Archive

Monthly Archives: February 2021

From: Susan Bevis
To: Feryal.Clark@parliament.uk; Danny.kruger.mp@parliament.uk, crisp@parliament.uk, hollinss@parliament.uk, mashams@parliament.uk, sandwichj@parliament.uk, abrahamsd@parliament.uk, steve.brine@parliament.uk, contact@lucypowell.org.uk, ruth.edwards.mp@parliament.uk, lee.anderson.mp@parliament.uk, darren.henry.mp@parliament.uk, ben.bradley.mp@parliament.uk, nadia.whittome.mp@parliament.uk, lilian.greenwood.mp@parliament.uk, mark.spencer.mp@parliament.uk, brendan.clarkesmith.mp@parliament.uk, tom.randall.mp@parliament.uk, robert.jenrick.mp@parliament.uk, alex.norris.mp@parliament.uk, legal@mind.org.uk, media@rethink.org, PHE.Enquiries@phe.gov.uk, england.contactus@nhs.net, enquiries@cqc.org.uk, jeff.smith.mp@parliament.uk, ben.spencer.mp@parliament.uk, dean.russell.mp@parliament.uk, rachael.maskell.mp@parliament.uk, marco.longhi.mp@parliament.uk, meachermc@parliament.uk, tylerc@parliament.uk, neil.coyle.mp@parliament.uk, matt.western.mp@parliament.uk, helen.hayes.mp@parliament.uk, munira.wilson.mp@parliament.uk, wera.hobhouse.mp@parliament.uk, duncan@duncanbaker.org.uk, jane.stevenson.mp@parliament.uk, danielpoulter.mp@parliament.uk, evansn@parliament.uk, paulmblomfield.mp@parliament.uk, watkinsm@parliament.uk, bradleykj@parliament.uk, lisa.cameron.mp@parliament.uk, johnny@johnnyforplymouth.co.uk, greythompsont@parliament.uk, stephen@stephenmcpartland.co.uk, appgsecretariat@disabilityrightsuk.org, corbynj@parliament.uk, angela.crawley.mp@parliament.uk, jodowsett@durham.anglican.org, northbournec@parliament.uk, loughtont@parliament.uk, john.glen.mp@parliament.uk, caroline.ansell.mp@parliament.uk, lammyd@parliament.uk, alex.cunningham.mp@parliament.uk, cheryl.gillan.mp@parliament.uk, touhigjde@parliament.uk, jonathan.reynolds.mp@parliament.uk, thangam.debbonaire.mp@parliament.uk, justinmadders.mp@parliament.uk, huw.merriman.mp@parliament.uk, rees4neath@outlook.com, jim.shannon.mp@parliament.uk, cat.smith.mp@parliament.uk, uddinm@parliament.uk, warner@parliament.uk

I have written to those above because I feel strongly about human rights of the weak and vulnerable, their parents and carers being ignored because of Covid which should never take precedence to human rights. I recently took part in a really interesting Webinar by the British Institute of Human Rights. The human rights of patients under LD/autism and MH are being ignored along with their parents and carers. The Webinar was very informative and revealed that Human Rights Act precedes the Coronavirus Act and so it would appear that hospitals, care homes should have been greater clarity in this respect.

The Human Rights Act | Equality and Human Rights Commission

Coronavirus Act 2020 – Legislation.gov.uk

I decided to write an email to all the APPGs I felt were relevant to Elizabeth’s case ie,

DRUG PRESCRIBING/HUMAN RIGHTS/DISABILITY/AUTISM/PARENTS AND FAMILIES/MENTAL HEALTH

Whilst I do not think the lists were 100% up to date and some emails addresses incorrect, I only received 1 response from

Johnny For Plymouth

It is worrying that only The Rt Hon Johnny Mercer MP has cared to respond. Maybe email addresses have changed in light of Covid and working from home but all the same, APPGs representing the public seem unconcerned. So just in case I have excluded anyone or the email addresses are incorrect/ names appearing above no longer involved due to out of date lists, then it is good to ensure everyone is included as our experience may be reflective of others who have sons/daughters/relatives held under MHA/secure units/care homes etc deprived of their liberty who can associate with breach of human rights. Should anyone else wish to lobby their MPs and APPGs they are welcome to use this as a template.

Dear All

I attach letter for which I would be grateful for your kind consideration, especially as the attached example is just one of many cases affected similarly that I am in touch with.

I am very pleased about the reforms to the Mental Health Act but my considerations are those for which other carers would be pleased to see addressed also.

Yours faithfully

Susan Bevis

Susan Bevis (Mother, Carer, POA, Nearest Relative and McKenzie Friend)

The long overdue government press release today over the intention to reform the Mental Health Act is welcomed especially in view of the increasing numbers of patients detained on mental health wards in the pandemic.  

“Major reform of the Mental Health Act will empower individuals to have more control over their treatment and deliver on a key manifesto commitment.”  

Background information:

Four principles, developed by the review and in partnership with people with lived experience, will guide and shape the approach to reforming legislation, policy and practice. These are:

  1. Choice and autonomy – ensuring service users’ views and choices are respected
  2. Least restriction – ensuring the act’s powers are used in the least restrictive way
  3. Therapeutic benefit – ensuring patients are supported to get better, so they can be discharged from the act
  4. The person as an individual – ensuring patients are viewed and treated as rounded individuals

https://www.gov.uk/government/news/landmark-reform-of-mental-health-laws

However, there also needs to be a major rethink of the mis-prescription and withdrawal of psychotropic and neuroleptic drugs that have little or no therapeutic value.  These drugs are known to be the major cause of physical and mental disorders in “career” patients who have originally sought help for emotional distress and have then been neurologically damaged by these drugs.

The Case for Neuroleptics Reducing Recovery from 80% to 5%  

This shows how important it is to try to keep people from being put on the neuroleptics if at all possible. This is what Robert Whitaker has been saying since he published Mad In America in 2002, and all of the evidence since then has just reinforced this conclusion.

Finally, a word about words. You will notice I use the word “neuroleptic” rather than “antipsychotic.” The reason for this is that neuroleptics don’t have antipsychotic properties for most people. They just disable people to the point where they are not so troubling. “Neuroleptic” was the original name and means “seize the brain.” This is an accurate description, while “antipsychotic” is marketing propaganda.

Mental health survival kit and withdrawal from psychiatric drugs (2020)

This book will help people with mental health issues survive and come back to a normal life. The general public believes that drugs against depression and psychosis and admission to a psychiatric ward are more often harmful than beneficial, and this is also what the science shows. Even so, most people continue taking psychiatric drugs for many years. This is mainly because they have developed drug dependence. The psychiatrists and other doctors have made hundreds of millions of people dependent on psychiatric drugs and yet have done virtually nothing to find out how to help them come off them safely again, which can be very difficult. The book explains in detail how harmful psychiatric drugs are and tells people how they can withdraw safely from them. It also advises about how people with mental health issues may avoid becoming psychiatric “career” patients and lose 10 or 15 years of their life to psychiatry.

https://en.wikipedia.org/wiki/Risperidone

The British National Formulary recommends a gradual withdrawal when discontinuing antipsychotic treatment to avoid acute withdrawal syndrome or rapid relapse.[38] Some have argued the additional somatic and psychiatric symptoms associated with dopaminergic super-sensitivity, including dyskinesia and acute psychosis, are common features of withdrawal in individuals treated with neuroleptics.[39][40][41][42] This has led some to suggest the withdrawal process might itself be schizomimetic, producing schizophrenia-like symptoms even in previously healthy patients, indicating a possible pharmacological origin of mental illness in a yet unknown percentage of patients currently and previously treated with antipsychotics. This question is unresolved, and remains a highly controversial issue among professionals in the medical and mental health communities, as well as the public.[43]


  1.  BMJ Group, ed. (March 2009). “4.2.1”. British National Formulary (57 ed.). United Kingdom: Royal Pharmaceutical Society of Great Britain. p. 192. ISSN 0260-535X. Withdrawal of antipsychotic drugs after long-term therapy should always be gradual and closely monitored to avoid the risk of acute withdrawal syndromes or rapid relapse.
    1. ^ Chouinard G, Jones BD (January 1980). “Neuroleptic-induced supersensitivity psychosis: clinical and pharmacologic characteristics”. The American Journal of Psychiatry. 137 (1): 16–21. doi:10.1176/ajp.137.1.16PMID 6101522.
  2. ^ Miller R, Chouinard G (November 1993). “Loss of striatal cholinergic neurons as a basis for tardive and L-dopa-induced dyskinesias, neuroleptic-induced supersensitivity psychosis and refractory schizophrenia”. Biological Psychiatry. 34 (10): 713–38. doi:10.1016/0006-3223(93)90044-EPMID 7904833S2CID 2405709.
  3. ^ Chouinard G, Jones BD, Annable L (November 1978). “Neuroleptic-induced supersensitivity psychosis”. The American Journal of Psychiatry. 135 (11): 1409–10. doi:10.1176/ajp.135.11.1409PMID 30291.
  4. ^ Seeman P, Weinshenker D, Quirion R, Srivastava LK, Bhardwaj SK, Grandy DK, et al. (March 2005). “Dopamine supersensitivity correlates with D2High states, implying many paths to psychosis”. Proceedings of the National Academy of Sciences of the United States of America. 102 (9): 3513–8. Bibcode:2005PNAS..102.3513Sdoi:10.1073/pnas.0409766102PMC 548961PMID 15716360.
  5. ^ Moncrieff J (July 2006). “Does antipsychotic withdrawal provoke psychosis? Review of the literature on rapid onset psychosis (supersensitivity psychosis) and withdrawal-related relapse”. Acta Psychiatrica Scandinavica. 114 (1): 3–13. doi:10.1111/j.1600-0447.2006.00787.xPMID 16774655S2CID 6267180.

My 34 year old daughter is currently imprisoned under the MHA at Chase Farm Hospital Enfield (Suffolk Ward).   Suffolk Ward is an acute “Amber” categorised mental health ward where no leave or visitors are permitted due to Covid restrictions.  Disturbingly, under current lockdown there is disregard to basic human rights of fresh air and exercise. My daughter has had no fresh air or exercise since Xmas Day alongside all other female patients on Suffolk Ward; however male patients from other wards get regular escorted breaks outside in the fresh air.  My daughter spends much of her time alone in her room.  She has become obese, now size 24 from 16.  The ward is noisy, alarms sounding constantly, doors slamming and screaming.  I have requested an OT Level 3 Sensory Assessment but understand this could not be done.  I have provided headphones to relieve her distress as sound is magnified to her and unbearable.   Many activity groups have been cancelled due to Covid.   I am concerned my daughter’s human rights are being breached along with others on the female only ward Suffolk, under Barnet Enfield and Haringey MH Trust.  I am writing to you all as the Chief Executive Officer of BEHMHT has failed to respond to my MP since July 2020.  I have been labelled vexatious by the Chief Medical Officer and Chief Nurse whilst avenues of complaint have been blocked.

My daughter was admitted to hospital in May 2020 and sent to 3 x PICUS out of area, held in seclusion several times for up to a week.  Care at private sector facilities cost a fortune ie £28,000 for just 5 weeks and none of this “care” has benefitted my daughter, a trauma victim who has complex PTSD. Physical health and important appointments also ignored.

Since Tier 4 no outdoor leave has been granted but following yesterday’s webinar with BIHR it would appear there needs to be clearer guidance to Trusts on their protocol as the Human Rights Act should supersede the Coronavirus Act surely.

My concerns are:

Reports prepared for court purposes contain errors and lies which are never corrected.

My daughter is being forced out of area to yet another locked facility and has been advised she cannot return to her private flat where no care was provided in the first place.

Reckless prescribing.     My daughter is “treatment resistant” ie a poor/non metaboliser and reckless prescribing is what led to the death of Oliver McGowan.  It would appear no lessons have been learned.  There needs to be accountability.

So far zero benefit achieved from facilities such as:

  • Royal Bethlem Beckenham (Nat Psychosis Unit)
  • Cambian Wales
  • Phoenix House, Northampton 
  • Cygnets, Stevenage, Beckton, Godden Green
  • Edgware Unit
  • Huntercombe Roehampton
  • St Pancreas Hospital
  • Elysium Thornage Park

Next planned is Priory Hemel Hempstead against my daughter’s wishes as she wants to go home. (UPDATE: although attempts have been made to persuade Elizabeth regarding this next planned placement, some good news is thanks to the involvement of Mencap/NAS and Access – finally a CTR is being considered and an autism assessment after all these years). Perhaps the APPGs could get together on this as you should not have to go to the lengths I have had to in order to be fairly treated and no-one should be refused an assessment OR CTR when there is huge conflict of opinion.

 Below are my recommendations for improvement for your consideration:

  • Closed courts made transparent and accountable at all levels
  • Legal aid for cases of abuse/discrimination of human rights
  • Greater scrutiny of CCGs and their provision of care and treatment
  • Greater scrutiny of CEOs of Trusts and Councils.
  • End of “Out of Area” long term facility placements with emphasis on provision of local community care.  
  • Scrutiny on over-prescribing and stricter control/accountability to prescribers.
  • Mandatory P450 liver enzyme tests through Liverpool University.
  • Physical health paramount  under secondary care.
  • Legal Reform on forced treatment under secondary care;  suitable facilities for prescribed drug withdrawals where iatrogenic harm
  • Greater choices to facilities ie, care farms/therapeutic communities
  • Inclusion of family and open dialogue
  • Complex trauma assessments and appropriate therapeutic treatment.
  • CTRs /proper assessments given.
  • Fresh air and exercise accommodated whilst under covid restrictions.
  • Integration into the community better supported.
  • Greater financial support to unpaid carers.
  • Supported Living and Housing standards closely scrutinised
  • Independent accreditation on quality of services/accountability
  • Correct PPE in acute MH settings and ATUs
  • Choice to patients under secondary care on doctors and treatment
  • More suitable respite facilities/to shorten length of hospital stay under MH

https://www.bihr.org.uk/bihrs-communites-of-practice

———- Original Message ———-
From: Susan Bevis <susanb25@virginmedia.com>
To: cmiller@bihr.org.uk
Date: 12 February 2021 at 16:22
Subject: Today’s Webinar on Human Rights

Dear Carlyn

I thoroughly enjoyed today’s webinar on the Human Rights Act.

I can see that my local area (Barnet Enfield and Haringey MH Trust are well and truly in breach of the Human Rights Act  

The HRA places a legal duty on public bodies (and those delivering a “function of public nature”) throughout the UK to respect, protect and fulfil human rights across their actions, decisions, policies and services. The duty on public officials has three parts:

  1. Respect: duty to not breach human rights.
  2. Protect: duty to take action to safeguard people’s rights.
  3. Fulfil: duty to have the right processes and procedures in place, and to investigate when things have gone wrong.


This duty has not changed during the Covid-19 pandemic and any decisions made by a public body, including in health and social care settings, must respect and protect human rights.

Importantly, the HRA is a foundational law. This means that all other UK laws should be compatible with the HRA, both on paper and in practice. This includes laws on health and social care across the UK, such as: theSocial Services and Well-being (Wales) Act 2014in Wales, theCare Act 2014in England, theMental Health (Care and Treatment) (Scotland) Act 2003in Scotland and theHealth and Social Care (Reform) Act (Northern Ireland) 2009in Northern Ireland.


There are 16 rights in the Human Rights Act, including:  

  • Article 2 –  No life as held prisoner on a locked acute ward at Chase Farm Hospital Enfield.  No quality of life.  No fresh air, no exercise, resulting in massive weight gain, no access to appropriate physical health care – list of physical health appointments ignored and no response given to emails.
  • Art 3 –  Torture ie, forced drugging without informed consent (men administering whilst in seclusion – no female nurse present. Degrading treatment on Xmas Day surrounded by many professionals as a bed had been found in Darlington (Priory) but no-one communicated this fact.
  • Art 5 Right to liberty/security –  security being her flat and right to see her family.   Professionals do not want her to return to her independent flat.   All her possessions secure for the first time. 
  • Art 6 – Right to a fair trial.  How can there ever be fairness when file reports for court are full of errors and in some cases lies.
  • Art 7 – “why am I being punished Mum” –  Denial of LD/autism assessment, ignoring report on complex PTSD/ relevant and drug treatment being forced over many years.  Punishment extended to family, particularly mother who insists her daughter was raped under care for which she has substantial records. Attempts to sever contact with mother.  Example of punishment:  “all leave with the mother has been cancelled due to the mother not complying with social distancing and risk of bringing Covid on the ward risking spread to others   Only on Xmas Day were changes to leave advised ie, no further leave granted due to Covid by bed management.  The most degrading treatment followed whilst off ward when we were threatened/intimidated by many staff members.  Discrimination:  a nurse wore no mask in confined space at a recent tribunal but unfounded allegations directed towards her mother who DID wear a mask outside of the building.  Past placements as far as Wales (from London) where displacement of NR attempted and restricted telephone contact.  Being declined ground leave because her mother is being punished for alleged non-social distancing on Xmas without foundation/evidence. 
  • Art 9  – freedom of speech/expression ridiculed since professionals do not understand and misinterpret her, which they then label as a so called disorder. 
  • Art 14 –  Discrimination re:   The right to peaceful enjoyment of your property  *No to Section 117 ” is stated in a previous care plan.

EXAMPLES OF BREACH OF HUMAN RIGHTS UNDER BEHMHT

ART 3: Torture   ie,   forced   drugging   without   informed consent – (men only administering depot injections whilst in seclusion.  Degrading treatment on Xmas Day surrounded by   many   professionals   as   a   bed   had   been   found   in Darlington (Priory) but no-one communicated this fact.

ART 5:  Right to liberty/security –   Security being her independent flat and right to see her family.   Professionals do not want her to return to her independent flat.       

All her possessions secure for the first time whereas under care possessions lost.

ART 6:  – Right to a fair trial.    

How can there be fairness when file reports for court are full of errors and in some cases lies and especially when reminded that I could be sent to prison if I dared to talk about the Hearing. Such Hearings should be open and transparent in my opinion as the Nearest Relative as after all this is paid for out of public funds.

ART 7: “Why am I being punished Mum?”    

Denial of LD/autism assessment, ignoring report on complex PTSD/Autism and forced drug treatment being forced over many years.

Punishment also extended to family, especially those who disagree, when evidence on terrible abuse under care exposed in records ignored.     

Example   of   punishment   by   unfounded allegations: “all leave with the mother has been cancelled due to the mother not complying with social distancing and risk of spreading Covid on the ward to others” On Xmas Day  changes to leave ie, no further leave granted due to Covid by bed management.  The most degrading treatment followed.

Discrimination:    a nurse wore no mask   in   confined   space   during   a   recent   tribunal   but allegations directed towards her mother who DID wear a mask  outside   the   hospital.        

Past   placements  as   far  away as Wales   (from   London)   and   constant   attempts   at displacement   of   NR   plus   restricted   telephone contact.

Being declined ground leave because her mother is being punished without foundation/evidence.

ART 9: freedom   of   speech/expression   ridiculed   since professionals   did   not   understand   and   misinterpretation resulted in wrongful labelling as a so called disorder/illness.

ART 14: – Discrimination re:   

Right to peaceful enjoyment of your property   – declined  

 *No to Section 117 ” – previous care plan.

I know I am not alone in experiencing the above examples or similar and as there has  confusion   over   Government   Guidlines and legislation v Covid legislation on social distancing/leave/visiting rights, I have made a template for anyone else wishing to write to the APPGs to ensure these and other issues I may have omitted are addressed. I have had no choice but to post this to Twitter in the hope that something can be done as, after all, in a so called democratic country, there should not be such widespread abuse of human rights to the weak and vulnerable.

So what can the APPG’s can do collectively bearing in mind all these issues bearing in mind these issues are closely related and when your MP has tried to get response from CEOs and no-one is bothering to respond then this leaves no choice but to contact the APPGs?

If I I have omitted anyone in this respect for the APPGs I have mentioned I would be grateful to hear so that I can update and amend accurately.

Your attention would be greatly appreciated.

Yours faithfully

Susan Bevis

I want to share first of all the fact that Elizabeth had previously said “no to the Priory”. She was meant to be moved there in January. What has put things on hold has been the wonderful intervention by Mencap and the National Autistic Society.

I would praise both Mencap and NAS highly plus Access who have got involved in this case.

Elizabeth is still on Suffolk Ward. She is being deprived basic human rights of fresh air and exercise. All the male patients are allowed out in the front of the building with staff but the female patients are not. Surely this alone is discrimination.

There is a small garden down below that backs onto the male wards. I have asked Elizabeth several times if she has asked whether she can have fresh air. She has asked on two occasions only to be refused. This is surely not right under the Human Rights Act? What is going on on Suffolk Ward Chase Farm Hospital Enfield? I am also left wondering whether any of the physical health appointments have been arranged. I will be checking on this tomorrow.

I visited Chase Farm Hospital Enfield MH last week out of concern as none of us in the family could get through to Elizabeth by phone. I was worried her phone had gone missing or else the chip had gone missing. I was relieved to see on this occasion that neither applied so I sat outside Suffolk Ward charging the phone in the foyer before giving this back to Elizabeth. However prior to this, the ward could not find the Samsung Charger which was a brand new one at £15.00. Luckily I had kept the receipt for this and other items that had gone missing. I am uncertain as to the headphones but Elizabeth had her Birthday on the ward recently and I had bought her presents. I had also brought up a brand new square shaped tuppaware container which contained cakes. These have gone missing. It all adds up doesn’t it. The clothes were around £30, the charger another £15 and tuppaware container £6.00. As far as I am aware this is all that is missing but there could well be more things which is why I would wish to see any discharge form to check if Elizabeth is sent on anywhere else. Such a ward is supposed to be a place of safety???? patients often wander into Elizabeth’s room unchecked during the night. There does not seem to be supervision or else perhaps the ward is short staffed. This ward – an acute ward – costs about £3000 per week. Fact is none of these items would have gone missing if Elizabeth was back home and in the files they say they do not wish her to go home or be in my company when I offered to move into the flat to begin with in order to help.

Elizabeth has been incarcerated since May 2020. Blame is put solely on her but in fact there needs to be proper examination into who in fact is really to blame. It is seen as “best interest” that Elizabeth be on this ward??? It is further seen as best interest that Elizabeth is sent out of area yet again – a fourth time to the Priory Hemel Hempstead a Locked Rehab at what must be costing at least £100000 for six months – correct me if I am wrong!

What has dismayed me today is that disturbing things have been going on on Suffolk Ward that have got back to me.

Thanks to Mencap and thanks to NAS/Access for the first time ever Elizabeth stands the chance of being treated fairly. Whilst I believe Elizabeth has complex PTSD backed by Dr Bob Johnson, Dr Mukherjee and private MH professionals Elizabeth has always thought she is autistic and this is after all mentioned throughout the files. Certainly this was the very first diagnosis before the unscientific label of “Paranoid Schizophrenia” was given. Of course this latter label has a treatment that goes with it of a lifetime of forced drugging on antipsychotic “medication”. It would be most convenient if the team just plodded on prescribing Clopixol depot at huge level every two weeks. On top of this they try to give addictive Lorazepam and refuse her sight of her drugs charts which surely she has the right to see. Whilst they try in vain to say she has no capacity that is far from true which shows how these professionals have no idea and should never be allowed to carry out an assessment of any such kind because of conflict of interest.

So today I have just heard through Elizabeth’s Sister that she was coerced into attending a video link interview with the Priory. Well what on earth is going on Suffolk Ward? You know very very well that a CTR has been called for and also an autism assessment through the Bethlem. Why have you instigated this video linked interview and put Elizabeth under pressure to attend when she has told everyone in the family she DOES NOT WANT TO GO TO THE PRIORY???? Elizabeth’s comments to her sister was “I had no choice but to attend”. Elizabeth also said that the RC was making comments in a round-about way about her going away to this institution.

So perhaps Suffolk Ward would like to comment and explain why they should be doing this now in light of the intervention of Mencap and Access??? knowing full well that Elizabeth has said “NO”.

I came to the ward today with a witness as so many possessions have gone missing. I have never come across this before on any other ward.

I was told there was no manager on duty? Surely there must have been a Manager on duty. I had therefore no choice but to speak to another member of staff SF who has his office on the ground floor in the foyer.

I briefly saw the OT – these are people I can praise but I was told by SF that he had a meeting to go to and could not spare time to see me for a proper appointment so I just gave him the receipts of the missing items and he asked if Elizabeth had signed any disclaimer??? What if she did have. It is not my idea for Elizabeth to be on this £3000+ a week acute ward therefore it is only right that every penny be refunded.

The other thing I would point out apart from breach of human rights is that not everyone is treated fairly. I have already mentioned about patients – not all are granted any fresh air breaks. This is breach of Human Rights Art 3.

There is also breach of Human Rights Art 8 in terms of visiting. Last week I witnessed another parent being invited between the closed double doors – whilst not on the ward itself that parent had quality time being able to have close contact with her daughter whilst I waited outside because they could not find the charging lead in the office of the samsung charger anywhere.

It is really awful what is going on under PUBLIC sector NHS MH wards – just as bad if not worse than private sector. There is much written about private sector but when a patient is sent away out of area by a paying Authority which in this case is Barnet Enfield and Haringey MH Trust then it is the paying Authority who have great involvement behind the scenes. This is often overlooked when horrors of abuse/deaths are unveiled under private sector care institutions but the first thing I think of is who is paying for this out of taxpayer’s money.

There are advocates on the ward that are supposed to be independent however they do not seem to be in touch with Elizabeth and treating her fairly but then this is paid for by the Local Authority therefore I have to think if they are not keen to involve themselves in this case how can they possibly be independent.

Anyway Elizabeth has made it known to the whole family “I DO NOT WANT TO GO TO THE PRIORY”. Hope that is now clear to the RC and team of Suffolk Ward Chase Farm Hospital Enfield.

Whilst writing and having been labelled a vexatious complainant by those at the very top of the Trust can we please have that teams meeting I requested months ago. I am happy for as many people as possible to be included. Would you like me to arrange? If so I will need everyone’s email addresses. I look forward to receiving these swiftly.

Today Elizabeth is 34 years of age and she is still on Suffolk Ward, Chase Farm Hospital Enfield.

Sadly she cannot be home to celebrate with her family. Like so many others Elizabeth is incarcerated on a locked ward. She is not a danger to self or others and her “medication” has been changed because before this several doctors were knowingly prescribing Risperidone or equivalent Paliperidone despite the fact she was found allergic to it. Since coming back to Enfield from Elysium Thornford Park Elizabeth has not been in any trouble on the ward and keeps herself to herself.

The phone started to ring very early again and again asking when I would be coming to the hospital which is just a fifteen minute drive away. With cards and presents I turned up at the hospital and have to pass to staff the presents as I am not allowed to visit and Elizabeth is not allowed to even go out in the grounds for fresh air or a walk. In fact none of the other patients on Suffolk Ward are allowed out with the excuse of Corona Virus however I believe this is in breach of the Human Rights Act. Just because of Covid this should not affect the basic human rights of patients being taken out in the grounds for fresh air and exercise. Elizabeth has ballooned in weight since being held prisoner on Suffolk Ward since Xmas Day but the only good thing is she at least has her phone with her and I can just about see her through a slit in the glass. In contrast, the mens wards are allowed different rules and are taken out for regular fresh air breaks escorted by staff.

I heard she was given a Birthday cake on the ward today but last year Elizabeth was on this same ward when she was hauled into hospital by unlawful paperwork which reminds me, I must look into this for compensation like I did last time but to my shock and horror Elizabeth received a cheque for just £1 from Weightmans Solicitors. This time there was about 5 days of unlawful detention. Last year I prepared a buffet of food for the whole and it was like a party atmosphere but now, due to covid, the atmosphere is very much sombre. Today I had been dealing with a cat who I adopted found lifeless on allotments – sadly he died but I later made two fresh cream cakes for Elizabeth to share with all the patients on Suffolk Ward.

Elizabeth misses her cat and pigeons and often asks me to send her photos. Since Elizabeth has been in hospital I have made enormous improvements to her flat. She has new furniture, new curtains put up. shelving and everything is immaculate. Now I am very concerned. I could tell Elizabeth was not very happy yesterday by the tone of her voice and she had either received a visit from Dr M or had been called to see her. The doctor told her she would not be going back to her flat. This flat is the best accommodation Elizabeth has ever had. Everything provided under supported housing/living has been sub-standard. I was concerned at what they would do following an on line meeting prior to complete lockdown. It was clear her care coordinator and Responsible Clinician from Suffolk Ward were against Elizabeth returning to her flat and this was her wish. They are also against her staying at the flat in my company when I was prepared to move in temporarily now that I am no longer working and have time on my hands. The flat was only ever meant to be a stop gap until retirement when I had planned to move away from the area. I would agree that Elizabeth should have independent accommodation but since acquiring the flat no care was ever put in place. The care coordinator excuses herself by stating that an agency refused to work with Elizabeth on risk factor because she was not on medication. However I think it is their protocol and preference to place someone in care according to a past email I have seen in file records addressed to a previous care coordinator “it is all about proving yourself as CC as to why we must be more robust as to the fact institutional care is best for this lady” – words to this effect. It seems like best interest in their eyes comes before the Human Rights Act which I have today learned a lot about.

Since acquiring the independent flat in July 2019 – no care put in place and “no to S117” mentioned in past care plan. Instead of integrating people into the community they guide them to their own funded centres and Elizabeth made friends that brought her down. The friendships she made had negative effect on her. It has been hard to watch Elizabeth go downhill then being dragged back to Suffolk Ward on unlawful paperwork. They then released her at the height of lockdown. I was furloughed back then and was able to support and help her even though I should not have been going out even. The decline in Elizabeth was around January of that year when I underwent a major operation and was in intensive care. No support given to Elizabeth during this time. So now they want to take her home away and put her back into care so it would seem. All of this has had a knock-on effect on my health and has affected others in the family too.

Following a visit to her GP during the height of lockdown Elizabeth was sectioned and sent to three PICUs in a short space of time, all of whom failed to assess her for autism. It seems hopeful thanks to Mencap and NAS that this now seems a possibility. Whilst I believe Elizabeth has complex PTSD she believes she has autism In six months and vast sums of money spent no proper autism assessment has ever been carried out. All I hope is that a proper assessment will not involve Elizabeth having to go in to an Assessment Treatment Unit – the equivalent of a PICU except that some vulnerable people are detained for life in such institutions and this is NOT what I want for Elizabeth.

Today in the morning I took part in a zoom conference with the British Institute of Human Rights which was very interesting and on line were a lot of my social media contacts and it was great to meet them and share our shocking experiences of breaches of human rights. The only time I have ever used the HRA is when Elizabeth was denied “medication” for FOUR days ie Clozapine in order to force return her to the care home where she had no food at the weekends ie Phoenix House Stepping Stones, Northampton. I was astonished at how many breaches of human rights under Chase Farm Hospital Enfield and here they are:

The HRA places a legal duty on public bodies (and those delivering a “function of public nature”) throughout the UK to respect, protect and fulfil human rights across their actions, decisions, policies and services. The duty on public officials has three parts:

  1. Respect: duty to not breach human rights.
  2. Protect: duty to take action to safeguard people’s rights.
  3. Fulfil: duty to have the right processes and procedures in place, and to investigate when things have gone wrong.


This duty has not changed during the Covid-19 pandemic and any decisions made by a public body, including in health and social care settings, must respect and protect human rights.

Importantly, the HRA is a foundational law. This means that all other UK laws should be compatible with the HRA, both on paper and in practice. This includes laws on health and social care across the UK, such as: theSocial Services and Well-being (Wales) Act 2014in Wales, theCare Act 2014in England, theMental Health (Care and Treatment) (Scotland) Act 2003in Scotland and theHealth and Social Care (Reform) Act (Northern Ireland) 2009in Northern Ireland.

https://www.bihr.org.uk/bihrs-communites-of-practice

There are 16 rights in the Human Rights Act, including:  

  • Article 2 –  No life because she is held prisoner on a locked acute ward (Suffolk Ward, Chase Farm Hospital Enfield).  There is no quality of life.  No fresh air, no exercise, resulting in massive weight gain, no access to appropriate physical health care – list of appointments to the RC ignored because no-one and no response re smear test, hospital eyesight appointment (opticians discovered something wrong), chiropodist and dental appointment.   Check with Endocrinologist on PCOS going back to 2014 through ultrasound not done.
  • Art 3 –  torture ie, the forced drugging without informed consent (men only whilst in seclusion) with no female nurses  present.  Very degrading treatment on Xmas Day surrounded by lots of professionals who gathered around my car when leave had been permitted as a bed had been found in Darlington (Priory)but no-one communicated this fact.
  • Art 5 Right to liberty/security –  security being her flat and company of family.  Professionals do not want her to return.  She has all her possessions secure for the first time.  She wishes to return but the professionals refused. 
  • Art 6 – Right to a fair trial.  How can there ever be fairness when file records are full of errors and in some cases lies.
  • Art 7 – “why am I being punished Mum” –  Denial of LD/autism and ignoring report stating complex PTSD/ relevant treatment being favoured forced injections over many years.  Punishment also extended to family, particularly mother who disagrees ie stopping contact insists her daughter was raped under care for which she has substantial records  whilst training to be a police officer.   Example of punishment:  “all leave with the mother has been cancelled due to the mother not complying with social distancing and risk of bringing covid on the ward spreading to others”   On Xmas Day  were advised of changes to leave in that no further leave granted by bed management but were halfway off the ward at e and came to sit in the car  with roof down as was agreed verbally with the RC.  Discrimination in that at a recent on line virtual meeting  a nurse wore no mask.   Daughter sent to secure units all over the country as far away as Wales where attempts made to sever contact with emphasis on displacing her mother as NR.  Being declined ground leave because her mother is being punished for alleged non-social distancing without evidence to prove. 
  • Art 9  –  Daughter ridiculed re: freedom of speech/expression since professionals do not understand her and misinterpret her which they then duly label as a so called disorder. 
  • Art 14 –  Discrimination re:   “The right to peaceful enjoyment of your property”  *No to Section 117 ” is stated in a previous care plan.

I was unaware that Human Rights Act superseded Coronavirus Act so questions should be asked with regards to denial of basic human rights such as fresh air and exercise and I await with interest response as to why such rights, visiting relatives etc have been taken away from so many, yet they wrongly decline human rights using the excuse of covid when they should in fact allow for a walk in the grounds for instance – this should NOT BE DENIED.

It is good to draw to the attention of the BIHR Trusts who are in breach of the Human Rights Act and Barnet Enfield and Haringey MH Trust are from what I clearly understood from attending this most interesting zoom conference today. How many more Trusts are in breach and who are they?

%d bloggers like this: