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Monthly Archives: May 2013

I am very happy today. I am busy packing right now and my younger daughter is flying back from Italy tonight. Tomorrow we will be practically reunited as a family as we will be seeing Elizabeth.

Because of the Consultant Psychiatrist’s reluctance to let us spend 2 nights with Elizabeth we had to think again as I thought it was a brilliant idea of Cambian’s that we stay at Bluestone National Park but it was not possible to book for just 1 night. I am extremely disappointed as this whole setting would have been ideal for Elizabeth but what good is just 1 night. The more I think about it something needs to be done about this whole inhumane system and having heard what was said at the Carers UK conference I as a mother who has been excluded and treated like a criminal will never give up until something is done about this. It is not good enough for Mr Behan and Mr Lamb just to talk about this – I as a mother want to know what they intend to do to enforce the inclusion of carers – it is disgusting what is going on in the UK and I am determined to see that some change is brought about.

Although I contacted the Head Office, the Chief Executive did not bother to ring me back. I intend to get everyone’s email addresses at Head Office now that I know who is who – it would be much easier for me to call in to their offices rather than phone.

Anyway, we will make the most of the time we have and I have been busy today arranging somewhere else to take Elizabeth – a spa where they do nice treatments but a lot of my time will be spent driving. I just hope the weather will be nice tomorrow.

Because there is not much time to spend with Elizabeth I plan to go down again soon after this.

I would say this that the team were helpful about suggestions of where else we could stay but everywhere I tried is fully booked and I was lucky to get what I managed in the end – I would have had no difficulty if I had been able to book Bluestone a week ago and I am determined to take Elizabeth there another time.

I will write all about my weekend with Elizabeth when we get back.

Also, I have two ideas regarding the care that I have seen but I am up against a wall of silence. I may have to ring them and if necessary call in to see them.

Nothings compares to the humane care in Finland and I wish so much for Chy Sawel to be set up along similar lines in the UK – I would be more than happy to take Elizabeth to Finland as I think this is about the only place in the world where they are doing things correctly in terms of mental health care. I plan to visit Finland to see for myself the wonderful care on offer in Tornio – I often think if only I could move there – from what Elizabeth said it was fabulous and she had a great time but it is not as simple as that – there are others to consider who like living in London whereas I would move anywhere in the world where my daughter could get the correct care. I hope that things improve in the UK but I am anxious because of the level of drugs my daughter has been on and none have worked – I feel her life is at risk. To think that the Dean of the Institute of Psychiatry blamed the shortening of life on smoking – well I told him otherwise when I met him at the AGM of SLAM. I hope he will be there at the Maudsley Debate – the last time I spoke to him he seemed in a hurry to get away from me and I was showing him my leaflet and website details of the shocking care my daughter has had. I shall look out for him there that is for sure.

Very soon coming up in London at the Institute of Psychiatry is an important conference regarding the DSM5 (Diagnostic Statistical Manual) – There is the Maudsley Debate the next day and I will be delighted if I get the chance to speak at this important debate. I hope to try my best to go there and I will be documenting this in due course. I hope there will be plenty of press to witness this conference. It will be laughable if these American Psychiatrists come up with a diagnosis for me! There is a diagnosis for everyone in the DSM 5. It is a complete joke in my opinion – My family is living proof that the shocking care of drug pushing does not work and this I want the world to know about.

It was a lovely day on Monday and I was out with a close friend when the phone rang and it was Elizabeth. Elizabeth said she was watching television indoors and the weather was not so good in Wales. She asked me if I was coming down and I said yes but the team are silent. I have not been allowed more than just 1 night to spend with my daughter by the consultant psychiatrist.

I have just typed a new leaflet highlighting my daughter’s care which I will attach to this site showing all the drugs she has been on and I am extremely worried for her right now. I believe the team have failed in the care of my daughter – instead of giving her counselling it was just drug after drug. I am absolutely appalled and just wish I could go and take my daughter to Finland and move there instead of the UK and get her decent help. The treatment here of mental health patients is appalling and to force drugs on them is totally wrong. No-one cares about these people – they are stuck on the wards and some are isolated from their families and have no one to turn to. I am disgusted with the care in this country and how cruel it is. I would not describe myself as being very religious however I believe this treatment of weak and vulnerable people should be against the principles of any religion but no one seems to care.

Many carers do not have the strength to speak out and patients are too drugged up and I am doing this for not only my daughter but other patients who do not have a voice – even the advocates are controlled. The Health Secretary, Jeremy Hunt does not seem to care less about the mental health.

Anyway, in the short time we spend in Wales I hope that we make it a nice occasion for Elizabeth – she says she feels dizzy, lightheaded and feels like she is about to fall into a big black hole and she is only 26 and should be enjoying life at her age. Whoever says that Clozapine is good! What good has all these drugs done for my daughter that are highly recommended by so called professionals. If only they could have witnessed how much my daughter has suffered through their experimentation on a trial and error basis.

Elizabeth is on a highly dangerous drug and has complained about heart palpitations and I believe they are killing my daughter – I wish I could do something but there is nothing in this Country good in the way of care and that is why I would like to see Chy Sawel set up.

The drugs manufacturing companies make a huge profit out of people like my daughter – victims of the pharmaceutical industry and I am in touch with many others who are equally upset and helpless in their situation.

I know that daughter misses home but home is in London and not a peaceful environment and Wales is beautiful however my daughter Elizabeth is in hospital where there is strict control even more so than anywhere else I have come across.

The Tribunal is coming up soon and the independent doctor will be visiting Elizabeth. It is so wrong that she is on a section – it is so wrong that my daughter should be treated in such a cruel manner.

Whatever my views are against the drugs there is nothing I can do and it is horrifying that not one single political party seems to care less. It is all very good speaking about this topic of mental health but if someone has the power to do something about it and does nothing then it is really shocking and inhumane. The current Health Secretary could not seem to care less about the mental health. If this is something that does not interest him he should be answerable to the public as to how many people like my daughter are trapped on never ending sections when they are no risk to the public. The fact is these victims of the pharmaceutical industry are kept imprisoned because there is no decent care in the community and there should be more therapeutic communities. A hospital is just a place where they dish out drug after drug. There is not a hospital that will take someone off the drugs even if they are suffering severe side effects because what they do is mix this with another or increase the dosage. If done correctly someone can come off the drugs and that is the sad thing about it. Dr Ann Blake Tracy gives instructions to this effect and this should be taken into account.

It is the Bank Holiday weekend and Elizabeth is miles away and we are not going down this weekend – However she did tell me that she was taken out with some other patients yesterday to a park where they had animals. I think that most of the time though is spent on the ward that is controlled even stricter than a prison.

We will be going down next week to see Elizabeth and of course the consultant psychiatrist has allowed very restricted time to spend with her and I now do not know where to book or where to go as the hospital’s suggested sounded great but they simply will not take a booking for just 1 night. I tried to phone Head Office but when no one returned my call I phoned again and this time spoke to a psychiatrist based there.

I have been told that this hospital like to hang on to people a very long time for years in fact. It will be interesting to see how the forthcoming Tribunal goes as a section can be renewed for up to 9 years and this shows what power these psychiatrists have. In fact I think they are above the law – who would ever listen to a patient because even the advocates are working together with the team so it would appear. I think that not only should a patient be able to choose a psychiatrist but also they should be able to choose an advocate and the best advocate would be patients themselves who fully understand and unless a psychiatrist has met the parents and has solid proof it is wrong that they should get away with writing nasty comments or even saying them behind your back. To anyone else this would amount to libel and slander but to a “professional” doctor they are a law unto themselves.

The former patients below are arranging a protest which highlights the labelling of people with diagnoses in an ever increasing volume of the book DSM (Diagnostic Statistical Manual) and this is version 5 and I am pleased that this has come under criticism from some professionals themselves. I believe the labelling of someone is very harmful – I believe when Elizabeth was labelled she felt she had no hope any more. I believe that in some cases people are being misdiagnosed and many have suffered abuse and I believe that the drugs are wrong if someone has suffered trauma and abuse they should have decent humane care – therapeutic care instead of drugs and ECT.

I think not only is it brave of a group of former patients to stand up and speak out against their treatment but I think it is informative to the public that such people are willing to share the most shocking experiences – these people are human beings and have been treated in the most dreadful manner. I believe it is about time the press reported fairly on the subject of mental health and to this group of former patients and some carers are not only informative to the public but show that a former patient can succeed in life despite being kept down by an inhumane system.

I believe it is important to bring the subject of mental health care out into the open including the secret proceedings of a Tribunal so that the public know what is going on and that will lead to a fairer trial – also I do not believe in stigma – I think that the people who have suffered ie the patients are extremely nice people unlike what they are unfairly portrayed to be in the press. Some are highly intelligent and what a waste – many are thought to have no hope and classed as being treatment resistant. They are made to be disabled by the drugs and left with little hope.

The shame and stigma should be directed at the Health Minister (Jeremy Hunt) who does not seem to care less and does nothing and what a waste of public money by these never ending sections and lack of suitable care such as therapeutic communities – I heard at the Chy Sawel Conference as regards funding that is is hard to get funding transferred from local level to another area and this is all wrong. If the care is not working and that person wishes to move then that should be allowed and the funding should the given rather than waste money at local level. I am not against Elizabeth making a fresh start elsewhere but I am against the control and the way a team can exclude you just because they do not like you if you have dared to challenge them in any way. This is bullying in my opinion and I know I am not alone in experiencing this from a team who think they are well and truly above the law in terms of power.

Here is the link and I would recommend anyone to go and be educated and speak to some of the former patients staging this demonstration who have suffered no end. I as a mother and carer am proud to stand alongside them and voice my concerns about what is going on and the validity of all these diagnoses detailed in the DSM 5.

http://speakoutagainstpsychiatry.org/dsm-5-protest-4th-tuesday-june-4-30pm-onwards-at-the-institute-of-psychiatry/#comment-448

I went to see a fabulous show last night connected to my younger daughter’s school and afterwards went to the fabulous restaurant called Jamie’s Italian. I have been thinking back to when Elizabeth wanted to be a chef and to when she visited the Restaurant 15 which I booked for her and her sister when it first opened and also

I remember back when Elizabeth was young and her only ambition was to be a chef. As a mother I thought this was great and she chose catering at school and college as subjects. She then went on to study catering – at the local college the tutor chose to send her to Finland and to this day she speaks of the most happy memories of this country where she said she would like to re-visit. It was not evident at this time that there was a problem with Elizabeth and I remember taking her out shopping to buy suitable clothes as she would be going out to a country that would be freezing in climate compared to here in the UK or so I thought. I have never visited Finland before but would like to as I have heard all about the fabulous care on offer in a place called Tornio. Anyway, Elizabeth had a great time in Finland and even made some friends there who I later invited to come and stay with me in the UK. I cannot believe that this happy time has since altered and that Elizabeth is now in a situation beyond my imagination as she had so much going for her back then.

How can someone who had ambitions and dreams to succeed like everyone else go downhill to the extent of ending up in the worse places and her personality changing beyond recognition? This I put down to the care in the UK. I never had a problem with Elizabeth and supported her ambitions to be a chef which I though was great. At the time of studying though something was wrong especially in the latter college – Elizabeth became withdrawn, she had become a vegetarian and then vegan – I did not think she was eating well. I did not think that her memory was good at this time. She was losing things and forgetting times of appointments. I have witnessed this kind of behaviour before with someone else in the family who was diagnosed with just mild depression. Such behaviour can be attributed with depression. At the time Elizabeth was doing too much – learning to drive, going to college on a demanding course, studying French – she had also become very interested in nutrition which I though was good. However Elizabeth was out a lot – she was hardly at home and at the time I was caring for my father who had Alzheimers and this was taking up a lot of my time. I still did not fear anything bad had happened to Elizabeth – I told her to cut down on some of her activities such as the additional studies and staying out late and concentrate on her course at college. Of course suddenly Elizabeth seemed to be different to her once immaculate behaviour all through her teens. Elizabeth was coming up to 19 and there seemed to be a problem. I saw her once with her eyes dilated and questioned as to whether she had taken any drugs however I then got to find out she had been to see her GP who had prescribed her with Cipralix. I knew nothing about these drugs then but now of course having read the book by Dr Ann Blake Tracy Prozac Panacea Pandora and by Dr Candace Pert, Molecules of Emotion, I have become knowledgeable and I had no idea how harmful the drugs were which affected Elizabeth’s behaviour so badly. Suddenly I discovered she was not doing well at college, her writing once immaculate was scruffy and her appearance was very different to previous and she was having learning support there. I thought she had taken other drugs. I cannot believe how ignorant I was not to question the drug prescribed by her Doctor. I now know what drug was affecting Elizabeth whilst at college and got to hear far, far worse but because of the sensitive nature of this which involved Police I cannot publicise the details however eventually justice was achieved but this took place a year afterwards. Anyway you can gather that she was on a highly dangerous drug that was affecting her to the point of making her unrecognisable as well as I had found out disturbing things about what had happened to my daughter whilst I was too busy looking after my father as well as my younger daughter who was sectioned and in hospital and I wish I had been more watchful and will always regret this, plus I fully trusted the doctors thinking they were experts. Elizabeth was barely able to concentrate at college so I booked her hypnotherapy in the belief that this may help her. She said it was like floating on air but after one visit to the local hypnotherapist Elizabeth seemed too busy to wish to go back again and this is a great shame as I believe this could have helped her. What can you achieve in just one session and after the fuss that Enfield Mental Health made of the hypnotherapist Susan Hepburn in Harley Street I have heard that hypnotherapy is available at local level and would like to know why my daughter was not offered this. Instead of course she got drug after drug and label after label. Taking herself off Cipralix 30mg was not my idea – it was Elizabeth’s – the drug had caused her to suffer terrible skin problems with itchiness and other serious side effects plus she had the chance of a lifetime to get away from the country and work abroad as simply a companion – her job had failed due to not being able to concentrate properly and Elizabeth seemed to go to pieces about this. The trip abroad was a complete disaster and by this time she was on a waiting list having been on the waiting list 9 months and the psychiatrist locally had recommended the trip as it was felt the problem lay with the home and family. I pointed out and gave other information to the team but they continued to point the finger at myself as a mother – home and family and I believe this is because I had complained about not getting the support/counselling etc etc. I felt excluded as I was being open with them as the team by giving them information and they were not likewise communicating with myself.

Once she had taken herself off the drugs in one go that was when I experienced major problems at home and had never been in such a situation where I could not cope. An incident led to matters being taken out of my hands and her being placed in hospital following her return abroad from this disastrous trip. AT the time she did not have a label apart from behavioural problems. Little did I know that the psychosis she was going through was caused by her coming off the drug too steeply and that was withdrawal. Noone from the team would give me suitable advice as to this effect. Instead they just wanted to go on and give the ultimate label – Schizophrenia and to tell my daughter she would be on the drugs prescribed for the rest of her life. How disgusting and untrue when I know of many who have come off the drugs and gone back to work and live a normal life. I did not know anything about these drugs and how a withdrawal should be made – how they drain the body of nutrients and minerals. I started to research things myself and to my horror I found out the truth! I started to look for decent care for my daughter in the UK and to my horror found there was NONE. I started to look and see what there was abroad in desperation. There were centres in the States and I desperately tried to get her accepted but of course they all wanted referral from Enfield social services and they were barely speaking to me as I had further complained after a serious incident and when I took Elizabeth away from their care and she was at home the local team distanced themselves and then I tried to get a decent social worker from the Adults Division like I had for my father and this was not allowed – why ever not when I knew there were more than 1 decent social worker under this division yet this was refused! so there is not a drug that has worked for my daughter and all have had devastating side effects.

I had then turned to experts like Dr Ann Blake Tracy and Dr William Walsh and I have just had the private test results and they are not good! I am not a doctor but I have once again had to seek the advice of specialists and this highlights that the doctors involved in the treatment of my daughter have not had her best interest at heart.

It is a good thing that I am the Nearest Relative yet the team wish for me to be replaced as they do not see me fit to be the Nearest Relative yet I have done all this research and contacted experts. I have spoken to Dr Ann Blake Tracy over the telephone and want to go and visit her in Arizona to personally thank her for her advice. I also wish to meet with Dr Walsh when he comes over here to train up 12 doctors. I hope as many as possible with book for the next Chy Sawel Conference so that they can learn by the research of Dr Walsh and together something can be done about the shocking cruel and inhumane care of the UK. I wish that a centre can be set up followed by others around the country and when I went to the fabulous Jamie Oliver Restaurant which I would recommend to anyone it gave me an idea. Elizabeth has been to the Fifteen Restaurant and was going to sign up to become a chef working there before she became ill as a result of the Cipralix prescribed. I spoke to the manager there as this is most relevant. There are many people like my daughter right now being held on lengthy sections and mothers like myself who are in despair with the whole rotten system and want to see change. I can prove this as I am in touch with many. Then there are the patients who I am in touch with /former patients who speak of the most shocking abuse and care on offer under acute wards. It is essential that someone under the mental health should be given a proper nutritional plan individually and an assessment by Dr Walsh himself – this is where Jamie Oliver could help turn around the whole system and work alongside Dr Walsh and parents as well as educating the patients. I spoke to the Manager and asked the manager of Jamie’s Italian if she could get in contact with him and I would be willing to pay for his appearance at the forthcoming Chy Sawel Conference which is quite near I believe to his “Fifteen” Restaurant as this is situated in Cornwall – I really hope that Jamie Oliver can do something that the Government is failing to do to help so many under the mental health system alongside Dr William Walsh which could result in the ultimate dream of mine to see humane care such as that in Tornio, Finland. It could lead to some patients becoming well again and taking a look at decent food rather than junk food and hospitals improving the catering for such patients within the hospitals on acute wards. Peter Bennett (Rehealth) has already conducted research and proven that diet and nutrition are essential and can affect behaviour. If a patient is on these drugs, they need to be all the more watchful of diet and this is an area that these experts can help with and with Jamie Oliver on board also people can be educated that a mental health patient suffering from say Schizophrenia is not as portrayed in the press so negatively. There are many people locked away for years on end on neverending prison sentences under this inhuman that are NO risk to the public whatsoever and by doing a documentary on this and involving patients, carers, doctors involved in the programme of Chy Sawel, other organisations who likewise want to set up alternative care centres such as Root and Branch and Soteria – LESS DRUGS AND MORE HOLISTIC AND THERAPEUTIC CARE AS WELL AS THERAPEUTIC COMMUNITIES. THIS IS WHAT IS NEEDED IN THE UK THAT IS FOR SURE AND COULD SAVE THE PUBLIC A LOT OF MONEY AND OTHER PATIENTS DIAGNOSED WITH SHOCKING LABELS WHO HAVE MANAGED DESPITE THIS TO REBUILD THEIR LIVES AND WHO WISH TO HELP OTHERS SHOULD BE EMPLOYED AS PEER SUPPORT.

It becomes obvious from the start when the team do not like you and you do not get an explanation face to face. The explanations are done behind your back as I have seen.
It is not that I have threatened anyone – this is not true but I have had cause to be outspoken.

At local level there were several very serious incidents. I even went to solicitors on one occasion but was told that it would not be worth taking matters further even though both solicitors cited negligence. I cannot write about the other serious incidents however they were so shocking that I requested the file on more than one occasion. Anything can be written behind your back – such things as accusations of “threatening behaviour” “nasty” “abusive” “aggressive” and even more shocking things. My name has been portrayed like mud in the files by the local team and God knows what the Bethlem put. I requested the files under Data Protection Act as my daughter’s face was absolutely covered in bruises and the ward manager had to ask me what date that occurred because she could not recall seeing any bruises. There could have been a good explanation for these bruises but it looks very very suspicious when the team protect one another. I have already mentioned how I have been treated because I was upset but not aggressive – the team did not like it because I complained. I had in writing a letter from Professor Murray promising a drug free period. Instead of that in the first week my daughter was offered Clozapine and she was against this drug and all I have ever done is support her. They drugged her up so much that she did not even know what they had put her on and whilst at work I received call after call and had to listen to my daughter distressed and upset. How very cruel the care is in the UK.

All I have ever done is listen to my poor daughter unlike the team and because she is weakened by the drugs I have spoken up for her. This is where the team gather together, have meetings behind your back and exclude you.

At local level there was freedom. Patients on a Section 3 could go out unescorted as part of their human rights. However at the Bethlem things were very different however Elizabeth was allowed out at first in the grounds and then I used to come up and take her out every weekend as I felt sorry for her being stuck on that dreadful ward.
When I got banned that was around about the time I found out what drugs she had been put on – 300mg Clozapine and 500mg Metformine off label for weight loss – when I complained and showed the letter from Professor Murray I got accused of causing upset on the ward and being aggressive and then I got banned. The letters copied in about 8 people at times. The meetings sometimes had 9 people and Elizabeth said she dreaded these meetings. That whole hospital was awful and they just used her as a human guinea pig discarding the Advanced Declaration that no further experimentation be carried out. Elizabeth also gave consent for me and other family members to see the file but the team blocked that.

I was given a day’s notice she was being moved to Wales without even giving me the opportunity to say goodbye. There was no discussion with me first but they took into consideration the fact that I wanted Elizabeth to have a fresh start. Things had not worked out locally and at the time she was at risk as regards someone she had met on a mixed ward.

So when Elizabeth first came to Cambian I was delighted as I had read their brochure and was most impressed at what they said they offered – pets, dog walking, outings, patient involvement – you name it! I have not seen anything of the hospital as I have never been invited to a single meeting and have not seen past the visitor’s room which is very very small.

On the first two occasions staff were there in this small room all the time and I have documented the fact that on one occasion someone else turned up late and I was told to come back the next day and on that occasion a member of staff stood over me and did not leave for one single minute. You would have more dignity in prison than in this hospital. I was shocked as this was not what I had in mind for Elizabeth – I wanted patient involvement for a start and humane care but this was nothing but strict control.

It became evident that the team did not like me – the psychiatrist referred to “my past behaviour” so this has left me thinking that things have been written behind my back that are not nice. The psychiatrist referred to the Bethlem as a leading worldwide renowned hospital and I thought this was the case but I was horrified when I saw what was really going on. http://nationalpsychosisunit.blogspot.com. I had no idea this was a research hospital and I trusted Professor Murray who distanced himself.

So, I had nothing bad to say about Cambian and was delighted Elizabeth was out of the Bethlem and in a nice environment or so I thought. Wales certainly is a nice environment but a hospital however nice inside is not a good environment surrounded by other seriously ill people. I do not think it is right to keep someone in a hospital for years and years on end but this is going on at huge expense to the public. Cambian must be even more expensive than the price of keeping someone on a local ward however it must add up and Elizabeth has been in hospital now about a year. On previous occasions she has been in hospital for 2 years but being local I was allowed to have her home at weekends and I so wanted her to settle into the community but again I was shocked. I was right about the placement – I knew Elizabeth needed more support but capacity is played on and you are excluded if you ask for something like direct payments – what was missing was the young companions and Elizabeth did not ask – if you do not ask you do not get but some people are not well enough or strong enough to ask like Elizabeth. When you ask as a mother it does not go down well. The local team decided to appoint someone from Disability Action to find out what Elizabeth wanted – they completely dismissed me as the mother and excluded me in terms of whatever I said would improve matters. Everything I said was discounted. Elizabeth was isolated and living in a flat in the community she said “no one knocked on her door”. Then something awful happened to her under this scheme and in addition to this, she had all her possessions stolen and the team allowed her to go missing time and time again through her association with a “friend” she made on a mixed ward. Whilst missing I doubt Elizabeth was taking the drugs – Dr Ann Blake Tracy says even if you skip a drug for one day it can have bad effects. So, I listened to Elizabeth unlike the team, I paid for a companion and was going to advertise for someone else so that she could be in safe company instead of talking to strangers as she was vulnerable. I paid for Elizabeth to see Susan Hepburn, a leading hypnotherapist because the “Personalisation” was providing nothing whatsoever after nearly 6 months. I thought I would find out in 1 hour what she wanted because the team would not listen to me and I had asked and discussed with
her. When this was booked I have never seen so much panic and this I could not understand. Apparently this is not recommended under NICE guidelines yet it is the only thing that worked. Apparently in some areas it is on offer under the NHS – surely this is better than all this drugging.

Elizabeth has been in Cambian for several months but was granted no leave during the time she was at the Bethlem – so in all she has been in hospital a year now and the only leave she has had was just 1 night when I was allowed to bring her home. The temporary psychiatrist had noted that all went well and there was no problem but now the other one is back and in the past leave was denied to me and only escorted visits and then when I complained I could not get through on the telephone as it was always charging and no one did anything to rectify matters I received a letter from the Manager and it was not nice at all. The letter granted me supervised phone calls only once a week at a time when surely the team must have known I could not ring – this was the time I was travelling home from work. I cant tell you how upsetting the whole thing has been and I want to warn others about this kind of treatment I have received at Cambian Healthcare. Elizabeth already had a firm of solicitors and a very good firm and the team set about persuading her to go with a Welsh firm of solicitors. When I asked Elizabeth why she changed the firm she said it was because someone in the team suggested it would be better for her to have a Welsh firm. The IMHA then got involved as advocates and I must admit I did not know much about them but of course this is I believe a Government funded advocacy scheme for patients who are sectioned- they claim to be independent but I have seen how Rethink were at the Bethlem. I think the advocates work very closely with the hospital and team and of course I was completely excluded by the advocates.

The team have excluded me from the beginning – the rest of the family have been treated differently. At Xmas when Elizabeth was brought down she was just left at the grandmother’s house but with me I had two nurses there all the time and they only brought her down for a few hours. This was witnessed by many of my close friends who have known Elizabeth for years. I thought the nurses looked a bit awkward and in no time they had to take her back. Why on earth could this psychiatrist not allow just 1 night with myself and 1 night with the rest of the family – it was after all Xmas. Elizabeth looked visibly upset and my friends were horrified. There were two new friends there who were former patients and they both felt very ill at ease seeing the nurses as this brought back terrible memories of their own personal experience. I tried to make the occasion as happy as I could and knowing I could not have a conversation with my own daughter I invited people who she knew very well and who have known her since she was little.

I have asked the team many times why I have been treated this way – excluded from the Tribunal, excluded from every single meeting, excluded from being kept informed and communicated with in terms of everything in that hospital. I asked “did they not trust me” – to which the reply from the manager was “that is not true” I then said “well what is it then about me” – no one would come out and say yet all the time behind my back no doubt this is well documented in the files which they are desperate I do not see. I asked if they were worried I would tell Elizabeth to stop taking the drugs but again you did not get an answer – I explained that whilst I was not happy I am not a doctor and not qualified to take her off but I wish with all my heart I could send her somewhere else even if it is abroad. I know that 14 mind altering drugs are doing harm to her body. I know of people who are now suffering from long term health problems yet these doctors do not care less about my daughter because they just want to carry on and on and on drugging my daughter and reminding her all the time of her diagnosis. However from my point of view there are several different diagnoses in the file which I have. One expert said she had Aspergers and the rest stick together with Schizophrenia. However where is the proof and the awful thing is that I saw no adverse behaviour all through her teens until a doctor put her on Cipralix and she took herself off this in one go. That was the start of hospital admissions and labelling one after the other.

I know why they do not like me and that is because I have spoken up for my daughter and defended her against them. Yes I dislike the drugs and would like holistic care in preference but I know it is not possible to just come off these drugs and would not recommend or encourage her to do so. I have made that clear to the team yet I have it in writing now that this psychiatrist is accusing me of not acting in my daughter’s best interests by favouring homeopathic remedies rather than anti-psychotic drugs. The team disagree with this. What is wrong in wishing that my daughter can be properly assessment by Dr William Walsh of the Walsh Institute and NO I DID NOT EVER SAY ABOUT HER STOPPING THE DRUGS ALTOGETHER HOWEVER THESE DRUGS ARE CAUSING NO END OF DAMAGE AND NOW I HAVE THE PRIVATE TEST RESULTS. THESE ARE CURRENTLY BEING ANALYSED BY DR WALSH. What mother would not wish their son or daughter to be on the minimal of drugs and have the kind of care available in Tornio, Finland. There the psychiatrists do not enforce drugging for a start and they listen to the patient and INCLUDE the family unlike here. It is upsetting to see in writing the description that the team think you are unfit to be the nearest relative and I suffered no end of bullying by the local team to the point I was in tears. This was done at work and whilst I was at the hairdressers witnessed by other people.

Also it has been pointed out in writing that Elizabeth requested I had no access to the files which was the opposite to the consent given to her previous firm of solicitors and I did not push her to accept this firm – she did this herself without me being present.

The team at Cambian refused the file to my solicitors and I am entitled to a Manager’s meeting but this did not go ahead in the end.

This psychiatrist states Elizabeth as the capacity to make decisions however everything the team at Cambian say Elizabeth is saying the opposite to myself and her sister.

For instance her sister asked was it her idea for the supervised calls and was someone discouraging her to have contact with me, her mother to which Elizabeth replied that it was NOT true she requested supervised calls from me and yes someone was discouraging her ……………………I will leave that to your imagination as matters will be going to court soon.

I got on well with the temporary psychiatrist. He rang me back and was very nice in the way he dealt with me however not once has this psychiatrist ever telephoned me and has gone off on holiday not granting my request for leave before now.

I am very upset because I have a long way to go to see Elizabeth and the team suggested a nice place called Bluestone but it is hardly worth us going there. By the time we get down we will have to book in for one hotel and this is a couple of hours journey away on top of a 3 and a half hour journey from London depending on the traffic. So not only is it expensive for us to go all the way to Wales but we are granted by this psychiatrist at Cambian very little time and my younger daughter I understand tried to telephone to get this extended – so by depriving me with contact to see my daughter they are also depriving her sister.

The worst thing that this team have done is on her Birthday in February the team brought Elizabeth down to see the rest of the family and I do not know if it was them who said DONT TELL YOUR MOTHER. Even if they all hate me this is surely wrong and not the thing I would have expected from a hospital who have won awards for Best Care Provider.

The psychiatrist is playing on confidentiality and capacity in her decisions to deprive me from reasonable contact with my daughter and we were deprived of having her at Xmas. How come this private hospital can act this way whereas at local level human rights are taken into account.

I am most concerned at hearing that they keep people a long time at Cambian. I have heard this can be as long as 3 years – bearing in mind a section can be renewed constantly for up to 9 years surely this is so very wrong when a patient is of no risk to society. However the drugs make someone very disabled and that is what they have done to my daughter. The longer she is kept in hospital the more disabled as far as I am concerned.

The assessment by Dr Walsh is going ahead based on private test results.

The Tribunal has been delayed because of the fact the team have said “she has not consented to seeing the independent doctor”. However, Elizabeth is not at all happy being on a section and who can blame her. Once again I as a mother support my daughter in coming off the section. I would have been happy for her to remain voluntarily but if a doctor is saying things that are not nice about you behind your back perhaps this is not the best environment for Elizabeth to get well.

I have been down to see the Head Office of Cambian which is near to where I spend most of my time. What a beautiful location on the waterfront and in magnificent grounds. Elizabeth would like it here. The office looks more like a luxury hotel and I have found out who I should deal with at this Head Office. The Chief Executive, a Mr Asaria did not get around to returning my calls and I spoke briefly to a psychiatrist there in the evening. It was a pleasant conversation but I pointed out that it was not nice the way I have been treated and that I was sad that only 1 night was given as it was not possible to book for Bluestone National Park.

I really thought that the care under the private sector would be better. I am so bitterly disappointed.

My daughter is miles away from home and I am now worried for her – it is not a nice environment and when a patient is advised not to have much contact – this is more like a religious cult in my opinion.

Yes I have been outspoken and not everyone will agree – I can understand why more people do not do this.

Speaking the truth about what is going on under the current care system has caused me no end of stress. Whilst none of this has affected my mental state of health it is affecting my physical health.

It is so hurtful to be excluded from a team because they have read a past file and a doctor who has never met m e before has formed an opinion.

Worst still when asked to guarantee that the supervised phone calls etc will not reoccur I wish to share with you this:

It is stated that Cambian cannot make promises or assurances about the fact that unsupervised telephone calls and visits will continue in the future.

I went to the Carers UK Conference and got up to speak and never thought I would have the confidence – I have nothing to hide as a mother but I have stood up for my daughter’s rights by listening to her. The team have tried to turn her against me and deny contact. The court case has been drawn out longer than it should have been.

All I want is for my daughter to be free and happy but with the right level of care. I want to be able to keep in touch with my daughter as she is a long way from home. I want to be included and not treated like a criminal like Cambian have treated me.

“I will call the Police on them Mum, you are still my Mum” – I believe the entire team want to get rid of me as the mother. I have had every right to complain and not any of the complaints have been dealt with properly. The PHSO have shut down my case, the Local Government Ombudsman have also shut down the case. The CQC give ratings that are highly inaccurate and I met David Behan at the Carers UK Conference and also The Rt Hon Norman Lamb. Both spoke about changes in care so that families where possible can be included and not excluded and I do not know how they are going to implement this as from what I can see I think strict guidelines need to be put in place and a new system of ratings as there are vulnerable people involved here.

I would like to see Elizabeth out from hospital but I have quite a battle on my hands. I wish there were more therapeutic communities as I think this could be the answer. I think that patients some of them like to help others and Elizabeth was like this – always looking after someone weaker on the ward. So there are many patients locked away who are not at risk to the public but because there is not suitable care in the community they are kept locked away at huge expense to the public and something needs to be done about the whole system.

4 times it has taken me to get consent for leave and the team suggested Bluestone National Park but when I booked it was not possible just for 1 night. I tried to get two nights but this has been flatly refused by the team who give no reason whatsoever and try and make out it is my daughter’s wish.

Here is a list of things, some of which I have highlighted in my email to Cambian today:

1. Excluded from the beginning unlike the rest of the family.

2. Referral made to my “past behaviour” – this means that there must be bad things written in the file about me – the psychiatrist has never met me before and had judged me on what has been written about me and thus I have been excluded from every single meeting unlike the rest of the family.

3. Local solicitor – a very good firm that Elizabeth appointed herself and without me being present replaced. Someone in the team apparently suggested she would be better off with a Welsh firm. “Mum, I do not know why I have got all these letters from Welsh solicitors” I then said – did you wish to change your solicitor to which she said that someone but she could not say who suggested it would be better as she is now in Wales. It is notable that consent was given to view parts of the medical files to the previous solicitor ie the very basic of information

4. First visit to Cambian led to a small room – friend present. Elizabeth was brought down to see us. We were not taken around the hospital – we were confined to a small visitor’s room only and for a very short time. Tried to find out about the forthcoming Tribunal for Elizabeth but the member of staff made out he knew nothing of this but I was later to find out that the rest of the family knew about it.
5. The Tribunal went ahead without my knowledge – her father was present and someone from Enfield Mental Health – the Tribunal failed of course and was no doubt destined to fail! I wondered if she had any representation for her Tribunal.

6. Second visit took place. Someone was late in coming and we were told to leave and come back the next day – this was the occasion where the nurse stood over us all the time which I found absolutely intimidating and my friend was absolutely appalled by this. It was my Birthday and we only had time to say hello and goodbye because someone else was late. We then came back the next day briefly before going home.

7. Solicitors appointed and having listened to Elizabeth who was not happy on the section, I felt strongly that everything to do with her care has been shocking and appalling. The care had failed locally and one drug after another pushed at my poor daughter. I have witnessed her suffering on one drug after another and seen that the teams could not care less – she is just another number to them. The team do not care less about my daughter and they do not care less about what damage they do to the family. So I felt a bit better having got solicitors appointed as the last time I was unprepared and suffered about 2 days of bullying and harassment by the legal teams at Enfield Mental Health Social Services – they even sent me the court papers for displacement of me as Nearest Relative giving just 1 day notice to me at work followed by call after call after call – anyone else behaving in this manner would be arrested for harassment. The calls continued after work when they did not get an immediate answer so not only did my work colleagues witness all this but other people at my hairdressers. I could not find a solicitor in such short notice and had to back down and then they slapped on a Section 3. This time I was ready whilst she was at Cambian – I had solicitors and I later got told they were again trying to replace me as the Nearest Relative – I think this is because they wanted someone else in the family who happened to live in a different area. Perhaps this meant that they could just wash their hands as clearly this is a case they all wish to be rid of as well as rid of me as the Nearest Relative.

8. As the Nearest Relative I have the right to attend a Manager’s Hearing. Cambian flatly refused the file to my solicitors. They were desperate for me not to see the files however whilst I have not requested the files I have the right to see what has been written about me under the Data Protection Act. I can guarantee my name is like a piece of mud – I have some of the files so I know that a team can get away with writing whatever they like to the point of libel. Noone else can get away with such things but it would appear that the team think they are above the law. It is no wonder why some of them sit there laughing in the meetings. My solicitors had to call off the meeting.

9. A new psychiatrist was temporarily appointed and he is one of the few psychiatrists that have made the effort to communicate and even though he may not have agreed with my wishes for holistic care, he was very polite and courteous and listened to me. I presented him with evidence from the patients I am in touch with of my concerns about Clozapine. I mentioned why I was upset about the section because the National Psychosis Unit had caused the psychosis by the reduction too steeply of Seroquel and then mixing it with Olanzapine. I know all about these drugs thanks to Dr Ann Blake Tracy and I joined her site called the International Drug Awareness Coalition and this even gives you proper advice on how to correctly be reduced off these drugs. I passed this on to the Bethlem but they would not listen and they went against Professor Robin Murray’s written advice of a drug free period of assessment. Professor Murray then tried to distance himself despite the fact he told my daughter that he had one or two contacts – it is appalling that he did not do something to rescue my daughter from this hell on earth place.

10. As I said to David Behan – Chief Executive Officer of the CQC, the Bethlem did not do things properly and therefore why is my daughter on a section on their account. This should be immediately lifted. I told him how appalled I was at seeing bruising all over my daughter’s face. I have not had a satisfactory response about this or even a hint of an apology for the shocking way I was treated myself.

11. I had such high hopes of Cambian but when a doctor does not like you and is pro the previous hospital then what hope do you have ie., “I have heard all about your previous behaviour” . From my experience a team have to follow the advice and guidance of the consultant psychiatrist and that is what is happening at Cambian. So now the temporary consultant psychiatrist has left the other one has returned and the reason I am so upset is that two nights is not too much to ask. If Elizabeth was not feeling too good then I would bring her back immediately but to think that most of our time will be spent travelling and I wanted to book spa treatments and make it nice for her. I am so bitter towards this hospital Cambian that have supposedly won Best Care Provider 2012 and have associated themselves with Ruby Wax and Roger Black which I have seen on their website.

12. So I have just passed the message to my younger daughter that she cannot see her sister for more than just a very short time and she was naturally very upset. We do not visit that often because of the distance and I feel this is most unreasonable. I told my solicitors all about this and then I tried to contact the Chief Executive of Cambian whose offices are very near to where I spend most of my time.

13. “I will have them arrested, Mum – you are still my Mum” “I have to watch my reputation” “it is very strict here – you have to do what you are told” “don’t embarrass me Mum otherwise this will get back to me.” When I could not get through on the phone as it was forever charging in their office I asked my daughter “is anyone in the team recommending you do not have contact with me – “yes Mum but I cannot say who – I’ve got to go now” “Mum, the drugs stop me from thinking clearly – I feel dizzy and have to hold onto the walls” – Her sister asked “did you wish for my Mum to have supervised calls only” – her reply was “no I did not”.

Now the Manager of Cambian has said that it is my daughter’s wish that she only sees us for 1 night. I would dispute this as well – this is not what she has been saying to myself or her sister.

At Xmas Elizabeth was brought down for a very short time escorted by two nurses. I tried to do a little party – you cannot have a private conversation with two nurses listening to every word you say and that was deliberate. I have to say the nurses were nice and looked a bit awkward as I happen to know the rest of the family were allowed to be on with Elizabeth.

So we were all deprived as a family by the consultant psychiatrist and team of Cambian to have my daughter just for 1 night and then she could have spent 1 night with the rest of the family. My daughter was deprived being with her family because of the team.

Then on her Birthday shortly after Xmas I did not know it had been arranged to bring her down but my younger daughter had been put on the spot ” don’t tell your mother” How awful is this. No doubt they will try and say “it is her wish”

So, under the temporary psychiatrist I put in a request that for the first time could she be allowed out without an escort unsupervised and this psychiatrist allowed it. I collected her with my younger daughter. We took her to see the hotel where we stayed. We took her on the Brechen Mountain Railway and other places of interest including having nice meals out together and then we brought her home just for 1 night. However when the rest of the family got to find out the grandparents wanted to have her over and that meant I had little time with her. The next morning staff came to pick her up.

On each occasion I have had my daughter there has been no problems. I feel I am being treated like a criminal and to think I was training to go into the police at one time.

I have tried to reassure the team that although I do not agree with the drugging of my daughter there is nothing I can do – it is heartbreaking because I know that her health has deteriorated having had private tests done. This team will do nothing to reduce her off the drugs prescribed by the Bethlem.

There is nothing I can do as a mother except watch them destroy my daughter’s long term health by 800mg a day and one of these drugs is being given off label. They do not work as Elizabeth can remember shocking things.

Some people may think that it is best not to complain then you will not get treated this way however I would disagree because how on earth are things ever going to change for the better unless you do speak up. I am just one mother that the team hate and they have ganged up – there is no inclusion or understanding of how I feel.

The law is failing to protect the weak and vulnerable. There needs to be something done as the complaints procedures are dismissive and there should be a system where individual complaints are looked at properly. I have every reason to be upset and am right to complain about the care as many shocking things have happened to my daughter and no one has even said “sorry”. It is no wonder she has gone downhill – it is not only the healthcare I am talking about here but the residential care in the community and there is a lack of decent care available.

I like the sound of a therapeutic community – I do not wish for Elizabeth to remain in hospital forever and especially under a team who treat you like you are nothing and I think it is very very sad that Cambian will not give 1 extra night bearing in mind the long distance of driving we have to do and the fact that previous visit was successful. Of course the Chief Executive of Cambian could not be bothered to ring me back today.

Last of all, the Tribunal is an important occasion whereby a patient can get off a section. I already know having found out from the rest of the family that Cambian want to keep her for about 18 months but why cant she be voluntary and have the holistic care programme backed by a nutrition and proper assessment by Dr William Walsh of the Walsh Institute especially in light of the shocking evidence I now have seen.

The tribunal and legal process has already been drawn out for longer than necessary on the basis that Elizabeth has not agreed when in fact YES SHE HAD AGREED. I pointed out to the team that everything she is telling them she is telling us the opposite.

I am getting increasingly concerned for my daughter’s wellbeing. It is distressing for her to be pulled in two directions and that is what Cambian are doing. Like a religious cult they do not seem to want for her to enjoy time with her mother who they see as someone who is bad and not fit to be a mother. The reason they see this is that they wrongly think I will tell her to stop taking the drugs. This cannot be done – I am not a doctor qualified to reduce her. I know it is possible but the appalling thing is in the UK the whole care system is cruel and inhumane – something should be done about it as no attention is paid to the long term health of the patients on these drugs and there is question about my daughter’s diagnosis. She was not given the promised drug free period so this in my opinion is in question – she has about 5 diagnoses and the latest “Chronic Treatment Resistant” I wish I could just take her away from the UK and go and live in Finland in a place called Tornio. It is not stigma that worries me as I am proud of my daughter – associate my shame towards the rotten care on offer of enforced drugging in the UK and to think this is allowed to go on. Where are the voices of churches? There are patients of all nationalities and religions under the care system forced to take drugs. What are the religions of the world doing about this? What is the Government going to do to improve matters and provide alternative centres. Perhaps someone should go out to Finland or better still let me take my daughter over there so that she can get well again under their humane and unique care as we have nothing over here.

The only hope I have got is if Chy Sawel can be set up and similar places.

It was a struggle to get consent for Elizabeth to spend time with myself and my younger daughter. It is as though the team do not want me anywhere near my own daughter and certainly they have tried to influence her, so I have heard. The team at Cambian have had great influence to the point that they imposed strict restrictions against me but those restrictions did not work as with the supervised phone calls, Elizabeth was constantly texting me which was probably something the team did not know about. She was the one – not me who was contacting me as there is no way I would have phoned at the time and day dictated by the consultant psychiatrist of Cambian when I could not in any case because the time was when I travel home from work. It was an extremely nasty situation and must have been upsetting for Elizabeth but then a new psychiatrist cam to temporarily work for Cambian and he was very nice and even bothered to phone me. The previous psychiatrist is now back and it has taken several attempts to gain permission for Elizabeth’s forthcoming leave and then Cambian suggested Bluestone National Park and this sounds wonderful to me and very much what I myself had in mind. No mention was made of how long she would be allowed to stay with us and I assumed on this occasion she would be allowed out a little bit longer but it would appear I am wrong. I queried this with the team as I could see having contacted Bluestone that 2 nights were mentioned – when I asked if I could be allowed to have her for two nights I got a short email stating that the team had given consent for just 1 night. It will take us about three and a half hours to drive to Wales depending on traffic and then a further 1.5 – 2 hrs to Bluestone so nearly all our time will be in the car driving. It is sad that the team are depriving Elizabeth of just a little bit more time as I would have liked to book the spa treatments and take her out in the fresh air to see the beautiful scenery. It is sad that the team at Cambian do not take into consideration the distance we are travelling for a start and the fact we hardly see Elizabeth and I have not broken the news to her sister who will be extremely upset as she was hoping to spend more time with Elizabeth – before we know it, it will be time to go back and go home again.

I have written to Cambian stating that we cannot make a booking at Bluestone for just 1 night as I have enquired. Now I have to look for somewhere else and this place would have been ideal.

I have also asked in my email how long Cambian intend to keep my daughter for and the reason for their strict controls against me having contact both in the past and present time. I presume they think I will try to influence her to stop taking the drugs but I would not do this despite my personal feelings against them I would keep them to myself. I know she is on an extremely dangerous drug and her life would be at risk if she was to attempt to take herself off this chemical. I have tried to reassure the team in responding that I am not a doctor and therefore am not qualified to do this sort of thing – my time spent with Elizabeth would be pleasant and no mention of drugs but I do know that Elizabeth is upset at being on a section and I think it is appalling she has been sectioned when the Maudsley made such a huge mistake causing the psychosis and this could well have been done deliberately just so she got put on Clozapine – this is their chosen drug and they receive funding for this – I was told “its all about Clozapine here” by the lead nurse.

Anyway, I do hope that Cambian will reconsider – Elizabeth will have a lovely time with us – she has missed out on so much of her life and the awful thing is she sometimes comments on this.

Elizabeth is in a lovely area but unfortunately a hospital is no place to get well and my concern is that she gets enough support in the community. The hospital care does not fit the description I read and I hoped for the very best for my daughter when the care failed time and time again locally. I thought Cambian had peer support/patient involvement but all I can see is rigid and strict control more so than even the Bethlem but I am going back to before she got put on the Clozapine.

I understand that Enfield Social Services are currently in the process of reviewing her care yet I never get to hear from any of these social services team. They are keen to distance themselves or try and make out they do not know of what is going on – I happen to know that they have attended meetings at Cambian so they must know what is going on and I thought it was extremely devious of them to try and replace me a second time. I may not have been so lucky but now I have solicitors acting for me and that is a very good thing in the circumstances.

There is still no date for the Tribunal arranged.

I would like to see Elizabeth out of hospital and with much more support. I am thinking of buying her a place to live and employing a live in carer like I did for my father. I have also seen a very very good “community” care centre and I like the description of this very much.

I shall write tomorrow if I get a response like I hope – just 1 more night – surely this is not too much to ask of the team. It is wrong of the team to punish and take things out on my daughter and my younger daughter just because they do not like me – the only excuse is that they do not trust me and their fears are unfounded – it is wrong of them to assume like this and to guess when they are totally wrong. It is wrong of a team to form a bad opinion amongst themselves when they do not know me yet staff have been to my home when I was deprived of having Elizabeth last Xmas. Instead of working together and communicating effectively which would have meant I would never have been outspoken let alone have a blog, the team have stuck together but what they are doing is harmful to my daughter.

“There’s no place like home, Mum” – however if Elizabeth was to come home I would have to give up my job and be at home every day – this also would not be great as
how would Elizabeth ever manage on her own and become independent that way and so it is not as if I am possessive towards her as I think it is most important she is in the right environment and London is not a good environment as it is noisy and not peaceful.

I shall know hopefully tomorrow if my wish has been granted or not.

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