Elizabeth was transferred to this hospital NPU from the local area. She was very ill at the time suffering severe adverse reaction to maximum levels of concomitantly prescribed drugs given so I can see documented. I have already mentioned them but 800mg Quetiapine is maximum level – Clorpromazine on top, Haloperidol on top as well as Zopicol and Lorazepam. No wonder she was having adverse reactions.
She was promised a drug free period of assessment by Prof Murray and I thought that this was a specialist hospital that could help Elizabeth and if she was allergic to these drugs, proper assessments would be given and I had it all in writing that she was being offered a drug free period of assessment. After admission when I was concerned that Elizabeth’s Advanced Declaration appeared to be ignored – why were they pushing Clozapine? I made a point in showing the staff the letter from Prof Murray as well as drawing to their attention that Clozapine as a drug that Elizabeth did NOT wish to be on. They just ignored this and I soon got to find out to my dismay “you should have done your research – its all about Clozapine here”. I can confirm that this drug does not work as Elizabeth can still feel emotion and there is nothing wrong with this.
Anyway here below is what happens when you object to a team’s proposals and when you dare to speak up for your relative. Here below documented are the most ruthless dealings you can expect at this and other establishments within the UK in breach of human rights and Article 8 HRA:
Included in an email from social worker from local area dated 19th November 2012 were the following recipients:
There were 2 social workers (YES ELIZABETH HAD TWO SOCIAL WORKERS AT THE TIME BOTH FROM THE LOCAL AREA); Consultant Psychiatrist from Bethlem (BEDLAM); Ward Manager from BEDLAM; lead Nurse from BEDLAM: Heading “SECTION 3 APPLICATION” – The email was written by one of the social workers from the local area.
The email states I had withdrawn my objection to section 3 detention under the MHA – however she refers to my email where I had numerous concerns and I am going to document extracts of my email here dated 31st May 2012:
“It is not in my daughter’s interest that I am replaced as the nearest relative as her father lives a distance away and does not visit that often”.
“Since I have been given no time to find a legal representative to help me in court I see little chance in me succeeding against all the team and against the Section 3 MHA Application so unfortunately I have no choice but to say “yes”, even though my daughter is unhappy and blames me for being in what she calls “prison”.” So my daughter called it prison and hell on earth in the files.
“I have made the Honourable Judge … more than aware of the reasons for me complaining and I think that I and the rest of the family are owed an explanation as to why my daughter’s face was covered in bruises.” I referred to a visit I found out my daughter had been visited on the ward by someone who had made threats against me from the local area. Apparently he had been allowed to come onto the ward drunk with alcohol.
I go on to say that” I had no regrets for challenging the team – if this was their daughter they would be thinking differently.” I referred to lack of help with money at local level where in the scheme in the community she spend money on things other than food and at other times no money would be withdrawn from the office. So in other words Elizabeth was not eating correctly and not having the correct nutrition can affect someone badly if they are on these drugs. Living off takeaways as she was too ill to do simple tasks such as cook/clean her flat, wash up, throw away rubbish and cook. One evening she was sitting in darkness as a light bulb has blown and there was not a spare one available in the scheme. She was just going downhill as she had spent a long time in hospital prior to discharge into the community. I also mentioned that she had “lost – (stolen) expensive items such as a keyboard, two guitars, a playstation 2 and jewellery. I had asked for an examination of the CCTV but nothing was ever done about this.
My main area of conflict with the team has been against the drugs. I do not agree with drugging someone for life and wanted to see her on minimal levels but they just ignore this. There is not one single facility in this Country for someone to go in to be withdrawn safely from psychiatric drugs and no one is considering the long term effects of the drugs to the patient – they do not consider the risks of this at all which is a disgrace in my opinion. If someone is misdiagnosed or have multiple diagnoses – termed “treatment resistant” this does not make any difference and they are expected to take drugs for life even though the diagnosis is in question.
HOW THEY GANG UP:
Prior to these emails there is correspondence from someone who I believe is in the legal team of SLaM. In her email dated June 2012 she is discussing the best way to get rid of me as the Nearest Relative and advising the consultant psychiatrist there that it is possible to displace a nearest relative for reasons other than they are objecting to a section 3 application including that the nearest relative is otherwise not a suitable person to act as such. She goes on to advise that the application can be made by another relative – the patient or an AMHP. She said that they could not pursue that this week as the application to displace before the court was simply on the basis of the objection to Section 3. She goes on to say that she thinks it is highly unlikely that Elizabeth would feel able to take such action but that the care coordinator from the local area would be inclined and is planning to have discussions with her legal department in the LOCAL AREA!
SHE GOES ON TO SUGGEST THAT THE TEAM AT THE NPU SHOULD KEEP CLEAR RECORDS OF ALL THE DIFFICULTIES YOU HAVE WITH MRS B SO THAT ………….SOCIAL WORKER FROM LOCAL AREA CAN ADD THIS TO THE EVIDENCE.
NOW THAT ELIZABETH IS DETAINED YOU DO HAVE THE POWERS THAT CAN HELP TO MANAGE THE SITUATION INCLUDING CONTROL OF SECTION 17 LEAVE AND CONTROL OF VISITS IF THEY ARE COUNTER THERAPEUTIC. YOU MAY ALSO WISH TO CONSIDER WHETHER ELIZABETH SHOULD BE ALLOWED TO KEEP HER MOBILE PHONE AS THIS IS CLEARLY A WAY THE MOTHER EXERTS A LOT OF INFLUENCE WHICH UNDERMINES HER TREATMENT.
Copied in to this email above is the two social workers locally, Ward Manager/Lead Nurse and Psychiatrist from the Bethlem.
EMAIL FROM THE CONSULTANT PSYCHIATRIST NPU –He asks if hypothetically if one can proceed with the displacement of the nearest relative even if they are not objecting to detention.
Around about this time a new social worker was being considered – (the very one that continued with this campaign of “displacement” of me as the nearest relative/family destruction most recently in the current attempt to sever contact . I can see copied into correspondence the Manager locally who is objecting to certain files being released that contain serious allegations made against “someone” and they will not even supply the name/number of the police officer concerned. How interesting two names from her department as well as a note that they plan to ban Mrs B from the ward and it all about the compliance of the drug Clozapine for which Elizabeth flatly refused in the first instance and in an Advanced Declaration too. This is all these so called professionals care about the pushing of more drugs at my daughter and banning and displacement of nearest relative trying to cause trouble and divide within the family. This note is coming from the social worker at local level. prior to her discharge from the Bethlem and transfer to Cambian. It shows how the team were writing and in touch with Mr B in an attempt to cut me out altogether with total disregard to the damage this would cause Elizabeth coercing one parent to agree and go along with their wishes. So first of all Olanzapine and Quetiapine were mixed together – Olanzapine was given at maximum levels at the NPU. Then Olanzapine was being titrated with Clozapine. I see the copy of the Advanced Declaration Elizabeth signed dated 25 March 2012 – showing her objection to physically invasive treatment and that includes psychiatric drugs and ECT or psychosurgery. Well she was offered ECT – how interesting. The truth is all coming out now but Elizabeth cannot remember whether she actually had ECT – she remembers seeing the words ECT on the door so ECT does go on there according to Elizabeth.
I sat there taking down the minutes in shorthand at a CPA meeting on Friday 04 May and brought with me a witness – a long term family friend.
I had disagreed with the consultant psychiatrist as to how the reduction was going to be done and told him this could not possible be done in two weeks. She was on a huge amount of drugs already so I know this much that taking someone off too steeply can cause psychosis as well as mixing more than one drug together.
I quoted my daughter’s remarks “Get me out of here – I am so unhappy”. Elizabeth told me she did not go out much and she said “lets go anywhere and get away from here because I cannot stand much more and she went on to describe it as prison” I felt devastated as this is not what I had in mind for my daughter and thought they would help her but instead they just put her on maximum amounts of drugs and Clozapine against her wishes. “I want to come home Mum”. However the team had other ideas as documented above. At this meeting which had much less people than the last one where there was about 9, I noticed the pharmacist smiling as though she was highly amused but when I commented this took the smile off her face. The times I have seen certain members of the team sitting there smiling and having their own private joke. The meeting did not go on long and came to an abrupt halt when I disagreed with the consultant psychiatrist and had even brought with me a cd on how this should be done correctly by Dr Ann Blake Tracy as well as other information by Professor Healy regarding the Olanzapine. As well as the pharmacist smiling so was the doctor and he called for a halt in the meeting and said it would continue another week. I went to stand up and said I was not happy and wanted the meeting to continue he said “Get out of the room or I will call security and have you removed”. I told him that he was going against God and that he was abusing my daughter by not listening to her wishes.” It was very noticeable that Elizabeth who wanted to sit in on some of these meetings was not represented by an advocate but when I looked them up to my horror I saw consultant psychiatrists on their Board so I felt an advocate should be appointed who was completely independent ie., no funding! I am afraid that excludes Mind and Rethink but I found an excellent advocate who went to town on his emails and had vast experience of this hospital and it was good because I got to know everyone’s names. Who better to appoint but a former patient who had full understanding of everything. I shall give you some examples of his support later on.
Getting back to the Legal teams – this is something written by someone in the legal department locally. Apparently their application is founded only on the unreasonable objection ground and though the court envisage likelihood of the exercising of power to dischsarge as an alternatiave ground apparently this was not what their application says and to amend it at short notice to mother did not seem acceptable to her. Instead she goes on to say that” if they can go with the S3 that removes the current difficulty of having been unable to extend the S2.” She therefore thinks that “mother should be informed that the Section 2 IS NOT IN FACT EXTENDED and invite consent from her to withdraw the application on the basis she DOES NOT OBJECT TO SECTION 3. ” All of this coming from an area who call themselves “committed to serving the whole Borough fairly, delivering excellent services and building strong communities.
LETTER BANNING ME FROM NPU VISITING:
The Multi Discipline Team feel it would be more beneficial to visit Elizabeth off the ward. The MDT request you refrain from visiting for the next 3 weeks. This does not mean you are not able to have visits off the ward. A nurse escort will be provided for agreed leave determined y her Section 17 leave. Wow – I was given just 1 hour to visit and so what could I do in one hour? I tried to bring some life onto this morgue of a ward where patients were drugged up to their necks and the grounds outside deserted. I contacted certain celebrities but none were interested in visiting so I was prepared to pay for Tai Chi or Relaxation classes or even something more lively in the one hour I was allowed to spend with my daughter but then it came to the point where no amount of time was allowed not even was Elizabeth allowed on a hot sunny day. This was not allowed and Elizabeth and other patients were cooped up on the ward like prisoners. I have already documented how not once did Elizabeth get taken swimming and I noticed the swimming pool being used by the community and not by the patients. I was threatened with arrest if I did not leave the premises so I called the Police myself and I noticed staff wore name badges back to front. I could despite all of this praise one or two nurses there but I have no praise for certain other team members who just went along with everything treating Elizabeth like an object. I would praise one nurse who came out running with us in the one hour allowed visit. Elizabeth could hardly walk let alone run and this is when I found out they had given her Clozapine and Metformine. I have only just found out about the Clozapine Chemotherapy and wonder why this was given – the family need to know if there are any health problems such as cancer and diabetes WHY THE SECRECY? Whilst the team banned me they did not ban someone from the local area who turned up drunk and brought alcohol on the ward. He was escorted off and banned apparently.
I am seeing now the full truth – the person who was appointed to investigate my most recent justified complaint about the deprival of medication for which I had no choice but to contact solicitors as no one in the team was budging – not one person helped me locally – she is the Manager of the department over which two other members of the Team rule – familiar names so I see. All this in an area where the Chief Executive says “I am satisfied” – how many times has she said she is satisfied that the care is excellent/satisfactory, that she is satisfied things have been dealt with fairly and now I can prove the opposite!
I had just one day’s notice to get time off to attend the court case in Bromley and had court papers sent to me over my work computer in front of all my colleagues. I was bombarded by phone calls by their legal teams.
Extracts from Elizabeth’s appointed Advocate:
Please make sure that Susan Bevis’s extremely serious concerns, extremely reasonable proposals and extremely reasonable requests get responded to appropriately and with appropriate speed from this moment on , as, so far, these matters seem to be being treated as of little importance and not at all urgent, when the reverse is actually needed. SLaM’s usual “tardiness” syndrome must not be allowed to deliver sloppy responses long after far too many horses have bolted. And SLaM’s usual “sloppiness” syndrome must not be allowed to treat “slow response”, or “no response”, as acceptable. You should listen very attentively to Susan because she is a “plain speaker” who does not try to make excuses for the behaviour of your so called “professional staff” when their behaviour ranges from the “mindlessly and thoughtlessly rude” to the “unbelievably insane”. Invite a documentary team to spend a month on your wards because the real abusers always smarten up their acts when they know that they are being watched. Behind closed doors, your “hospital” has “normalised” abuse — it has allowed abuse to become routine, and a way of life – and the fact that most other Trusts have done the same does not make this Okay. I strongly recommend that you instruct the entire management team to stop being compulsively defensive and start working positively with people like Susan and I. because you should be treating us as your greatest allies. We are all on the same side. We only differ in politics, where Susan and I believe that openness, honesty are always the best policy, whereas current SLaM culture dictates that arse-covering must always be the most important order of the day. “
My advocate then goes on to give some examples of the abuse he has suffered in terms of restraint but because of lack of evidence nothing was ever done about this.
“I strongly recommend that key senior managers get together for an extensive fact and action establishing meeting with Susan and I and other members of Speak Out Against Psychiatry, preferable at a time and location that suits Susan and I although Susan and I will be flexible about this because we always put swift high quality results ahead of personal convenience.
Here are a list of proposals from Elizabeth’s Advocate who she appointed herself having had a long conversation with this former patient who clearly has a great understanding:
Our priorities should be :
- Research alternatives and treatment organisations that would be more suitable for Elizabeth.
- Get a good solicitors and Tribunal set up ASAP.
- Get a substantial (2hr) CPA meeting set up to take place c 2 weeks before the Tribunal wit a view to closing as many perception gaps as possible, with a view to getting some agreement as to what best possible future options might be, with a view to getting everyone on Elizabeth’s side in ways that she is happy with, and with a view to making sure that when the Tribunal takes place, no one gets any last minute horrible surprises spring on them (which often happens even though it is not supposed to happen).
- Make sure that all Tribunal – required clinical reports are ready for review in advance of the CPA meeting.
- Finally please don’t be too upset about the attitude that says “I like to start afresh with each patient and I have enough reading to do” Contrary to the view of most psychiatrists that “patients never change” and “patients never move on” and “we don’t need any fresh diagnoses based on up to date fresh assessments because the old diagnoses are always good enough – contrary to this view most patients do move on and fresh up to date diagnoses, free of note based assumptions should always be given priority over what one assumed (possibly incorrectly) many, many years ago. Taking “history” too seriously can be highly problematic and can lead to all sorts of wrong decisions being made based on information that is no longer relevant. Ignoring history is also bad but far less problematic – he goes on to give an example of his own situation that the professionals know virtually nothing about present day because they have no real relationship with the patient.
“The experts” are only experts at building scary fantasy worlds in their own private worlds of ever more notes using a special private fantasy language that has evolved over the years for the purposes of pretending to help people and/or proving that clinicians are doing something useful, when deep down they know they are not. This also arises from laziness, because the self-awareness and self-honesty required to build real meaningful relationships with a real live human being is not something that can be achieved by remembering instructions off the back of a fag packet.”
Well this just about sums things up. My advocate has copied in many names but this is what a team does when I myself have written to just one person whose signature appears at the bottom of a letter. In comparison someone who has real life experience makes a wonderful advocate and I have no end of emails supporting myself and Elizabeth – at least there is no report notes between advocates and social services etc. You know you are getting 100% honesty this way and transparency and fairness in holding team members to account unlike what I have seen by designated advocates who get funding and write report notes to social services.
I am going to end here as my nutritionist has given me no end of instructions to prepare things for Elizabeth this morning and throughout the day. Elizabeth and my nutritionist prefer to take food with them to the venue that is gluten free and does not contain any additives as my nutritionist and advisor is an expert in this field and I want to introduce him to the wonderful Dr William Shaw of the Great Plains Laboratory.
I am so happy with everything right now. Elizabeth has come home smiling and happy last night and is being taken some wonderful venues which I will write about later on. I could not be happier. Also some of the mothers are experts too on nutrition so it will be good to introduce him to everyone and I cannot wait to attend later on.
http://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(15)00460-5/fulltext – What can I say to this! I would be interested to hear your comments after you have read the truth from above and below see the accurate blog below.