I was so concerned at not being able to get through on the telephone to speak to Elizabeth. I decided to visit and phoned to advise that I would be going to the hospital tonight. I did get to speak briefly on the patient phone but Elizabeth’s voice was slurred and I was even more concerned about her well being.
Comments from Elizabeth:
Elizabeth is being drugged in this institution. Elizabeth is being drugged three times a day so I was told. Staff have threatened her that if she does not take the “medication” she will be forcibly injected. Three members of staff threaten this “treatment”.
Elizabeth said “why could they just leave her until the next day but they threatened her – three members of nursing staff on different days”. Elizabeth said she had been sleeping for most of the day and did not feel at all well on the medication. She does not feel like eating anything and feels like she needs a life support machine – these are her words not mine.
I asked how many times does she go outside and she said she was inside for most of the time drugged up.
“My legs are aching and shaking -not working properly – I feel like a zombie.
I understand they are prescribing Rispiriedon again and no one has checked but in the files Elizabeth had an allergic reaction to this drug and they had to take her off it. It is an antipsychotic drug which is not recommended for the condition of complex PTSD. Chlorpromazine is the other drug. Both drugs I believe are being given at 1mg each three times a day but the effects are devastating. Although Elizabeth has not yet lost capacity if they carry on this way patients can get to the stage where they are not fit to challenge anything and get stuck in the awful system. Fortunately Elizabeth had capacity to tell me what was going on. She had to lie down on the settee in the private ward. A member of staff – support worker named Joseph sat outside for the whole of the hr meeting.
I have been in touch with the rest of the family and there are lots of friends also who are most concerned. I feel so sorry for those stuck in this place that do not have family or are completely isolated as it must be very frightening to be in a place like this.
CQC ratings are “in need of improvement”. I do not know their restraint procedures but it sounds awful to be threatened that if you do not take the drugs three times a day then you will be injected. Elizabeth is only on a Section 2 and I agree she needed a little something but I feel like she is being overdrugged in this place and am not happy for her to remain here at all. I think she needs to be in a hospital environment but not a PICU. I think she should be somewhere like The Retreat where they offer the right kind of therapy or Khiron House. I DO NOT FEEL THIS HOSPITAL IS THE RIGHT PLACE FOR ELIZABETH AT ALL.
I will be talking to Dr Shakeel Ahmad tomorrow evening. I do not like the way staff are threatening Elizabeth and do not feel this is care at all.
As I arrived and was waiting to be taken in, I spoke to a very nice lady in reception who was the OT. I told her that I was most concerned that my daughter sounded so bad on the phone and that was why I came up on the spur of the moment. I told her that whilst it is good they offered therapy – they have two psychologists and she is the OT I voiced my concerns that if Elizabeth was so drugged up they would not be able to work with her. If all this hospital is doing is overdrugging her then I am going to contact everyone paying for this facility to say this is wrong for her. She should be sent to somewhere that have beautiful grounds and the right kind of therapy like The Retreat. After all Elizabeth is a victim of violent abuse at the Moti Villa Scheme. I wrote to Dr Shakeel Ahmad and told him that Police were involved in this so no way should Elizabeth be drugged up to the hilt. Also I said that Rispiriedon had the effect of causing a rash to Elizabeth and have the files to prove it. She should not be given anti-psychotic drugs for complex PTSD and the whole environment there is completely wrong for her to get well.
Elizabeth does not appear to be happy and neither am I.
Whilst visiting Elizabeth she has given consent to many people who are very interested in what is going on and wish to help right now. I am so lucky I have such good friends who really care. It is so easy to get lost in the system in a place like this where the policy is NO PHONES.
MESSAGE TO ENFIELD BARNET AND HARINGEY MH TRUST AND ENFIELD CCG PEPPA AUBYN
If they continue to drug the way they are doing I want my daughter OUT. I want her placed in the right facility and this is not the right facility at all as it is yet another ward full of acutely ill patients drugged up and it does not have lovely grounds like the Retreat or Khiron House. I know the other two places are further out but we sent Elizabeth away to Scotland, then Europe (France and Spain) then Australia. I am devastated that she has gone downhill thanks to lack of support locally.
THIS FACILITY IS COSTING THE TAXPAYER A FORTUNE. PLEASE PROVIDE THE RIGHT FACILITY IF YOU ARE PAYING OUT MONEY AS IF NO PROPER ASSESSMENTS ARE DONE HERE FOR ASPERGERS AND COMPLEX PTSD – IF NO THERAPY SUCH AS EMDR/PSYCOTHERAPY IS ON OFFER THEN THIS IS THE WRONG FACILITY AND MUST BE COSTING AROUND £12500 PER WEEK LIKE CYGNET.
There are several friends of mine who would like to work with Elizabeth and to one she said “I really trust you – I could get well if you worked with me – these words were said to one of my friends who is more like family. Another friend is already working as a support worker freelance and was quite interested in considering more hours. Both friends themselves are carers to someone in their family so have much understanding and I’ve known them for years.
Elizabeth cannot go back to the scheme. She would probably benefit from her own place not shared but with off site support or support within grounds. She would not benefit from a shared house with structured programme. She just needs somewhere peaceful. Most of all Elizabeth would benefit from getting right away from this area of Enfield and into a more peaceful location where there is no pressures put upon her. All I want is for her to get well and I have proven that with proper care and right environment this is entirely possible.