Since July 2019, Elizabeth has been living in a flat of her very own which is the very best accommodation she has ever had independently. She is 32 now and has been disabled by her shocking treatment which I will write more about separately.
I am astonished that after all this time nothing whatsoever has been provided to Elizabeth who desperately needs some support in the community.
I was expecting an Agency to be involved providing carers.
The flat was not even ready when she was discharged into the community.
The Community Mental Health Team involved is Enfield Community Rehab. This team have in the past refused direct payments which I think is a brilliant idea. I had this for my father and was able to provide care which worked very well and enabled him to live in the community for many years.
Elizabeth does not need much. However, absolutely nothing is being provided and this is neglect on their part. I’ve heard all about shortage of money but this team have spent a fortune on taking me to court time and time again in their many attempts to get rid of me and to displace me as the Nearest Relative/Next of kin. So the money is being mis-spent as I see it as what should be done, is to work with the family and provide the necessary care and support in the community but this is not being done.
The current care plan this time does not include the previous pack of lies written by Admin Assistants based at St Ann’s Hospital. This time, the care plan identifies her needs however these needs are not being met/provided for. Reading the care plan you would think that she is getting support from the team themselves but in fact it is me as a mother who is giving that support at the weekends when I try to help her with shopping, other problems and take her swimming.
Elizabeth needs counselling so why not provide it with a counsellor of her choice?
The counselling Elizabeth needs is of a very specialist nature and because of communication difficulties Elizabeth needs someone who can understand and communicate with her like Baroness Hollins.
Elizabeth is not on a CTO or on any mind altering chemicals and the care plan states that what is needed is psychological help but NOTHING is being provided.
It is clear that Elizabeth has been brain damaged by her treatment and is suffering from CBI (Chronic Brain Inury) but when I turned to the Charity “Headways” I could not believe it – I was told Elizabeth did not fit their criteria so I argued that she had been brain injured by her treatment but they were adamant that this was the wrong kind of brain injury. I found this quite ridiculous as the only category they would accept was brain injury at birth and as a result of accident but it is a known fact that injury can be caused by excessive drugging of psychiatric drugs – it takes years to recover from. I was hoping for a team who would understand Elizabeth and be able to communicate with her and thought Headway would employ staff who deal with vulnerable people who suffer from anger issues/communication issues because of brain injury caused by psychiatric drugs prescribed by psychiatrists as I have read from certain files “above BNF levels”.
In the care plan it identifies the need for anger management and now that Elizabeth is drug free she does need help in this area. The anger issues are definitely in need of help
Relationships/friendships – yes another correctly identified area
Budgeting – this is very important. This is all falling on me and Elizabeth is turning to emergency services for support in the absence of any care being provided and this has been going on far too long. I have patiently waited all this time for Enfield Community Rehab to provide the right support but they are doing nothing.
There is no way Elizabeth is well enough to get a job or even go to college right now. She is getting more and more distressed and what is needed is a personal assistant or young people to be involved who are studying for nursing in the area of mental health and psychology. Please do get in touch if anyone wishes to gain invaluable experience and I am more than happy to even have someone come and stay in the family home as they can see the full picture. What is lacking is a team that work together with the family and not against.
Elizabeth would benefit by being invited out with a group of sensible, responsible, young people and I will contact local universities to find out if there are any students who would like to gain brilliant experience working open dialogue style with myself and Elizabeth.
Elizabeth does not require consultant Psychiatrists or doctors in respect of pushing poisonous mind altering chemicals. What Elizabeth does need is psychotherapy, help and guidance with friendships and education in terms of any kind of relationship and encouraged to integrate into society.
Instead Elizabeth is signposted to the local community mental health centres and Mind which is not even in the nearby locality. What should be done is help in integrating Elizabeth into society. What should be provided is someone to accompany Elizabeth to some appointments such as MRI scan or blood tests. Elizabeth needs hormone tests as identified by a recent tribunal. I have always thought Elizabeth had underlying physical health problems but doctors have ignored the DSM – I have read that a mental health diagnosis should be discounted when drug induced – yes Prozac induced psychosis and when there are underlying physical health conditions which I have proven. I am contacting Baroness Blackwood as the balancing problems are of concern. I have just had the genetic test results and these are most interesting and highlight a condition that should not be ignored. There are some “rare” genetic causes that can be mistaken for mental health condition when all along it is physical. Instead of “lets rule out anything organic” I now want things done properly.
So the other things that need to be considered is “she does not want to be overwhelmed with too many activities”. Overwhelmed by what???? This is laughable when what is being provided – ABSOLUTELY NOTHING. It is mentioned art therapy or music therapy – where is this Enfield Community Rehab? I think these two things would be a great idea.
So art therapy and music therapy and psychotherapy is what I provided in unique care featured on Rightful Lives Exhibition. All of this benefitted Elizabeth and being in a natural environment of stunning beauty with animals. We didn’t recognise her when she came back in December 2016 and now I am not happy as Elizabeth is left to go downhill by this team who have spent a fortune on court action against me and refused to provide any care when Elizabeth was at home.
I never get a response to my emails – these are ignored.
So today I get a call from the Police that Elizabeth contacted in distress. That distress is not a matter that should concern the Police but should have been dealt with under community care. That issue was that her bank card was declined but the limit on her card had been well and truly exceeded. There is no guidance towards budgeting and all I have been doing is getting regular statements and posting it to Elizabeth keeping her informed of her balance. However, because Elizabeth has nothing to do all day long and no company Elizabeth has been going out shopping. Today her bank allowed for her to exceed her limit on her card and Elizabeth who has no support under community care regarding finances has overspent which means not only will I have to help her again but also confiscate her card otherwise she will go overdrawn. Elizabeth will see this as abuse but she has exceeded her limit and this would not have occurred if she had a personal assistant to help her in the community.
It would be so nice if one person can come round once a week, sit down with Elizabeth and explain and try to help as regards finances.
I make sure I pay her bills at the end of the month. Everything is up straight.
Elizabeth also needs someone to go with her to blood tests.
It is most upsetting to see such neglect towards my daughter as if she had a little direct payments provided I would most certainly have arranged at least one activity such as the art therapy which she said she would like to do as well as someone to help her budget.
I have written again today to the team and I will let you all know if I get any response.
What I have seen is decline of my daughter who once had a job, was going to r College regularly, who had a car, was learning to drive etc. Instead Elizabeth has been made disabled by her appalling treatment.
Now that Elizabeth has bought a new guitar (this time an electric guitar) I would like to see her with at least one activity and with the abundance of money CMHT have spent in the wrong direction it would nice to see them spend the money in the right direction. It is cheaper to have Elizbeth in the community rather than on an acute ward or even worse in private prison style Assessment Treatment Units costing £13000 a week.
Her needs are simple and do not cost a lot but ENFIELD COMMUNITY TREATMENT TEAM are failing to provide the basics in terms of care and this is falling on emergency services such as police and ambulance when Elizabeth becomes distressed and overwhelmed with loneliness and isolation in the community.
I have read so many accounts of parents who want their sons and daughters out their in the community from these terrible institutions but I can see that Elizabeth has been damaged beyond recognition and has come out of the system completely disabled and just dumped into the community. The appalling reality is there is no care in the community to someone who has come out of the system damaged and injured.
MESSAGE TO ENFIELD COMMUNITY REHAB TEAM – It is not the flat that is the problem as you keep asking where else do you want to live. The flat is situated in an area familiar to Elizabeth but I as a mother am the only person helping her. What the problem is TOTAL LACK OF PROVISION OF ACTIVITIES AND CARE AND YOUR REFUSAL TO PROVIDE DIRECT PAYMENTS – as I would most definitely have something in place for Elizabeth after all this length of time.
I would praise local emergency services both Police and Ambulance for their tolerance and support in terms of this neglect to my daughter.