ELIZABETH’S COMMENTS AND OTHER PATIENTS VIEWS ON CARE

Elizabeth has told both myself and her sister she is happy in Wales, that the food is good and staff treat her well however that is just some of her comments.  I believe she is being discouraged from contact with me.  She is being torn away from her family by the team  who do not communicate properly and give you a valid reason and that is why the unique care system working in Finland called Open Dialogue is needed so badly in the UK – a system that includes the family not excludes them – Elizabeth had already said she wanted family inclusions yet that is not what is going on right now – the complete opposite.   Soteria and groups like Chy Sawel and Root and Branch should be given every assistance to be set up offering residential care and the avoidance of hospital admissions like at present which have a draining effect on the NHS with patients currently returning time and time again to the acute wards not getting any better and then more and more drug treatment costing a fortune to the public.

Equally, Elizabeth has said “you know how it is in these places – it is extremely strict here”.  “staff are watching me all the time – I am on 15 minute watch”  to which staff denied.  “whilst I like it here and it is peaceful, nothing beats home”.  “I miss you Mum and I miss my cat – please be strong “- this was one of the last messages sent to me.  The problem is that whilst Elizabeth is on a Community Treatment Order, she is trapped like so many others, stripped of her human rights and treated like a prisoner in an  inhumane care system that is all about control that could go on for years unless you take things to court.  This is costly too when patients are having to use legal aid to defend themselves in court at a Tribunal, even more so if you happen to own a property and have to pay for legal cases.  Much emphasis is being put on safety and protecting the public from violent psychiatric patients.   How untrue!  I would welcome showing and educating people as it is quite the opposite.  At many of these institutions patients are drugged up to their necks and can only lie down and sleep –  at the Bethlem patients were so drugged up they were walking around like zombies – young people victims of the pharmaceutical industry who do nothing to make up for the damage their drugs have done that have failed yet they make themselves out to be caring.  I shall be sending letters to all of them to ask for their contribution towards decent care for my daughter as they have a duty in my opinion to make amends for the fact their drugs have not worked and have caused so much pain to my daughter.   Anyway, the real reason and problem is when someone has been on all of these drugs and in hospital for such a long time, they cannot cope in the community and this is what is lacking in decent care for patients to remain on acute wards for 2 years or so only to be placed in housing where they simply cannot cope and staff are stretched with their time – one member amongst 30 residents for example and staff that sleep through the night and do not monitor who is coming in through the front door. These schemes can be beneficial to some but what of those like my daughter on high levels of drugs –  a project – one like Root and Branch would be beneficial in an area away from towns/cities in a peaceful location with peer support abundance, taking some of these patients off the benefits to provide a decent salary for their contribution in helping others get back on their feet.  Patients are often excluded in the current care system and not valued yet some are highly intelligent – every patient has something to offer and should be made to feel valued but are discarded and made to feel like rubbish by and because of public ignorance fueled by the press that patients are labelled as maniacs and violent I confronted the Sun Newspaper recently who put the phone down on me and I will never purchase this newspaper again.  It is newspapers such as this that breed ignorance amongst the public who think all mental health patients are like this but what they do not see is honest reporting such as the following:

Do the public see what is really going on behind closed doors at a leading worldwide renowned hospital – the answer is no because there are virtually no visitors  – see for yourself below and I can vouch for every word of this wonderful blog:

http://nationalpsychosisunitsurvivor.blogspot.co.uk/  – my daughter was on this shocking ward and this is not written by me but I agree fully with its contents having seen with my own eyes what goes on there.  I go on to include words from yet another patient of this hospital below.

Unless there is accurate and honest reporting ignorance and prejudice will prevail fueled by some celebrities who do not know what they are talking about such as Jeremy Clarkson and Janet Street Porter – when have they ever come to visit the patients under the Bethlem National Psychosis Unit?  When have they ever got involved to try and help in changing the current care system that keeps so many patients down.  These are the type of people who need to be educated in my opinion and I am endeavouring to to just that on this blog and have no end of recorded tapes of so called professionals, evidence to back my claims and contact with many patients and carers who are not from the kind of family backgrounds you would ever think possible.  I would welcome such people to contact me direct.

It is reading the books from the honest doctors who are speaking out that gives me hope such as Dr Ann Blake Tracy, Professor David Healy, Dr Candace Pert, Dr William Walsh, – there are many many others as well and in America there are Alternative Care Centres such as Earth House and Alternative to Meds where people can go in and have decent humane treatment.  Patients get a raw deal and are not treated well under the current system.  Whilst there may be some professionals who are good, the majority are having to go along with ruling from above or else they will be out of a job.  Bullying is rife and this should be looked into.

As a mother who has spoken out I have been bullied and harrassed and if I was to behave this way towards a member of the public then I would be arrested but yet it is allowed for the legal teams and so called professionals who have their name badge back to front for protection to either behave in a threatening manner or else constantly plague someone with phone calls during the day at work to force them to agree to Treatment Order and under this Treatment Order they can control, manipulate, tear familiies apart as many parents do not have the strength like I do to stand up to all of them and I would be more than happy to place myself in front of the whole world  – the more publicity the better as I want everyone to see what is going on and yes there may be some who may turn around and comment that I am no good as a mother, that the home and family are to blame.  The pharmaceutical industry and psychiatrists may also try and label me with one of the thousand or so diagnoses in the DSM 5 book and I would then ask for their scientific proof if they came up with any diagnosis for me.    Well I would welcome these people to come and meet me personally and see for themselves what is really going on.  I would also like to introduce such people to the wonderful group of patients who have helped me more than any of the funded groups who are often too scared to speak out because they would otherwise lose their funding such as Rethink attached to the Maudsley Hospital with psychiatrists on their Boards – where were Rethink at the meeting it was agreed they attend?  who manipulated Rethink – the consultant psychiatrist so I believe who played on the fact that every question I asked “Rethink have said Elizabeth does not want this disclosed”  Rethink have verified she does not want the family to see the files – Rethink all the time came up in the meetings and were denied doing their job properly and are closely tied to the Maudsley making them NOT independent advocates and NOT fairly representative towards the patients and who NEVER came to meetings where a patient was outnumbered 9 against 1.  Elizabeth dreaded going into such meetings and I found it an ordeal myself.   One last thing about Rethink – they should not have consultant psychiatrists on their Board in my opinion. 

 

So “no place beats home” as said by Elizabeth but if Elizabeth was to come home I would need someone to help me as I doubt she can do much for herself and in the community she was just left to go downhill by social services who did nothing.  If an empty flat was costing around £800 for example I could have provided more support like I did for my father if only I had been included but the team exclude you especially if they dislike you for speaking your mind.  With Direct Payments you can provide extra care and support but if the care is not working provided by such schemes then alternatives need to be found and that is where there are none and projects like Root and Branch may help some people where everything has failed like my daughter.  Where is the funding for patients who have been used for experimental purposes classed as treatment resistant.  This is failure in my opinion and I think funding should be provided by the drugs companies and this funding should be used to give the patients more choice and for complete change in the care like in Finland Tornio – Open Dialogue Technique and help in being reduced off the drugs if they cause terrible side effects in a proper safe environment – this is what the Drugs Companies should do alongside the Government who are responsible for imposing laws that are unjust and detrimental to the patient and forcing them to take drugs when they are suffering terribly from the side effects of these chemicals that are mind altering LSD like drugs and there is no help there at all and no thought or care in providing such help that Dr Ann Blake Tracy, Dr Walsh and other leading experts such as Professor Healy could be involved in.  

Richard Branson has posted a comment with words to the effect do not sit back and do nothing and expect a present to come to you.  Well I am not the kind of person to sit back and do nothing at all but this is a mammoth task to draw to the Government’s attention the need for such change backed by a group of patients who wish to be included not excluded and have suffered tremendously under current care, backed by other parents who would do anything to see their child who is trapped on Community Treatment Orders to get proper care in a safe environment and be treated like a human being and not discarded on the scrap heap.  First of all I would need the help to publicise this properly but even people like Max Clifford have not been brave enough to take on such a challenge.  The minute you mention mental health people want to run away instead of face up to such a challenge.  I await to see if Mr Branson can help me.   I am just a mother who works full time and I am going ahead with my auction even if I get nothing collectible I shall provide things myself but I am waiting to hear from my solicitors right now as to the date of the Tribunal which could take place soon hopefully.  Once I know about this then I shall go forward.  Mr Branson is correct in saying you should not just sit back and do nothing but it is hard for me as I have a full time job and this something that takes a lot of time and require funding and education of so many professionals who are happy to just plod on as long as it is easier that way – it is not such an easy thing to set up but I wish to be involved and would give my time for nothing and have many contacts who wish to see change who could also be involved in such reforms.

In the meantime, I present to you some comments written by a highly intelligent former patient, another one knowledgeable of SLaM and someone who would be greatly valued in involvement with peer support and being included in helping in alternative care to get others back on their feet and I am in touch with many who are now either on minimal drugs or off them altogther who can function, can work and live normal lives and some who have suffered swo much from physical illness as a result of taking the drugs for years who are unable to work for this reason yet at passionate about seeing change in the current system.  Then there are people like my daughter trapped in the system, fit for nothing thanks to the high level of drugs they are on.  The people labelled as mentally ill that I  have come across are the most caring people I have ever encountered.  They have helped me more than funded carers groups, have supported and helped others in hospital who have no visitors, have cared about others despite their own problems being therapeutic for them too but such a group should be encouraged to be involved in helping through these much needed alternative care centres if only they can be set up such as Soteria, Chy Sawel and Root and Branch Project.

 

HERE ARE THE COMMENTS BELOW:

“Speak Out Against Psychiatry can reliably report that the number of service users complaining about neglect, negligence, inconsideration, inhumanity and abuse is already at record levels, and that this a deplorable state of affairs set to get ever worse, with successful prosecutions and out-of-court settlements on the increase. ”  The article is yet another patient complaining about SLaM –  “ongoing complacency of the SLaM management team that we believe arises from apparent on-going denial that anything has ever been seriously wrong”.

“At Board level, SLaM Senior managers talk a great deal about key ingredients of an effective service – client- centred decision making, collaborative (shared) decision making, informed choice, informed consent, the undesirability of over-medication, the importance of focusing on well being and recovery, the establishment of fit-for-purpose care pathways and recovery pathways, the importance of making concessions to the service user points of view, the importance of placing more emphasis on client-centred care, the undesirability of over-control of behaviour (“over-policing”).    I am laughing whilst this and reminiscing about my daughter’s shocking care as well as my apalling treatment – what a waste of time to have meetings when none of the above is true! 

The former patient goes on to say “in the last public meeting prior to 2012, “good news” was conveyed “about how millions of pounds had been secured for research into “ever more powerful medications” with “hopefully” fewer side effects.  This begs the question: Is suppression of symptoms with mind-distorting chemicals the only option that SLaM feels confident enough in to invest and shout about”

The word “hope” is used a lot.  “SLaM staff seem to have believed for years now that with enough hope things will change for the  better “as if by magic” –  they stick with this belief despite nothing worth mentioning ever changing for the better .”SLaM management team seems never to take any of its critics seriously, SLaM is mostly doing all of the wrong things (sometimes with ever more resource)  and even when its projects are well-conceived, SLaM’s Project Leads routinely fail to deliver anything noteworthy.”   The former patient goes on to speak about a Croydon based group called “Hear Us”  “guess why! And the Hear Us newsletter is called “In Our Shoes” – guess why! ” Ever more service usersare calling themselves “Survivors” of mainstream psychiatry and guess why!”

A leading expert I am in touch with who is a professional within such a corrupt system goes on to say “I agree with your comments it is a “travesty – I have been trying to change the system for years”!

 

WHY IS NOONE LISTENING AND TAKING SERIOUSLY THE COMMENTS OF SUCH BRAVE AND WONDERFUL PATIENTS WHO HAVE A LOT TO OFFER AND COULD SAVE THE PUBLIC A FORTUNE AS I BELIEVE AS A MOTHER WHO BETTER TO OFFER THE SUPPORT AND BE FULLY INVOLVED BUT THE PATIENTS THEMSELVES WHO CAN OFFER FRIENDSHIP AND REACH OUT TO THOSE CURRENTLY SUFFERING WHO ARE NOT BEING LISTENED TO – WHO BETTER TO GET THROUGH TO THOSE THE CURRENT SYSTEM HAS FAILED LIKE MY DAUGHTER.  AT LEAST LETS TRY THIS WITH THE PATIENTS WHO ARE DEEMED AS BEING “TREATMENT RESISTANT” AND AT LEAST LETS GIVE THE CHOICE TO THE PATIENTS AS SOME MAY BE HAPPY AND GETTING ON WITH THE DRUGS OK BUT AS DR WALSH  HIGHLIGHTS THE NEED FOR PROPER ASSESSMENT IN HIS BOOK NUTRIENT POWER THEN THIS RESEARCH SHOULD BE ADOPTED AND TRIED OUT RATHER THAN THE PUSHING OF ONE DRUG AFTER ANOTHER AND EXPERIMENTATION THAT IS ALLOWED TO GO ON AT THE MAUDSLEY.  

 

 BY THE WAY I HAVE HAD NO RESPONSE TO MY LETTER TO MR HEAFIELD AS YET.

 

 

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