I am most concerned that organisations like the CQC do not properly investigate matters allowing abuse to continue.
For instance a patient may be covered with bruises all over her face and you ask for an explanation and get nothing in return. It could be innocent but on the other hand how did the bruises come about and how do they force someone to take a drug they do not want – is that person pinned down and strapped to a bed or do a crowd of staff corner that patient pinning them down and forcing them to have an injection – is this what goes on?
As for the CQC, the rating system where many places are rated as excellent is wrong in my opinion. People can be wrongly influenced when they see “Excellent” under the ratings when in fact it is the complete opposite.
I do not know how often they send their inspectors to look at complaints but things need to be a lot stricter and anyone can go into a mental health institution/ward and see it during the day and come away satisfied but what goes on behind closed doors! I have witnessed some bad things, staff ignoring patients, a patient bring dragged by members of staff, patients complaining that their rights are not being listened to in many cases.
If a patient refuses a drug whilst on a treatment order then what! I would like to hear what really goes on behind closed doors.
If the law backs these psychiatrists without making them accountable to give full scientific evidence then that is a breach of human rights in itself. BEFORE a psychiatrist can proceed with the enforcement of drugs I believe they need to show full proof and this does not just involve blood tests or observations. The fact is that there are no tests that can prove anything and so really these poor patients are used as human guinea pigs for experimentation purposes. Noone speaks out as the nusing staff would otherwise lose their jobs. The likes of my daughter now under their control provide work and money to the pharmaceutical industry.
No matter how good a specialist hospital is rated, there are huge risks involved when you tamper with medication and the fact is this Consultant Psychiatrist has taken her off a large amount so he said he was going to and from what I have heard has mixed this with another drug that has the highest suicide rate according to Professor Healy’s research. All I have done as a mother is to speak up for my daughter and have said that once off the drugs I would have her home again as I believe the drugs were the cause of her behaviour. Yes I would have her home but I do not think that is the best solution as she will need to be independent and cannot depend on me as a mother for the rest of her life. Having said that, if you take someone off the drugs too quickly like this then they can go downhill several months down the line. This is the sad fact – withdrawing from these drugs needs to be done very very carefully and should be done under professional help and to stay off these drugs, you need to do it over a very long period of time and very slowly and gradually. I am not a doctor but I believe this is the case as I have seen failure at first hand because of too steep a withdrawal twice before.
Once on a treatment order noone tells you anything but I have found that the case anyway even before, though I am nearest relative you get no information and even when you have a signed consent form giving consent for information to the family, they discount this and refuse you to have sight of the files by saying that the patient has changed her mind or – there is a mistake on the file and that is despite signing in front of the whole family. They disallow you to see the files and have any real information and this is so very wrong. A patient drugged up to their neck is also not likely to ask for their files or be strong enough to defend themselves against the team.
The fact is though things could still come back on this team as something could happen to make them accountable and my blog is a very honest one – I am deeply concerned for my daughter’s life right now because of the amount of medication one psychiatrist after another put her on at local level and the Maudsley are continuing with this experimentation and not giving any information but what when someone dies – then there has to be an investigation and as in the case of another family member which I cannot speak about right now, I would want a full and huge investigation God forbid this happens to my daughter. A psychiatrist at local level admitted the drugs are given on a trial and error basis.
The last things said to me were “GET ME OUT OF HERE” – she is not happy there – none of the patients look happy in fact – the fact that there is such tight security says it all – they keep patients in like prisoners so they cannot go missing and surely anyone would want to escape from this. However, Elizabeth was willing to remain until such time a more suitable placement could be found.
The other thing said to a nurse during my last visit was “LEAVE US ALONE – I WANT TO SPEND TIME WITH MY MUM BY MYSELF”. I did not encourage Elizabeth to say this at all. At the same time a patient can turn against you as being the closest person as they blame you for “PUTTING THEM IN THE SITUATIN WHERE THEY ARE IN – LIKE ELIZABETH BLAMES ME FOR PUTTING HER INTO THE ROYAL BETHLEM AS SHE IS UNHAPPY THERE. IN FACT THIS WAS THE ONLY THING ON OFFER – I HAD IN FACT ASKED FOR THE WONDERFUL CAMBION FOUR STAR WARDS – THIS IS REALLY WHAT I WANTED.
YES MY VIEWS ARE STRONG ON THE DRUGS AND THIS IS WHY THE TEAM DO NOT LIKE ME AS THIS IS THE MAIN TREATMENT UNDER THE NHS BUT THAT DOES NOT MEAN THAT I WOULD ATTEMPT TO GET MY DAUGHTER OFF THE DRUGS M YSELF AS I AM NOT A DOCTOR AT THE END OF THE DAY. ALSO I AM NOT ADVISING MY DAUGHTER TO TAKE HERSELF OFF THE DRUGS AT ALL. I AM NOT TELLING MY DAUGHTER TO STOP TAKING THE DRUGS OR INFOUENCING HER THERE AS I KNOW THAT NOW SHE IS ON THAT ORDER THEY CAN JUST DO WHATEVER THEY LIKE WITH MY POOR DAUGHER AND SO THE SOONER SHE GETS OUT AND IS TRANSFERRED TO A NICE PLACE THE BETTER FOR ME AS THE WHOLE THING IS AFFECTING MY HEALTH.
WHY PUNISH HER IN SUCH A NASTY WAY TO GET BACK AT ME BECAUSE THAT IS HOW I SEE IT. IT IS OF NO BENEFIT TO ELIZABETH THAT SHE IS NO LONGER ALLOWED OUT TO THE PARK, TO RESTAURANTS, CINEMA OR CHURCH EVEN IN MY COMPANY AT THE WEEKENDS AT A TIME WHEN THERE IS NOTHING WHATSOEVER GOING ON . ACTIVITIES ARE HELD DURING THE WEEK BUT AT WEEKENDS THERE IS NOTHING – I SEE THIS AS EXTREMELY CRUEL AND WRONG THAT MY DAUGHTER SHOULD BE PUNISHED BECAUSE OF ME AND I FEEL SO GUILTY SHE IS THERE AT THAT HOSPITAL, ROYAL BETHLEM WHERE I TRULY BELIEVED THEY WOULD RESPECT AND HELP HER.
IN THE COURT PAPERS IT SAYS THAT CLOZAPINE HAS BEEN REFUSED BY THE PATIENT BUT THAT THIS WOULD BE CONSIDERED TREATMENT IF SHE DID NOT RESPOND TO CURRENT TREATMENT OR WORDS TO THAT EFFECT.
CLOZAPINE – VOLUNTARILY WITHDRAWN BY THE MANUFACTURER IN 1975 AS IT WAS SHOWN TO CAUSE AGRANULOCYTOSIS – A CONDITION INVOLVING A DANGEROUS DECREASE IN THE NUMBER OF WHITE BLOOD CELLS THAT LED TO DEATH IN SOME PATIENTS. HOWEVER THE FDA GIVES FIVE BLACK BOX WARNINGS FOR AGRANULOCYTOSIS, SEIZURES, MYOCARDITIS FOR “OTHER ADVERSE CARDIOVASCULAR AND REESPIRATORY EFFECTS. CLOZAPINE IS USED AS A LAST RESORT IN PATIENTS WHO HAVE NOT RESPONDED TO OTHER ANTI-PSYCHOTIC TREATMENTS DUE TO ITS DANGER OF CAUSING AGRANULOCYTOSIS AS WELL AS COSTS OF HAVING TO HAVE BLOOD TESTS CONTINUALLY DURING TREATMENT. THIS IS WHAT ELIZABETH DID NOT WANT TO HAVE. SHE IS STILL TALKING ABOUT THE ABUSE SHE SUFFERED IN THE FIRST INSTANCE AND HAS NOT GOT OVER THIS. WHY CANT THE NHS SEE THE FACTS – A PATIENT NEEDS COUNSELLING NOT DRUGS. WHY DO THEY CONTINUE TO ABUSE MY DAUGHTER IN THIS NASTY WAY, CONTROLLING TO SUCH AN EXTENT I CAN NOT EVEN SPEND TIME IN TAKING HER TO CHURCH AS THEY HAVE IMPOSED STRICT ORDERS THAT I B E ESCORTED EVERY WHERE WITH HER AND THERE IS NOONE TO ESCORT HER DURING THE WEEKEND.
I WANT A FULL ACCOUNT OF THIS ON MY BLOG AS IF ANYTHING HAPPENS TO MY DAUGHTER I WANT A FULL INVESTIGATION AND HUGE PUBLICITY LEADING TO CHANGES IN THE MENTAL HEALTH SYSTEM SO THAT NOONE ELSE GOES THROUGH WHAT I AM GOING THROUGH.
IN SHORT THEY HAVE DESTROYED MY LIFE – THEY HAVE TAKEN EVERYTHING FROM ME.
I AM JUST A MOTHER BUT ALL I WANT IS FOR MY DAUGHTER TO BE HAPPY. I HAVE BEEN TREATED LIKE A COMMON CRIMINAL AND MY DAUGHTER STRIPPED OF HER HUMAN RIGHTS – IT IS TERRIBLE WHAT IS GOING ON AND THE FACT THAT NOTHING IS DONE ABOUT IT.
A PRISONER WOULD APPEAR TO HAVE MORE RIGHTS THAN A MENTAL HEALTH PATIENT AND THIS IS SO VERY WRONG.
SURELY IT IS ENOUGH FOR THIS TEAM THE FACT THAT ELIZABETH MAY WELL NOT RETURN TO THE LOCAL AREA AND I AM MORE THAN HAPPY WITH THIS AS THE CARE IS APALLING BOTH UNDER THE NHS AND SOCIAL SERVICES. THE PLACES SHE WOULD BE POSSIBLY SENT TO ARE A FAIR DISTANCE AWAY FROM HOME AND I WOULD NOT BE ABLE TO SEE HER MUCH AND ALSO SHE WOULD BE UNDER MORE TEAMS HOWEVER THERE IS ONE PLACE I HAVE HEARD OF THAT REALLY RESPECT PATIENTS THAT HAVE SUFFERED ABUSE AND THIS IS THE PLACE I WANT HER TO GO TO AND THE SOONER THE BETTER.
ALL I AM WORRIED ABOUT NOW IS THAT THE TEAM WILL TAKE IT OUT ON MY DAUGHTER AS NONE OF THEM LIKE ME BECAUSE I HAVE BEEN SO OUTSPOKEN. SURELY SENDING HER TO A MUCH NICER AND PEACEFUL ENVIRONMENT WOULD BE THE BEST OPTION THAN KEEPING HER LOCKED UP AS A PRISONER, INFRINGING ON HER HUMAN RIGHTS BY NOT EVEN ALLOWING HER OUT TO CHURCH WITH ME AT THE WEEKENDS.
WHAT A DISGRACE THE SYSTEM IS THAT ALLOWS SOMETHING LIKE THIS TO HAPPEN. UNLESS A PATIENT IS AT RISK FROM A RELATIVE THAT IS EITHER UNDER DRUGS OR HAS SEXUALLY ABUSED THAT PERSON OR IS VIOLENT – FOR THESE REASONS YES THERE SHOULD BE RESTRICTIONS BUT I HAVE HAD EVERY CHECK DONE ON ME THROUGH A POLICE APPLICATION AND HAD TO GIVE UP TRAINING BECAUSE OF MY PERSONAL SITUATION WITH MY DAUGHTER WHEN I APPOINTED THE ORTHOMOLECULAR PSYCHIATIRST.