I have been trying to get hold of my daughter’s social worker and have telephoned and written and I got a reply saying the social worker did not know my telephone number but yet I have phoned several times. Social services in Enfield have been trying to replace me as the nearest relative as they do not think I am fit to be the nearest relative.
It is about time someone stood up to this kind of bullying and I am doing just that and I want the world to know! It is not fair or right that things should be kept behind closed doors. I am an open person and I want things dealt with honestly and fairly but all I can see is deceit and devious behaviour and I have questioned who is responsible. Tonight I have asked for help as Mr Norman Lamb who I saw at the Carers UK Conference is talking about changes – big changes and so is David Behan of the CQC and if no one is speaking up because they are too afraid to then nothing will ever be done in my opinion. I can see why people are afraid of social services because they can use powers against you – they have already done this in my case and I think they want to get rid of me as the Nearest Relative because I found out today that the Tribunal had been arranged on Monday behind my back without telling my solicitors. This is a disgusting abuse in my opinion. My daughter has been unfairly treated by the Bethlem Royal Hospital and her face was covered in bruises – the lead Nurse said “that is fine with me” – I said as a mother and nearest relative that it was not fine by me. I wanted to know what had happened to my daughter – there was not just one or two bruises – there could have been a good explanation but no one wanted to explain this to me and that is why I am suspicious as they like to keep things a secret as though they have something to hide. Meanwhile the oils from Dr Ann Blake Tracy and the supplements I ordered as part of her prescription from the private psychiatrist had gone missing. To be fair there is what appears to be a new manager – this manager is excellent because instead of dismissing me like a piece of rubbish like the majority of the team have done – this manager has communicated with me. It is not right that any team receiving public money gets away with treating a mother or parent in a shocking a despicable manner as though they are invisible and are NOTHING! Mr Lamb and Mr Behan both said that families should be included but teams are excluding people like myself when I have not abused my daughter. They try and turn the person you care for against you because that person may blame you for ending up on hospital and for one reason or another they end up there – it is not always under your control as a parent. Sometimes someone can have a terrible reaction to the drugs given and as a mother I have researched the drugs and the team do not like it. They want to replace me with her father who lives in a different area to me. It could be that they do not want to pay – it could be that they see the best solution would be to get rid of me as the nearest relative and dump my daughter in a different area where her father lives for instance and then they would not have to pay. Then they could wash their hands of my daughter.
I have nothing to hide – I would rather the world judge me and I would welcome anyone in the world to come round and meet me and see for themselves before they come to a final judgement of what they think.
I am not the kind of person who wants to sit here writing and disclosing personal business to the world but I am doing this for everyone. Many patients complaint that their human rights are being ignored. Many mothers are too afraid to speak out as you end up suffering and yes it has affected me very deeply.
I will tell you now about my visit to Wales:
I came down to Wales as an important visitor was due to see my daughter and he is the independent doctor appointed on my behalf as part of the legal process for the Tribunal. The Tribunal for my daughter was unsuccessful – her father was invited and I was not and the team keep on saying that it is my daughter’s wish. My daughter has disclosed to myself and her sister/friends that it is very strict where she is. She feels obliged to go along with the team “you don’t know what it is like here Mum”. “Everything gets back to me – please don’t cause me trouble” My daughter is being pushed and pulled in two directions by the team and this is harmful to her wellbeing. I do not know exactly who is responsible but Mr Hunt and Mr Behan should look into this as I am worried it will affect my daughter’s health. It is not fair or right of a team to do this sort of thing but it is commonplace according to the other mothers I am in touch with. They too have suffered this kind of abuse.
These are mothers that have not been outspoken like me yet they still suffer abuse so anyone that says this is of my own making is very wrong. This is going on all the time so I understand and I am in touch with lots of people. It is wrong that a vulnerable patient who is weak and on a lot of drugs is used and manipulated by a team in such a way.
I understand from my daughter that the consultant psychiatrist from Cambian had a private meeting on her own with my daughter without a solicitor or anyone present. This is wrong. At this meeting my daughter was asked if she really wanted me to be the nearest relative and I do not know her answer but even if she said “no” she was being put under pressure by a professional of a hospital that has won best care provider 2012 and 2013. This doctor appears not to like me and has referred to my past behaviour at the Bethlem Royal Hospital. This doctor has chosen never to meet me but has said things about me behind my back will I will not repeat at this stage as things are going to court. The terrible fact is the team all knew at CAmbian about the forthcoming Tribunal arranged behind my back and my solicitors for the second time running. The team refused to disclose the file to my solicitors at the managers meeting – all of this has meant that the Tribual has been long and drawn out and the longer it is drawn out surely the more money of public funding is wasted. There was recently a landmark case I believe through the solicitors called Kaim Todner. My daughter was advised it would be better to have a Welsh firm of solicitors. My daughter is scared and afraid she is surrounded by the team who may well be making her feel uncomfortable like at the Bethlem. This is not what I expected of Cambian. I was so pleased when she got accepted there. I begged for her to go there as I thought they have wonderful care and facilities. Sure enough they have more than on offer on the local acute ward but the control seems more rigid than any prison. They keep people for three years so I have found out and that is far too long. The longer someone is kept in hospital the more they deteriorate and this shows a lack of care in the community.
Anyway I was down because I did not want this team to intervene and try to destroy my daughter’s chance of fairness in the legal system – she could be kept up to 9 years on a Section that is constantly being renewed – each time for 6 months. There needs to be more controls over the law and it would seem that some professionals do not know the law and use this to their advantage.
We took Elizabeth out for a nice Indian meal. After each meal she feels very ill – I have read that this is the effect of the drugs. She was like this on Aripraprazole. I could not book for one big room for all of us in the hotel so I booked 2 rooms however when Cambian heard this they were not happy and I stayed with Elizabeth all night long in her room. The next day we had breakfast at the lovely local hotel – this was very nice but when I heard about the doctor asking my daughter if she really wanted me to be the nearest relative I had lost my appetite – the team do not know just how harmful what they are doing is. It is completely wrong and I want a full enquiry. It is not as though I want anyone punished – It is because I do not want to go through this again – it is my holiday and time off work and it was heartbreaking. After breakfast we went for a drive and went to see a museum but I was conscious of the very important appointment that we should have Elizabeth back on the ward in good time. Anyway I decided to go in myself. Elizabeth had a large breakfast and a snack at the lovely tea rooms of the beautiful castle we visited. She was not hungry and I did not want to give her the tablet before the doctor arrived as he had come a long way and she would not be in a fit state to see him otherwise. So I came in myself and I had just found out from one of 2 social workers my daughter has that the Tribunal had been set for Monday 17th of June. My own solicitors were not informed and this is disgusting in my opinion. I quickly got on the phone to my solicitors and luckily they cancelled the Tribunal otherwise the team would have succeeded in renewing the section for another 6 months in the most underhand and devious manner – this could be the commissioning team at Enfield or social services or Cambian themselves – do not know who is responsible but whoever it is does not want me to be the Nearest Relative.
It is so lucky that I found out. My solicitors were not very pleased or to hear that the consultant psychiatrist had been to see my daughter without any advocate or solicitor present although I am very suspicious of advocates who are funded after the way the advocates behaved at the Bethlem. Well I have been more than suspicious about social services but I did not know she had 2 social workers! I thought she had one new social worker but they have been very silent with me and all the time they were wanting to replace me.
Well I have a legal letter that tells the reason why they want to replace me and IT IS A LIE!
IT IS A LIE TO SAY THAT I AM ENCOURAGING MY DAUGHTER TO STOP TAKING A HIGHLY DANGEROUS DRUG CLOZAPINE MIXED WITH METFORMIN OFF LABEL FOR WEIGHT LOSS. THIS IS A LIE AS I HAVE RESEARCHED THE DRUGS. I AM NOT HAPPY AS SHE WAS PROMISED A DRUG FREE PERIOD OF ASSESSMENT BY PROF MURRAY AND THE TEAM AT THE BETHLEM IGNORED THIS ADVICE. PROFESSOR MURRAY FAILED TO CALL ON HIS ONE OR TWO CONTACTS AND DISTANCED HIMSELF FROM MATTERS. I HAVE HAD TO TURN TO DOCTORS IN AMERICA FOR ADVICE HAVING READ THE SHOCKING TRUTH ABOUT THESE CHEMICALS. I MAY BE WANTING THE MINIMAL DRUGS RATHER THAN MAXIMUM AND MY DAUGHTER DID NOT WANT TO GO ON CLOZAPINE AND SHE WAS TRICKED AND SO WAS I. I HAD NO IDEA THE BETHLEM WAS A RESEARCH HOSPITAL AND GOT TOLD BY THE LEAD NURSE – YOU SHOULD HAVE DONE YOUR RESEARCG – WELL I SLIPPED UP! I TRUSTED THE TEAM AND I WAS WRONG TO.
Not all the staff at the above hospital were bad. They had the best social worker I have ever come across under mental health but then he disappeared! They had a young Indian nurse and a black nurse who came out running with me even though the nurses were warned not to because of health & safety – Elizabeth had helped me with my running technique when I decided I wanted to be a police officer and it is thanks to Elizabeth and the wonderful trainers at my gym that I succeeded in getting through the test for the police. The reason I wanted to work for the police is that the police have a terrible reputation amongst the mental health patients. Unfortunately this is because all too often the police end up having to arrest the person concerned whose care has not worked. Sometimes a patient begs to get back on the ward because they are so isolated. The public only hears the worse – mental health patients are portrayed as violent killers and that is not true and in fact it is the opposite. They are forced to take drugs and are told they have to be on them for the rest of their life regardless of their long term health.
I cannot wait until Dr Walsh comes over here to train up doctors and one of the mothers who is in a highly professional field herself is training to be a doctor and I would like this kind of doctor for my daughter – I want a doctor who cares, I want a doctor who does not dismiss me as a mother – after all I have not abused my daughter. I want a doctor who works with the family. I want a team who care, a team who do not exclude, a team who do not make it awkward for my daughter and push her in two directions and divide the family.
I am not trying to be more clever than these professionals. I am not trying to get them all into trouble – I just want things to be fair. The most important person is my daughter and she is terrified to disagree with the team and at the same time feels obliged to go along with them because they surround her, because they make her feel awkward – “I have to watch my reputation, Mum”. “I will call the police on them Mum, you are still my Mum”.
There have been many terrible things that have happened to Elizabeth whilst under the local services care. That is in the past now – I want to move forward and the specialist doctor has recommended more family involvement. However, Cambian have only included her father and Grandparents. I have not been invited to one meeting. I have never met the consultant psychiatrist although I saw her from a distance today.
The Tribunal is being re-arranged as I need to get time off work and my younger daughter would like to support her sister.
My daughter has been afraid to tell me the things that have been said but has said the consultant psychiatrist at Cambian has been on “her side”. There should not be such a thing as sides – there should be togetherness – there should be care like in Finland and I am trying to find out more about this wonderful care as Elizabeth was so happy in Finland.
Last of all I have not been happy these too days – a member of the team said I looked stressed out but it was not this – how would anyone else feel in my shoes to find out that once again the Tribunal was being arranged without the Nearest Relative’s solicitors being advised.
Elizabeth asked after her cat several times. Elizabeth had to hold on to my arm like an old person as she felt dizzy all the time. I gave to the specialist doctor the shocking test results I had done for Dr Walsh and they are not looking good. I am not an expert nevertheless I could still understand the decline from the last time I had such tests done. This is why I want the minimal of drugs as I know people who have been on these chemicals for years who have suffered terrible health problems and nothing is done – no one cares and thought should be given to the long term health of that patient. The drugs companies make a huge profit – where is their support – they say they care and so they should help in any way they can for individual cases like my daughter who should be offered the choice of care not available in the UK at the present time.