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Monthly Archives: February 2013

My daughter is diagnosed as being “treatment resistant”.  Miles away from home she is now in a private sector run hospital which she describes as like a “four star hotel” –  this for one shows that there needs to be improvements on the normal acute wards and I think they should only be used short term in any case.

However, what is so cruel is the control and manipulation of patients who are drugged up on high dosages of dangeorus drugs and I am so upset – why is my daughter being given such drugs when she is “treatment resistant” – at 800mg a day that to me is high but I know from some mothers that is low compared to what their sons are on – one told me 1300mg a day and some have been experimented on under the Bethlem with dangerous chemicals – all of this experimentation is going on for nothing when I have seen an advertisement that pays thousands of pounds for people to go and volunteer.  This is different.  If people are willing to do that all well and good but it is very wrong to use the likes of my daughter and drug them to the point they do not even know what they are taking.  To ignore a pre-signed Advanced Statement in itself is deceitful but it seems this deceit is widespread because it is as though not many people challenge matters.  The patients are not in a position to challenge – they are too drugged up.  Most carers and mothers are too afraid. 

Mr Hunt wants to encourage whistleblowers – well the whole system needs changing and he needs to visit Tornio in Finland in my opinion.  Why not give Open Dialogue and Holistic Care a change – at least lets try this on a trial basis.  Why not get the experts together who want to see change like Dr Ann Blake Tracy, Dr William Walsh and Professor David Healy.  There are others too – too many to mention but it would seem that many just allow themselves to be dragged along in an evil inhumane system of care without any thought.

If I did not work full time, if I had all day to think about this, it would have the effect of making me ill too.  However I am able to focus on what is happening and switch off where necessary. 

I am now waiting to see if I can actually spend some time with my daughter that has been deprived so long.  I have been told by Cambian all sanctions have been lifted and this is because they have nothing on me to indicatea reason why.  I think it was pure dislike by one member of the team who is in power and who could influence the rest to follow.  I have seen the reactions of some of the staff – they are not all bad –  they  have to go along with the orders of those in senior authority or else they could lose their jobs.  Some have not been able to look me in the face properly and you can tell they feel awkward about what they are having to do.  

Mr Hunt wants to encourage whistleblowers but I think he needs to look at Finland and take their example.  He is wasting his time there – I personally think it is extremely brave of anyone to stand up to injustice –    Mr Hunt needs to look at a law that does not protect the most weakest and vulnerable people and also at complaints procedures that have done NOTHING in my case at all.

  

I was not happy with the response from Mr Clegg or Mr Cameron.   As for Mr Hunt, he has not even had the decency to reply.  I have been writing to him via Twitter and intend to go down on a day off from work to deliver a copy of the wonderful book by Dr William Walsh called Nutrient Power.

Anyway here is yet another standard letter to add to my collection:

“I am writing on behalf of the Deputy Prime Minister to thank you for your letter of 20 January, in which you request a meeting with him.

I am sorry that due to the pressures on Mr Clegg’s schedule it is not possible to arrange a meeting at this time.

I hope that you will appreciate that the Home Office is the best placed to respond to the matters you raise.  I have been asked to forward your letter to them so that they may reply to you directly.

Thank you once again for writing.”

 

I have called many times to try and get to see someone higher than my local MP who told me he could not help.  When your local MP cannot help you it is disgusting in my opinion that noone can help and I have taken time off on holiday to go down there to discuss the important issues of my daughter’s care that affects so many.  However it would appear that noone could care less and as soon as mental health is mentioned these politicians hide and do not want to know.  There is so much money being wasted and especially under the mental health and there should be protection to people like my daughter who has a new diagnosis “chronic treatment resistant”.  This is rubbish!  – I do not believe anyone is treatment resistant and there are no centres where my daughter can go in and be reduced off these rubbish chemicals that do not work. 

I have spoken to the new psychiatrist at Cambian and expressed my concerns over the large dosage and the fact my daughter has told me that the team are being quite pushy in getting her to do things.  Yes it is important that someone can do things before they are released from hospital and placed in the community however I do not think it is the right way to go about things.  This kind of pushiness did not work in the scheme –  when someone is on a huge dosage of drugs how on earth do they know how that person must be feeling.  When I have telephoned at the weekend Elizabeth was in bed in the afternoon.  Some people might say that is lazy – however I see things very differently and have listened to what other patients have to say – patients who have been on these shocking mind altering drugs.  They have a sedatory effect and leave that person incapable of doing much at all.   It is a nightmare to see Elizabeth like this – at one time I tried so hard to take her away from what I could see a detrimental environment.    Twice I tried to intervene – I got her a job whilst she was a patient on the ward – a job that involved her going to the day centre where my elderly father was taken as Elizabeth liked to care for other weaker people.  I tried to get her a job working with animals which was therapeutic – I also took her to college, took her to running clubs and special Olympics which benefitted me too as I had decided I wanted a new career in the Police force.  I was very impressed with the training on offer at the disabled running club and used to take a few others and I was also impressed with the scheme and staff involved.  If only Elizabeth was sent there instead of the other scheme – this was for mentally handicapped and I felt that this would have been much safer as well as nearer to home and noone listened.   Elizabeth used to stay at weekends and during the week was on the ward – that was some time ago now but the more drugs that got pushed on Elizabeth the more she deteriorated.  Not one drug has worked and then more and more diagnoses were given and when I asked for proof of these diagnoses I got nothing.   I am all the more puzzled when you read articles like this one:

 http://goforthegold.psychiatrictimes.com     This just sums up the care – I have seen one diagnosis after another given – this is ridiculous however there are so many diagnoses to choose from in the DSM.  It is very profitable to come up with a diagnosis and put someone like my daughter on mind altering LSD like drugs you cannot just come off.  I want to know from Mr Cameron, Mr Clegg and Mr Hunt why there is no centres set up where someone can be reduced safely off prescribed drugs if they are experiencing terrible side effects or are treatment resistant.  What is the point in pushing drug after drug at someone.  I am all the more furious with these politicians for allowing the experimentation at the Bethlem to go on whilst they rake in money from the drugs manufacturing companies and use vulnerable patients as human guinea pigs.  Where is the law to protect my daughter.  I as a mother want some answers and I am in touch with many others who want answers too.  When I asked for appointments to see Mr Clegg to discuss the shocking care in place, I would have brought along many other mothers.  It is not just me.   

I now more then ever want Chy Sawel set up, Soteria, Root and Branch.  At least in the States there are several alternative care centres.   I would also be prepared to take my daughter to Finland for decent care and as everything has failed and my daughter is treatment resistant I believe that The Government should do something and stop the pushing of these drugs and offer holistic care centres as choice to everyone if they so wish.  By pushing these drugs, this will put a burden on the NHS further as not only do they cause obesity, diabetes and body organ failure –  this so called care will cost even more and put more strain on the NHS if something is not done and what a waste of taxpayers money.   All three of them should be accountable and I would personally like to face them and question what are they going to do about this terrible situation that affects so many.   If they do nothing then they do not deserve to be in power.   

After a spell of silence I have been bombarded with letters from Cambian – copies have been sent by email to both work email address and home plus a hard copy in  the post.

So, the latest is the “ban and sanctions” imposed against me have miraculously been lifted.  Could that be because I was well and truly willing to take Cambian to court?   It is horrible to have to think along these lines when all you want is fairness and communication, not exclusion to the point you are told absolutely nothing and that is not what Elizabeth wants.  It is what the team want as they would appear to be afraid of something.    If things were more open and if only things in the UK were like in Tornio, Finland I would not have one complaint to make and neither would all the other mothers I am in touch with who are likewise being treated just the same as me because they have dared to question and speak out.  

It is not my imagination what has been going on – the whole experience has been nothing but a nightmare and I gain little comfort from knowing that I am not alone here and this kind of abuse is widespread.

It would seem that a team can do whatever they like and get away with it.  When you are dealing with people who are mentally ill who on earth could doubt a team of professionals.  Then again if you are a mother of someone stuck under such a cruel and abusive system and dare to speak out this is how you get treated.  All the time the team have been communicating with the rest of the family – dont forget that to begin with I was not complaining at all about this hospital and was in favour and praising them –  however I am deeply suspicious what if any are their links to the Maudsley?

There is no decent complaints procedure and this is why so called professionals can get away with so much.   It would appear the staff all stick together and the one decent and good member of staff disappeared at the Bethlem Hospital and that was the social worker.  For once I came across a social worker I could only describe as excellent.   Suddenly he disappeared, supposedly off sick.   I have hardly had any contact with social workers apart from when they have tried to take me to court to get rid of me as Nearest Relative.   

So, the letter I have states that such sanction as was imposed upon me for which I have proof in writing, has been lifted and that I had been told this on more than one occasion (THAT IS ABSOLUTELY NOT TRUE!)   I keep thorough records of everything and the first I heard was when I telephoned Cambian and spoke to the Consultant Psychiatrist and received nothing in writing prior to this.  I am not a mind reader but what was obvious was that my daughter throughout this ban on their part had been texting me constantly.  It is obvious the team of Cambian played a part in discouraging her from contact – Here is the evidence:

Father invited to 1st Tribunal – solicitors kept in the lurch and then displaced.

Manager’s meeting –  arranged day off – they then came up with another date and I had to fit in at short notice then at the  last minute they refused the files to my solicitors.

The doctors do not like to mention anything other than the 300mg of Clozapine.  FACT IS THEY ARE GIVING ON TOP 500mg OFF LABEL OF METFORMINE –  I queried the reason for this and they say it is for weight loss.  On one occasion I found out that a nurse had given something else on top to calm my daughter down.    WHAT ARE THEY DOING!  WHY IS IT ALLOWED TO GIVE A DRUG THAT HAS NOT BEEN TESTED OR APPROVED FOR THE PURPOSE OF WHICH IT IS BEING GIVEN?   I shall be putting that question to Mr Hunt on Twitter!

The Tribunal was not a success and my daughter totally confused and felt she had to go along with the team who SUGGESTED IT WAS BETTER FOR HER TO HAVE A WELSH FIRM!  This is meddling in the legal process in my opinion and then on top of this I found out that ENFIELD MENTAL HEALTH were trying once again (2nd time) to replace me as Nearest Relative. 

Now it is my turn to have the Tribunal and you can have an independent doctor at this Tribunal.  I have appointed one but so far my daughter has failed to give her new Welsh solicitors recommended by Cambian clear instructions yet she has given both verbal and written instructions to the rest of the family.  Now the Tribunal is up in the air.  Apparently this is a common problem and I am not alone here –  I know of others who are having their Tribunals meddled with and delayed.

How can the law protect people like my daughter under a system where abuse is rife.

I have had many letters from other mothers and patients but to some it up in words I would agree with one other mother THIS SICK PERVERSE SYSTEM OF CONTROLLING OUR SICK CHILDREN SHOULD CEASE.   I met with a mother today who is very unhappy and there seems to be more and more who have become so unhappy to the point they are willing to be outspoken and stand up for the rights of their sons/daughters.

I am going to ask for some home leave today for Elizabeth and now that the sanctions have been lifted there should be no excuse for Cambian to say no – my daughter was fine when she came down with 2 escorts.  The escorts did not leave her side and stayed from start to finish of the party I arranged, that of course did not apply to the rest of the family who were left alone.  Apparently according to the Consultant Psychiatrist these escorts ( who by the way I have nothing against) gave a good report back to the Consultant Psychiatrist about the home, family friends etc.  I believe such orders must be coming from top level management rather than just the nursing staff – like at the Bethlem they are just following orders.

Cambian is causing a divide in the family ———–this does more harm than good to someone ill like my daughter and is of no benefit to her but I believe that no matter how much a team tries to hide things – THE TRUTH ALWAYS COMES OUT IN THE END THANK GOD.    I just wish there was more openness and honesty under the mental health and that whether a team like you or not they give you the benefit of the doubt.  I had nothing against someone coming to look at my home etc but now this  has been seen and in light of a divide in which I as Nearest Relative have been treated as opposed to rest of family, I believe changes need to be made.

 

Yesterday I received a letter from the Consultant Psychiatrist at Cambian to say the supervised phone calls were being stopped and so are the escorted leave restrictions.  Suddenly Cambian no longer wish to impose all these sanctions against me – I wonder why.  Is this because I requested all the file under Data Protection with my name on it?  or could it be because I am willing to take matters to court?  – the other thing is it could also be the fact that I am happy to publicise matters. 

What has been going on highlights the need for change in the current care system in my opinion.  The secrecy, exclusion and controls breach human rights.

Anyway, the consultant psychiatrist is allowing the assessment by Dr Walsh and I have today contacted Dr Walsh.  I then spoke to my daughter over the telephone.

My daughter only appears to know the christian name of her solicitor, not the name of the firm.  This firm replaced one she had previously and was recommended by the team of Cambian.  They were the ones who persuaded my daughter to change her solicitors stating it was best since she was in Wales and this is what  my daughter told me.  However the local firm of solicitors were pushed out by the team yet were prepared to represent my daughter in Wales.  This is all wrong –  no hospital should recommend either solicitors or have close associations with advocates.  I could see what was going on at the Maudsley with Rethink who were far from independent and completely manipulated by the consultant psychiatrist. 

My daughter sounded calm over the phone.  It was quite early yet she was going to bed – sometimes she is in bed during the day –  it seems like the quantity of these drugs have the effect of making her tired and certainly confused that is for sure.   When asked if she  had a telephone number for her solicitors she said it was in the office so she believed.   Tonight she told me she was completely confused by what her solicitor was trying to say and could not explain it properly to me.  What I am concerned about is that my daughter should have a completely independent person go and visit –  no advocates that receive Government funding should be trusted in my opinion.  I would rather someone from a local church go and visit her because it is important that Elizabeth understands as this will delay the Tribunal and then Cambian will start to use this situation to try and justify the fact that my daughter needs more time to decide when all along she is so mixed up and confused.    They probably gave up with the ban as Elizabeth was constantly texting me and if I was to show the phone full of text messages it would look ridiculous in court.

I have been told I can visit, she is allowed home visits and I have wasted no time in contacting Dr Walsh. 

Dr Walsh will be attending the next Chy Sawel Conference.  This is the kind of care I would like to see up and running – holistic care and humane care unlike what is currently in place throughout the UK. 

I cannot wait to see my daughter and hope to come down in March but am trying to get other family members to be available at the same time and then perhaps I can take Elizabeth out as I wanted to take her on a nice train ride last time and this was refused.  I also got refused permission to have her at the hotel where I stayed for a nice meal.   How often do I come and visit and I have not been treated the same as the rest of the family which is all wrong.   None of this kind of behaviour on the part of the team is of any benefit to Elizabeth and could affect her wellbeing.

There is nothing more upsetting than seeing the person you care about being admitted time and time again and not getting any better but this is understandable if you ever take a look at the acute wards and awful atmosphere and lack of things to do – nothing at weekends and there is just so much missing.  Animals are more therapeutic and I read a former patient’s comments about the Bethlem and how that person looked forward to when dogs were included in therapy.  Apparently that was the only good thing on offer.

I started to research the internet in search of something better and found several places in America such as Alternative to Meds and Earth House – there is nothing decent over here at all that compares to this or what is available in Tornio, Finland where I would personally like to take my daughter but then suddenly, I came across Star Wards and Cambian and was filled with hope.   On their website http://www.cambiangroup.com/mental_health_rehabilitation – an article dated 15th February 2011 there is a glowing report.   I then started to beg for my daughter to go somewhere I saw as wonderful but got nowhere by the team at Enfield who stipulated it was down to money yet I pointed out that with all the admissions they may save money if they sent Elizabeth there and perhaps she needed to get away from the local area.  Still they refused.

So, Star Wards is a project which works with mental health services and Trusts to enhance mental health inpatients’ daily experiences and treatment outcomes.  This certainly is a glowing report with the words excellence, therapeutic, stimulating and enjoyable mentioned. 

“It’s had a far-reaching effect on staff and patients alike”    –  You can say that again – I am experiencing such far-reaching effects right now!    They also praise themselves for “we are not just interested in patients’ health problems.  We care about all their daily experiences and want to make their time with us as enjoyable and as valuable as possible.”    The idea was devised by a former mental health service user who I will decline in  mentioning her name but certainly this was what attracted me more than anything else as I truly believe that the involvement of other former patients could be most beneficial , those who have recovered.

I was also excited to read that Cambian have the following exciting things going on:

Buddy systems, guitar lessons, dog walking, clients’ participation in interviews for new staff, visits to the local golf range, pets to care for, from red tailed kites to tortoises, incentive schemes to encourage participation, greem gym, where exercise is mixed with conseration activities, TIPIY – (taking pride and interest in yourself), Exercise plans developed for when clients leave the unit, hairdressing salons, unit holidays, multi-faith rooms, clients show visitors round, community meetings for exchange of ideas.

Apparently EVERY established Cambian Hospital has receied a Full Monty Award.

Apparently Cambian have won Specialist Care Provider of the Year (2012) selected by a panel of 18 distinguished judges from across the Health & Investment sector.

The judges commented the Cambian entry demonstrated:

Consistent development of innovative services and excellent performance, high quality bespoke rehab serices, good outcomes, remarkable business growth amongst other things and Roger Black MBE hosted the Awards and Jeremy Wiles, Group Buisness Development Director collected the award on behalf of Cambian Group.  

Well you can see from all of this above why I so wanted my daughter to go somewhere where I felt she would get better unlike the local acute wards.   Now, however I am seeing the reality of what is really going on behalf closed doors and how you get treated if you dare to speak the truth.  I families were included and personal views based on previous reports not taken into account in a biased manner then that would be good.  There was no dispute between myself and Cambian in the first instance but it would seem that they are the ones who have a grudge against me as a mother and are not treating me the same as the rest of the family.   This argues the case for openness and honesty within teams and inclusion of family/carers as well as proper communication.    Cambian have failed to communicate with me and have excluded me now on more than one occasion.

The recent visit by Elizabeth to see the rest of the family was arranged several weeks ago.  I found out about this the day before when I spoke to Elizabeth before her Birthday.

The comments above were said not to Elizabeth but her sister and I think it is all wrong what is going on and Cambian, far from creating a good basis for Elizabeth to get well are causing a divide in the family.   Yes, I have recently become outspoken against Cambian but to begin with my outspokenness was aimed at the Bethlem as I had come to visit and seen my daughter’s face absolutely covered in bruises and there may have been an innocent explanation for this.  I had two conflicting reports on how this happened from Elizabeth herself and that makes the whole incident highly suspicious and then to be told by the Lead Nurse “I am happy with that” – then the Ward Manager contacted me with regards my complaint and asked me when the bruising occurred as she had not witnessed any of this bruising.  So, as you can see I had things to complain about with the previous hospital and was delighted Elizabeth had been transferred away from there even though it was a long distance away in Wales.   As a mother all I wanted was for her to live a safe and happy independent life although I now question whether she can ever be independent again.   There has been so much experimentation on Elizabeth now with around 14 drugs and now she is on quite a high dosage but that is nothing compared to what some of the mothers tell me.  Another mother in a similar position says her son is on 1300mg of drugs – another mother also reports extremely high levels of drugs being given to her son.   These mothers are just a couple out of several I am in touch with and how many are stuck in a totally inhumane system on never ending treatment orders even though they are of no risk to the public.  How much is all this costing the public when the NHS is suffering with cut-backs and closures of A&E and downgrading of hospitals.  Surely, if a certain area of care is not working (bearing in mind the expense of keeping such people forever in hospital where they will never get better) something should be done about it.  This inhumane care is shocking and costing an absolute fortune together with the pushing of such drugs which must cost a fortune.  If a patient complains of terrible side effects they are just ignored.  A patient is left to languish on a ward and left to go downhill because noone could care less.  

There is a lot of secrecy behind closed doors under mental health care especially at an establishment like the Maudsley which not only I but others have exposed as a Research Hospital that do enforced drugging.  

The problem is that the Consultant Psychiatrist at Cambian sounded very pro the Maudsley and described it as being a worldwide renowned leading hospital.  I felt quite a bit of hostility towards me by this psychiatrist –  this psychiatrist I felt did not like me from the beginning and when I asked for leave just to take Elizabeth out on a visit – this was denied.  The Tribunal date for Elizabeth was kept secret even from her solicitors who I later found out had been replaced by a Welsh firm.  Apparently Elizabeth was told it would be best for her to have a Welsh Firm now she is in Wales.  The Tribunal of course failed and I as Nearest Relative have been totally excluded by the team at Cambian Healthcare.  Aparently her father was invited to the Tribunal and someone from Enfield Mental Health was there too but I was not invited to this.   The Hospital Meeting is something that I should have been included for as Nearest Relative but then I got to find out that Enfield Mental Health were yet again trying to replace me as Nearest Relative and my daughter was being discouraged from contact with me.  That was obvious – once when I phoned I could tell that the conversation was awkward and she said she was on 15 minute watch (which the team deny).  I was suspicious bearing in mind the phone forever seemed to be charging in the office and asked her if someone was telling her not to have contact with me.  To this she replied yes but when I asked whom by she said she could not say.  It was as though people were listening in to the conversation – how terrible this all is!

There have have been other instances which I cannot say in this blog at the moment that lead me to believe that is something very bad going on at Cambian Healthcare and the law is failing my daughter.  All I want to see is fairness and regard for human rights.  I see only too well that psychiatry is a very powerful profession and one where psychiatrists can use the law to suit themselves.  It is no wonder I have seen so many smiling at meetings – they are above the law that is for sure and they can also say that a patient has full mental capacity when it suits them, when that is not the case.   For instance I believe they are stalling the Tribunal by trying to make out Elizabeth wants more time to think before seeing the independent doctor.   As for the Advocates – they are supposed to be independent but it is laughable they are controlled by the team – – everyone is controlled and the advocates do not have a say in the Tribunal in any case.

I have been writing to Mr Hunt direct requesting him to look into matters, not just for my daughter but for so many trapped in such a never-ending prison sentence of forced drugging. 

All I want is a proper assessment and the new consultant psychiatrist promised that as long as I pay for it.  With a proper assessment done by Dr Walsh who has done extensive research and has a book called Nutrient Power detailing this, I would be prepared to go along with any recommended treatment.  Not one of these doctors truly cares about my daughter – drugging patients up to their necks on harmful chemicals is not the answer – this leads to long term health problems and a further strain to the NHS.  

Why can’t the Government just get involved and invite Dr Tracy, Dr Walsh, Professor Healy to ge together to set up alternative care centres in rural areas for the patients where the care currently on offer has dismally failed.   Many of these patients can barely walk, can barely function, have become a shadow of their former self.  The drugs are a waste of money if they do not work and that, according to Dr Walsh is dependant on what bio type they are.  This care works as I have spoken to some mothers who have seen such benefits for their sons/daughters.  For those who are OK on the drugs and wish to continue then that choice is fine.  What I am saying is at the moment there is no choice and the care should be based on an individual basis as everyone is different.  Some patients may have underlying health problems and will never get better and show no improvement on the drugs – it is these patients I am talking about that should be considered for the alternative care centres giving holistic care and for those who are experiencing the most shocking side effects on the drugs and are forced to carry on taking them.

I am currently waiting for a letter from Cambian who have verbally told me the supervised phone calls and escorted leave no longer apply.  Perhaps they gave up!  All along Elizabeth has been in contact with me by text messages which I can prove – I have deliberately not been in contact so that Cambian cannot accuse me of going against their rules.       “You are still my Mum – I will call the police on them”  –  however from what I read, the Police already have to do more than their share because of incompetence by Crisis Teams who fail to get involved when it comes to visiting a patient in distress living in the community -I think they just stay away and leave it for the Police to bring someone in either voluntarily or on a section back to hospital and to think the police record hospital as being a safe place well I can vouch for the fact it is not.     

I believe that the NHS would save a lot for essential services such as A&E if the failing mental health section was completely overhauled and a look at what Chy Sawel, Soteria and Root & Branch Projects have to offer could stop long term and persistent non-recovery of patients  – I witnessed the same patients returning to the acute wards time and time again and this is where it is a waste of public money and  as for care in the community – well that is also failing in many cases and the reason because patients become isolated in the community or simply cannot cope due to long stays in hospital and high levels of drugs making them unable to function.  There is also lack of communication between teams too. 

Today is my daughter’s 26th Birthday and I will not be seeing her.   Apparently, unknown to me, it had been arranged by the team weeks ago that she could visit the rest of the family (I am yet again excluded yet again).   I sent her a parcel which she received yesterday and I spoke to her yesterday several times yesterday – she contacted me.

Elizabeth is on an enforced Treatment Order at Cambian Healthcare and has been moved miles away from home and I wish for a full enquiry into what is going on not just for my sake but for many other patients and carers who are experiencing such control and manipulation of the legal system.  I am bitter that she is even on such a Treatment Order after the Bethlem caused psychosis in her by taking her off 150 mg Seroquel – how very cruel to do this and I am extremely bitter towards this hospital and that Professor Murray offered a drug free period of assessment in writing and this was not carried out.

Elizabeth has been deprived of contact from me by Cambian – at first the phone was charging in the office for what seemed weeks on end and when I complained I received a letter  that I am allocated 1 slot a week to phone at 6pm on Mondays (supervised only) and also escorted leave at my daughter’s wishes.   A PACK OF ABSOLUTE LIES!   I am well and truly prepared to prove all of this in a court of law.

I do not think I have been treated nicely at all by the team at Cambian.  This private hospital won Best Care Provider 2012 and I was relieved when Elizabeth was sent there as the NHS has failed my daughter completely – their care for mental health patients is primarily drug pushing and this is continuing at Cambian who have done nothing to change the shocking prescription of 300mg Clozapine and 500mg Metformine supposedly being given for weight loss – how on earth can it be possible that drugs are allowed to be given this way when they are not approved!  Where is the law to protect patients like my daughter. 

The Tribunals have been manipulated by the team, not just at Cambian but at the Maudsley – her London solicitors replaced and Elizabeth was told it was best she had a Welsh Firm.  Drugged up to her neck on sedatory “medication”  Elizabeth has complained of feeling very confused and mixed and that she has felt under pressure by the team to do whatever they say.

I have seen the way the team control my daughter and how I have been excluded and denied contact against human rights.  The team have failed to communicate and try and work with me bearing in mind I was overjoyed she was sent to Cambian and felt she needed to make a fresh start in life – the area for one as London is not a good area to be in when someone is suffering from anxiety, severe stress – mostly caused by the drugs as before going on all of these Elizabeth was a calm person and placid.

Anyway, the problem is the Elizabeth is not of any risk to the public but she cannot look after herself and I cannot see the benefit of this hospital holding her for months/years on end making her even more dependent on staff but then this is what provides them with work and money. If they are not prepared to allow her to have the proper assessment by Dr Walsh and holistic care then I do not want her any longer at this hospital.   Holding on to a patient, trying to make out they are not well enough to even visit or stay for 1 night with the family is nonsense.  They are worried that the patient may not wish to return and on returning they may be faced with problems as that person is homesick.  It could also be that they do not wish for anything to be revealed and that is why I think they do not allow Elizabeth to be in my company for any length of time unescorted as constantly staff are expected to listen and report back to senior  management as they did at Xmas.

If someone is too ill to be allowed time to spend at Xmas with family it hardly makes sense to me to bring that person down for a couple of hours and drag them all the way back again, this seems cruel to me if anything.

So, the first Tribunal (my daughter’s) was a failure,  the hospital manager’s meeting was called off because the team refused my solicitors the file and now this ……………………my Tribunal as Nearest Relative is being delayed.  Elizabeth has told family members she is happy to see the independent doctor and I want this to go ahead.  I would have no objection to Elizabeth staying at Cambian as a voluntary patient but this is not what the team want.  They want her on a section so they have absolute control over her and power.  This means that Elizabeth is being denied under the new law in Wales a reduction in drugs and more therapeutic/holistic care and now the consultant psychiatrist seems to be trying to delay an assessment by Dr Walsh by saying “she needs more time to think about this”    All this is absolute nonsense.  Elizabeth wants the assessment – this should be given to ALL the patients because the drugs being pushed day in day out will affect their long term health –  it is alright for them to experiment on dangerous drugs (some not even approved for the purpose – as in the case of Metformine) so what harm could it be to give a proper assessment through Dr Walsh and he did say as long as I pay for this it would be allowed.    Not only that, I think they are trying to delay the Tribunal as well – talk about manipulation!   By saying a patient is refusing to see a doctor they get away with this and that is why there are so many patients being kept at huge huge expense in establishments all over the country on enforced treatment orders – the taxpayer is paying for this and they are persuaded by one sided reports in the press. The press are not printing the truth that so many of these patients are of NO DANGER to the public and are being held against their wishes and forced to take drugs without any choice available.  Absolute abuse is going on and noone is doing anything about it.   However I know of so many people upset by the whole care system and they want change.  I see that change in the form of groups like Chy Sawel and Root and Branch – why not allow such groups to give care to people like my daughter – anything is better than an acute ward which for some patients is simply not working and that also goes for the drugs and there needs to be a proper look at the research of Dr William Walsh in my opinion.   The consultant psychiatrist has returned the book of Dr Walsh and forms which I have already sent off.  I intend to personally deliver this book to 10 Downing Street.

Whilst I am pleased Elizabeth is not in hospital for her Birthday I am also sad – it is the first birthday I have not seen my daughter and the last comment that Elizabeth made to me was when I asked if she was happy “I feel up and down, Mum – I do not feel happy”.     How can anyone feel happy when a team involves themselves to such an extent like this, causing a divide in the whole family. This is detrimental to Elizabeth being pushed and pulled about by all the teams involved.   For anyone who feels that my outspokenness has had a part to play in all of this – I would dispute this as from the beginning I was full of praise thinking Cambion offered the most unique care involving patients –  I am now seeing the true reality unfortunately and feel even more strongly that change is needed in the whole care system under mental health such as in Finland with the Open Dialogue Approach. 

When care was failing my daughter at local level I researched the internet for decent care and found there was virtually nothing in the UK.  Centres like Earth House and Alternative to Meds amongst others were all in the States and then I tried to get my daughter sent to Finland where she spent happy times over several months on a working holiday and where I had read about unique care in Tornio.   This was before she was used as a human guinea pig and labelled with several diagnoses and she had a bright future to look forward to. Still to this day, Elizabeth talks of Finland and her wish to return and I would like to take her where they have the best care in the world to a place called Tornio.  The care is humane which is unique as everywhere else in the world care is all about control and manipulation and patients are not listened to – they are not treated in a decent manner and I know all about this as I am in touch with so many ex patients.  I also see so many mothers just like me who are in despair at the whole system which is failing so many.

Anyway, I was so happy when my daughter got moved to Cambian as I had read good reports although the move was done in a shocking way.  I received a call from her social worker and within a day she was moved, leaving no time for family to visit or say goodbye but I was already banned as I myself was labelled by the team as being aggressive and threatening.  In actual fact I would state it was the other way round judging by the way I was treated by the staff.  I have already referred to staff threatening me with arrest on several occasions, treating me like a criminal and acting as though they were above the law, all sticking together to cover one another’s back so it would seem judging by the letters I received.  I have never seen so many people copied in one letter before.  When threatened with arrest I got so fed up with this that I decided to apply to Kent Police and then members of a group of ex patients speaking out about their shocking care got in touch with me and one recognised the hospital and ward where he/she spent the most horrific time of life and has since compiled data based on research on all the experimentation going on under the Bethlem Royal Hospital.  The patients arranged a demonstration on behalf of my daughter and I think it was a combination of my application and this that led to a hasty and sudden move to an area far away from home and family.

On arrival, Elizabeth telephoned me to say how happy she was.   She said it was beautiful, peaceful and it was like a four star hotel and the food was nice unlike the shocking food dished up under NHS hospitals.   As Elizabeth was happy so was I and then I read something about a new law in Wales for holistic care, giving choice to patients and I was esctatic.  I though thank goodness she was no longer at that prison camp and at Cambian where they took on board patient’s comments – or so I thought and took on their ideas.  These are patients who have been on acute wards and know what they are talking about.  I also thought they had patient involvement but was wrong there!   They have pets, no doubt some of the staff have been very nice to my daughter but what is going on there leaves a lot to be desired.

I work full time and so there is not a chance to phone every minute and was not on the phone every minute but at weekends I would speak to my daughter and there were times when she was happy/not happy.  I began to notice conversation appeared a bit awkward unlike before and I had already complained about the phone being left in the office weeks on end charging and noone could get through.  I commented one day about whether someone was there listening and whether she was being discouraged from contact – on one occasion she said she was on 15 minutes watch which the manager strongly denied and on this occasion when questioned she said “yes” but I cannot say by whom.    I had already had a conversation with the consultant psychiatrist and it was clear that she was cool and quite abrupt towards me.  I wanted to know whether I could take my daughter out for a meal and she would not give a decision on this and this was left up to the manager.  This is when she commented on my past behaviour because we had also discussed the “medication”.  Elizabeth had consented to me knowing what drugs they had given her at the Bethlem ie 500mg Metformine and 300mg Clozapine.  I found out because an emergency doctor had to be called out to her after we had gone running together in the grounds outside the Bethlem.  I had no idea they had put her on this drug at the time and she was so drugged up she did not know herself.   When I insisted staff tell her they turned to her and said “do you want your mother to know”  – to this she said “yes” and they had no choice but to tell me in front of her and then I got ordered off the ward and after that I got a letter saying that I was not welcome to come on the ward any more and that I could only see my daughter off the ward at a time when escorts could be arranged.   So I discussed the medication with the new psychiatrist at Cambian and she was sounding agitated about this especially when I questioned by Metformine was being given off label for weight loss and whether she had diabetes.  It was then she referred to “she had heard about my past behaviour”.  The conversation was cut short and that was that.    I got to find out that the Tribunal was set for my daughter on a particular date and then I got to find out that her father had been invited to this Tribunal and not me and I am the Nearest Relative.  When I questioned about the Tribunal the staff made out they did not know anything about it but then a certain member of staff telephoned her father to invite him and that put the team on the spot but still they were trying to make out they did not know.  How on earth can a Manager not know what is going on especially with something as important as a Tribunal.     

That was not the only thing –  The Tribunal failed and I got to hear my daughter in a confused state saying she did not know why she had all these letters from Welsh Solicitors.  It was then I realised that Cambian had intervened in this.   Previously Elizabeth had given consent for me to know some details about her care – all I was interested in was the so called “medication” – nothing else.  Suddenly, the team were saying as in the Bethlem despite several forms of consent that my daughter objected to me knowing anything about her care and that she wanted matters kept confidential from me and this is very much contradictory as I believe this was the team who did not want me to see the files and were absolutely desperate that I knew nothing about what was in these files.   So I then found out that a member of staff had advised my daughter that  now she is in Wales it would be better for her to have a Welsh Firm.   Her solicitors were excluded and so was I from the Tribunal and from representing her fairly in accordance with her wishes.  Surrounded by members of team who no doubt put pressure on her during times when she was weak and vulnerable on a drug that is so sedatory that it takes away all your thinking capacity, she was like putty in their hands.

So, then I appointed solicitors and I got to find out that Enfield Mental Health were trying to replace me as the Nearest Relative.  She had a new social worker – did not even know her name but got to find out and this social worker tried to make out she did not know anything yet I know for a fact there was someone there at the failed Tribunal from ENFIELD MENTAL HEALTH.  Here is another example of the team sticking together.

 

As I am Nearest Relative I am then entitled to challenge the Tribunal and in accordance with my daughter’s visits I have attempted to do this.  A Manager’s Hearing was called not that long ago.  I had already told Cambian of a date I could get time off for this and they arranged it on another date and I had to go out of my way to change things and alter my day off from work which I succeeded. It looked like they did not want me there at the Manager’s Hearing as then they did not cooperate with my solicitors.  I fitted in with their changed date and my solicitors were going down for this occasion but then at the last minute they were refused .  WHAT KIND OF TEAM DOES THIS SORT OF THING.  THIS LOOKS VERY  UNDERHAND TO ME.  They are supposed to divulge information to my solicitors but flatly refused and this led to my solicitors having to cancel the Manager’s Hearing and since before Xmas I have been waiting for the date of the Tribunal.  It would seem to me that Cambian are trying to delay matters all the time and sabotage everything.

THE MOST SHOCKING THIS IS THAT  I HAVE JUST FOUND OUT THAT CAMBIAN HAVE EXTENDED THE SECTION BY 6 MONTHS and I intend to tell my solicitors next week.  The reason I think they are trying to delay matters is because their appointed/recommended solicitors who they put forward for my daughter have told my solicitors that my daughter is not ready yet to see the independent doctor who wanted to visit her prior to the Tribunal. The appointment of these solicitors leaves a lot to be questioned – Elizabeth was told it would be better for her to have a Welsh firm and she told me she felt she had to go along with their suggestion.  She has made comments that “it is very strict here, Mum” –  it is easy for a team to put pressure on someone and this is what isgoing on behind closed doors to many who have their Tribunals delayed.  Recently a landmark case has been won by Kaim Todner so I believe.      I have questioned before the fairness of solicitors that are recommended by hospitals and this sort of thing should never be allowed to go on.  A solicitor is supposed to be totally independent but judging by what I saw at the Bethlem and how the tribunal was called off by a solicitor laughing and joking constantly with the team I wonder!  Also the advocates that get funding who are linked to the hospital are also manipulated as in the case of Rethink attached to the Bethlem so I saw at first hand and witnessed another people I know.

It is very serious that Cambian appear to be doing all they can to delay/postpone the Tribunal and this cannot go ahead unless there is an independent doctor appointed through my solicitors and I have one ready to speak to my daughter who has agreed in writing and this has been witnessed. However CAmbian are saying the opposite that she is not ready to see this doctor and they are trying every trick in the book by the looks of it.

In light of all this, I have asked for the file under Data Protection as there must be mention of me and my “behaviour” and reasons as to why the team have treated  me so differently from the rest of the family.   At Xmas she was allowed time alone with the rest of the family.  At Xmas she was brought down for a very short time all the way from Wales and staff stayed from start to finish. They came to my home and reported back that everything was OK – aparently they gave a good report back to the consultant psychiatrist that it was not an awful home – (which is something they probably thought bearing in mind the shocking things that had been said about me behind mind back in previous files).  

I telephoned Cambian on Friday and asked to speak to Dr ……………………  I was asking about the assessment which I want to go through with and Elizabeth has agreed which could lead to holistic care and a reduction in the drugs given as I dispute the diagnosis as a drug free period was not given.  It was Professor Murray who recommended a drug free period and Fitzmary II Ward of the Bethlem did not do things properly and this led to a drug induced psychosis and experimentation on several more drugs.  I am in touch with another mother who is likewise horrified and disgusted with the care at the Bethlem – the person she cares for is on an enormous dosage of drugs, is only young but can only sit in front of the TV and unable to barely move and my daughter suffers constant dizzy spells on the Clozapine and has had no end of side effects.  They ignored the fact there are heart problems in the family.  Cambian have continued to ply the drugs as prescribed by the Maudsley and have done nothing to change such a prescription, continuing to give a drug off label that has not been tested for its purpose of weight loss.  This is why I am keen to have a proper assessment and Dr Walsh is happy to carry this out and now it would seem that Cambian are trying to delay this in every way they can along with the Tribunal.

I have lost my patience and have telephoned Cambian to tell them what I think.  I had a text message saying “the team want ………………………………”  – so the team want personal information of my daughter from me yet they have been far from open and honest in their dealings towards me. Cambian denied I was still on such a ban and tried to play this down as regards the supervised phone calls and escorted leave.  I told them there was NO COMMUNICATION under Cambian and I had received no letter stating such a ban was lifted.  They now tell me a letter has been sent in the post.   This is very sudden after all these weeks of silence.  Maybe this is as a result of me saying to them that I am prepared to take things to the limits.  I am prepared to go to court and give publicity.

Meanwhile my daughter telephoned me saying she is upset about the section.  She is of no risk to anyone – there is no excuse for this at all.  She is prepared to remain voluntarily in hospital and what is wrong with this?  I told her that without the Tribunal nothing would be moving forward with regard to the section being removed and for that she would need the help of her solicitors.  She said, Mum who are my solicitors? and I do not have their telephone number – I think this is in the office.  I was astounded – my daughter does not appear to have the ability to appoint solicitors on her own accord whereas she did have ability to appoint the previous firm and I was not even around to influence her as I was banned at the time. It would appear the team helped get the Welsh solicitors in place for my daughter perhaps because they  knew the previous firm had been given consent by my daughter to divulge certain information to me.     This is how a team can manipulate a patient who is drugged up to their necks on 800mg of mind altering powerful LSD like drugs and then go on to say “she has capacity”!    Elizabeth then went on to tell me that the section had been extended to a further 6 months – she would be happy to remain there as a voluntary patient but of course being sectioned gives a team more power to control and push drug after drug after drug and how many cases are there of people who die under such rotten awful care which is the only “care” available at the moment in the UK.    Dr ………………… told me I had a right to contest matters but I told him that the delay of a Tribunal meant that this would not be going ahead and that I had plenty of evidence that my daughter had agreed to see the doctor in writing with witness.    When I told him I knew about the 6 months extended section he was a bit lost for words.

Well,  now I await the letter from Cambian and I have my solicitors lined up.  Unlike some people who are ashamed to discuss matters of mental health or admit to this being linked with their families I am proud of my daughter but ashamed of what is going on in the UK. I would be happy to go on TV and speak about the shocking care.    I wish to see humane care set up in the UK more than ever now in the form of Chy Sawel with doctors like Dr Walsh and Dr Ann Blake Tracy and also Professor David Healy and others involved who are looking for the underlying causes instead of just pushing drugs that are so dangerous yet are passed by the FDA in an unscrupulous manner and these drugs manufactures will resort to any underhand tactics to get their drugs passed as Dr Healy quite rightly says.   I am fed up with TV and the newspapers and media giving unfair representation towards mental health patients when they conveniently choose not to mention anything about the dangerous drugs which could affect each and every one of us yet are passed in the most shocking unscrupulous manner.  I have seen everything how these drugs have affected my daughters and my father to say that they should NEVER EVER HAVE BEEN PASSED.   There are always going to be some who say the drugs work for them but then they could benefit because they are “undermethylated” and this is why it is important for anyone to have a proper assessment before being put on the drugs as certain conditions where there is already an overload of serotonin could mean that the drugs can make that person worse.  I want answers as to what bio type of depression my daughter has in order that she can have the right treatment and not be on the maximum of drugs for the rest of her life but CAMBIAN are quite happy to plod on and ply the drugs and I have had to send the book by Dr Walsh to Cambian for Dr ……………………….to study so that my daughter can have the right kind of care.

 

It is not just me but I am in touch with many mothers who want the same – the best care available and that is holistic – something that is not even thought of in the UK.  I would pay to send my daughter to Finland if only I could to get her the decent care on offer where there is 85% success rate and it is not just holistic but open dialogue something that is unheard of in the UK.

 

It is about time there was change so that this abuse does not carry on any longer.  I cannot wait until Dr Walsh comes next to the UK in June for the forthcoming Chy Sawel conference and Dr Walsh is appealing for 12 doctors to work alongside him and I and other mothers and patients would like to see this happen more than ever.

 

 

The Tribunal was meant to be before Xmas in December but this did not take place as there was a mix-up at the court.  I have been waiting for a date and so contacted my solicitors as it is now February.  I was dismayed by what I heard.

In the meantime after a wall of silence I had an email from Cambian.  In the email they requested some very personal information from me as regards my daughter.  Here is my response:

“Before divulging personal information which could put me in breach of confidentiality, I have a duty to speak to my daughter first in order to gain her consent.  However, Cambian have placed upon me restrictions – they have allocated supervised phone calls at a slot when I cannot telephone, ie 6 pm on Mondays (supervised only).  Cambian have restricted my time with my daughter – escorted leave, whereas this has not been done for the rest of the family.  When I have asked for reasons, I have been told by ………………..(Manager) that it is not because I amnot trusted.  I would therefore like a full explanation from you as the whole situation is unsatisfactory in my opinion.

 

I am most concerned at unfair/detrimental comments in the file about my character and under the Data Protection Act I am entitled to see everything relating to me personally, especially in light of comments by Dr ……………….. about “my past behaviour”.  I would like to know everything about this.

 

I would very much like a call from Dr ………………in relation to the book “Nutrient Power” I sent and proposed assessment by Dr Walsh.  Dr ……………….. has said he does not mind me having such an assessment as long as I am paying.  I am fully prepared to pay for this assessment and it is OK with Dr …………………. and so I am keen to get things moving.  It is also OK by my daughter who is happy to go along with this and I wish to proceed with this assessment as soon as possible.

 

Last of all, I would point out that my daughter misses me, misses home, misses her cat and is upset about the whole situation.  There are contradictory comments by Cambian and there needs to be a full investigation into matters if nothing is done about the whole situation.  I was originally delighted that my daughter had finally been given a place at Cambian where I thought you respected patients and took on board their wishes – well my daughter has made it clear she wanted family mediation and that does not mean excluding her mother because you as a team personally dislike and choose not to give me a reason why you are treating me like a criminal.  I also thought in Wales she would be entitled to holistic care under the new law, especially after all the experimentation of drugging that has gone on.  If you cotninue to say this is my daughter’s wish regarding the supervised ban on phone calls/visits then this needs to be said directly by my daughter to my solicitor and to the private doctor (in person) who will  be appointed for the Tribunal and by the way, any information from Cambian relating to the Tribunal would be most appreciated from yourselves.   By the way, my daughter has agreed to see the doctor for the Tribunal and this I have in writing and also this is witnessed.

 

What is most upsetting to me is there is a complete lack of communication towards me by the team at Cambian and exclusion as a mother simply because you as a team do not like me, so it would appear and all I have done is nothing but praise Cambian and beg and beg over and over again for my daughter to come to your hospital in the first instance because I thought she would be treated fairly and that you were the most caring organisation and especially after the cruel way my daughter was treated at the Bethlem where her face was covered in bruises when I visited and she was taken off 150mg – any doctor would agree this actually causes psychosis and so it is unjust that she is even on a Section in light of this.

 

The last comments my daughter said to me “Mum, please do whatever you can to help me  ……………….is not a strong person like you are”  “Mum, get me out of here (ref to Bethlem) I do not have much to leave behind in the hospital – lets go away – I want to go to Finland”  “I am prepared to go along with any assessment – just arrange it”. “I am happy to see the doctor for the tribunal”  

I look forward to hearing from you further and from Dr ………………. I am entitled to hear a full explanation from you as to your treatmeent of me as a mother”

I WILL CONTINUE NOW ON ANOTHER BLOG OF THE CATALOGUE OF EXCLUSION THAT CAMBIAN FOUR STAR WARDS HAVE CONDUCTED TOWARDS ME. 

 

I have heard no news about my forthcoming court dates and cannot wait for something to be sorted out.  It is truly heartbreaking – I do not wish to forever control my daughter’s life however the way the team have handled the whole situation is so apalling.  It is affecting my health and I know from what the other mothers have told me they are also suffering health problems as a result of stress they are going through.  I have taken it very very personally as there is nothing but a wall of silence from the team and you do not get any answers.  The Consultant Psychiatrist who has thankfully replaced the previous one temporarily has made out he is unaware of the ban but nothing has been put in place to change the current situation.   This will result in costly and unnecessary court action as I see this as bullying on their part.  You should be given a reason why you are banned/discouraged from contact with your own son/daughter but I am sure I am not alone here.  It is dishonest not to give a reason and write about someone behind their backs like no doubt they have done against me.  I am prepared to stand in front of the world’s press to  hear such a reason and for the public to judge me.  I would rather have the public to judge me than this team of so called professionals who if they do not like you they can write whatever they like.  If you so much as dare to challenge the care system which is shocking then they all gang up against you and I think I am doing the right thing to challenge the current care system as I have listened to other people and many are too afraid and I can see why.  I dread to think what it has been like for Elizabeth but I am thinking of ALL the patients stuck in the same situation and if noone speaks up then nothing will ever change and this is wrong. 

 

At the Bethlem Elizabeth spoke of staff watching her all the time and this sounds to me worse than prison and I lost count of how many times they threatened me some of the staff and seemed to get a kick out of their powers.  Of course they have everything to be worried about because I now want some answers – I want everything sorted out in court and feel that my case should be used as an example of what should be improved upon in terms of communication as all too often mothers and carers are cut out by the team like they are insignificant – you are treated like nothing and the team do not want you to know what is going on and so they manipulate the person under their care who is already drugged up to their necks and they can say nasty things about you behind your back and they should be accountable for what is written in their files and explain in front of the court.    In Elizabeth’s case – they have taken her away without hardly any warning, not allowing any time for the family to say goodbye. I was not opposed to Elizabeth getting away as she had been allowed to mix in wrong company and I had trouble on  my doorstep.

To the team my daughter is just another number and I am sure not all the staff are bad but they way they have dealt with me shows that they have a lot to learn.  It seems to be a problem at the top of the care system – the more powerful and higher position within the NHS – this is where the corruption lies and I AM STILL WAITING FOR MR HEAFIELD TO REPLY TO MY LETTER.  I will make it my aim to catch up with Mr Heafield and then he can reply to me in person and I want better letters from the entire Government and have written again as I am not satisfied.

Shortly I am going down to the local Mind Store where I  have  left my petition and am offering money for each page of signatures as I do NOT want to be ignored by this Government. 

Out of all these funded carers groups none have done anything to set up Open Dialogue, including patients (not like Cambian 4 Star Wards who say they involve patients when they have no involvement in the running of the wards – if they did have then I would not be complaining) and they should make the patients feel worthy and useful which they are.  The patients should be involved in the running of such wards in my opinion.  It does not matter if they do not have the qualifications.  The patients have a greater understanding of what someone is going through and could help others and help themselves too in their capacity of caring as many of these patients have more caring ability than the staff I  have witnessed.  These patients could be earning some money and this could lead to them getting better instead of being left on the scrap heap. 

 

If I was running an alternative care centre I would not hesitate to draft in some of the former patients I know as they have lots to offer and are the most decent people who should be given credit in the press but the press are biased. When is a newspaper going to publicise the dangers of the mind altering drugs and the way the patients are treated on Enforced Treatment Orders.  I would be more than  happy to write myself about this injustice. The newspapers I have approached have said they are interested in hearing from the patients but what about those like  my daughter who are not able to speak and what about when you have overwhelming evidence in writing – they seem more worried about being sued and I have been threatened myself for what! – for speaking the truth!  I am not afraid of their threats and see this as a form of abuse and bullying.  I would rather speak the truth any day than lie like so many of these so called professionals who just go along with their superiors for the sake of their jobs.  It is a lie to say you have to be on the drugs for the rest of your life – some of the diagnoses are doubtful because proper assessments are not carried out and that is why I cannot accept the diagnoses as they stand.  There are several and I will accept a diagnosis only when Dr Walsh has carried out his tests properly and then a proper treatment can be established.  Anyway, it shall be interesting now as the Consultant Psychiatrist from Cambian 4 Star Wards should have the book from Dr Walsh called Nutrient Power which I would fully recommend.  I have made sure that the forms are correctly completed as by the sounds of it he is plugging Clozapine!  I made sure I documented thoroughly the shocking side-affects my daughter has suffered which would have been played down I am sure.  You have only got to look at the video Clozapine not Clozaril to see what shocking effects this chemical has. Also I can put people in touch with the patients who have been put on this harmful drug if no-one believes me.  Anyway this psychiatrist has promised me that I may have the assessment by Dr Walsh which I am prepared to pay for even though Dr Walsh has said it will cost nothing as his orgnisation “The Walsh Institute” is a charity.   This Government should offer a donation to Dr Walsh and invite him  over to set up a nationwide proper assessment project as soon as possible or they should come to the next Chy Sawel Conference in June.   I could not be more happy about the prospect of a proper assessment and cannot wait to get things moving.  As Richard Branson said you must not sit around waiting for a present –   well I am not – in fact his words are very encouraging to me and make me even more determined. I am doing something about this unsatisfactory situation and challenging the shocking care and I have the backing of lots of people who are likewise unhappy and wish to have their say as well.  Unfortunately it takes more than just speaking but a successful petition is a way for sure of being heard by a Government who does not care to listen.   Meanwhile, Mr Hunt has not even had the courtesy to reply to my letter.  I can soon hand deliver a letter to him straight from work and that way he will have no excuse that he has not received my letter.   On Twitter just now I have slated the Conservative Government for not caring about mental health when so much money is wasted.   There are too many people doing nothing except complaining and now I am getting impatient with everything and want some action.  As I have said I have brilliant representation in court and witnesses to top it all.  I am also trying to raise money for Chy Sawel as I would like them set up.

I also hope to go over to the States to have a look at the wonderful alternative care centres or Finland,  Tornio where they have decent care unlike here.  Elizabeth wants to go to Finland and she was very happy over there and I intend to take her to Finland and then I can write at first hand all about the wonderful care on offer over there. 

Soon it is Elizabeth’s Birthday and I do not know what to get for her as I doubt I shall be going to Wales.   I wish I could get a celebrity chef to go and visit Cambian as this is what my daughter wanted to do from a young age and when I last spoke to Elizabeth she said she was enjoying cooking at Cambian.    Unfortunately staff do not even tell you what they have going on – there is nothing but a wall of complete and utter silence.  You do not get shown the slightest thing apart from a tiny box room where you are allowed to sit with a member of staff virtually standing over you listening to every word.  This is what I see as care under Cambian – like prison – even more tight security and control than the Bethlem and that is saying something – I would describe the Bethlem as Colditz!  – I have never seen such a shocking place since I visited a well-known theme park attraction which could well have been based upon the reality of care under the prison camp.   It would have been nice if a member of staff were to tell you about activities, pick up the phone and speak to you and let you know what they are doing, how my daughter is doing, if there is any problems – it is all one-sided this so called care and it is breach of human rights to control to this degree someone’s life and then make out it is what that person wishes when they are in a confused state of mind drugged up to their necks on Clozapine.  I would describe the care in the UK are truly awful, wicked and cruel.   They have torn my family apart and it is the previous consultant psychiatrist I believe who wanted to get at me this person and who is hurting my younger daughter too and this is unforgiveable in my opinion.    I want this consultant psychiatrist to be present in court and I want everything out in the open.  The public have a right to know what is going on.   Under the Data Protection Act I should be entitled to see what is written about me personally but at the Bethlem they refrained from giving me the important papers relating to when they banned me and labelled me as being aggressive and threatening and these surely contain my name in – where are these papers – I should be allowed to see what has been written about me behind my back.   I already know some of what I need to know – the level of drugs.  This was all I wanted to see and they  had to tell me as my daughter gave consent verbally in front of the staff and this is why I got labelled threatening as I managed to get to hear what drugs they had given her which she did not even know herself.  I can imagine what they have written about me behind my back because I have the bulk of the files and have read some shocking things by doctors who have never even met me.  It is guesswork on their part and if my daughter did not want to see me again how come she says “there is no place like home”    – she misses her home and family but there was not suitable care or enough support and that is failing on the part of social services and the Government who should step in with funding to support the victims of the pharmaceutical industry who have been used as human guinea pigs – a shocking practise allowed by law in the UK and who have been made so ill they can hardly walk, hardly a threat to the public – these young people have been ruined and I blame the whole care system and the law laid down by an uncaring Government who are wasting so much of public money when mental health affects so many and the answer is clearly not drug pushing and labelling but proper assessments as I am about to have done hopefully and also the inclusion of families.     

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