The photographer from the Daily Mail came to see me today and took photos in the garden – it has been beautiful weather all day long. I am thrilled that a leading newspaper such as this has taken interest but would have liked even more included in the proposed article. There are many people I know who would love to speak to the Daily Mail themselves about the abuse they have encountered both patients and carers themselves.
Now I am not alone in the house and have been interrupted several times as I had to quickly tidy up the house before this photographer arrived. I have been accused of losing the remote control, papers and various other items and my thoughts are that these things should not have been left lying around by other people in the first place. I refuse to look for another item that may be missing from now on.
I hope these photos are good and that the photographer takes into account my request – unfortunately I do not get a choice of which photo is going to be used.
Anyway after that took place I then decided to phone Elizabeth. I was disappointed to hear that Elizabeth has not been out all day. On a day like this she is on the ward!
This enforces my belief that Elizabeth should be out in the fresh air and certainly not in rigid and strictly controlled environment such as Cambian. I thought there was patient involvement but they do not even involve carers let alone patients. Anyway this is wrong and something should be done about it.
I have written twice to ask when the CPA is and have not had any replies. It would be good for this to be arranged in line with the Tribunal. The whole family want to come down for the Tribunal to support Elizabeth. I have heard Cambian like to keep people a long time and 3 yrs is far too long especially when Elizabeth is starting to lose confidence however finding the right place in the environment is crucial but how can the family present their ideas and thoughts when the team have excluded everyone.
I have said to Mr Lamb at the Institute of Psychiatry that the failure of care at local level has led to this move miles away from home but I apparently am not alone. I know of other mothers who are faced with this situation and are deeply unhappy about it. Mr Lamb mentioned had I not discussed this with my local MP however this system is not working either. If a local MP says he cannot help you then you have to go to a higher level. I have found out that the complaints procedure is not effective – nothing has been achieved except when it was under Healthcare Commission and referring to the Chief Executives claims of Excellent Care – they had to respond to me in a nicer manner but how on earth did the Healthcare Commission come up with “satisfactory” instead of Excellent. Well I would not rate it satisfactory at all especially when I had approached out of interest two firms of solicitors who stated negligence and I have the letters to prove this.
Anyway you cannot rely on awards or ratings so it would appear and one case I cannot even talk about.
It would seem that staff stick together protecting one another when things go wrong that is for sure.
Despite my dissatisfaction in the care both healthcare and in the community, I have come across some good members of staff. They are mainly junior members of staff like nurses – an outstanding nurse was the one who came out running in the Bethlem Hospital for instance and the keyworker at her scheme in the community but she left unfortunately. I also came across an outstanding member of staff at a group Elizbeth was sent to – this member of staff could see something was wrong and acted accordingly. I cannot go into details but there has been so many things that have gone wrong for me to be resorting to this blog. You never get an apology and if you complain this is not dealt with properly. My biggest complaint is that Elizabeth should never have been put on drug after drug after mind altering drug to the tune of 14. No way should a social worker push drugs such as Clozapine – I think the system is rotten to the core and needs changing. There are lots of organisations out there who are doing good work however the law is rotten and until this is changed then some certain staff like psychiatrists can use the law to their own ends, playing on capacity, confidentiality, exclusion of families, chemical brainwashing. This is what is going on – the Tribunal arranged with the entire team going except for me the nearest relative. Then I am told by a member of staff from Cambian the date cannot be changed and I said Oh yet it can and got straight on to my solicitors. I clearly need a mediator in this and have found someone who is excellent. I have not had a carers assessment and miss out on everything going for carers at the local carers centre as I work. However the one thing I need is a mediator and if I have to pay for this myself then I will.
Tomorrow I am planning to do a barbecue – if the weather stays nice like this then it will be ideal. Elizabeth told me last of all that she missed me and fluffy the cat. It is too far to take him to see her at Cambian = I will never forget how cruel the staff were at the Bethlem how she was not even allowed downstairs for 5 minutes on a beautiful sunny day. However I would like to take Elizabeth to their fete as this was the only time I have seen a happy environment there at this hospital. Maybe that can be arranged and also Elizabeth wanted to come with me to the Institute of Psychiatry. I had such a great time there and would recommend this to everyone – the whole event was organised brilliantly and the person who did this gets my highest vote. I have just heard from Eleanor Longden and I liked so much what she said – a condition rather than an illness! I fully agree with this. I also liked the speech of Frank Bruno.
Unfortunately Professor Shitij Kapur had disappeared as I wanted to give him a copy of my leaflet and tell him of the wonderful plans of Dr Walsh to train up 20 doctors. I thought he may be able to help in this respect and I intend to write directly to him. I am sure I will bump into him again at one of the wonderful AGMs – I must find out more about Cambian and when they propose to hold their AGM but the best one I have been to so far has been North West Central London NHS as my dream was fulfilled in holding the Olympic Torch and this was another well organised event. I took some shocking pictures as an example to show what damage had been done in both cases of my daughters with the drugs and how they do not work for everyone and the book of Dr Walsh explains this. I cannot wait to see Dr Walsh over here and he should be invited to the IOP – something should be done as a matter of urgency for people like my daughter stuck in hospital, left to lose their confidence and become institutionalised. There is no way on earth I want to see my daughter spend the rest of her life in hospital in such a controlled environment – neither do the rest of the family. AS long as Elizabeth has the right level of support nothing can go wrong.