BARNET ENFIELD HARINGEY MH TRUST

Message to the Chief Executive and Deputy Leader of Quality.

Message to the Rt. Hon Joan Ryan MP

It has been over nine weeks and Elizabeth is still on an acute ward at Enfield Chase Farm Hospital – Suffolk Ward.  The RC left all of a sudden and replaced by another on a temporary basis.  The care coordinator and Manager are also based along with the acting RC at 58 – 60 Silver Street Enfield –  Enfield East Recovery Team.

COMPLEX PTSD

I believe my daughter Elizabeth has the diagnosis of complex PTSD.  She is so traumatised that she has disassociated herself from certain events too painful to deal with and needs professional help of a specialist nature before being placed straight into the community without enough support.

YESTERDAY

I received a phone call from Elizabeth distressed.  I can tell by the tone of her voice.  She had been taken to see a scheme called Emerald House Care Home.  Elizabeth does not like the area –  It is situated on the corner of a busy road junction.  When I visited her in Edgware she was struggling to cross small roads.  Elizabeth was transferred to Edgware from Suffolk Ward as she was being attacked by another patient and hit around the head.  Elizabeth was upset by the assessment which concluded she had to take medication to live there.    She has been medication free now for 60 days and starting to recover.

PRIVATE CARE WE PROVIDED

I provided the most wonderful care in desperation as I could see Elizabeth going downhill in the local community.  What we spent was a fraction of what care must be costing right now on an acute ward which is the wrong environment.  Elizabeth stayed in the family home of MH professionals.  She was taken on holiday with them to France and Spain and saw some wonderful places, ending up at the World Hearing Voices Congress in Paris and was taken out to dinner by some French MH professionals who made were fascinated by her story.  To everyone’s astonishment Elizabeth got on a plane and went to Australia to stay in various recovery houses, working with international MH professionals who were appalled and fed up with the mainstream system of care.  They did a wonderful job in making Elizabeth well again – when she came home she was unrecognisable and we were so happy but we had no support in the local area and something triggered her returning to the family home and local area which was not the plan as we had hoped she would make a fresh start elsewhere.   When she came home she revealed to everyone that the most terrible things had happened to her under a local scheme in the community called Moti Villa based along the Ridgeway Enfield.  This is recorded in files and Police were involved but she was on 800mg of Quetiapine (Seroquel) and Police did not investigate properly so I have contacted them and they are currently looking into information I have supplied and I am waiting to hear further. To this date no appropriate counselling has been provided.

MOTI VILLA, THE RIDGEWAY ENFIELD -2010

I wont reveal all details but have kept extensive records on what happened to my daughter back in 2010.  When Elizabeth came back home from Australia and even prior this, she was reliving her nightmares and untreated trauma resulted in her behaviour through incidents which would suggest she is suffering from complex PTSD.   I am not  a Doctor to come to this conclusion but not one doctor is willing to look into matters further and recommend the appropriate help.   Elizabeth complained of seeing faces from the past, hearing knocking at her window.  She is traumatised by her experience which was displayed in her behaviour.  I have proven that with kindness and humane care provided by an organisation called http://www.working-to-recovery who have a unique response that she can be helped and if she can be helped then so can so many others.  Going back to Moti Villa, Elizabeth was full of fear to return there and  she was not given the opportunity to move elsewhere.   She was too unstable on the 800mg to have home at the time.   She was a revolving door case and each time she was prescribed even more drugs such as Chlorpromazine, Haloperidol, Zopical and Lorazepam.  All these drugs resulted in tremendous suffering caused by local Doctors instead of dealing with the trauma by way of therapy.  A leading Professor said “how on earth can anyone function on as much as 800 mg of Quetiapine.  Good Question.

POLICE INVESTIGATION AND NEGLECT

Police failed to interview anyone in connection with the incident at Moti Villa which Elizabeth has openly spoken about to family and close friends and even in front of staff at Cygnet Beckton.  (it is no use ENFIELD MH trying to deny what happened as I have extensive files)   These files are with Police right now as no one could  be bothered to come round to see me.  It was only when I complained they finally got in touch as I had threatened to send the files right to the very top of the Police Force and may still do so.  It may well be an incident that occurred quite some time ago but at the very least , the case should remain “open” and not be closed  –  I have evidence that says the complete opposite of their conclusion.

If there was any hint of abuse that occurred back in 2010 Moti Villa then appropriate counselling should have been given rather than enormous quantities of drugs.  Having seen that Elizabeth can be helped by proper care and therapy it is only natural that I feel in the circumstances that this should be offered to her now she is drug free after eleven years and starting to feel a bit better but still suffering from the pain of withdrawal.

When I look back at the file records I see nothing but incompetence as obviously something is wrong when someone is so desperate they keep ending up time and time again a revolving door case and each time the answer was yet more and more drugs.

I see nasty comments written behind our backs by people who know nothing about the family.

AUSTRALIA UP UNTIL NOW:

Since returning home from Australia Elizabeth had hugely improved.   The private MH had worked with her extensively on underlying issues.   They recognised she could possibly have a learning disability and we as a family feel that she has complex PTSD as she is clearly a trauma victim.  I have a psychiatric report for court purposes that states this fact.  When Elizabeth came home she tried to do everything herself and making a huge effort.  She even wanted a job.  She was just left to go downhill.   No-one helped her and we applied for the new initiative called Dialogue First run by North East London MH Trust, as we thought that this would be of benefit to work in an open transparent manner with other professionals from outside of my local area of ENFIELD as all Elizabeth wants is for her family to be together not pulled apart by professionals who do not like me as a mother.   We met the criteria as Elizabeth was discharged from local MH services and wanted nothing more to do with them. She was under her GP based at Willow House Surgery, Willow Road Enfield and we both requested this but for some reason he never referred Elizabeth to this wonderful initiative. I am left wondering why to this day we never received this referral from the GP

Without any support whatsoever Elizabeth went downhill and PTSD can be triggered by an event that occurs.  Getting away from this area into a different more peaceful environment did her the world of good.  Feeling safe in the company of professionals who truly helped did her the world of good.  Treating her like a human being instead of an object also worked brilliantly too.   Being surrounded by kindness, animals, healthy environment –  I’m sure if you took any of those patients from the acute wards and gave them this opportunity they could come back quite well.  However without any backup in the local community someone can easily go downhill.  She needed just a little bit of ongoing therapy and support in the community which would have cost a fraction compared to Cygnet.

As Elizabeth felt so well on her return she no longer wanted to take the tiny portion of Abilify at 2.5 mg.   This drug has caused many problems with adverse reactions twice at home.   Now sadly she has ended up back in the mainstream system. However they have respected her wishes in hospital to remain drug free and she has been off all psychiatric drugs for about 60 days now.

Elizabeth has so far been sent to three different hospitals:

Cygnet Beckton:  costing £12500 per week –  put her back on the drug Abilify despite knowing she had more than one bad reaction on it.   They also introduced Chlorpromazine.  After I posted how much my local area were spending on Twitter she was released in one afternoon and taken to Suffolk Ward Chase Farm Hospital.

Suffolk Ward Chase Farm Hospital:  Acute ward but better than Cygnet in terms of the fact at least she could have her possessions and not be overshadowed during family visits.  RC  Dr Choudhuary has since all of a sudden left – he told her at a meeting I did not attend that if she did not choose her father as next of kin she would be thrown out on the street.  This prompted me to obtain the Discharge Policy of the hospital.

Withdrawing from the drug Abilify at 2.5 mg in a volatile environment is not easy.  It is a very powerful drug and Elizabeth has complained of chronic pain.  Peace and quiet is needed and staff are busy on acute wards so the environment is not right for Elizabeth to recover.  Elizabeth was beaten up by another patient on this ward and this is why she  was transferred to Trent Ward Edgware.

Trent Ward Edgware:

Some distance away from where we live and I could only visit at weekends.  She was eventually allowed out of this ward unescorted for a short time each day and was able to find her way around the local area which was unfamiliar with.  Elizabeth was starting to get distressed by the environment on this mixed ward and was intimidated by some male patients.  I attended a meeting with RC Dr Rashid who mentioned about a recovery house shared with twelve others was all he could offer.  Elizabeth who was quite traumatised has described her experience as alarm bells sounding every five minutes,  difficult to sleep as not peaceful and upset by seeing the way other patients were forcibly injected/drugged and I was receiving daily calls from her quite distressed.  She said “do something, Mum – please do something about the system of MH care in the UK.”  I said I would do my best and the only way was to speak openly about what was going on.

Suffolk House Palmers Green Recovery House:

Barnet Home Treatment Team discharged her there.  At the weekend prior to this move I could tell Elizabeth was not happy and distressed.  Elizabeth had asked me to bring some possessions up for her but when I arrived in the evening she was quite distressed and so  I promptly left and she had thrown the bags of belongings back at me.  She was upset that I had missed her calls as I was driving.  I got a call from the Recovery House that she was being discharged onto the street and I was distraught as I was so far away and could not help –  I made numerous phone calls but I could not get through to care coordinator or anyone in that department.

Back at Suffolk Ward Chase Farm:

Back to square 1 –  Back on a noisy acute ward.  Elizabeth has only just started seeing a  Psychologist who was just about to refer her to some trauma therapy for relaxation/ anger management.  However whilst this therapy is beneficial the environment is wrong and unless someone is in a peaceful environment how can such therapy benefit them.

The various NHS wards have respected Elizabeth’s wishes not to take medication. She is not on section and is voluntary.  Elizabeth can go out unescorted into the grounds and beyond.  Going out into the fresh air makes Elizabeth happy.  For those patients stuck on the wards under section, it must be awful even though they are taken out for regular fresh air.   Elizabeth has been distressed at seeing how other patients are being treated.  Last Sunday when I dropped Elizabeth back to the ward after seeing the R D Laing film there were about 4-5 patients involved in fighting on the ward,  trouble started in the lounge and spread to the corridors right next to me. We quickly retreated into her room and locked the door to stay away from the escalating violence.   This kind of environment is wrong for Elizabeth and I heard costs as much as £900 per night, yet what is sad is that she can get better in the right environment at a fraction of the cost being spent.  It has been over nine weeks and Elizabeth has not had the therapy she needs which is only now due to commence and now care coordinator based at 58 – 60 Silver Street – namely Enfield East Recovery Team wish to discharge Elizabeth into the community before the therapy even commences

Yesterday whilst at work I got a call from Elizabeth which was upsetting.  Elizabeth was talking about placements and that she had been taken to see one of them.

PLACEMENTS AND TREATMENT.

Care coordinator, her Manager and Acting RC Dr Hussain are based under Enfield East Recovery Team, 58 – 60 Silver Street Enfield and they have identified placements for Elizabeth to view locally.   I feel she should have the counselling first before she is just placed straight into the community as she has gone through further trauma by being on acute wards

Elizabeth has been further traumatised by being on three acute wards where she has witnessed and experienced violence and drugging/injection of other patients.   She was also subject to the enforced injection herself whilst under Section 2 where her brand new slippers broke, when dragged to the seclusion room for throwing out another patient’s bags from her shared room.   Acting Responsible Clinician DR BASSIT HUSSAIN  agreed this was not acceptable.

No appropriate therapy for PTSD has even taken place yet on the ward and Elizabeth has only just started seeing a Psychologist who has suggested medication rather than therapy but for PTSD it is not recommended psychiatric drugs under NICE Guidelines.  Therapy is the answer for a trauma victim and this works as I have proven.  Elizabeth needs to be referred for therapy not put under pressure to take drugs.

Emerald House is a care home based in Enfield and Elizabeth was told at the end of the assessment she would have to take medication or have injections to live there. Elizabeth has refused the placement.

There are two more placements to be seen – one in a different area but do they have the same stance on medication I wonder?

I have been told the following regarding medication in the community :

quite a few people recently in the UK say they are being told that they have to take “medication” because of a CTO (community treatment order). You may have been told this is the case but it isn’t really how CTOs work. They are meant to be an agreement between the patient and professionals and according to the Code Of Practice they should only be used if you are prepared to agree with the treatment plan. They are not meant to be used to blackmail you into taking the “medication” with the threat of hospitalisation. There is no legal power that allows forced medication to be given in the community – in reality being on a CTO really makes little difference (you can be sectioned with or without one). If you are on a CTO and disagree with the treatment plan, you should make it clear that you will NEVER accept the proposed treatment. They can drag you back into hospital if they think you are at risk of “relapse” and then give you “medication” without your consent, but they will need your consent to give it in the community and it would not make sense for them to use a CTO if you are not in agreement with the plan. I had one client who refused to accept the depot in community and was told she would not be allowed out of hospital. She said “fine, I like it here” and they discharged her without the depot. Remember that nobody can force you to take the “medication” in the community, and don’t let them tell you that they can.”

Well said!

QUESTIONS TO BE ASKED

Do the two remaining schemes have the same stance on medication?

Why should Elizabeth be forced to go back on drugs after 60 days off them when:

  • she cannot metabolise them as proven in P450 liver enzyme tests
  • her trauma back in 2010 relates to abuse suffered under local scheme Moti Villa, the Ridgeway, Enfield – no appropriate counselling offered

Why was Elizabeth not offered appropriate counselling going back to 2010 when professionals knew something had happened to her?

Why didn’t Police do a proper investigation?

Why was she placed in the community on as much as 800mg of Quetiapine?

Why wasn’t Elizabeth moved from this placement?

Why was a social worker trying to push Clozapine at Elizabeth despite knowing it was against her wishes.

Why cant she have the therapy for complex PTSD provided now first BEFORE placement into the community – why cant this therapy be somewhere else that specialise in it as the environment should be peaceful and not a noisy acute ward.

Why is no-one taking any of this into account just ignoring my emails?

What support will be given to Elizabeth in the community for complex PTSD apart from just a support worker on release from hospital?

Why is so much money being spent on Cygnet that could benefit the local hospital and its wards providing better facilities.

Why isn’t there a nice rehab facility where patients can go to recover from their ordeals from being long term under an acute ward.

 

WHAT HAS BEEN TRIED AND FAILED:

Moti Villa – multiply abused

Phoenix House – Northampton –  no food at the weekend -could not manage on £30 pw. This care home costing £70000 per year refused to give the clozapine when I offered to collect resulting in two cases “Deprival of Medication Community Care” and  Dols Ct of Protection 2014.

Mays Cottage – assured shorthold tenancy – serious health and safety shortfall costing £277 pw  for accommodation only run by Inclusion Housing.  Constantly locked out of her room due to faulty key/lock – told to sleep on settee – care provided by Craegmoor (part of Priory Group).  No supervision at night leading to drugs supplied.  Facing eviction due to another resident constantly staying over from another scheme.

Bethlem Royal Hospital Nat Psychosis Unit – max levels of drugs – Clozapine (against wishes) mixed with Metformine – contra indicated.   Face covered in bruises, advanced declaration ignored, tachycardia developed on Clozapine.

Cambian – Wales –  displacing me with father as NR a priority,  supervised phone calls until challenged by solicitor – long drawn out tribunal – deprival of Xmas leave allowing c2 hrs home visit flanked by two nurses who would not leave her side.   Rest of family treated differently and allowed unsupervised home visits according to the files.

Cygnet – Stevenage and Becton – £12500pw

Stevenage – introduced Abilify raising it to 20mg just prior to release making her unstable.

Beckton – just put her back on the Abilify despite adverse reaction and introduced Chlorpromazine

Both Cygnet hospitals failed to do assessments on other diagnoses

Various Wards under Enfield MH – (Trent and Suffolk)  –  volatile environment where forced drugging/injections and ECT are taking place.  Noisy environment with alarms going off frequently- every 5 minutes so Elizabeth said on Trent Ward.  Fighting/ violence on the wards. Disturbed patients being locked away in the exclusion room.  Costing c£900 per night or thereabouts.

Elizabeth has had her phone stolen on one ward, £100 of calls racked up,  been forcibly injected and dragged into the seclusion room breaking her brand new slippers (because she threw some bags out of her room when a man entered bringing another patient to share).

Elizabeth is not on section any more and can go out which is some relief but she has been transferred between Suffolk and Trent Ward Edgware as she was been beaten up by another patient and hit around her head on Suffolk Ward.

Elizabeth was also told to choose her father as next of kin otherwise she would be thrown out on the street by Dr Choudhury who was RC (Suffolk Ward) all of a sudden he has left and Dr Bassit Hussain has now overall responsibility as Acting RC.   Dr Hussain is based at Enfield East Recovery Team 58 – 60 Silver Street Enfield where her care coordinator and manager are likewise based.

Acute wards are not the right environment for Elizabeth but neither should she just be dumped into the community by her care coordinator without adequate support and therapy being in place and I don’t just mean a support worker but ongoing therapy as Elizabeth who is a trauma/complex PTSD sufferer has not received any appropriate therapy in the nine weeks on acute wards and that applies to the past years in total going back to the beginning apart from four months of wonderful private care we provided.

Elizabeth is recovering from withdrawal from the powerful drug Abilify which caused more than one serious adverse reaction and apparently causes increased agitation and anxiety according to Dr Joanna Moncrieff.  She should therefore be sent somewhere peaceful to aid that recovery before just being dumped into the community.

SOLUTIONS:

I have identified at least three places (not local) where they specialise in programmes for PTSD sufferers that last several months – one year.  I strongly feel Elizabeth should not be immediately placed into the community. I strongly feel she should have the trauma therapy first.   If she is placed straight into the community then I feel she needs extensive therapy and support to begin with instead of being forced to take drugs within a supportive housing scheme.   Drugs are not recommended for PTSD but for Schizophrenia and Bi Polar but this is the problem despite huge evidence that Elizabeth suffers from PTSD certain Doctors (psychiatrists) refuse to budge on diagnosis.

I have supplied a list of placements to her care coordinator and written to various people in the CCG.  I have not  had one single reply to my emails.  I have written to the Deputy Leader of Quality who has likewise ignored my emails.  I have written to the Rt Hon Joan Ryan MP.  I have written to many people but no one can be bothered to respond.  Every time you try to phone the team are in meetings or on holiday/out of the office and do not bother to get back to you.

I have spoken to Dr Rashid from Trent Ward who said all they could provide was recovery house and this did not work out.  It is like banging your head against a brick wall.  The Home Treatment Team in Barnet discharged her to the recovery house and this did not work out and this prompted me to write to all the commissioners again in desperation.

I have written to:

MP – The Rt Hon Joan Ryan

Chief Executive of Barnet Enfield & Haringey MH Trust is  Maria Kane

Deputy Leader of Quality Margaret Southcote-Want

Director of Psychosis – Leigh Saunders

Acting RC – Dr Bassit Hussain

Manager – Enfield East Recovery Team – George Benyure

Care Coordinator Bola Quadri

I am saddened by the treatment of my daughter who came back from Australia well.  She has gone downhill because of neglect in the local area and desperately needs some intensive trauma therapy.   Here are the names of the CCG professionals I have desperately written to for help:

Piesse, John – Primary Care Development Manager John.Piesse@enfieldccg.nhs.uk]
Cc: Aubyn, Peppa – Head of Mental Health Commissioning <Peppa.Aubyn@enfieldccg.nhs.uk>; MacDougall, Graham – Director of Strategy and Partnerships <Graham.MacDougall@enfieldccg.nhs.uk>; Mazarelo, Jenny – Primary Care Strategy Programme Manager <Jenny.Mazarelo@enfieldccg.nhs.uk>; Sharp, Kim – Enfield Referral Service Manager <Kim.Sharp@enfieldccg.nhs.uk>

Only Mr Piesse has been helpful in responding to my email asking for help.  He has cared to write back.

The Deputy Leader of Quality (Margaret Southcote-Want) has said she is not responding to any further emails from me as they have to think of resourcing.

Maria Kane has not responded to my letter going back to 2015 when I complained about our shocking treatment when drug Clozapine was deprived and we were taken to Court of Protection.

TO THE COURT OF PROTECTION – I would praise you highly for your help that you have given me in the case of my father with Alzheimers and my daughter back in 2014.  If she had been forced to return back to the care home she would now be on a CTO – they would have made contact with family awkward, deprived home visits and continued with a drugging regime that left her barely able to walk or go out.  She had no food at the weekend and was expected to manage on just £30 pw.  They deprived the drug Clozapine when I had offered to go and collect it hundreds of miles away.  The deprival of Clozapine by my local area put her life at risk when not one professional was prepared to prescribe it locally despite the fact that the time limit for restarting the drug had not reached the deadline of 48 hours.  It was 25 hours and I made every attempt to get it locally.   We then had to endure visits for court purposes by nursing professionals infiltrated by the Home Treatment Team infiltrated by staff from Enfield Rehab and Recovery Team who were ordered to go in twos and report every word that mother said.   Not one single apology for this degrading treatment of a vulnerable patient.  I feel like naming the entire team and their nasty notes written behind our backs.   Whoever would have thought that I would have obtained the files for my records.

Under the private sector there is to a large degree honesty and accountability but not when it comes to Trusts and Councils, some of whom employ people who earn more than the Prime Minister herself.  How can this be right when you receive appalling treatment, some of which I have mentioned above.  They feel they can get away with writing what they like in the most nasty way, trying to label you as being mentally ill yourself and a vexatious complainant when all you are trying to do is get the right kind of help instead of having to say “I told you so”.    There is also a lot of bullying going on within these tax payer funded organisations.

I got a call one day from my younger daughter who said they were hiding in a cupboard terrified when the consultant psychiatrist Dr Imelda Duignan turned up with social worker probably to do an assessment.

I was so happy I sent my daughter away from this country where abuse is rife to experience proper care of a humane nature. I was overjoyed to get text messages from her to say she was in Dubai, she was in Australia etc.  I’m so glad she at least has some happy memories to fall back on.

When care is at fault and abuse has taken place in the community under a local scheme then the necessary therapy should automatically be provided.  I have proven that therapy works.   It is negligent of her team to ignore this fact.

It is negligent of the hospital to discharge her into the community without adequate support or threaten a vulnerable person with eviction as has been done.

It is negligent to ignore what is needed in terms of therapeutic care.

I have been accused of interfering by the care coordinator in respect of placements by “confusing” Elizabeth with other options.   To begin with – Elizabeth was given one option only – Emerald House – a scheme where there is high security and CCTV in the office on ground floor.  A scheme where no therapy is provided whatsoever.  Twelve other residents.

I feel Elizabeth should have choices and she has said so herself so there are two other potential placements yet to be seen locally which I cannot as yet comment on.

Thought should be given to the correct type of placement, bearing in mind Elizabeth may benefit for a while being away from the local area where there are bad memories provided she was to receive the correct treatment but certainly not in prison-like Cygnet or any other similar horrific institutions under the private sector costing a fortune of taxpayers money.

I identified Care Farms as she loves animals and wanted to do gardening as a job on her return from Australia.  One care farm is situated close to rest of family.  This is the kind of environment she benefitted from whilst away but I doubt this has been looked into.

I also identified Camphill Village Community Trust – various schemes, some situated close to rest of family – there are some not too far away from home and even if no on-site accommodation this could be sought and a live in support worker provided by way of direct payments.

All of these places above are suitable in that Elizabeth would not become isolated and would be supported and encouraged to participate in a natural therapeutic healthy environment where they produce organic food and learn new skills this is the right environment.  Bearing in mind Elizabeth suffers from chronic pain coming off the drug Abilify no way should she be forced to do too much just being in a therapeutic environment could lead to her health improving physically.

There are also recovery houses and hospitals that specialist specifically with abuse and PTSD/dissociation, details of which have been passed on to the hospital/care coordinator.    If just dumped into the community without the correct treatment this could lead to substantial problems and is neglectful.

When you complain and fight for the right type of care all you get is bullying from a team of professionals who stick together like glue and do not budge.  If mistakes are made no one is accountable. No-one wishes to take overall responsibility but the overall responsibility is with the Responsible Clinician Dr Bassit Hussain.  He is the person who responsible in every way and tried to say it was a team decision.  He is the one with sole responsibility.

I am not sure how commissioning works but I have written to the commissioners above as this requires specialist funding but it is a waste of money sending someone somewhere where they are not getting the correct treatment and whilst I agree that the acute ward is not the right place I feel that much thought should be given to where Elizabeth is placed in the community and I feel she should be given the opportunity to try out the Care Farms, Camphill community trust and see how that works out.  Even if there is no accommodation on site, a shared cottage with support worker could be provided so that she can participate in activities on the care farm.  The right environment is essential before being placed back into the local community which is far from peaceful being London and thought should be given to her becoming isolated and also bear in mind that she is suffering from symptoms of chronic pain through withdrawal so cannot do too much to start with.  A year away from the local area given the right support would avoid return to acute wards.

At the very least if Elizabeth is found accommodation within the local area funding should be put in place so she does not end up either on a local ward  or prison like private hospital such as Cygnet/Cambian but at one of the suggested placements that really do specialist with therapy for PTSD/trauma.

Over the Easter holiday I will be taking Elizabeth to church.  I will be helping her as much as possible get out from the ward and get her some nice food.

I would love to see her settled and getting on with her life. In desperation I am writing this blog which many people can identify with as I know of many cases where parents really do care and fight to get the right treatment.

Elizabeth said  “please do something – please change the system”  The only way things will ever be changed is if people speak out about it and if there is accountability and measures put in place to ensure that the weak and vulnerable are being heard.  In places like Cygnet you can become lost in the system as if someone is highly drugged then they cannot call for a solicitor for instance.  You as a relative cannot just appoint solicitors and as a result patients can be kept for years in these institutions.

One member of staff appointed to investigate my complaint said “I have no doubt institutional care is the right thing for Elizabeth” – this complete stranger went and passed the complaint to the department to whom the complaint was all about as she did not know the family well enough.

There would not be one single complaint from me if there was an open honest system of care such as open dialogue in my local area of Enfield.

I would not have any complaints if Elizabeth was given the trauma therapy treatment first and ongoing support for this.

I would not be complaining if there was recognition that things had gone wrong in the past but now this is the plan to put matters right.

MESSAGE TO DR HUSSAIN:

I do not agree with you Dr Hussain when you say “lets start afresh”.  In order to deal with the trauma you need to look back and see what happened and I have saved you time and effort by doing a SUMMARY OF CARE.  I hope you as RC with overall responsibility have read the summary of care.

MESSAGE TO THE TEAM

You may well wish Elizabeth to move off the ward but first of all she needs to be given the chance to try out the various schemes and other things like care farms.  I do not want to hear any more threats from anyone or comments like “you should not be here”.   Instead you should be asking the care coordinator and her manager and Dr Hussain “what the hell is going on” – just like Inspector Brown and my favourite blog of his.  Please do tell me what is going on in all aspects as communication is very important as I am sure you will agree.

I will end by saying HAPPY EASTER to those who celebrate it and I hope everyone enjoys the Easter Break.

 

 

 

 

 

 

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