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Monthly Archives: May 2012

Just received the bad news my car cannot be fixed and is a write off thanks to an incompetent garage.  This is a problem to me right now as getting to see Elizabeth is a long and awkward journey and travelling takes most of the time.

Did not visit on Saturday but on Sunday the weather was cold and raining – not like summertime.

I did not arrive that early but we made the most of the time together and went to a very nice gym – a  branch of one I used to belong to in the local area to where I live.  We were not allowed to use the facilities but the allowed us in to speak to the membership team as I thought such a membership would be very god for Elizabeth – that is of course when she is allowed out again.   Time passed quickly and on the way back I spotted a very nice car for sale however do not know what to do for sure about this as although it is reasonably price considering the condition it is costly to run.  Said I would let them know this week but may go without a car for a while and save more towards it.

It was late by the time I got home and I was exhausted.

 

Bank Holiday Monday – again visited but got there a bit earlier this time.  We went into a lovely town where there was an abundance of beautiful shops.  On the way back Elizabeth was showing signs of distress and she was feeling unwell with flu light symptoms earlier on as well.  This made me furious as none of this would have happened had she not been put on all these terrible drugs – all of which are FDA approved yet extremely dangerous.  Despite me writing to the FDA several times about Seroquel they still carry on allowing it to be marketed.  Olanzapine is another and Clozapine.   They are allowed on the market to profit the drugs companies/pharmaceutical industry whilst Governments like the British Government turn a blind eye. 

 

On leaving the hospital which is like “prison” I spoke briefly to another patient who is allowed out alone and said simply “are you happy here” to which he replied “no.”   That says it all.

When I got back I was up late writing all these letters –  The Government clearly cannot care less however Prince Charles has recently given a good speach about health professionals having more empathy towards patients.  I commend him on this and I decided to write to him and other Royal Family members.   With a title “Royal” in front of the hospital I do not think my daughter’s care lives up to this title as she has come there to have a drug-free assessment and now they are not doing things properly and I can never accept their conclusion.  I just want her moved away from this awful dumping ground of NHS care.

Worst was still to come……………………

This week we have lost our beloved kitten thanks to someone staying with us just letting him out and we have not yet got a cat door put in.  I slept downstairs on the settee in the hope he would reappear but to no avail.  I am absolutely devasted about this.  The car does not matter but Fluffy does and I had just spent money on having pictures done of him at a photographers.  I am gutted and so are the rest of the family. 

  

 

 

Friday I attended a meeting which was a waste of time as the main issue is medication and I got nowhere.  The psychiatrist sat there smiling smugly when I complained at the harmful drug Olanzapine that he had switched Elizabeth to – the pharmacist was also smiling until I commented.  The meeting was a complete disaster and came to an abrupt halt by with the threat of me being escorted off the premises by security.  That was of course following my comments to appoint solicitors of course.

Dr Ann Blake Tracy commented in an email words to the effect of it being a sick game that he is playing, knowing full well that switching drugs is bound to cause someone’s behaviour to go off the rails, leading to sanctions and more control by him. 

My one hope is the solicitors currently involved.   What abuse that is going on in the UK! – a so called expert who cannot prove the cause and what the mental illness is as there are no scientific tests to do this – this expert in turn ignores a patient’s cries for help who has been complaining so many times of severe side effects.  He then goes on to prescribe yet another useless drug and one of the worst that she has been on before.  Professor David Healy has cited this drug as one of the worst in cases of suicide and it is also bad for weight gain.  There are Professors attached to this hospital who do not deserve the title “Royal” in my opinion yet with all this expertise they cannot withdraw my daughter safely from Seroquel and do things completely wrong so that it is bound to fail.   There is no way I can accept their diagnoses as the leading professor did promise a drug-free period. 

Dr Tracy says it is like switching from Coke to Pepsi and any change and mixing of drugs can cause adverse behaviour. 

 

 

The title speaks for itself and is very true.  This is where they send people to as a very last resort.  It is a place where they switch medications and further their experimentations and against a patient’s wishes (as in the case of Elizabeth) – that is despite signing a declaration to say “no further experimentation”.

At Cambion 4 Star Wards set up by a former acute patient – this sounds ideal and is on offer under my NHS trust although they have refused to provide it.  Now I just want her out of this hospital where the main emphasis is on drugs.

The Royal Bethlem Hospital is set in beautiful grounds in a very nice area.  It has good facilities such as community hall, swimming pool, art and crafts centre.  You do not see this under the local hospital care.  However, since Elizabeth’s admission for a “drug free” period as promised by the leading Professor attached to this hospital, the first thing that was offered to her was the dreadful drug Clozapine which she has refused on several occasions.   Following this the Consultant Psychiatrist went ahead against my wishes and reduced her by 150mg off the Seroquel – then he  mixed this with Olanzapine which has the highest rate of suicide and linked to law suits in the States and Professor David Healy identified this high risk in suicide in his research. 

I am apalled at what they are doing at this so called specialist hospital and have had to complain about the care.   When someone clearly wishes to come off prescribed drugs and has multiple diagnoses, when the drugs clearly do not work and noone can give scientific proof as to a diagnosis then what right do these doctors have to prescribe harmful drugs leading to long term health problems and against a patient’s wishes when that patient has signed a declaration stating no more scientific experimentation.

The Maudsley Royal Bethlem Hospital does not live up to its name.  “Its all about Clozapine here” said the lead nurse.   The ~Consultant Psychiatrist sat there at the meeting today smugly smiling along with the psychologist until I commented and that took the smile off her face instantly.   It was a waste of a precious day holiday from work and I got very upset at the meeting and had with me a close family friend.  The Consultant Psychiatrist threatened to have me arrested by security staff and I was led downstairs by other members of staff.  The social worker is nice but certainly a doctor who smiles and a psychologist likewise are not professional in their approach and especially in the way they choose not to listen to a patient’s wishes and to ignore the declarations I have sent them as regards the safety of what they are doing.  None have been returned signed and this says it all. 

 

I am extremely upset with this hospital that they are not doing what the Professor said and therefore cannot possibly give an accurate assessment.   Nothing was done properly as to take someone off such a steep amount of any drug leads to imbalance of behaviour and then the patient is punished by being put on a section and then being allowed out for only 3 hrs.  This meant that my visits were restricted and I had to get cabs back to the hospital as I was threatened I would be arrested if she was late.

 

THIS IS CARE?   THIS IS NOT CARE IN A SO CALLED CIVILISED COUNTRY AT ALL.   IT IS DIGUSTING ABUSE AND SHOULD NOT BE ALLOWED.  THE HOSPITAL DOES NOT DESERVE THE TITLE OF “ROYAL”.  IT IS WRONG TO TREAT VULNERABLE PATIENTS IN THIS WAY AND MANY HAVE NO RELATIVES AND MANY HAVE NO VISITORS TO BACK THEM BUT I BELIEVE IN FIGHTING AND IF SOMETHING IS WRONG YOU SHOULD SPEAK OUT ABOUT IT AND I BELIEVE IT IS AGAINST GOD THAT SUCH VULNERABLE AND WEAKENED PATIENTS ARE UNDER THE CONTROL OF PSYCHIATRISTS WHO CANNOT EVEN PROVE SCIENTIFICALLY WHAT CAUSES A MENTAL ILLNESS.

DR TRACY GIVES BRILLIANT ADVICE ON HER WEBSITE www.drugawareness.org and the new private psychiatrist that I appointed is an Orthomolecular Psychiatrist and this should be offered as a choice for patients under the NHS whose care is all about drugs when a patient complains about serious side effects the NHS ignore the complaints.

 

Now I am having to get solicitors involved – this is CARE UNDER THE NHS EVEN AT A TOP LEADING HOSPITAL – IT IS ALL THE SAME HOWEVER WHY IS THE OTHER THINGS ON OFFER AT MAUDSLEY NOT GIVEN TO LOCAL ACUTE WARDS.

 

THE BEST SOLUTION IS CAMBION FOUR STAR WARDS THAT OFFER EVERYTHING THAT THE MAUDSLEY HAVE TO OFFER BUT MORE.  ON THESE WARDS PATIENTS ARE TREATED WITH RESPECT AND NOT LIKE PRISONERS.

 

AT EARTH HOUSE IN AMERICA PATIENTS ARE TREATED AGAIN WITH RESPECT AND CONSIDERATION AND ARE CALLED STUDENTS RATHER THAN PATIENTS.   THIS IS THE KIND OF CARE I WANT TO SEE IN THIS COUNTRY NOT JUST DRUG PUSHING AS THE DRUGS SIMPLY DO NOT WORK AND A STUDY BY DR MALCOLM BOWERS OF YALE UNIVERSITY CITES HOW MANY PEOPLE ARE GOING PSYCHOTIC ON THESE DRUGS AND THAT SAYS IT ALL. 

 

I BELIEVE IT IS THE DRUGS THEMSELVES THAT ARE CAUSING THE PROBLEMS WITH ELIZABETH AND COMING OFF THEM YOU NEED HELP AND THERE IS NO HELP – NOONE WANTS TO KNOW ONCE YOU ARE LABELLED WITH A CONDITION TO WHICH THERE IS NO SCIENTIFIC EVIDENCE WHATSOEVER.  

DOCTORS HAVE FAR TOO POWER AND REVEL IN IT – THEY ARE ABUSING VULNERABLE PATIENTS AND SO ARE THE TEAMS INVOLVED AS THEIR JOBS AND SALARIES DEPEND ON IT.

 

MAY GOD GIVE JUSTICE ONE DAY TO THE PEOPLE SUFFERING LIKE MY DAUGHTER UNDER THE CONTROL OF PSYCHIATRY.

   

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