This is the last weekend for Elizabeth in the area where she was born.
Next week she faces being transferred quite a distance away to the specialist hospital.
Today I saw her and took her off the ward and we went to a place that is so high up you can see wonderful views of London. Elizabeth went ice skating and after this we made our way back and stopped off to have a meal. Throughout the day Elizabeth was unsettled and you could not have a conversation with her at all. By the end of the day it was best not to say a word to her – that was how bad things were and at times her behaviour was quite unpredictable. One thing for sure is that Elizabeth is extremely upset at her whole situation and there is no doubt about her feelings on the drugs that are being given and how much she wants to come off them.
I have all these papers from the specialist hospital but whilst they look impressive, I just do not know how or what they are going to do about taking her off the drugs – the whole business is extremely risky but I have to say Elizabeth has no quality of life on them and they do not work so now I am so concerned for her but at the same time happy if this hospital can do something to help her and listen to her wishes for once.
YES IT CAN BE DONE – YOU DO NOT HAVE TO REMAIN ON THESE HARMFUL DRUGS FOR THE REST OF YOUR LIFE – PRESCRIPTION DRUGS SUCH AS THESE MIND ALTERING ANTI-PSYCHOTICS ARE EXTREMELY HARMFUL. ANTI-PSYCHOTICS DEHUMANISE SOMEONE AND CAN CAUSE SEVERE AGGRESSION AND SUICIDE/HOMICIDE. I HAVE NO DOUBT ABOUT THIS. I JUST HOPE EVERYTHING GOES WELL AS COMING OFF THESE DRUGS IS EXTREMELY RISKY AND YOU SHOULD ONLY DO THIS UNDER MEDICAL SUPERVISION.
I will not be around to help Elizabeth move things – the local hospital will deal with that however she will be near to where I work so I can visit her and see her at the weekend. It may unsettle her if I am there on Tuesday in any case. I have no idea what to expect.
Meanwhile, a patient on the ward wanted to write something. During the week I will post some words from this patient who is extremely intelligent and has a lot to offer in terms of ideas of improvement for patients.
I have received papers asking me whether I want to be a Governor of the local NHS Trust – I believe they should be asking the patients and getting the patients involved as they are the people who know best and have experienced how awful if is to be on the acute wards
Next week I will write about the wonderful ideas that should be on offer for all the patients and you should not have to fight for decent care or alternative care – there must be changes made as patients are not getting better at all and patients should be listened to.