“You will have to take the drugs for the rest of your life” –  this is the comment said to Elizabeth by two consultant psychiatrists who I feel like naming.

Now there is the debate coming up shortly of the Institute of Psychiatry (Maudsley Debates) below and it is at last being recognised that the drugs can do more harm than good.   So,  I hope that I will get the chance to speak at this debate or better still my younger daughter is happy to get up and speak on behalf of her sister who has been classed as a case of no hope yet I am about to prove otherwise to everyone.  Elizabeth’s sister has been diagnosed as having Schizophrenia as a child – can anyone explain why my younger daughter is on “top of the world” – well I put it down to the fact that  I managed to successfully get her off the poisonous chemical – Risperidone given to her locally by a child consultant psychiatrist.    It was not easy to get her off either- the drug made her more anxious than I’d ever seen before and caused enormous weight gain.  From seeing this, I became very much against the prescribing of drugs to children in fact not only to children but also to the elderly such as my father with Alzheimers and anyone in fact.  These drugs are not easy to come off and there is no help whatsoever and if someone tries to take themselves off these drugs instead of a doctor correctly recognising withdrawal symptoms they give a label and say there is a mental health problem so someone can easily be misdiagnosed like Elizabeth has been.   With no school to go to locally due to problems I wont go into here, I searched for a good school in another area and it is thanks to the school SusieEarnshaw Theatre School that my daughter is on top of the world.  Thank you so much.

With a father who had Alzheimers going downhill over a ten year period, that took up a good deal of my time to point it practically took over my life – suddenly I had other caring responsibilities for my younger daughter but I was determined not to put my father into a care home as this would have been against his wishes.   I wish I had questioned to begin with the drugs given to my elderly father, instead of trusting the doctors -how I wish I had looked into this thoroughly. I would urge anyone that has elderly parents not to just place their trust in these doctors but to look up the drugs themselves and to question matters – why put someone elderly on anti-psychotics.   My father was a placid man, this changed him into someone who could have mood swings – bouts of aggression like never before which of course doctors  never associate with the drugs given but put down to symptoms of illness –  this is rubbish.  I now recognise the “symptoms” in both my father’s case and my elder daughter’s case as caused directly by the drugs themselves.    The drugs caused my father to have a heart attack and were giving him no benefit whatsoever, just like the drug Clozapine is giving my elder daughter Elizabeth no benefit.   The drug Aricept “worked” in preserving my father’s ability to prolong a better state of life but when this was withdrawn my father went downhill rapidly and ended up in a wheelchair.  Never once did I wish to give up and put him into a home – constantly various staff members would say to me “why don’t you put your father into a home – he is taking over your life”   – well I did not see it like this at all.  Yes there were many sacrifices –  I was working part time –  I could not go far on holiday or even consider going abroad.  There were many problems when my father went into respite and staff would contact me as they could not always cope. On one occasion he went missing and somehow found his way back to his old home that was miles away.    Now the doctors have ruined Elizabeth’s  physical health and I want something done about that, not just a debate – they do not care less – what would they do if this was one of their relatives? – would they give the maximum of drugs if it was one of their relatives?   I can clearly see that Elizabeth is just a number to them – one more case of their enormous workload of MH patients left on long term drugging, prescribed drugs at the maximum levels and the care is not working and why – because emotional issues are not being addressed at all as described perfectly in the book Emotional Health by Dr Bob Johnson.  They want to drug Elizabeth for the rest of her life yet are ignoring serious physical conditions that I have seen in the files recently acquired and proven further by having private endocrinology tests done. They are supposed to do no harm and are protected by the law so when things go wrong who is going to find out if someone is in such a hospital where visits are restricted and so is contact with family.   Police and social services just back them to the hilt but I respect those who are against the system but understand how they just go along with it all because otherwise their jobs would be at risk.   I personally would take the opposite course as I could not go along with anything that was not right. An example of professionals not caring less – a Neurologist at Queen’s Square said “optimise the drugs” -surely a decent doctor would not wish to optimise the drugs, causing harm to the patient’s physical health but I can prove the harm they are causing and who is responsible for this.  The law protects them – the law is not helping people like my daughter.  I wish I could say more here but I will in due course.  So the Professionals that do care are afraid to speak out as it is more than their job is worth.   Well I am not afraid to speak out against this kind of abuse.

I have just been invited to the Legalex Exhibition but this is on the same day as the debate for institute of Psychiatry –  I do not know if I can get along to this but I have had the most shocking experience of solicitors and their handling of my daughter’s cases involving court-  I might just contact the organisers of this event –   I am far from happy by the way my daughter has been treated by the legal profession.   If there was anyone that can help me at this wonderful Exhibition I would be happy to attend with Elizabeth and her sister.

If any of you that follow me on Twitter are attending the Institute of Psychiatry Maudsley Debates I would be most happy to meet you and introduce my two daughters and all the other mothers.

52nd Maudsley Debate: More harm than good?

Denmark Hill Campus, Institute of Psychiatry (Main Building)
Public Talk
13/05/2015 (17:30-19:00)
Anatomical illustration of head

This house believes that the long term use of psychiatric medications is causing more harm than good.       And the House I hope is going to do the voting fairly this time and count votes properly from those in the overflow room.

This event and the waiting list are fully booked. To receive details of future events please join the mailing list.

Chair:  Professor Til Wykes, Professor of Clinical Psychology & Rehabilitation and Vice-Dean, Psychology & Systems Sciences, IoPPN

Professor Sami Timimi, Consultant Child & Adolescent Psychiatrist; Director of Postgraduate Education, NHS Lincolnshire; Visiting Professor of Child & Adolescent Psychiatry, University of Lincoln
Professor Peter Gøtzsche, Director, The Nordic Cochrane Centre, Denmark
Professor Allan Young, Professor of Mood Disorders, IoPPN  )
Mr John Crace, Journalist, The Guardian                                 )   I am looking forward to showing you evidence and for you to hear from my daughters directly
17.30–18.00: Refreshments
18.00–19.15: Debate
19.15–20.30: Reception
I have attendedthese events before alone but this time it gives me great pleasure to be able to bring along both daughters.  I am looking forward to meeting Professor Timini and Professor Gotzsche and I hope my younger daughter gets the chance to speak – to my amazement Elizabeth took part in one of my recent conferences and got up to introduce herself to everyone – since coming home she is improving so maybe Elizabeth will wish say something herself at the Institute of Psychiatry and I as a mother am encouraging her to stand up for herself.
Myself, Elizabeth, her sister and my friends who are coming from so far away, those mothers who are badly affected with sons and daughters long term incarcerated in hell on earth hospitals worse than prison.   I would like to speak to Mr John Crace of the Guardian and to show him all the proof I have – how quick these professionals are to write someone off as having no hope when Elizabeth  is doing so well and I want the world to know.  I am shocked to seed that this journalist is Against.  He and Professor Young will not have anything to argue about as not only myself but they will be up against a lot of mothers who can provide actual evidence –  I am delighted to do this myself as I have acquired all the files and the reason the team did not wish me to see the files is because there is plenty to cover up.   I am happy to speak to as many journalists as possible not just in this country but internationally.    I am shocked to see that a journalist for the Guardian is Against – this would be the kind of thing I would expect from the Sun.
The reception at the end of the debate is good where you can speak to some of these professionals (those who are brave enough to stay and do not disappear in a rush) Some of these professional looked a bit uncomfortable to speak to me what with all the research and evidence I have acquired and now I have even more now to show     I now want to know who is going to help Elizabeth – how would they feel if they were told “you have to take the drugs for the rest of your life” especially when  there is no such thing as Schizophrenia.  It would seem to me like no one is wiling to take the risk to reduce someone off the drugs despite having the knowledge,  especially a drug like Clozapine  –   it would seem like instead of safeguarding my daughter they are safeguarding themselves.  I suppose this is in case of the likelihood that  someone is severely injured  so by giving them a lifetime of drugging makes things easier, a means of  convenience, less risk for themselves and of course it is very profitable to keep someone drugged up and I want the press to know about all my friends (who will be coming from a long distance to attend this debate) those who have sons and daughters long term on enormous quantities of drugs in the most dreadful of “hospitals” or care homes worse than any prison yet these young people are discarded like rubbish,  the public needs to be informed that these young people have been left to go downhill to the extent they give up –  I saw the effect on Elizabeth at one time.  The public need to know that these a lot of these young people are not those who have committed terrible crimes or killed someone – they are people who have been “put away” as a matter of convenience and drugged to the extent they no longer have a voice.  This is being done at the expense of other services that affect the public and must be costing a fortune.  In the event when someone does develop a serious blood disorder only then do these professionals act and taking someone off the drugs steeply is done in a horrendous way so I have heard. Seeing as the Guardian reporter is Against I wish for there to be other reporters to be involved as I want things reported fairly and I am very happy to speak to each and every newspaper and provide them with all the proof they need of what is really going on in the UK and I am not the only one who would like to talk to many reporters.
Last night at the Millfield was fabulous – the entertainment was brilliant.    It took my mind off everything unpleasant going on in my life.   Unfortunately Elizabeth took the drugs just before we left for the Millfield.  What an effect these powerful drugs have on her – one of the most noticeable effects is dizziness and she was clinging to my arm a lot.  The drugs make her tired and out of breath.    She is showing signs of TD but we are waiting for a referral to a hospital where they have a bigger scanner as twice Elizabeth refused to have the MRI scan which is needed for the Neurologist.  The GP has not bothered to ring me so I am going to have to chase this up.   Not once has the consultant psychiatrist picked up the phone and showed any concern at all.  We don’t even know the name of the consultant psychiatrist as the transfer of care meeting did not go ahead – Elizabeth did not want to come and neither did my carers and you cannot force Elizabeth to do something.  I quite understand especially when you read all the nasty comments said behind your back.  So social services wanted to see us first before seeing the psychiatrist.   We are waiting for some reassurance in respect of something mentioned in the files and due to the serious nature of this I cannot disclose for the time being until we hear further and the same goes for some very disturbing things in respect of the legal case for the time being.

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