“Mum, they have given me another medication to take – I think it is Methadone but I am not sure what it is”. “Why dont you ask – you must ask what you are taking before you agree and look at the information they should automatically provide on this drug”.
This conversation took place today on my visit to the ward to see Elizabeth. I went up to the office and told them about this conversation and asked them to verify to Elizabeth what new medication had been given but the nurse there said she was “not aware of any changes”. I insisted there had been a change and that I wanted to know what she was put on next but the nurse claimed to have no knowledge. Another patient was telling my daughter how important it was to know about what medication she was taking and that she looks everything up however Elizabeth is so drugged up now that she is “like putty in their hands”. It is wrong and unfair to treat someone like this and to take advantage of them when they are weak and vulnerable and have had all their rights taken away from them. What kind of care is this. Is this a civilised country.
In order to have these drugs – they have to be tested on animals like helpless mice, rabbits – one experiment involving mice on these drugs resulted in the mice tearing one another apart. Rabbits are normally docile and they became aggressive.
Dr Candace Pert who has written the book “Molecules of Emotion” has been very outspoken on these drugs and she is one of the creators.
So not only are animals suffering but human beings, the most vulnerable of people are being abused and drugged up to their necks against their wishes. Elizabeth thought she was going into Royal Bethlem Hospital for a drug free period and proper assessment and no sooner had she got there, the Consultant Psychiatrist and Pharmacist were trying to persuade her to take Clozapine and THIS HAS ALWAYS BEEN AGAINST HER WISHES.
To my horror now that a treatment order has been enforced this team can do whatever they like and can force medication upon my daughter whether she wants it or not. Or else, they can drug her up on the highest dosage to the point she does not know what she is doing and agrees. SHE DOES NOT EVEN KNOW WHAT DRUG SHE IS ON AT THE MOMENT AND THIS IS SO VERY APALLING.
In America there is a place called Earth House I would have loved Elizabeth to go to. They give the minimal of medication and call the patients students. Patients are treated with respect and not kept prisoner. Some patients escape from this hospital and I do not know whether some do not get out at all and end up dead. If they continue to give all these drugs to Elizabeth she will die that is for sure BUT NOONE COULD CARE LESS – ALL THEY WANT TO DO IS EXPERIMENT AND CHANGE AND ALTER THE MEDICATION THROWING HER OFF BALANCE WITH HER BEHAVIOUR AND ALL OF IT IS DONE ON A TRIAL AND ERROR BASIS. YES THEY ARE CARRYING OUT TESTS ON HER ALL THE TIME AS REGARDS BLOOD TESTS BUT THIS DOES NOT GUARANTEE HER SAFETY AND SHE COULD END UP DEAD. THIS IS A SERIOUS AMOUNT OF MEDICATION THEY ARE GIVING TO A YOUNG GIRL WHO HAS HAD HER LIFE RUINED WITH ALL THESE DRUGS. SHE WAS NEVER VIOLENT, SHE WAS IMMACULATELY BEHAVED – SHE ONCE HAD A JOB, ONCE WAS LEARNING TO DRIVE, ONCE HAPPY THEN SOMETHING BAD HAPPENED AND UNFORTUNATELY SHE VISITED HER DOCTOR AND THE FIRST THING ON OFFER WAS ANTI DEPRESSANTS. SHE TOOK HERSELF OFF THESE ANTI-DEPRESSANTS IN ONE GO AND THAT WAS WHEN THERE WAS A HUGE CHANGE AND SHE BECAME UNRECOGNISABLE AS THE PERSON SHE ONCE WAS.
Instead of counselling drugs are given and once on them you cannot just come off. The drugs have the same effect as LSD. Elizabeth never heard voices in the first instance and another expert says another diagnosis in the files.
I am absolutely in despair as a mother and am so worried for Elizabeth. The team have all ganged up against me and no longer want me to take her out unless escorted. That means there is no privacy and someone from the team is listening all the time and no doubt makes notes to report back to the Consultant Psychiatrist and it only takes one word against me to get him to place a ban altogether and so I am going to ask for some help from the local churches seeing as the team do not trust me to be with my daughter any more and I have had every security test etc etc done on me, this might be a solution. The whole thing is very very cruel. Everyone has their jobs at stake and everyone must comply whether they agree or not. I am being punished for being outspoken but I have every concern as a mother. There is supposed to be an organisation called Rethink involved but they have not bothered to reply to my email recently.
When someone is on such a treatment order their rights are stripped from them and the law does not protect them – it protects the doctors and social workers – WHAT KIND OF JUSTICE IS THIS FOR THE MOST VULNERABLE OF PATIENTS LIKE THE MENTALLY ILL AND LIKE THE ELDERLY. THERE NEEDS TO BE BETTER COMPLAINTS SYSTEMS IN PLACE AND THE PHSO AND LOCAL GOVERNMENT OMBUDSMAN HAVE SHUT DOWN MY CASE WITHOUT ANY SATISFACTORY SOLUTIONS IN PLACE AND BESIDES THEY HAVE NO POWERS. WHAT GOOD IS THIS AND THIS LEAVES THE LIKES OF MY DAUGHTER UNDER THE CONTROL OF A TEAM WHO CAN DO WHAT THEY LIKE WITHOUT QUESTION UNTIL OF COURSE A PATIENT DIES AND THAT IS WHY I AM DOCUMENTING THIS WHOLE THING. I AM SO SO WORRIED FOR MY DAUGHTER RIGHT NOW – IF THEY HAVE PUT HER ON METHADONE WHAT ON EARTH IS GOING ON. I AM GOING TO PUT IN FOR ANOTHER DAY OFF TO ATTEND THE WEEKLY MEETING. THIS TIME I AM GOING TO JUST TYPE OUT QUESTIONS AND NOT SPEAK AS I HAVE GOT SO UPSET AT THESE MEETINGS BEFORE AND HAVE COME AWAY WITH NO ANSWERS.
ANOTHER QUESTION WOULD BE THE PLACEMENT OF MY DAUGHTER AS THE LOCAL AREA IS NOT GOOD AND THE CARE HAS BEEN APALLING THERE. THE TEAM AT LOCAL LEVEL ARE RESPONSIBLE FOR THE PROVISION OF CARE BUT SURELY THEY ARE NOT GOING TO PLACE HER BACK UNDER THAT SCHEME FOR THE 9TH TIME WHICH IS TOTALLY AGAINST HER WISHES AND SOMETHING TERRIBLE HAPPENED TO HER THERE.
THE ONLY SOLUTION SOMETIMES IS TO MOVE TO A BETTER AREA TO GET AWAY FROM THIS SITUATION.
I AM NEITHER HAPPY ANY MORE IN THIS AREA OR THIS COUNTRY WHERE THE CARE IS CRUEL AND ABUSIVE.
ELIZABETH’S DREAM CONSTANTLY IS THAT WE VISIT FINLAND. SHE TALKS NON STOP ABOUT FINLAND ALL THE TIME AS SHE WAS SO HAPPY THERE AND SPENT SEVERAL MONTHS THERE.
ALL I WANT IS FOR ELIZABETH TO BE HAPPY AND THAT SHE CAN GET AWAY FROM THIS AWFUL PLACE AND A TEAM WHO ARE DESTROYING EVERYTHING AND NO LONGER WANT ME TO TAKE MY OWN DAUGHTER OUT AND GIVE HER FRESH AIR, TAKE HER TO THE CINEMA, TAKE HER TO SHOPPING. NO LONGER CAN WE SPEND TIME TOGETHER ANY MORE UNLESS SOMEONE ESCORTS US AND LISTENS TO EVERY WORD OF OUR CONVERSATION, SOMEONE IS REPORTING BACK TO THE CONSULTANT PSYCHIATRIST EVERY THING SAID OR DONE –
It is not only people suffering but look at the tests done on the animals to produce these terrible drugs. I read in one book I have – Prozac Panacea Pandora by Dr Ann Blake Tracy that inone experiment mice tore one another apart and rabbits became aggressive and they are normally docile animals. If this is the effect on animals then vulnerable people suffer too and cannot control their emotions. The drugs act like LSD giving hallucinations and nightmares. Elizabeth has told me that she is having a nightmare during the day and has suffered from hallucinations. She is frightened by all of this – IT IS SO VERY SAD.
Everyone will soon be focused on the Olympics. Elizabeth was once a good runner. She was helping me with my running technique when I was training to be a police officer and she helped me in my training to get through the bleep test. Elizabeth was training with the Special Olympics team. Elizabeth would go every Sunday and I would take her along with other disabled runners. I also joined Elizabeth in an abled-bodied running club locally and she did well there and I used to take her, sit and watch and take her back afterwards. Whilst living locally I used to collect her and have her over for dinner and she used to stay overnight .
It came to the point that every time it was time to go back to the scheme she would act up and become very unstable – she was unhappy under that scheme and something happened to her. I do not know what is going ot happen now and cannot understand why this scheme is still up and running and a lot of money being spent on it when she has made it clear she does not want to return there. I had to sleep on the floor a whole week as she was afraid and she wanted to go into hospital to get away from there and feel safe. The reason I could not have her home was by this time she was so unstable and there had been incidents and other people living at home I had to consider. Having research matters thoroughly I now know that the condition Elizabeth was suffering is called Akathisia and this is a direct result of the drug itself.
Dr Ann Blake Tracy has put me in touch with others and I am not alone in my situation but many people are so weakened and especially the patients that they are unable to speak up for themselves. This is so sad and it is these people that need protecting and teams need to be more answerable – it should never be a solution to get rid of the closest member of the family because it makes life easy when in fact a team should be working with the closest member of the family in my opinion.