With Elizabeth’s care shrouded in secrecy since leaving the Bethlem and then being transferred to Cambian under Section 3 it has been hard to see what is going on under those circumstances but the truth always comes out in the end. When you are only allowed 1 day and 1 night to share amongst the family and most of that time was spent travelling from Wales. Never before have we as a family been allowed to have Elizabeth for a week like at Easter but that is when you see what is being dished out.
As you know I got 500mg a day taken off (Metformin) as the GP could see no reason why this was ever prescribed. It was prescribed alongside Clozapine which is contra indicated. I felt so happy as the least drugs the better as far as I am concerned as I know what damage this is all doing to Elizabeth. However when I looked at the drugs chart given with the medication brought home there were others mentioned ie Bisoprolol which is a Beta Blocker used to treat hypertension. I can only assume Elizabeth has high blood pressure or heart problems now associated with taking Clozapine. Anyway I looked up this additional drug which was not included with the drugs sent home for her to take – “stopping suddenly may make your condition worse or cause other serious heart problems” “Bisoprolol can cause side effects that may impair your thinking or reactions.”
Tell your healthcare provider:
If you have asthma, bronchitis, emphysema
With diabetes – “Bisoprolol makes it harder for you to tell when you have low blood sugar
Thyroid Disorder/liver/kidney disease.
Also Raynaud’s syndrome which I am concerned about because Elizabeth was ice cold with her hands on a hot sunnyday.
It gives a list of other drugs that can affect Bisoprolol etc. – even vitamins
I am most concerned about this other list of drugs that the team are giving to Elizabeth which also includes Senna as of course Clozapine is a drug that can cause constipation and just take a look at Northampton Hospital as an example there where professionals do not give proper case leading to death.
I have also seen Lorazepam and Paracetamol prescribed so every time Elizabeth mentions she feels stressed or has a headache the staff dish out more and more drugs.
Anyway I have sought advice and Clozapine is contra indicated in heart disease for a start and Senna is often concomitantly prescribed with high doses of Clozapine (Page 222 BNF 60) and 350 mg is high. Also I have been told it is strange that PRN Lorazepam is being used with such a high dose. If 350mg is not controlling the agitation then it would make more sense to titrate Clozapine down and it has been suggested about titrating up with Risperidone which is another 5-HT antagonist. I can see that the Clozapine is not doing Elizabeth any good at all.
I am appalled that I am having to ask about the whereabouts of the supplements which have disappeared into thin air alongside the oils from Dr Tracy. The truth always comes out in the end and I will check thoroughly when I am next down as I am waiting for a response in writing – whilst £200 is not a huge amount of money I would like to know where these are – it is the principal. This is why I am not happy at being requested by Elizabeth to provide more fish oil when these things have disappeared that I originally provided. The GP should provide them instead of all the poisonous drugs she is on now. I have been advised not to use some supplements which are interactive and toxic and that I should check the formularly and never to use St John’s Wort or any other herbal treatments as they are as dangerous as the pharma manufactured treatments. Well I need to watch that the team do not plrescribe any other anti-pscyhotics as this drug Bisoprolol should be used with caution where other anti-psychotics are prescribed. Just about all the D2 (Dopamine) antagonist drugs are associated with cardiac ventricular arrhythmias
Anyway I am not happy that all these drugs are given to my daughter and they are causing her to have side effects.
Because of my concerns the team are calling a meeting and I wonder if the family will be included as this has not been the case in the past.
The new Consultant Psychiatrist has failed to ring me despite my requests and I have made it clear I am far from happy. It is not the care home or the staff or activities it is the treatment. What kind of treatment is this when someone is treatment resistant and can remember everything for a start but worse of all is the treatment called ECT where people lose happy memories and this is forced upon patients under Section. It is barbaric what is going on in the UK.
I am in favour of the research in metabolism as if is proven that someone cannot metabolise the drugs and they are doing more harm than good the this will lead the way for someone to be reduced off these drugs and unlike at present decent facilities provided for when things go wrong as in the case of Elizabeth as NONE of these mind altering drugs have worked. For Elizabeth’s condition of PTSD (or underlying endocrinal disorder the drugs are ineffective and a waste of taxpayer’s money. As you can see there is no end of drugs available for Elizabeth to take yet someone may need a life-saving drug for a physical condition and are denied this – why not stop pushing the drugs at my daughter and then there will be more money available for those who genuinely need these life saving drugs – better as none of these drugs have worked for Elizabeth and the NHS would save a fortune by not pushing drug are drug at psychiatric patients when all along they could have a physical problem instead. No wonder they do not get better and they could be doing more harm than good. For example Clozapine given to refractive patients is a weak dopamine receptor antagonist meaning the symptoms cannot be linked to excessive dopamine in the brain. Clozapine inhibits 5-HT serotonin, muscarinic, histamine and alpha-adreno-receptors. I have received some very good advice about this which I have posted already.
I am waiting to hear about this meeting right now. I would be prepared to take Elizabeth abroad to get decent care and have proper assessments – this is where the money should be spent so that people like Elizabeth can get the correct treatment, not just a catalogue of psychiatric drugs.