CARERS UK STATE OF CARING CONFERENCE 01.05.2013

I attended this all day conference yesterday and found it to be very good bringing together carers, professionals in NHS and social care, university researchers and the Rt Hon Norman Lamb who stood in for the Rt Hon Jeremy Hunt and Chief Executive Officer of the CQC, David Behan CBE.

Amongst the interesting information documents was Policy Plus brochure with the heading “Census shows rise of 600,000 carers since 2001.

Chief Executive of Carers UK commented “family life is changing as a result of our ageing population and the fact people are living longer with disability and long term ill health.  That is true as I have seen in the case of my father who had Alzheimers and lived to be 90.

The brochure went on to highly how pressures and costs of caring can force families to give up work and end up in debt, poor health and isolation.  Well I can identify with that.

“Carers make a huge contribution to our society.  In return the Government is cutting support by £13 million.

I think the bedroom tax needs to be looked at very very carefully as there are some exceptional cases and people are being wrongly penalised.

Personal Independence Payment replaces Disability Living Allowance but these changes will result in almost 10,000 fewer carers being entitled to Carer’s Allowance.

All these changes put further financial pressures on families who are already struggling.

Care in the Home.

This was one thing that worked well for my father who had Alzheimers.   He had deteriorated to the point he could hardly walk and had to be taken out in a wheelchair.  I struggled to get sufficient help in place but managed.  Adults Social Services were good – the social workers were more helpful than those I have come across under the mental health.  So, he had an agency in the morning, day centre every day – Age Concern on Saturdays.  Sunday was spent with the family up to the point he could no longer walk.  After the Day Centre, Crossroads sat with him until the carer I employed turned up at 6pm and stayed throughout the night.  All this care worked extremely well and all I had to do was the paperwork which was easy and there was a firm to do the wages.     I employed more than 1 carer and was involved myself to the degree of nursing care.  Direct Payments is a very good thing in my opinion.  My father had a pension which paid for some of the care.   Of course the NHS care was again drugs – Seroquel and Rispiridal and many other drugs – they made my father unstable and he would lash out – a once placid man was unrecognisable because of the drugs.

Anyway you could get advice on benefits, funding, services, everything to do with caring.  I would certainly recommend this conference to anyone with an interest in caring.

I sat listening to the Rt Hon Norman Lamb but did not get a chance to speak myself during this part of the conference.  I ran out after Mr Lamb as I had brought my leaflets and Chy Sawel Brochures which  just about managed to give.   After that was a section regarding NHS care and social care with prominent speakers   There was the opportunity to speak and I stood up before everyone as the talk had been about carers not being included all too often.  I had plenty to say on this subject and did so.

The last section included a speech by David Behan CBE – Chief Executive CQC.  This is someone I really wanted to see and I managed this just before his speech.  I gave him my leaflet and brochure of Chy Sawel.  I told him about the shocking experiences I have encountered.  I then went on to say that the drugs were no good and that there should be holistic care as choice.  I pointed to Chy Sawel and said “this is the care needed for my daughter  .I mentioned my views on what is going on under certain hospitals.  He looked concerned however I want to see action rather than words.  I pointed to the book Nutrient Power  and the research of Dr Walsh and said that this was what I wanted for care for my daughter.

In all I thought I got the message across and ran out of my leaflets.

I wish to go again next year and hope to see vast changes based on some of the discussions.

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