C-PTSD

Elizabeth has the diagnosis of PTSD yet the team like to stick with paranoid schizophrenia.  In a most recent report the word treatment resistant seems to be dropped yet the team continue to treat Elizabeth with a drug(Clozapine) which is for treatment resistant schizophrenia.  I  do not accept this label of Schizophrenia.    I do not believe there is such thing as this label and underneath this label for which no bio marker has ever been found that there are problems of a physical nature.  It is wrong that such a label be given when the treatment may be completely wrong for the true underlying condition and why should a patient be labelled for life.  I am now seeing at first hand how inaccurate information is in the files and Elizabeth and I are amazed –  how can a professional go by such files written by some who may have a grudge and get an accurate picture especially when families are excluded. This applies particularly so in cases where there is disagreement not only with the treatment concerned but with the label given.

Such a label “paranoid schizophrenia treatment resistant” can be most damaging and Elizabeth kind of gave up on life not surprisingly but I have spent hours and hours looking into matters and it is only when you thoroughly look at research papers and seek the professional opinions of those who are  up to date with knowledge and read the right books that the horrific truth is revealed.

HOW MANY ARE BEING MISDIAGNOSED WITH THE ABOVE CONDITION WRONGLY AND SUBJECT TO A LIFETIME OF DRUGGING.  NO HELP OR FACILITIES GIVEN FOR SOMEONE TO BE REDUCED OR COME OFF THESE DRUGS.  PHYSICAL HEALTH IS BEING OVERLOOKED IN FAVOUR OF LABELLING SOMEONE FOR LIFE AND DRUGGING THEM FOR LIFE.  WHAT A WASTE OF TAXPAYER’S MONEY AND THESE DRUGS CAN THEMSELVES CAUSE THE VERY SYMPTOMS THAT PSYCHIATRISTS STATE ARE ASSOCIATED WITH THE CONDITION OF PARANOID SCHIZOPHRENIA TREATMENT RESISTANT.

Coming off such drugs is of course dangerous but there is the knowledge and horrifically some have to be taken off in the most horrific manner but only when they develop something like a blood disorder for instance.   I think it is a very cruel system that labels someone for life with a fictitious label and it shows that the system is uncaring the way that patients are forced  to take drugs for conditions they may not even have and the law is on the side of these so called professionals.

Well I will always stick with “there is no such thing as paranoid Schizophrenia Treatment Resistant and Elizabeth has PTSD which is a condition backed by research that is overlooked by the team, many of whom do not even have medical qualifications and yet involve themselves with the pushing of chemicals.  Yet another thing wrong with this rotten outdated system.

 

Elevated adrenaline or cortisol may be evidence that someone is suffering PTSD (or under chronic stress) but are probably best seen as a result of the disorder, (or of a chronically stressful environment) not as causal factors for PTSD.

 

In some life circumstances, (eg combat soldier, refugee from warzone, living as a victim of child abuse or domestic violence) the symptoms we call PTSD are perhaps best viewed as functional adaptions to the environment. I’d suggest that there are some life circumstances in which you want to sleep lightly, be hyper-vigilant, suspicious of the motives of others, etc. It is only a disorder if these behaviours persist when you are no longer in that environment.

 

As I believe has been mentioned above, there is a polymorphism in the serotonin transporter gene (locus, SLC6A4 ; variant, serotonin 5-HTTLPR) which affects vulnerability to PTSD.

People with one or two short alleles of the transporter gene are more likely to develop symptoms of PTSD after exposure to traumatic life events than people with 2 long alleles of the gene. People with one or two of the short versions are also less responsive to CBT or to pharmaceutical treatment of PTSD than people with two long versions.

 

So, the short alleles of this gene are a biomarker for vulnerability to PTSD, but it is VERY important to stress that they are neither sufficient nor necessary to cause PTSD, (ie you need to be exposed to the right sort of stressors whether you possess the shorter alleles or not in order to develop PTSD; and people without the shorter variants may still develop such symptoms if they are subjected to sufficiently traumatic  life-stressors).

This is clearly a gene-environment reaction. Anyone can develop PTSD, but some of us are far more vulnerable.

 

Genes are potential, not destiny. We are all phenotypic expressions of our genetic potentials being unfolded within complex and fluid physical and social environments. Jared Diamond coined the phrase “nature via nurture” (as opposed to “nature versus nurture”) to describe this dynamic complexity.

Serotonin transporter poly-morphisms, social supports, and liability to PTSD ;

 

DOI: 10.1176/appi.ajp.2007.06122007

http://ajp.psychiatryonline.org/doi/abs/10.1176/appi.ajp.2007.06122007

 

Serotonin transporter poly-morphism and response to CBT;

http://dx.doi.org/10.1016/j.biopsych.2010.03.016

http://www.sciencedirect.com/science/article/pii/S0006322310002453

 

Adding to the importance of considering the environment are studies like this one;

 

<<< Stratified analyses indicated that the “s” allele of the 5-HTTLPR polymorphism was associated with decreased risk of PTSD in low-risk environments (low crime/unemployment rates) but increased risk of PTSD in high-risk environments. These results suggest that social environment modifies the effect of 5-HTTLPR genotype on PTSD risk. >>>

doi: 10.1093/aje/kwn397

 

http://aje.oxfordjournals.org/content/early/2009/02/19/aje.kwn397.full

 

Good concise discussion of short allele, PTSD, Panic Disorder, and response to pharmacological treatments, here;

http://www.psycheducation.org/mechanism/2OtherShortsEffects.htm#PTSD

 

2 x short allele, 1 x short allele, 2 x long allele and liability to depression and other problems;

http://www.psycheducation.org/mechanism/1MoralityorGenes.htm#sobo

 

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4 comments
  1. Hello, Dear. My deepest condolences for what you’re going though. My life-partner is going through the same thing in the Acute ward at this time. She is being discharged tomorrow. Her condition has left her homeless, jobless, and penniless. And if I ever want to see her healthy again, I must keep her away from her abusive parents. You and I are countries apart but our pain is the same. So much love and light to you and your daughter.

    https://looniesunite.wordpress.com/2015/08/15/shes-not-crazy-either-complex-post-traumatic-stress-disorder/

    • sbev2013 said:

      You sound a wonderfully supportive partner and thank God your partner is being released from this acute ward as these places are not therapeutic. I am lucky to get my daughter out of the system as in the UK I know of some who are trapped for many years in shocking institutions. Elizabeth has more than one diagnosis and nothing is done properly in the UK and I am giving an accurate account of the shocking system which should be scrapped in my opinion and the UK and other countries can learn from Finland – Tornio where they have Open Dialogue.

      I have educated myself as a mother by reading the correct books – books by Dr Peter Breggin, Robert Whitaker, Dr Joanna Moncrieff, Bonnie Burstow, Dr Bob Johnson, Professor Healy, Dr Ann Blake Tracy, Dr Candace Pert, Dr William Walsh – it is very important to share this knowledge and what is more I do not accept the diagnosis of Paranoid Schizophrenia Treatment Resistant – an acute ward is where they push drugs at maximum levels as I can see from the files and now in one daily paper in the UK the heading is “GPs face axe for handing out too many pills. Well I would like to emphasise on this point. Many thanks for your kind comments and I do not see it as condolence but an honour that I have been given this wonderful opportunity to challenge what is so very wrong in the UK and I have plenty of enthusiasm and energy to deal with all of this not just for my daughter but for others too. I am in touch regularly not only with former patients but mothers and it is important to note that not all mothers are abusive and are fighting for their sons/daughters right now.

      • You are incredibly brave and I want to thank you for not giving up. ETC should be banned, should have been banned, should never have been invented. As someone who has seizures already I can’t imagine the therapeutic purpose of inducing one in somebody. Of course you already know it’s about behavioral control, compliance, and staff convenience; as is the schizophrenia diagnosis. “How to Become Schizophrenic: A Case Against Biological Psychiatry” by John Modrow is the first book that introduced me to the myth of schizophrenia/bipolar disorder. I am very honored that we are in touch.

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