When care was failing my daughter at local level I researched the internet for decent care and found there was virtually nothing in the UK. Centres like Earth House and Alternative to Meds amongst others were all in the States and then I tried to get my daughter sent to Finland where she spent happy times over several months on a working holiday and where I had read about unique care in Tornio. This was before she was used as a human guinea pig and labelled with several diagnoses and she had a bright future to look forward to. Still to this day, Elizabeth talks of Finland and her wish to return and I would like to take her where they have the best care in the world to a place called Tornio. The care is humane which is unique as everywhere else in the world care is all about control and manipulation and patients are not listened to – they are not treated in a decent manner and I know all about this as I am in touch with so many ex patients. I also see so many mothers just like me who are in despair at the whole system which is failing so many.
Anyway, I was so happy when my daughter got moved to Cambian as I had read good reports although the move was done in a shocking way. I received a call from her social worker and within a day she was moved, leaving no time for family to visit or say goodbye but I was already banned as I myself was labelled by the team as being aggressive and threatening. In actual fact I would state it was the other way round judging by the way I was treated by the staff. I have already referred to staff threatening me with arrest on several occasions, treating me like a criminal and acting as though they were above the law, all sticking together to cover one another’s back so it would seem judging by the letters I received. I have never seen so many people copied in one letter before. When threatened with arrest I got so fed up with this that I decided to apply to Kent Police and then members of a group of ex patients speaking out about their shocking care got in touch with me and one recognised the hospital and ward where he/she spent the most horrific time of life and has since compiled data based on research on all the experimentation going on under the Bethlem Royal Hospital. The patients arranged a demonstration on behalf of my daughter and I think it was a combination of my application and this that led to a hasty and sudden move to an area far away from home and family.
On arrival, Elizabeth telephoned me to say how happy she was. She said it was beautiful, peaceful and it was like a four star hotel and the food was nice unlike the shocking food dished up under NHS hospitals. As Elizabeth was happy so was I and then I read something about a new law in Wales for holistic care, giving choice to patients and I was esctatic. I though thank goodness she was no longer at that prison camp and at Cambian where they took on board patient’s comments – or so I thought and took on their ideas. These are patients who have been on acute wards and know what they are talking about. I also thought they had patient involvement but was wrong there! They have pets, no doubt some of the staff have been very nice to my daughter but what is going on there leaves a lot to be desired.
I work full time and so there is not a chance to phone every minute and was not on the phone every minute but at weekends I would speak to my daughter and there were times when she was happy/not happy. I began to notice conversation appeared a bit awkward unlike before and I had already complained about the phone being left in the office weeks on end charging and noone could get through. I commented one day about whether someone was there listening and whether she was being discouraged from contact – on one occasion she said she was on 15 minutes watch which the manager strongly denied and on this occasion when questioned she said “yes” but I cannot say by whom. I had already had a conversation with the consultant psychiatrist and it was clear that she was cool and quite abrupt towards me. I wanted to know whether I could take my daughter out for a meal and she would not give a decision on this and this was left up to the manager. This is when she commented on my past behaviour because we had also discussed the “medication”. Elizabeth had consented to me knowing what drugs they had given her at the Bethlem ie 500mg Metformine and 300mg Clozapine. I found out because an emergency doctor had to be called out to her after we had gone running together in the grounds outside the Bethlem. I had no idea they had put her on this drug at the time and she was so drugged up she did not know herself. When I insisted staff tell her they turned to her and said “do you want your mother to know” – to this she said “yes” and they had no choice but to tell me in front of her and then I got ordered off the ward and after that I got a letter saying that I was not welcome to come on the ward any more and that I could only see my daughter off the ward at a time when escorts could be arranged. So I discussed the medication with the new psychiatrist at Cambian and she was sounding agitated about this especially when I questioned by Metformine was being given off label for weight loss and whether she had diabetes. It was then she referred to “she had heard about my past behaviour”. The conversation was cut short and that was that. I got to find out that the Tribunal was set for my daughter on a particular date and then I got to find out that her father had been invited to this Tribunal and not me and I am the Nearest Relative. When I questioned about the Tribunal the staff made out they did not know anything about it but then a certain member of staff telephoned her father to invite him and that put the team on the spot but still they were trying to make out they did not know. How on earth can a Manager not know what is going on especially with something as important as a Tribunal.
That was not the only thing – The Tribunal failed and I got to hear my daughter in a confused state saying she did not know why she had all these letters from Welsh Solicitors. It was then I realised that Cambian had intervened in this. Previously Elizabeth had given consent for me to know some details about her care – all I was interested in was the so called “medication” – nothing else. Suddenly, the team were saying as in the Bethlem despite several forms of consent that my daughter objected to me knowing anything about her care and that she wanted matters kept confidential from me and this is very much contradictory as I believe this was the team who did not want me to see the files and were absolutely desperate that I knew nothing about what was in these files. So I then found out that a member of staff had advised my daughter that now she is in Wales it would be better for her to have a Welsh Firm. Her solicitors were excluded and so was I from the Tribunal and from representing her fairly in accordance with her wishes. Surrounded by members of team who no doubt put pressure on her during times when she was weak and vulnerable on a drug that is so sedatory that it takes away all your thinking capacity, she was like putty in their hands.
So, then I appointed solicitors and I got to find out that Enfield Mental Health were trying to replace me as the Nearest Relative. She had a new social worker – did not even know her name but got to find out and this social worker tried to make out she did not know anything yet I know for a fact there was someone there at the failed Tribunal from ENFIELD MENTAL HEALTH. Here is another example of the team sticking together.
As I am Nearest Relative I am then entitled to challenge the Tribunal and in accordance with my daughter’s visits I have attempted to do this. A Manager’s Hearing was called not that long ago. I had already told Cambian of a date I could get time off for this and they arranged it on another date and I had to go out of my way to change things and alter my day off from work which I succeeded. It looked like they did not want me there at the Manager’s Hearing as then they did not cooperate with my solicitors. I fitted in with their changed date and my solicitors were going down for this occasion but then at the last minute they were refused . WHAT KIND OF TEAM DOES THIS SORT OF THING. THIS LOOKS VERY UNDERHAND TO ME. They are supposed to divulge information to my solicitors but flatly refused and this led to my solicitors having to cancel the Manager’s Hearing and since before Xmas I have been waiting for the date of the Tribunal. It would seem to me that Cambian are trying to delay matters all the time and sabotage everything.
THE MOST SHOCKING THIS IS THAT I HAVE JUST FOUND OUT THAT CAMBIAN HAVE EXTENDED THE SECTION BY 6 MONTHS and I intend to tell my solicitors next week. The reason I think they are trying to delay matters is because their appointed/recommended solicitors who they put forward for my daughter have told my solicitors that my daughter is not ready yet to see the independent doctor who wanted to visit her prior to the Tribunal. The appointment of these solicitors leaves a lot to be questioned – Elizabeth was told it would be better for her to have a Welsh firm and she told me she felt she had to go along with their suggestion. She has made comments that “it is very strict here, Mum” – it is easy for a team to put pressure on someone and this is what isgoing on behind closed doors to many who have their Tribunals delayed. Recently a landmark case has been won by Kaim Todner so I believe. I have questioned before the fairness of solicitors that are recommended by hospitals and this sort of thing should never be allowed to go on. A solicitor is supposed to be totally independent but judging by what I saw at the Bethlem and how the tribunal was called off by a solicitor laughing and joking constantly with the team I wonder! Also the advocates that get funding who are linked to the hospital are also manipulated as in the case of Rethink attached to the Bethlem so I saw at first hand and witnessed another people I know.
It is very serious that Cambian appear to be doing all they can to delay/postpone the Tribunal and this cannot go ahead unless there is an independent doctor appointed through my solicitors and I have one ready to speak to my daughter who has agreed in writing and this has been witnessed. However CAmbian are saying the opposite that she is not ready to see this doctor and they are trying every trick in the book by the looks of it.
In light of all this, I have asked for the file under Data Protection as there must be mention of me and my “behaviour” and reasons as to why the team have treated me so differently from the rest of the family. At Xmas she was allowed time alone with the rest of the family. At Xmas she was brought down for a very short time all the way from Wales and staff stayed from start to finish. They came to my home and reported back that everything was OK – aparently they gave a good report back to the consultant psychiatrist that it was not an awful home – (which is something they probably thought bearing in mind the shocking things that had been said about me behind mind back in previous files).
I telephoned Cambian on Friday and asked to speak to Dr …………………… I was asking about the assessment which I want to go through with and Elizabeth has agreed which could lead to holistic care and a reduction in the drugs given as I dispute the diagnosis as a drug free period was not given. It was Professor Murray who recommended a drug free period and Fitzmary II Ward of the Bethlem did not do things properly and this led to a drug induced psychosis and experimentation on several more drugs. I am in touch with another mother who is likewise horrified and disgusted with the care at the Bethlem – the person she cares for is on an enormous dosage of drugs, is only young but can only sit in front of the TV and unable to barely move and my daughter suffers constant dizzy spells on the Clozapine and has had no end of side effects. They ignored the fact there are heart problems in the family. Cambian have continued to ply the drugs as prescribed by the Maudsley and have done nothing to change such a prescription, continuing to give a drug off label that has not been tested for its purpose of weight loss. This is why I am keen to have a proper assessment and Dr Walsh is happy to carry this out and now it would seem that Cambian are trying to delay this in every way they can along with the Tribunal.
I have lost my patience and have telephoned Cambian to tell them what I think. I had a text message saying “the team want ………………………………” – so the team want personal information of my daughter from me yet they have been far from open and honest in their dealings towards me. Cambian denied I was still on such a ban and tried to play this down as regards the supervised phone calls and escorted leave. I told them there was NO COMMUNICATION under Cambian and I had received no letter stating such a ban was lifted. They now tell me a letter has been sent in the post. This is very sudden after all these weeks of silence. Maybe this is as a result of me saying to them that I am prepared to take things to the limits. I am prepared to go to court and give publicity.
Meanwhile my daughter telephoned me saying she is upset about the section. She is of no risk to anyone – there is no excuse for this at all. She is prepared to remain voluntarily in hospital and what is wrong with this? I told her that without the Tribunal nothing would be moving forward with regard to the section being removed and for that she would need the help of her solicitors. She said, Mum who are my solicitors? and I do not have their telephone number – I think this is in the office. I was astounded – my daughter does not appear to have the ability to appoint solicitors on her own accord whereas she did have ability to appoint the previous firm and I was not even around to influence her as I was banned at the time. It would appear the team helped get the Welsh solicitors in place for my daughter perhaps because they knew the previous firm had been given consent by my daughter to divulge certain information to me. This is how a team can manipulate a patient who is drugged up to their necks on 800mg of mind altering powerful LSD like drugs and then go on to say “she has capacity”! Elizabeth then went on to tell me that the section had been extended to a further 6 months – she would be happy to remain there as a voluntary patient but of course being sectioned gives a team more power to control and push drug after drug after drug and how many cases are there of people who die under such rotten awful care which is the only “care” available at the moment in the UK. Dr ………………… told me I had a right to contest matters but I told him that the delay of a Tribunal meant that this would not be going ahead and that I had plenty of evidence that my daughter had agreed to see the doctor in writing with witness. When I told him I knew about the 6 months extended section he was a bit lost for words.
Well, now I await the letter from Cambian and I have my solicitors lined up. Unlike some people who are ashamed to discuss matters of mental health or admit to this being linked with their families I am proud of my daughter but ashamed of what is going on in the UK. I would be happy to go on TV and speak about the shocking care. I wish to see humane care set up in the UK more than ever now in the form of Chy Sawel with doctors like Dr Walsh and Dr Ann Blake Tracy and also Professor David Healy and others involved who are looking for the underlying causes instead of just pushing drugs that are so dangerous yet are passed by the FDA in an unscrupulous manner and these drugs manufactures will resort to any underhand tactics to get their drugs passed as Dr Healy quite rightly says. I am fed up with TV and the newspapers and media giving unfair representation towards mental health patients when they conveniently choose not to mention anything about the dangerous drugs which could affect each and every one of us yet are passed in the most shocking unscrupulous manner. I have seen everything how these drugs have affected my daughters and my father to say that they should NEVER EVER HAVE BEEN PASSED. There are always going to be some who say the drugs work for them but then they could benefit because they are “undermethylated” and this is why it is important for anyone to have a proper assessment before being put on the drugs as certain conditions where there is already an overload of serotonin could mean that the drugs can make that person worse. I want answers as to what bio type of depression my daughter has in order that she can have the right treatment and not be on the maximum of drugs for the rest of her life but CAMBIAN are quite happy to plod on and ply the drugs and I have had to send the book by Dr Walsh to Cambian for Dr ……………………….to study so that my daughter can have the right kind of care.
It is not just me but I am in touch with many mothers who want the same – the best care available and that is holistic – something that is not even thought of in the UK. I would pay to send my daughter to Finland if only I could to get her the decent care on offer where there is 85% success rate and it is not just holistic but open dialogue something that is unheard of in the UK.
It is about time there was change so that this abuse does not carry on any longer. I cannot wait until Dr Walsh comes next to the UK in June for the forthcoming Chy Sawel conference and Dr Walsh is appealing for 12 doctors to work alongside him and I and other mothers and patients would like to see this happen more than ever.