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Monthly Archives: June 2017

Dr Ahmad had contacted me during the week and said he would like to speak to me following my emails to him in which I asked some very good questions such as:

What does Upper Richmond Ward of Huntercombe Hospital offer exactly?

Do they offer assessments for Aspergers?

Do they offer assessments for complex PTSD?

Will Elizabeth be able to take part in the PIP Antibodies Research that Professor Lennox is doing that Elizabeth consented to?  A researcher was going to visit her on Suffolk Ward but she was transferred without any warning.

Can Elizabeth see an Endocrinologist?

Elizabeth should have tests as she has been hit around the head lots of times on Suffolk Ward.

Does the ward have EMDR/Psychotherapy?

Can Elizabeth have her phone back?

Did Dr Ahmed know that Elizabeth is allergic to Rispiriedone and came out in a rash and should therefore be taken off this chemical as was previously recommended in the files.  I got the feeling he did not know this but I can prove it.

Did Dr Ahmed know that Elizabeth is a non metaboliser of psychiatric drugs and should not be given them for complex PTSD – the correct diagnosis is Selyes Generalised Adaptational Syndrome and she is chronic treatment resistant and that means someone cannot metabolise the drugs.   I attached the report from Holland to my email.

I then went on to say that the ward was another ward that was not suitable for Elizabeth’s needs it is PICU and it is noisy and volatile on this ward.   How can anyone get better here with all the noise?

When Dr Ahmad telephoned he listened to me and he agreed with EVERYTHING I said.   I told him the ward was not therapeutic.   I then told him about the wonderful care we provided that took Elizabeth to Australia.  I would say this is proper care that included music therapy and art therapy.   He was very interested when I told him about Paris and that Elizabeth stayed on a house boat in Paris and attended the World Hearing Voices Congress.    He then went on to say did Elizabeth hear any voices and I said NEVER!   I told him that Elizabeth came back well after that wonderful care but deteriorated through lack of support in the community.  I mentioned about the healthy environment unlike London.  A natural environment where there were animals, peace and quiet and no pressure.    I mentioned about the scheme in the community and how pressure was put on Elizabeth expecting her to attend meetings.   All the same I am disappointed things did not work out as it was in a nice area.

I mentioned how unhappy I was that Elizabeth was being drugged so excessively that she could hardly open her eyes.   She could not walk hardly and I told him that it was very wrong that all patients were sectioned and there were no voluntary patients there on the ward.   I explained that Elizabeth was allowed out on her own in Australia, France and Spain and Scotland so why not there?  The surrounding area is very nice so I believe Elizabeth should be allowed out like she was on Trent Ward and Suffolk Ward.   It is lovely weather and I am saddened to think that my daughter is stuck in a hospital like this and now allowed out in the fresh air.   The local area of Enfield Barnet and Haringey MH Trust are short of beds because they do not offer the right kind of care on their wards and they have poor facilities and something needs to be done about this.   So the answer is to use Cygnet, Huntercombe and places like this but I never got any answer from Dr Ahmad as to what his ward offered in terms of assessments and care as all I have seen so far is Elizabeth drugged up three times daily on Clonazepam and I despair – Rispiriedon which is not recommended I am sure for complex PTSD.  It should only be given in any case up to six weeks and I am not happy at all that Elizabeth is on this chemical that causes huge weight gain and she did not get on with this before.    The chlorpromazine is a drug that is more likely to become addictive and Dr Ahmad said he would reduce this first and take her off it altogether from next week but I told him that I wanted him to start the reduction this week not next week.   He did not mention about the Rispiriedon what he was going to do about this and I said I was not very pleased.

I told Dr Ahmad that there was lots of people including myself that Elizabeth was happy to share information with as Elizabeth gave permission yesterday in writing.

It is coming up now for her time to challenge a Section 2 which is 14 days.   Fortunately Elizabeth appointed her solicitors in good time but she has no advocate.  If someone has no phone and is drugged up to the neck it is easy to see how some patients can be stuck on wards such as this – a secure prison type ward for many many years and drugged enormously.    I mentioned about this to Dr Ahmad but he said this would not be the case and agreed that she was not in the right place so once again the Commissioners at ENFIELD are paying a fortune for something that is not right for her.

Many friends are kindly helping me right now as this hospital is a bit awkward to get to but not impossible.

Elizabeth has been using the patients phone.   It is not good to get through if you do not have a mobile –  it is very hard and easy to be cut off completely from the outside world and be in a world of haze because of the drugs and I believe what he is giving is:

1 mg Chlorpromazine and 1mg Rispiriedon three times a day.    When the drugs are dished out staff threaten patients.   They say that if you do not take the chemicals they will forcibly inject you.   Elizabeth does not like injections which is one of the reasons I took her off the Clozapine.  I made a point of telling Dr Ahmad that this drug was one of the worse ones and caused NMS which is a very serious condition.  NEVER AGAIN MUST THIS DRUG CONTAINING TALC AND ASPARTAME BE GIVEN –  it caused tachycardia.  Elizabeth looked terrible on this drug and used to get upset at having to go for the blood tests.

The correct care I would like to see given is not available in Enfield and everyone should question WHY NOT?   It is common sense not to just dump someone into the community without providing the therapy.   Now look at the waste of money.  If proper care was given like I provided long term then this would be cheaper than all these admissions onto prison type wards.

The Commissioners need to look at my blog and provide the correct care in my opinion which I have found in York on a long term programme called Acorn.   It is I believe a year long programme and then Elizabeth can be placed in the community again.  By this time she would not need a supportive housing scheme but would be independent like she came back from Australia.   This hospital has beautiful grounds and offer humane care – I am sure staff there would not threaten to force inject someone.   I honestly think Elizabeth could get well again there.

Anyway now that I have consent along with all the advocates I wish to see if Dr Ahmad has in fact started the reduction before he goes away next week.     I made a point of asking who will be acting RC but I do not recall him telling me or answering my queries above.  Solicitors will be visiting Elizabeth and I will ask them to find out who is acting RC and I need both psychiatrists email addresses which Dr Ahmad did not know off hand.

The last thing I asked of Dr Ahmad was to check in the fridge as I was concerned that the food I brought along  on my first visit had gone missing according to Elizabeth.   Dr Ahmad said he was very busy and did not have the time to look but I will be checking on this tomorrow as if this has gone missing I will not be very pleased.   I remember at the Bethlem Dr Ann Blake Tracy recommended some fabulous oils that she said would benefit the entire ward.   Also the supplements went missing between them and Cambian and I am far from pleased about this.

Support worker Joseph told me that nothing goes missing on Upper Richmond Ward but I need to hear from Elizabeth about this.

Elizabeth wants a Chinese Meal but I am not familiar with where is the nearest restaurants and need to look this up to see if I can order it for her as I will not be visiting until Saturday.

MESSAGE TO DR SHAKEEL AHMAD   – please check the fridge tomorrow to ensure that Elizabeth’s food has not gone missing and please leave the drugs chart out for me when I call and one more thing –  please can you ensure that there is a room booked for me to visit Elizabeth on Saturday.   Thank you very much.

I will also make a point of telephoning as I remember turning up at the Bethlem once with Elizabeth’s cat and she was not even allowed to come down to the car to stroke the cat and I had brought a lead along so that we could have walked in the beautiful grounds.  (see my blog “Abuse at the Bethlem”)

Anyway I must look up these restaurants now for tomorrow and will keep you all informed.

 

 

 

 

 

 

 

 

I was so concerned at not being able to get through on the telephone to speak to Elizabeth.  I decided to visit and phoned to advise that I would be going to the hospital tonight.    I did get to speak briefly on the patient phone but Elizabeth’s voice was slurred and I was even more concerned about her well being.

 

Comments from Elizabeth:

Elizabeth is being drugged in this institution.    Elizabeth is being drugged three times a day so I was told.   Staff have threatened her that if she does not take the “medication” she will be forcibly injected.  Three members of staff threaten this “treatment”.

Elizabeth said “why could they just leave her until the next day but they threatened her – three members of nursing staff on different days”.    Elizabeth said she had been sleeping for most of the day and did not feel at all well on the medication.   She does not feel like eating anything and feels like she needs a life support machine – these are her words not mine.

I asked how many times does she go outside and she said she was inside for most of the time drugged up.

“My legs are aching and shaking -not working properly – I feel like a zombie.

I understand they are prescribing Rispiriedon again and no one has checked but in the files Elizabeth had an allergic reaction to this drug and they had to take her off it.    It is an antipsychotic drug which is not recommended for the condition of complex PTSD.  Chlorpromazine is the other drug.    Both drugs I believe are being given at 1mg each three times a day but the effects are devastating.  Although Elizabeth has not yet lost capacity if they carry on this way patients can get to the stage where they are not fit to challenge anything and get stuck in the awful system.    Fortunately Elizabeth had capacity to tell me what was going on.   She had to lie down on the settee in the private ward.   A member of staff – support worker named Joseph sat outside for the whole of the hr meeting.

I have been in touch with the rest of the family and there are lots of friends also who are most concerned.     I feel so sorry for those stuck in this place that do not have family or are completely isolated as it must be very frightening to be in a place like this.

CQC ratings are “in need of improvement”.  I do not know their restraint procedures but it sounds awful to be threatened that if you do not take the drugs three times a day then you will be injected.    Elizabeth is only on a Section 2 and I agree she needed a little something but I feel like she is being overdrugged in this place and am not happy for her to remain here at all.   I think she needs to be in a hospital environment but not a PICU.    I think she should be somewhere like The Retreat where they offer the right kind of therapy or Khiron House.   I DO NOT FEEL THIS HOSPITAL IS THE RIGHT PLACE FOR ELIZABETH AT ALL.

I will be talking to Dr Shakeel Ahmad tomorrow evening.  I do not like the way staff are threatening Elizabeth and do not feel this is care at all.

As I arrived and was waiting to be taken in, I spoke to a very nice lady in reception who was the OT.   I told her that I was most concerned that my daughter sounded so bad on the phone and that was why I came up on the spur of the moment.   I told her that whilst it is good they offered therapy – they have two psychologists and she is the OT I voiced my concerns that if Elizabeth was so drugged up they would not be able to work with her.   If all this hospital is doing is overdrugging her then I am going to contact everyone paying for this facility to say this is wrong for her.   She should be sent to somewhere that have beautiful grounds and the right kind of therapy like The Retreat.   After all Elizabeth is a victim of violent abuse at the Moti Villa Scheme.    I wrote to Dr Shakeel Ahmad and told him that Police were involved in this so no way should Elizabeth be drugged up to the hilt.   Also I said that Rispiriedon had the effect of causing a rash to Elizabeth and have the files to prove it.   She should not be given anti-psychotic drugs for complex PTSD and the whole environment there is completely wrong for her to get well.

Elizabeth does not appear to be happy and neither am I.

Whilst visiting Elizabeth she has given consent to many people who are very interested in what is going on and wish to help right now.   I am so lucky I have such good friends who really care.   It is so easy to get lost in the system in a place like this where the policy is NO PHONES.

MESSAGE TO ENFIELD BARNET AND HARINGEY MH TRUST AND ENFIELD CCG PEPPA AUBYN

If they continue to drug the way they are doing I want my daughter OUT.   I want her placed in the right facility and this is not the right facility at all as it is yet another ward full of acutely ill patients drugged up and it does not have lovely grounds like the Retreat or Khiron House.   I know the other two places are further out but we sent Elizabeth away to Scotland, then Europe (France and Spain) then Australia.    I am devastated that she has gone downhill thanks to lack of support locally.

THIS FACILITY IS COSTING THE TAXPAYER A FORTUNE.  PLEASE PROVIDE THE RIGHT FACILITY IF YOU ARE PAYING OUT MONEY AS IF NO PROPER ASSESSMENTS ARE DONE HERE FOR ASPERGERS AND COMPLEX PTSD – IF NO THERAPY SUCH AS EMDR/PSYCOTHERAPY IS ON OFFER THEN THIS IS THE WRONG FACILITY AND MUST BE COSTING AROUND £12500 PER WEEK LIKE CYGNET.

There are several friends of mine who would like to work with Elizabeth and to one she said “I really trust you –  I could get well if you worked with me –  these words were said to one of my friends who is more like family.  Another friend is already working as a support worker freelance and was quite interested in considering more hours.   Both friends themselves are carers to someone in their family so have much understanding and I’ve known them for years.

Elizabeth cannot go back to the scheme.   She would probably benefit from her own place not shared but with off site support or support within grounds.  She would not benefit from a shared house with structured programme.  She just needs somewhere peaceful.    Most of all Elizabeth would benefit from getting right away from this area of Enfield and into a more peaceful location where there is no pressures put upon her.   All I want is for her to get well and I have proven that with proper care and right environment this is entirely possible.

 

 

 

 

 

I have spent most of the day trying to get through to Elizabeth and so have others.  The phone has been in the office and I was told by Kate the staff nurse that they have an in-house policy not to give mobile phones to patients which must surely be in breach of  human rights – something like this occurred in Cambian and I will feature the solicitors response in another blog.

Isolated from home and family it must be a terrifying experience to be on a PICU and this is entirely the wrong place to put Elizabeth amongst very acutely ill patients as this has done nothing for her in the past and just brought her down.   It must be costing an absolute fortune to my local area ENFIELD and I assume that the CCG in Enfield are paying this to this private corporate owned “hospital”.       I was so concerned to hear Elizabeth’s slurred voice that I asked to leave early in order that I could visit at the end of the day.  Informed the ward that I would come and I have also informed them that I would visit on Saturday too.   Visiting hours are between 4.30 – 5.30 and 6.30 – 7.30 mon-Friday.   I will document about my visit on a separate blog.

The only way I can contact Elizabeth is via the patient’s phone right now.   They will not give the phone back with the contract chip in to Elizabeth as they think it is a camera phone but I do not think it has any memory card that you can actually use it as a camera phone but nevertheless I will get her another phone as she should not be without it.

I spoke to the Manager Wellie Mbongwana and told him I was very unhappy.   El;izabeth did have another phone but the contract chip was in the one they suspected as having a camera and so many people were trying to get through to her.

This private hospital is owned by Four Seasons Healthcare and Mr Wiston Dzingai Magunda is the Registered Provider under Regency House Limited who are based at Norcliffe House, Station Road  SK9 1BU Wilmslow  –  I have got all the details of all the Directors under http://www.bizdb.co.uk/company/regencyh-house-limited-02135982

Website:   www.fshc.co.uk     Phone 01625417800

Huntercombe Hospital is described as offering medical services for:

  • persons requiring nursing or personal care;
  • assessment or treatment for persons with mental health issues
  • diagnosis and screening
  • treatment of diseases, disorders and injuries

Service Users:

  • people with mental health problems
  • older people
  • Mental Health Act detainees
  • Younger adults

 

I have picked up a form where they ask for your thoughts on experience of the service.   I shall think about this very carefully as I am due to speak tomorrow with Dr Shakeel Ahmad from Huntercombe.   He is the Responsible Clinician

 

 

Today I heard by through some solicitors Elizabeth was appointing that she is being transferred somewhere else from Suffolk Ward.  Noone had bothered to tell me from the ward so I telephoned Suffolk ward and spoke to Karina who said she could not tell me where Elizabeth was being transferred.   I then wrote to the Chief Executive Maria Kane,  Gina Hall – PA to Mary Sexton, I informed close friends and family and asked if others could find out information.   According to Karina Elizabeth did not want me to know yet it was Elizabeth herself who contacted me to tell me so this does not appear to be correct.   Elizabeth told me she had now been transferred to Huntercombe Hospital and that two of her friends from Suffolk ward were also there.   I had not visited Elizabeth whilst at Suffolk Ward as we were away and I wanted Elizabeth to sort things out for herself and not be reliant upon me.   I had accumulated a massive parking fine at Chase Farm Hospital of £200 as I was rushing around taking things to her and collecting things and I have to say that I am grateful Gemini for not enforcing this fine as I had realised and returned to the car park to pay.

I’d never heard of Hunterscombe Hospital before but have been to Roehampton to attend the wonderful conference called “More Harm Than Good” a while back with Elizabeth.  I decided to visit at the end of the day after getting the call from Elizabeth but was not sure where the Hunterscombe hospital was situated and so got a taxi there.  It is very awkward for me to get to in terms of journey.  It is a Psychiatric Intensive Care Unit for patients in crisis but Elizabeth was not happy in the scheme and needed to go somewhere peaceful, quiet in a natural environment not another locked ward.   Elizabeth has been in such wards through Cygnet, Cambian and the Bethlem.   They have not benefitted her at all and did not properly assess her despite the huge amount of money spent by the local area.

 

The Huntercombe Hospital leaflet states:

“we operate in largely the same way as other NHS hospitals.   Patients say for short periods of time between 2 – 3 weeks.    Under “Our Care”  –   “We support change through a multi disciplinary team approach provided by Drs, nursing staff, occupational therapists, psychological therapists and other support staff.      MEDICATION IS AN IMPORTANT PART OF THE TREATMENT PROCESS PARTICULARLY IN TERMS OF REDUCING SYMPTOMS AND DISTRESS.   They have a therapy garden, gym, art room and OT kitchen off the ward.

There are social workers who support patients with their welfare needs.    Liaison with care coordinator from individual’s home team.    I absolutely despair as Elizabeth did not appear to get on with her care coordinator and after all the safeguarding we feel very upset about the things that have been said and encouraged by her and others recorded in minutes (which I have) behind our backs.

I left some money for Elizabeth today.  I brought her drinks and two healthy sandwiches.

Because of visiting hours and only one visiting room it says in the leaflet that all visits must be prearranged and booked in with ward so this is restricting in itself.      They were accommodating to me be fair tonight as I had in fact just turned up not knowing these facts and had spent a lot of money on a taxi just to drop in some money and drinks and to let Elizabeth know that I cared but she looked extremely traumatised.

Just like Cygnet and Cambian you have to leave things in lockers like phones – fair enough camera phones are not allowed on the ward.

Visiting hours are between 16.30 – 17.30 and 18.30 – 19.30 Mon-Fri

Weekends and Bank Holidays – 14.00-17.30 and 18.30-19.30.    I arrived not long before 19.30 today – hardly worth me going but Elizabeth looked very sad and I could not stay long due to visiting hours restrictions.

Elizabeth is on a ward called Upper Richmond Ward.

“It is our duty and legal responsibility to consult with patients before any information about them is shared with carers”

When I asked if Elizabeth had her mobile phone I was told that staff needed to check her possessions first and why could I not phone through the office.  So I told them that it was her right to have her phone and that I only wanted to speak to Elizabeth via her mobile not the office and am paying for a contract on her phone in any case.  So the member of staff told me she would have her phone tomorrow.

“Sometimes patients in our care have specific long term needs we can only begin to address with them during their time with us.”    Well those long term needs certainly cannot be addressed on yet another similar locked facility as previous environments have failed to even assess properly and this is all costing ENFIELD BARNET AND HARINGEY MH TRUST AN ABSOLUTE FORTUNE.  Why don’t you have local facilities under the NHS?

I appreciate that Elizabeth needs to be stabilised but changes are stressful and sometimes it just takes a little while to settle down and get used to a place and with therapy on offer then this should be the priority in a case where someone has suffered extensive abuse as Elizabeth has done under care itself.     On Suffolk Ward and other previous locked wards amongst volatile patients Elizabeth has suffered further trauma – this is NOT the right environment long term.   Already a fortune has been spent over about 15 weeks on acute wards and trying to just place her in the community into a scheme (Simiks Baytree Care) –  without the necessary therapy is in itself negligent.  Ive already mentioned there was no toilet or running water when she moved in to the scheme.   There was a wonderful care support worker to begin with who got on well with Elizabeth and seemed to really understand her and I was full of hope that she would settle down but it was not to be as there was a structured programme she was meant to take part in when all she wanted was peace.     It was about targets and meetings/progress and all this was extremely distressing for Elizabeth.     They had built a medicine room and Elizabeth was very distressed about this.  I did advise her to take some lorazepam when really stressed out but it was obvious that just placing her there was a disaster.    I have yet to go and pick up all her possessions and assume that my local area is still paying for the scheme on top of enormous amounts of money for private sector acute locked ward who I hope will address the trauma and not just drug her to the hilt.

Whilst I did not agree with Lorazepam being offered twice daily I did say to Elizabeth that she should take the odd tablet to avoid any negative situations but she did not seem to be happy in that scheme.     I also do not think she was eating healthily and this was something we helped her with at home.  Also Elizabeth was suffering from a lot of physical pain.   She would complain about her back, her shoulder hurting, headaches.    She was over 100 days off all psychiatric drugs.  They say it can take 5 years to fully recover.    It was not my idea for her to suddenly stop taking the Aripiprazole as she was on just 2mg.   Elizabeth did not want to take anything but this led to her ending up on the acute wards once again.  Now I am worried that at this hospital, Huntercombe, they will forcibly restrain in order to forcibly drug her and she will end up like one of those patients she has been witness to throughout her time on Cygnet Beckton, Edware Trent Ward and Suffolk Ward.  I often received really distressed calls from my daughter telling me about what she had seen and heard on the acute wards.  It really distressed and traumatised Elizabeth to see the most shocking sights and tonight I feel very sad at the current situation.

Elizabeth’s distress has been seen in her behaviour recently – I believe she has been acting out her pain due to violence encountered on these acute wards.  I just wish she could get right away from everything and be in a natural environment like she was last year.

This private hospital (Huntercombe) is owned by FOUR SEASONS HEALTHCARE – I don’t know where their Head Office is based but I will look them up.   Tel 01625 417800 – Head Office number.

Dr Shakeel is the Responsible Clinician for Upper Richmond Ward.

The hospital Director is Wiz Magunda

The ward manager is Wellie Mbongwana

Social Work:  Sharon Saad Gouda

Talking of social workers although I have had nothing but bad experience locally apart from those involved in my father’s care I travelled home part of the way with a very nice social worker.

Anyone reading files will see that I am written about behind my back in the most nasty manner.  It is horrifying what goes on at safeguarding meetings and Elizabeth has always said that she wanted everyone to be included – the whole family.    I am pleased that Barnet Enfield and Haringey MH Trust now need to change their procedures as per the outcome of our complaint having seen such minutes.     I would not be writing openly if I had abused my daughter and if anything, she has received the most terrible abuse under care itself.   This is something that does not seem to be addressed under safeguarding.

The only time I have seen Elizabeth well was when through Hypnotherapy by Susan Hepburn on two occasions and sending her away with private MH professionals who helped her to challenge her fears and rebuild her confidence.     We did not recognise her when she came back.      Shows what can be done with therapy alone but she was on only a very tiny portion of drugs at the time.

Anyway it is too early for me to comment as I hope that this hospital Huntercombe offer an assessment into Aspergers which goes right back in the files to 2009 and mentioned by more than one professional who disagree with the label of paranoid schizophrenia treatment resistant.    Treatment resistance of course means that someone cannot metabolise the drugs.  I also hope they give a proper assessment into complex PTSD as after all Elizabeth suffered extensive abuse whilst at Moti Villa back in 2010.    I had extensive P450 liver enzyme tests done on this by world leading experts which proved she is unable to metabolise the drugs.    I have to say that even Cygnet Beckton respected the test results and did not forcibly drug my daughter.   Local NHS wards also respected Elizabeth’s wish to be medication free but here at Huntercombe Hospital they stipulate medication to be an “important part of treatment” but she has been on practically every drug going and none worked and we have seen serious reactions to more than one drug especially Aripiprazole and Clozapine was really bad too.    Elizabeth did not get on with this drug and it caused her heart problems – tachycardia on Clozapine.    Metformine was NOT given for weight loss as we were advised but it was discovered she had endocrine problems so I hope this hospital will refer her to an endocrinologist as I have extensive reports on this.   PLEASE LOOK AT HER PHYSICAL HEALTH BEFORE YOU DRUG ELIZABETH.

Anyway hopefully it will be allowed by Hunterscombe Hospital that Elizabeth can take part in the research for antibodies/immune system that she already agreed to do.   It is really important that her physical health is not ignored in favour of drugging her.

Elizabeth had already contacted solicitors and the researcher so I’ll keep you all informed.

The future:

I still cannot rule out a happy future for Elizabeth one day but I do not think that her future is in London or mine forever.  I do not feel I have anyone I could turn to healthwise in my local area having read what I have read.       Other members of the family have moved out to quieter areas and close to the sea that offer a better quality of life that could benefit Elizabeth rather than the fast pace of London.    A natural environment really helped Elizabeth to get well so I will challenge any long stay on locked wards which have proved non-beneficial in the past and extremely damaging to Elizabeth and costly to my local area who are supposed to be short of funds.   I hope this Hunterscombe does proper assessments unlike Cygnet.   An assessment should not take years on end.   I know people trapped on such secure wards for a lifetime and feel that Elizabeth – a victim of abuse under care itself does not deserve to be drugged to  the hilt or trapped for many years to come at the expense of the local area of ENFIELD.

Home:

I would like to provide a home for Elizabeth of her own one day and would love to see her independent and happy with a dog/animals that are so therapeutic.  I would like her to have people of her choice to be support workers not someone writing down every sentence and word and reporting upon it.  We have a lovely cat at home which no doubt Elizabeth misses and at the scheme where Elizabeth was placed locally there were no pets allowed.   If only the local area had transferred her to somewhere like Camphill Community Trust or care farms.     A care farm is somewhere where Elizabeth could get well not on a locked ward.    The Retreat also had the most beautiful grounds and offered a suitable long term programme of therapy.

If Elizabeth was given psychotherapy again and art/music therapy I think she could get well but first no pressure should be put on her to take anti-psychotics for complex ptsd as this is not recommended under NICE guidelines.

I do believe the odd lorazepam is not so bad but not huge dosage of mind altering drugs.   is so important too.     So it would seem that Enfield have transferred more than one patient to Hunterscombe. Environment is so important but locally, questions should be asked why when a school is being built on hospital land along with housing and new hospital – what is being done in investing in mental health care facilities that offer the right kind of care for complex PTSD/learning disability under Enfield Barnet and Haringey MH Trust.   I might as well put this question to Joan Ryan MP as if all this money is being spent on private sector locked wards costing as much as £12500 per week – what on earth is going on.

I identified Khiron House or The Retreat who do a year long programme for abuse victims but your views as a carer are just ignored.  ELIZABETH WAS ABUSED UNDER YOUR CARE –  UNDER THE MOTI VILLA SCHEME IN THE COMMUNITY.  When she returned from Australia Elizabeth was telling everyone about it.  Therefore her diagnosis should in fact be complex PTSD WHICH NEEDS TRAUMA THERAPY NOT HUGE AMOUNTS OF DRUGS.

 

 

 

 

 

 

 

 

 

 

 

Placements:

After 13+ weeks on various acute wards withdrawing from Abilify in untherapeutic, volatile environment, I was concerned at Elizabeth being placed immediately in the community.  I felt she would have benefitted from a quieter environment to adjust before being thrown into a placement.  Not one underlying issue was dealt with on the acute wards and she was further traumatised so at £900 per night this I felt this to be a waste of public money and I wondered why there was not specialised centres in every area as I see a lot of building/development going on at Chace Farm Hospital but it does not seem like MH is being invested in as I would like to see.

I wrote to Enfield CCG as I hoped they could get something in place in case the scheme failed a second time.  I wanted Elizabeth to go somewhere specialised where she could get proper help like we provided privately but it would seem there are not many places that offer special help and I could only find two -Khiron House and The Retreat which would have required specialist funding.   A year’s programme would have ensured that underlying issues would be addressed properly and Elizabeth would not be returning back to acute wards again and considering what had happened to her in a previous scheme I felt that this was the least they could do – provide the correct treatment for Elizabeth in the circumstances.

Back in 2012 Dr Bob Johnson produced a very accurate report and identified “PTSD”.   More recently Dr Mukherjee also mentioned complex PTSD and possible learning disability which required assessment.    The private MH professionals recognised this too and they should know as they had her stay for four months however East Enfield Recovery Team have dismissed this diagnosis in favour of “paranoid schizophrenia” and they have suddenly dropped “chronic treatment resistant” .   It is obvious to the entire family that Elizabeth has PTSD with dissociation as she has retreated into being a young teenager and says things like “I’m only half grown”.   I remind her she is 30 but this has no effect and she needs therapy for her condition which is quite specialist therapy.

Enfield CCG’s letter dated 31st May 2017

NHS Enfield CCG is a commissioning organisation not a provider of services.   As a commissioning organisation we commission our specialist mental health provider, Barnet Enfield and Haringey MH Trust (BEHMHT) to provide specialist treatment, care and support and treatment for people with MH issues with a GP in Enfield.  This includes:

Providing treatment, care and support in line with the MHA 1983 (I hope Theresa May scraps this asap);

Developing needs assessments, care/support plans and risk management plans with individuals and their support network, where appropriate.

Providing care coordination , support and reviews in line with Care Programme Approach (CPA) and other statutory responsibilities.

Providing evidenced based treatment, care, support and wellbeing interventions in line with individual care and support plans that are safe, person centred and clinically appropriate.

Ensuring that patients have access to appropriate advocacy, information, guidance and support.   (Well if this was true why wasn’t an advocate provided in the recent safeguarding?) .

From time to time people with more complex needs will require greater intensive therapy or treatment than BEHMHT is able to provide under current commissioning arrangements.  (now this paragraph is applicable to Elizabeth).

“The MDT (Multi Disciplinary Team) supporting the individual will hold a needs assessment and review meeting with the individual and their support network, where appropriate, will agree a set of clinical outcomes and where appropriate will  request funding for any ongoing specialist treatment or placement from the most appropriate statutory organisation.  This could be the CCG, NHS England, Local Authority, Housing Dept/and/or Education Service.  This would be dependent upon clinical outcomes and assessment of need, taking into consideration the capacity of the individual, best interest of the individual (Duty of Care) and their needs/aspirations/recovery goals.”

Family or carers not included. Need for specialist treatment for complex PTSD unavailable in my area has been ignored.  I am disappointed with the letter by Deborah McBeal (Deputy Chief Officer).

Conclusion appears to have been made that the supported living scheme is most appropriate, despite this failing two weeks ago and Elizabeth sent back to ward.   According to Mary Sexton (Executive Director of Nursing, Quality and Governance)  the scheme are supposed now to provide qualified nurses however I do not think this is the case.  The scheme have a supply of the highly addictive drug Lorazepam obtained for Elizabeth and their support workers are giving this to Elizabeth twice daily which may make her feel better than she did on anti-psychotics but my concern is this drug is highly addictive.  I therefore made her aware of this fact today.  This drug is being given by support workers, not qualified nurses and I said to the support worker today that it was unacceptable to give this drug  twice-daily basis the way they are doing.   They should keep a supply of it in case of need and offer very occasionally as a last resort but it would seem that it is the easy solution  to just drug her with something else and just like in hospitals control them and I think this is terrible.   It is really awful to become addicted to such a drug and after coming off anti-psychotics after 11 years she is bound to feel pain and discomfort.  I would prefer natural solutions to this not yet more dangerous chemicals.

I wrote to the Commissioners as it had been identified years ago Elizabeth needs were “intensive trauma therapy” for PTSD but this had never been provided.    The care on the acute ward everyone agreed this unsuitable but now I do not think the scheme is either if they are regularly drugging her with highly addictive lorazepam.

I was advised East Enfield Locality MH Team (Service Manager George Benyure and Consultant Dr Basit Hussain) are those supporting Elizabeth but look at the support we have had in the past whilst Elizabeth was at home – we had no support and we requested direct payments.   Elizabeth was unstable on Abilify but nothing was done about it.    Whilst at another placement she was taken by 3 members of staff to Safeguarding Meetings consisting of 9 professionals with the intention of destroying me so I can see from the contents of the minutes.  This was not about care and they even suggested that Elizabeth found Clozapine helpful which was FAR FROM TRUE.  I have so many witnesses who will tell you that this talc and aspartame drug was actually causing so  many problems, the most serious being loss of control of her tongue.   Cygnet Stevenage raised the Abilify to 20mg just before release making her unstable.    This terrible drug caused shocking adverse reaction.  It is hard to have faith when you look at the care plan and see “paranoid schizophrenia repeated time after time and they have missed out huge chunks of the file and reports.  This goes against duty of care and best interest if they do not look further into complex PTSD and learning disability and ensure that the correct therapy is given.

 

Duty of Care and Best Interest:

Dr Mukherjee (Clinical Psychologist) has correctly identified complex PTSD and possible learning disability.   This would tie in 100% with the private MH professionals who  know Elizabeth as they had her stay with them for four months.  I would agree with Dr Mukherjee.   However the problem is that the East Enfield Locality MH Team in their last care assessment put nothing but “paranoid schizophrenia” and huge chunks of the file records had been ignored.     All these years – 11 years Elizabeth has been misdiagnosed but the team just stick with “paranoid schizophrenia”.  I have not seen the latest care plan but would not be surprised if this remains the same as I it would seem that they do not wish to provide the therapeutic care that is so much needed.   Unfortunately we as a family do not have faith in a Support team who have failed to offer correct treatment for the complex PTSD (if someone has suffered extensive abuse like Elizabeth at a previous scheme in the community) this should be the correct diagnosis.  Instead they stick to paranoid schizophrenia missing out huge chunks of the file that contradicts this.  Instead of  therapy Elizabeth has been drugged extensively over 11 years with enormous quantities of mind altering drugs.  Abilify continued to be prescribed despite a serious incident whilst on it – If we had not taken her away I doubt whether this “treatment” regime would have ever changed.  Manufacturer’s instructions clearly state “for Bi Polar and Schizophrenia”  NOT PTSD and also for up to 12 weeks only.  Why do Doctors just ignore this?   I as a mother look into things properly and check the ingredients, the manufacturers instructions etc.    We sent her away to have proper care staying with a wonderful team of professionals from “Working to Recovery who worked with her on underlying issues that had never been dealt with before and they were getting somewhere too.   All these years she’s had the wrong treatment/wrong label – no wonder she gets angry but this could also be because of injury and now I would like every physical health check done on her.

The name Peppa Aubyn (Head of MH Commissioning) is mentioned and it is suggested I contact her.   Well I have done twice and I have not had the courtesy of a reply to my emails.

So it is a waste of time writing like I’ve done to the CCG and getting a response referring me to the support team of East Enfield Recovery Team who also just like Peppa Aubyn do not bother to respond to emails but yet they had time to attend safeguarding meetings which were all about me accusing me of abusing my daughter and I would rather be judged by the world than these people who know nothing about my family whatsoever.

“when asked Elizabeth said that clozapine was helpful”   OH NO SHE DID NOT –  I showed her these comments in the shocking minutes which I have copies of.

What I would have liked to see:

Somewhere like The Retreat –  beautiful grounds where they could work on trauma extensively and deal with the effects of the abuse that has caused Elizabeth to retreat to being a young teenager in her mind. Somewhere where they deal with dissociation as Elizabeth has blocked painful memories.   Psychotherapy to get to the root of the problem and to look at the reasons for her actions.  Proper counselling needs to be given and therapy as you cannot drug someone and heal their pain for trauma/abuse.   EMDR is supposed to be good.  There is nowhere in my local area that provides the right kind of care and if someone has flashbacks then this is quite negligent to just place that person into the community without proper treatment.

The Scheme:

The scheme is a nice house.  It has a nice garden and is in a nice area close to Doctor/Dentist and facilities.

Whilst I know Elizabeth would prefer to be close to her family at the same time, she could make a complete recovery if she is given the right care on a long term programme but not in a prison environment and as something bad has happened to her under the care of the local area previously, then I feel this should be provided.

The scheme has a no tolerance policy -they cannot possibly deal with any underlying issues there.    Nevertheless I am pleased she is out of hospital and it has been so awful seeing her back on the acute wards again.

East Locality MH Team is managed by George Benyure who was present at the recent safeguarding along with care coordinator as well as Dr Basit Hussain Consultant.

I AM MOST CONCERNED:

Today I have found out Lorazepam is being offered to Elizabeth twice daily and I feel should be given sparingly in case of extreme need not regularly like this. This is completely wrong.   This drug is highly addictive.     There is no obligation for anyone to have to take drugs in the community but I have told Elizabeth that if she is agitated only then should she take one of these drugs.    It is all too easy to drug someone up –  it is not the answer and I was told  qualified nurses would be working with Elizabeth and a more experienced psychologist.     I do not think that this is the case although Elizabeth likes the support worker concerned.

I have also asked for Elizabeth to be included in the auto-immune research of Professor Belinda Lennox regarding antibodies attacking the immune system.   I would like everything checked out thoroughly as regards Elizabeth’s physical health.

 

 

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