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Monthly Archives: April 2012

I was told my visit unsettled her and that the entire staff and patients thought I was rude.   I was upset at hearing from a  nurse that the care was all about Clozapine and that I should have done my research first.   Now I feel that Elizabeth is stuck in a prison environment and to top it all that the team will pressurise her to take this drug despite a history of heart problems within the family and she has suffered asthma in the past and allergic reactions due to asthma.  The FDA clearly state this drug should not be given in these circumstances.  She has also complained of some very serious side effects from these drugs like fever, sweating, dizziness, anxiety and confusion.   I am so glad that I am in regular contact with Dr Tracy of the International Drug Awareness Coalition.   I heard through someone I know that a form has to be given to a patient to consent to being on this drug.   Elizabeth shouted out in front of my friend who was witness “NO I DONT WANT TO GO ON CLOZAPINE”.  I hope this team listen although it is hard to trust anyone when they respond in such a way towards you and then they say that my visit upset her as well as everyone else on the ward, when in fact the truth is she wanted to go out with us and then you get a scenario where the whole team stick together to support one another.    THIS IS NHS CARE FOR YOU AND WHERE IS THE PROFESSOR – NOONE SEEMS TO KNOW.   THE PROFESSOR PROMISED IN WRITING SHE WOULD COME OFF THE DRUGS AND I M ADE SURE THE REST OF THE TEAM KNEW ABOUT IT BY SHOWING THEM THE LETTER.  ELIZABETH’S WORDS WERE “PLEASE DO WHATEVER IT TAKES TO GET ME INTO ………………HOSPITAL..”  PLEASE MUM PLEASE HELP ME COME OFF THE DRUGS – DO WHATEVER IT TAKES”   SHE WANTED TO COME OFF THE DRUGS NOT BE EXPERIMENTED ON ANY MORE. 

SHE IS NOT ON A SECTION YET SHE WAS NOT ALLOWED OUT!  

 

THE REST OF THE FAMILY ARE VISITING AT THE WEEKEND AND ARE VERY UPSET AS WELL.  LETS HOPE THEY DO NOT PUSH THESE DRUGS ON HER AND THEN MAKE OUT SHE IS  HAPPY AS I WILL LINE UP WITNESS AFTER WITNESS IN THIS RESPECT AND HAVE WRITTEN NOTES TO THE TEAM WHICH HAVE BEEN IGNORED AND NO END OF PEOPLE HAVE HEARD HER SAY “PLEASE HELP ME COME OFF THE DRUGS”. 

 

SHE WAS NEVER ON DRUGS BEFORE – NEVER TOOK ALCOHOL WAS A PLACID, POLITE GIRL WHO HAD A JOB.  SOMETHING BAD HAPPENED TO HER AND SHE SHOULD NOT HAVE BEEN PUT ON THE DRUGS IN THE FIRST PLACE.  THEY HAVE RUINED MY DAUGHTER AND THEY WILL KILL HER ON A DRUG THAT IS VERY VERY HARMFUL NEEDING REGULAR BLOOD TESTS.   I HAVE ASKED DR TRACY FOR HER SUPPORT AS SHE REPRESENTS PEOPLE IN COURT AS EXPERT WITNESS IN SOME OF THE MOST HIGH PROFILE HOMICIDE CASES.   I WOULD URGE ANYONE IN A SIMILAR POSITION TO LOOK AT HER  DRUG AWARENESS WEBSITE AND THAT OF THE CCHR AND REVELATIONS UK.

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CLOZAPINE OTHERWISE KNOWN AS CLOZARIL AZALEPTIN, LEPONEX, FAZACLO FROIDIR DENZAPINE, ZAPONEX, KLOZAPOL AND CLOZAPINE IS AN ANTI-PSYCHOTIC DRUG USED FOR TREATMENT OF SCHIZOPHRENIA AND BIPOLAR.   IT WAS VOLUNTARILY WITHDRAWN BY THE MANUFACTURER IN 1975 AFTER IT WAS SHOWN TO CAUSE AGRANULOCYTOSIS, A CONDITION INVOLVING A DANGEROUS DECREASE IN THE NUMBER OF WHITE BLOOD CELLS THAT LED TO DEATH IN SOME PATIENTS.   STUDIES SHOWED IN 1989 IT WAS MORE EFFECTIVE THAN ANY OTHER ANTIPSYCHOTIC FOR TREATING SCHIZOPHRENIA.  THE FDA APPROVED IT FOR TREATMENT RESISTANT SCHIZOPHRENIA ONLY BUT THE FDA REQUIRES BLOOD TESTS TAKEN FOR PATIENTS ON THIS DRUG AND FOR IT TO CARRY 5 BLACK BOX WARNINGS FOR AGRANULOCYTOSIS, SEIZURES, MYOCARDITIS AND FOR OTHER ADVERSE CARDIOVASCULAR AND RESPIRATORY EFFECTS AND FOR INCREASED MORTALITY IN ELDERLY PATIENTS WITH DEMENTIA RELATED PSYCHOSIS.  IT IS USED AS A LAST RESORT TREATMENT AND AT FIRST BLOOD TESTS ARE CARRIED OUT CONTINUALLY WITH WEEKLY CHECKS FOR THE FIRST SIX MONTHS AND THEREAFTER THE CHECKS ARE REDUCED.

AGRANULOCYTOSIS IS AN ACUTE CONDITION INVOLVING A SERIOUS AND DANGEROUS LEUKOPENIA (lowered white blood cell count), most commonly of neutrophils causing a neutopenia in the circulating blood.  It represents a severe lack of one major class of infection-fighting white blood cells.  People with this condition are at very high risk of serious infections due to their suppressed immune system. 

ELIZABETH IS VERY UPSET – SHE HAS BEEN OFFERED THIS AWFUL DRUG SO MANY TIMES AND HAS REFUSED IT.   SHE REFUSED IT AGAIN TODAY IN FRONT OF THE LEAD NURSE.

I COMPLAINED ABOUT ELIZABETH BEING OFFERED THIS AND SAID THE PROFESSOR PROMISED SHE WOULD HAVE A DRUG FREE PERIOD AND SHOWED HIM THE LETTER AND ALSO ELIZABETH’S EMAIL BEGGING TO COME OFF THE DRUG.   THE LEAD NURSE TURNED ROUND AND SAID “YOU SHOULD HAVE DONE YOUR RESEARCH FIRST – IT IS ALL ABOUT CLOZAPINE HERE”.  I WAS EXTREMELY UPSET AND ELIZABETH SHOWED HER DISTRESS IN HER BEHAVIOUR AND I LEFT THE WARD TO GET HER A MCDONALDS AND HER NEW FRIEND SHE APPEARS TO BE LOOKING OUT FOR ON THE WARD.  

I WILL NAME THE HOSPITAL AND THE ENTIRE TEAM IF THEY ABUSE HER HUMAN RIGHTS IN COMING OFF THE DRUGS AS I HAVE IT IN WRITING FROM THE PROFESSOR WHO LIKEWISE WILL ALSO BE NAMED.

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