I understand with what I am currently going through why some people are afraid to speak out about the atrocities going on in the name of psychiatry. I like to think one day justice will prevail and kinder care will be in place where patients have some choice offered to them.
Last week I went to visit someone in hospital at the Maudsley (Bethlem Royal Hospital) last week and it was truly horrific and brought back terrible memories for me. This is a place where patients are kept as prisoners and behind closed doors noone knows what abuse is going on. I have an idea – a good idea as my daughter has been in an out of these institutions since the age of 19 and with one drug after another being pushed at her which of course is the reason she ended up institutionalised in the first place. These drugs cause severe aggression and violence or the opposite, suicide – they affect serotonin levels and too much serotonin causes this effect and that is why so many people end up in this rotten hell on earth system and many familiies turn their backs because they cannot deal with the behaviour of someone who was once immaculate and doing well for themselves. It often has nothing to do with coming from a bad background – the minute my daughter got put on Cipralix her behaviour was unrecognisable. Friends turned away, family relationships became strained and then that person ended up in the most shocking wards that are no place to get better. The care in the community is all too often not sufficient as that person becomes isolated and if that person happens to be vulnerable they are subject to more abuse under the system by other patients and staff alike.
It is easy to get away with abuse under the mental health system. Abuse can come into the form of yelling and shouting that my daughter came across under the Bethlem Royal Hospital by a member/members of staff – I do not know whom but I certainly came across much aggression by members of staff myself so I fully appreciate what the patients have to put up with. All I know is that one day I came to visit and her face was covered in bruises and all I got was “I am happy with that said the lead nurse” No proper record of this was made as the hospital ward manager declared she had no knowledge and had to ask me the date when I saw this.
I still have the text messages from Elizabeth begging for me to get her out of there – even the local mental health hospital was more kinder. However the care at local level failed to protect my vulnerable daughter on more than one occasion and every time you complain they do not like it of course and then they write terrible things about you behind your back and try and push blame on home and family. In both cases of my daughters something happened to them and I have nothing to hide as regards abuse and am willing for the world to judge me on this. I would not be writing this blog if I had something to hide. My crime is to speak out against the dreadful “care” I have witnessed and many people have no idea what is going on as they are unaffected but if only they could see what is going on and meet some of the patients. It is only when you have someone that ends up in this dreadful system that desperately needs changing that you can fully appreciate what I am saying.
Tomorrow I am meeting another mother who is from up North and I have made many new friends, some of them former patients who have been extremely supportive. All of the people are very respectable and go out of their way to help other people who find themselves alone and end up in these hospitals.
I wish more celebrities would get involved and take an interest as something needs to be done about this situation and improvements made. There is the money to spent on the AGMs but not on proper care. Much money is being wasted on the drugs that do not work as I witnessed the same patients returning to the acute wards time and time again. This goes to show the care is not working. I would have liked to have brought some well known people(celebrities) to meet some of the “forgotten people” in the shocking hell on earth wards at the Bethlem. In addition I know of many parents like myself who are forced apart from the person they care for by the authorities whilst that person ends up on a never ending prison sentence and ends up getting no better and the only people to benefit is the staff who get their salaries at the end of each month in jobs that have huge benefits and the doctors who like to wield their powers under a law that is totally useless and these doctors and professionals are unaccountable because the GMC have no powers, the CQC do not care and do not investigate unless something gets on TV – they are not interested in individual cases and that is the problem. How many other cases are there when a person is totally isolated from their family and have no friends of anyone. What is wrong with society for allowing this sort of thing to happen. I feel sorry for these patients that h
ave virtually no visitors and something should be done about this. This is why abuse can happen when there is noone looking at what is going on and it is no wonder why they wanted me banned and did ban me altogether and threatened me no end with arrest to the point I decided to volunteer for the local police. That is probably what goty daughter moved within about a day miles away and where she is now I thought was a far cry from the usual facilities of acute wards.
Whilst my daughter is in a nicer surrounding place the control is worse than prison. The Consultant Psychiatrist has never met me and probably never wishes to. Yet this consultant psychiatrist has met my daughter’s father and has gone out of her way to include him and exclude me and yet I am the Nearest Relative.
There is no way on earth I am going to ring once a week like Cambian have told me at 6.00 on a Monday for my once a week supervised contact with my daughter. (they must have a heck of a lot to hide if these professionals are going to these lengths for a start – you make make your own minds up). I am travelling home from work so it is not a convenient time. It is an infringement of human rights what this hospital has and is doing and the solicitor from Monkreiths said “same as any other hospital” – well I disagreed as I had read how this hospital who have won the title of Best Care Provider 2012 – THEY DO NOT DESERVE BEST CARE PROVIDER 2012. Ruby Wax has been to this hospital and of course these hospitals can put on a good show. It is misleading when you see things like “Best Care Provider of the Year” and read that they allow patients from acute wards to be involved – if patients were truly involved then this abuse would not be going on that is for sure. It is a good thing for patients to be involved and I think that some could play a part in advocacy for a start as they have better understanding than any professional having been on the wards themselves.
Just look at what the NHS does for their AGM’s I would give 10 out of 10 to the North Central London NHS Trust as I thoroughly enjoyed their AGM. I also enjoyed that of SLAM’s and liked the locations they chose very much. The good thing was that I missed the speeches except the one from the Dean of the Royal Institute of Psychiatry – he reckons that smoking shortens life by 20 years or so and I corrected him on this speech. I told him that it is the drugs and showed him the shocking amount that my daughter has been put on. The speeches at these functions are full of self praise so I h ave heard and if I was present when these were going on I would have been tempted to get up there and say exactly what I thought.
What is wrong with Cambian – well – the food is supposed to be nice for a start and if my daughter says it is like a four start hotel then that is good also – it makes you question why all the facilities are not like this. However, what is wrong with Cambian is that they have a consultant psychiatrist who rules like a dictator and abuses human rights by not allowing patients to have any contact alone with their families (I am referring to myself of course and she based her opinion on what the Maudsley have had to say about me and “my behaviour”). On each occasion I was alleged to have behaved aggressively, I had witnesses with me who were so shocked by what they saw that they would be prepared to appear in court to relay the behaviour of staff at the Maudsley yet this consultant psychiatrist is very much influenced by what has been written or said when she has not even met me. This person is using her powers to control and dictate to my daughter and myself, driving a wedge between us. This psychiatrist is someone who has insisted on phone calls being supervised and the manager has written to me about this stating I am only allowed 1 phone call a week at a certain time and they must be supervised. They are also saying this is at my daughter’s request. Well I am not going to defend myself on this website but I will leave it to you to decide and anyone who has been on the wards would know the answer to this as most people I have met have suffered shocking abuse under the current care system.
I would like the world to make their own minds up about me as a mother and they are entitled to their opinion. The fact is that if my daughter had had proper help instead of these drugs I would have been more than willing to have her back at home but I am so apalled that this may be the only option as there is no choice in the UK that is for sure. Being at home of course would mean me having to be there all the time as Elizabeth is so dependant now – this is not such a good thing for her and I have no idea how this would work out amongst other family members, however I am thinking more and more that I am not sure about the current care on offer in light of some most disturbing incidents. A tribunal is when a patient has a chance to defend against being held prisoner under Section but this was a failure and I wonder if she was properly represented at her own Tribunal for a start. Now I have the chance as the Nearest Relative and I know for a fact Elizabeth is not happy on this section at all and would have been happy to remain voluntarily. Voluntary detention opens up choice and this is I think what the team do not want and are out to prevent. Anything that involves reduction of the drugs and a different approach does not seem to be an option liked by the majority of professionals. The current level of drugs has not been changed apparently since discharge from the Maudsley – Bethlem Royal Hospital.
I AM HAPPY FOR HER TO REMAIN IN WALES. I AM NOT ADVISING HER TO COME OFF THE DRUGS AS I KNOW THIS IS NOT POSSIBLE HOWEVER I HAVE REQUESTED A PROPER ASSESSMENT UNDER DR WILLIAM WALSH WHICH I AM PREPARED TO PAY FOR. WHAT IS WRONG WITH THIS? DR WALSH HAS IDENTIFIED THAT SCHIZOPHRENIA IS N OT JUST A SINGLE ENTITY AND HIS BOOK NUTRIENT POWER IS WELL WORTH READING. ALL I WANT AS A MOTHER IS THE CORRECT CARE AND ALL THIS HOSPITAL WANT TO DO IS CONTINUE AT THE SAME LEVEL OF DRUGS GIVEN BY THE MAUDSLEY AS THEY HAVE DONE NOTHING TO REDUCE THIS LEVEL AND THIS WILL AFFECT MY DAUGHTER’S HEALTH. IS IT WRONG TO ASK THAT MY DAUGHTER HAS A SECOND OPINION AND IS GIVEN A SPECIAL DIET AND A FULL EXAMINATION DONE TO SEE IF THERE ARE ANY UNDERLYING HEALTH PROBLEMS. ALL THEY DID AT THE MAUDSLEY WAS TAKE HER OFF 150MG OFF SEROQUEL AND AS DR TRACY RIGHTLY SAID AND OTHER PROFESSIONALS HAVE TOLD ME THIS IS IMPOSSIBLE. THAT CAUSES PSYCHOSIS AND WOULD AFFECT ANYONE AND THEY THEY SLAP ON A SECTION. I AM SO APALLED AT WHAT IS GOING ON AND BECAUSE THE TEAM DO NOT LIKE ME THE CAMBIAN STEP IN AND EXERCISE THEIR CONTROL IN SUCH A WAY IT REMINDS ME AS BEING SIMILAR TO A RELIGIOUS CULT. They will be quick to say that is my daughter’s wish but on many occasions I have noticed an awkwardness whenever I phoned and the fact I had to go through the office as her phone was never working and then finally when you get through you can sense something is not right and even the text messages that were continuous at the Maudsley cease and then the wording of the text messages are totally unfamiliar in context as to what my daughter would come out and say in her own way. She would often say “Ive got to go now” – never before have I experienced this situation.
I cannot say more than this at this stage.
As far as I am concerned I do not want to control my daughter’s life but I do want reassurance that she is somewhere safe and that her human rights are being respected. The longer she is kept isolated and on this high level of drugs within the strict control regime of this hospital, I believe this is detrimental to her and is in breach of her human rights in my opinion. As I have said before I would like the holistic care and for her to be on the minimal amount of drugs rather than maximum with nutrition and diet being at the forefront of care which Dr Walsh can advise on. As for the area where she is, it may be good for Elizabeth to remain in aquieter, cleaner, more peaceful area where everyone speaks to you. Strangers stop and help you if you get lost, people say good morning, good evening. Where I live there is none of that and life is stressful to anyone. Elizabeth needs peace and quiet but she also needs to get well with holistic care in place and she needs plenty of support and help and with what is currently going on which I cannot talk about, it is hard to trust the professionals in charge of her care right now. I am not sure this hospital is the right place for my daughter unless they get a new psychiatrist – an orthomolecular psychiatrist would be good.