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Monthly Archives: August 2012

This is the message you get when you ring my daughter on her phone and she even admitted she has been discouraged from contact with me but refused to say by whom and was afraid – she seemed afraid in terms of what she said “dont cause me trouble Mum”.   However,  noone should take it out on a patient just because they do not like the parent or because a parent quite rightly so has complained about some extremely serious incidents and facts which the CQC are supposed to be investigating.  A complaint should be used in a constructive manner and not just dismissed which is something the NHS are good at doing.    How is anything ever going to change for the better if nothing is done and more people should speak up in my opinion but I can see why they do not.  It is extremely distressing to be treated like an outcast, a criminal and barred from so called aggressive behaviour and the way I have been treated is an absolute disgrace. For the most part you get nowhere with complaints as- there is no decent complaints system but this ward and its treatment of patients who are very vulnerable should be looked into and is a matter for the CQC – I have never seen anything so horrific like Fitzmary II ward in my life and was quite horrified.  I horrified at reading “Re-challenging patients with blood dyscrasias and cardiovascular problems with Clozapine”  I must ask Dr MacCabe what on earth is he doing challenging patients who are seriously ill – this is surely wrong and could result in death.  This is just one of the reports and I am now so interested I have requested ALL of them.  People think this is a world-wide renowned hospital.  People think they are getting the most wonderful care but as one former patient said who has written to me amongst other patients describing their shocking care –  “it was the worst mistake of my life”.  Well I could not describe this better myself. 

How come they moved my daughter so hastily miles away from the family giving virtually no notice to anyone.  Now we cannot get her on the phone –  this is not good at all.  If there is a simple explanation that there is a problem with the phone then this should have been sorted out well before now.

You should not have all this song and dance about a visit when I can hardly pop down there to see my daughter every weekend now.

 Anyway maybe something will be sorted out this week but it would appear that the consultant psychiatrist attached to this hospital Cambian Four Star Wards has already formed an opinion that is not good about me as a mother.   If I am excluded from visiting my daughter then it would be this doctor that would end up being the focus of attention as I am very happy to be judged by the whole world as to my character.  I can provide witnesses and references if things ended up in court and if I was of that character then I would certainly not have considered re-applying as a volunteer for the police.

I am so sorry for all the patients who do not get listened to or respected at all and now I am happy –  I have found a wonderful advocate who truly understands and would be wholly representative of my daughter not like these groups such as Rethink who are domineered by the consultant psychiatrist.  All I want as a mother is fair representation and I do not want a solicitor recommended by the hospital who is pally with the team.

It is ridiculous to have to go through more meetings and more decisions just for more recognition that this arrangement should continue as the replacement solicitor has already been agreed by my daughter and so has the advocate.  

Any decisions between them and my daughter is nothing to do with me.  They are the representatives as far as I am concerned and I am more than happy about this especially since the advocate as personal experience and knows how to communicate better than the entire team at the Maudsley.

Apart from the problems with her phone I cannot judge the Cambian Group to be fair but the psychiatrist HAS judged me without even meeting me and cut short my conversation on a few occasions and would not hear a bad word said about the Bethlem Royal Hospital which is nothing more than a research centre who get their funding from the drugs manufacturing companies to experiment on patients against their wishes.

Anyway enough of this as I want to see if I can get some tickets to the Olympics today.  I missed out twice and was not happy about this.  I wanted tickets for the swimming but now the athletics are on and I would like to see something of this.  I have been to the Montreal OLympics before and this was fabulous and these games are right on my doorstep.  I have not been to the Olympic Park but Elizabeth has – she went to see Preparing London basketball last year.   All I have seen is the Olympic torch come down the road where I work.  Someone I heard got some tickets by queuing for 2 hrs and got them for £5 – that would be nice as I have heard tickets are being virtually given away but I am not sure I will be lucky for the athletics.  

It is such a shame Elizabeth was very good at running and even took part in a charity run.   One of the guys involved in a special training project she went to for running was himself diagnosed with a serious condition but was such a remarkable man.   Like certain members of Speak Out against Psychiatry, this man got better and took up running and was extremely good.  Most people who have something positive to focus their minds on get well again like my younger daughter who likes acting.    Anyway,  he was an inspiration.  It is people like this who should be involved in helping and encouraging others to get better as they are the inspiration and staff under the NHS sometimes are negative and do not do enough to encourage people who are MORE than capable to do things for themselves, find something good in life with support – find work etc etc.   There needs to be more support in the community maybe one to one mentor to help people get back on their feet when they become disillusioned for being institutionalised in a system that is nothing but drug pushing and very little therapeutic care.  It is precisely these people that could be involved in the running of Alternative Care Centres offering much kinder care such as Orthomolecular and that is not to say taking someone completely off drugs but these are fully trained psychiatrists who give the drugs as well as supplements in a proper manner – this is what should be in place at the Maudsley.  Nutrition, diet, counselling, CBT exercise, relaxation – these things should be provided in specialist centres that offer individually tailored care per person with the aid of former patients who truly understand and can associated with what a person has gone through and ultimately that person would get better and not lose hope like under the current system which does not work at all. 

 

 

   

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Dr Healy has written the most amazing piece entitled The Hidden Gorilla.

 

He quite rightly states that “Most drugs that can cause suicide, including the antidepressants, mood-stablizers, antipsychotics, smoking cessation drugs and others, can also cause violence.  The akathisia, psychotic decompensation or emotional disinhibition thse drugs trigger that lead some to suicide, lead others to violence (see Healy et al 2006).”   How very true!

 

A medical blind spot:

 

“There is some awareness that these drugs can cause suicide but considerable resistance to the idea.   There is less awareness and even greater resistance to the idea that they can cause violence.  Treatment induced violence lies in a medical blind spot – no doctor wants to contemplate the possibility that he/she may have had a role in the deaths of innocent third parties.”    VERY TRUE!!

“This may be the grim prospect facing Dr Lynne Fenton.  Dr Fenton we are told had been seeing James Holmes, the killer at Dark Knight Rises in Aurora and had seen him just a week before the killings.  Given the current reliance of American medicine on medications it seems likely that medications are involved in the Aurora case.” 

 

“But in fact there is a great deal of publicly available clinical trial (Hammad 2004 p 40-41 and other data highlighting the risks of violence from psychotropic drugs.  There is far more hidden data.  There is in fact no other areaa of medicine in which there is so much hidden data on a risk that has consequences for the lives of so many innocent third parties.

 

Anyway the link to this informative article is http://davidhealy.org/the-hidden-gorilla

 

My daughter is in a place she describes as like a four star hotel and in beautiful countryside.  I am happy for that at least however all is not well.

At first everything seemed lovely and I thought she had been just transferred although it was very sudden.  This is most unusual as most patients end up on the wards of Fitzmary II for longer than my daughter but it seemed they were anxious to let her go.  The family hardly had any notice given to them and other people involved in her care such as her newly appointed advocate thought it was highly strange.

At first I was happy to think of Elizabeth in a nice surround and peaceful setting.  The rest of the family were told not to visit for the first two weeks and this did not seem unreasonable however time has gone on now and I am keen that Elizabeth does not think that whilst she is miles away noone cares for h er in the family or else we have forgotten but suddenly things are becoming increasingly difficult.

I spoke to the new psychiatrist Dr W……………………. a few days ago and I do not think she liked me very much.   When I mentioned about the section I told her that she would not have been put on section if the reduction off medication had been done properly.  Any doctor would have to admit in a court of law that you cannot just take someone off as much as 150mg and reduce in 2 weeks without adverse reaction.  This caused no end of upset and pain for my daughter.  Constant phone calls at work whilst they had mixed Seroquel with Olanzapine were extremely upsetting.  She did not have the promised drug free assessment like Prof Murray said. 

This new psychiatrist under Cambian never bothered to introduce herself by a phone call to the family or anything.  I just found out who she was.    Anyway there were times in the conversation she cut me short and would not let me finish what I was saying.  She then went on to say about my “behaviour” at the Bethlem Royal and would not have a word said against them and that shows just how they support one another and stick together.   I am neither threatening or abusive but have got upset with this team on more than one occasion and then they are the ones who have threatened me.  The police would have records as I rang them when the staff threatened to call and have been arrested.  One such incident was when I brought the pet kitten and a chinese meal for my daughter.  On all these occasions I have witnesses to back me up.

I have given an honest account of the shocking care at the Bethlem Royal and have reports to prove it.  This is a research hospital and that is that.  They get their funding from the drugs companies to experiment on poor vulnerable patients.  They would normally have to pay to do this kind of research for volunteers but they just dish out the drugs they know full well are highly dangerous and risky to the lives of the patients and they do not go anywhere near enough to inform the patients and relatives of the risks involved.  I have proof of everything.

The ultimate abuse is to have your phone taken away and the phone is always in the office charging.  So I questioned the manager and insisted that Elizabeth should have her phone with her at all times in case other members of the family were trying to contact her.  The manager then went on to say she was keeping the phone at Elizabeth’s request.   How very very odd.  I find this so hard to believe –  I only recently was asked by Elizabeth to get credit for her phone and now she is not allowed to have it with her.  Anyway I am sure the truth will come out soon.    When I have phoned before I have been put on the phone to my daughter – a pay phone on the ward and I am phoning from a mobile and this is quite costly to hang on and wait till they find her as she is probably in her room.   

 

The other thing is the consultant psychiatrist Dr W……………………….could not give me an answer whether I would even be allowed to visit on my Birthday or take my daughter out.  This Consultant Psychiatrist is based there at this supposedly patient-friendly hospital that boasts of patient involvement.  I think the staff have been instructed from above not to allow the phone to be given to my daughter and that means if she is being abused in this so called wonderful hospital she is totally isolated form the world but truth has a way of coming to the surface.   I can tell something is desperately wrong at the Cambian Four Star Wards in that the phone is not with my daughter and I simply do not believe what I have been told.  This is a real infringement of human rights _ I thought I had seen it all on that dreadful past ward Fitzmary II but it appears not.   I have not met a single member of staff but I feel that they are being told not to give my daughter her phone in fact she admitted today she has been told not to speak to me.   She could not say by whom but I am documenting this so very well.  My daughter sounded distant and worried – probably worried for reprisals in terms of speaking out against WHOM told her not to speak to me but the fact she has not got her phone with her time and time again would make anyone suspicious in light of what Dr W refers to my behaviour on the previous ward and that she would have to weigh up  the distress such a visit would cause by me to my daughter and the rest of the patients.  It would seem that Dr W                    is yet another psychiatrist desperate to keep my daughter away from me and this will need a full investigation and unfortunately it will damage Cambian’s image completely unless the phone is handed back and the rest of the family have no further problems in getting through and also if my visit is allowed on my Birthday as if it is not, then how will htis make the Cambian Four Star Wards look particularly when my daughters wants to see her family and that includes all of us as ALL of us are coming down.      

If this ban is longstanding then I will put out an appeal for many many people to check on my daughter’s wellbeing and report back to me.  All I want to know is that she is OK having seen her face covered  in bruises at the last hospital for which NO explanation was given.

AT the moment I cannot even put in for any holiday because I do not know if I will be allowed to see my own daughter and when I asked previously at the Fitzmary II ward why I was being given 1 hr escorted leave only and offered to provide character references  and dont forget I had vigourous security checks through my application to be a police officer – they quickly turned round and said it was nothing to do with that yet noone seemed to be able to communicate and that is the trouble with the NHS mental health care.  There is o inclusion for relatives and they especially do not like it when you speak out or challenge what they are doing and I feel I had every right to do this.  It is supposed to be a country that encourages free speech but this would seem not to apply in the world of psychiatry.  I will now go on to write some extracts of a wonderful informative piece I have seen on Facebook by Professor David Healy.  Thank goodness for people like him and Dr Ann Blake Tracy for their honesty. 

 

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