 MARCH 2021.

I received a call from the distraught mother of J and S just now 13.11 16 March 2020

S is held prison at the hospital below and deprived liberty under:

Callington Road Hospital – NHS CHERRY WARD

https://www.nhs.uk/Services/Hospitals/MapsAndDirections/DefaultView&#8230;

Tel: 0117 919 5600.  Marmalade Lane, Brislington, Bristol, BS4 5BJ. Website: http://www.awp.nhs.uk/

This hospital has held S since just after Xmas Day and this is a hospital that fails to respect the family let alone Mental Health law. The Nearest Relative is his Mother who has been beside herself with concerns and worry and whenever she phones the hospital they do not involve her in any way and have ignored her as though she is an object rather than a person. Their callous behaviour has resulted in the Mother and NR suffering physical illness. It is bad that the Coronavirus Act is superseded to human rights by professionals who are entirely unaccountable and treat the relatives and vulnerable person under their care like nothing. Where are the human rights in the UK – such professionals need to be educated and the Government should be doing something about this situation where vulnerable people are being abused. So the mother of S received a call from him this morning by way of Facetime. Whilst on the phone two members of staff in the background could be heard speaking to S and telling him that he would be taken to view a home for him presumably today. When his mother telephoned the ward (CHERRY WARD) just now she spoke to the Lead Nurse and was told that she knew nothing about this. There have been many times when I have asked about things and staff say they know nothing when in fact they know more than they let on. I will keep you all informed.

The latest on J who is held at J Ward WSM is: “J Facetimed again in an even worse state. I couldn’t make out what he was saying he was so drugged. He said something about held down, injected and other drugs …. shouting …. he is in a really bad way. I don’t know what to do?”

PRIOR TO XMAS DAY

I never thought I would come across a Trust who seem to be even more ruthless than our local area in terms what we have experienced. Xmas is a special time for families but under the mental health professionals in the UK showed no respect towards patient or family in this respect. Here is our example of treatment under BEHMHTNHS on Xmas Day:

https://psychiatricabuseuk.com/2020/12/25/degrading-xmas-day-treatment-on-by-bed-management-at-chase-farm-hospital-enfield-suffolk-ward/ It was planned to send Elizabeth to a locked ward at Priory – a bed had been found at Darlington.

I had visited my friend in Bristol before Xmas to try to help sort out problems with her internet connection. I then returned back again to offer further help and J had decided to return to the family home.

I had met J before and attended his Tribunal. I was impressed as he seemed calm and happy and appeared to be doing fine; J has full capacity in his decision on wishing to return home. His flat was elsewhere in another area and had been broken into on numerous occasions which resulted in his decline. Every time the phone rang or there was a knock at the door J appeared on edge, a quite normal reaction considering the trauma he had been through and I had understanding of his fear of mental health professionals and why he avoided these people through fear of sectioning, of being taken away and forced back to his unsafe home environment, which is exactly what they tried to do but Avon and Wiltshire Partnership Trust professionals have shown they have no understanding of “best interest” or compassion towards patient or family. I am witness to the fact it was J’s wish to be at home where he was content and doing well because he felt safe there and that should have been respected and appreciated by AWP.

The mother of J herself once worked as a mental health nurse and has empathy and understanding in terms of communication and in fact has spoken to Elizabeth on several occasions. She also has knowledge on medication and the effects of too steep withdrawal. In actual fact this is a case where underlying physical health condition has been overlooked time and time again by professionals instead of referral to a specialist for physical healthcare.

Anyway I was so shocked to hear what happened next:

Just before Xmas they came flanked by Police with an unsigned warrant. Based on unfounded allegations, alleged to emanate from his sister (which was not the case), Professionals turned up unannounced at the family home demanding to take J away, against his wishes and to great distress of his parents just prior to Xmas Day. Shame on you AVON WILTSHIRE AND SOMERSET MH TRUST (your actions were totally unfounded). In terms of the Human Rights Act the following is applicable:

So I received a phone call from my friend who was in great distress advising that about six people turned up unannounced with an unsigned warrant to take her son J away just prior to Xmas Day. There was no respect for the fact the family were shielding and I am witness to the fact that J wanted to be at home and was of no risk to self or others.

After this, Xmas was ruined for the whole family and J remains on an acute MH ward to this day. I believe Avon Wiltshire and Somerset Partnership Trust wanted J to be on a CTO and on depot injections. It was not anyone from the immediate family who lived with J who had complained as I was witness to the fact the family were managing fine and that there were no problems, so questions need to be asked about the ulterior motive behind such allegations which came from outside of the immediate family. Presents remained unopened on Xmas Day, a time when a family should have enjoyed this time together.

I immediately wrote to Duncan Garner of Pals to complain about the ruthless actions of professionals from The Coast team of Avon & Wiltshire Partnership Trust.

I believe professionals tried to force return J back to his flat which had not been made safe and there were squatters in occupation.

J was then taken back to hospital (JWard, WSM) instead of being allowed back to the family home where he wanted to be.

Because J refused the depot injections J is still on the ward right now. Here is the message from his distraught mother who has had little contact up until now. J was forced to use the hospital phone as he was originally without a mobile and whenever you tried to contact him, you could not get through. Today J has contacted his mother and she told me she is concerned:

“I’m devastated, J just face-timed me ……….I’ve never seen him look so ill.   He is drooling, dribbling,  tells me he’s on haloperidol now too.  He is so fat  …..  his eyes he tells me he cannot close them……. I’ve been so ill myself I just don’t know what to do.

Just like me, in Elizabeth’s case, she is worried that J is being over-drugged and on multiple drugs. The RC is Dr CG of J Ward WSM.

The mother of J would have great understanding of psychiatric drugs being a MH nurse herself and well aware of the consequences of over-drugging and too steep a withdrawal. I have seen the effects of this myself when Elizabeth took herself off drugs too steeply.

Anyway with regard to Avon & Wiltshire Partnership Trust I will continue with my blog as this is not all they have done. To have your child (at whatever age) taken from you days before Xmas is shocking enough but Avon & Wiltshire Partnership Trust did not stop there and I will be featuring them further in my continuation of this blog as the world can learn by their shocking example.

JUST AFTER XMAS DAY

If that was not enough on the part of Avon Wiltshire and Somerset Partnership Trust having taken J away from home and family home before Xmas against his wishes, they did not stop there.

There was total confusion on their part with regard to correspondence addresses leading to breach of GDPR rules. Private and Confidential post of a personal nature was opened and read by others through being sent to wrong premises. There was not just confusion as to whom the correct Nearest Relative was but also as to whom the sister of J and his brother S was, whom Avon Wiltshire and Somerset MH Trust believed wrongly to be the NR. This ultimately led to unlawful detention under the MHA when it was in fact the mother of J and S who should have been consulted as she was in fact the NR. A member of staff, I believe to be an AMHP, from the Coast had resigned and paperwork had accumulated within her desk. This paperwork was not sent to the correct Nearest Relative who would have quite rightly so objected to sectioning and instead was sent to the wrong person at the wrong address. What a shambles!

It was just after Xmas Day when around six professionals arrived at the family home once again accompanied by Police with an unsigned warrant. This time they had come for the brother of J who has a neurological condition backed by medical reports which Avon Wiltshire and Somerset Partnership Trust have chosen to ignore. They took him away against his wishes on the basis of malicious allegations (not by his family).

Here is a drugs chart from 2017 for S, (J’s brother)

Amisulpride 400mg 3 x daily orally

Dexamethasone 8mg morning and lunchtime orally

Paracetamol 1gm four times a day orally

Lansoprazole gastro-resistant capsules 15mg every morning

Procyclydine 5 mg twice daily orally

Diazepam 2mg every morning orally

Zopiclone 7.5mg every evening orally

Folic acid 5mg every morning orally

Citalopram 30mg every morning

Colecalciferol 800 units once daily

Diazepam 4mg evening and bedtime

Cyanocobalamin 100 micrograms once daily

Diazepam 2mg when required orally

Vitamin B tablets compound strong 1 tablet every morning.

It is quite shocking that this level of prescribing is allowed to go on in the UK with no accountability. It is no wonder why patients die with this kind of treatment in mind. This is the kind of treatment given to vulnerable people under the MH in the UK by doctors whether under NHS or private sector.

It is all the more shocking when that person was known to have underlying physical health condition, nothing to do with a mental health condition and is currently held prisoner on a mental health ward right now and deprived of his liberty by Avon and Wiltshire Partnership Trust when the Nearest Relative was not consulted.

TW v Enfield Borough Council [2014] EWCA Civ 362, [2014 …

https://www.mentalhealthlaw.co.uk/TW_v_Enfield_Borough_Council_(2014&#8230;

S struck me as being someone highly intelligent and whilst to some people he might have appeared to lack communication skills, hopefully professionals will be better educated soon thanks to the Oliver McGowan Foundation and mandatory training for MH professionals. I could see he had capacity and knew what he wanted and if he did not like something could express himself to this effect. I knew that he would have wanted to stay at home just as J would have wanted this. Now their human rights have been abused and that of his immediate relatives.

Yesterday S made countless calls to his mother and I was witness to the calls as I was on the phone to her at the time. No way would S be calling his mother if as described by so called “professionals” under Avon Wiltshire and Somerset Partnership Trust if she had neglected or cruelly treated him in any way. He is obviously missing his mother and being at home.

A call from an outsider unconnected to the family has led to this situation but has not been properly investigated to justify such action. Police are taught never to judge a book by its cover and I believe this is what they have done without justification and backed “professionals” with complete disregard to human rights and the Equality Act.

Whilst I stayed with the family just before Xmas I noticed how S was able to make himself a drink, something to eat, was able to walk around freely and listen to what he wanted in terms of music/videos. He struck me as being someone of high intelligence and it shocked me that an AMHP was looking to deprive liberty. This AMHP I spoke to myself as I was very much a witness to the fact that neither J or S were in any way neglected or being abused and were very happy to remain in the family home.

So around six professionals had once again turned up based on what appeared to be unfounded malicious allegations by someone who had their own axe to grind, matter of which needed full investigation by Police still not undertaken at senior level. The family were shielding and understandably did not wish for anyone to enter their premises but one of these “professionals” from The Coast tried to jar the front door open with his foot leading to the father of S sustaining pain to his back.

Whilst I stayed with the family I noted food was delivered weekly and much thought had gone into the shopping and plenty money spent on this. The house-keeper would come and do cleaning and put away the food. S had improved to such an extent beyond recognition compared to when I first met him. He was able to walk around confidently and even go outside the family home surrounded by extensive land and was of no risk to himself or others.

Instead of asking whether the family needed support brutal professionals from Avon Wiltshire and Somerset Partnership Trust used heavy handed tactics with the support of Police who have themselves failed to respond to a specific request from the mother of S that would have led to an investigation. The support needed was a meeting that had been declined ie a Section 42 meeting rather than personal assessments when everything could have been accomplished with everyone who needed to be present. Quite frankly I normally would praise the police but cannot in this instance when a specific request had been ignored that needed full investigation at senior level and done independently by another Police Force.

A Section 42 meeting was not granted because social services wanted to carry out an assessment by visiting the family premises but the family are shielding and a virtual meeting such as this Section 42 would have been the answer to everything in terms of other serious related matters that needed resolution and investigation drawing everyone together in this case.

The treatment of the mother of J and S by professionals is apalling and I know both J and S would rather be at home just like Elizabeth would, rather than stuck 24/7 in a locked institution costing thousands of public money under the NHS by professionals who do not know the family and do not have a clue and have made some very serious mistakes in this case, not forgetting my own daughter Elizabeth.

Not only are Avon Wiltshire and Somerset Partnership Trust in breach of human rights but also the Equality Act and I can understand how the mother of J and S must feel and be beside herself with worry and concern – just look at the drugs prescribed previously. Where is the protection for vulnerable people such as these and their mother who happens to be the Nearest Relative and a caring decent parent who was once a mental health nurse herself and would never put her sons at risk or abuse/mistreat them in any way.

I would like to see a full investigation done by CQC and PHSO into this Trust and, bearing in mind the case the fact the NR was not consulted meaning unlawful detention (eg TW v LBE), both J and S returned back to the family home and that a Section 42 hearing be held to investigate this and other related matters of concern independently and I believe that J & S together with their mother should be compensated for their ordeal and mistreatment by “professionals” who should be caring and not abusive in their actions.

I will be adding further comments to this blog on AWP in due course as maybe J, his mother and even S might like to share their thoughts with regard to this shocking case.

In the meantime I would also like Mencap to be aware of the case of J & S who might need legal intervention and backing as in the case of Elizabeth a CTR done independently.

Elizabeth is still held prisoner on Chase Farm Hospital Suffolk Ward since May 2020 and denied fresh air and exercise.

Elizabeth would have been sent away to Priory Hemel Hempstead against her wishes for six months if it had not been for the intervention of Mencap/National Autistic Society.   

A CTR originally refused by local commissioners and autism assessment that was denied thanks to Nat Autistic Society and Mencap, is going ahead this week I believe. Still no advocate has been found.  This is  bad because Elizabeth needs support at her CTR with regard to communication.

I hope that the CTR something will help get Elizabeth heard and for her to be listened to for a change.  

Stuck on an acute amber categorised covid ward amongst other distressed patients is hardly the right environment for anyone to get well and she has been stuck there since October 2020 and incarcerated since May 2020 sent all over the place to various other institutions.  When she phones me I can hear in the background alarms going off and screaming.

Elizabeth is still not allowed visitors or leave since Xmas Day.   Now on maximum level of depot injection administered fortnightly,   Elizabeth’s weight has ballooned enormously and she is denied fresh air and exercise.   She is now a size 24 and has complained constantly about itchiness to her skin.

Last week’s appointment at the opticians to have glasses fitted was so exciting for Elizabeth as it was the first time she  was allowed out anywhere since Xmas Day and this was only facilitated as it was an appointment.  She was like small child and her calls commenced at 7.00 am asking me constantly when I was coming to take her off the ward.

At the weekends there is nothing to do on the wards and today Elizabeth’s sister visited as it Mother’s Day tomorrow.  Elizabeth’s attitude at first was one of distress as she does not want to be on the ward and she displayed this through stating she did not  want to see her sister at first and of course as no visits are allowed, unlike care homes, the only way we can see her is through a slit in the glass of the ward door.

It is not good to deny fresh air and exercise leading to patients becoming obese.   It seems like on such wards physical health is completely overlooked.  Elizabeth would be better off in her flat right now.

I am now going to turn my attention to another Trust, namely Avon Wiltshire and Somerset MH Trust who are unbelievable in how they have treated a family I know.  They seem even worse than BEHMHTNHS and that is saying something!  For them especially I am going to write a separate blog featuring Avon and Wiltshire Partnership Trust but here is a short preview:

“I’m devastated, J just face-timed me ……….I’ve never seen him look so ill.   He is drooling, dribbling,  tells me he’s on haloperidol now too.  He is so fat  …..  his eyes he tells me he cannot close them……. I’ve been so ill myself I just don’t know what to do.

I am shocked to hear that the subject mentioned above, J, is even in hospital.   He was abducted from the family home based upon what appears to be malicious allegations that he and his brother were being neglected which was not true.  The allegations were claimed to derive from his sister who does not live at the family home and who is ill but this was not true.   The reason J had returned to the family home was because his accommodation was unsafe with squatters/drug dealers frequently breaking in.   I had visited the family home and saw no sign of neglect or mistreatment.  What kind of people turn up to the family home of elderly parents who were shielding with an unsigned warrant to take away their son who wanted to be with his family for Xmas based upon unfounded allegations from someone who is not “family” or living on the premises and so therefore cannot comment.   I am going to continue with this on a separate blog called AVON AND SOMERSET PARTNERSHIP TRUST.  

  

I visited Chase Farm Hospital Enfield Friday morning concerned that Elizabeth did not seem to know about the CETR arranged for that afternoon. I understood Advocates contacted Elizabeth at last minute and she seemed to know nothing about the meeting.

I printed out the two pages on what questions she is likely to be asked. Elizabeth hates both questions and meetings so much and this was due to go on for most of the afternoon so I thought the questions and boxes where she could write things down were a good idea.

I could not see anyone from the CQC invited so I advised the CQC since Elizabeth has been segregated for practically a year now with little/no family contact.

The CETR is all about Elizabeth or so it should be. It is for Elizabeth to decide her future and where she wants to live and now she has even more choice than ever. I managed to find good carers Enfield Community Rehab failed to in 2 years leaving Elizabeth to go downhill. It is up to Elizabeth or so it should be. However it is very wrong when a doctor puts words into Elizabeth’s head “you do like to be with people don’t you”. Both doctor and care coordinator do not want Elizabeth going back to her flat but into care and sent out of area to another locked facility to establish her greater on medication. Well she is on max levels as it is. This was promised to be reduced but it has not been.

All this fuss about the covid vaccination but does anyone question overmedicating and deprival of physical health checks? They say that people with LD/autism die young but this is down to overmedicating in my opinion which they put down to natural causes or just lately covid.

Thomas Rawnsley- No natural causes. | finolamoss (wordpress.com)

It says do you feel safe – how can you when possessions go missing and two of these happen to be Birthday presents Suffolk Ward still have not compensated for. For once, all Elizabeth’s possessions are safe in her very own flat and she has nice furniture, there are no bed bugs or other residents to steal phones and her possessions.

So I made a fuss about the CETR taking place without a CQC representative because there really needs to be more than just recommendations in this case but a resolution after all these years.

Covid has meant abuse no fresh air or exercise to many held under the MHA. There have been no visits allowed and no leave granted since Xmas.

I have been to the hospital just now to take Elizabeth the things she asked for. I again asked to speak to her through the slit of glass in the door but how could I speak, when a member of staff stood over us. This I encountered at Elysium Thornford Park which is intrusive and degrading when I have seen another parent being treated differently. I told them it was degrading and intrusive. I could only hand the bag of things plus the CETR notes to Elizabeth through the nurse and wanted to talk about the appointments for physical health. I then had to phone the ward. I was told “I am only a nurse here” – it is rules of Chase Farm Hospital. So I said I felt discriminated against. I would rather these nurses be honest and tell me we are not allowing this in your case. “Following the meeting Elizabeth and her mother continued to have leave together in the hospital grounds in line with Government Guidelines.  However, it was noted that they were sitting together in the car park eating food in the car and that Ms Bevis had take her back to her house.  Since that time all leave with her mother has had to be stopped ;due to the risk of introducing covid to the ward.” https://psychiatricabuseuk.com/2020/12/25/degrading-xmas-day-treatment-on-by-bed-management-at-chase-farm-hospital-enfield-suffolk-ward/

Anyway we are now waiting for a new date for the CETR as Elizabeth should have been given time and assistance to prepare for this, something about further assessments being done. I thought a CETR was meant to be fair and I am glad it is cancelled for the time being and an inspector from CQC should be invited too in a case like this where there has been good cause to complain.

I do not know whether the C(E)TR will take place on Friday. Elizabeth does not even know herself and it seemed to be news to her that the C(E)TR was even taking place on Friday. I told her about it.

There are supposed to be advocates on the ward but every time I have spoken to Elizabeth I have got the impression she is without any support.

A meeting such as this that goes on all day so I have read would be terribly stressful to Elizabeth who hates meetings but lately has become more distressed at being stuck in hospital like a prisoner.

I as Nearest Relative only found out the C(E)TR by chance. I have been in touch with Nat Autistic Society regarding this but it was only when I wrote to Dr HM on Tuesday I received the link for the Teams meeting. It seemed as though NAS were having to chase up the hospital for news themselves by the looks of things.

Request for a C(E)TR was originally refused by the Commissioners who gave no reason except that only a CPA would be granted. I then desperately turned to Mencap and National Autistic Society. Elizabeth has a MH diagnosis that the current RC will not budge on whereas many other doctors have said she has Autism/LD and even brain injury is mentioned but other doctors opinions do not count with the current team whatsoever. This has led to Elizabeth becoming more and more distressed because no-one will listen to her. She has also said that no-one understands either.

It is coming up to a year now of incarceration (punishment she calls it) I would agree thoroughly. Punishment not just to her but to her family. There are times when Elizabeth says she no longer wants to live and that is why I fought to get her voice heard but a meeting such as this with a panel is like torture to Elizabeth and she has no independent support with her on the ward. The staff that sit with her through meetings are staff who write nastily behind her back and make her out to be dreadful. These same staff also write about her family and do everything they can to fail a tribunal. They are listened to by Judges who can be dismissive completely towards the family and in such private secret courts funded by public money cases are not always fairly heard and always the professionals opinions are not doubted. The reports are full of lies and errors and we have asked countless times for them to be amended.

When a vulnerable person such as Elizabeth telephones in distress and writes text messages and emails saying how unhappy she is, as a mother you try and speak up for that person who is surrounded by “professionals” who write so very nastily behind our backs. This has led to me being labelled myself yet again. All it takes a group of professionals to get together and start coming out with comments such as:

have harrassed

have threatened

have been personally abusive or verbally aggress towards staff dealing with your complaint

have in the course of addressing or raising a complaint had an excessive number of contacts with the trust placing unreasonable demands on staff

Persist in pursuing a complaint when the trust’s complaints procedure has been fully and properly implemented and exhausted, or it is not within the trust’s remit to investigate.

Are unwilling to accept documented evidence of treatment given as being factural eg drug records, manual or computer records, nursing records.

Intimidating

Using abusive or threatening language

“Deputy Director of Nursing and Head of Patient Experience have reviewed your communications with the trust and concluded that in order to ensure all concerns are responded to through a single avenue, all correspondence from you will be managed under the trust vexatious complaints policy”

This then means that you are faced with a wall of silence. I only found out about the C(E)TR by writing and chasing up because NAS did not seem to know. The person I wrote to was my avenue of contact from ECRT who is Manager of the team. No emails or correspondence has been responded to by this person and the next thing I had heard from the RC of Suffolk Ward directly about the C(E)TR but all got was the Teams link. I did not know who was who. Every email address of the attendees seemed to be from the NHS apart from one who I confirmed was the person of experience.

The C(E)TR panel consists of:

 • A chair person – the commissioner who pays for and monitors your care

• An expert by experience such as an autistic person, a person with a learning disability or a family carer

• A clinical expert such as a nurse or psychiatrist

People in long-term segregation may have an Independently Chaired C(E)TR. This panel will be chaired by an independent person who is chosen by the Department of Health and Social Care. I am assuming this is why someone from a different CCG is Chair.

The usual panel members will still be there along with someone who works for the Care Quality Commission (CQC). I could not see anyone from the Care Quality Commission amongst the attendees as this would give some reassurance.

The only things that will be different in your C(E)TR are:

• If you have a video meeting, you can see people who cannot visit you on a screen instead of in person. It is your choice whether or not you want to be seen on the screen. It will be done by video link.

• If the C(E)TR is by phone, you will not be able to see those people but you will be able to hear them.

• The C(E)TR might not take a full day, because of other urgent work NHS staff are doing at the moment.

We will make sure people get a C(E)TR quickly if they are:

• At risk of going into a mental health, learning disability or autism hospital. • Children and young people in these types of hospitals. Yes the RC of Suffolk Ward wanted to send Elizabeth away to yet another locked facility (Priory) not sure if this was Darlington or Hemel Hempstead as a bed had been found for Elizabeth at Darlington on Xmas Eve.

• People cared for away from other people for a long time – this is called long-term segregation Elizabeth would come into this category as this is what their plans are to take her away from her family to establish her greater on medication.

• Anyone admitted to this type of hospital during the coronavirus outbreak who is autistic or has a learning disability. Yes unfortunately this applies to Elizabeth because although she does not have an official diagnosis so many other experts have said this is what she has but she has been denied a proper assessment for so very long.

If you are in this sort of hospital, your commissioner will keep in touch with you and your care providers in other ways too, to make sure you are safe and well cared for. All the commissioners in this area have done is spend a fortune on public money on very wrong facilities one after the other who have done nothing for her except make her more traumatised.

A good C(E)TR is as important as ever We understand this may be a difficult time for you. You may feel on your own more because of the outbreak, or you may be unable to meet family or friends. Perhaps your staff support has changed? Or your healthcare, or your education? If so, how does this make you feel? At this time, it is more important than ever to check you are OK and getting good quality care, education and treatment. “I am stuck here now. I wish I was never born” .

Top tips for a video C(E)TR We want to make sure your C(E)TR is as good as it can be.

• A video meeting can feel a bit strange if you have not done one before • Many people prefer them to a phone call, once they get used to them

• If you are new to video meetings, why not try one with someone you trust? • Planning for your meeting will help you a lot on the day. How can that be when surrounded by a team of professionals not on her side and with their own agenda.

• Please use the planning form in this booklet to help you get ready for your meeting. I doubt whether Elizabeth has this booklet or anyone on the ward to go through it with her.

• You can record what you want to say if you like – in writing, pictures or a film clip to show at your C(E)TR. I have tried to encourage Elizabeth to write some things down but now I do not know if the meeting will go ahead on Friday. This was all organised by the RC of Suffolk Ward.

• If you need any help or have any questions or requests, please ask someone who supports you. How can this be when Elizabeth has no help.

• Don’t forget to sign the consent form! I am assuming Elizabeth has signed the consent form.

The main questions in a C(E)TR can help with this. We have improved these questions, called Key Lines of Enquiry, after feedback about them. For now, we will also ask a question about how you are getting on during the coronavirus outbreak. The Key Lines of Enquiry questions are:

• Am I safe? No not in an environment where possessions go missing and male staff alone give the depot.

• Am I in the right place for my care (education) and treatment? absolutely not in fact she is piling on weight and now a size 24 deprived of fresh air/exercise for many months on an Amber Covid Assessment Ward.

• Are my plans for my future going well? No because Elizabeth is destined for a locked ward away from home and family when she wanted to come back to her flat and that is because ECRHT state they cannot find anyone to work with Elizabeth but I HAVE MANAGED TO. In the flat below is a lady who has full support in the community with support workers and I met with one of them who I was most impressed with. I have relaid this to the team but as usual no response. The carer not only has years of experience but knows Elizabeth and seems to have all of the right communication skills but consistently ECRHT have denied direct payments and so Elizabeth is stuck on a ward when she could be back in her own home thanks to ECRHT and this is costing over £3000 a week to hold Elizabeth when it should be trialled to see how things work out with the new carers.

• Is everything supporting me to have the best life I can – now and in the future? Absolutely not and never has been ever. These are professionals who dismiss other professionals opinions and Elizabeth will never ever be treated fairly.

• And the coronavirus question: Is everything being done to support me well during the coronavirus outbreak? The Coronavirus has been the excuse to stop all leave and visits and the excuse to abuse human rights. For instance I gave a list of physical health appointments – I believe Elizabeth was taken to the dentist but this requires hospital for wisdom tooth removal none of which I believe has been arranged. The other appointment was Ophthalmology at a local hospital. She was not taken and a message was left too late for me to take her myself because whilst I am banned from visiting a health appointment is a different matter apparently. Whilst I am being punished for so called non social distancing on Xmas Day when I was not advised of changes and a bed had been found at Darlington so it was proposed to move her, all of a sudden I am allowed to take her to the eye appointment at the local hospital despite Covid.

A C(E)TR is not part of your day to day care.

It is a review, or a check, to make sure your care is going well. And to see if it can be made better. The “care” is completely wrong and is NOT GOING WELL. I am not sure anything can be rectified if under the current MH team in this area.

Most people find them really helpful. But Elizabeth will find it all a huge ordeal as she hates meetings.

You can invite family carers, an advocate or someone important to you if you want to. You may be offered a C(E)TR another time. I am invited but I dont know what is happening now since I had advised NAS that PowHer Icas had finished with Elizabeth and they are aware of lack of support from this organisation from their own enquiries.

You will be asked for your consent each time. There is conflict of opinion on capacity. A capacity assessment should never be carried out by the treating team who can manipulate matters purely on the basis of stating she has “no capacity” when it suits them and bearing in mind Elizabeth says they do not understand her – there are language barriers and this is why a speech and language therapist should be appointed.

Your commissioner has a duty to offer you a C(E)TR. But this was refused by the local Commissioners and the reason is because Elizabeth has a MH diagnosis they do not wish to budge on for the sake of convenience and to continue the current treatment for the rest of her life in locked facilities. It is only thanks to Mencap and NAS/Access that Elizabeth is being listened to.

You should be asked for your consent at least 2 weeks before the C(E)TR happens. This must have been given but if the consent had not been given bearing in mind the files stated no capacity then I as POA would have given consent instead as any glimmer of hope right now in getting fairness for the first time ever would be great.

This is consent to share your information with the C(E)TR panel and people who are, or will be, involved in your care. In the community it might happen in an emergency, and you might get less time to decide. If you say yes, this means you give your consent.

It means you are happy to have a review of your care. If Elizabeth sought help from the Integrated Learning Team on her own accord prior to Xmas 2019 this shows she would desperately like to be heard.

If you do not want to have a C(E)TR, you can say no. Saying no will not affect your day to day care. God forbid!! What care exactly when her physical health is not being attended to. It is also distressing to be on a noisy ward as Elizabeth has sensory issues.

What sort of information will the C(E)TR find out about? • Your care and treatment now. This is locked up, denied freedom, denied exercise, denied right to family contact outside the ward, denied an autism assessment. Being mocked, being coerced and gaslighted.

• Your health, including your mental health and physical health. Going downhill now a size 24 obese due to lack of fresh air and exercise.

• Your medication if you take any: Forced injections administered fortnightly where she is pinned down and sometimes this is by men only. She is on max levels of drugs that are doing nothing for her. The drugs are causing irritation to her skin and pains to her fingers. The drugs are making her ill physically and very up and down emotionally. Why put her on max levels??? to ensure she never comes off them and that is the reason they are holding on to her for a matter of convenience.

• Any health and care plans for you in the future – Elizabeth has consistently been denied her care plan. She has also been denied her drugs chart to look at. The fact she was not informed of the C(E)TR and was asking me for news sums up how vulnerable people are treated, not forgetting their families – in other words like nothing.

• Where you live now and where you would like to live. Elizabeth has said many times she would like to go back to her flat but this is being denied by her care coordinator from ECRHT. They have failed to provide any care in the community from the very start when she acquired the flat. The excuse was no-one could work with her and she must be on medication. So they have got their way but despite this, there is still the excuse that no-one can work with her so how comes I have found carers so easily who have the necessary skills to work with my daughter and who even know her and are not put off. For ten years + I kept my father with Alzheimers out of care by providing the care myself through direct payments. All I had to do was keep the paperwork. My father paid partly for care himself but through the night late afternoon he needed additional care which worked out much cheaper than residential care. In Elizabeth’s case, it would appear they do not wish to provide care in the community yet have plenty of money to take me to court for displacement of NR and I was happy to represent myself in court and would do so again if necessary. So funding comes from a different source and they are saving money in their Department:

I have in front of me an email from NJ to a previous care coordinator copying in MA, LO and LS dated 07 November 2012 at 10:23 – it says “I have no doubt this patient would benefit from a hospital environment. If that is the desired plan from the MDT then what is required is that we need to demonstrate that the MDT has identified the exact needs and the expectation of what the MDT wants from a placement and the timescales for this to happen, also what they want from the providers eg weekly report copies of all assessment, how often care coordinator will visit the patient, also what will be checked on at each CPA etc. What the panel do not want to see is that this aspect of identifying the needs and how this would be managed or not, done by the potential placement. We need to skilfully set the agenda of what is required to bring about a change for the patient. Hence the request for a medical review in order to obtain a comprehensive plan regards to what medical input would be helpful that we cannot manage in the community. The same can be said regards to the assessment as to why 24 hour supported accommodation is not working either is staying with her mother.

We have to be much more robust regards to why institutional care would absolutely benefit this patient. In a nutshell it is all about providing why your assessment as Care Coorindator is paramount in setting the agenda of care needs required.

My apologies for not directing you more clearly however my meeting with both LS and Malcolm has sharpened my understanding as to what is required for a case to be successful at panel.

Kind regards

Norma

The previous care coordinator states “presently her life is at risk of severe self harming behaviour and getting into trouble with the police she could be end up dead.”

The above care coordinator, MA, was one who we know well and was involved in Cambian Wales alongside another social worker EJ and the above comments show how little they know of my daughter and how on earth can they judge as to what is best interest when I have proven through four months care I provided privately that Elizabeth could be helped by professionals who take the right approach and in the right environment. Elizabeth came back unrecognisable and was allowed to go out on her own in Australia and France.

• What makes you feel anxious or upset In Elizabeth’s case not being listened to and the threat of being sent far away and being left behind “don’t leave me behind if you move”.

• What helps you feel well – peace and quiet surrounded by animals not professionals who do not understand or in a noisy environment such as Suffolk Ward.

• Anything which is about keeping you and other people safe. Nothing

The C(E)TR report can only be shared with:

• You and people important to your C(E)TR.

• People in charge of your health and social care who are or will be providing or paying for your care.

• People in confidential care meetings like Care Programme Approach (CPA) meetings or Mental Health Tribunals.

• If the report says you or others might not be safe, some or all of your C(E)TR report may be shown to people who the law says must look at it.

• Everyone must keep your information private and safe.

Anonymous information from a C(E)TR may be shared with other people in the NHS. This information does not include your name or any other information which could identify you. Anonymous information helps to make sure that people’s care and treatment and C(E)TRs are going well.

The C(E)TR panel wants to know what you think about your care. They will ask other people too.

Use the planning form that follows to get ready for your meeting • Ask a family member, staff or advocate if you need help with this

Planning my C(E)TR My name is _________________________________________ The date of my C(E)TR ____________________________________

  1. What is important to me eg. hobbies, friends, family, every day? 2.
  2. Am I safe?
  3. Am I in the right place for my care treatment? What is good now? What could be better?
  4. Are my plans for my future going well?
  5. Is everyone supporting me to have the best life I can – now and in the future?
  6. Is everything being done to support me well during the coronavirus outbreak? How to make my C(E)TR go well Such as, things you do or do not want to happen on the day, any help you need with the meeting, how you want people to communicate with you.
  7. On the day of my C(E)TR The next two pages are about making your C(E)TR good on the day. ✓ You are the most important person in your C(E)TR. ✓ The C(E)TR panel, staff and others will do everything they can to make it a good experience for you. ✓ They understand what it feels like to have a C(E)TR. ✓ You can ask questions whenever you like. ✓ You can say if you need anything or if there is a problem. Things that might help
  8. • It is OK if you do not know if you want to talk to people on the C(E)TR panel.
  9. • You can take your time to decide on the day.
  10. • You can talk to just one person if that feels better.
  11. • Or you can say hello first and then decide if you want to speak to people later.
  12.  • You can have someone with you like a staff member when you talk to people. Or you can meet them on your own. You can choose.
  13.  • It is OK if you want to stop or have a break.
  14. • You can say if you are unhappy about being on video yourself and just speak to them without this.
  15. • It helps the panel if they can talk to you as well as people providing your care. And if they can talk to your family carer or advocate.
  16. • You can talk to the C(E)TR panel in the way that is best for you.
  17. • You can speak to them in private if you like.
  18. • You can say what matters to you and what you think.
  1.  Care and Treatment Review Feedback Form This form can be used by anyone who took part in a C(E)TR. Your information will be kept safe. You don’t have to tell us your name or date of your C(E)TR, but if there was a problem this will help to get it sorted out. Please fill in this form and send it to the chairperson of the C(E)TR. Name Date of C(E)TR If you want someone to reply, how can they get in touch with you?
  • Did you get enough help and information before the C(E)TR?
  • What was the C(E)TR like on the day?
  • What would have made the C(E)TR better?
  • What difference did the C(E)TR make for you?
  • Have you got any other comments or questions?
  • My C(E)TR Report You should receive your C(E)TR report from the C(E)TR chair within 2 weeks of your C(E)TR. It should be written in words you understand. If anything is not clear, ask someone to help. You can write what needs to happen here if it is useful. This can help you check that these things are happening on time. What needs to happen? By when and by who?

I have fought to get the C(E)TR for Elizabeth who has constantly said she is not being listened to. I am concerned that she will not be prepared for the C(E)TR due to lack of support from any advocates.

My comments would reflect hers and this is a meeting where she will be centre of attention – my concerns are that it will all be too much for her as she does not like meetings and her voice will not be heard because even though there are representatives of other NHS Trusts I cannot see anyone from the CQC or from outside of the NHS apart from one independent panel member of experience. I am worried that this may not be done fairly in the absence of the CQC or advocate.

I doubt whether I will have much input because this is after all Elizabeth’s chance but the fact is that when I have reflected her opinions this has led to the current situation of no communication from even the points of contact I am allowed as being labelled a vexatious complainant when all I have done is echo what Elizabeth has been saying and have tried to fight to get her treated fairly.

I keep an open mind as to whether this can be achievable by way of a C(E)TR but I have made a decision myself about my life and where I want to be bearing in mind the effect all this is having on my health and what happened to me a year ago.

Whilst I am posting this regarding a C(E)TR I do so because I had never heard of this before. It is only down to social media contacts who have advised me but because Elizabeth has been denied the autism diagnosis in all this time, this would not normally apply to her but now there is such conflict of opinion from other professionals this has proven necessary. I wish to thank Mencap and National Autistic Society and Access for their assistance.

Whilst I have written openly I would not of course be writing about the actual C(E)TR itself and naming panel members etc.

I do think such things as a Tribunal should be made open and transparent though without the threat of prison.

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