Archive

Monthly Archives: October 2019

I can only spend weekends with my daughter Elizabeth but try to make the most of it. I try and take her out places and yesterday was a brilliant day.  In the morning I had a few things to do and took Elizabeth along with me.   I went to BMW for my car to be booked in.   I took Elizabeth with me to the town and had various things to sort out.  I then tried to help Elizabeth with budgeting which she finds impossible to do.  It is all too easy to spend money in shops not realising how this can accumulate.  Elizabeth has never had to manage money before – care under supported housing/living schemes do not offer the right kind of care/support to those who have been institutionalised for years such as Elizabeth in order that they can  live an independent life in the community.      Staff mainly would stay in their private rooms/office and not engage with residents.  Elizabeth has communication difficulties in any case and can take things the wrong way.     If a vulnerable person did not ask for help they would not receive it.    Basics of in-house help are given, such as towards preparing and cooking meals if requested but nothing that is relevant for living in the community outside such as taking someone out shopping, helping them budget, helping them relate to other people particularly when I have been saying all along that my daughter is with the wrong team as she is autistic.

After a nice time looking round the town we drove to Barnet.  The shops were closing but there was still time to take Elizabeth shopping and as I am trying to help her with budgeting I took her to Waitrose.    There were so many things being sold at reduced prices and perfectly good.    I helped Elizabeth select the items she wanted but because Elizabeth has once again overspent so I am having to help her out.   She has generously brought presents as well as children’s items for Halloween, presents for her sister/for me and as a result she has no money.

Today I offered to take Elizabeth swimming even though I did not feel like this myself.    We went swimming to a lovely pool just outside our local area.   I was swimming in the lanes but noticed Elizabeth was not doing much swimming but talking to people.  I had remembered to bring her water as last time she flatly refused to go in and swim without any water.  I tried to explain to Elizabeth that people are there to swim not to chat and listen to the kind of talk Elizabeth can give which is quite heavy.   I had to put up with listening to depressing music in the car and Elizabeth was singing along to a band called Nightwish that I had taken her to see once and nearly got arrested because we had been conned by Viagogo for last minute tickets that were not accepted at the venue. I have written all about this in a separate blog.   I could see Elizabeth was not her happiest today and tried not to engage with in-depth conversation whilst we were out.  So I did my 20 lengths then went in the sauna/steam whilst Elizabeth waited for me.     After that Elizabeth wanted to go somewhere to get something to eat and I thought of a local sports centre nearby which I thought would be more peaceful as they have a terrace and a nice restaurant.  I bought lunch but had no appetite myself as Elizabeth was clearly not happy.  I decided to take her home after that – maybe she had not had a good night’s sleep –  this could be a trigger point.  Soon after I arrived home  I received a call from paramedics who had been called out once again.  I was in despair about this.   I have hardly had any time to myself this weekend but still feel better than if Elizabeth was back on a ward or in a distant care home or scheme.  I would rather give up what little time I have to keep Elizabeth where she is for the time being rather than her ending up in another dreadful supportive housing or living scheme or worse still a care home or hospital where they drug people like my daughter to the hilt.   So I spoke to the Paramedics and explained the situation.  Elizabeth already said she did not wish to go to hospital.    She is not a risk to self/others but needs company or something in terms of care that is for sure.

This whole situation is getting to be a nightmare and the problem is that the community mental health team do not recognise anything other than personality disorder or schizophrenia.    What is constantly being dismissed is “learning /developmental disability/Aspergers and she was told at Huntercombe Roehampton she had high spectrum Aspergers.

The paramedics and police have been marvellous in the London Borough of Enfield but the community mental health team combined with GP which is Carlton House Surgery Enfield should be referring Elizabeth for assessment for autism and placing her with a Learning Disibility/autism community team as Elizabeth says no one understands her and there clearly is no training under the MH to understand about autism/aspergers.   In fact the paramedics today suggested LD/team.

Despite the fact Elizabeth can look after herself and cook and shop she needs a team who will provide something in the community in terms of support and this is where the community MH team are failing.

So I believe that there has been a recent visit by her Psychiatrist Dr IM of Enfield Community Rehab Team plus care coordinator PM.   If this is true what Elizabeth told me I am saddened –  medication was suggested plus going back into supportive living/housing during their visit.    Also, the Crisis Team are supposed to visit regularly – they suggested going back to hospital and this is totally wrong.

Why should the above apply at all when it is quite simple what is needed and would be far less costly.   Elizabeth needs a group of young friends to go out with who might be students who study psychology or nursing or even social work.  I would personally pay for such a night out for everyone if they could include Elizabeth for one evening.  If these young  “friends” are studying to go into the profession I would like them to see at first hand how lack of care in the community is affecting someone like my daughter.

When it was suggested by Dr IM medication – the answer was clearly no.

When it was suggested by PM – care home/supported housing or living the answer was clearly no and just look at was Enfield have provided in that connection in the past.

When it was suggested to Elizabeth “do you need to go back into hospital – the answer was clearly no and Crisis Team the answer will always be NO.   This same answer has been given more than one time to Police and to paramedics.

So keeping someone like my daughter who has been so dreadfully damaged by the care provided to her over a period of 14 years in dreadful institutions is perhaps all too convenient for the team but it is not the answer at all.

No way would Elizabeth have once called out ambulances and police.   No way would she be so disabled as she is now had she not been prescribed so many concomitantly prescribed drugs at 2 x bnf level so it stated in the files.   It is the NHS under mental health care that has dished out the apalling “treatment” resulting in such disablement.  Then they palm her onto institutions such as Cygnet, Cambian, Bedlam, Huntercombe all offering enormous quantities of mind altering drugs and none of the local.

MESSAGE TO THE TEAM:

I would like my daughter assessed properly NOT BY YOUR DEPARTMENT, ENFIELD COMMUNITY REHAB, but by Specialists in LD/autism who can properly communicate with her.   As nothing is being provided for Elizabeth of the correct kind of care needed ie  budgeting, shopping, friendships etc according to your good care plan, the first reasonable care plan you have ever produced, then I would like Elizabeth transferred to a more appropriate team who can provide the very basics or could I have the direct payments so I can arrange myself.   The right care is NOT – taking Elizabeth away from her home and dumping back into supported housing and living where a Death Plan was produced by one,  cutting out her family.   The right care is also not a hospital or ATU when Elizabeth can do shopping, can clean, can cook – she has qualifications in this respect.    You know what help is required as identified in your care plan but you are failing to provide this.  Most of all my daughter needs an assessment that is carried out completely independent of your department and can only be done by experts in the field of  LD/Developmental Disbility/high spectrum aspergers.    This is mentioned many many times in the files AND not forgetting the wonderful Expert Witness report for Cambian by Dr Bob Johnson.    This report was deprived to Elizabeth and I got hold of a copy of it and showed it to her.   It says PTSD.  It recommended trauma therapy –  so Enfield Community Rehab team where is the specialist treatment my daughter needs as a result of the abuse she has suffered in certain community care home provisions?   Here is one of them RATED GOOD BY THE CQC  PHOENIX HOUSE STEPPING STONES NORTHAMPTON “Elizabeth must manage her foods as she will be without food at the weekend.”   I’ve got it all in writing and everyone’s conversation including the CQC inspector who I feel like naming right here on Twitter.


ILLEGAL DETENTION UNDER ENFIELD:


I  also wish to tell everyone how Elizabeth challenged her illegal detention under ENFIELD CHASE FARM HOSPITAL SUFFOLK WARD.   Elizabeth was detained 16 hrs illegally but, following the case of :

TW v Enfield Borough Council [2014] EWCA Civ 362, [2014 …

http://www.mentalhealthlaw.co.uk/TW_v_Enfield_Borough_Council_(2014)_EWCA_Civ…

TW v Enfield Borough Council [2014] EWCA Civ 362, [2014] MHLO 26. TW v LB Enfield [2013] EWHC 1180 (QB), [2013] MHLO 59; Appeal status. This claim was subsequently settled for £27,000. Thanks to Helen Curtis of Garden Court Chambers and Michael Paget of Cornerstone Chambers for providing this information (emails 9/6/16 and 10/6/16). ICLR

TW v LBE I was totally unaware –

To protect TrustS/lAs there has been changes in law which now makes it impossible to challenge further.  Below is the example.

https://www.weightmans.com/insights/bostridge-v-oxleas-nhs-foundation-trust/

Elizabeth was awarded £1 compensation for 16 hours illegal detention.

The above together with lack of humane mental health care sums up the disgrace of how the most vulnerable people are being treated and abused under the UK.

I do not want Police and Paramedics further bothered by Elizabeth’s calls when Elizabeth, a product of failure under the NHS care, should be receiving a proper assessment and being transferred to a team that can at least provide something in the community the current care plan recommends.    A visiting support worker who is properly trained in autism would be good,   even unqualified “friends” of about her age to take her out  who are studying for nursing/psychology.

To me there is nothing complex whatsoever in what is needed here.   Also it is much cheaper to provide the care my daughter needs in the community than send her off to horrific “prison” environments –  you have tried and failed at this so now Elizabeth needs something better provided and the kind of therapy that should be provided that worked in Scotland and Australia was psychotherapy and a perhaps EMDR should be tried.

Dr R D Laing’s colleague and former colleague told me he never ever used mind altering psychiatric drugs and that psychotherapy was all that was needed and he is absolutely right.  I thoroughly agreed with him and that is why I sought the correct care that I provided privately thanks to Working to Recovery.   More funding needs to be given to wonderful organisations such as this to set up therapeutic communities and recovery houses on a small scale throughout the UK.

I would commend Norway and Professor Peter Gotzsche –  it is a pity the UK is so behind the times when it comes to forced treatment.  Elizabeth was getting daily injections of Lorazepam on Suffolk Ward and it is no wonder she has suffered such trauma all down to an area of the NHS that is not working and could learn from Norway’s wonderful example and not forgetting Working to Recovery.

Forced Drugging with Antipsychotics is Against the Law …

https://www.madinamerica.com/2019/05/forced-drugging-antipsychotics-against-law

In Norway, the Ombudsman concluded in December 2018, with reference to the Psychiatry Act, that it violated the law to use forced treatment with an antipsychotic in a concrete case.

  • Author: Peter Gøtzsche, MD

This is where the funding should be directed to organisations like Chy-Sawel and Working to Recovery in order to provide the correct care and a community involvement to help people like Elizabeth from feeling isolated and abandoned then instead of providing what is right they say “how about hospital or how about a care home or how about supported living.”

 

The way Elizabeth has been treated is a disgrace but the Paramedics and the Police have been wonderful in ENFIELD.

 

Advertisements

Since July 2019, Elizabeth has been living in a flat of her very own which is the very best accommodation she has ever had independently.  She is 32 now and has been disabled by her shocking treatment which I will write more about separately.

I am astonished that after all this time nothing whatsoever has been provided to Elizabeth who desperately needs some support in the community.

I was expecting an Agency to be involved providing carers.

The flat was not even ready when she was discharged into the community.

The Community Mental Health Team involved is Enfield Community Rehab.  This team have in the past refused direct payments which I think is a brilliant idea.  I had this for my father and was able to provide care which worked very well and enabled him to live in the community for many years.

Elizabeth does not need much.   However, absolutely nothing is being provided and this is neglect on their part.    I’ve heard all about shortage of money but this team have spent a fortune on taking me to court time and time again in their many attempts to get rid of me and to  displace me as the Nearest Relative/Next of kin.   So the money is being mis-spent as I see it as what should be done, is to work with the family and provide the necessary care and support in the community but this is not being done.

The current care plan this time does not include the previous pack of lies written by Admin Assistants based at St Ann’s Hospital.  This time, the care plan identifies her needs however these needs are not being  met/provided for.  Reading the care plan you would think that she is getting support from the team themselves but in fact it is me as a mother who is giving that support at the weekends when I try to help her with shopping, other problems and take her swimming.

Elizabeth needs counselling so why not provide it with a counsellor of her choice?

The counselling Elizabeth needs is of a very specialist nature and because of communication difficulties Elizabeth needs someone who can understand and communicate with her like Baroness Hollins.

Elizabeth is not on a CTO or on any mind altering chemicals and the care plan states that what is needed is psychological help but NOTHING is being provided.

It is clear that Elizabeth has been brain damaged by her treatment and is suffering from  CBI (Chronic Brain Inury) but when I turned to the Charity “Headways” I could not believe it – I was told Elizabeth did not fit their criteria so I argued that she had been brain injured by her treatment but they were adamant that this was the wrong kind of brain injury.  I found this quite ridiculous as the only category they would accept was brain injury at birth and as a result of accident but it is a known fact that injury can be caused by excessive drugging of psychiatric drugs – it takes years to recover from.   I was hoping for a team who would understand Elizabeth and be able to communicate with her and thought Headway would employ staff who deal with vulnerable people who suffer from anger issues/communication issues because of brain injury caused by psychiatric drugs prescribed by psychiatrists as I have read from certain files “above BNF levels”.

In the care plan it identifies the need for anger management and now that Elizabeth is drug free she does need help in this area.  The anger issues are definitely in need of help

Relationships/friendships – yes another correctly identified area

Budgeting –  this is very important.    This is all falling on me and Elizabeth is turning to emergency services for support in the absence of any care being provided and this has been going on far too long.  I have patiently waited all this time for Enfield Community Rehab to provide the right support but they are doing nothing.

There is no way Elizabeth is well enough to get a job or even go to college right now.  She is getting more and more distressed and what is needed is a personal assistant or young people to be involved who are studying for nursing in the area of mental health and psychology.   Please do get in touch if anyone wishes to gain invaluable experience and I am more than happy to even have someone come and stay in the family home as they can see the full picture.     What is lacking is a team that work together with the family and not against.

Elizabeth would benefit by being invited out with a group of sensible, responsible, young people and I will contact local universities to find out if there are any students who would like to gain brilliant experience working open dialogue style with myself and Elizabeth.

Elizabeth does not require consultant Psychiatrists or doctors in respect of  pushing poisonous mind altering chemicals.  What Elizabeth does need is psychotherapy, help and guidance with friendships and education in terms of any kind of relationship and encouraged to integrate into society.

Instead Elizabeth is signposted to the local community mental health centres and Mind which is not even in the nearby locality.  What should be done is help in integrating Elizabeth into society.  What should be provided is someone to accompany Elizabeth to some appointments such as MRI scan or blood tests.  Elizabeth needs hormone tests as identified by a recent tribunal.   I have always thought Elizabeth had underlying physical health problems but doctors have ignored the DSM – I have read that a mental health diagnosis should be discounted when drug induced –  yes Prozac induced psychosis and when there are underlying physical health conditions which I have proven.  I am contacting Baroness Blackwood as the balancing problems are of concern.  I have just had the genetic test results and these are most interesting and highlight a condition that should not be ignored.  There are some “rare” genetic causes that can be mistaken for mental health condition when all along it is physical.  Instead of “lets rule out anything organic” I now want things done properly.

So the other things that need to be considered is “she does not want to be overwhelmed with too many activities”.    Overwhelmed by what????  This is laughable when what is being provided – ABSOLUTELY NOTHING.    It is mentioned art therapy or music therapy –  where is this Enfield Community Rehab?  I think these two things would be a great idea.

So art therapy and music therapy and psychotherapy is what I provided in unique care featured on  Rightful Lives Exhibition.  All of this benefitted Elizabeth and being in a natural environment of stunning beauty with animals.   We didn’t recognise her when she came back in December 2016 and now I am not happy as Elizabeth is left to go downhill by this team who have spent a fortune on court action against me and refused to provide any care when Elizabeth was at home.

I never get a response to my emails – these are  ignored.

So today I get a call from the Police that Elizabeth contacted in distress.   That distress is not a matter that should concern the Police but should have been dealt with under community care.  That issue was that her bank card was declined but the limit on her card had been well and truly exceeded.  There is no guidance towards budgeting and all I have been doing is getting regular statements and posting it to Elizabeth keeping her informed of her balance. However, because Elizabeth has nothing to do all day long and no company Elizabeth has been going out shopping.  Today her bank allowed for her to exceed her limit on her card and Elizabeth who has no support under community care regarding finances has overspent which means not only will I have to help her again but also confiscate her card otherwise she will go overdrawn.  Elizabeth will see this as abuse but she has  exceeded her limit and this would not have occurred if she had a personal assistant to help her in the community.

It would be so nice if one person can come round once a week, sit down with Elizabeth and explain and try to help as regards finances.

I make sure I pay her bills at the end of the month.  Everything is up straight.

Elizabeth also needs someone to go with her to blood tests.

It is most upsetting to see such neglect towards my daughter as if she had a little direct payments provided I would most certainly have arranged at least one activity such as the art therapy which she said she would like to do as well as someone to help her budget.

I have written again today to the team and I will let you all know if I get any response.

What I have seen is decline of my daughter who once had a job,  was going to r College regularly, who had a car, was learning to drive etc.    Instead Elizabeth has been made disabled by her appalling treatment.

Now that Elizabeth has bought a new guitar (this time an electric guitar) I would like to see her with at least one activity and with the abundance of money CMHT have spent in the wrong direction it would nice to see them spend the money in the right direction.   It is cheaper to have Elizbeth in the community rather than on an acute ward or even worse in private prison style Assessment Treatment Units costing £13000 a week.

Her needs are simple and do not cost a lot but ENFIELD COMMUNITY TREATMENT TEAM are failing to provide the basics in terms of care and this is falling on emergency services such as police and ambulance when Elizabeth becomes distressed and overwhelmed with loneliness and isolation in the community.

I have read so many accounts of parents who want their sons and daughters out their in the community from these terrible institutions but I can see that Elizabeth has been damaged beyond recognition and has come out of the system completely disabled and just dumped into the community.  The appalling reality is there is no care in the community to someone who has come out of the system damaged and injured.

MESSAGE TO ENFIELD COMMUNITY REHAB TEAM –  It is not the flat that is the problem as you keep asking where else do you want to live.   The flat is situated in an area familiar to Elizabeth but I as a mother am the only person helping her.    What the problem is TOTAL LACK OF PROVISION OF ACTIVITIES AND CARE AND YOUR REFUSAL TO PROVIDE DIRECT PAYMENTS – as I would most definitely have something in place for Elizabeth after all this length of time.

I would praise local emergency services both Police and Ambulance for their tolerance and support in terms of this neglect to my daughter.

 

 

%d bloggers like this: