RESEARCH PAPERS BY THE NAT. PSYCHOSIS UNIT/ BELTHLEM ROYAL HOSP

I am currently waiting with interest for ALL the research papers under the Freedom of Information Act.  I will be chasing up the CQC as regards this and feel they ought to do a big investigation as to what is going on.

 

Anyway,  I have already mentioned Dr James MacCabe who talks about “re-challenging patients who have previously experiened suspected blood dyscrasias or cadiovascular complications of clozapine” at the National Psychosis Unit.  

How shocking is this –  from this you can see they they are putting patient’s lives at risk – why would you wish to challenge patients who have previously experienced problems with health in this way? – what kind of hospital is this!

 

“Improving Tolerability of Clozapine by Dr J H MacCabe  – I see he mentions hypersalivation and sedation.    When I used to visit the shocking Fitzmary II Ward for the most part a lot of patients were just either lying around or walking aimlessly up and down the corridor.  There was nothing to do at weekends and hardly any visitors.  I wanted to bring visitors to the ward at the weekend such as comedians to cheer up the patients and was starting to make enquiries –  I feel truly sorry for the patients who are isolated from the world in a drugged up state, some too ill to venture off the ward and cooped up on a stuffy ward.  What a truly awful place this is!   You look around the grounds and you do not see a soul at times and yet they have lovely grounds apart from the huge high fences that resemble a zoo.  This is very wrong.  When there are good facilities and nice grounds I believe the patients shoujld be allowed to enjoy them but some are too drugged up to be able to do this.  This is a place where they hold clinical trials and use the most vulnerable patients against their wishes in their experimentation with the most dangerous chemicals that act like LSD and cause hallucinations and psychosis, not to mention long term health problems which noone seems to care about.

 

Anyway, as promised, I have something else to share with you – this is just part of a shocking presentation I have seen.   It consists of many pages and lots of charts and comparisons.  It is called:

 

“TREATMENT REFRACTORY PSYCHOSIS – WHATS NEW AND WHATS NOT BY DR FIONA GAUGHRAN, LEAD CONSULTANT NATIONAL PSYCHOSIS SERVICE.   THIS INTERESTINGLY LISTS UNDER DECLARATION OF INTERESTS THE FOLLOWING”.

hONORARIA/aDVISOR: BMS, Roche, Family Professional links GSK, Lilly.  Previously funds for conferences/unrestricted research grants/advisory bodies:  Astra Zeneca, janssen, BMS and Lilly.

There are strong links between the Institute of Psychiatry and South London and Maudsley Trust.

 

It mentions the kind of referals such as Diagnostic Dilemmas, High use of Resources Advice on Management and underneath this is “Treatment Resistance”  and “Sub-optimal Response” 

There are lots of charts and on one page they compare Clozapine with Chorpromazine as to how many patients whose condition improved.  They say Clozapine is for treatment-resistant schizophrenia.  I am furious with this as I asked for proof to show my daughter had this condition and she was promised a drug free period and this was not given.  Therefore I do not accept the diagnosis and it particularly looks bad that I have a tape containing an interview with one doctor from the Maudsley stating it take 2 minutes to come up with a diagnosis.  The Consultant Psychiatrist wanted to start “afresh”.  This is so very wrong –  they should look back at what happened to someone in the first place.  There is usually a good reason for mental illness to occur.  It is not always environmental –  it can be because of a traumatic incident and then counselling should be given – not these drugs.    I would like to see the scientific evidence of a diagnosis as there are several in my daughter’s case and I do not think there are any proper tests that determine what is the cause and so therefore how can there be a diagnosis?  What right do the professionals have to ply a patient with these harmful chemicals you cannot just come off easily.  In Ireland the law is changing.  The law should change over here in the UK too to give patients choice and respect.  They experiment here with Olanzapine, Clozapine, Quetiepine and Risperidon from what I can see on one page of the presentation.

Optimizing Clozapine treatment – average dose in UK around 450mg/day.  Lower doses required in elderly, females and non-smokers and in those prescribed certain enzyme inhibitors.  This is really shocking.  I heard from someone that they raise medication to beyond BNF limits and as they are experimenting on patients like human guinea pigs nothing surprises me.

There is another shocking page with the headings

Amber and underneath this Recheck   WCC lower in am.

Red – Stop Clozapine – admit.

There is a page with Professor Taylor’s name “The importance of the recognition of benign ethnic neutropenia in black patients during treatment with clozapine: case reports and database study. and also a heading “Re-starting Clozapine after Neutropenia.

 

How about this –  Heading of “Mycocrditis, pericarditis and cardiomyopathy in patients treated with clozapine” – they openly admit it causes cardia side effects including myocarditis etc as mentioned above.    They are in full knowledge of increasing numbers of Clozapine related cardia complications reported that has given rise to concern about the risk of acute cardiac side effects in patients treated with the drug.   I am absolutely furious about this and will hold this RESEARCH HOSPITAL WHO ABUSE PATIENTS AGAINST THEIR WISHES ACCORDING TO THE LAW!  BY MESSING ABOUT WITH THEIR DOSAGE OF MEDICATION THEY CAN CAUSE SOMEONE TO GO PSYCHOTIC AND THE NEXT THING IS THEY CAN DO WHATEVER THEY LIKE AND FORCE SOMEONE INTO THESE CLINICAL TRIALS AGAINST THEIR WISHES WHILST THEY GET FUNDING FOR IT.   

 

I WILL HOLD THEM RESPONSIBLE AS THERE IS A HISTORY OF HEART PROBLEMS IN THE FAMILY AND THE FDA STATE CLOZAPINE SHOULD NOT BE GIVEN IN THESE INSTANCES – it has 5 black box warnings to this effect AND I TOLD THE CONSULTANT PSYCHIATRIST THIS BUT HE DID NOT LISTEN.

 

THE PRESENTATION GETS EVEN MORE SHOCKING AS IT GOES ON “RE-CHALLENGE AFTER NEUTROPAENIA/AUGMENTING CLOZAPINE WITH ANOTHER ANTI-PSYCHOTIC. 

THE ALTERNATIVES TO CLOZAPINE  –  HIGH DOSE OLANZAPINE – THEY SAY WEIGHT GAIN IS WORSE ON OLANZAPINE – HOW TRUE AS ELIZABETH HAS PILED ON WEIGHT SINCE GOING TO THAT HELL ON EARTH PLACE.

COMBINATIONS OF ANTI-PSYCHOTICS

NICE – DO NOT INITIATE REGULAR COMBINED ANTIPSYCHOTIC MEDICATION.  MORE WORK NEEDED.  HOW ABOUT ECT PLUS ANTIPSYCHOTITICS, MELPERONE  FGA PLUS MIRTAZEPINE.   GOOD GOD!   They really are experimenting here to full capacity.

 

IT IS TOO LONG TO MENTION EVERYTHING  IN THIS SHOCKING PRESENTATION BUT I WILL MENTION THE SUMMARY:

 

Full MDT assessment

Optimise Clozapine wherever possible

Manage adverse effects proactively

Augment in partial responders

Collaboration with medical specialities if rechallenge

Limited data for altenatives; consideer high dose Olanzapine, antipsychotic combinations, ECT?

All combined with psychological therapties (CBT, CRT – family work and OT).

I nearly choked with laughter when I read “family work”.  Look at what they h ave done as regards me.  ?They first of all sanctioned my daughter on  her leave and stopped her coming out with me for the day.  They then imposed 1 hr escorted leave.   I told the press recently how I was told I could not go running with Elizabeth anywhere that staff could not see me – they even spelt it out as if talking to a small child – not behind trees or bushes but to be seen at all times.  THIS IS FAMILY WORK FOR YOU and then the constant threat of being arrested which prompted me to volunteer for local police.  In fact I would still be keen on doing this as I am going to take a very keen interest in this hospital after the way they have treated me and my daughter.

I hope the above warns people of the dangerous of going into this hospital where they experiment regardless of risks to patients on knowingly highly dangerous chemicals.   LIKE I TOLD THEM THEY SHOULD PAY THE GOING RATE FOR VOLUNTEERS TO CARRY OUT THEIR CLINICAL TRIALS AND NOT USE THE MOST VULNERABLE OF PEOPLE IN SUCH A DISGUSTING WAY.

 

By the way I was so concerned that I contacted Cambian 4 Star Wards today as she has been put on Metformin for diabetes which is also mentioned in the research papers.   I questioned why as we would need to know as a matter of health and safety if she had type II diabetes but they have told me this is not the case – in fact it is to keep her weight down.   How dreadful is this.

Anyway, my daughter said yesterday she wants to come off these chemicals and was against this in the first place.  I have found the most wonderful advocate who is completely independent and has been a patient and this is just what my daughter needs.  He also knows everyone at SLAM.  I could not be more happy!   I would recommend him to anyone.    My daughter needs to be reduced and come off these chemicals that bring in funding to his hospital.  My daughter may still be on a section but I know how dangerous these chemicals are and want her off them otherwise I shall blame the professionals involved and make it known worldwide.    So, I am taking a keen interest in what is going on and there are groups campaigning all over the UK for better care and I would like to see Cambian offer Orthomolecular care which so many people have not heard of.  That is not to take someone off altogether but keep someone on the minimal of these harmful drugs and yes it does work.  With correct diet and correction with regard to nutrition and supplements to help – yes it does make a difference and I saw a huge difference in my daughter as a result of the wonderful care by an Orthomolecular Psychiatrist that I myself appointed.  This should be available to everyone under the NHS.           

 

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8 comments
  1. tracy said:

    hi my son is going to this place on monday and i am disgusted to read about all this i went to look around yesterday and what concerns me is the grounds were empty and when i was show round the ward i didnt see many patients which i thought was a bit strange

    • When you drive in the grounds are beautiful and the facilities seem good but when you get on the ward – Oh God! This was worse than anything because – patients who hardly got visitors from what I could see. I feature on my leaflet a wonderful blog by a former patient who got in touch with me. In fact there are more than one blog from former patients. This is http://nationalpsychosisunitblogspot.com – be prepared to be shocked when you read this written by a former patient who compiled true information as to what really goes on and I was shocked. Promised by Prof Robin Murray a drug free period of assessment – in the first two weeks my daughter was offered Clozapine and she had signed an Advanced Declaration. Within the first two weeks they approached her twice and each time she said no. When I confronted the lead nurse he told me “IT’S ALL ABOUT CLOZAPINE HERE YOU SHOULD HAVE DONE YOUR RESEARCH”. When I complained I was treated like a criminal and was copied in so many times by various members of staff. I was threatened with arrest or to be escorted off the ward. One day my daughter’s face was covered in bruises and I noticed staff wearing name badges back to front. All they did was mix the Seroquel for which my daughter was on a maximum dosage with Olanzpine causing the psychosis – as Dr Ann Blake Tracy told me this is how they keep people within their establishment. She has given me so much advice and said that mixing drugs can cause adverse behaviour. They then put my daughter on Metformine for diabetes Type II – she was so drugged up she was ringing me constantly during the day whilst I was at work and did not know which tablet to take. Unbeknown to her they mixed the Metformine with Clozapine and what is more I have just contested the drug Metformine as I have now got consent to deal with the GP and this was prescribed unnecessarily all along! A group of former patients called SOAP got behind me and staged a demonstration outside this prison camp. My daughter got moved to Wales within 1 day and has just been discharged from section and moved to a care home as I contested the drugs. I have had top level advice from top professionals and I have been advised by more than one to take my daughter to see an endocrinologist. I would recommend this to you as there may be physical problems. Just being on these wards is enough to cause endocrinal disorder in my opinion – There is a condition called Selye’s Generalised Adaptational Syndrome and I have been researching into everything now and I do not accept the diagnosis of Paranoid Schizophrenia Treatment REsistant. My daughter has a new diagnosis now in a report by a highly qualified psychiatrist and this h as been dismissed by the team and now I looked into matters further. I would be delighted to speak to you more over this situation and just the fact that all along over the past three years my daughter has been prescribed off label drugs contra indicated Metformine by the GP and Clozapine which is too high as it should only be 100mg and now I have looked at NICE guidelines and cannot see any Clozapine recommended for her new diagnosis. It is disgusting what is going on and I would advise you to look into matters thoroughly BEFORE they put your son on all these chemicals.

      • tracy said:

        hi i have sent you a message on facebook pls can you add me as i would love to speak with you my son has been sent to the royal bethlem hospital

  2. kelly said:

    My nephew is a patient at this hell hole and has only been there a week and his story is almost identical to your daughters he has been a victim of the mental health cruel system since he was 16 and he now 24, and the only reason he has been stuck in this cruel system is because of the medication and the side effects because the side effects mimic that of a paranoid schizophrenic and after treating him with meds long enough for the side effects start to show, he was then and only then diagnosed with paranoid schizophrenia and been stuck in this cruel system ever since pass from pillar to post with various medications none of which have been successful because they treating him for something he aint got and as a result of these different meds and being locked away for 6yr has caused him to become unwell. But because the meds dont work they wont accept that the aint nothing wrong with him, they now say he is treatment resistant they cant admit they got it wrong so they create a problem. so my nephew got sent to the National Psychosis Unit 1 week ago and yesterday was attacked by a patient for no reason and he rang home upset and terrified begging us to get him out of that place. His family live in Wigan area so its a fare distance to travel and i rang and spoke to the staff and well they were’nt much help and told me the was only so much they could do due to being short staffed. She told me to ring back in the morning to speak to someone who could deal with the situation. PLEASE PLEASE could you point me in the right direction as to were i can seek proper help with regards to getting my nephew moved from that place.. everytime we try to seek help we find know one wants to help at all. im desperate for help any advice u may have would be much appreciated and i will be extremely grateful. Thanks

    • I am so sorry to hear about your Nephew and most of the patients I saw lived quite a distance away so hardly had visitors. I used to visit every weekend and was shocked by what I saw and disgusted by the way I was treated and complaints get you nowhere. The only time I got listened to was when I turned up at their AGM and confronted the CEO – one was on the verge of leaving and then I could hand my letter direct to the right person. Members of Speak Out Against Psychiatry backed my daughter as some had experienced the horrors therein. As for the diagnosis of paranoid Schizophrenia Treatment Resistant – my daughter now has a new diagnosis called PTSD and I have looked at NICE guidelines and cannot see any mention of the drugs she is being given in relation to the new diagnosis which I believe is every bit correct and so do the rest of the family. So, the Metformine at 500mg in conjunction with 300mg of Clozapine are CONTRA INDICATED drugs off label and when I queried with the GP after 3 years of drugging and only because I gained the consent of my daughter which she gave me all along but which the team denied – did I get something done about this. Immediately the 500mg of Metformine a day was taken off. I am so sad for the family of this young man and yourself – do you live near to the hospital? If he has only been there for 1 week – is he sectioned yet? As for being short staffed that is a joke as they spared a member of staff to come out and escort me everywhere. The fact is that I had been on the Police training course as I was so shocked and horrified by the abuse going on to MH patients. They make out you are aggressive and write what they like behind your backs. Then social services get involved and try and bully you further and replace you as Nearest Relative. Only the nearest relative can overturn the section. I have successfully done this with overwhelming support from honest decent professionals who were willing to provide me research and evidence to support the claim the treatment was WRONG. but two attempts had been made for displacement of me as Nearest Relative in the most shocking manner by social services and apparently this is common place procedure- this is what I call bullying and I am not alone judging by all the letters I have received. I have been told recently by a top professional that treatment resistant is not ridiculous as I originally thought but that someone can be unable to metabolize the drugs and could have endocrinal disorder which can cause symptoms of psychosis. I have been highly advised to take my daughter to see an Endocrinologist and to have the liver enzyme test done P450. I would like to speak to you further and I can put you in touch with people and a group of mothers who all have sons/daughters sectioned have got together to try and set up decent humane care in the UK, namely Chy Sawel.
      If you write me a private email on Twitter or contact me via FB I would like to speak to you and I can certainly give you a lot of information – you should see some of the shocking reports of cruelty I am receiving via my website – it is appalling what is going on within this so called civilised country and complaints get you nowhere. I hope to speak to you soon.

  3. mo said:

    Please help me they have got my son and the medicating has turned him into a vegetable which stares at the light . He is 19 help

    • sbev2013 said:

      I am sorry to hear this. I will write to you and perhaps we can speak on the phone.

    • sbev2013 said:

      I hope that Elizabeth and I can help you in some way and put you in touch with others and I can certainly have a chat with you at any time you so wish.

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