GASLIGHTING – AN ABUSE TACTIC

Gaslighting is an attempt of one person to overwrite another person’s reality. Yes I’m afraid this does go on – I would also use the word “brainwashing”.

I am sad to say they are at it again – the team of ENFIELD Mental Health are holding lots of “safeguarding” meetings.   A vulnerable person like Elizabeth should never be put under pressure to attend meeting after meeting with no advocate present. There should always be an advocate present.  All this is happening to my daughter Elizabeth right now as, unfortunately, she is in the “care” of a scheme run by Craegmoor part of the Priory Group.  She wanted to be independent but there are more restrictions than ever before and when you pay for a tenancy within reason you should not be under excessive control – it is more like RESTRICTIVE SUPPORTIVE HOUSING THAN SUPPORTIVE HOUSING.  The scheme is a small scheme situated  just down the road from where I live and consists of six people.     Sadly, when Elizabeth came out from Cygnet on 20mg (one of the most highly dangerous drugs Elizabeth has been on so far) this left her unstable.  Abilify, is manufactured by Otsuka and they sent me an email when I contacted them saying this drug is licensed for Schizophrenia and Bipolar only and should only be given for 12 weeks. Well what about the other diagnoses.  What about if Elizabeth has been misdiagnosed which we all think she has been.  Elizabeth has suffered an adverse reaction on this drug which I have had to report.     It is all down to drug metabolism and the problem is that  Elizabeth cannot metabolise the drugs – that is the problem.  She is multiply diagnosed.

Anyway, I am so concerned as to what is going on right now that I am going to post this to everyone and I want everyone to know which area I live and that is ENFIELD – an area where we have encountered bullying by a team “professionals”.  I am proud to stand up alone against this.  I told my daughter tonight nothing will ever turn me against her.  Not even the nastiest comments that appear in the files.  Other parents should be aware of this tactic by so called “professionals” who do not like you, who act in such a way so as to try to distance/sever contact between you and the person cared for  instead of work together with the family under Open Dialogue.

Sadly we as a family would have benefitted from joining the Open Dialogue UK that has just been put into effect from 4th May through NEL MH Trust but I feel that we have been discriminated against by NHS using “red tape” by saying that we already had a team in place  – well what team?    For the past two years I have had to employ my own team as we have had no care whatsoever.  Care should not be about pushing drug after drug at maximum levels without review.    All I wanted as a mother was to have my daughter on the minimal of drugs but now I can see why they put it up to maximum levels in the hope that this blots out someone’s memory –  no one in the local area would wish to hear that something serious happened under a scheme in the community to my daughter because of lack of supervision and weakened by enormous levels of drugs more than one serious incident has occurred under “care”

Elizabeth is now living in a smaller scheme in the community run by Craegmoor (part of the Priory Group).   In this current scheme it is really designed for someone who is able to stand on their own two feet.  The only thing that makes me happy about this scheme is the residents.  There is a woman there who acts like a mother figure thank God.  I never see staff downstairs but their duties are to take my daughter to the constant safeguarding meetings.  It is a pity that after all this time since her admission on 17 May that not one thing has been provided for her to do and neither was anything provided for over 2 years at home .  I had to provide things for her to do out of my own pocket.

Just to let you know the family currently have had an enormous complaint out against Social Services ENFIELD and this has been “dealt with” by the NHS’s Deputy Leader of Quality.   We are looking forward to another meeting as our complaint has not been properly answered.,

We have Power of Attorney not just myself but other family members not because we wish to control Elizabeth’s life but because we wish to provide for her one day.  She has come out of the system disabled.  Even walking up the road to get shopping is an ordeal for her.  It is a pity this team under ENFIELD have not signed up to  Open Dialogue. Naturally I have no trust in professionals in this Borough because of reading the shocking contents of the files which label me as being “mentally ill” whatever that is?  You can also see how the team tried to set up a MHA assessment for me  through my GP –  I was too busy to attend.  I work, I have a busy life and combine this with caring for my daughter.  I am not with my daughter 24/7 but this is a team who do not seem to care for my daughter and who know nothing about the family.   They just want to control.   They have got past history wrong.  All Elizabeth wishes for is that everyone works together and gets along but this is a team who play on confidentiality to save their own backs.  I am satisfied that I am correct in saying this,  having read so many nasty comments in the files.  There is no accountability.  Most people would not be allowed to get way with this kind of behaviour.

I am so concerned of the recent developments that I feel I should make it public.

At the latest safeguarding meeting Elizabeth told me this evening when I called round with a new chip for her phone she told me she was put under such pressure at the SAFEGUARDING meeting where she is constantly taken that she does not want to go to any other meetings and she was put under pressure by the care coordinator to say the following in a typed letter that Elizabeth would not have done herself as she does not type and these are not her words in any case:

DEAR MUM

 

I WILL BE GRATEFUL IF YOU CAN VISIT ME ONCE A WEEK ONLY ON SUNDAYS SO THAT WE GO TO CHURCH TOGETHER AND GIVE ME MY ALLOWANCE AS WELL.  I WILL PREFER YOU CALL BEFORE COMING TO VISIT ME AT ………………………………

THANK YOU

 

YOURS FAITHFULLY

 

E………..

 

 

 

Elizabeth told me tonight she was “put on the spot”

I have said to her that what if I cannot come on a Sunday.  She then told me that she was put under pressure by the care coordinator accompanied by a member of staff from Craegmoor.

Elizabeth had hand written  a letter to the staff member of CRAEGMOOR reading as follows:

Dear F…………. (not sure how to spell)

“I WAS NOT HAPPY WITH THIS MEETING .  I NEED MY MUM  – SHE’S HELPING ME. I AM NOT WISHING TO TAKE PART IN ANY MORE MEETINGS.

THANK YOU.”

Elizabeth’s own words.  Take note team and especially care coordinator.

 

I think they may be trying to ban me and I will keep you all informed.  THIS IS NOT WHAT ELIZABETH WANTS AND NEITHER IS IT HELPFUL TO HER.

We have had all of this in the past from Cambian and now this is going on at Safeguarding Meetings and witnessed by a member from Craegmoor – how nasty can you get!   Elizabeth did not type this letter herself.  The wording is not coming from her.  If she did say once a week she was put under pressure and it is DISGUSTING THAT ENFIELD MENTAL HEALTH ALLOW THIS KIND OF THING TO GO ON.

So our complaint (not just mine by the way) is about the care coordinator who has failed to provide any “care” and neither have social services.  They prefer instead to work against the family trying to destroy us all like they have done in the past.   What kind of people are these who work in what should be a  “caring” profession?

I have had to complain recently about the lack of communication leading to Elizabeth being given wrong dosage of drugs at 20mg and not 10. Apparently the care coordinator based at Silver Street ENFIELD does not like to use emails and neither does the Consultant Psychiatrist but instead of sending a letter to Elizabeth they should have copied in the tam at the scheme.

Anyway back to the meeting today, Elizabeth was very upset as she had been put on the spot.  She is multiply diagnosed but I am currently challenging ENFIELD who just do not wish to pay for proper assessments, choosing to ignore the fact that Elizabeth is multiply diagnosed and I have been asking about this for some time now.  There is more than one diagnosis I can see in the files and Aspergers is one of them.   It is absolutely disgusting that ENFIELD do not wish to provide such assessments so I have contacted the National Autistic Society regarding this and I also feel that she suffers from PTSD.

 

When I visited tonight I asked Elizabeth what she had eaten.    “just a few chips”.   She is likely to go downhill and that is my one complaint.   The mistake in the dosage of medication I would put down to lack of communication from the team at Silver Street as they write letters and do not inform anyone.   If they had properly informed staff at the scheme then this would not have happened.

We as a family are cut out completely and I can see this is AGAINST NICE GUIDELINES.

I think that NICE Guidelines should be enforceable to some extent as it would appear that no notice is taken of them.

The manufacturers of Abilify state clearly no more than 12 weeks on the drug.  Elizabeth has been on this for much longer. and all they have done is change the toxic red dye drug of 10mg that causes tumours in mice and rats to a white tablet again of 10mg.

I feel that Elizabeth would be kept on this drug for life if she is left under that scheme.  At home the team did not wish to revise the drug Clozapine that caused her tongue to go to the back of her throat.

Anyway, it is a good job that I as a mother look into the ingredients of these chemicals thoroughly and am also constantly looking into where there is better care and guess what I HAVE FOUND IT!   I shall keep you all informed as I’m trying to get funding for this..   If it is a manufacturer’s guideline that you should only be on a chemical for 12 weeks as Inspector Brown would say “WHAT THE HELL IS GOING ON” – Sorry for pinching your title Inspector Brown but it is so appropriate for my honest blog.

At the weekend I enjoyed attending Liberty’s AGM.  I really hope I get chosen for my Award nominations  as this will give me a chance to discuss the most shocking abuse going on in the UK to MH and vulnerable people.   Yes, I am in touch with even worse cases.   Good to meet you all at LIBERTY and I support all of your campaigns.  I will be more than happy to help if I can.   I would also be prepared to be filmed and hopefully people will really take notice – there is more than one Winterbourne and I want to bring all this to the public’s attention.

When I called to see Elizabeth tonight she was feeling a bit low.  She can easily get agitated but Dr Joanna Moncrieff has explained to me to say that the drug Abilify is noted for causing Anxiety and Agitation and I remind myself that this is the drug and what it is doing,  not Elizabeth’s character and I said to her today that nothing would ever destroy things between us even if the team have prompted her to say nasty things.  I KNOW WHAT IS GOING ON TEAM –  PLEASE ALSO DO NOT TRY TO ARRANGE ANY MORE MHA ASSESSMENTS VIA MY GP.  I am seeing my GP tomorrow and I will tell him now that never will I attend such an assessment in a million years.  Someone who is a professional said to me that perhaps they should do an assessment on themselves and I could not agree more.

Other people in my family and my carers would like an apology for being called “aggressive” “hostile” –  I have been called a prolific complainant – they failed to name me as “vexatious” .      It is cowardly to label someone behind your back and I would welcome an open discussion with team members on TWITTER in front of everyone.

When I left tonight after seeing Elizabeth she was smiling and happy.   Elizabeth needs help at the moment but hopefully she will be able to get on with things herself one day.   –  there is nothing more controlling than a group of professionals who instead of providing help and support are holding SAFEGUARDING meetings no doubt for the purpose of cutting contact no doubt but now Elizabeth has written in her own words.  This is not a typed letter written by someone else – this is coming from her in handwriting and no way on earth could I have ever forced her to write it:

Dear F…………. (not sure how to spell)

“I WAS NOT HAPPY WITH THIS MEETING .  I NEED MY MUM  – SHE’S HELPING ME. I AM NOT WISHING TO TAKE PART IN ANY MORE MEETINGS.

THANK YOU.”

If all that has been done was  meant to destroy the family I am afraid they have brought the family together –  this is because of all the nasty things that have been said for all to see in the files.

Tomorrow I am going to vote and hopefully take Elizabeth.  According to the letter it says every Sunday!   Just like at Cambian –  phone calls – restricted to once a week – not that I used to phone every night but at a time that I could not call anyway.     How very sad that a team of “Professionals” resort to this kind of behaviour and I understand that my emails have been called “annoying” by the care coordinator.  It could be because I know how to communicate effectively and the best way is to copy everyone in so that everyone knows what is going on.

 

 

 

 

 

 

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5 comments
  1. OMG I could tell you loads about Abilify and how irritable it made me for years. I had to be put on Ziprasidone (Brand name Geodon), another AAP drug (not even legal in the UK, I think) to calm me enough to take it! And it caused agitation and anxiety to boot. As well as weight gain and akathisia etc etc. I stopped it cold turkey a couple of months ago, but now I am left on the Geodon, plus, which wrecks havoc with my system every time I stop even one pill. I wish you so much the very best, It is GOOD to be an agitator on behalf of your daughter and to be extremely VEXACIOUS!!! Vex the hell out of them They are definitely capable of gaslighting anyone who gets in their way. I know all about it. I may be in the USA but they do it here too. Sincerely, Pam Wagner

    • I am sorry to hear you had problems on this chemical also. I always look up the ingredients and I am so disgusted that such ingredients like poisonous dyes are allowed . I wrote immediately to the manufacturers otsuka but now the consultant psychiatrist has changed the red tablet to a white one. Elizabeth has lots of different diagnoses and other experts are dismissed. Elizabeth is fed up with their meetings and it is not fair that no advocate is press – on America you have wonderful facilities like Windhorse – sadly there is nothing here and mothers like myself are fed up with doctors who push drugs to the hilt disregarding physical health and this is why we would like to see chy sawel set up

  2. Well, yes, we have “wonderful facilities like Windhorse IF IF IF you are wealthy and can afford such facilities, But if like me you have NEVER had any such funds as 50,000 dOLLARS A MONTH! as you should know that EVERY such facility is Privately paid for and NEVER EVER state paid, then you are excuse my language fucked. As I have always been and most people are. Of course if you are wealthy or the child of caring wealthy parents you can get decent care in the US of A, that is always the case but not and never if you are poor or of moderate income. That is ju9st how it is, and always has been. So i say FUck wind horses fabulous care because they cater to the wealthy and would never even take my application!

    Sorry for my anger but I was abandoned by my parents the minute as a young person i became disabled according to their lights and they never paid a cent for my care or to help me, either in the system or to get out of it.

    Pam Wagner

    • Sadly you are right – however there is not even this option in the UK or experts who are trained to deal with withdrawal frompsychiatric drugs. If there were choices this could save money and benefit everyone in the UK but there is not even a private centre set up for this purpose over here asyet.

  3. By the way, TWO people could live well for a YEAR on 50,000 dollars just to give you some idea of what WINDHORSE charges per MONTH for care…

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