I am currently waiting with interest for ALL the research papers under the Freedom of Information Act. I will be chasing up the CQC as regards this and feel they ought to do a big investigation as to what is going on.
Anyway, I have already mentioned Dr James MacCabe who talks about “re-challenging patients who have previously experiened suspected blood dyscrasias or cadiovascular complications of clozapine” at the National Psychosis Unit.
How shocking is this – from this you can see they they are putting patient’s lives at risk – why would you wish to challenge patients who have previously experienced problems with health in this way? – what kind of hospital is this!
“Improving Tolerability of Clozapine by Dr J H MacCabe – I see he mentions hypersalivation and sedation. When I used to visit the shocking Fitzmary II Ward for the most part a lot of patients were just either lying around or walking aimlessly up and down the corridor. There was nothing to do at weekends and hardly any visitors. I wanted to bring visitors to the ward at the weekend such as comedians to cheer up the patients and was starting to make enquiries – I feel truly sorry for the patients who are isolated from the world in a drugged up state, some too ill to venture off the ward and cooped up on a stuffy ward. What a truly awful place this is! You look around the grounds and you do not see a soul at times and yet they have lovely grounds apart from the huge high fences that resemble a zoo. This is very wrong. When there are good facilities and nice grounds I believe the patients shoujld be allowed to enjoy them but some are too drugged up to be able to do this. This is a place where they hold clinical trials and use the most vulnerable patients against their wishes in their experimentation with the most dangerous chemicals that act like LSD and cause hallucinations and psychosis, not to mention long term health problems which noone seems to care about.
Anyway, as promised, I have something else to share with you – this is just part of a shocking presentation I have seen. It consists of many pages and lots of charts and comparisons. It is called:
“TREATMENT REFRACTORY PSYCHOSIS – WHATS NEW AND WHATS NOT BY DR FIONA GAUGHRAN, LEAD CONSULTANT NATIONAL PSYCHOSIS SERVICE. THIS INTERESTINGLY LISTS UNDER DECLARATION OF INTERESTS THE FOLLOWING”.
hONORARIA/aDVISOR: BMS, Roche, Family Professional links GSK, Lilly. Previously funds for conferences/unrestricted research grants/advisory bodies: Astra Zeneca, janssen, BMS and Lilly.
There are strong links between the Institute of Psychiatry and South London and Maudsley Trust.
It mentions the kind of referals such as Diagnostic Dilemmas, High use of Resources Advice on Management and underneath this is “Treatment Resistance” and “Sub-optimal Response”
There are lots of charts and on one page they compare Clozapine with Chorpromazine as to how many patients whose condition improved. They say Clozapine is for treatment-resistant schizophrenia. I am furious with this as I asked for proof to show my daughter had this condition and she was promised a drug free period and this was not given. Therefore I do not accept the diagnosis and it particularly looks bad that I have a tape containing an interview with one doctor from the Maudsley stating it take 2 minutes to come up with a diagnosis. The Consultant Psychiatrist wanted to start “afresh”. This is so very wrong – they should look back at what happened to someone in the first place. There is usually a good reason for mental illness to occur. It is not always environmental – it can be because of a traumatic incident and then counselling should be given – not these drugs. I would like to see the scientific evidence of a diagnosis as there are several in my daughter’s case and I do not think there are any proper tests that determine what is the cause and so therefore how can there be a diagnosis? What right do the professionals have to ply a patient with these harmful chemicals you cannot just come off easily. In Ireland the law is changing. The law should change over here in the UK too to give patients choice and respect. They experiment here with Olanzapine, Clozapine, Quetiepine and Risperidon from what I can see on one page of the presentation.
Optimizing Clozapine treatment – average dose in UK around 450mg/day. Lower doses required in elderly, females and non-smokers and in those prescribed certain enzyme inhibitors. This is really shocking. I heard from someone that they raise medication to beyond BNF limits and as they are experimenting on patients like human guinea pigs nothing surprises me.
There is another shocking page with the headings
Amber and underneath this Recheck WCC lower in am.
Red – Stop Clozapine – admit.
There is a page with Professor Taylor’s name “The importance of the recognition of benign ethnic neutropenia in black patients during treatment with clozapine: case reports and database study. and also a heading “Re-starting Clozapine after Neutropenia.
How about this – Heading of “Mycocrditis, pericarditis and cardiomyopathy in patients treated with clozapine” – they openly admit it causes cardia side effects including myocarditis etc as mentioned above. They are in full knowledge of increasing numbers of Clozapine related cardia complications reported that has given rise to concern about the risk of acute cardiac side effects in patients treated with the drug. I am absolutely furious about this and will hold this RESEARCH HOSPITAL WHO ABUSE PATIENTS AGAINST THEIR WISHES ACCORDING TO THE LAW! BY MESSING ABOUT WITH THEIR DOSAGE OF MEDICATION THEY CAN CAUSE SOMEONE TO GO PSYCHOTIC AND THE NEXT THING IS THEY CAN DO WHATEVER THEY LIKE AND FORCE SOMEONE INTO THESE CLINICAL TRIALS AGAINST THEIR WISHES WHILST THEY GET FUNDING FOR IT.
I WILL HOLD THEM RESPONSIBLE AS THERE IS A HISTORY OF HEART PROBLEMS IN THE FAMILY AND THE FDA STATE CLOZAPINE SHOULD NOT BE GIVEN IN THESE INSTANCES – it has 5 black box warnings to this effect AND I TOLD THE CONSULTANT PSYCHIATRIST THIS BUT HE DID NOT LISTEN.
THE PRESENTATION GETS EVEN MORE SHOCKING AS IT GOES ON “RE-CHALLENGE AFTER NEUTROPAENIA/AUGMENTING CLOZAPINE WITH ANOTHER ANTI-PSYCHOTIC.
THE ALTERNATIVES TO CLOZAPINE – HIGH DOSE OLANZAPINE – THEY SAY WEIGHT GAIN IS WORSE ON OLANZAPINE – HOW TRUE AS ELIZABETH HAS PILED ON WEIGHT SINCE GOING TO THAT HELL ON EARTH PLACE.
COMBINATIONS OF ANTI-PSYCHOTICS
NICE – DO NOT INITIATE REGULAR COMBINED ANTIPSYCHOTIC MEDICATION. MORE WORK NEEDED. HOW ABOUT ECT PLUS ANTIPSYCHOTITICS, MELPERONE FGA PLUS MIRTAZEPINE. GOOD GOD! They really are experimenting here to full capacity.
IT IS TOO LONG TO MENTION EVERYTHING IN THIS SHOCKING PRESENTATION BUT I WILL MENTION THE SUMMARY:
Full MDT assessment
Optimise Clozapine wherever possible
Manage adverse effects proactively
Augment in partial responders
Collaboration with medical specialities if rechallenge
Limited data for altenatives; consideer high dose Olanzapine, antipsychotic combinations, ECT?
All combined with psychological therapties (CBT, CRT – family work and OT).
I nearly choked with laughter when I read “family work”. Look at what they h ave done as regards me. ?They first of all sanctioned my daughter on her leave and stopped her coming out with me for the day. They then imposed 1 hr escorted leave. I told the press recently how I was told I could not go running with Elizabeth anywhere that staff could not see me – they even spelt it out as if talking to a small child – not behind trees or bushes but to be seen at all times. THIS IS FAMILY WORK FOR YOU and then the constant threat of being arrested which prompted me to volunteer for local police. In fact I would still be keen on doing this as I am going to take a very keen interest in this hospital after the way they have treated me and my daughter.
I hope the above warns people of the dangerous of going into this hospital where they experiment regardless of risks to patients on knowingly highly dangerous chemicals. LIKE I TOLD THEM THEY SHOULD PAY THE GOING RATE FOR VOLUNTEERS TO CARRY OUT THEIR CLINICAL TRIALS AND NOT USE THE MOST VULNERABLE OF PEOPLE IN SUCH A DISGUSTING WAY.
By the way I was so concerned that I contacted Cambian 4 Star Wards today as she has been put on Metformin for diabetes which is also mentioned in the research papers. I questioned why as we would need to know as a matter of health and safety if she had type II diabetes but they have told me this is not the case – in fact it is to keep her weight down. How dreadful is this.
Anyway, my daughter said yesterday she wants to come off these chemicals and was against this in the first place. I have found the most wonderful advocate who is completely independent and has been a patient and this is just what my daughter needs. He also knows everyone at SLAM. I could not be more happy! I would recommend him to anyone. My daughter needs to be reduced and come off these chemicals that bring in funding to his hospital. My daughter may still be on a section but I know how dangerous these chemicals are and want her off them otherwise I shall blame the professionals involved and make it known worldwide. So, I am taking a keen interest in what is going on and there are groups campaigning all over the UK for better care and I would like to see Cambian offer Orthomolecular care which so many people have not heard of. That is not to take someone off altogether but keep someone on the minimal of these harmful drugs and yes it does work. With correct diet and correction with regard to nutrition and supplements to help – yes it does make a difference and I saw a huge difference in my daughter as a result of the wonderful care by an Orthomolecular Psychiatrist that I myself appointed. This should be available to everyone under the NHS.