I am sad to say my daughter Elizabeth is back in hospital- a locked acute ward which is far from therapeutic. She had previously been in Cygnet in Stevenage and came out completely unstable barely able to walk as they had doubled the amount of drugs given to 20mg just prior to release. She was not very well and could not go out and she suffered a severe adverse reaction to the drug Aripiprazole. I was not impressed as Cygnet Stevenage did not do an assessment of other diagnoses she is documented as having. She is said to have Schizophrenia PTSD and Aspergers and MH professionals she has been staying with over the past four months identified her as having a learning/developmental disability. According to Cygnet’s Code of Practice no decisions should be taken in the absence of the RC but this is what was happening and took place at Cygnet Stevenage as the RC was on long term leave. It is shocking to see a young man has died in this hospital.
Right now Elizabeth is at Cygnet Beckton (the Flagship of all Cygnets) visited not so long ago by Princess Anne. It is a distance from where we live and awkward to get to. I am not happy she is there. She is on Section 2 and I want everyone to know where she is, because I do not want her to get “lost” in the system and be drugged to the hilt as I know what goes on in these institutions. I do appreciate in such an environment there is the need to sedate at times but hospitals such as these go overboard. They ignore evidence that someone like Elizabeth cannot metabolise the drugs as per the P45O liver enzyme tests. Physical health is not considered in comparison to introducing all these different drugs which do nothing to solve the real issues. Anti-psychotics such as Abilify can actually cause aggression and anxiety. Elizabeth has not got on with this drug at all but Cygnet have ignored my emails when I requested she be taken off Abilify and tried with a mood stabiliser which I am told has less side effects. She has been on Haloperidal before and I have heard this is a dreadful drug. She has also been put on Clonazepam – that is three drugs so far being given in less than a week.
THE RESPONSIBLE CLINICIAN IS DR OCHATA WHO IS ABSENT FOR TWO WEEKS AND NOW ABSENT FOR THREE SO I HAVE BEEN TOLD TONIGHT?
CODE OF PRACTICE:
Responsible Clinician has overall responsibility for care and treatment for service users . being assessed and treated under the Mental Health Act. These responsibilities include:
- Making decisions about treatment
- Reviewing detentions
- Assessing whether the criteria for renewing detention are met
- Granting leave of absence for detained patients
- Barring the Nearest Relative from discharging patient in specific situations
- The Power of discharge from detention: Although the Responsible Clinician has overall responsibility decisions about the service users care and treatment are made in discussion with the multi-disciplinary team. (In Guardianship cases the Responsible Clinician has overall responsibility decisions about the service users care and treatment are made in discussion with the multi-disciplinary team. In Guardianship cases the Responsible Clinician provides the medical recommendation for someone to be received into Guardianship by the Local Authority (rather than the hospital managers for other detentions) They are responsible for reviewing the Guardianship with the MDT and can discharge it if it is no longer required.)
So the RC (Dr Ochata) is away for three weeks. (I was told two weeks originally). There is supposed to be a replacement RC but no one seems to know who this is. The Consultant Psychiatrist is called Dr William. I just spoke to a Senior Nurse who could not give any further details and the Ward Service Manager is called Emmanuel Nwanonyiri.
So doctors have quite a position of power . I am so concerned for my daughter’s wellbeing right now.
I am so pleased that I gave my daughter the chance of freedom to get away from everything and all the painful memories she has from the local area of Enfield. The most terrible things have happened to her and under their “care” too. I have accumulated good records of everything going right back. However when you dare to challenge you get the backlash and there is much bullying going on I can assure you. I have already documented what happened in the 2014 Court of Protection case. I have nothing but respect for the Court of Protection who helped me with my father who had Alzheimers. All that happened was because professionals in a position of power wished to get rid of me as mother/NR to force return Elizabeth back to a care home “Phoenix House” Stepping Stones in Northampton commissioned by my local area of ENFIELD costing £70000 per year. Not on a section or CTO I welcomed Elizabeth back to the family home and was allowed to keep her for two glorious years. Prior to this was a case I had to take out “Deprival of Medication Community Care” – has anyone else been deprived drugs to force return her to care where she was not treated well – she had no food at the weekend and it is documented in the files I have. Expected to manage on £30 per week. Who says there is only one Winterbourne. Take a look at the treatment of vulnerable people throughout the country – how many more cases like this.
I wanted to give my daughter Elizabeth the opportunity of a lifetime:
She was invited to stay with MH professionals in a beautiful location in Scotland. She was taken on holiday to Spain – Santander, Bilbao, Carcasonne, Marseille, Lyon, Aix en Provence, Caen and Paris World Hearing Voices Congress. From there back to Glasgow and onto Dubai and Australia. I tried to set her free from the abuse going on to MH patients in the UK – long term incarceration, drugging to the hilt – total lack of care in the community and where is the money going but to institutions run by Cygnet, Cambion and other private healthcare providers instead of to NHS who need to improve their services. Vast sums of money are being spent in this way in the UK and patients are being overdrugged as I am documenting.
My daughter for once had the chance to work with professionals who truly cared. These professionals did not drug to the hilt but worked on the underlying issues.
Yes they identified the problem and this is not mental illness. Suddenly Elizabeth on a low dosage of drugs started to open up and speak about what happened to her back in 2010. According to my records the investigation was not done properly and now I want it looked at again.
Elizabeth is prone to adverse reactions to psychiatric drugs. She has only been in Cygnet Beckton since last week and already they have introduced Clonazepam, despite a severe adverse reaction they have continued to give the drug Aripiprazole which I have complained about to Otsuka and the Regulators. Mind you, this drug is only licensed for Schizophrenia and Bi Polar and I have pointed out to Cygnet Beckton plenty of times that my daughter suffered abuse at Moti Villa Scheme in the Community situated along The Ridgeway, Enfield EN2 back in 2010. There are many witnesses to this fact and what Cygnet are doing seem to be doing is drug my daughter but I informed them that she should NOT be drugged as should be re-investigated. There are plenty of witnesses to this fact. I wonder how much it cost per week to send someone to Cygnet. I thought Enfield were struggling financially but it appears I am wrong if they can afford to pay for this.
All that is needed is to take Elizabeth off the Abilify and try her on say, a mood stabiliser – get her stabilised and released as soon as possible but it is very profitable to keep someone a long time in such hospitals especially if ENFIELD are willing to pay. What they should be paying for is an improvement in community care and encouraging peop0le like Elizabeth to manage their own budget to provide their own carers in the community. It should not all be about control.
Elizabeth was doing so well with the private MH professionals and they had no problems with her – environment did the trick not drugs. A beautiful and peaceful environment with animals, fresh food, fresh air, healthy relaxing lifestyle. Unfortunately coming back to the local without support has resulted in deterioration and has brought back the most painful memories and flashbacks to 2010. Elizabeth has PTSD – not schizophrenia.
What I would like to see is for her to be released from this prison-environment and settled elsewhere where she can start life afresh but with some support . Things like Care Farms, Camphill Community Trust, supported living in a with just one or two people with daily activities or near to somewhere like care farms or Camphill Community Trust rather than somewhere full of drink/drug addicts. When she returned from Australia Elizabeth wanted a job, was doing so well – it was astonishing what the right care could achieve but this needs to be ongoing.
II have seen a shocking case where someone has died in CYGNET recently. I would like my daughter out of there as soon as possible because all I see is one drug after another that has already been tried before and has not worked. What she needs is therapy -not drugs. You cannot deal with trauma in this way. They are not helping my daughter by drugging her up like they are doing.
I am going to contact the Court tomorrow with my concerns.
Elizabeth has been through enough and should be treated in a more humane manner, not excessively drugged.
The environment where she currently is I do not feel is therapeutic as it is not peaceful and she is not allowed out to get fresh air.
If there was a support network in the local area then Elizabeth would not have deteriorated and she should have had psychotherapy. She had art therapy. She had the chance to do many things and conquer her fears. All the drugs do is suppress memory and are no cure whatsoever but now we are all witness to what happened back in 2010. Elizabeth is a victim.
I have seen a really nice hospital situated in York called The Retreat set in beautiful grounds. This is the kind of place where Elizabeth could get the right kind of support for her trauma and then move on to say the Amitola Community . Id really like to see her move on to something like Camphill Community Trust where she could develop skills and have some level of support but most of all I would like her to be referred to The Retreat to get the underlying trauma dealt with in a proper way and not just by drugs.
MESSAGE TO CYGNET BECKTON HOOPERS WARD – My daughter cannot metabolise the drugs. She has test results stating this fact by way of P450 liver enzyme tests. Unless you intend to reassess her as she is multiply diagnosed then I do not think she is in the right place. I would like to know who the acting RC is in the absence of Dr Okatcha.
MESSAGE TO ENFIELD SOCIAL SERVICES
You have made countless attempts to displace me as NR but I am more than happy for other family members to take over this role if only Elizabeth can move away from this area that contains very unhappy memories that only recently Elizabeth has revealed to us all.
All I want is for Elizabeth to move on with her life and judging by the files and what I have read maybe she could make a fresh start as environment counts.