FEELING POSITIVE

I had taken the time off from work today as there was a visit planned from the consultant psychiatrist and someone else from the Team.

The visit went much as planned.    The visit was to discuss an easier way around the problems of the drugs and Elizabeth is on a drug called Clozapine that requires close monitoring.  It is a drug that she was put on against her wishes in a hospital that she herself calls “Hell on Earth” situated in Beckenham Kent.  Elizabeth signed an Advanced Declaration before going in but that is not worth the paper it is written on.

Anyway getting back to the meeting – it was a meeting to discuss an easier way forward.     For the past 6 months I have had no help or support from anyone in the team.  I have had to rely on close friends and family and they have been brilliant.  I am only too aware that if I did not have so many good friends Elizabeth would have ended up back in the care home where she was no longer happy.

It is thanks to my friends she is still here as I work full time.    In some says it is a good thing that I work as it takes ages to get anything up and running under services and otherwise I could not provide anything. For instance when Elizabeth came home back in May I went immediately to see the Carers Centre but then they told me it would take six months when I recently enquired as to a certain scheme they had which worked well before.  I would rather know that Elizabeth is in good company whilst I am out at work to be honest but I am not biased towards people with mental health problems either as I regularly meet with those who have been through absolute hell.   I thoroughly admire them and these people although older than Elizabeth can offer the correct guidance as they have been on the wards and have been through hell themselves.  Peer support –  well I like this very much and wanted  an advocate who really understood what Elizabeth was going through – a former patient and this former patient who may well be looked down upon by certain professionals gave brilliant support to my daughter and wrote email after email in her support –  in turn I learned who was who.  I could not believe how many people were copied in to emails especially when you have an issue of complaint.   It is a waste of time writing but the best thing to do is attend the AGMs.  This way you can avoid correspondence that does not deal with your immediate complaint and is in effect totally ignored.

Emotion:

It is regarded as a sign of mental illness so I see it.

Example:

Symptoms:

Poor memory

Infantile/regressed

Not thinking straight

Losing things

Failing to complete College

Tired and lethargic

Poor motivation

People are against the person concerned

symptom:-…………………………an allegation of rape/abuse under a hospital by a member of staff! From what I have heard from others this can happen but it is all to easy to ignore such things.

Oh my God there are so many things.

The more I read the more I want to know more!

Mood:  –  Irritability – agitation, anxiety, perplexity incongruous affect, restlessness labile affect –

Lack of Insight – Denying she has any problems – not acknowledging risk of own behaviour

Constant symptoms mentioned – memory and agitation. rocking in her chair, touching her face and hair, though disorder.

CONCLUSION

THERE IS NOTHING WRONG WITH MY DAUGHTER – THAT IS BECAUSE SHE IS HAPPY TO BE AT HOME – MUCH HAS HAPPENED TO HER UNDER THE ROTTEN CARE SYSTEM. A SYSTEM THAT PROTECTS THE PROFESSIONALS TO THE HILT EVEN WHEN SOMETHING TERRIBLE HAPPENS AND SOMEONE IN THE FAMILY QUESTIONS THAT WITH EVIDENCE.

At the National Psychosis Unit they claim she was given a drug free period and that is not true. Mixing drugs together can cause a bad reaction to anyone.

THERE IS NOTHING WRONG WITH MY DAUGHTER.   Six months at home mixing in with people who do not have any MH problems and she behaves 100% normally.

She has lost her confidence and suffers from Agoraphobia to the point of feeling sick before going out.

I do not agree with personality disorder as the only time I saw this was on the drug Cipralix and this was ages ago now.

I  will always dispute the diagnosis of Schizophrenia as no bio marker has ever been found to prove it. Treatment resistant is poor or bad metabolizer and I would like to see tests done nationwide like in Liverpool.

Suddenly the diagnosis of “treatment resistant is dropped”

My daughter is happy at home and if more support was given to families then more families would be able to do what I have done.  It is a very sad situation when intervention by a team in a way I cannot document and all too commonplace can have detrimental effects on the family as a whole.  It is all about communication and how you go about the situation and  by threatening and bullying undermines everything.

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