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From: “REARDON, Elizabeth (ELYSIUM HEALTHCARE)”
Date: 27 October 2020 at 16:43:33 GMT
To: Susan Bevis
Subject:Letter from Thornford Park Hospital
Dear Ms. Bevis,   Please find attached on behalf of Jo Sherman, the Hospital Director a letter in relation to the change in Responsible Clinician for your daughter, Elizabeth.   Please note that this letter has also been sent in the post. Kind regards,
Liz
Liz Reardon
PA to Jo Sherman, Hospital Director
Thornford Park
Elysium Healthcare

T: 01635 860 072 x 8827
D: 01635 273 827
E: elizabeth.reardon@elysiumhealthcare.co.uk
Secure Email: elizabeth.reardon@nhs.net
A: Elysium Healthcare, Thornford Park Hospital, Crookham Hill, Thatcham, Berkshire RG19 8ET  

HERE ARE THE CONTENTS OF THE ATTACHED LETTER:

Letter dated 27 October 2020

Dear Ms Bevis

Following concerns you have raised regarding the current diagnosis and treatment plan for your daughter, Elizabeth, we have taken the decision to allocate Dr Harinder Bains as the Responsible Clinician for your daughter’s care whilst she remains at Thornford Park.

Dr Harinder Bains will take over responsibility on Tuesday 27th October 2020 from Dr Morton. Dr Harinder Bains will also consider the ASD diagnosis that you have raised with the clinical team.

Yours sincerely

Jo Sherman

Hospital Director

Elizabeth discharged back to the local area of Enfield on 28th October late evening. She is now back on Suffolk Ward under the “care” of Dr Helen Moorey. No ASD has been carried out as promised by Elysium. The Manager’s Hearing 30th October today has been cancelled.

For a Manager’s Hearing reports are prepared. It is similar to a Tribunal. If a hospital wishes to hold on to someone for a long time that is very easy to do especially considering how much taxpayer’s money is being spent by the local area. All that has to be done is to prepare reports so negatively that rip a vulnerable person’s character to pieces, then a panel agree that the patient needs to be incarcerated longer, whereas what should be done is to look at what is being offered in the community/or rather what is not, in terms of care and whether someone has been assessed properly. Now there is even more conflict than ever before in terms of diagnosis. In over 2 months, Elysium have failed to assess Elizabeth for Autism and the same applies to Cygnet Godden Green, Sevenoaks, Kent though they admitted autism traits. However when huge sums of money are being spent locally by commissioners it could reflect badly on the care provided under BEHMHTNHS if a different diagnosis is given now but then this diagnosis goes back to the very beginning and Elizabeth will never be treated fairly under BEHMHTNHS. “We are guided by the local area” – one of the RC’s told me recently.

EXTRACTS FROM THE PSYCHIATRIC SUMMARY REPORT FOR THE MANAGERS HEARING DATED 18 AUGUST 2020 BY ELYSIUM HEALTHCARE

Prepared by Forensic Psychiatrist Dr DM for the Manager’s Hearing on 30 October 2020, now cancelled.

The report runs into 16 pages but my corrections of this report runs into far more, as there is so much error it took me all night to do.

On the one hand, the report writer does not think a PICU is the right environment but on the other hand states “it is appropriate for Elizbeth to be detained in best interest and appropriate medical treatment is available. When a Responsible Clinician wishes to hang onto someone for a long time they bar the Nearest Relative from seeking discharge.

Here is the appropriate treatment Elysium Thornford Park see as “best interest” – Elizabeth was previously found to be allergic to this drug yet c 8 Doctors and their nursing teams have chosen to ignore this fact. It is clearly documented in the files but then Dr DM states “I DO NOT HAVE ACCESS TO THE FULL NOTES FROM BARNET ENFIELD AND HARINGEY MH TRUST” “HOWEVER THE LOCAL AREA HAVE PROVIDED ME WITH REPORTS THAT HAVE ALLOWED ME TO DEVELOP AN UNDERSTANDING OF HER BACKGROUND“. It is no wonder nothing is done properly and Tribunals fail, leaving vulnerable people treated in the most disgraceful manner. If you look at the reports from the local area they are full of inaccuracy/errors and even lies. I will feature their lies in a separate blog.

So if, for instance, my daughter died at the hands of any such doctors through faulty treatment they would all stick together and deny wrongdoing, each backing one another yet each and everyone of them knew from countless evidence provided to them that Elizabeth was allergic to Risperidone but kept on prescribing regardless. See below – I have highlighted other contraindications to Elizabeth’s physical health.

When you prescribe a drug knowingly that has caused allergy it is no wonder a patient suffers from adverse reaction. This can be displayed in behaviour but what if a patient’s behaviour flares up or they say something that might appear threatening then they call the Police and report – I will feature that later on.

Paliperidone side effects

Image: psychcentral.comIn Summary. Commonly reported side effects of paliperidone include: akathisia, tachycardia, and drowsiness. Other side effects include: basal ganglia disease, dyskinesia, dystonia, orthostatic hypotension, postencephalitic parkinson’s disease, sialorrhea, and prolonged qt interval on ecg.

Paliperidone Side Effects – Drugs.com

www.drugs.com/sfx/paliperidone-side-effects.html

http://www.drugs.com/sfx/paliperidone-side-effects

  • Who should not take Paliperidone Palmitate Syringe?

The following conditions are contraindicated with this drug. Check with your physician if you have any of the following:

Conditions:

  • breast cancer
  • diabetes
  • a high prolactin level
  • excessive fat in the blood
  • low amount of magnesium in the blood
  • dehydration
  • low amount of potassium in the blood
  • overweight
  • very low levels of granulocytes
  • a type of white blood cell
  • low levels of white blood cells
  • low levels of a type of white blood cell called neutrophils
  • confusion
  • suicidal thoughts
  • a type of movement disorder called parkinsonism
  • tardive dyskinesia
  • a disorder characterized by involuntary movements of the face
  • mouth and tongue
  • neuroleptic malignant syndrome
  • a reaction characterized by fever
  • muscle rigidity and confusion
  • a low seizure threshold
  • a heart attack
  • angina
  • a type of chest pain
  • torsades de pointes
  • a type of abnormal heart rhythm
  • chronic heart failure
  • abnormal EKG with QT changes from birth
  • a disorder of the blood vessels of the brain
  • orthostatic hypotension
  • a form of low blood pressure
  • compression of the esophagus
  • priapism
  • a prolonged erection of the penis
  • seizures
  • weight gain
  • susceptible to breathing fluid into lungs
  • pregnancy
  • decreased blood volume
  • problems with food passing through the esophagus
  • metabolic syndrome x
  • dementia in an elderly person
  • diffuse Lewy body disease
  • cataract surgery
  • floppy iris during eye surgery
  • abnormal muscle movements
  • chronic kidney disease stage 2 (mild)
  • chronic kidney disease stage 3A (moderate)
  • chronic kidney disease stage 3B (moderate)
  • chronic kidney disease stage 4 (severe)

Allergies:

  • Risperidone Analogues

Elizabeth has made relatively good progress at Thornford Park – Rubbish! I will explain later.

Historic Risk Incidents taken from the Report of Dr Helen Moorey – WILL YOU PLEASE AMEND THIS RUBBISH!!! There are so many errors it is unbelievable. Plus, the description of incidents does not explain fully the circumstances and what really happened thereby giving false impression.

There is nearly a page and a half – it is painful to read when they have deliberately listed nasty comment after nasty comment, designed to make someone look bad without a single good word.

Yet all the time these doctors/professionals are prescribing a drug known to be allergic to that can cause adverse reaction to someone who, as proven, cannot metabolise the drugs. SHAME ON YOU ALL!

There are other Risk Information written by a care coordinator who has failed to protect Elizabeth on a ward on one occasion, left her to sleep in a bug-infested bed and room stinking of chemicals at Reservoir House, someone who has failed to work with the family, someone who has failed to provide a scrap of care in the community since Elizabeth acquired her own flat in July 2019 and under whose team drew up unlawful paperwork for sectioning resulting in Elizabeth spending c5 days unlawfully under section.

It is no wonder Elizabeth does not wish to engage with ENFIELD COMMUNITY REHAB TEAM – you only have to look at my blog “Get Her Back We are Paying for that. They were likewise prescribing a drug previously found to be allergic to and knew it.

The reason Elizabeth is unfortunately incarcerated under their “care” once more is because she stopped taking 2mg of Risperidone cold turkey. This all highlights the need for facilities where someone can be taken off the drugs slowly and gradually and safely. There is nothing like this in the UK for prescribed drugs.

https://npanth.wordpress.com/2012/07/02/dealing-with-anger-during-ssri-withdrawal/

They try and say it is relapse of illness however it is all about withdrawal and too steep a withdrawal causes withdrawal syndrome which is not a mental illness.

Diagnostic Issues

The report states she was diagnosed with Schizophrenia in 2007.

No true at all – first diagnosis was Aspergers. Then another doctor said that her condition could not be attributed psychogenically but organically.

Never did Elizabeth experience paranoia, thought disorder, hallucinations, thought broadcasting and other perceptional disturbances until she was prescribed anti-psychotic drugs and even then her anger is justified because of what happened to her under care and the drugs given in order to cover it all up.

One of the lies in the reports written by care coordinator is that she was forced to go to Scotland and Australia. Get your facts right next time! Elizabeth was not forced to go and agreed via Skype. Working to Recovery was the best thing that happened for Elizabeth – if only she had not come back to the local area of Enfield.

The excellent report by Dr Bob Johnson stating complex trauma was dismissed by the Consultant of Thornford Park like rubbish however here is an example of an extremely honest doctor who has done the most accurate report Elizabeth has ever had apart from the most recent prepared e for Tribunal purposes.

A patient can ask their solicitor to appoint an independent doctor completely free of charge for their tribunal and this is good because you cannot expect to be treated fairly by any so called independent doctor (SOAD) from the CQC which is our experience.

One of my main complaints to the CCG NCLCCGNHS Enfield is as to why they have wasted so much of taxpayers money on care that has achieved absolutely nothing. A PICU or even an Acute Ward is the wrong environment for someone with sensory issues. They have denied a CTR in favour of a CPA and now I am getting the National Autistic Society involved – also the diagnosis of PTSD was endorsed by a clinical psychologist at Enfield, Dr Mukherjee.

So the report from Elysium lists nothing but incident after incident after incident which has not been reported correctly. In addition countless times I have asked from the Psychiatric History to be amended but this has not been done. Not once have I been invited to a meeting or ward round to go through the errors reported. Psychiatric History goes on for many pages and it is dreadful to read as it is incorrect/full of error and keeps appearing all the time and once again I am having to correct everything which is time consuming.

Then they go on to the circumstances of admission and they make Elizabeth sound terrible.

For someone Autistic, suffering in addition from complex trauma, who had been discharged from hospital after S3 back to her flat at the height of the pandemic, it was not easy. I was furloughed at the time and so could help her but then she took herself off 2mg Risperidone and refused to take the drug and I knew she would go downhill because this is far too steep a reduction. Elizabeth became very preoccupied with her physical health during this time – she was constantly researching her condition which she saw as autism not schizophrenia. She was suffering from chronic pain too and so was in touch with the GP Surgery. During the pandemic people were supposed to shield and not mix with one another from different households but this was not possible due to no support for Elizabeth who did not seem to understand services had come to a standstill as she wanted an MRI scan. It is recorded she caused damage to the reception area of the GP Surgery however I called in to ask about this and was going to pay for any damage I was told there was none. Staff might have been afraid and called police as Elizabeth was upset at being ignored and getting nowhere with her request. Police took her to Chase Farm and she was sectioned once again and has been held in seclusion time and time again on Suffolk Ward prior to being sent far away from home and family to PICU rather that ATU – Huntercombe recommended ATU but the RC of Suffolk Ward has dismissed all the doctors opinions at Huntercombe Roehampton and others in favour of her own and then when various other doctors of PICUs get involved they are paid by the local area. One such doctor was honest enough to admit “we are guided by the local area”

The other criticism I have of all these institutions and under MH care in general is that only basic tests are done. In support of himself, the doctor in this case states MRI, blood tests and EEG have ruled out organic cause. Elizabeth has not had an MRI scan or seen an Endocrinologist and already is said to have an irregular arrhythmia in past reports probably caused by the titration of Clozapine. It is reported Elizabeth kept talking about faulty Endocrine system and this is something they should be looking into. They make her sound ridiculous but she is right as I have already had extensive Endocrinology tests done private which again the team has ignored.

Dr DM contradicted himself. On the one hand he sticks with Paranoid Schizophrenia yet has written admitting autism in his email to me but no proper assessment has been carried out by Elysium. All blame put on Elizabeth for not cooperating with the assessment yet I was told that under a PICU such assessment could not be done. An AQ10 was supposed to be carried out but this suggested further more detailed assessment for autism be carried out but then they changed medication and took Elizabeth off the Paliperidone and switched it to Olanzapine – another ineffective drug previously tried that causes diabetes. Now they are mixing Olanzapine with Clopixol depot and prn when needed. This is how a patient can react adversely from adverse reactions and it is apalling that a team of professionals write about incident after incident that goes into pages when I as a mother know that by switching a drug causes such reaction then this list of incidents go against a patient and release from hospital. Blame just goes on the patient whereas focus should actually go on the Doctor and team as what they are doing is wrong. They try to say relapsing illness and I would say rubbish! as I have research papers to prove this is completely wrong. Also I would state that the combination of Clopixol and Olanzapine is wrong too – I am not a doctor but check everything with experts on the drugs. You should not prescribe an A-typical with Clopixol.

It makes me laugh when a doctor tries to say she was responding well to Paliperidone when at the same time nothing but contradictory negative comments and pages of incidents are listed.

In comparison to all the negative comments written by Dr DM there is a very small section that states “strengths or positive factors relating to the patient: There is only 5 lines written by a doctor who described Elizabeth as cold and aloof. Now he has had to admit she has a pleasant sense of humour at times and is well liked. Then he writes something that is totally irrelevant to the strengths and positive factors relating to patient and goes on about medication.

I am afraid the above which actually amounts to just 2 lines is the only good thing about a report of 16 pages written to fail Elizabeth’s hopes of release from prisons such as this and there is no difference now to the acute ward either because patients are not allowed out or to have visitors.

As if Dr DM has not dug out enough dirt on a vulnerable patient who he never got to know properly, he lists incidents at Cygnet Godden Green Castle Ward as well as Chase Farm Enfield where Elizabeth was held for up to practically a week in seclusion.

I wish to point out I consider that Cygnet Godden Green are unfit to produce any reports for Court and Tribunal purposes.

The Report for the Responsible Clinician was written by Dr WK for Dr RS and contains the most disturbing things of all and I would be more than happy to send all their reports to the CQC as well as the threatening letter I have received from their solicitors when I dared to challenge them. To pervert the course of justice is a very serious thing and I would say that their reports are geared for this purpose.

The reason I say this is that there is a long list incidents Dr DM has copied and pasted by the looks of things however the other report prepared by Rebecca Fordwar – Clinical Lead lists NO INCIDENTS WHATSOEVER. This is most disturbing to see in the report prepared by Dr WK – the date of Birth is completely wrong. Therefore no reports from Cygnet Godden Green can be relied upon for court purposes. The other disturbing nonsense is they cannot even agree on primary diagnosis – it is laughable when you compare the report from the Clinical Lead with that of Dr WK and if the records are wrong you can be sure that the care is a poor reflection as records are extremely important. It is not laughable when you consider this facility cost £28K for 5 weeks.

I am laughing even more now that under Progress at Thornford Park from 04.08.2020 to present there is 2 pages full of alleged incidents.

I have not given ELYSIUM THORNFORD PARK THATCHAM BERKS a rating but quite honestly looking at this long list and bearing in mind they knowingly prescribed drug previously found to be allergic to they do not deserve any rating whatsoever and I shall be writing my reviews in due course.

Progress made at Elysium Thornford Park based on this long list of negative incidents is NIL

I also have not liked the way a social worker from Elysium reported Elizabeth to Thames Valley Police for allegedly stating threats against me. I then had to lodge my complaints to the Police in stating that they were knowingly prescribing drugs previously found to be allergic to and even now they have switched the drugs to a combination that is entirely wrong so what do you expect. I therefore had to state that I was concerned for Elizabeth’s wellbeing. It would have been better if they had called me first rather than go to Police as if they are not busy enough and if I as a mother have no concerns whatsoever and are far more concerned as to the drugging regime and care than anything else.

Lastly, there is a gym at Elysium – not once has Elizabeth been taken there.

Garden leave was once a disaster and time spent arguing what was promised and should have been recorded on records.

The grounds are extensive but it looks like a zoo surrounded by high fences and the grounds should be made attractive and house a swimming pool and other nice facilities especially when some patients are still there after 1.5 years.

When you think of the huge money Elysium are getting what they need to consider is what is therapeutic to the patients and animals are therapeutic so correct me if I am wrong I could not see anything like this being offered to patients and when you look at the case of Bethany then these facilities are totally wrong.

Any recommendations to the Tribunal with reasons

That Drs such as this and at Cygnet Godden Green and not forgetting Barnet, Enfield and Haringey MHT never be allowed to write any reports for any tribunals ever again as they are not fit for purpose and deliberately written with a view to failure and incarcerate a patient whilst they rake in the money for treatment and environment that is totally inappropriate and has not worked over many years because of misdiagnosis.

I received the letter yesterday Recorded Delivery but noone signed for it. It was just stuck in the letterbox. According to the envelope it was post marked 12 October and the letter itself was dated 8 October.

I am not going to defend myself as previously stated but leave my readers to judge for themselves.

I have never met the above professionals in my life.

Here is what I have been accused of:

have harrassed

have threatened

have been personally abusive or verbally aggress towards staff dealing with your complaint

have in the course of addressing or raising a complaint had an excessive number of contacts with the trust placing unreasonable demands on staff

Persist in pursuing a complaint when the trust’s complaints procedure has been fully and properly implemented and exhausted, or it is not within the trust’s remit to investigate.

Are unwilling to accept documented evidence of treatment given as being factural eg drug records, manual or computer records, nursing records.

Intimidating

Using abusive or threatening language

The letter states that the “Deputy Director of Nursing and Head of Patient Experience have reviewed your communications with the trust and concluded that in order to ensure all concerns are responded to through a single avenue, all correspondence from you will be managed under the trust vexatious complaints policy” Let us then cut out the correspondence and choose a much more suitable single avenue and save money on paperwork. I cant think of a better avenue than Twitter.

“The trust has responded fully to the points raised in previous complaints and has tried to resolve the complaint but there is nothing more to add and continuing contact on the matter will serve no purpose. The correspondence around previous complaints investigated is at an end and any further correspondence received will be acknowledge but not answered, although as previously advised, you do maintain the right to request an Independent Review by the Ombudsman.Well said! There is nothing more to add because they haven’t got anything to say in their defence. How convenient to end a complaint in this way and avoid answering anything instead of a simple apology.

I have been guided to Pals and a guy called Richard was in contact with me when Elizabeth was sent to Cygnet Godden Green but since then, and that has been quite sometime, there has been nothing but a wall of silence. In other words absolutely nothing has been dealt with.

All clinical requests about your daughter must be sent to Lucy Omezi, Team Manager Enfield Community Rehabilitation Service– they are based at Park Avenue Bush Hill Park Enfield but my questions are why not the CEO in overall charge of the Trust? I have already written to that department requesting a CTR and also an adaption to Elizabeth’s bath as she has now gained enormous weight due to the drugs prescribed – take Risperidone and Olanzapine – they are notable for causing weight gain and diabetes. Not a word in response to my email.

These restrictions are intended to safeguard your right to complain or raise concerns about current aspects of your daughter’s care and for them to be managed appropriately whilst protecting our staff. Yes – that is what it is all about protecting your staff never mind the vulnerable patient or her family who are treated like dirt.

The vexatious management plan will be reviewed on a yearly basis by the Deputy Director of Nursing and Head of Patient Experience.whilst protecting our staff“.

The letter is signed by Amanda Pithouse, Chief Nurse and Mehdi Veisi Medical Director.

PREVIOUS VEXATIOUS COMPLAINANT THREAT FROM BEHMHTNHS PROFESSIONALS

Now this is something I can talk about. See extracts below of just some of my corrections to defamatory comments written when Elizabeth was abused under care provided in the community under a scheme called Moti Villa at the time I was a trainee Police Officer. I can prove everything as I thorough investigated.

DM’s opinion on “same issues” is contradictory, according to file records for example:   Email from LS dated 18.05.2011 13:37 to (AA) cc TO, VB, SJ and AJ : “Dear A I absolutely agree with J.  SB’s behaviour is unacceptable and impacting on our ability to provide appropriate care and treatment for EB.  The position insofar as community services is concerned is quite intolerable.  As you know we are also of the view that SB’s behaviour has a very detrimental effect on her daughter’s mental state.  I have asked the clinical team to look into the matter again from a safeguarding perspective.  We also really must put some boundaries around this woman.  I had thought that when you V and I met a couple of weeks ago that we were agreed that legal advice would be sought regarding the vexatious complainant route?  I cannot remember whether I passed on the info that DS (Commissioner) has forwarded the complaint he received to the NCL Cluster to be addressed so would expect them to be in touch shortly.  He did mention an independent review being carried out and, after discussing the matter with P I advised him that we would be happy to comply if they commissioned another opinion.  Regards L.

From :  SJ Sent 18.05.2011 at 13.04 –  cc LS, OT, VB  “Potential vexatious litigant” …….A we are having quite of email and telephone traffic from Mrs SB, mother of EB.  I was briefed by L who knows the family well and had to deal with years of complaints from her.  I understand from V that the Trust was trying to progress this woman to be a vexatious litigant.  V seemed to think it was the case that there was a piece of work that you were doing in ensuring that all previous complaints had indeed been exhaustively looked into.  Can I ask where you are with this and when it will be completed as it does take a lot of management and clinical time to manage Mrs SB’s complaints.  She is currently phoning the CEO.   (“HER DAUGHTER IS ‘HAPPY’ WITH CARE SO IT WOULD BE VERY HELPFUL TO PROGRESS THIS THANKS”).
From:  VB to CD cc AA, LS re Ombudsman dated 10.08.2011 at 10.17 “Hi C,  I don’t know if A sent Mrs Bevis a copy of his report.  He did the report because everyone wanted Mrs B to be classified as a vexatious complainant and I said THIS COULDN’T BE DONE:  until someone went right through all her complaints and checked that they had all been answered and that she didn’t raise anything new.   No – we haven’t received any letter from her to my knowledge.  I was there when she phoned but haven’t seen anything since Regards V” .
From CD sent 10.08.2011 at 10.12 to VB, LS and AA.  V, can I please have a copy of the last response that went to Mrs Bevis where she got a copy of A s report.  I have asked for this a few times as has the Ombudsman.  Without this having happened, we have not done all we can.  Did you get the letter she said she dropped to the unit when she cancelled our meeting on 4th?
From CD to VB cc AA, LS  10.08.2011  at 10.33 “we have done that – the ‘new’ was the medication and that is now getting a second opinion.  Can she please be written to advising of the outcome of the review held by Trust which is As very clear, report which could be shared with her.  L informs me a referral for second opinion is going to Maudsley that should be shared, as it addresses her only new complaint.  Not having responded perhaps leaves it incomplete.  We did right thing offering appt.  She declined now we have opportunity to be seen to wrap it up with sending report we were to discuss and confirmation we believe we have responded and are satisfied we are offering adequate service but are seeking second medication opinion.  We can inform Ombudsman this is the case.

From OT To LS, AA Cc VB, SJ,JA  Re: Potential Vexatious Litigant  sent 18.05.2011 at 13.57 I would favour an independent approach because it was ME, YES ME.  I am still smarting from it, who felt the brunt of the last Ombudsman’s criticism – have you not read the letter yet it’s on file? Because I sought to intervene to assist others who quickly sought refuge in the phrase “we were not criticised it was the Management”.  So when one talks about knowing the history as it were ……….make sure you get to know it all this time.

VB concludesWhy I believe for it to be inappropriate for Mrs B to be labelled as a vexatious complainant is that although she undoubtedly complains prolifically and is also abusive and threatening at times, she keeps bringing up new issues which makes it impossible to label her as a vexatious complainant –  O mentions the Ombudsman – should Mrs B go to the Ombudsman this would be her thoughts on the matter and the Trust would be highly criticised.”   L recently recommended that Mrs B should be given the name and contact details of one person who should the person with whom she should liaise over any problems to do with her daughter.  I consider this to be a very good idea.  Perhaps this person could have a PTS background or advised by that department?  Just a thought as I remember that JF helped me a lot in the past in communicating with a lot of very troublesome complainants.   I see that DS will no longer be commissioning a clinical review of EB’s care.”

CONCLUSION BY SB The “same issues” as stated by DM are those that were never properly investigated by the Trust in the first place, because no one wanted to admit/take responsibility for what had happened. EB was left in a situation where she was forced to remain living at Moti Villa right next door to the neighbour who brought his friends into the Project that abused her and whom successfully appealed against his eviction.  It was some time before EB was moved to another floor which was considered to be an adequate solution but EB was clearly unhappy at the scheme and SB wanted her moved to somewhere where she could feel safe and happy.   Contrary to JS’s comments on her being “happy there”,  the file note from

Dr HM stated in a file note 02.03.2011 when she visited with YOD- AMHP (13.09)EB was very clear that she had stopped taking her medication because she wants to be readmitted to hospital “for some peace”.  Tenant below her playing loud music throughout the night – her sleep disturbed.  Last night she called Police about this matter.  Reassured we would speak to staff about this.  EB said it was not true she had taken cocaine but had said this because she was feeling cross with the home treatment team.”    Originator – KL  –   SJOG (St John of God) support worker advised that EB “hates” where she is living.       EB advised family she “did not want to go back to Moti Villa and be raped by lots of men”.    

Please can @DACBeachcroft forward me the recording of me “impersonating another mother” by Cygnet Godden Green. I did not know I possessed such talent.

Your 14 days are up and I would like to feature my starring role on my website please. I would not mind it appearing on YouTube.

My readers are waiting to hear so please can you hurry up with the recording. And Cygnet Godden Green – Please don’t tell me you have lost it as I will be most disappointed.

Section 23 Notification of Discharge by Nearest Relative

To the Managers of Thornford Park Hospital, Crookham Hill, Crookham Common, Thatcham, RG19 8ET.

Order for discharge under section 23 of the Mental Health Act 1983.

My name is **********and my address is **********
To the best of my knowledge and belief, I am the nearest relative (within the meaning of the Mental Health Act 1983) of Ms Elizabeth Bevis (DOB ********).
I give you notice of my intention to discharge the person named above, and I order their discharge from detention in hospital.

The above is the standard discharge notification to a provider that a Nearest Relative can submit under the MH Act. Elizabeth has been at Elysium for two months. No Autism Assessment has been completed and I have been told this cannot be done under a PICU ward as it takes too long. They have also tried to say Elizabeth will not cooperate but then if communication is not good by professionals this could be the reason after all this is a mental health PICU not a specialist place where assessments can be undertaken for anything else than MH. Elizabeth has been sent out of area a fair distance away from home yet again and we have experienced difficulty in getting through on the telephone. Visits are intrusive and restrictive with one member of staff after another sitting listening to every word and writing notes. I have never come across quite such restrictions before under a PICU and advised the CQC inspector I spoke to today in this connection. The RC, Dr DM has already admitted a PICU is not the right environment for Elizabeth so in that case let’s see his response as I as NR am not happy with Elizabeth being in this facility. Family members could not get through on the phone recently and that is because Elizabeth was put in seclusion for about a week. It makes you wonder what on earth is going on behind closed doors and I found out today that the CQC take a very different approach since the pandemic which I believe can lead to patients being abused behind closed doors as if they only centre their investigations on a local basis who is watching what is going on fully behind closed doors. I spoke with CQC Inspector SG but in the absence of inspectors going onto wards I feel this leaves patients at huge risk. The providers that are private such as Cygnet, Elysium, Huntercombe etc. are making a fortune. Take Cygnet Godden Green for instance. They have made £28K over just 5 weeks for what exactly – for prescribing a drug (Paliperidone – Risperidone depot) previously found to be allergic to. Elizabeth said “I will never get better in here”. Attention needs to be turned to the CCGs who spend vast amounts of money that could be better spent on providing more in the local community

I am waiting for the rest of my FOI request because in a short space of time my Elizabeth has been sent to one PICU institution after another and placed in seclusion three times locally. The NHS has failed dismally to help her and just drug her, threatening if she does not wish to take the medication then they will inject her. The NHS have also bullied Elizabeth’s family, particularly the Nearest Relative who has dared to challenge them which in this case is me.

An Autism assessment has not been done in two months and when you think of the astronomic amount of money Elysium get then if they cannot do it, as has been admitted, then surely funding should have been transferred to another provider. It is also conflict of interest when an expensive provider such as Elysium is undertaking assessments on diagnosis themselves, whilst being paid enormous funds by the local area who they are closely in touch with. They are after all a PICU ward for mental health, not a specialist ward for LD/autism and at a recent important meeting, the response by the RC of Corridge Ward was, when questioned, certain procedures re the autism assessment had not been carried out and the assessment was therefore not completed properly. Their excuse was that Elizabeth would not cooperate but if there is a “language barrier” then what on earth is Elizabeth doing on a MH PICU ward in the first place, particularly when there is massive conflict of professional opinion and disagreement on diagnosis.

It is astonishing that North Central London CCG are wasting huge amounts of public money on providers who have failed to carry out proper assessments and all they are doing is polypharmacy drugging. When previous provider Huntercombe Roehampton stated Aspergers questions must be asked why was this ignored by the RC of Suffolk Ward Chase Farm Hospital, Dr HM? To think 3 doctors stated this yet the RC from Suffolk Ward chose to ignore.

At least Dr NS of Ruby Ward St Pancreas Hospital PICU was honest enough to say “we are guided by the local area” – well of course they are! It is all down to money and who is paying for their facility which is ENFIELD. The RCs of different PICU wards where Elizabeth has sent from the local area are desperately trying to back the doctor in charge of Suffolk Ward, Chase Farm Hospital Enfield who has stuck to her belief of Schizophrenia and EUPD yet failed to provide any scientific evidence whereas I have presented scientific evidence of the P450 liver enzyme tests that Elizbeth cannot metabolise the drugs. No wonder they do not work and this means she is subject to adverse reactions How many years have gone by and still no improvement only decline in Elizabeth’s condition. It is down to lack of communication and understanding by various mental health professionals but a PICU should only be used short term and now it is 2 months at Elysium and her detention under this private hospital more like a prison could go on forever judging by J Robson’s email below. Even some professionals appointed under Enfield concluded Aspergers/LD/complex PTSD and Anterior Region Medial Temporal Compromise. Then they try to state that the person concerned is psychotic plus has autism traits. I am not taken in by this at all and I believe the reason that Procyclidine was/is being introduced is to cover up serious things they have noticed in terms of Elizabeth’s physical health such as tardive dyskinesia. There is a whole report by Dr Bob Johnson, that is the most reliable and truthful of all, which clearly states “Complex PTSD” – this would be true considering the multiple abuse under Moti Villa. I would go one step further and state “Dissociation”. Dissociation is a coping mechanism which is certainly not understood at all at Elysium, where Elizabeth currently is right now. The strange accent and even some actions such as her stroking her hand whilst being interrogated by the RC even I as a mother can understand. Why is this seen as a mental illness rather than a coping mechanism maybe of some comfort to a deeply traumatised patient. What is so very wrong in this and if I as a mother and NR had been invited to any ward rounds I could have explained everything to the RC but at Elysium there is no interest in the family or any contribution from them and so none of their reports can be relied upon in terms of accuracy.

I have today found out that Elysium are trying to drug Elizabeth with several different drugs known as polyphamacy. I have never come across a hospital like this one where they blatently ignore the scientifically based P450 liver enzyme test results which have stated “poor/non metaboliser” What they are doing is dangerous and can result in adverse reactions. Also honest doctors like Dr Ann Blake Tracy state that when you change a drug then this can result in adverse behaviour and instability. So no wonder why she is on 1-1 and that they have tried to discourage contact with family and especially the NR and mother who has become knowledgeable about the drugs due to seeking advice from leading professors. Elizabeth has today stated she would like me to visit and I have witnesses to this effect. The response from these professionals employed by Elysium state that “I don’t have her permission to speak to you”. In other words they are hiding behind confidentiality. However Elizabeth has today said clearly she DOES give permission and DOES want her mother and NR to visit at the weekend along with her sister and a close friend.

So what happens when you submit a letter asking for discharge. I’ll tell you straight – two doctors and an entire team gang up backing one another. It requires two doctors opinions and of course they are going to stick together like glue because it is lucrative to hang on to someone like my daughter for a very long time whilst the local area of ENFIELD sit back and do absolutely nothing and of course pay extortionate amounts of money. The NHS clearly has money to burn/waste. As you can see from the email below from North Central London CCG NHS my one hope of any kind of justice was via a CTR (Community Treatment Review) I had never heard of this before and got to hear through other parents. Now my hopes have been dashed. It was Jeremy – Bethany’s Dad who told me about CTRs and this gave me such hope as it is by an independent panel but now I have no hope at all as nothing is ever done fairly under ENFIELD and instead of a CTR a CPA is being called Care Programme Approach. Elizabeth is being treated apallingly. She has asked for her care plan several times but tells me she has not been given it. So without a proper diagnosis Elizabeth is forever stuck under the MH when she needs to be with a different team who can communicate effectively. She clearly stated at the recent meeting she did not wish to be under the mental health team any more. She also said that the medication was not doing her any good but she would continue with the forced injections provided they were being reduced in dosage.

Elizabeth told me she is on 1-1 just like at Cygnet Godden Green. Imagine what that must be like to be followed everywhere by a member of staff. To think back in 2016 it took just 1 former experienced former nurse through Working to Recovery to take her on holiday to France and Spain, to Australia. Elizabeth had freedom. What she is getting right now is worse than any prison. In France Elizabeth went out shopping on her own and was treated like an adult. In Australia likewise plus on Isle of Lewis also not followed around like a baby. This is not right at all what is going on – how can you expect someone to behave like an adult and responsible unless you treat them with respect.

Elizabeth contacted me today but she has to go out in the garden to use her phone due to poor reception. Yesterday she spent much of her time in bed as she did not feel well. Of course when you switch medication it causes someone to become unstable and feel unwell. This would apply to anyone who is put on psychiatric drugs.

So I enquired what the new drugs were and it would appear that Dr DM of Corridge Ward is prescribing Olanzapine (Zyprexa) together with other drugs and lots of different pills are being presented to Elizabeth to take and she has been threatened that if she does not take them then she will be forcibly injected. What seems to be the Lead Nurses at Elysium is Faizer and Sean Francis. I have recently spoke to Sean Francis on the phone. The person who has overall control is Dr David Morton RC of Corridge Ward.

So this is the treatment that goes on under Elysium and other institutions – so if someone does not take the drugs they are pinned down and forcibly injected and I would describe this as torture not care and the reason I have been excluded from ward rounds is because no-one wishes to hear the truth that what they are doing is so very wrong but what is really wrong is a law that allows this to happen in the first place. Procyclidine if this is one of the pills being given on top of the Olanzapine is for Parkinsons so it would seem they have noticed some abnormality in Elizabeth as why else would this be prescribed? OR Is it to cover up sharp movements seen and to carry on drugging for convenience sake to the extent a patient does become very ill and injured? When someone develops TD (tardive dyskinesia) I have heard they need to be taken off the medication. A drug to cover up the side effects of another known to cause Diabetes, last prescribed at Royal Bethlem Nat Psychosis Unit Beckenham at maximum dosage mixed together with Quetiapine – drugs prescribed at 2 x BNF level at the National Psychosis Unit – a so called renowned hospital but I can prove otherwise. I have extensive records to show just what this hospital is all about and also the disturbing truth that Elizabeth was critically ill during the titration of Clozapine when she developed tachycardia (Mews Score 3) and not one single ECG machine working.

So Elizabeth told me she is being forced to take three tablets – three different drugs ie Olanzapine – Lorazepam prn and I believe the other is Procyclidine. Unfortunately Faizer has failed to return my call. Then when she is released/transferred elsewhere the RC of that ward will just continue with the drugging regime.

The Response below from J Robson is unsatisfactory as enough public money has been wasted. Elizabeth has not benefitted and is unhappy and has told friends she wants to come home. It was heartbreaking to know that she was in her room the other day, didn’t want to go out in the garden, didn’t want to know about the pigeons that visit her flat balcony. She didn’t want to speak to anyone. There was important family news to tell Elizabeth and a happy occasion to look forward to but yesterday she was well in the slightest bit and it is no wonder why when nurses such dish out a multitude of different drugs to patients meant for schizophrenia and fail to do a proper assessment because they simply cannot and Elizabeth should never have been sent to a PICU in the first place especially as I have notification from Huntercombe that mentions very clearly what condition Elizabeth has and it is NOT MENTAL ILLNESS. Just look at the response of J Robson when he is spending a fortune of public money because the NHS has failed dismally to provide anything decent. It is most disturbing to note “we need to work with Elysium” – well it is important to inform the public just how much money NORTH CENTRAL LONDON CCG is wasting and who else could be behind this enormous expenditure and there needs to be accountability for this when nothing of the right kind of care/facility is provided and then he states “we cannot undertake a CTR until Elysium carry out their autism assessment” . Then in that case I need to look at other avenues.

I will let you know the total figures of what has been spent by North Central London CCG in due course as this is of public interest.

In addition, further money is wasted on the legal process of Tribunals which is tremendous ordeal for my daughter who is autistic and has complex PTSD.

J Robson’s email below also states that an autism assessment is normally carried out in the community but if that is so how come I have tried so very hard to obtain this for Elizabeth who wanted to be transferred to another team as in her own words noone could understand her. Enfield is an area that tries to make out they have a good image whereby they treat disabled people with respect and fairly under the Equality Act. I would say the complete opposite is applicable.

So getting back to the letter of discharge – what happens next. You then have to wait for response from the Responsible Clinician which in this case is Dr DM. He will most probably get someone else to back him (another doctor) if he/she wishes to hold someone longer. So then when 2 Doctors agree on this tactic they issue a Barring Certificate and try to stop the NR in discharging the patient by writing an extremely negative report.

When they bar you that is when they can try to get rid of you as the Nearest Relative and take you to court which this has been done frequently and they state that you are being unreasonable when the opposite applies. The whole system is a joke and fails to protect vulnerable people like Elizabeth and their families. I have received confidential court papers sent on my work computer and have been harrassed with phone calls at work by AMHPs intent on detention under S3 in the past and have been given just 1 day to consent or else be displaced with another relative – in this case her father. It is all about threats and bullying and when you are not given appropriate notice then how can you organise a solicitor to back you. In 2014 I was taken to the CoP and had no solicitor to back me. However I have to praise this court highly for acting fairly. The court case followed another as Enfield Community Rehab Team deprived Clozapine for four days (NOT 2 as they state in the files). I kept a diary of it all. So I had to seek advice from leading professors – experts on the drugs and I then tried to obtain it from Harley Street privately as after 4 days Elizabeth was on the verge of withdrawal. Anyway the case was called “DEPRIVAL OF MEDICATION COMMUNICATION CARE”. Then Enfield Community Rehab Team tried to take me to CoP. Again no notice and I had no representation and they wanted to force her back to a care home because the LA was paying for this which was Phoenix House Stepping Stones in Northampton rated “good” by the CQC. However at this care home Elizabeth had no food at the weekend so how could this be rated good? It states in file note dated 18.03.14 from Phoenix House 218-220 Kettering Road Northampton “EB was rude to staff this evening- she was criticised to watch her foods as she had no food during the weekends. EB apologised about her behaviour” Also the drug Clozapine was declined when I tried to obtain it by offering to drive all the way to Northampton. An RMN told me it was more than his job was worth to give me the drugs so I then had to try to get it locally and I was told that “you will not get the drug anywhere in the local area”. It seemed like everyone was backing the team and my story “Get Her Back We Are Paying For That” describes the bullying we encountered. However the CoP were extremely fair and as she had full capacity they had to acknowledge Elizabeth wanted to be at home. If she had returned to the care home she would have been without food at the weekend.

Response from J Robson NHS NORTH CENTRAL LONDON CCG

“Hi Susan,

Thank you for your E mail .

I tried calling you yesterday – but your phone was off .

I will be in contact with you at the end of next week with a confirmed date for a CPA

I have requested that an Autism assessment is completed some weeks ago by the Elysium.

We will be chasing them to advise on progress .

We cannot undertake a CTR  until this has been carried out.

Has your daughter ever had an assessment at SLAM  for Autism  if not I am requesting this to be completed as well.

This is the usual route when people request this  are not in a hospital setting .

I have asked that the CPA  look at all options for step down whilst this is carried out .

Once we have a confirmed diagnosis , We will arrange an urgent CTR .

As you are aware , your daughter is under the Mental Health Act , so we need to work with Elysium until She is ready for step down From the FPICU  facility .

I intend to ring you by Thursday Morning with a confirmed date .

Many thanks

J.  

Well he is talking about next Thursday morning so I will let you all know when in due course. No doubt this will be done via Microsoft Teams. I will also keep you informed as to whether I am barred and as to whether I will be included.

I enjoyed representing myself in court back in 2017. I have never done anything like this before but I liked preparing all the paperwork myself and making sure that the Judge had corrected versions of all documents submitted by the LA. The Royal Court of Justice wanted to meet Elizabeth who was excluded but it was then confirmed she had capacity.

Then what happens is a firm of solicitors can be appointed but in her case the representing firm told Elizabeth that her mother would lose in court and incur extensive costs and advised that she should appoint her sister as NR. I then had no choice but to back and her sister was delegated the role temporarily.

I was then presented with a Consent Order where the LA tried to get me pay £5000 in costs so I crossed out the paragraph I did not agree with ie the costs and sent it back. When I checked with RcJ noone went back to court and realised that I was the Nearest Relative I took back my role by presenting paperwork directly to the l Courts and Tribunal Service and a tribunal was called.

When someone like Elizabeth has been misdiagnosed and receiving the wrong treatment it is a never ending circle of Tribunals/displacements/threats etc – this is why we need a different system. How many people have to attend a Tribunal. The panel consists of a Judge, lay person and a doctor. If this fails on the part of the patient then the NR can step in but what is wrong is that the NR is often bullied and sometimes paperwork is drawn up unlawfully. I have a cheque to prove this as I challenged an illegal detention of 16 hours. Elizabeth received just £1 compensation which I have framed as souvenier. Now further compensation should be considered by ENFIELD as I as NR discovered that a second unlawful detention was made, this time for c5 days and I think there needs to be further settlement which, despite the Bostridge case, should surely come to more than just £1 bearing in mind lessons have not been learned.

https://www.mentalcapacitylawandpolicy.org.uk/bostridge-and-nominal…

Here is information about the “new” chemical Elysium is prescribing that has previously been tried and failed before more than once The Zyprexa Papers

The Zyprexa Papers

On December 17, 2006, The New York Times began a series of front-page stories about documents obtained from Alaska lawyer Jim Gottstein, showing Eli Lilly had concealed that its top-selling drug caused diabetes and other life-shortening metabolic problems. The “Zyprexa Papers,” as they came to be known, also showed Eli Lilly was illegally promoting the use of Zyprexa on child…

More about the author

› Visit Amazon’s Jim Gottstein Page FollowFollow on Amazon

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I think I am going to buy this book and I think ENFIELD MH AND ELYSIUM should also have a copy of this important book.

Learn More

Biography

Jim Gottstein grew up in Anchorage, Alaska where his father was a prominent businessman and his mother one of the most beloved women in town. Jim was on track to go into the family grocery and real estate empire, studying for a business degree at the University of Oregon when the law found him during his required Business Law class. He didn’t miss a question the entire class and realized law was a good fit. He managed to get into Harvard Law School as the only sky-diving applicant from Alaska that year.

After graduating from law school in 1978, Jim went into private practice in Anchorage with Robert M. Goldberg, primarily representing Alaska Native organizations. In 1982, he experienced a psychotic break due to sleep deprivation and was introduced first hand to the mental illness system. He was told he would be permanently mentally ill and to forget about his law career. Luckily, he escaped psychiatry and the experience led him to legal representation and other advocacy for people diagnosed with mental illness not as lucky as he. Jim opened his own law office in 1985, generally focused on business matters, and is now mostly retired from the private practice of law. In 2002, Jim founded the Law Project for Psychiatric Rights (PsychRights) to mount a strategic litigation campaign against forced psychiatric drugging and electroshock, and to inform the public about the counterproductive and harmful nature of the drugs and shock. Show More

I must say this looks a very interesting book and I must get this for my collection. I have plenty of interesting books and another one I like is Pharmageddon and Emotional Health by Dr Bob Johnson. I am going to get in contact with the Author of the Zyprexa Papers.

She has been prescribed various antipsychotics including Olanzapine, (Zyprexa) risperidone (to which she developed a rash) and aripiprazole, with no response.

Dr Bob Johnson – using social delight to defeat social …

http://www.truthtrustconsent.org

‘verbal physiotherapy’ cures frontal ischaemia. My book, How Verbal Physiotherapy works, using social delight to defeat social harm, for all is now up on Smashwords. A paperback version of Verbal Physiotherapy book will be available. More to follow. I’ve just completed a key note speech to a conference in Copenhagen, which was well received.

This book I have amongst my book collection “How Verbal Physiotherapy Works” – perhaps Elizabeth should be having this as treatment instead of a cocktail of poisonous chemicals including I think a Parkinsons drug that she cannot metabolise proven by the P450 liver enzyme test results.

They make you feel like nothing. You are slagged off behind your back, written about in the most negative terms, defamatory comments consistently written in reports by Professionals who take over control and all stick together. They deprive contact with family and quality time spent with your relative. They are rude and put the phone down, then it takes a long time to get through on the phone. The mobile phone forever charging in the office or switched off and there is bad reception. In some cases the patient’s mobile phone can go missing, in other cases it is broken and noone tells you. When you are paying for a contract you wish to know if your relative still has the phone and not speak on a hospital phone which for all you know may be recorded. There is no feedback, no inclusion into ward round meetings – nothing. You are treated like rubbish as though you are invisible. Tribunals are geared to fail because doctors have written the most dreadful negative things and some cannot even get the date of birth right. For a patient to have to sit there listening putting their hand up to speak and being ignored is abuse. When it comes to the family they have little time allowed to speak unlike the professionals who are over represented in their opinion yet exclude the family from everything.

It has now been 2 months since Elizabeth was sent to Corridge Ward, Elysium Healthcare, Thornford Park, Thatcham Berks. This is paid for at enormous cost by Enfield CCG – the Mental Health Commissioners are Peppa Aubyn and Jon Robson. She seems to be deteriorating and we know she is not happy there. Nothing that has been provided so far has been right for Elizabeth. The idea to send someone so traumatised they cannot settle on the local acute ward far away from home has been tried now 8 times. What a huge waste of public money. No questions have been asked as to why care has so hopelessly failed.

The reason care has failed is because Psychiatric Intensive Care Unit are not the right environment for someone with sensory issues and do not specialise in Autism for which Elizabeth has been documented to have throughout the files. So it is down to environment, treatment and assessment but the treatment currently given is for Schizophrenia and no-one in the local team will budge on it despite the fact it has finally been admitted she has autism. No assessment will ever be done fairly under a mental health acute ward or PICU and Elysium have made disturbing admissions regarding this during my phone call yesterday.

I have received very sad text messages from Elizabeth that she is not happy, that she wishes to come home and to be discharged from hospital but I can imagine that this hospital will want to keep her for as long as possible whilst the local area of Enfield do nothing to review the fact she wishes to be with another team. Enfield CCG are paying for wrong facilities at enormous cost of no benefit to Elizbeth and damaging not only to her but her family.

Decisions are made by the Responsible Clinician who staff stick by him. Family have been excluded from the very beginning and not wanted to attend virtually at Ward Rounds. There has been liaison between the Responsible Clinician of Elysium and RC of the Suffolk Acute ward responsible for several seclusions lasting days on end and constant referrals out of area who firmly stick with the diagnosis of Schizophrenia. Being mental health they are not professionals on autism.

When you see someone going downhill as Elizabeth, deprived of family contact/quality time with family this has a knock-on effect and lack of support and bullying towards Elizabeth and family have led to physical ill-health. It takes away your appetite and you cannot sleep. Staff deny seclusion is punishment but both seclusion and exclusion we see as just that.

If you are not Nearest Relative they ignore you completely. If you are Nearest Relative you are also ignored and excluded and if you disagree with treatment you get signposted to a single member of staff to take your calls, to stop you from contacting others to find out information then they hide behind confidentiality by saying the patient does not wish you to know anything but this is done to protect themselves. Coercion and gaslighting is often used when a patient is isolated and staff then have huge influence. I would describe my life and that of Elizabeth as just an existence – there is no hope in sight, no communication whatsoever and in the current pandemic nothing is running efficiently which leads to further delay in outcome.

In such hospitals which are like prison patients are deprived of leave with family, fresh air and families are likewise punished by not being allowed even the smallest amount of time alone. They are deprived leave on the say so of the RC if the RC says that person is not well enough. This is often not the case. At Cambian Elizabeth was said not to be well enough to see family over Xmas but was brought down flanked by 2 nurses to the family home. Rest of family were allowed greater leave that was unescorted. So you are punished. You are treated like a criminal if you dare to disagree with the RC on treatment and diagnosis. Every single visit escorted and intrusive. One member of staff after another sitting there listening to your conversation with a note pad writing down, recording and observing everything said. It is apalling and degrading to be treated this way and never before have we come across such restrictive measures than that at Elysium Healthcare Thornford Park. When you complain staff point the finger of blame on the Responsible Clinician which in this case is Dr DM of Corridge Ward who makes all decisions. The staff and MDT (multi disciplinary team all back him to the hilt.

For about 4/5 days Elizabeth was put in seclusion. No-one knew and in seclusion phones are not allowed and that person cut off from the outside world but this must be terrifying for someone who has a Learning Disability or Autism.

Without proper assessment Elizabeth is stuck in a nightmare situation and Elysium admitted that the assessment had not been completed and is not likely to be finished. Unless such assessment is carried out independently there is no hope for Elizabeth. Yesterday when I spoke to Elysium about my concerns they said that an autism assessment took a very long time and admitted that it was not possible for them to carry out such assessment completely when PICU wards are only for short term but now two months have gone by and Elizabeth has been blamed for not cooperated with the assessment. The RC and previous doctors admit there are autism traits, no final decision has been made therefore a wrong diagnosis sticks. Lack of appropriate communication skills perhaps or bearing in mind treatment that Elizabeth cannot cope with too long an assessment perhaps whereas it could have been done in very short stages over the period of two months.

The local area of Enfield is paying for such care yet state it has nothing to do with them but I believe they have huge influence and have seen this in past file records. The current RC of Corridge Ward has been in touch with the RC Dr HM of Suffolk Ward and the RC of St Pancreas Hospital admitted that they were “guided” by the local area.

Failures of tribunals are based on dreadfully inaccurate reports full of error. Not even date of birth or past history correct and this ultimately results in long term incarceration. It is the local area of Enfield that you need to look to for answers but right now there is a wall of silence. We have experienced nothing but bullying – they have failed to work with the family. They have deprived a proper assessment into autism for many years and have refused to acknowledge complex PTSD and appropriate treatment, bearing in mind multiple abuse and neglect at scheme in the community Moti Villa. Instead professionals have turned their attention on the family particularly the Nearest Relative they have sought many times to displace through court after court at huge public expense.

Attempts of displacement have been made at County Court, CoP and RcJ , confidential court papers sent on the work computer and harrassment by social services to bully you into agreeing a S3. The local area of Enfield have tried to displace me with another family member and the last time tried to put their own representative in my place but I defended myself in court. Whilst full court details not given, only time of Hearing and name of Court displacement temporarily went ahead and a gloating social worker barged in on my visit to see Elizabeth at the acute ward Suffolk with a piece of paper “let’s face it your mother is not fit to be NR” or words to that effect and “London Borough of Enfield are now your NR”. However the Judge wanted to meet the NR and hear more from Elizabeth who was excluded like she was invisible. Elizabeth was then faced with having yet another capacity assessment independently and was found to have capacity. I then was forced to delegate my role and threatened with £5000 in costs.

So when a tribunal fails the Nearest Relative has an important role. The role as NR enables you to challenge the section and this is done through a hospital manager’s Hearing. At Cambian the Hospital Managers would not release paperwork so this did not go ahead. A tribunal was applied for and an independent Doctor’s Report and this was by Dr Bob Johnson who wrote accurately on everything. He said she had complex PTSD and needed intensive trauma therapy but this has never been given. The report was deprived to Elizabeth and ignored by all the team. Elizabeth might be better now if the team had listened.

The law is supposed to protect vulnerable people like Elizabeth under the MHA but it does not. The law does not look at other aspects apart from whether a doctor thinks the patient is fit for release on the basis of “risk to self or others”. It is never about risk to the patient or whether the patient is not getting better because the treatment does not work. The treatment is supposed to be reviewed after 3 months but this is not done fairly at all.

A SOAD doctor appointed by the CQC sounds good but this has not been our experience as all they do is to stick together with the RC who gets other doctors to back them but there is huge conflict of opinion as there are many who disagree but then they say that CURRENT diagnosis and drug treatment given is not working whatsoever. The current environment of PICU every RC has admitted is wrong however when the local area of ENFIELD do not come up with a solution then this is why someone like Elizabeth is left languishing on a ward that is not helping her get better and huge amounts of money are being wasted.

The worst thing about appealing against a section is that the entire team stick together and go out of their way to destroy you. What the RC does is to bar you then they get another doctor to back them which is easy to do. They they try to get rid of you for being “unreasonable” in asking for discharge. So then you as Nearest Relative have to appeal and you have to appoint a solicitor. At this level you get legal aid and when the hospital manager’s meeting fails then Tribunal is the next step. It is such an ordeal for my daughter to have to sit there listening to all their negative comments and for me as Nearest Relative. In fact it is heartbreaking. Elizabeth has full capacity. How many times do they have to put us through this as a family. How many times do I have to defend myself in court against professionals that write nastily and have the power of the law behind them and no-one challenges lies written in many cases.

At the RcJ during the hearing the AMHP presented the Judge with papers I had not seen. I was Litigant in Person and the Judge asked if I had seen the paperwork to which I replied no. I was then handed a copy of a negatively written interview two AMHPs had with Elizabeth when she was obviously not very well.

It is never ending and no solution in sight. All this has a devastating effect on my health and I was in intensive care in January – there has not been a scrap of help in my local area of Enfield.

I have now requested a CTR (Community Treatment Review) but when I phoned the CCG to find out when the meeting will be not one person phoned me back.

Elizabeth was adamant she did not wish to work with the MH team and their appointed care coordinator and neither did she wish to take the medication which all 5 doctors know she was previously found to be allergic to. Elizabeth said it makes her feel very ill after an injection and as a result of fear Elizabeth reacts when staff come towards her in defense. Then staff can say she needs longer detention.

If someone reacts to situations where staff can trigger their reactions down to fear detention can go on for a lifetime and that person drugged and forgotten about. The relative and their family are treated like dirt. For instance staff putting the phone down on you makes you think how can these members of staff can communicate with your relative.

I was told it would take 3 weeks for a CTR to be arranged. One week has gone by and no sign of any date for a CTR so I am posting this blog directly to Enfield CCG, I believe this is now part of North London CCG but in over one week surely the date of a CTR could be arranged.

The ideal solution would be for Elizabeth to move back locally and I am prepared to move in with her but I thought respite was going to be considered and I recently went to Norfolk where they have care farms. I thought I could stay with Elizabeth overnight whilst she spends her time at the care farm run by a MH professional. A care farm is the right environment not a prison. Prison is how I see Elysium, Cygnet, Huntercombe and acute wards and the longer someone is held there the more disabled they become and then of course it becomes more difficult to rehabilitate them in the community and the providers of such care and their shareholders reap the benefit of what the NHS is wasting in terms of public money.

Tonight I have had a call from Elizabeth’s sister very upset that she is not allowed to speak to her and being told by certain staff that Elizabeth does not want any contact with her family. The staff who are denying any contact are Registered Mental Health Nurses on the ward and this is causing a lot of upset within the family. We do not believe for one minute that Elizabeth does not wish to speak to any of us and that is because whilst contact has been denied to us, Elizabeth is being kept in seclusion for a reason. Staff just stick together who on earth would disbelieve anything they say but this is what goes on in these institutions when there is something to hide and when certain professionals wish to be protected. Hiding behind confidentiality is not the first time we have come across such actions. However as I told one RMN tonight the truth always comes out in the end. So the members of staff spoken to tonight have been William and Joel or Jo. They would not give any information stating that Elizabeth said she did not want any information shared but this is what they do when they have things to cover up.

Elizabeth is still in seclusion since the 30th September and we see this as the ultimate punishment. It is also punishment as we see it to be declined contact for the family too. We have never known a hospital to decline right of contact like this to her family ever before and the reason we do not believe that it is what Elizabeth wants is because of her recent text messages to family.

Article 8 of the Human Rights Act 1998. Before the Act, English law did not provide a statutory right to privacy. Article 8 is a qualified right (other rights being absolute or limited) and provides that: Everyone has the right to respect for his private and family life, his home, and his correspondence.

Article 8: Respect for your private and family life …

https://www.equalityhumanrights.com/en/human-rights-act/article-8…

Article 8 protects your right to respect for your private life, your family life, your home and your correspondence (letterstelephone calls and emails, for example). What is meant by private life? You have the right to live your life privately without government interference.

Your right to respect for private and family life …

https://www.citizensadvice.org.uk/law-and-courts/civil-rights/human…

  • Examples of Article 8 Breaches
  • Can A Public Authority Interfere with Your Article 8 Rights?
  • Next Steps
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  • Examples of where there could be a breach of article 8 include: 1. searches and surveillance of your home 2. separation of family members including deportation or removal of immigrants 3. care or adoption orders for children and interference with your parental rights 4. compulsory medical treatment or testing 5. if you’re treated badly in a care home – if it’s severe enough this could also be a breach of article 3 6. your right to privacy at home and at work – for example, phone tapping, the monitoring of emails and int…

Article 3 protects you from:

  • torture (mental or physical)
  • inhuman or degrading treatment or punishment, and
  • deportation or extradition (being sent to another country to face criminal charges) if there is a real risk you will…

https://en.wikipedia.org/wiki/Article_3_of_the_European_Convention_on_Human_Rights

I will keep you all informed tomorrow as to whether Elizabeth is still in seclusion – this is a means of how they can stop contact because in seclusion staff can argue that a person cannot have a phone but we are increasingly concerned and it is good to question what is going on as you only have to read the files to see that professionals are trying to cover things up and are well aware that what they are doing is wrong.

So behind the provision of such “care” is my local area of Barnet Enfield and Haringey MH Trust and the CEO is Jinjer Kandola and the head of Commissioning is Peppa Aubyn and I have been speaking with Jon Robson of Enfield CCG who agrees that a CTR is necessary as how many times is the “care” of a PICU found to be totally wrong and in the community too under the community MH team when Elizabeth is said throughout the files to have Autism. The care she is getting right now on the MH ward therefore is totally wrong and seclusion is punishment and torture to someone who is forcibly drugged on drugs previously found to be allergic to against manufacturer’s instructions.

Just lately it has become impossible to get through to Elizabeth on her mobile phone. I had been receiving text messages, up until a few days ago, some of them quite disturbing then silence. I have contacted CQC in this respect. Whilst I have had virtually no contact, I have received email correspondence from RC Dr DM regarding my request to be included included at Ward Round via Microsoft Teams. The response I received was “no” .

I do think that there are some features of autism present and we did a screening assessment which suggested the same.  Over the next week our psychologist will be meeting with Elizabeth to undertake a more detailed assessment than the screening assessment allows.”  But the Autism diagnosis has not been done correctly. Nothing has been concluded and in any case any assessment where such dispute should not be undertaken by a provider funded at enormous cost by the local area. As one doctor honestly admitted “we are guided by the local area of Enfield” That says it all.

The RC (Responsible Clinician) is continuing to prescribe Paliperidone 100mg (Risperidone Depot) despite 5 drugs charts that state allergic reaction plus other correspondence. Now I have been passed over to a single point of contact namely Robin Stapely within Elysium.

We would not support any unescorted leave at the moment.  Please can you liaise with the ward regarding visits as they have the diary etc and can make the necessary arrangements – Dr DM- Corridge Ward.” DATED 01.10.2020

I have spoken to ******and although she did not say no to you attending her ward round she was very unsettled at the suggestion.  The main reason seems to be that she believes the medication is poisonous and that she does not need it. I think there is a real risk that if you attend ward round it could lead to ******* feeling more stressed and confused and I think that puts staff at potential risk. I am really keen to avoid this and I am aware that until this last week ******** had been making good progress.

It is most certainly not Elizabeth who does not want me at Ward Round.

Here are extracts of another email I have just received:

I am the Head of Social work at Thornford Park Hospital and the Lead Safeguarding Officer. It has been agreed that I will be your main and only  point of contact at the hospital moving forward to better support you and to add clarity with communication.  May I therefore ask that you direct any communication to myself and request that you no longer contact the ward or other members of the care team. I have advised all members of the care team to forward any communication to myself to which I will respond accordingly. I have advised all members of the care team to forward any communication to myself to which I will respond accordingly. That said , ******is not currently consenting to anyone from the hospital sharing information with you so I would not be able to discuss any aspect of ******** care and treatment presently.” Dated 02.10.20 I have contradictory messages.

I was also advised to contact Trish Maher of the Advocacy People. org

DEPRIVAL OF CONTACT WITH ELIZABETH

This is the pattern of what they do when a team decide to ban you from contact. We have experienced this kind of thing before at other institutions. So they have allocated a named contact and he is not around to speak to you when you phone and then Staff are instructed not to speak or give out any information to myself, family or friends. Only Robin Stapely – Head of Social Work is allowed to speak. I had found out by chance that Elizabeth was in seclusion again. I wondered if this could possibly be anything to do with the fact that her takeaway went missing and that she reacted but in these institutions I know from other former patients that staff can even incite someone to behave in such a way to justify punishment. Very disturbingly yesterday I phoned to speak to the ward and was put through to the Lead Nurse, Clare Whiting, who refused to give any information on Elizabeth who I knew was in seclusion. Today I phoned but Elizabeth has no phone to answer. The Lead Nurse, Claire Whiting told me there were witnesses listening to my conversation with her. To do this, it shows they are trying desperately to protect one another so I also had someone around as witness to my call because previously, at Cygnet Godden Green, they tried to label me as aggressive/threatening but I had a witness to state otherwise. Cygnet Godden Green then threatened me with their solicitors D A C Beechcroft ref GEW who wrote following my verbal complaint regarding their reports full of error where not even date of birth was correct prepared for court purposes. How can anything be done fairly when doctors deliberately write in inaccurate and extremely negative terms with the purpose of making someone look entirely bad and regarding failure. It took me all night to alter not just Cygnet’s Reports but other incorrect file records too such as Social Circumstances and that of Elysium, whose RC based his belief’s on Elizabeth’s character after just one initial meeting without having had any contact with family as we have been excluded from the beginning like we do not exist. Instead he turned to the RC of the local area whose reports were equally inaccurate and who has failed to work together with the family. In fact on two occasions she had been unlawfully detained under the MHA. This shows how the MHA does not protect the weak and vulnerable. To think such reports go before a court as flawed evidence where decisions are made that affect everyone’s life with what can be devastating consequences.

I am currently waiting to hear from Cygnet Godden Green as I have apparently been accused of impersonating another mother and that I was threatening so they reported me to Police and D A C Beachcroft Solicitors who sent me a threatening letter but have refused to provide the evidence. There was a witness to the conversation who has made a written statement to the contrary. I would welcome being provided such evidence of my so called impersonation of another mother so that I can insert this on my blog then everyone can make judgement but for some strange reason there is a wall of silence from Cygnet. So Cygnet please provide me with the recording so that everyone can hear my impersonation of another mother.

It has been several days now since I last spoke to Elizabeth and whilst in seclusion Elysium have the excuse that they do not allow phones for safety reasons so they say. I found out today from Claire Whiting that Elizabeth has been in seclusion since 30th September – several days held prisoner in one room and deprived of contact with friends and family as punishment. There was mention of an incident on the ward but anything can be said of anyone in there and it is so hard to believe a word they say because of the enormous inaccuracy of what is written in their records. I have acquired records full of error many times before containing completely untrue comments where professionals rip not just the patient but their family to shreds behind your backs. If such an incident mentioned did occur then this disputes the fact that any progress whatsoever is being made with Elizabeth and that she is improving. Therefore the care being provided under Enfield is a complete and utter waste of public money. Elizabeth was not held in seclusion under Cygnet Godden Green where not one incident was recorded neither at St Pancreas Hospital Ruby Ward so what on earth is going wrong at Elysium Thornford Park since I have the most disturbing text messages and now all of a sudden they are depriving contact? Perhaps Robin Stapely would like to respond via my blog so that everyone can hear. I don’t know what Elysium’s seclusion policy is but I just obtained that of Enfield via my FOI request plus the cost of Cygnet which works out to c£28K for 5 weeks. Time and time again Suffolk Ward/Chase Farm Hospital Enfield have sent my daughter away out of area to similar PICU facilities completely the wrong environment as they do not have any decent facility or care provision locally. It is obvious that the treatment of Paliperidone depot is clearly NOT WORKING. The correct environment would be one of peace and tranquility with staff who have the skills to communicate effectively as with Autism someone has a different way of communicating that is not understood by MH professionals.

It was mentioned at a recent meeting Procyclidine was offered but declined by Elizabeth. This is for Parkinsons Disease so perhaps Elizabeth should have a full and thorough physical examination done. She is now a size 22 and this is because she has no freedom and is being held like a prisoner.

Elizabeth is described as being cold and aloof by the RC who does not know her. These highly qualified professionals do not appear to have communication skills for autism and LD and I can’t wait until the mandatory training comes into effect through the Oliver McGowan Foundation and this is why Elizabeth is not being treated fairly or humanely.

Since Elizabeth has been at Elysium I have experienced both good and bad communication with staff. Some have put the phone down and some have been very rude. I have thought that what hope is there when some of these professionals cannot even communicate with me nicely.

When I phoned recently to enquire about a takeaway I had ordered costing nearly £30 had been received by Elizabeth communication was not good initially. The Thai takeaway restaurant in Newbury insisted they had delivered it but Elizabeth never received it. Now I have a photo as evidence. What I did not know was that Elizabeth was in seclusion at the time as my order was on the 1st October and she was placed in seclusion on the 30th September – it’s been several days now that she has been held in seclusion and to think this is the care Enfield are providing and paying a fortune for.

I had a conversation this morning with Clare Whiting, Lead Nurse about seclusion being punishment which she strongly denied. It has become very clear that the care/treatment offered by Elysium is not working at all otherwise why would she be in seclusion all this time. She went on to say that Elizabeth was well looked after and received all her meals whilst in seclusion. That is of no consolation whatsoever when contact to/by family is clearly being deprived and seclusion is deprival of contact. When this happens it makes you think further afield and I am thinking back to Cambian when exactly the same thing regarding contact was experienced.

Elizabeth in my opinion is not being treated well by Elysium. They are by far the most restrictive institution of all regarding leave and access to family. Our visits have been intrusive because we are treated like criminals with every word recorded. No quality time alone has been allowed whilst Elysium exercise complete control over Elizabeth and this control can of course affect someone’s behaviour. Control is deprival of their human rights under Art 8 with the pretence that this is what the person wants ie does not want anything discussed when that person has written very contradictory comments. It is a means where staff try desperately attempt to shielf/protect themselves sticking together when they know full well they are giving a drug previously found to be allergic to and contraindicated. No lessons have been learned by the case of Oliver McGowan. Seclusion and deprival of contact is done through isolation/coercion and gaslighting. It is evil what is going on in the UK.

I have requested a CTR from the local area of Enfield. Care at Elysium Thornford Park is clearly not working and this whole situation is affecting the entire family when we have no contact. Under their care it must be questioned as to why no MRI or investigation into the PCOS or cyst in her head plus hormone issues have not looked into as this was discussed at a previous tribunal.

Care at Cygnet cost £28K for 5 weeks so now I am waiting for a FOI to see how much the rest of the care has cost since May 2020 when nothing whatsoever has been right for Elizabeth and every single RC including the current says a PICU is not the right environment. Enormous money has been wasted and this must surely be of public interest because in my local area funding is often deprived to voluntary organisations such as Carers Group, Disability Action who do a good job in the community so why is so much money being wasted? Why aren’t families listened to?

Elizabeth wants to be with another team so why is this being ignored when her needs are NOT BEING MET UNDER ENFIELD COMMUNITY REHAB – a MH team. That was clear from a recent meeting. There are many more doctors stating Autism, one stating brain damage, another two stating complex PTSD. What a waste of money when someone like Elizabeth is not getting the right care in the right environment and is becoming more and more traumatised.

You as a parent are left feeling hopeless. I have offered to move in to Elizabeth’s flat so she is not alone. I have offered to stay with her overnight so she can go to a care farm during the day in Norfolk for respite.

How comes an entire team at Elysium getting paid a lot of money from the local area cannot manage my daughter hence punishment of seclusion lasting days on end when a single former MH nurse could take Elizabeth into her own home, take her on holiday and then onto Australia. The wonderful organisation of Working to Recovery tried to help my daughter and Elizabeth came back well. My only regret was that she ever came back to my dreadful local area of Enfield where we as a family have received nothing but bullying and lack of support. If we are experiencing this then you can imagine what is going on to someone like Elizabeth held prisoner in the name of “care”. My only hope is that she will be moved out of this institution as soon as possible and that she receives a complete review of her treatment. Nothing fair will be accomplished under Elysium in terms of diagnosis assessment and the matter of family being denied. How can anything be done fairly when Elysium are receiving so much money from the local area to keep her like a prisoner when what is needed most of all is an assessment for the autism completely independently done and there are already two reports stating complex PTSD and poss LD.

When certain doctors do not budge on diagnosis preferring to ignore the bulk of doctors who disagree as well as manufacturer’s instructions/advice when evidence of allergy this can lead to terrible injury and death and Elysium are fully aware of this.

Having spoken to Jeremy, Bethany’s Dad there is a glimmer of hope that a CTR (I had never heard of before) might bring some changes for the better in order that the right kind of help is given rather than a secure prison style environment. I am pleased to hear that Bethany is getting such decent care through Merseycare when not so long ago she was held in seclusion and fed through a hatch. It makes you wonder why other areas cannot offer the same care as Merseycare or Working to Recovery and that is not to keep someone a prisoner, but treat them with dignity and respect and recognise that families are important and that someone like my daughter cannot stand a noisy environment and loves animals. Why can’t these so called highly qualified professionals understand this simple fact that what is being provide and what treatment they are giving is wrong.

ENFIELD AND BARNET MENTAL HEALTH TRUST (jinjer Kandola CEO) This area has consistently deprived anything decent in terms of care. My complaint through Pals has come to a standstill and have sent my daughter far away from home and family to a prison facility PICU for the third time in between seclusion after seclusion dished out in punishment by various doctors where she has no contact with her family for days on end where none of us can speak to anyone apart from currently Robin Stapely who is Lead Social Worker. This is the person who, according to his email, has control over what staff can say and what information can be divulged and has dictated to my family/myself we cannot phone the ward. He is therefore depriving contact in breach of Art 8 HRA. I was told today that daily reviews of Elizabeth’s seclusion are being given by the MDT of Elysium but this is of no consolation as, under Elysium’s care, Elizabeth seems to be deteriorating so scrutiny needs to come outside sources and not by ENFIELD AND ELYSIUM in order that a fair picture can be gained totally independent . In order to thoroughly investigate then the person to be interviewed should be Elizabeth without members of staff being present.

The effect of her care/treatment and seclusion is having a devastating on myself and others right now. Certainly without doubt this is affecting my physical health, having had a major operation in January following stroke. I can honestly say that it is lack of communication and the way I and other family members are being treated that is contributing detrimentally in this connection.

These professionals employed by organisations such as Elysium and Cygnet have their jobs to think of so that comes before the wellbeing of a vulnerable patient as you only have to look at the parents fighting for justice when their sons/daughters end up dead in such organisations to question the motives behind some of these professionals regardless of their high qualifications and whether or not they went to university.

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