ABILIFY-ELIZABETH’S NEW CHEMICAL

Abilify Tablets are available in 2 mg, 5 mg, 10 mg, 15mg, 20mg and 30mg strengths.

Inactive ingredients include:-

Cornstarch (I wonder if this is from GMO corn!)

Hydroxypropyl cellulose (OK as in most natural supplements)

Lactose Monohydrate

Magnesium Stearate

Microcystalline cellulos  (OK as in most natural supplements)

NOW FOR THE BAD NEWS:

Colorants include ferric oxide (yellow or red)  –  Elizabeth has red tablets at 10mg strength. 2 x 10mg must be taken per day and Elizabeth has complained of not feeling too good on this amount of drug.   At Cygnet private hospital to my dismay the consultant psychiatrist raised the drug to 20mg and Elizabeth has complained of numerous side effects which I will tell you about later. Anyway to continue with the ingredients and colorants:

FD & C Blue No. 2 Aluminium Lake  –  this is a poison deliberately introduced into the drug so I believe.  To combat this it is a good idea to use Magnesium citrate in order to take out the aluminium that can affect the brain.

JESUS -N/a tartrazine  FD&C Yellow Aluminium Lake is a chemical concoction drived from coal tar.  It is known to be a reproductive toxin.   All artificial colours contain Aluminium Lake so when someone gets to choose between red, blue or green medicine they are really choosing which poison they get to consume. Several chemically enhanced food colourings contain ammonia and therefore produce compounds proven to cause various cancers in animal studies according to CSPI, the Centre for Science in the Public Interest (http://www.cspinet.org/reporyts/chemcuisine.htm):

Damaging Actions:

Blue //1 –  Research shows it  causes kidney tumors in mice.

Blue // 2 – Even higher incidence of  tumors specifically gliomas in  male rats – (a type of tumor that starts in the brain or spine)

Red //2 – Toxic to rodents even at modest levels and causes tumors of the bladder.

Red// 3 FDA recognised it in 1990 as a cause of thyroid cancer in animals. It was  banned in cosmetics but still allowed in food and medicine.

Red//40 – Most popular dye of all. Debilitates the immune system in mice .  Allergic reactions common.

Green//40 Causes bladder and testes tumors

Yellow//5 Affects behaviour and induces severe hypersensitivity reactions.

Yellow //6 Causes adrenal tumors in animals.

 

Aripriprazole is a psychotropic drug that is available as ABILIFY (R) tablets.  ABILIFY DISCMELT (R) orally disintegrating tablets, ABILIFY (R) ((Aripriprazole) Oral solution and ABILIFY (R)  injection, a solution for intramuscular injection.  Inactive ingredients include acesulfame potassium, aspartame, calcium silicate, croscarmellose sodiuim, crospovidone, crème de vanilla (natural and artificial flavours), magnesium stearate, microcrystalline cellulose, silicon dioxide, tartaric acid and xylitol.   Colorants:  ferric oxide (yellor or red) and FD&c bLUE nO. 2 aluminium Lake.  Abilify oralsolution is a clear, colorless to light-yellor solution which includes disodium edetate, fructose glycerine, dl-lactic acid, methylparaben, propylene glycol, propylparaben, sodium hydroxide, sucrose and purified water. The oral solution is flavoured with natural orange cream and other natural flavours.

ABILIFY injection is available in single dose vials as a ready to us 9.75 mg/1.3 mL (7.5mg/mL) – clear colourless sterile aqueous solution for intramuscular use only.Inactive ingredients for this solution include 199.5mg of sulfobutylether b-cyclodextrin (SBECD) , 10.4mgof tartaric acid, qsto pH 4.3 sodium hydroxide and qs to 1.33mL of water for injection.

SIDE EFFECTS OF ARIPRIPRAZOLE (ABILIFY) – GET EMERGENCY HELP FOR SIGNS OF AN ALLERGIC REACTION – HIVES, DIFFICULTY BREATHING, SWELLING OF FACE, LIPS, TONGUE OR THROAT.

Elizabeth has complained of strange pains in her arms and said she does not feel well on this chemical at 20mg. I have therefore written to the consultant psychiatrist.  Elizabeth is not due a review until June but what happens in my local area is that they ignore the family.   A letter addressed to Elizabeth marked Private and Confidential was not known about immediately and a date was given for Elizabeth to attend the clinic in Silver Street Enfield.   None of us knew until the last minute when we found the letter on the floor of the living room.   Therefore we could not arrange at such short notice to bring Elizabeth who suffers from Agoraphobia to this appointment.  One of my carers have been in touch to rearrange it but has not heard anything yet.  Elizabeth gave consent for close family and friends to be involved but this is an area who are plodding along in the usual way, whereas other areas under wish to see change and that change in the system is about to happen.  I will tell you all about it in my next blog.

Anyway, unless we as a family and my carers are informed then there is no way that Elizabeth will attend their clinics and besides the consultant psychiatrist should visit home in the circumstances.  The last time the consultant psychiatrist came to my home  he spent a long time looking at the results from Holland.  These are accurate lab results from the world’s leading expert in metabolism and because Elizabeth is a non metaboliser of these chemicals what we have seen in the past is allergic reactions and besides anyone would have a reaction on the huge amounts of drugs that she has been given by my local area.   Surely this is against prescribing regulations/recommendations.

Elizabeth’s Progress and Reflection on her care to date:

When I went to pick Elizabeth up Cygnet Hospital approx. 3 weeks ago now she was very nervous about going outside and even getting into the car was an ordeal for her.  Elizabeth’s hands were like blocks of ice and she looked very pale.  Whilst the hospital looked like a high secure prison I have to say that the staff were nice to Elizabeth and it is the first hospital where I have been treated decently.

So to begin with Elizabeth did not want to go out at all anywhere.  Even going up the road was an ordeal and she made excuses not to go out and was making herself physically sick.   It was like when she first came home and when someone is stuck indoors and only taken for short walks or allowed limited fresh air outside of the building, they can suffer from Agoraphobia and their confidence can be destroyed.   My own friends and close family had been working with Elizabeth to try to get her out and about as much as possible when she came home from the care home in 2014.  Slowly and gradually we began to see improvement but not once has Elizabeth been out alone and she had stopped answering the phone.   This was a worry whilst in hospital as whilst staff were very nice to her this could have gone on to a section 3 and every six months you can appeal and it is not easy to get off this.  So solicitors were being turned away and no one came near apart from friends and family to visit.  I think solicitors should be visiting patients to take their instructions rather than wait for someone to phone them and this should all be a matter of course as I can see how people become trapped in the system and now Elizabeth is home she admitted she did not feel well enough to speak to a solicitor or pick up the phone and make initial contact.   Also when drugs are introduced this further weakens a patient’s ability to fight for their own release and you get up to 14 days to challenge the section 2 as a patient before the Nearest Relative can step in and challenge the section and ask for their release.  When I could see that a further increase in the drugs was being given from 10mg to 20mg I was absolutely dismayed.

It has taken Elizabeth some time to settle after her experience and she has only just started to go out with carers but not far apart from yesterday when I accompanied her to China Life Tea and Primrose Hill market. However eating out is an ordeal for Elizabeth who feels ill after eating and could not eat anything whilst out yesterday.  The only place I saw Elizabeth truly relaxed was at Chinalife. This is a truly therapeutic place and I would like to thank Don of China Life for the wonderful biscuits he sent to Elizabeth whilst in hospital.  the whole ward could have benefitted from the treatments on offer there and huge variety of teas.   When we got to Primrose Hill organic food market Elizabeth was suffering from anxiety.   I have read on a patient’s site that anxiety and akathisia are common experiences on this drug. I can honestly say that this drug is not working – none of the drugs even at maximum levels have destroyed Elizabeth’s memories.  What a waste of money and Elizabeth is not alone sadly as this is the main “care” – drugs and more and more drugs!

For the record, Elizabeth has refused injections and ECT but that means nothing when under a section as these doctors disregard someone’s wishes and go ahead.   When you see someone drug free they are able to freely speak clearly and you get to hear the full truth and emotions that have been suppressed are released.  Well Elizabeth was doing well without any drugs at all whilst in hospital and it was 3 weeks since stopping Clozapine before the next chemical Abilify was introduced.    Like I say this drug does nothing for her when what she really needs is psychotherapy and counselling.

So we are back to square 1 again trying to encourage Elizabeth to go out with carers.  She is limited to where she can go out.   We have a care plan that contains nothing.  We have had a visit from the care coordinator – I was not present but according to my carer it was not a good meeting so I heard.  A good meeting is a productive one.    I am therefore left to look into providing psychological help for Elizabeth myself as going into an acute ward for any length of time  must in itself be distressing and seeing people who are really disturbed and some even worse than you are.  This is bound to affect someone especially when there is no end in sight of release and to be uncertain as to what is going to happen next.

My criticism of Cygnet was that Elizabeth was not given an assessment for Aspergers which Cygnet offer but not at that branch apparently.  Also, the  consultant psychiatrist introduced Abilify when Elizabeth was doing well without any drugs at all and had settled down. The bad cough had gone.  My local area prefer not to pay  for proper assessments which would cost say £600 but yet think nothing of paying say £10000 a week for hospitalisation. I even offered to pay myself for the assessments but they were not done at this particular branch in Stevenage.  I was even prepared to pay for all the care elsewhere at a private rehab centre where Elizabeth would not have been drugged again.  Her diagnosis is in doubt but no one will consider this fact and properly investigate matters which means that people like Elizabeth do not get the correct treatment.

In a hospital like Cygnet solicitors will not come near unless a patient asks but what if a patient is incapable of picking up the phone and requesting a solicitor.  What if that patient fails to realise what a serious situation they are in and they have only 14 days to appeal against the Section 2.  That person can get trapped in the system especially if they are sent to Wales and Cambian like Elizabeth was where a consultant psychiatrist takes a dislike to you and that can be a real barrier in getting release.

Cygnet were one of the few hospitals where I have been included and not dismissed like rubbish.   Cygnet also treated Elizabeth well apart from these chemicals of Abilify and even suggesting about going back on Clozapine – this drug caused a rare and serious reaction where Elizabeth complained of her tongue going to the back of her throat and luckily Elizabeth flatly refused this awful drug that contains talc and aspartame.  At least Elizabeth no longer has to have blood tests and wait for hours in the local hospital waiting rooms.

So since the visit of the cpn a further visit is planned but not for some time yet.  Therefore nothing is being currently provided.

Elizabeth enjoyed her day out yesterday and today we are visiting for the first time the elderly lady and I am going to cook dinner.  I am not happy with the way this lady who I have known for quite some time is being treated by the Council.  I think I mentioned the fact that she had no food at Xmas and no one had access to her money so I had to do the shopping.   All this in an area where there is an abundance of money to spend in the wrong direction such as court action for instance and overdrugging.  I could not believe it when it was suggested that this elderly lady was lacking in capacity and I want everyone to know SHE HAS FULL CAPACITY and I am contacted as “next of kin” when things are not doing well so today I am going to see exactly how things are but I regrettably have not been unable to visit her up until now as Elizabeth has needed my help and visiting her to and from Stevenage took up a great deal of my time.

I will keep you all informed about developments as I will shortly have plenty to tell you about some wonderful changes.

In the meantime I hope my meeting with someone very important goes ahead and again I will let you know all about this.

 

 

 

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2 comments
  1. Wow I don’t know this situation at all. Am just seeing this blog now. Are you elizabeth’s mom? You are an amazing advocate for her. It does sound like she’s been treated horribly by the system. Loved ones should be as involved as posible in people’s lives as advocates especially dealing with professionals who think they have power over people. I’m in the US and we don’t have things like these different sections and stuff. But they sound very scary to put a person through all that. How old is she? It sounds like you and others look out for her. Hoping for the best.

    • I am Elizabeth’s mum and I hope that my blog gets attention as I would like to see a fairer system like in Western Finland of Open Dialogue but Open Dialogue in the UK is not like I imagined and we were not considered to be suitable. We could have worked well with a team of professionals where there was openness and honesty and like Dr Bob Johnson says “Truth Trust and Consent.” May God praise him for his honesty.

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