Another meeting on Suffolk Ward before a team of 6, including RC where all were stating that Elizabeth did not give consent to share information with me.   I’d taken a day off where no one wanted to speak to me or give me any news.  Elizabeth was not encouraged to come in with me.

Present was RC, Clinical Psychologist plus care coordinator and two other doctors plus advocate.

Elizabeth has not been allowed to go out anywhere off the ward with me for many  weeks but on this occasion just 1 hour was granted.   We went out for lunch then I went home.  Whilst out with me, Elizabeth was more than happy to share every bit of information which is contrary to what I was told by the team that she did not wish to share any information.

I said to the ward manager Kirk Hopwell that what is needed is openness and transparency and inclusion in the local system of care which could only be achieved by way of “Open Dialogue”.

I suggested at the meeting that Elizabeth liked anything to do with music, animals, art.   When I mentioned about a music project I had heard about this was the most positive thing about the meeting.

I wrote a letter at the end of the meeting with a few other comments as I feel that thought should be given to the staff employed to work with Elizabeth. There was once a brilliant support worker who was helping her who I was very impressed with plus someone else who could also help but has limited time but nevertheless – 1 day could help specifically with certain things which I pointed out.

I was told the team wanted to work with me but so far all they have done is work against me.  That awaits to be seen.

I would like to say more about what I am currently going through but I cannot right now.  It is like living under a cloud.





  1. MedMistakes said:

    Hi Susan,
    I’ve been following Elizabeth’s case with interest and sadness as I too have been harmed by psychiatry’s abuses (over medicated and erroneously diagnosed). I’m curious to know whether or not Elizabeth’s issues have been examined by a neurologist or neuropsychiatrist. It appears that a great many psychiatrists are very quick to diagnose neurological disabilities, impairments, symptoms and behavioural issues as mental illnesses. The symptoms of an undiagnosed neurological disorder (such as Asperger’s or autism spectrum disorder) are often impossible to differentiate from several mental illnesses without examining a person’s thorough behavioural history – from childhood onwards. Because psychiatrists seldom make little effort to examine a person holistically, many adults are misdiagnosed and, consequently, poisoned with harmful medications which often induce mental illnesses. Furthermore, neurological issues do very frequently lead to depression, anxiety and other mental health issues simply because of a lack of information and support. If possible, please have Elizabeth’s problems examined from a neurological perspective to rule out every possibility. All the best to you, Elizabeth and your entire family.

    • Neurologist thought she would be better off the drugs whereas neuro psychiatrist felt drugs should be optimised when 750mg quetiapine did not help he thought this should be increased – Elizabeth was on enormous quantities of mind altering drugs when I have proven she can’t metabolise the drugs and manage on very little – these doctors who instruct optimising they do not care about the welfare of my daughter who suffered adverse reactions such as akathisia and nms.

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