MY LETTER AND A WALL OF SILENCE BY THE APPGs

From: Susan Bevis
To: Feryal.Clark@parliament.uk; Danny.kruger.mp@parliament.uk, crisp@parliament.uk, hollinss@parliament.uk, mashams@parliament.uk, sandwichj@parliament.uk, abrahamsd@parliament.uk, steve.brine@parliament.uk, contact@lucypowell.org.uk, ruth.edwards.mp@parliament.uk, lee.anderson.mp@parliament.uk, darren.henry.mp@parliament.uk, ben.bradley.mp@parliament.uk, nadia.whittome.mp@parliament.uk, lilian.greenwood.mp@parliament.uk, mark.spencer.mp@parliament.uk, brendan.clarkesmith.mp@parliament.uk, tom.randall.mp@parliament.uk, robert.jenrick.mp@parliament.uk, alex.norris.mp@parliament.uk, legal@mind.org.uk, media@rethink.org, PHE.Enquiries@phe.gov.uk, england.contactus@nhs.net, enquiries@cqc.org.uk, jeff.smith.mp@parliament.uk, ben.spencer.mp@parliament.uk, dean.russell.mp@parliament.uk, rachael.maskell.mp@parliament.uk, marco.longhi.mp@parliament.uk, meachermc@parliament.uk, tylerc@parliament.uk, neil.coyle.mp@parliament.uk, matt.western.mp@parliament.uk, helen.hayes.mp@parliament.uk, munira.wilson.mp@parliament.uk, wera.hobhouse.mp@parliament.uk, duncan@duncanbaker.org.uk, jane.stevenson.mp@parliament.uk, danielpoulter.mp@parliament.uk, evansn@parliament.uk, paulmblomfield.mp@parliament.uk, watkinsm@parliament.uk, bradleykj@parliament.uk, lisa.cameron.mp@parliament.uk, johnny@johnnyforplymouth.co.uk, greythompsont@parliament.uk, stephen@stephenmcpartland.co.uk, appgsecretariat@disabilityrightsuk.org, corbynj@parliament.uk, angela.crawley.mp@parliament.uk, jodowsett@durham.anglican.org, northbournec@parliament.uk, loughtont@parliament.uk, john.glen.mp@parliament.uk, caroline.ansell.mp@parliament.uk, lammyd@parliament.uk, alex.cunningham.mp@parliament.uk, cheryl.gillan.mp@parliament.uk, touhigjde@parliament.uk, jonathan.reynolds.mp@parliament.uk, thangam.debbonaire.mp@parliament.uk, justinmadders.mp@parliament.uk, huw.merriman.mp@parliament.uk, rees4neath@outlook.com, jim.shannon.mp@parliament.uk, cat.smith.mp@parliament.uk, uddinm@parliament.uk, warner@parliament.uk

I have written to those above because I feel strongly about human rights of the weak and vulnerable, their parents and carers being ignored because of Covid which should never take precedence to human rights. I recently took part in a really interesting Webinar by the British Institute of Human Rights. The human rights of patients under LD/autism and MH are being ignored along with their parents and carers. The Webinar was very informative and revealed that Human Rights Act precedes the Coronavirus Act and so it would appear that hospitals, care homes should have been greater clarity in this respect.

The Human Rights Act | Equality and Human Rights Commission

Coronavirus Act 2020 – Legislation.gov.uk

I decided to write an email to all the APPGs I felt were relevant to Elizabeth’s case ie,

DRUG PRESCRIBING/HUMAN RIGHTS/DISABILITY/AUTISM/PARENTS AND FAMILIES/MENTAL HEALTH

Whilst I do not think the lists were 100% up to date and some emails addresses incorrect, I only received 1 response from

Johnny For Plymouth

It is worrying that only The Rt Hon Johnny Mercer MP has cared to respond. Maybe email addresses have changed in light of Covid and working from home but all the same, APPGs representing the public seem unconcerned. So just in case I have excluded anyone or the email addresses are incorrect/ names appearing above no longer involved due to out of date lists, then it is good to ensure everyone is included as our experience may be reflective of others who have sons/daughters/relatives held under MHA/secure units/care homes etc deprived of their liberty who can associate with breach of human rights. Should anyone else wish to lobby their MPs and APPGs they are welcome to use this as a template.

Dear All

I attach letter for which I would be grateful for your kind consideration, especially as the attached example is just one of many cases affected similarly that I am in touch with.

I am very pleased about the reforms to the Mental Health Act but my considerations are those for which other carers would be pleased to see addressed also.

Yours faithfully

Susan Bevis

Susan Bevis (Mother, Carer, POA, Nearest Relative and McKenzie Friend)

The long overdue government press release today over the intention to reform the Mental Health Act is welcomed especially in view of the increasing numbers of patients detained on mental health wards in the pandemic.  

“Major reform of the Mental Health Act will empower individuals to have more control over their treatment and deliver on a key manifesto commitment.”  

Background information:

Four principles, developed by the review and in partnership with people with lived experience, will guide and shape the approach to reforming legislation, policy and practice. These are:

  1. Choice and autonomy – ensuring service users’ views and choices are respected
  2. Least restriction – ensuring the act’s powers are used in the least restrictive way
  3. Therapeutic benefit – ensuring patients are supported to get better, so they can be discharged from the act
  4. The person as an individual – ensuring patients are viewed and treated as rounded individuals

https://www.gov.uk/government/news/landmark-reform-of-mental-health-laws

However, there also needs to be a major rethink of the mis-prescription and withdrawal of psychotropic and neuroleptic drugs that have little or no therapeutic value.  These drugs are known to be the major cause of physical and mental disorders in “career” patients who have originally sought help for emotional distress and have then been neurologically damaged by these drugs.

The Case for Neuroleptics Reducing Recovery from 80% to 5%  

This shows how important it is to try to keep people from being put on the neuroleptics if at all possible. This is what Robert Whitaker has been saying since he published Mad In America in 2002, and all of the evidence since then has just reinforced this conclusion.

Finally, a word about words. You will notice I use the word “neuroleptic” rather than “antipsychotic.” The reason for this is that neuroleptics don’t have antipsychotic properties for most people. They just disable people to the point where they are not so troubling. “Neuroleptic” was the original name and means “seize the brain.” This is an accurate description, while “antipsychotic” is marketing propaganda.

Mental health survival kit and withdrawal from psychiatric drugs (2020)

This book will help people with mental health issues survive and come back to a normal life. The general public believes that drugs against depression and psychosis and admission to a psychiatric ward are more often harmful than beneficial, and this is also what the science shows. Even so, most people continue taking psychiatric drugs for many years. This is mainly because they have developed drug dependence. The psychiatrists and other doctors have made hundreds of millions of people dependent on psychiatric drugs and yet have done virtually nothing to find out how to help them come off them safely again, which can be very difficult. The book explains in detail how harmful psychiatric drugs are and tells people how they can withdraw safely from them. It also advises about how people with mental health issues may avoid becoming psychiatric “career” patients and lose 10 or 15 years of their life to psychiatry.

https://en.wikipedia.org/wiki/Risperidone

The British National Formulary recommends a gradual withdrawal when discontinuing antipsychotic treatment to avoid acute withdrawal syndrome or rapid relapse.[38] Some have argued the additional somatic and psychiatric symptoms associated with dopaminergic super-sensitivity, including dyskinesia and acute psychosis, are common features of withdrawal in individuals treated with neuroleptics.[39][40][41][42] This has led some to suggest the withdrawal process might itself be schizomimetic, producing schizophrenia-like symptoms even in previously healthy patients, indicating a possible pharmacological origin of mental illness in a yet unknown percentage of patients currently and previously treated with antipsychotics. This question is unresolved, and remains a highly controversial issue among professionals in the medical and mental health communities, as well as the public.[43]


  1.  BMJ Group, ed. (March 2009). “4.2.1”. British National Formulary (57 ed.). United Kingdom: Royal Pharmaceutical Society of Great Britain. p. 192. ISSN 0260-535X. Withdrawal of antipsychotic drugs after long-term therapy should always be gradual and closely monitored to avoid the risk of acute withdrawal syndromes or rapid relapse.
    1. ^ Chouinard G, Jones BD (January 1980). “Neuroleptic-induced supersensitivity psychosis: clinical and pharmacologic characteristics”. The American Journal of Psychiatry. 137 (1): 16–21. doi:10.1176/ajp.137.1.16PMID 6101522.
  2. ^ Miller R, Chouinard G (November 1993). “Loss of striatal cholinergic neurons as a basis for tardive and L-dopa-induced dyskinesias, neuroleptic-induced supersensitivity psychosis and refractory schizophrenia”. Biological Psychiatry. 34 (10): 713–38. doi:10.1016/0006-3223(93)90044-EPMID 7904833S2CID 2405709.
  3. ^ Chouinard G, Jones BD, Annable L (November 1978). “Neuroleptic-induced supersensitivity psychosis”. The American Journal of Psychiatry. 135 (11): 1409–10. doi:10.1176/ajp.135.11.1409PMID 30291.
  4. ^ Seeman P, Weinshenker D, Quirion R, Srivastava LK, Bhardwaj SK, Grandy DK, et al. (March 2005). “Dopamine supersensitivity correlates with D2High states, implying many paths to psychosis”. Proceedings of the National Academy of Sciences of the United States of America. 102 (9): 3513–8. Bibcode:2005PNAS..102.3513Sdoi:10.1073/pnas.0409766102PMC 548961PMID 15716360.
  5. ^ Moncrieff J (July 2006). “Does antipsychotic withdrawal provoke psychosis? Review of the literature on rapid onset psychosis (supersensitivity psychosis) and withdrawal-related relapse”. Acta Psychiatrica Scandinavica. 114 (1): 3–13. doi:10.1111/j.1600-0447.2006.00787.xPMID 16774655S2CID 6267180.

My 34 year old daughter is currently imprisoned under the MHA at Chase Farm Hospital Enfield (Suffolk Ward).   Suffolk Ward is an acute “Amber” categorised mental health ward where no leave or visitors are permitted due to Covid restrictions.  Disturbingly, under current lockdown there is disregard to basic human rights of fresh air and exercise. My daughter has had no fresh air or exercise since Xmas Day alongside all other female patients on Suffolk Ward; however male patients from other wards get regular escorted breaks outside in the fresh air.  My daughter spends much of her time alone in her room.  She has become obese, now size 24 from 16.  The ward is noisy, alarms sounding constantly, doors slamming and screaming.  I have requested an OT Level 3 Sensory Assessment but understand this could not be done.  I have provided headphones to relieve her distress as sound is magnified to her and unbearable.   Many activity groups have been cancelled due to Covid.   I am concerned my daughter’s human rights are being breached along with others on the female only ward Suffolk, under Barnet Enfield and Haringey MH Trust.  I am writing to you all as the Chief Executive Officer of BEHMHT has failed to respond to my MP since July 2020.  I have been labelled vexatious by the Chief Medical Officer and Chief Nurse whilst avenues of complaint have been blocked.

My daughter was admitted to hospital in May 2020 and sent to 3 x PICUS out of area, held in seclusion several times for up to a week.  Care at private sector facilities cost a fortune ie £28,000 for just 5 weeks and none of this “care” has benefitted my daughter, a trauma victim who has complex PTSD. Physical health and important appointments also ignored.

Since Tier 4 no outdoor leave has been granted but following yesterday’s webinar with BIHR it would appear there needs to be clearer guidance to Trusts on their protocol as the Human Rights Act should supersede the Coronavirus Act surely.

My concerns are:

Reports prepared for court purposes contain errors and lies which are never corrected.

My daughter is being forced out of area to yet another locked facility and has been advised she cannot return to her private flat where no care was provided in the first place.

Reckless prescribing.     My daughter is “treatment resistant” ie a poor/non metaboliser and reckless prescribing is what led to the death of Oliver McGowan.  It would appear no lessons have been learned.  There needs to be accountability.

So far zero benefit achieved from facilities such as:

  • Royal Bethlem Beckenham (Nat Psychosis Unit)
  • Cambian Wales
  • Phoenix House, Northampton 
  • Cygnets, Stevenage, Beckton, Godden Green
  • Edgware Unit
  • Huntercombe Roehampton
  • St Pancreas Hospital
  • Elysium Thornage Park

Next planned is Priory Hemel Hempstead against my daughter’s wishes as she wants to go home. (UPDATE: although attempts have been made to persuade Elizabeth regarding this next planned placement, some good news is thanks to the involvement of Mencap/NAS and Access – finally a CTR is being considered and an autism assessment after all these years). Perhaps the APPGs could get together on this as you should not have to go to the lengths I have had to in order to be fairly treated and no-one should be refused an assessment OR CTR when there is huge conflict of opinion.

 Below are my recommendations for improvement for your consideration:

  • Closed courts made transparent and accountable at all levels
  • Legal aid for cases of abuse/discrimination of human rights
  • Greater scrutiny of CCGs and their provision of care and treatment
  • Greater scrutiny of CEOs of Trusts and Councils.
  • End of “Out of Area” long term facility placements with emphasis on provision of local community care.  
  • Scrutiny on over-prescribing and stricter control/accountability to prescribers.
  • Mandatory P450 liver enzyme tests through Liverpool University.
  • Physical health paramount  under secondary care.
  • Legal Reform on forced treatment under secondary care;  suitable facilities for prescribed drug withdrawals where iatrogenic harm
  • Greater choices to facilities ie, care farms/therapeutic communities
  • Inclusion of family and open dialogue
  • Complex trauma assessments and appropriate therapeutic treatment.
  • CTRs /proper assessments given.
  • Fresh air and exercise accommodated whilst under covid restrictions.
  • Integration into the community better supported.
  • Greater financial support to unpaid carers.
  • Supported Living and Housing standards closely scrutinised
  • Independent accreditation on quality of services/accountability
  • Correct PPE in acute MH settings and ATUs
  • Choice to patients under secondary care on doctors and treatment
  • More suitable respite facilities/to shorten length of hospital stay under MH

https://www.bihr.org.uk/bihrs-communites-of-practice

———- Original Message ———-
From: Susan Bevis <susanb25@virginmedia.com>
To: cmiller@bihr.org.uk
Date: 12 February 2021 at 16:22
Subject: Today’s Webinar on Human Rights

Dear Carlyn

I thoroughly enjoyed today’s webinar on the Human Rights Act.

I can see that my local area (Barnet Enfield and Haringey MH Trust are well and truly in breach of the Human Rights Act  

The HRA places a legal duty on public bodies (and those delivering a “function of public nature”) throughout the UK to respect, protect and fulfil human rights across their actions, decisions, policies and services. The duty on public officials has three parts:

  1. Respect: duty to not breach human rights.
  2. Protect: duty to take action to safeguard people’s rights.
  3. Fulfil: duty to have the right processes and procedures in place, and to investigate when things have gone wrong.


This duty has not changed during the Covid-19 pandemic and any decisions made by a public body, including in health and social care settings, must respect and protect human rights.

Importantly, the HRA is a foundational law. This means that all other UK laws should be compatible with the HRA, both on paper and in practice. This includes laws on health and social care across the UK, such as: theSocial Services and Well-being (Wales) Act 2014in Wales, theCare Act 2014in England, theMental Health (Care and Treatment) (Scotland) Act 2003in Scotland and theHealth and Social Care (Reform) Act (Northern Ireland) 2009in Northern Ireland.


There are 16 rights in the Human Rights Act, including:  

  • Article 2 –  No life as held prisoner on a locked acute ward at Chase Farm Hospital Enfield.  No quality of life.  No fresh air, no exercise, resulting in massive weight gain, no access to appropriate physical health care – list of physical health appointments ignored and no response given to emails.
  • Art 3 –  Torture ie, forced drugging without informed consent (men administering whilst in seclusion – no female nurse present. Degrading treatment on Xmas Day surrounded by many professionals as a bed had been found in Darlington (Priory) but no-one communicated this fact.
  • Art 5 Right to liberty/security –  security being her flat and right to see her family.   Professionals do not want her to return to her independent flat.   All her possessions secure for the first time. 
  • Art 6 – Right to a fair trial.  How can there ever be fairness when file reports for court are full of errors and in some cases lies.
  • Art 7 – “why am I being punished Mum” –  Denial of LD/autism assessment, ignoring report on complex PTSD/ relevant and drug treatment being forced over many years.  Punishment extended to family, particularly mother who insists her daughter was raped under care for which she has substantial records. Attempts to sever contact with mother.  Example of punishment:  “all leave with the mother has been cancelled due to the mother not complying with social distancing and risk of bringing Covid on the ward risking spread to others   Only on Xmas Day were changes to leave advised ie, no further leave granted due to Covid by bed management.  The most degrading treatment followed whilst off ward when we were threatened/intimidated by many staff members.  Discrimination:  a nurse wore no mask in confined space at a recent tribunal but unfounded allegations directed towards her mother who DID wear a mask outside of the building.  Past placements as far as Wales (from London) where displacement of NR attempted and restricted telephone contact.  Being declined ground leave because her mother is being punished for alleged non-social distancing on Xmas without foundation/evidence. 
  • Art 9  – freedom of speech/expression ridiculed since professionals do not understand and misinterpret her, which they then label as a so called disorder. 
  • Art 14 –  Discrimination re:   The right to peaceful enjoyment of your property  *No to Section 117 ” is stated in a previous care plan.

EXAMPLES OF BREACH OF HUMAN RIGHTS UNDER BEHMHT

ART 3: Torture   ie,   forced   drugging   without   informed consent – (men only administering depot injections whilst in seclusion.  Degrading treatment on Xmas Day surrounded by   many   professionals   as   a   bed   had   been   found   in Darlington (Priory) but no-one communicated this fact.

ART 5:  Right to liberty/security –   Security being her independent flat and right to see her family.   Professionals do not want her to return to her independent flat.       

All her possessions secure for the first time whereas under care possessions lost.

ART 6:  – Right to a fair trial.    

How can there be fairness when file reports for court are full of errors and in some cases lies and especially when reminded that I could be sent to prison if I dared to talk about the Hearing. Such Hearings should be open and transparent in my opinion as the Nearest Relative as after all this is paid for out of public funds.

ART 7: “Why am I being punished Mum?”    

Denial of LD/autism assessment, ignoring report on complex PTSD/Autism and forced drug treatment being forced over many years.

Punishment also extended to family, especially those who disagree, when evidence on terrible abuse under care exposed in records ignored.     

Example   of   punishment   by   unfounded allegations: “all leave with the mother has been cancelled due to the mother not complying with social distancing and risk of spreading Covid on the ward to others” On Xmas Day  changes to leave ie, no further leave granted due to Covid by bed management.  The most degrading treatment followed.

Discrimination:    a nurse wore no mask   in   confined   space   during   a   recent   tribunal   but allegations directed towards her mother who DID wear a mask  outside   the   hospital.        

Past   placements  as   far  away as Wales   (from   London)   and   constant   attempts   at displacement   of   NR   plus   restricted   telephone contact.

Being declined ground leave because her mother is being punished without foundation/evidence.

ART 9: freedom   of   speech/expression   ridiculed   since professionals   did   not   understand   and   misinterpretation resulted in wrongful labelling as a so called disorder/illness.

ART 14: – Discrimination re:   

Right to peaceful enjoyment of your property   – declined  

 *No to Section 117 ” – previous care plan.

I know I am not alone in experiencing the above examples or similar and as there has  confusion   over   Government   Guidlines and legislation v Covid legislation on social distancing/leave/visiting rights, I have made a template for anyone else wishing to write to the APPGs to ensure these and other issues I may have omitted are addressed. I have had no choice but to post this to Twitter in the hope that something can be done as, after all, in a so called democratic country, there should not be such widespread abuse of human rights to the weak and vulnerable.

So what can the APPG’s can do collectively bearing in mind all these issues bearing in mind these issues are closely related and when your MP has tried to get response from CEOs and no-one is bothering to respond then this leaves no choice but to contact the APPGs?

If I I have omitted anyone in this respect for the APPGs I have mentioned I would be grateful to hear so that I can update and amend accurately.

Your attention would be greatly appreciated.

Yours faithfully

Susan Bevis

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