Archive

Monthly Archives: June 2013

Elizabeth phoned today. She did not sound too good. She sounded confused and disorientated and a little hyper.

Elizabeth told me she had been out but suffered a bad panic attack. I asked how often did she go out under Cambian’s care and the answer was about once a week. Maybe there is not the staff to take patients out more often but I am deeply worried as she is beginning to suffer these panic attacks more and more whenever she goes out. When we were in Cardiff last week on more than one occasion Elizabeth was not feeling good outside around people.

This leads me to believe that the longer she is kept in Cambian’s hospital this is not going to do her any good.

I have just received wonderful advice from someone I met at the protest at the IOP. I am going to make sure that everyone can share in with this advice and as Mr Jeremy Hunt could not care less to even respond to my letters I have been writing instead to Mr Norman Lamb who does seem to care – the Tribunal will be coming up soon and I am going down to Wales next week to see Elizabeth.

Now I am going to turn my attention to Novartis, the manufacturers of Clozapine.

I have not a good word to say about this drug.

So far Elizabeth has suffered dizziness, disorientation, has had trouble thinking and mentions a very dangerous complaint when on this drug that can lead to death – constipation and also palpitations and strain to the heart. I want the world to know that this drug is not doing any good to my daughter and the team have also got her on Metformine – you may ask but this is a diabetes drug however the Bethlem gave it off label for weight loss as Clozapine is notorious for weight gain. Elizabeth begged not to go on Clozapine and was promised a drug free period of assessment by Professor Murray. I narrowly missed seeing him when I went into the Maudsley Debates. I want to know from Professor Murray why he abandoned my daughter when I begged for help and where are the one or two contacts. These contacts should be helping my daughter right now to be reduced off this shocking drug.

I think it is right that Novartis and all the other drugs companies that I will give publicity to should pay something for my daughter and other victims. If they were a decent company they would set up a fund and provide some kind of help to the victims that their drugs make worse in order my daughter can go to Finland (Tornio) the only place in the world that has decent care from what I have heard. You can be sure I am shall contact Novartis personally to say exactly what I think.

I must say that I am impressed with what would appear to be a new manager at the Bethlem. This manager has responded well to me when I enquired where the oils from Dr Tracy were and the supplements that had been prescribed by the private orthomolecular psychiatrist that I had appointed. This manager is at least being helpful which makes a change compared to what I have come up against. This is the kind of manager that should be within all hospitals – one who listens and one who at least tries to help without being dismissive.

Over the weekend I intend to write some more letters regarding Finland – I must find out how I can get my daughter there for the decent care or else the Government should provide the funding for Chy Sawel/Root & Branch and Soteria offering holistic care with minimal drugs in a humane way.

This is what I think of the care in the UK:
DISGUSTING, CRUEL, ABUSIVE, DRUG PUSHING AND IT IS DESPICABLE THAT THIS IS ALLOWED TO GO ON ACCORDING TO THE LAW WHEN IT IS WELL KNOWN THAT THE DRUGS ARE NOT SAFE! WHO ARE THE REAL CULPRITS. IT IS NOT THE LIKES OF MY DAUGHTER THAT SHOULD BE FEATURED IN THE PRESS – IT IS THE LIKES OF SOME OF THE PSYCHIATRISTS AMD DRUGS COMPANIES AND THE AGENCIES THAT PASS THESE DRUGS ARE NOT DOING A GOOD JOB IN MY OPINION. I WANT THE TRUTH OF THESE DRUGS TO BE KNOWN AS I WISH I HAD LOOKED INTO THIS FROM THE BEGINNING BUT I TRUSTED THE DOCTORS.

I ALSO CANNOT ACCEPT THE DIAGNOSES BECAUSE SO MANY MISTAKES AND THERE IS MORE THAN ONE DIAGNOSIS. I HAVE NOTICED THAT WHEN MISTAKES HAVE BEEN MADE THINGS ARE COVERED UP.

Advertisements

I purchased this Maudsley Discussion Paper No. 13 and would highly recommend this to anyone.

I would also recommend as many service users as poss to attend the Maudsley Debates and have pointed out that there is a lecture on Neurobiology of Child Abuse/ Treatment Implications at the Institute of Psychiatry coming up on the 17th June at 5.30. This is very controversial indeed and I have put the link up on Twitter and on this site so that everyone can read this and if possible be there to voice their protests. This booklet shows you just how much influence the pharmaceutical industry has on academic and practical psychiatry and it does not surprise me one bit.

There are many victims of the pharmaceutical industry like my daughter who have been made disabled. It is disgusting that these pharmaceutical companies do nothing and yet they portray themselves as caring when in fact they are far from this.

Here is what I think of the pharmaceutical industry:
They do not care less about people like my daughter when the drugs do not work. It is all about profit to them. They do nothing to help the victims.

The law does not protect the weak and vulnerable and bullying is rife if you dare to oppose the team like I have done. They try to turn the person you care for against you and cover up mistakes by sticking together.

This wonderful booklet (Maudsley Discussion Paper No. 13) is full of facts and reference notes. It also talks about the expanding mental disorders documented in the DSM incorporating more and more increasing amounts of disorders – anything to push the drugs. It is critical of the FDA and in Britain the Medicines Control Agency which fail to collect routine data. That is obvious because my daughter has told me of no end of terrible side effects. She has suffered so much whilst nothing is being done to put things right. Every day my daughter is faced having to take 800mg of poisonous drugs against her wishes even though she is treatment resistant and can remember everything but has times when she is confused and not feeling at all well. She has complained of heart problems to me – no one could care less about the suffering of people like my daughter. It is pure evil what is going on – they are shortening the life of my poor daughter who now has no life at all thanks to the shocking care of the UK which is nothing but drug pushing.

It concludes that as a society we are consuming more medicinal drugs than ever and that psychiatry practice is now firmly centred around drug treatment – how very true! At the back of this booklet is no end of references. Copies of this and other publications can be obtained from Sarah Smith, Division of Psychological Medicine PO63, Institute of Psychiatry, De Crespigny Park, London SE5 8AF.
“It is time for the psychiatric profession to reflect on its relationship with the pharmaceutical industry and attempt to reclaim its integrity.”

Anyway, I have booked yet more hotel accommodation to enable Elizabeth to stay when I come down to Wales shortly. It is expensive to keep going down there and the Tribunal will not be long now. I have no idea how this is all going to end up. One thing is for sure hospital is not doing my daughter any good.

I will document my visit to Elizabeth in due course.

Took an hour off to go to this today. The room was so packed there had to be an overflow room to cope with demand. Unfortunately despite putting my hand up I did not get the chance to speak as you could ask questions. My question would be as follows:

“How come drugs are given without proper assessment and when someone is labelled “chronic treatment resistant” is it right that drugs are still given. What about when there are mistakes made like in the case of my daughters – surely you should not give 500 mg Metformine off label.”

I made up for this afterwards by circulating amongst the professionals and dishing out my leaflets.

I spotted the Dean of the Institute of Psychiatry and he recognised me as I had met him at Maudsley AGM. He had come up with a speech which I found inaccurate about how smoking shortened life. I pointed out to him that it was the drugs that did this and did not feel he had spoken fully on this as he should have done.

The speech by Felicity Callard was very good in my opinion and accurate. There were other speakers that I did not agree with one bit.

After the debate had ended you could meet everyone to discuss this further.

I was shocked at how many young people voted in favour. If only they could see my daughter now. If only my younger daughter age 22 could be there to speak to them all. These young people have not seen the suffering of my daughter on all these drugs. I took the opportunity to hand out my leaflets and I also mentioned the group SOAP who have helped me no end. They are former patients. You cannot possibly get a clearer understanding unless you speak to those who have been on the shocking acute wards themselves.

I also pointed out to these young people that my daughters had suffered trauma – this causes psychosis such as bullying, rape, abuse. Straight away if you complain about the care you get labelled as the person abuses your son or daughter and you should see what has been written about me.

After the debate I looked around at the shocking wards of the Maudsley – it is sad that there are people stuck on these wards instead of being given the option of therapeutic communities.

I also took the opportunity to talk about Dr William Walsh and pointed out in his book Nutrient Power the research he has done. As a mother this is the kind of care I want – holistic, humane, special attention to nutrition and therapies and more support.

Anyway I shall be looking out for the next debate and hopefully I will get the chance to speak then.

Obviously I feel strongly about the conference for DSM 5 for personal reasons – I have a daughter miles away from home under Section 3 in a private sector hospital because all the care has failed. She has several diagnoses but the team are now sticking to chronic treatment resistant. Unlike the team I have listened to my daughter and seen the change in her behaviour from mild mannered, polite, well behaved to unrecognisable and this has nothing to do with a diagnosis this is because my daughter was put on anti-depressants and took herself off in one go. At the time I had no idea about these drugs but then I started to read up on them and turned to experts in the States for help like Dr Ann Blake Tracy and Dr Walsh. I have read books and fully agree with everything in Dr Ann Blake Tracy’s book Prozac Panacea Pandora and then I purchased Pharmageddon by Professor David Healy and from my own personal experience can vouch for the fact that it is the drugs that have affected my daughter and this has nothing to do with any diagnosis. My daughter’s eyes were dilated, she suffered hallucinations, described a feeling like “crawling out of her skin” – no professionals stepped in to help my daughter in this state and she kept being dumped in the community time and time again. The drugs made her feel totally tired, confused, disorientated. She described symptoms of severe headaches and dizziness and heart palpitations. When I read the leaflets on these drugs it said to refer matters to the clinician and what did they do – ABSOLUTELY NOTHING! Instead my daughter was told she had to be on these drugs for the rest of her life and that is a lie. Dr Tracy sent me a tape on how to properly come off the drugs and I gave this to the Bethlem as Professor Murray promised a drug free period of assessment and no one listened. That is the main problem – professionals think they know it all and do not listen. All I have done as a mother is listen and speak up for my daughter – her words to me was “do whatever you can to help me, Mum” Well it is not just for my daughter that I wish to help but for all the others trapped on a never-ending section and my answer to this is that the professionals as part of their training should also be placed on the wards so that they can get an insight in the same way as a patient. Only then will a professional understand what a patient is truly going through.

So I attended the protest – I arrived very early and had never been to the Institute of Psychiatry before. Anyway when I got there the CCHR were staging a demonstration so I thought I would join this and then later on take part in all the protests as after all it is all about the treatment and false labelling of someone when mistakes are often made like in the case of my daughters. At lunch time a handful of psychiatrists came out and I took the opportunity to hand out my leaflets but not all wanted to even look at these leaflets and what does that say about a professional that refuses to even look and discover anything other than what they think in their minds. Luckily it was only a group of American Psychiatrists that refused my leaflets but others at least took them and I pointed out this website I had set up as I am not alone in feeling that the care has failed my daughter and in wanting to see a big change in the care system – not just an end to enforced drugging but humane treatment of mental health patients and inclusion of families where possible.

The protest by the CCHR was good and they had a distance to travel to this event and I admire this very much.

This protest was followed by Speak Out Against Psychiatry (SOAP) – I attend their meetings when I can and appreciate and admire these former patients who have suffered extreme abuse how they can speak out about this. In comparison I have gone through nothing apart from having to speak up for my daughter’s rights and then of course you get treated like a criminal. The patients give me the strength to always wish to carry on my fight for better mental health care and the hope that the wonderful care of Tornio, Finland can be available in the UK soon. At the protest I met the most remarkable people, some of whom managed to get off these chemicals and are now OK despite such lab labelling and this shows how wrong everything is.

There was a man who came out to speak because the psychiatrists very craftily went out through the back entrance rather than face up to the former patients, many of whom suffered abuse under the system. I not only thought this was crafty but cowardly in my opinion. However I thought never mind I will be back again tomorrow to the Maudsley Debates.

I have not long since returned and had a lot of driving to do this weekend. We went down to see Elizabeth on Friday but did not arrive until fairly late thanks to the traffic. We took her out for a meal at a very nice Indian restaurant and the next day we were planning to go to Cardiff. To my horror I heard Cardiff was going to be very very busy as they had an international event on at the Millenian Stadium. This stadium was right next to where we stayed as well. I have never been to Cardiff before and it was much nearer to the Bluestone National Park where Cambian suggested we visit but then only granted 1 night.

Anyway, we hired a taxi to go to Cardiff Bay – this was nice but again absolutely packed full of people. Hardly the place to take Elizabeth to as she does not like crowds. All the time she had to hang on to either me or her sister as she constantly felt dizzy. I have no doubt this is the result of the high level of chemicals that Cambian continue to ply thanks to the prescription of the Bethlem. Surely it is wrong to give a drug off label such as Metformine – this has not been tested and it would seem they are just using my daughter as a human guinea pig still.

Well I was most impressed with Cardiff but we could not do much because Elizabeth felt unwell on more than 1 occasion but it was so nice to all be together and we had one large room – the hotel was nice where we stayed and whilst we could not go out in the evening I took Elizabeth and her sister out for meals and booked spa treatment at Laguna Spa which was very nice and we all used the facilities there. On the last day we looked at a local food market and we visited a national park all about the history of Wales -called Fagans. Elizabeth could not go up the stairs to the wonderful award winning tea rooms and then we made our way back slowly and sat outside the ward for a while. Elizabeth became quiet and withdrawn. I was in tears driving home thinking I was leaving my daughter behind in a hospital and especially one where the psychiatrist and management have been so against me. It has got back to me everything that has been said and now I have proof in a letter I have just got. Instead of communicating the team only communicate between themselves and yet this team are proud to boast of Best Care Provider not only for 2012 but 2013. I have their brochure which I have been reading – it is full of self praise. However I am in despair as there is NOTHING good whatsoever in care that compares to what is on offer in Finland in Tornio. The next best thing is a therapeutic community but I can only hope that they know how to communicate properly. Perhaps Cambian should make every effort to improve things on this scale as I have found everything secretive, excluding and abusive especially when I have read what is going on behind my back and to be fair it may not just be Cambian involved. The other party is none other than Enfield Mental Health who have tried on more than 1 occasion to replace me as the nearest relative and yet none of them will give a reason WELL NOW I KNOW THIS REASON AND HAVE PROOF AND AM PREPARED TO STAND UP IN FRONT OF THE WORLD TO DISCOUNT THE ALLEGATIONS AGAINST ME. This kind of behaviour is bullying when a team gang up against 1 person who stands alone and do not care about my daughter’s feelings and try and twist things making out that my daughter has gone against me. Luckily I do not believe a word and know exactly what is going on. Unlike them I am prepared to stand up in front of the world’s press alone and I hope that I do this very soon at two forthcoming events that I will be attending. I have nothing to hide yet have been treated like a criminal.

Anyway Elizabeth was very happy to see us. She said that she is NOT happy to be on a section at all and as a mother I want a full investigation into what on earth my daughter is doing on a section in the first place when the Bethlem caused the psychosis and this psychosis would have been caused in anyone and that includes someone without any mental health diagnosis because what they did was take her off 150 mg of Seroquel and then mix it with Olanzapine later introducing Metformine off label and Clozapine which I found out about and that is why they banned me.

Anyway I may yet have to pop down there again to the Bethlem as I have been enquiring as to where the Young Living Oils are. I ordered these from Dr Ann Blake Tracy and Elizabeth said this is the only thing that worked! They cost me about £100 and if the Bethlem has lost them then it is only right that they should pay especially as they seem to be raking in money from the drugs manufacturing companies for the experimentation of patients like my daughter who are used as human guinea pigs. Well I want every one of those oils replaced and if I get nowhere with this then I shall have no choice but to pop down there in person as Cambian have not got the oils there. I seem to also remember dropping in some supplements which were prescribed by the private psychiatrist that I appointed. So where are they now – I ordered those from the States. Anyway it is too late to look into this now but you can be sure that I will be in touch and will want a full and thorough investigation into where these oils are.

I shall also be acquainting myself with Cambian’s Head Office as this is convenient for me and I would like to meet with the Chief Executive. The Bethlem ignored my advice which I sought from leading professionals in the States and now Cambian “Best Care Provider 2013” in my opinion need to review their policies in the way they deal with families especially if a family member should dare to disagree and I especially had nothing but praise up until now. It is not the nurses but the management at the top that need to be looked at and this is why I want everyone’s email addresses as I have been advised to correspond – I am more than happy to correspond with them and it will be interesting to see how they correspond with me as in Finland this is why there is 85% success rate. It is no wonder everything is failing here in the UK where there is no communication between the team and families and I have had good cause to speak out. I could not care less if a dozen people write to me saying good things about Cambian – that is up to them but I have every reason to be not happy with the way things have been conducted there.

The drugs have failed her – they have made her disabled and to the point she can hardly walk. She should be enjoying her life right now as a young person and I know of others – other young people on sections that are drugged up to the point they have no quality of life as they should have. It is obvious that these drugs are doing Elizabeth no good.

However IT IS A TOTAL LIE TO STATE THAT I AS A MOTHER HAVE TOLD HER TO STOP TAKING THE DRUGS AND NEITHER HAVE I ENCOURAGED HER EVEN THOUGH I HAVE A PREFERENCE FOR HOLISTIC CARE. I AM CAMPAIGNING FOR BETTER MENTAL HEALTH CARE AS IT IS APALLING. THERE ARE NO PROPER FACILITIES TO ASSESS SOMEONE BEFORE GIVING THESE DRUGS AS THEY MAY H AVE UNDERLYING HEALTH PROBLEMS AND THE DRUGS COULD MAKE THEM WORSE AS DR WALSH CORRECTLY SAYS. IT IS A TOTAL LIE TO SAY THAT YOU HAVE TO BE ON THE DRUGS FOR THE REST OF YOUR LIFE. THE DRUGS MANUFACTURING COMPANIES SHOULD SET UP A FUND FOR PEOPLE LIKE MY DAUGHHTER WHO ARE CHRONIC TREATMENT RESISTANT AND SUFFERING ON THE DRUGS SO THAT THEY CAN HAVE THE CARE OF THEIR CHOICE AND EVEN BE ALLOWED TO GO ABROAD AS THERE IS NOTHING SET UP YET IN THE UK THAT PROVIDES DECENT CARE LIKE IN TORNIO, FINLAND.

What is true is that the Government (Mr Jeremy Hunt) does not do anything and he should be interested in the waste of money to the public and help set up more therapeutic communities offering holistic care.

I do not believe in stigma – I do not believe in labelling someone yet I do not dismiss that someone can suffer from a mental illness however I believe that the care is all wrong and I do not like the way a team try to come between a family and can destroy relationships and drugs are given to someone even if they are abuse victims. Well I am doing the right thing by bringing out in the open what is really going on and speaking up for all the patients stuck on never ending sections and mothers who are in despair watching their sons/daughters stuck on the ward. What an infringement of human rights in the UK! This is what I am ashamed of not that I have a daughter who has a label (and which one I wonder!) -she has more than 1 and even more laughable is the DSM 5 and I am looking forward to going along to this and meeting all these American psychiatrists as I have something to say to them as a mother as to what I think about their book the DSM 5 and also there must be a diagnosis for everyone and that includes themselves in the DSM5.

%d bloggers like this: