This morning, I decided to visit Suffolk Ward, Chase Farm Hospital Enfield, to find out whether Elizabeth’s possessions had been found and, if not, sort out reimbursement to the value of circa £100, which included Birthday presents going back to February 2021, including M&S leggings and top. These items valued at around £35 were never replaced and the Deputy Ward Manager who took the receipts never got back to me. Also a brand new tuppaware container containing the Birthday cake went missing. Whilst not much money, it is a matter of principle. Elizabeth has recently been discharged from Chase Farm Hospital, Suffolk Ward and several more items of possessions have gone missing ie., black and white Morrisons jacket, new pair of Sainsbury’s sandals and a pair of mock sheepskin slippers. Also, when Elizabeth was chased around the room by four male “nurses” she did not recognise and dragged into a seclusion room to be injected, during this scuffle her handbag was broken and I am requesting this to be replaced too; it was ripped off her shoulders and during all of this she lashed out with her feet and was kicked in the leg in retaliation by a male member of staff. I am sure the Morrisons jacket was more expensive but when I found out the price recently it had gone down to just £12 so with these items plus the Birthday presents everything amounts to around £100.

I was advised by the new Manager of Suffolk Ward (KS) that everything was in Pal’s hands so I decided to visit the office of Pals who said they had received absolutely nothing in terms of paperwork. I was advised to call at the ward which I did. I was told the Manager was coming first of all. I stood there patiently for a very long time and then was told again that the Manager was coming. I waited again for a very long time then a male nurse came to the door and offered to take the receipts off me but I then said that not only did I wish to give the receipts but I also wanted to discuss the Discharge Notice Elizabeth has just passed to me. It must have been about an hour I patiently waited in total and this male nurse disappeared but it was obvious that no-one was going to come out. I then called at reception and asked to speak to someone more senior. I was told to wait in the foyer which I did and all the time Elizabeth was phoning to see where I was as she was waiting for me at her flat. Then I noticed the person coming towards me was someone who is described in her previous response letter to Elizabeth’s complaint as “Covering for Suffolk Team Manager” JA. I had previously had contact with JA but was unsure of her title. Anyway, JA’s response was typical in terms of being defensive when challenged of anything wrong and I was not impressed with her response to Elizabeth’s complaint as I had nothing to do with this. In my opinion it takes guts for a patient to voice their concerns which I will outline in this blog. When I complained to JA that £100 of items went missing she was unsympathetic stating that it is a patient’s responsibility to look after their possessions on the ward. I responded that this was highly unsatisfactory since when things had gone missing on other wards such as Huntercombe and Cygnet, items had been reimbursed so I did not see why Suffolk Ward should viewed as a special case. She repeated it was a patient’s responsibility to look after their possessions. I said “easier said than done” when a patient such as Elizabeth was drugged to the hilt like a zombie and had found patients entering her room late at night on more than one occasion. I also questioned as to what Elizabeth was doing on their MH acute ward as she had autism to which JA responded that none of the patients on Suffolk Ward had anything other than a mental health diagnosis to which I said “rubbish” and showed her the 24 Hour Discharge Notification with ICD10 codes purely on physical health only. I also pointed out that Mencap/NAS and Access would not have got involved had I not been able to produce substantial evidence from the very beginning and referred to substantial divide in opinion by other professionals. She pointed out that the ICD10 code was for mental illness ie Elizabeth is said to have paranoid schizophrenia for which the team have refused to budge, however I have looked up ICD10 and this is what I have found:

ICD-10

ICD-10 is the 10th revision of the International Statistical Classification of Diseases and Related Health Problems (ICD), a medical classification list by the World Health Organization (WHO). It contains codes for diseases, signs and symptoms, abnormal findings, complaints, social circumstances, and external causes of injury or diseases. Work on ICD-10 began in 19…

This is the first time ever I have come across a list of physical health conditions such as:

Other abnormal findings on diagnostic imaging of central nervous system

Other and unspecified symptoms and signs involving cognitive functions and awareness

Pruritus unspecified.

I am not a doctor or nurse but this reads to me as though Elizabeth has suffered injury in the course of one year’s incarceration where she has been drugged to the hilt on drugs previously found to be allergic to by several doctors and the depot version of Risperidone administered now switched to max level of Clopixol depot for which it has been promised regular reductions and titration right down. The Community RC explained that a reduction of the max level of Clopixol would commence at the next due depot injection which Elizabeth says is due on Monday and the first reduction is 50mg but this sounds quite high to me. Previous attempts at reduction have been too steep/cold turkey and had failed but this was recorded as relapse of mental illness, whereas it was withdrawal syndrome. This time the community RC explained that care would need to be taken on the very low dosage and that this could cause delusions/hallucinations – all the symptoms said to be of mental disorder when in fact these are the side effects of withdrawal. He also said he would have to increase his visits to see Elizabeth but this alone might be triggering for her as even a phone call from the MH team affects Elizabeth’s mood and puts her on edge.

JA could not explain re the Discharge Notice and said she was not a medical professional but KS new manager of Suffolk Ward is a medical professional who did not wish to come out and see me.

Since being discharged from Suffolk Ward Elizabeth is looking better but her breathing is of great concern. Never before was she like this. I know something is wrong and I am not even a nurse/doctor.

Elizabeth has had a chest Xray which I took her to. She has a blood test coming up and eye appointment, all of which I have to take her to. She says she has blurred vision and balance problems, that she has chest pains and headaches. She can barely walk.

Today I decided to ring Elizabeth’s GP to ask for a Neurologist appointment. The GP said she had to justify this appointment so I told her that I had the discharge papers that highlighted what appeared to be physical health concerns under ICD10. I also said that last time Elizabeth saw a Neurologist the Neurologist suggested genetic tests for rare condition of Wilsons Disease and that nothing should be ruled out as it says in the files “Lets rule out anything organic” but now I want everything organic looked at properly including the MRI scan Elizabeth wanted in the first place. The GP did not understand about the Discharge Notice contents and said before any referral could be made to see a Neurologist she needed to find out more about the things listed as the tick boxing had to be done very carefully otherwise the request would be rejected.

Elizabeth telephoned frequently to see where I was and I was mainly stuck at Chase Farm Hospital waiting in vain.

I have the letter in response to Elizabeth’s complaint by JA in front of me. To summarise:

You reported that nobody has explained to you why you are sectioned as you do not believe you are mentally ill. JA responded listing Tribunal’s decision going back to 2008, mentioning CTO and section 136 and that everything was explained to her. “I am sorry you do not believe you have a mental illness but would like to assure you that the correct process have been followed. “I am sorry that you do not believe that Elizabeth has been misdiagnosed as otherwise the wonderful organisations of Mencap/NAS and Access otherwise would not have got involved and as for the recent discharge note it would appear that Elizabeth has suffered injury and would assure you that there was no mention of mental disorder whatsoever – the first time this has ever been seen.

You told us that we have informed you that we are sending you to another hospital and you do not know why and you think that we may be waiting for a bed: “The team has a conversation with you in January 2021 that they were considering longer term placement as part of your care plan ie Priory placement. I hope that following this meeting you now are up to date with any plans for ;you to move. Likewise thanks to NAS and Access thank God stopping another six month OOA placement at Priory. Yes, definitely Elizabeth was right as per the latest files. For instance beds in hospitals all over the country were being considered where seclusion was the option, hence Cygnet Godden Green (Requires improvement) now closed by CQC who agreed to take Elizabeth for 5 weeks.

St Andrews &Huntercombe – Full Cannot accommodate  
Cygnet Woking – full, Cygnet Brierly – full, Cygnet Beckton – declined and Cygnet Appletree  
Priory Nottingham – no seclusion  
Southern Hill PICU – no beds

In addition to all of these above, Priory Darlington, Priory Hemel Hempstead, Elysium locked Rehab Bromley Road, Elysium Thornford Park (2 months) St Pancreas Hospital Ruby Ward.

You stated that the office staff (Suffolk Ward) keep telling you to speak to Dr HM but she does not listen and does not give any information: “On Suffolk Ward we empower patients to have discussion with their consultant if the information they are asking for is not within the remit of the nurses. We encourage patients to speak for themselves during their meeting with the consultant or other ward doctors. Nurses prompt patients during this meting if they are having difficulties to express themselves or have forgotten the points they wanted to raise at their meetings. This is the reason the staff were encouraging you to speak to Dr HM. An example of such discussion is “you have got paranoid schizophrenia” “no I have autism”

You reported that you were taken to seclusion when during your admission about a year ago your bag was ripped off and the manager kicked you in the leg. “I am sorry but I have been unable to find any evidence in your record to suggest that this incident took place. However on 29 July 2020 you were reported to have lashed out at staff, kicking the ward manager in the groin and punching female staff repeatedly. ” I am sorry but what we have heard is that Elizabeth was chased around the ward by several nurses she had not seen before who got hold of her and got her in some kind of seclusion room to give the depot to which Elizabeth did lash out but there were no female members of staff present – all male and her bag got ripped off her shoulder in the process and she got kicked in the knee. She did not punch female staff repeatedly as what we heard was there were only male staff present.

You stated that your mother could not see you because of breach of social distancing on Xmas Day. Your mother reported there has been Covid 19 on the ward but no communication and wanted you to be treated fairly. Elizabeth’s mother’s blog describes the shocking experience on Xmas Day and how her car was surrounded by staff threatening to call Police which they did do despite the fact that permission had been given by the RC but the bed management overrode that decision and that was because it was proposed to move Elizabeth that day, due to the ward being changed to Amber category.

JA then talked about the CTR (which was cancelled 3X due to a completely independent and person of experience being appointed by NAS who were not happy at the lack of support for Elizabeth leading up to this meeting by advocacy, minutes of the CTR still awaited.

JA then explains re S17 that they were unable to grant this on the grounds of Covid 19 other than to attend urgent physical health appointments. This rule was explained to you and your mother. It certainly was not explained to me at the time but I found out.

You reported that you have not been treated fairly and we are trying to treat you for schizophrenia when you have autism. Your records show you have been receiving treatment for paranoid schizophrenia since 2008. You also have diagnosis of Asperger Syndrome since 2016. You are administered Clopixol 400mg depot injection (intramuscular) every 2 weeks as part of your treatment for schizophrenia. We would like to know the aspect to which you reported that we have not treated you fairly so that we can improve the care and support we provide you. Since you ask, you recognise the diagnosis of Asperger Syndrome was given since 2016 (in fact it was given in 2008 also) so how come the change to schizophrenia and where is the term “treatment resistance” meaning poor / non metaboliser. You only have to look at the treatment over the past year and see how many institutions were being considered out of area at huge expense by various nursing staff/night bed management. You only have to read the latest file records of which Elizabeth’s mother has acquired in which she herself was being labelled behind her back with a MH diagnosis by a junior doctor who has never met her. Then you only have to look at how the CTR was handled and cancelled three times with the Chair stating “the whole thing stinks”. Then take a look at the discharge to her flat – nothing apart from Crisis/Home Treatment Team phoning every other day and totally disabled. Elizabeth cannot get in and out of her small bath. She has no shower. So disabled now I am a full time carer, not able to work in a full time job right at this moment or in fact any job other than caring. Elizabeth has breathing difficulties like never before has to rest several times during the day and has no energy to do anything that is because she is on max levels of the drug Clopixol which the community RC is taking her off having been alerted to the fact Elizabeth’s mother has the Discharge Notice that states physical health concerns.

Finally JA goes on to say “I hope we have addressed your concerns. If you feel that there are any outstanding issues you can contact me on ………….”

I told JA what I thought of her letter today and will finalise my blog by replying to the above comments stating “no” and “yes” – there is the issue of £100 of Elizabeth’s missing possessions and then Elizabeth’s mother wants full clarification as to what exactly is meant on the Discharge Summary by “Abnormal findings on diagnostic imaging of central nervous system” – Please explain.

As NR, in a letter sent by courier to the Hospital Managers at Chase Farm Hospital Enfield I discharged Elizabeth from S3. This was due to expire on 1 June and I was expecting the usual ie., that dreaded call from the AMHP asking for my objection to S3, to then be barred and then dragged to court, or for Elizabeth to be placed on CTO, previously ineffective and used to bully and force her to engage with the community team or else be recalled to Chase Farm Hospital. Now the difference is Elizabeth is trapped by fortnightly depot injections and the team would know instantly if she refuses to take it. I never received that dreaded call but instead, a letter from the MHA Office stating Elizabeth is no longer subject to Section 3 as the Responsible Clinician Dr HM decided the section should be rescinded on 28 May 2021. So Elizabeth was told on the spur of the moment she was “free” to go but no discharge papers were given and so we were not quite sure what was going on.

The discharge papers have only just been received with an official discharge date of 5th June. As NR I was not given a copy other than through Elizabeth.

Under Principal Diagnosis (ICD10 Code) it is disturbing reading:

No mention of paranoid schizophrenia or autism (for which Elizabeth is awaiting a proper assessment). Instead the focus is on physical health.

“Other abnormal findings on diagnostic imaging of central nervous system

Other and unspecified symptoms andsigns involving cognitive functions and awareness

Pruritus, unspecified.”

Under specific risk and safeguarding it says N/A

Then there is a list of contacts in the Crisis Plan:

Mind Crisis Line

Saneline

The Maytree

NHS 111

North Mid Hospital

Barnet Hospital

Emergency Services

ENABLE COMPASS

IAPT

Anxiety UK

Samaritans

Elizabeth was discharged back to her flat under Enfield Crisis Resolution and Home Treatment Team service who phoned her every other day and visited only twice. Then care was transferred back to ECRHT, responsible for instigating court case after court case including CoP, RcJ – county court displacement of NR and even Section 42 meeting.

The only care currently in place is the fortnightly depot and her care coordinator visited recently to adminster the Clopixol at 400mg.

Elizabeth got completely worked up prior to the depot being administered and also when the Home Treatment Team phoned and wanted to visit. No doubt this was all very triggering for her.

Yesterday, a surprise visit from the Community RC, Dr IM – I was not advised other than through Elizabeth. He brought with him an AMHP well known to us as a family. They came yesterday afternoon- I wondered why Elizabeth appeared so stressed out. The community RC stated he was there because of her mother’s request. On reading the discharge files I had requested something be done about Elizabeth’s medication. Due to what appears to be too high a dosage, Elizabeth is just lying around with no energy, fit for nothing and has come out of hospital so disabled to the point she is no longer venturing out alone and is a shadow of her former self. She has balance problems, blurred vision, breathing difficulties particularly noticeable when walking and she has trouble swallowing/choking. He asked for input but was only interested in Elizabeth’s input. When I mentioned side effects this did not go down well and I was told he only wanted to hear from Elizabeth her comments.

Not sure if we were being recorded as the social worker (EJ) kept fiddling around with her phone in her handbag. The AMHP asked Elizabeth if she remembered her to which Elizabeth replied “no” and I replied “yes”. How can I ever forget The CoP and attempted DoLs to force her return to a care home where she had no food at the weekend ie Phoenix House Stepping Stones rated good by the CQC. This was also when the Clozapine was deprived for four days prior and in the first instance “Deprival of Medication Community Care”.

The community RC then announced his proposed titration of Clopixol down to nothing starting starting with 50mg which I am not sure is too high but I will check. It is only when Elizabeth has tried to stop taking the drugs too steeply there has been problems caused by this and not relapse of so called “illness” Now only physical conditions mentioned on the discharge notice so I can see.

It was questioned why Elizabeth was so quiet, glum and guarded but noone stopped to think why. “you wasn’t like this last time and how was you whilst in hospital in comparison?” Any kind of questioning Elizabeth absolutely hates. I told them that since coming home from hospital at least she was sleeping well but the problem is Elizabeth is highly sedated and sleeping during the day and constantly having to take a rest. This surely is not right.

I mentioned I had acquired the latest files of shocking content in which is stated “of high risk of mortality and choking”. Whenever Elizabeth gets stressed out she seems to have excess saliva which was evident during their visit.

In the past, reductions of medication have been refused but the RC stated he had reduced Risperidone down from 2mg to 1.5. I advised I had reduced it from 1.75 to 1.5 as Elizabeth could not cut a small tablet into four and neither could staff at her supported housing scheme Reservoir House. I also mentioned how Elizabeth should never have been prescribed this drug previously found to be allergic to that had lines put through countless drugs charts. The drug, Risperidone is subject to Class Action yet recommended by CQC’s SOAD as was Paliperidone, depot form in addition to plus drugging at max levels, except not recommended was the two antipsychotic IM injections given at Elysium. It is no wonder people with LD/autism die early – you only have to look at the files “Mews Score 2 /3” – that is serious and then look at the drugs prescribed against STOMP even above BNF level. I have all the proof of what goes on in these institutions.

It was also discussed that when the drug is reduced to very low level this is when care needed needs to be taken as this is when there is risk of “relapse” (withdrawal syndrome). I then commented to the effect of injury as per the comments on ICD10 diagnosis on physical health.

For safe reductions there are no facilities other than locked acute wards that are noisy and untherapeutic. When there is risk of “relapse” during drug reduction surely there should be the right kind of help given and in particular a facility that specialise in research in respect of drug withdrawals not an acute ward or PICU.

It was discussed about the CTR minutes and the fact that no minutes had been received by anyone. I have tried to chase these up as they are overdue.

After they left Elizabeth was visibly upset. She spoke of her life being ruined, not wanting to live and wanting to be free. She used the word “abuse” several times and that she wanted to be left alone by professionals but there is no chance of that now whilst she is on a depot and this is the only “care” in place right now.

In terms of risk – absolutely nothing is mentioned apart from N/A.

In terms of health and safety – no mention either but I would comment that since December’s lockdown Elizabeth had spent a great deal of time in her bedroom on the ward not venturing out. She was phoning me constantly asking me to bring things but I could not visit and she was not even allowed a fresh air break. She says she is amazed she is still even alive but comments that life is not worth living. I can see what she means by that and it is very hard to hear such comments. The situation of the lockdown led to her physical health being neglected. Tomorrow is the XRay appointment regarding her breathing and next week are more appointments re her eyes which are troubling Elizabeth. Totally dependant on me as her carer with no help in place these appointments fall on me in order to take her.

Worse still, Elizabeth has gained enormous weight from no exercise over so many months of incarceration and as a result, she can no longer get in and out of her bath and there is no shower so I have had to bring her back home for this purpose.

I have never seen Elizabeth come out of hospital quite so disabled and she appears to have agoraphobia and worse still breathing difficulty which is quite noticeable at times.

Elizabeth was suddenly discharged from Suffolk ward, Chase Farm Hospital Enfield last week. I was not sure in the absence of any paperwork whether she was properly discharged. I have requested the discharge papers several times but to no avail. I have still not received the minutes from the CTR meeting. I knew when Section 3 was due to expire so I arranged a courier to take my standard letter as NR to the MHA office at Chase Farm Hospital Enfield. I was expecting the worst – yet another court appearance through barring. It was nerve wracking waiting but no Barring Notice was issued on this occasion. I see Sections as being nothing more than punishment and this has a knock-on effect that is most devastating on everyone in the family. As Nearest Relative I have been taken to court so many times and treated like a criminal. CoP threw the case out in 2014. Elizabeth was found to have capacity to decide on where she wanted to live. In 2017 I was taken to RcJ for displacement by an AMHP who went back to the time Elizabeth suffered extensive abuse at a local supported housing scheme but I acted as Litigant in Person as I did not see her as being suitable as NR having read her file notes previously. Besides it is a conflict of interest that an AMHP working for LB Enfield should be even considered as the nearest relative. Previously I was taken to Bromley Court (court papers sent to my work email address) deluged with phone calls re agreement to S3. It was attempted to displace me with her father who in their opinion was of best interest Elizabeth was at Bethlem Nat Psychosis Unit and her Section 2 had come to an end. I did not realise back then that I could have taken Elizabeth away from them but since I have gained knowledge as to how corrupt things can be and how vulnerable people can be hauled into hospital – sectioned unlawfully and all they get is £1 compensation and treated like criminals. I have a cheque for when I challenged the first unlawful section for just £1 which I have had framed. Since then another unlawful section has come to light. Why should a vulnerable person be treated any differently to anyone else. The system is a disgrace and works against the weak and vulnerable and their families. A system not fit for purpose where tribunals are a complete ordeal for someone like my daughter who has been misdiagnosed and has autism/LD. Some Tribunals can be biased and even threats of imprisonment are voiced by some Judges. Imprisonment if I dared to talk about the tribunal and I feel like doing just that because after all this is public money.

So now Elizabeth has been discharged without any paperwork but It is all thanks to Mencap, NAS and Access – without them she would undoubtedly have been sent to the Priory for six months in yet another locked facility out of area which she did not wish to go to.

This is the advice I have just received (my comments in bold)

“Firstly, it appears that Elizabeth should be eligible for s.117 aftercare services, separate to any duties arising from the Care Act; (After-care services mean services which have the purposes of meeting a need arising from or related to the patient’s mental disorder and reducing the risk of a deterioration of the patient’s mental condition (and, accordingly, reducing the risk of the patient requiring admission to hospital again for treatment for mental disorder); What mental disorder? Elizabeth should be under different care – she has a neurological condition not a mental disorder and this is recorded going way back as “Anterior Region Medial temporal compromise. I am not even a Doctor to know this is not a mental disorder and I checked everything with Headways. What does affect Elizabeth’s condition is the team themselves as all they can talk about is medicating and of her next depot injection and she has a fear of needles plus the depot has been given roughly where the needle has broken. Prone restraint and all men giving the depot. It should be called “aftercare abuse” in my opinion. The depot does nothing for her and does not even work.

Secondly, you have a freestanding right to a Carers Assessment under the Care Act s.10 even if Elizabeth does not want to engage with a Care Act assessment. This could be a good way to begin discussions on what support options there are and certainly of recording the impact on you in the absence of formal support. It is said in Elysium’s files that I was offered a Care Act Assessment but refused it. In fact this was a MHA Assessment but luckily I obtained the files and found out back in 2014. Luckily I did not go in the circumstances.

Thirdly, even if Elizabeth does not want to engage with a Care Act assessment, there may still be a duty to do one:

s. 11 Refusal of assessment

(1) Where an adult refuses a needs assessment, the local authority concerned is not required to carry out the assessment (and section 9(1) does not apply in the adult’s case).

(2) But the local authority may not rely on subsection (1) (and so must carry out a needs assessment) if

(a) the adult lacks capacity to refuse the assessment and the authority is satisfied that carrying out the assessment would be in the adult’s best interests, or I do not like the word lacking capacity. From the files I have obtained it is obvious Elizabeth has FULL capacity and knows exactly what she wants. Best interest – this is some kind of joke to think that a best interest is a locked prison facility for a start.

(b) the adult is experiencing, or is at risk of, abuse or neglect. Elizabeth has said the abuse is from the Professionals forcing this kind of treatment on her that does not work.

(3) Where, having refused a needs assessment, an adult requests the assessment, section 9(1) applies in the adult’s case (and subsection (1) above does not).

(4) Where an adult has refused a needs assessment and the local authority concerned thinks that the adult’s needs or circumstances have changed, section 9(1) applies in the adult’s case (but subject to further refusal as mentioned in subsection (1) above).

(5) Where a carer refuses a carer’s assessment, the local authority concerned is not required to carry out the assessment (and section 10(1) does not apply in the carer’s case).

(6) Where, having refused a carer’s assessment, a carer requests the assessment, section 10(1) applies in the carer’s case (and subsection (5) above does not).

(7) Where a carer has refused a carer’s assessment and the local authority concerned thinks that the needs or circumstances of the carer or the adult needing care have change. At Elysium it was said I refused a Care Act Assessment when it was actually a MHA assessment! Never been offered a Care Act Assessment before.

Do you know whether a capacity assessment was done to assess Elizabeth’s capacity to make decisions about her care and support and/or where she lives? Many capacity assessments (in every case found to have capacity) have been carried out but it is disturbing when certain professionals turn to MDDUS when they do not wish to disclose the contents of the files in order to get the wording to respond to me on capacity. They were advised to say she had No Capacity so I then said that I had POA and that is where POA is useful. I have everything in writing so there is no excuse for the GP Surgery to decline under GDPR Rules.

I have spoken to Elizabeth and as you say she is presently reluctant to engage with a Care Act assessment. I have left it that I will speak to her again about this. However, as a first step, we have agreed that I will chase up the minutes of the Care Treatment Review and try to obtain a copy of her discharge plan. Such was Elizabeth’s distress she was up all night worrying about a visit from her Care Coordinator and no doubt it was triggering as she has not got over the last unlawful detention of around 5 days. Where is the warrant for this? I would like a copy for my records.

You are probably aware that the Mental Health Act Code of Practice, paragraph 33.13 says:

33.13 Before deciding to discharge or grant more than very short-term leave of absence to a patient or to place a patient onto a CTO, the responsible clinician should ensure that the patient’s needs for after-care have been fully assessed, discussed with the patient (and their carers, where appropriate) and addressed in their care plan. If the patient is being given leave for only a short period, a less comprehensive review may be sufficient, but the arrangements for the patient’s care should still be properly recorded. They have already seen that a CTO does not work. It is cruel and abusive to place my daughter on a CTO and I have a good mind to put the entire CTO papers for everyone to read from the last time as the Nearest Relative was documented incorrectly when in fact It was ME who was NR as I had taken back my role from the RcJ when I realised that I was in fact still the NR. The CTO papers were full of threats of recall and the contents were disgusting to read.

I have written to Dr M this morning for further information about the discharge plan and to ask whether capacity assessments have been completed.” There is no plan and most definitely capacity assessments SHOULD NOT BE CARRIED OUT BY PROFESSIONALS FROM THE TEAM AND NEITHER SHOULD AN AUTISM ASSESSMENT. THIS IS CONFLICT OF INTEREST.

All along Elizabeth has had FULL capacity and I would commend her from speaking up for herself at Elysium and Cygnet and saying she did not want to go to a locked rehab facility out of area for the fourth time. She missed her flat and her pigeons. Elizabeth adores animals and at Elysium asked to go to a care farm but this was ignored as the team had their own agenda and a CTR was originally refused until I produced substantial evidence to Mencap/NAS and Access on autism going right the way back to the very beginning in 2008.

Since Elizabeth has come out of hospital she has declined to such an extent that she relies on me to do everything. Without any support at all I ensure Elizabeth has food in, her bills paid, I go round in my car to collect her to bring her home as she has no shower and the bath is too small for her now. It is a struggle to get Elizabeth in and out of my car which is low down and the seat belt does not fit her. I ensure all her washing is done. I ensure the flat is tidy and clean, I try to encourage her to make her bed and do basic things but all too often nothing is done and this is not how she was when she first acquired the flat. Elizabeth relies on me to collect her – at least at home she can sit out in the garden and see her cat. Elizabeth adores the pigeons and birds she sees from her balcony windows. I have put netting up to ensure that the balcony is clean. Elizabeth has balance problems and clings to my arm whilst walking. We have no adaptions in the shower at home and I was trying to get all this in place. You would think that during the course of one year something could have been done about her flat and a shower put in but noone would deal with me at the GP surgery or council’s OT assessors because she had not been discharged from hospital. I will have to try this again now she is out of hospital and see the response. The autism assessment cannot be done immediately because there is a massive long waiting list. With the diagnosis in grave doubt and up in the air this means professionals can carry on with the distressing treatment of depot injections. I am determined that a better solution can be arrived at but cannot see that this can be achieved via a MH team in the community who do not have the experience of neurological conditions and I have advised Elizabeth all the time not to stop taking the drugs steeply but yet I understand her distress at the depot injection given every two weeks and if she was to refuse then what would the team do?

In the files it says “high risk of choking and mortality”. She was not like this going back to when first admitted but it is no wonder why when hospitals such as Elysium prescribe drugs at high levels ignoring STOMP and give face down restraint plus surely it is wrong to prescribe two antipsychotic drugs IM – these being Clopixol depot plus olanzapine resulting in Mews Score 2??? No wonder there are deaths in these institution as two IM antipsychotic drugs were not advised by the SOAD. Not one of these institutions has assessed her for autism properly and enormous amounts of money have been spent in one year that has made Elizabeth come out of the system more disabled than ever and totally reliant on me.

Despite all of the above I am still so happy that Elizabeth is not on a Section right now. I think they should offer her a reduction and slowly reduce this drug as it really does not work. The effect on Elizabeth is not good for her physical health.

Below is the latest response from the Commissioner from North Central London CCG Enfield in respect of Elizabeth’s request for a CQC inspector to attend. I would agree with her request as the CTR is due to take place on the 17th May and this had been cancelled three times now. As you can see from the response from SA (Pals) and BM Head Nurse that they are totally ignoring my daughter and that of her family and just look at the degrading treatment we have had following Xmas Day. Certain others within the Trust, ie CEO, Chief Nurse and Medical Director should have responded to the complaint especially in light of their serious allegations against me but they remain silent and protected. Now this matter is being referred to PHSO via my MP. Enfield is an area where I have lived all my life which is not a bad area in itself but unfortunately we have encountered extensive bullying to the extent of Deprival of Medication Community Care (Irwin Mitchell) and DoLs – CoP slated them. It has ruined our lives and we are not alone. This has meant we have had to review our entire lives because of such bullying. Certain professionals under the NHS give the NHS a bad name and this is sad when there are many good professionals within NHS who possess kindness and compassion towards vulnerable people but not in my area re our experience. We cannot see any end in sight – every year I am battling court action after court action whether it be a tribunal or against me personally. It has made me ill. I have been taken to CoP, RcJ and other courts and treated like a criminal because I have exposed serious concerns within my local area and the CTR which was originally refused despite overwhelming evidence of conflict in opinion of diagnosis is now set to take place on Monday. Finally, Elizabeth has been appointed a specialist advocate. This CTR is meant to hear Elizabeth’s views and opinions and treat her fairly. What is the point of a CTR when certain professionals stick by their decisions which will mean our lives will be turned upside down and we have encountered arrogance and unaccountability as seen in the response by the Head Nurse. When you get labelled a vexatious complainant for the second time, having failed the first time, this shows they have plenty to hide and cover up but I have acquired the very latest files of most shocking content. I will do a separate blog on all of this plus even a You Tube video channel featuring our progress with everything as there are about to be major changes in our life which have come about because of the fact our lives have been turned upside down. Frequently, Elizabeth is phoning me. She is waiting for me to take her off the ward for the six hrs I am allowed but, whilst professionals state she is of risk to me and lie in reports for court purposes, they will not give overnight leave, which shows how ridiculous everything is. I have written to the RC of Suffolk Ward requesting overnight leave but no-one has responded to my request as Elizabeth wishes to go back home to her flat. The professionals cannot be bothered and are passing the buck and responsibility for a new team to even decide on an autism full assessment when Elizabeth had been promised this would be the case and she had been referred to Bethlem but instead it is planned to send her to a MH institution to a locked facility ie Priory Hemel Hempstead against her wishes.

https://psychiatricabuseuk.com/2021/03/06/cetr-cancelled/

https://psychiatricabuseuk.com/2021/03/04/cetr/

https://psychiatricabuseuk.com/2021/02/12/elizabeths-birthday-3/

ward/https://psychiatricabuseuk.com/2020/12/25/degrading-xmas-day-treatment-on-by-bed-management-at-chase-farm-hospital-enfield-suffolk-ward/

https://psychiatricabuseuk.com/2020/10/14/vexatious-complainant-by-amanda-pithouse-chief-nurse-and-mehdi-veisi-medical-director-behmhtnhs/

Yours sincerely

Susan Bevis

———- Original Message ———-
From: “ROBSON, Jon (NHS NORTH CENTRAL LONDON CCG)” < To: susan Bevis <susanb25
Date: 14 May 2021 at 11:39
Subject: RE: CETR LB CQC INSPECTOR CTR – L R E Bevis

Hi Susan, I had an auto response advising they will be in contact within 5 days (from Monday)

I will phone them and chase the outcome.

Many thanks

Jon.

———- Original Message ———-
From: Feryal Clark MP <feryal.clark.mp@parliament.uk>
To: susanb25Date: 14 May 2021 at 09:31

Dear Mrs Bevis, 

I have now received a copy of the letter BM, Head of Nursing for Enfield Mental Health Services, sent to you following your recent meeting with him.  

I hope you will understand that whilst I am not a medical professional, I have intervened on your behalf on a number of occasions by contacting the relevant stakeholders involved in the care and treatment of your daughter Elizabeth. I have tried to ensure your voice is heard in the assessment of your daughter’s mental and physical health requirements. 

Whilst I acknowledge and appreciate that your views may not align with that of the social care and mental health services, I believe the attached letter is definitive in addressing your concerns.

This letter is written by medical professionals who care for Elizabeth in the medical institution Elizabeth is currently at. I trust this assessment has taken into consideration Elizabeth’s needs and views, and confirms Elizabeth is receiving the appropriate care and support.

With regards to your request for a referral to the Parliamentary and Health Service Ombudsman (PHSO), you will need to fill and sign the attached complaint form before I can sign it for you. My signature is the referral and, once I have signed the form, you are required to send the form to PHSO. 

I hope I have been able to clarify my position. Should you have any questions or require further assistance, please let me know. 

Yours sincerely, 

Feryal Clark
Member of Parliament for Enfield North 


Westminster Office
House of Commons
London
SW1A 0AA
Tel: 0207 219 6607

From: SA (BARNET, ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST)”
To: Susan Bevis <susanb25
Cc: BM (BARNET, ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST)” Date: 13 May 2021 at 15:08
Subject: Reference: 9409

Dear Ms Bevis

Please accept my sincere apologies for the length of time it has taken for me to get back to you.

Having reviewed your outstanding concerns with the original response sent to you by Mr BM, it has been concluded that we will be unable to provide any further investigation. 

This is due to having exhausted the information available to us which were used as evidence to provide you with our initial response. Another response from us would be repeating what has already been detailed in our last letter.

Once again I am sorry that you had cause to raise concerns about the care and treatment provided to you by the Trust and I appreciate that this is not the desired outcome.

As we are unable to offer any further response on your concerns around your outcome letter it is well within your right to approach the Parliamentary Health Service Ombudsman to take this further. They can be contacted via email at: phso.enquiries@ombudsman.org.uk and telephone on: 0345 015 4033 or by post, The Parliamentary and Health Service Ombudsman, Millbank Tower, Millbank, London SW1P 4QP. 

Thank you for your patience in this matter.

SA

Patient Experience Manager

T: 020 8702 4700

Barnet, Enfield and Haringey Mental Health NHS Trust, Ivy House, Chase Farm Hospital, EN2 8JL

Please note my working hours and days are 8am-6pm, Monday- Thursday

Barnet, Enfield and Haringey See the source image

Mental Health NHS Trust

A University Teaching Trust

Barnet Enfield and Haringey Mental Health Trust

P2 (Old Audiology)

Hospital

St Ann’s Road

London, N15 3TH

Tel:  020 8702 4700

Email beh tr.patient.experience@nhs.net

Our Ref: 9409

2048 Private & Confidential                        

Ms Susan Bevis

P2 (Old Audiology)

Sent via email to:

susanb25

28th April 2021

Dear Ms Bevis

Re: Local Resolution Meeting via Microsoft  Teams on 22nd March 2021.

It was good to meet with you and GH along with Mr SA, Patient Experience Manager to discuss your concerns. I am sorry that you have experienced a variety of difficulties regarding the service provided to your daughter by Barnet Enfield and Haringey (BEH) Mental Health Trust and for the delay in providing this letter.     Our experience has been appalling and upsetting to the point we are looking to move to another area.  We have been advised that no way would we be treated in this most ruthless manner in other locations by other professionals which is reassuring.

As mentioned at the meeting, I advised that I will be contacting your daughter’s medical team in order to respond to the concerns you have regarding her care and treatment and I am now able to respond below.  You have completely failed to respond satisfactorily to my complaint.  We are deeply concerned about the wellbeing, physical health and safety of my daughter which we feel is being neglected.  There seems to be lack of communication, lack of insight and understanding towards my daughter who is being treated as a MH patient and denied assessments.  There is discrimination and dismissal of what she feels is her condition which is confirmed throughout the files going back to the very beginning by lots of other doctors.

Autism Assessment

I have been advised by the medical team that they have considered Autism assessment but felt your daughter’s current treatment is appropriate.   I will be passing your comments on to Mencap and National Autistic Society as well as the British Institute of Human Rights.   My daughter’s treatment is far from appropriate.   I note you keep referring to “the medical team” when it is you have responsibility as Head of Nursing.

They reported that your daughter is doing really well and as a result a rehabilitation placement has been identified for her and she has been accepted.    I have not seen my daughter every single day but have received many distressing calls from her as she is trapped by your hospital because staff persist in writing report after report containing error and untruthful statements.  As Elizabeth has sensory issues she finds the noise on Suffolk ward unbearable.  She states she does not feel well physically and wants to come home and go back to her flat.   I requested a Level 3 OT sensory assessment to be carried out some time ago.  She sees her “care” on Suffolk ward as punishment.  Punishment for an incident where she called at her GP Surgery wanting an MRI scan which was refused and it is wrongly recorded she caused a lot of damage because when I called at the GP surgery to offer to pay for such damage I was told there was none by the manager so why are lies written in the medical files.   Why hasn’t the Level 3 OT assessment been done –  This shows you are not meeting my daughter’s needs.

I understand that she has not been transferred to the placement centre as you had insisted on a Care Treatment Review CVTR before the transfer takes place.  I Am also aware that there has been postponement of the CTR on three different occasions as you were unable to attend for various reasons?????   Please note that your daughter’s new team at the rehabilitation placement will also be able to consider an autism assessment if they feel it is needed.   Please kindly note that my daughter does not wish to go and that is the point of the CTR.

The environment of the acute ward/PICUS are not peaceful environment for my daughter to get well in.  She has been sent all over the place three times and this was discussed at the CTR which took place without Elizabeth and criticised highly.  What kind of treatment is this?  My daughter has been treated like dirt so have we as a family.  Please be advised the CTR was first of all refused by Commissioner then Mencap and NAS got involved.   The CTR was a shambles because it was not organised properly.  It had nothing to do with ME not being able to attend as I was available on every occasion to attend.  The reason the CTR was cancelled three times, as explained at the meeting to you and S,  was because there was no Advocate to prepare my daughter for this meeting beforehand where for once she will be heard and listened to fairly.   In fact, the Chair of the most recent CTR said that the whole thing stunk and he called a halt to the meeting and this was adjourned until 17th May.

It has already been attempted to send Elizabeth to a locked rehab by Elysium in London.  Please explain???  

It was also attempted to send my daughter away to Priory Darlington on Xmas Day as a bed had been found hadn’t it according to my solicitor?  Please see below and these referrals were made by nursing staff/night bed management for which I have their names and every detail in the files. 

St Andrews & Huntercombe – Full Cannot accommodate  
Cygnet Woking – full, Cygnet Brierly – full, Cygnet Beckton – declined Cygnet Appletree – declined    
Priory Nottingham – no seclusion Priory Darlington St Ann’s Sunflower Ward  
Southern Hill PICU – no beds Elysium Bromley Road Locked Rehab AND NOW PRIORY HEMEL HEMPSTEAD IS PLANNED

Suffolk ward is in breach of the Equality Act and Human Rights Act.  At £3000+ a week the environment is unsuitable, unbearably noisy and not providing correct therapy that my daughter needs as, according to Elysium, Elizabeth has gone into detail during her admission about the serious abuse at Moti Villa which was non consensual.  She also mentioned  the very first incident of abuse she had suffered.   Therefore, her diagnosis that Dr Bob Johnson stated along with Dr Mukherjee of Chase Farm Hospital and private MH professionals is absolutely correct re complex PTSD.

Hormonal Imbalance

Whilst I appreciate your concerns regarding Hormonal imbalance, recent blood test has not identified any hormonal imbalance.  Nonetheless the team will continue to do regular tests regarding this.

You cannot possibly appreciate.  Elizabeth appears to be going through early menopause.  She is stated  as having a hormone imbalance by Cygnet which is mentioned in Cygnet’s most recent files.  At a previous Tribunal it was suggested a hormone clinic referral.  Please therefore make this referral to a hormone clinic.    You are dismissing the fact I have Endocrinology Reports stating PCOS and insulin resistance.  E;lizabeth scored Mews Score 2 and has excessive saliva and is reported as being high risk of mortality and choking.  I want confirmation that in your records do not state DNR.  Please confirm.  I am so concerned at your dismissiveness of my daughter’s physical health that I am referring matters to external sources as I feel my daughter’s physical health is being severely neglected and her life is at risk.

MRI Scan

I have been informed that your daughter had an MRI in the past and nothing was identified as being a problem. I have again asked for this to be investigated and the medical team do not feel she currently requires an MRI scan. I am sorry that this might not be your desired outcome.

In fact the MRI scan was cancelled due to my daughter being moved from Cygnet back to Suffolk Ward.  This was scheduled for 3rd July 2020 so please therefore arrange for another MRI scan to be carried out without further delay, bearing in mind I have file records that state she has a tumour that needs regular monitoring.  

PTSD 

Upon enquiring from the medical team regarding complex PTSD I have uncovered that the team is of the opinion that your daughter does not have complex PTSD.   

Your comments show lack of insight due by not reading file records as not only is there an extensive report by Dr Bob Johnson on complex PTSD but also Clinical Psychologist Dr Mukerjee identified complex PTSD as well as LD plus private MH professionals.

Direct payments

As your daughter is being discharged to a Rehabilitation placement, direct payments for activities will not be required.

Please note:  It is not my daughter’s wish to go to a locked rehabilitation placement. It is her sister’s wedding this year for which she has been asked to be bridesmaid.  Why are you forcing her to go to another locked ward against her wishes?   How many locked wards must she be sent to when absolutely nothing provided has worked.  Such a locked ward was Cambian in Wales and Elizabeth did not benefit from this at all.    It is her wish to go back to her flat with care and support in place. In Elysium’s files it is stated that she wants to go to a care farm and to be nearer to the rest of the family.  There are plenty of witnesses and written evidence documented in recent files by Elysium.   If Elizabeth is ignored due to CMRHT providing no care in place in the community, then Chase Farm Hospital are in breach of the Human Rights Act and Equality Act.   She is unhappy at Chase Farm Hospital and wishes to be discharged back home and I have both written and verbal evidence to prove it.   Both Chase Farm Hospital and CMHRT are in breach of Art 3 and Art 8 of the HRA in respect of the most degrading treatment we have ever encountered on Xmas Day when it was planned, without any communication to move her to Priory, Darlington as a bed had been found on Xmas Eve, according to my solicitor.    Whilst I was accused of non- social distancing on Xmas Day please provide evidence by way of CCTV camera.  I would point out that certain staff have not worn masks yet this is an Amber categorised ward and therefore in breach of Government guidelines.

Side effects

I have been informed by the team that they discuss side effects weekly and that your daughter has not expressed any concerns about the side effects of the medications that she is on. The team will continue to engage with her about side effects on a weekly basis and will also continue to encourage her to discuss with them should she have any concerns arising in future.

Elizabeth is most certainly suffering side effects from the current medication and constant skin irritation.   She has excessive saliva, is documented as being at risk of choking and high risk of mortality and I have all of this evidence in writing by way of recent file reports (Mews Score 2).   As for Elizabeth’s own complaint answered on behalf of KS by J. I have sent this to the Rt Hon Feryal Clark MP who is chasing up the outcome of my complaint addressed to CEO Jinjer Kandola from one year ago and still outstanding and, unfortunately, bearing in mind the most recent files, there are even further concerns that need addressing.   

Finally, regarding the lost items on Suffolk Ward, M KSK, Ward Manager contacted your daughter on the ward and your daughter confirmed that the lost items are a pair of thermal clothing top and bottom. Ms K will have a further look into this and if not found, she will consider the options for resolution.

The lost items that went missing back in February this year amount to £35 roughly, including my brand new tuppaware Birthday cake container.   I would appreciate reimbursement in the circumstances.  Nothing has been done about it to date.

I would like to hope that moving forward, your experience from using our services will improve and again.

Whilst your services are rated good by the CQC my severe concerns for my daughter’s health and wellbeing under Chase Farm Hospital are very justified and I have acquired all of the most recent files. 

 I would like to sincerely thank you for bringing these matters to my attention. However, I have highlighted a culture of bullying and unaccountability and arrogance within Chase Farm Hospital and under Barnet Enfield and Haringey MH Trust that seems to go right up to senior level within the Trust involving the Medical Director and Chief Nurse.  You have not even mentioned the letters I showed you where I have been labelled as a vexatious complainant and this is not the first time so please explain why you have chosen to ignore one of the main points of my complaint.   

Therefore, I am not satisfied with your response one bit especially when my daughter’s life is at risk because her physical health is being neglected and ignored I am going to ensure that my complaint is looked at independently as your response is reflective of many other similar dismissive responses excusing and dismissing matters where there are grave health and safety concerns which need to be drawn to the attention of external sources, especially when my daughter’s life has/is being put at risk.  Therefore, since you are the Head of Nursing I want my daughter to have all the necessary referrals to an Endocrinologist and Neurologist without further delay and as you are the Head of Nursing, you have sole responsibility if anything happens to my daughter because you are relying solely on the advice of a medical team who are in breach of health and safety and are neglecting serious concerns regarding my daughter’s physical health and you have clearly not done your own research into such matters.

Yours sincerely

BM

Enfield Mental Health Division Head of Nursing

Amended by Susan Bevis (Mother, Nearest Relative, POA and McKenzie Friend)

———- Original Message ———-
From: “ROBSON, Jon (NHS NORTH CENTRAL LONDON CCG)” < To: susan Bevis <susanb25
Date: 14 May 2021 at 11:39
Subject: RE: CETR LB CQC INSPECTOR CTR – L R E Bevis

Hi Susan, I had an auto response advising they will be in contact within 5 days (from Monday)

I will phone them and chase the outcome.

Many thanks

Jon.

———- Original Message ———-
From: Feryal Clark MP <feryal.clark.mp@parliament.uk>
To: susanb25Date: 14 May 2021 at 09:31

Dear Mrs Bevis, 

I have now received a copy of the letter BM, Head of Nursing for Enfield Mental Health Services, sent to you following your recent meeting with him.  

I hope you will understand that whilst I am not a medical professional, I have intervened on your behalf on a number of occasions by contacting the relevant stakeholders involved in the care and treatment of your daughter Elizabeth. I have tried to ensure your voice is heard in the assessment of your daughter’s mental and physical health requirements. 

Whilst I acknowledge and appreciate that your views may not align with that of the social care and mental health services, I believe the attached letter is definitive in addressing your concerns.

This letter is written by medical professionals who care for Elizabeth in the medical institution Elizabeth is currently at. I trust this assessment has taken into consideration Elizabeth’s needs and views, and confirms Elizabeth is receiving the appropriate care and support.

With regards to your request for a referral to the Parliamentary and Health Service Ombudsman (PHSO), you will need to fill and sign the attached complaint form before I can sign it for you. My signature is the referral and, once I have signed the form, you are required to send the form to PHSO. 

I hope I have been able to clarify my position. Should you have any questions or require further assistance, please let me know. 

Yours sincerely, 

Feryal Clark
Member of Parliament for Enfield North 


Westminster Office
House of Commons
London
SW1A 0AA
Tel: 0207 219 6607

From: SA (BARNET, ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST)”
To: Susan Bevis <susanb25
Cc: BM (BARNET, ENFIELD AND HARINGEY MENTAL HEALTH NHS TRUST)” Date: 13 May 2021 at 15:08
Subject: Reference: 9409

Dear Ms Bevis

Please accept my sincere apologies for the length of time it has taken for me to get back to you.

Having reviewed your outstanding concerns with the original response sent to you by Mr BM, it has been concluded that we will be unable to provide any further investigation. 

This is due to having exhausted the information available to us which were used as evidence to provide you with our initial response. Another response from us would be repeating what has already been detailed in our last letter.

Once again I am sorry that you had cause to raise concerns about the care and treatment provided to you by the Trust and I appreciate that this is not the desired outcome.

As we are unable to offer any further response on your concerns around your outcome letter it is well within your right to approach the Parliamentary Health Service Ombudsman to take this further. They can be contacted via email at: phso.enquiries@ombudsman.org.uk and telephone on: 0345 015 4033 or by post, The Parliamentary and Health Service Ombudsman, Millbank Tower, Millbank, London SW1P 4QP. 

Thank you for your patience in this matter.

SA

Patient Experience Manager

T: 020 8702 4700

Barnet, Enfield and Haringey Mental Health NHS Trust, Ivy House, Chase Farm Hospital, EN2 8JL

Please note my working hours and days are 8am-6pm, Monday- Thursday

Barnet, Enfield and Haringey See the source image

Mental Health NHS Trust

A University Teaching Trust

Barnet Enfield and Haringey Mental Health Trust

P2 (Old Audiology)

Hospital

St Ann’s Road

London, N15 3TH

Tel:  020 8702 4700

Email beh tr.patient.experience@nhs.net

Our Ref: 9409

2048 Private & Confidential                        

Ms Susan Bevis

P2 (Old Audiology)

Sent via email to:

susanb25

28th April 2021

Dear Ms Bevis

Re: Local Resolution Meeting via Microsoft  Teams on 22nd March 2021.

It was good to meet with you and GH along with Mr SA, Patient Experience Manager to discuss your concerns. I am sorry that you have experienced a variety of difficulties regarding the service provided to your daughter by Barnet Enfield and Haringey (BEH) Mental Health Trust and for the delay in providing this letter.     Our experience has been appalling and upsetting to the point we are looking to move to another area.  We have been advised that no way would we be treated in this most ruthless manner in other locations by other professionals which is reassuring.

As mentioned at the meeting, I advised that I will be contacting your daughter’s medical team in order to respond to the concerns you have regarding her care and treatment and I am now able to respond below.  You have completely failed to respond satisfactorily to my complaint.  We are deeply concerned about the wellbeing, physical health and safety of my daughter which we feel is being neglected.  There seems to be lack of communication, lack of insight and understanding towards my daughter who is being treated as a MH patient and denied assessments.  There is discrimination and dismissal of what she feels is her condition which is confirmed throughout the files going back to the very beginning by lots of other doctors.

Autism Assessment

I have been advised by the medical team that they have considered Autism assessment but felt your daughter’s current treatment is appropriate.   I will be passing your comments on to Mencap and National Autistic Society as well as the British Institute of Human Rights.   My daughter’s treatment is far from appropriate.   I note you keep referring to “the medical team” when it is you have responsibility as Head of Nursing.

They reported that your daughter is doing really well and as a result a rehabilitation placement has been identified for her and she has been accepted.    I have not seen my daughter every single day but have received many distressing calls from her as she is trapped by your hospital because staff persist in writing report after report containing error and untruthful statements.  As Elizabeth has sensory issues she finds the noise on Suffolk ward unbearable.  She states she does not feel well physically and wants to come home and go back to her flat.   I requested a Level 3 OT sensory assessment to be carried out some time ago.  She sees her “care” on Suffolk ward as punishment.  Punishment for an incident where she called at her GP Surgery wanting an MRI scan which was refused and it is wrongly recorded she caused a lot of damage because when I called at the GP surgery to offer to pay for such damage I was told there was none by the manager so why are lies written in the medical files.   Why hasn’t the Level 3 OT assessment been done –  This shows you are not meeting my daughter’s needs.

I understand that she has not been transferred to the placement centre as you had insisted on a Care Treatment Review CVTR before the transfer takes place.  I Am also aware that there has been postponement of the CTR on three different occasions as you were unable to attend for various reasons?????   Please note that your daughter’s new team at the rehabilitation placement will also be able to consider an autism assessment if they feel it is needed.   Please kindly note that my daughter does not wish to go and that is the point of the CTR.

The environment of the acute ward/PICUS are not peaceful environment for my daughter to get well in.  She has been sent all over the place three times and this was discussed at the CTR which took place without Elizabeth and criticised highly.  What kind of treatment is this?  My daughter has been treated like dirt so have we as a family.  Please be advised the CTR was first of all refused by Commissioner then Mencap and NAS got involved.   The CTR was a shambles because it was not organised properly.  It had nothing to do with ME not being able to attend as I was available on every occasion to attend.  The reason the CTR was cancelled three times, as explained at the meeting to you and S,  was because there was no Advocate to prepare my daughter for this meeting beforehand where for once she will be heard and listened to fairly.   In fact, the Chair of the most recent CTR said that the whole thing stunk and he called a halt to the meeting and this was adjourned until 17th May.

It has already been attempted to send Elizabeth to a locked rehab by Elysium in London.  Please explain???  

It was also attempted to send my daughter away to Priory Darlington on Xmas Day as a bed had been found hadn’t it according to my solicitor?  Please see below and these referrals were made by nursing staff/night bed management for which I have their names and every detail in the files. 

St Andrews & Huntercombe – Full Cannot accommodate  
Cygnet Woking – full, Cygnet Brierly – full, Cygnet Beckton – declined Cygnet Appletree – declined    
Priory Nottingham – no seclusion Priory Darlington St Ann’s Sunflower Ward  
Southern Hill PICU – no beds Elysium Bromley Road Locked Rehab AND NOW PRIORY HEMEL HEMPSTEAD IS PLANNED

Suffolk ward is in breach of the Equality Act and Human Rights Act.  At £3000+ a week the environment is unsuitable, unbearably noisy and not providing correct therapy that my daughter needs as, according to Elysium, Elizabeth has gone into detail during her admission about the serious abuse at Moti Villa which was non consensual.  She also mentioned  the very first incident of abuse she had suffered.   Therefore, her diagnosis that Dr Bob Johnson stated along with Dr Mukherjee of Chase Farm Hospital and private MH professionals is absolutely correct re complex PTSD.

Hormonal Imbalance

Whilst I appreciate your concerns regarding Hormonal imbalance, recent blood test has not identified any hormonal imbalance.  Nonetheless the team will continue to do regular tests regarding this.

You cannot possibly appreciate.  Elizabeth appears to be going through early menopause.  She is stated  as having a hormone imbalance by Cygnet which is mentioned in Cygnet’s most recent files.  At a previous Tribunal it was suggested a hormone clinic referral.  Please therefore make this referral to a hormone clinic.    You are dismissing the fact I have Endocrinology Reports stating PCOS and insulin resistance.  E;lizabeth scored Mews Score 2 and has excessive saliva and is reported as being high risk of mortality and choking.  I want confirmation that in your records do not state DNR.  Please confirm.  I am so concerned at your dismissiveness of my daughter’s physical health that I am referring matters to external sources as I feel my daughter’s physical health is being severely neglected and her life is at risk.

MRI Scan

I have been informed that your daughter had an MRI in the past and nothing was identified as being a problem. I have again asked for this to be investigated and the medical team do not feel she currently requires an MRI scan. I am sorry that this might not be your desired outcome.

In fact the MRI scan was cancelled due to my daughter being moved from Cygnet back to Suffolk Ward.  This was scheduled for 3rd July 2020 so please therefore arrange for another MRI scan to be carried out without further delay, bearing in mind I have file records that state she has a tumour that needs regular monitoring.  

PTSD 

Upon enquiring from the medical team regarding complex PTSD I have uncovered that the team is of the opinion that your daughter does not have complex PTSD.   

Your comments show lack of insight due by not reading file records as not only is there an extensive report by Dr Bob Johnson on complex PTSD but also Clinical Psychologist Dr Mukerjee identified complex PTSD as well as LD plus private MH professionals.

Direct payments

As your daughter is being discharged to a Rehabilitation placement, direct payments for activities will not be required.

Please note:  It is not my daughter’s wish to go to a locked rehabilitation placement. It is her sister’s wedding this year for which she has been asked to be bridesmaid.  Why are you forcing her to go to another locked ward against her wishes?   How many locked wards must she be sent to when absolutely nothing provided has worked.  Such a locked ward was Cambian in Wales and Elizabeth did not benefit from this at all.    It is her wish to go back to her flat with care and support in place. In Elysium’s files it is stated that she wants to go to a care farm and to be nearer to the rest of the family.  There are plenty of witnesses and written evidence documented in recent files by Elysium.   If Elizabeth is ignored due to CMRHT providing no care in place in the community, then Chase Farm Hospital are in breach of the Human Rights Act and Equality Act.   She is unhappy at Chase Farm Hospital and wishes to be discharged back home and I have both written and verbal evidence to prove it.   Both Chase Farm Hospital and CMHRT are in breach of Art 3 and Art 8 of the HRA in respect of the most degrading treatment we have ever encountered on Xmas Day when it was planned, without any communication to move her to Priory, Darlington as a bed had been found on Xmas Eve, according to my solicitor.    Whilst I was accused of non- social distancing on Xmas Day please provide evidence by way of CCTV camera.  I would point out that certain staff have not worn masks yet this is an Amber categorised ward and therefore in breach of Government guidelines.

Side effects

I have been informed by the team that they discuss side effects weekly and that your daughter has not expressed any concerns about the side effects of the medications that she is on. The team will continue to engage with her about side effects on a weekly basis and will also continue to encourage her to discuss with them should she have any concerns arising in future.

Elizabeth is most certainly suffering side effects from the current medication and constant skin irritation.   She has excessive saliva, is documented as being at risk of choking and high risk of mortality and I have all of this evidence in writing by way of recent file reports (Mews Score 2).   As for Elizabeth’s own complaint answered on behalf of KS by J. I have sent this to the Rt Hon Feryal Clark MP who is chasing up the outcome of my complaint addressed to CEO Jinjer Kandola from one year ago and still outstanding and, unfortunately, bearing in mind the most recent files, there are even further concerns that need addressing.   

Finally, regarding the lost items on Suffolk Ward, M KSK, Ward Manager contacted your daughter on the ward and your daughter confirmed that the lost items are a pair of thermal clothing top and bottom. Ms K will have a further look into this and if not found, she will consider the options for resolution.

The lost items that went missing back in February this year amount to £35 roughly, including my brand new tuppaware Birthday cake container.   I would appreciate reimbursement in the circumstances.  Nothing has been done about it to date.

I would like to hope that moving forward, your experience from using our services will improve and again.

Whilst your services are rated good by the CQC my severe concerns for my daughter’s health and wellbeing under Chase Farm Hospital are very justified and I have acquired all of the most recent files. 

 I would like to sincerely thank you for bringing these matters to my attention. However, I have highlighted a culture of bullying and unaccountability and arrogance within Chase Farm Hospital and under Barnet Enfield and Haringey MH Trust that seems to go right up to senior level within the Trust involving the Medical Director and Chief Nurse.  You have not even mentioned the letters I showed you where I have been labelled as a vexatious complainant and this is not the first time so please explain why you have chosen to ignore one of the main points of my complaint.   

Therefore, I am not satisfied with your response one bit especially when my daughter’s life is at risk because her physical health is being neglected and ignored I am going to ensure that my complaint is looked at independently as your response is reflective of many other similar dismissive responses excusing and dismissing matters where there are grave health and safety concerns which need to be drawn to the attention of external sources, especially when my daughter’s life has/is being put at risk.  Therefore, since you are the Head of Nursing I want my daughter to have all the necessary referrals to an Endocrinologist and Neurologist without further delay and as you are the Head of Nursing, you have sole responsibility if anything happens to my daughter because you are relying solely on the advice of a medical team who are in breach of health and safety and are neglecting serious concerns regarding my daughter’s physical health and you have clearly not done your own research into such matters.

Yours sincerely

BM

Enfield Mental Health Division Head of Nursing

Amended by Susan Bevis (Mother, Nearest Relative, POA and McKenzie Friend)

A CTR for Elizabeth is a most important meeting and Elizabeth has been told this is going ahead tomorrow.

No way will this be done fairly.

For a start she has had no support from any advocacy and the advocates are supposed to be PowHer Icas who are funded by Barnet Enfield and Haringey MH Trust. They are supposed to help prepare someone like my daughter for the CTR but have done nothing.

I was so happy to hear from National Autistic Society to say that matters had gone higher. I was told that there would be an advocate appointed by NHS England who had specialist communication skills re learning disability or autism. What good are advocates who give no support. How is this fair?

I was full of hope that matters would be dealt with fairly and that Elizabeth would be assisted with the CTR by advocates. Instead all the RC of Suffolk Ward has done is keep asking for the completed forms which are with the National Autistic Society. The reason the last CTR was called off was for the same reason – total lack of support – yet this CTR has been allowed to go ahead. How can that be right?

The CTR should be cancelled a second time because of the fact that the CTR has not been organised properly or fairly and this has been done by the RC of Suffolk Ward Dr HM.

Bearing in mind the level of dispute on treatment and everything no CTR should take place until an appropriate independent advocate through NHS England is appointed.

The CTR was scheduled to take place between 10.00 am and 3.00 pm. Elizabeth has said she does not wish to attend and who can blame her because she would have wanted to attend if a CQC inspector or an appropriate advocate had been invited.

I have notified the CQC as it is apalling how vulnerable people are treated, initially declined by commissioners the CTR is only being allowed thanks to the involvement of Mencap and NAS and this is why it is important that I highlight why correct advocacy needs to be in place in a case like this to ensure someone is fairly treated and that something good can come out of the CTR.

To: feryal.clark.mp@parliament.uk
info@bihr.org.uk, cllr.nesil.caliskan@enfield.gov.uk
Date: 16 March 2021 at 11:41
Subject: Replace the Coronavirus Act – Disabled and older people’s rights (Case Ref: FC7433)

FAO  The Rt. Hon. Feryal Clark

Thank you for your letter.

I am disappointed to note that you did not vote against the replacement of the Coronavirus Act.   

I am apalled by what you say “care workers must be provided with the pay and training they deserve but what about the weak and vulnerable and their human rights being abused by care workers who dish out brutal treatment and are totally oblivious to human rights backed by those at the top of the Trust.

I think Enfield comes rock bottom of human rights in my opinion. 

How many deaths have there been to people like my daughter who is now obese and a size 24 and force injected with clopixol depot at max level?  What is being done about this in Enfield and why are patients on Suffolk Ward still being denied basic human rights of fresh air and exercise.  Surely that is draconian?   Is that in line with Human Rights?

There is clearly no proportionality, rationality, fairness and total discrimination in Enfield, an area rife with bullying.

There is no respect for someone’s sexuality – and no accountability in this area.  There is no decent care and provision in the community yet so much money to be spent on wrong facilities out of area whilst a vulnerable person’s human right to a fair assessment and humane care is abused yet you declined to vote against the Government and their extraordinary powers of abusing the weak and vulnerable.   There is nothing necessary about this whatsoever.

There are also different rules for different hospitals within Enfield which need scrutiny  North Mid Hospital for instance allows visiting  to dementia sufferers and for people with learning disability so why doesn’t this apply to Chase Farm Hospital Enfield?  My daughter would come into this category.  Why it is OK for a nurse not to wear a mask come in close contact with the likes of my daughter when I am being punished and discriminated against?  There are different visiting rules applying to other parents who are allowed greater contact as i have witnessed first hand. 

So my daughter was multiply abused in the community and now is being further abused under the mental health d) and has had brutal treatment.   It was dreadful to hear details of administering of a depot injection by four male nurses – Do you think that is good care?   I suppose you feel this is justified?  No fresh air/exercise, no contact with family and discrimination re visiting rights?

When you talk about training perhaps – what training!  What they need is training in human rights and perhaps the BIHR should be contacted with regard to this.  There is clearly no training or human rights.  If there were human rights then patients like my daughter would be able to get the humane care THEY deserve if everyone in this Borough was educated in this way, none of this abuse would be going on to the weak and vulnerable.  SHAME ON ENFIELD.

How can you hold the Government to account if you do not vote against such draconian measures?

I once heard in church a very interesting speech “silence is consent”.   How very true this is.   Here are examples of complete breach in rationality, fairness and discrimination under Enfield where nobody cares:

https://psychiatricabuseuk.com/2021/03/14/treatment-on-suffolk-ward/

https://psychiatricabuseuk.com/2021/03/06/cetr-cancelled/

https://psychiatricabuseuk.com/2021/03/04/cetr/

https://psychiatricabuseuk.com/2021/02/25/my-letter-and-a-wall-of-silence-by-the-appgs/

https://psychiatricabuseuk.com/2021/02/12/elizabeths-birthday-3/

https://psychiatricabuseuk.com/2020/12/26/prisoners-on-suffolk-ward/

https://psychiatricabuseuk.com/2020/10/14/vexatious-complainant-by-amanda-pithouse-chief-nurse-and-mehdi-veisi-medical-director-behmhtnhs/

Yours sincerely

Susan Bevis

———- Original Message ———-
From: Feryal Clark MP <feryal.clark.mp@parliament.uk>
To: susanb25@virginmedia.com
Date: 16 March 2021 at 09:39
Subject: Re: Replace the Coronavirus Act – Disabled and older people’s rights (Case Ref: FC7433)

Dear Susan Bevis, 

Thank you for contacting me regarding the Coronavirus Act.

The first six-month review of the Act took place on 30 September 2020 when the renewal of the temporary provisions within the Act was approved.

This legislation contains some of the most draconian powers ever seen in peacetime Britain. I worked closely with my colleagues in Parliament to scrutinise this legislation when it was introduced in March to ensure that any exercise of executive power or administrative action is measured against human rights and common-law standards. These include necessity, proportionality, rationality, fairness, and non-discrimination.

We have seen over 125,000 deaths in the UK, lives altered in ways unimaginable a year ago, and our economy facing one of the worst recessions on record. I accept the challenge that presents, and I recognise that in a pandemic any government needs extraordinary powers available. With a heavy heart, facing the highly unsatisfactory situation of an all-or-nothing motion brought before the House of Commons on 30 September, I did not vote to block its passage.

Nevertheless, I understand the concerns you raise about the effect this has had on social care provisions. I believe that there must be greater parliamentary scrutiny and accountability for the Act.

With such strong powers available, the need for accountability is even more important than in ordinary times. I am therefore pleased that in response to pressure, the Government announced that, where possible, Parliament will be consulted on any future significant measures that take effect across the whole of England or the UK.

The Government must, in my view, commit to publishing a monthly review of any disproportionate impact of the Act on individuals or groups and give Parliament the time to debate and hold votes on regulatory changes.

More widely regarding social care, we need a long-term plan of far-reaching reform to establish a properly funded social care system that works for older people and working age-adults. This is vital to increase access to care and to protect people from high care costs. Care workers must also be provided with the pay and training they deserve, which is essential to addressing widespread vacancies across the sector.

Thank you once again for contacting me about this important issue. I assure you I will continue to hold the Government to account and ensure that this emergency legislation is kept under regular review and I will bear in mind the points you have raised

Yours sincerely,

Feryal Clark MP
Member of Parliament for Enfield North





________________________________________
From: Susan Bevis
Sent: 10 March 2021 15:26
To: CLARK, Feryal
Subject: Replace the Coronavirus Act – Disabled and older people’s rights

Dear Ms Clark,

I am writing to urge you to vote to repeal the draconian powers in the Coronavirus Act and replace them with measures that support everyone to stay safe.

The Government has attempted to police its way out of a pandemic. While the roadmap out of lockdown is positive, it does nothing to help the people who have been left behind by the Government’s harmful approach. It’s time to change course.

Voting to repeal the Coronavirus Act does not automatically leave us without laws and regulations – it creates a three-week window to devise a replacement. That hard work has already been done. Expert charities, NGOs and lawyers have come together to create the Coronavirus (Rights and Support) Bill, also known as the Protect Everyone Bill – https://www.libertyhumanrights.org.uk/fundamental/coronavirus/https://www.libertyhumanrights.org.uk/fundamental/coronavirus

The Bill replaces the dangerous powers in the Coronavirus Act with measures that provide support for everyone to safely follow public health guidance.

The Coronavirus Act allows local authorities to strip back social care, disproportionately impacting disabled and older people. In the first national lockdown, research from Mencap showed that almost 70 per cent of people with a learning disability reported having their care cut.

The Protect Everyone Bill scraps the parts of the Coronavirus Act that allow local councils to strip back social care provision for adults, and education, health and care (EHC) provision for children and young people.

And it makes sure public coronavirus broadcasts are fully accessible to disabled people, including by requiring sign language interpretation. News updates and regulations must be published with Easy Read versions.

The Government has said it wants to build back better. We can do so by repealing the Coronavirus Act and replacing it with the positive measures of the Protect Everyone Bill.

Yours sincerely,
Susan Bevis

Whether it be mental illness or learning disability/autism, if you are unlucky enough to be on a section 3 you can be sure that the treatment under the NHS is nothing less than brutal.

This treatment can result in increased trauma and this ward does not budge on diagnosis and when a patient in their eyes becomes unmanageable they are sent far away and all is funded by the commissioners of Enfield to facilities such as Cygnet, Huntercombe, Elysium and what was once Cambian as far away as Wales.

Here is some of the treatment my daughter has received under Barnet Enfield and Haringey MH Trust rated good by the CQC:

Most recently Elizabeth has been put on drugs that the RC of Suffolk Ward says is helping her and that she is better on them. This is maximum levels of Clopixol depot. The drug has been administered roughly on occasions not just by Enfield but by other institutions funded by Enfield out of area to the point the needle has broken. It sometimes takes a while before Elizabeth will talk about an experience but this could be due to the trauma which is ever being increased the longer she is held in unsuitable institutions such as locked wards.

Nothing really shocks me but will perhaps shock others, that is anyone other than this current Government who could not care less.

Elizabeth thinks she is where she is right now because she is being punished. I wouldn’t disagree with that and also her family are being punished by Chase Farm hospital Enfield, as no-one is allowed leave even for a few hours or granted visiting rights. You can only see someone through a narrow pane of glass in the void between two locked doors where it is difficult to speak because of wearing masks. Yesterday, Elizabeth was upset because her sister was visiting briefly and she was stuck on the ward and so the answer is always medication to any patient who becomes distressed on the ward. Imagine what it must be like to be held on a ward like this with two locked doors preventing escape. A few days ago I witnessed another patient charging at the doors in vain trying to break them down. No doubt she was covered in bruises in her attempts to break free from a ward that allows no fresh air or exercise and so Elizabeth’s visit to the optician which was allowed to get glasses fitted was a treat for her, having been locked up since Xmas and the only reason this was allowed was because a previous appointment with the hospital had to be cancelled because no-one took her and I only received a call too late to be able to take her to North Mid Hospital for her appointment myself.

So I am going to give examples of the care and treatment vulnerable patients receive on Suffolk Ward. I might add to this as it is important to highlight that this kind of treatment goes on within NHS care of the UK not just private sector.

I have heard that Elizabeth has been given prone injections which can be potentially life threatening.

I have heard that Elizabeth was chased round the ward by several male nurses who wanted to administer the depot injection. They grabbed hold of her and tried to take her handbag away and rip this off her shoulders. She retaliated and kicked one of them in the leg. They took her to a seclusion room and all four male nurses she did not know from other wards administered the injection and one kicked her in the leg in retaliation. I suppose using nurses from other wards is done to protect themselves but it has all got back to me.

I have heard on two occasions Elizabeth has been refused fresh air in the garden below.

Abuse is when a team of professionals overlook physical health needs yet NHS promote the very opposite of what is on offer under the MH and could not care less when a patient becomes obese through lack of fresh air and exercise. It is this rather than lack of priority of covid injections which is killing people like my daughter who is on max levels of drugs forcibly and brutally injected to the point needles break, is being ignored by doctors when there is conflict of opinion and ignored by the commissioners who refuse a CTR. Elizabeth is obese now – a size 24 through lack of exercise and fresh air with the excuse of Covid.

I have been left to explain what a CTR is to Elizabeth because she has no advocacy. Barnet Enfield and Haringey fund PowHer Icas who have done nothing to help my daughter. The CTR has been cancelled because of such lack of support and thanks to the involvement of NAS. Why fund an organisation such as PowHer Icas who do not want to get involved in this case and straight away I am thinking it is not just this case but others who are not being represented properly and are not being treated fairly.

I had to prompt Elizabeth to complete the forms for the CTR and asked that she sends them to her advocate through Nat Autistic Society and Elizabeth told me she had asked for an inspector from the CQC to attend.

The other thing is that doctors are not supposed to be racist or come out with comments that are inappropriate towards someone’s sexuality but there is absolutely no understanding towards this on Suffolk Ward as I found out.

I still have not been invited to the CTR but I understand Dr HM is chasing the forms that Elizabeth has sent to NAS already.

So once someone is on a depot injection they do not like taking the NHS brutally holds on to that person and treats them in the most cruel and despicable manner and totally ignore underlying physical health concerns as that person is treated like an object. That person is NOT protected under the MHA.

Reports for court purposes are written in such a way by professionals who want to keep hold of someone like Elizabeth whose “care” is costing £3000 + per week.

I have a letter in front of me from Judge M Sutherland Williams. “Personal misconduct relates to a member’s behaviour, for example a Judge shouting or speaking in a sarcastic manner or misuse of judicial status. Personal misconduct does not relate to how the tribunal member has managed a case of hearing or to any decisions or judgements made. ” In other words you have no hope in any complaints procedures and the law protects those in authority. It is not enough to say that a judicial office holder was rude. It is like a losing battle wherever you go as the protection goes towards officials and these officials and their decisions lead to the most weak and vulnerable people being abused. It is no wonder they have anger issues especially if there is a learning disability and autism identified by other professionals and ignored by the current treating team.

Then in defence he goes on to say “I am not entirely sure that the panel have been profusely critical and they have explained why they took the decision they did but appreciate that this may be a matter of interpretation. It would be helpful if you could explain on what you mean by “I have never encountered such disregard to the NR and patient. I am unclear what your experience is or what you are comparing it to./ I understand it can be unsettling if you are feeling ignored but was there anything specific that might amount to judicial misconduct that you are referring to?”

I have not bothered to respond and cannot emphasise on which court hearing I am referring to as I have been threatened with prison. What is upsetting is that these people of authority should be protecting people like my daughter from professionals who lie within court papers time and time again because of their ulterior motives and then Judges can threaten you with a prison sentence when you expose the truth honestly and transparently.

I get calls from my daughter to say she no longer wishes to be alive. All I hear is people panicking about Covid and a Government going on and on about vaccinations to the point I do not even look at the mainstream news any more. It is the same repetition whilst it is not on people’s minds what abuse is going on with the excuse of Covid to people like my daughter under the NHS.

Looking back to the past there was a Doctor who suddenly resigned as RC namely Dr KC in charge of Suffolk Ward. I had asked if I could have the assessment for Elizabeth on Professor Belinda Lennox’s research into antibodies attacking the immune system. He said “you scratch my back and I will scratch yours”. He chaired a CPA including other members of the family and said “if you do not choose your father as NR I will throw you out on the street homeless” . I got to hear about this from Elizabeth’s sister.

Being a abuse victim to be disturbed in the night with a male nurse entering a shared bedroom on the ward with another patient led to reaction of Elizabeth throwing the bags out and being dragged into a seclusion room to be forcibly injected by three members of staff on Suffolk Ward so forcibly her new slippers broke.

Abuse does not extend just to the patient but to their family if they complain and that abuse is done through an entire team backed by senior professionals leading to the very top of the Trust sticking together and protecting themselves and then bullying which amounts to being ignored and up against a wall of silence and labelled as vexatious instead of trying to tackle things face to face and coming to conclusion certain senior members of staff cover up their failings in this manner.

UPDATE 16 MARCH 2021.

I received a call from the distraught mother of J and S just now 13.11 16 March 2020

S is held prison at the hospital below and deprived liberty under:

Callington Road Hospital – NHS CHERRY WARD

https://www.nhs.uk/Services/Hospitals/MapsAndDirections/DefaultView&#8230;

Tel: 0117 919 5600.  Marmalade Lane, Brislington, Bristol, BS4 5BJ. Website: http://www.awp.nhs.uk/

This hospital has held S since just after Xmas Day and this is a hospital that fails to respect the family let alone Mental Health law. The Nearest Relative is his Mother who has been beside herself with concerns and worry and whenever she phones the hospital they do not involve her in any way and have ignored her as though she is an object rather than a person. Their callous behaviour has resulted in the Mother and NR suffering physical illness. It is bad that the Coronavirus Act is superseded to human rights by professionals who are entirely unaccountable and treat the relatives and vulnerable person under their care like nothing. Where are the human rights in the UK – such professionals need to be educated and the Government should be doing something about this situation where vulnerable people are being abused. So the mother of S received a call from him this morning by way of Facetime. Whilst on the phone two members of staff in the background could be heard speaking to S and telling him that he would be taken to view a home for him presumably today. When his mother telephoned the ward (CHERRY WARD) just now she spoke to the Lead Nurse and was told that she knew nothing about this. There have been many times when I have asked about things and staff say they know nothing when in fact they know more than they let on. I will keep you all informed.

The latest on J who is held at J Ward WSM is: “J Facetimed again in an even worse state. I couldn’t make out what he was saying he was so drugged. He said something about held down, injected and other drugs …. shouting …. he is in a really bad way. I don’t know what to do?”

PRIOR TO XMAS DAY

I never thought I would come across a Trust who seem to be even more ruthless than our local area in terms what we have experienced. Xmas is a special time for families but under the mental health professionals in the UK showed no respect towards patient or family in this respect. Here is our example of treatment under BEHMHTNHS on Xmas Day:

https://psychiatricabuseuk.com/2020/12/25/degrading-xmas-day-treatment-on-by-bed-management-at-chase-farm-hospital-enfield-suffolk-ward/ It was planned to send Elizabeth to a locked ward at Priory – a bed had been found at Darlington.

I had visited my friend in Bristol before Xmas to try to help sort out problems with her internet connection. I then returned back again to offer further help and J had decided to return to the family home.

I had met J before and attended his Tribunal. I was impressed as he seemed calm and happy and appeared to be doing fine; J has full capacity in his decision on wishing to return home. His flat was elsewhere in another area and had been broken into on numerous occasions which resulted in his decline. Every time the phone rang or there was a knock at the door J appeared on edge, a quite normal reaction considering the trauma he had been through and I had understanding of his fear of mental health professionals and why he avoided these people through fear of sectioning, of being taken away and forced back to his unsafe home environment, which is exactly what they tried to do but Avon and Wiltshire Partnership Trust professionals have shown they have no understanding of “best interest” or compassion towards patient or family. I am witness to the fact it was J’s wish to be at home where he was content and doing well because he felt safe there and that should have been respected and appreciated by AWP.

The mother of J herself once worked as a mental health nurse and has empathy and understanding in terms of communication and in fact has spoken to Elizabeth on several occasions. She also has knowledge on medication and the effects of too steep withdrawal. In actual fact this is a case where underlying physical health condition has been overlooked time and time again by professionals instead of referral to a specialist for physical healthcare.

Anyway I was so shocked to hear what happened next:

Just before Xmas they came flanked by Police with an unsigned warrant. Based on unfounded allegations, alleged to emanate from his sister (which was not the case), Professionals turned up unannounced at the family home demanding to take J away, against his wishes and to great distress of his parents just prior to Xmas Day. Shame on you AVON WILTSHIRE AND SOMERSET MH TRUST (your actions were totally unfounded). In terms of the Human Rights Act the following is applicable:

So I received a phone call from my friend who was in great distress advising that about six people turned up unannounced with an unsigned warrant to take her son J away just prior to Xmas Day. There was no respect for the fact the family were shielding and I am witness to the fact that J wanted to be at home and was of no risk to self or others.

After this, Xmas was ruined for the whole family and J remains on an acute MH ward to this day. I believe Avon Wiltshire and Somerset Partnership Trust wanted J to be on a CTO and on depot injections. It was not anyone from the immediate family who lived with J who had complained as I was witness to the fact the family were managing fine and that there were no problems, so questions need to be asked about the ulterior motive behind such allegations which came from outside of the immediate family. Presents remained unopened on Xmas Day, a time when a family should have enjoyed this time together.

I immediately wrote to Duncan Garner of Pals to complain about the ruthless actions of professionals from The Coast team of Avon & Wiltshire Partnership Trust.

I believe professionals tried to force return J back to his flat which had not been made safe and there were squatters in occupation.

J was then taken back to hospital (JWard, WSM) instead of being allowed back to the family home where he wanted to be.

Because J refused the depot injections J is still on the ward right now. Here is the message from his distraught mother who has had little contact up until now. J was forced to use the hospital phone as he was originally without a mobile and whenever you tried to contact him, you could not get through. Today J has contacted his mother and she told me she is concerned:

“I’m devastated, J just face-timed me ……….I’ve never seen him look so ill.   He is drooling, dribbling,  tells me he’s on haloperidol now too.  He is so fat  …..  his eyes he tells me he cannot close them……. I’ve been so ill myself I just don’t know what to do.

Just like me, in Elizabeth’s case, she is worried that J is being over-drugged and on multiple drugs. The RC is Dr CG of J Ward WSM.

The mother of J would have great understanding of psychiatric drugs being a MH nurse herself and well aware of the consequences of over-drugging and too steep a withdrawal. I have seen the effects of this myself when Elizabeth took herself off drugs too steeply.

Anyway with regard to Avon & Wiltshire Partnership Trust I will continue with my blog as this is not all they have done. To have your child (at whatever age) taken from you days before Xmas is shocking enough but Avon & Wiltshire Partnership Trust did not stop there and I will be featuring them further in my continuation of this blog as the world can learn by their shocking example.

JUST AFTER XMAS DAY

If that was not enough on the part of Avon Wiltshire and Somerset Partnership Trust having taken J away from home and family home before Xmas against his wishes, they did not stop there.

There was total confusion on their part with regard to correspondence addresses leading to breach of GDPR rules. Private and Confidential post of a personal nature was opened and read by others through being sent to wrong premises. There was not just confusion as to whom the correct Nearest Relative was but also as to whom the sister of J and his brother S was, whom Avon Wiltshire and Somerset MH Trust believed wrongly to be the NR. This ultimately led to unlawful detention under the MHA when it was in fact the mother of J and S who should have been consulted as she was in fact the NR. A member of staff, I believe to be an AMHP, from the Coast had resigned and paperwork had accumulated within her desk. This paperwork was not sent to the correct Nearest Relative who would have quite rightly so objected to sectioning and instead was sent to the wrong person at the wrong address. What a shambles!

It was just after Xmas Day when around six professionals arrived at the family home once again accompanied by Police with an unsigned warrant. This time they had come for the brother of J who has a neurological condition backed by medical reports which Avon Wiltshire and Somerset Partnership Trust have chosen to ignore. They took him away against his wishes on the basis of malicious allegations (not by his family).

Here is a drugs chart from 2017 for S, (J’s brother)

Amisulpride 400mg 3 x daily orally

Dexamethasone 8mg morning and lunchtime orally

Paracetamol 1gm four times a day orally

Lansoprazole gastro-resistant capsules 15mg every morning

Procyclydine 5 mg twice daily orally

Diazepam 2mg every morning orally

Zopiclone 7.5mg every evening orally

Folic acid 5mg every morning orally

Citalopram 30mg every morning

Colecalciferol 800 units once daily

Diazepam 4mg evening and bedtime

Cyanocobalamin 100 micrograms once daily

Diazepam 2mg when required orally

Vitamin B tablets compound strong 1 tablet every morning.

It is quite shocking that this level of prescribing is allowed to go on in the UK with no accountability. It is no wonder why patients die with this kind of treatment in mind. This is the kind of treatment given to vulnerable people under the MH in the UK by doctors whether under NHS or private sector.

It is all the more shocking when that person was known to have underlying physical health condition, nothing to do with a mental health condition and is currently held prisoner on a mental health ward right now and deprived of his liberty by Avon and Wiltshire Partnership Trust when the Nearest Relative was not consulted.

TW v Enfield Borough Council [2014] EWCA Civ 362, [2014 …

https://www.mentalhealthlaw.co.uk/TW_v_Enfield_Borough_Council_(2014&#8230;

S struck me as being someone highly intelligent and whilst to some people he might have appeared to lack communication skills, hopefully professionals will be better educated soon thanks to the Oliver McGowan Foundation and mandatory training for MH professionals. I could see he had capacity and knew what he wanted and if he did not like something could express himself to this effect. I knew that he would have wanted to stay at home just as J would have wanted this. Now their human rights have been abused and that of his immediate relatives.

Yesterday S made countless calls to his mother and I was witness to the calls as I was on the phone to her at the time. No way would S be calling his mother if as described by so called “professionals” under Avon Wiltshire and Somerset Partnership Trust if she had neglected or cruelly treated him in any way. He is obviously missing his mother and being at home.

A call from an outsider unconnected to the family has led to this situation but has not been properly investigated to justify such action. Police are taught never to judge a book by its cover and I believe this is what they have done without justification and backed “professionals” with complete disregard to human rights and the Equality Act.

Whilst I stayed with the family just before Xmas I noticed how S was able to make himself a drink, something to eat, was able to walk around freely and listen to what he wanted in terms of music/videos. He struck me as being someone of high intelligence and it shocked me that an AMHP was looking to deprive liberty. This AMHP I spoke to myself as I was very much a witness to the fact that neither J or S were in any way neglected or being abused and were very happy to remain in the family home.

So around six professionals had once again turned up based on what appeared to be unfounded malicious allegations by someone who had their own axe to grind, matter of which needed full investigation by Police still not undertaken at senior level. The family were shielding and understandably did not wish for anyone to enter their premises but one of these “professionals” from The Coast tried to jar the front door open with his foot leading to the father of S sustaining pain to his back.

Whilst I stayed with the family I noted food was delivered weekly and much thought had gone into the shopping and plenty money spent on this. The house-keeper would come and do cleaning and put away the food. S had improved to such an extent beyond recognition compared to when I first met him. He was able to walk around confidently and even go outside the family home surrounded by extensive land and was of no risk to himself or others.

Instead of asking whether the family needed support brutal professionals from Avon Wiltshire and Somerset Partnership Trust used heavy handed tactics with the support of Police who have themselves failed to respond to a specific request from the mother of S that would have led to an investigation. The support needed was a meeting that had been declined ie a Section 42 meeting rather than personal assessments when everything could have been accomplished with everyone who needed to be present. Quite frankly I normally would praise the police but cannot in this instance when a specific request had been ignored that needed full investigation at senior level and done independently by another Police Force.

A Section 42 meeting was not granted because social services wanted to carry out an assessment by visiting the family premises but the family are shielding and a virtual meeting such as this Section 42 would have been the answer to everything in terms of other serious related matters that needed resolution and investigation drawing everyone together in this case.

The treatment of the mother of J and S by professionals is apalling and I know both J and S would rather be at home just like Elizabeth would, rather than stuck 24/7 in a locked institution costing thousands of public money under the NHS by professionals who do not know the family and do not have a clue and have made some very serious mistakes in this case, not forgetting my own daughter Elizabeth.

Not only are Avon Wiltshire and Somerset Partnership Trust in breach of human rights but also the Equality Act and I can understand how the mother of J and S must feel and be beside herself with worry and concern – just look at the drugs prescribed previously. Where is the protection for vulnerable people such as these and their mother who happens to be the Nearest Relative and a caring decent parent who was once a mental health nurse herself and would never put her sons at risk or abuse/mistreat them in any way.

I would like to see a full investigation done by CQC and PHSO into this Trust and, bearing in mind the case the fact the NR was not consulted meaning unlawful detention (eg TW v LBE), both J and S returned back to the family home and that a Section 42 hearing be held to investigate this and other related matters of concern independently and I believe that J & S together with their mother should be compensated for their ordeal and mistreatment by “professionals” who should be caring and not abusive in their actions.

I will be adding further comments to this blog on AWP in due course as maybe J, his mother and even S might like to share their thoughts with regard to this shocking case.

In the meantime I would also like Mencap to be aware of the case of J & S who might need legal intervention and backing as in the case of Elizabeth a CTR done independently.

Elizabeth is still held prisoner on Chase Farm Hospital Suffolk Ward since May 2020 and denied fresh air and exercise.

Elizabeth would have been sent away to Priory Hemel Hempstead against her wishes for six months if it had not been for the intervention of Mencap/National Autistic Society.   

A CTR originally refused by local commissioners and autism assessment that was denied thanks to Nat Autistic Society and Mencap, is going ahead this week I believe. Still no advocate has been found.  This is  bad because Elizabeth needs support at her CTR with regard to communication.

I hope that the CTR something will help get Elizabeth heard and for her to be listened to for a change.  

Stuck on an acute amber categorised covid ward amongst other distressed patients is hardly the right environment for anyone to get well and she has been stuck there since October 2020 and incarcerated since May 2020 sent all over the place to various other institutions.  When she phones me I can hear in the background alarms going off and screaming.

Elizabeth is still not allowed visitors or leave since Xmas Day.   Now on maximum level of depot injection administered fortnightly,   Elizabeth’s weight has ballooned enormously and she is denied fresh air and exercise.   She is now a size 24 and has complained constantly about itchiness to her skin.

Last week’s appointment at the opticians to have glasses fitted was so exciting for Elizabeth as it was the first time she  was allowed out anywhere since Xmas Day and this was only facilitated as it was an appointment.  She was like small child and her calls commenced at 7.00 am asking me constantly when I was coming to take her off the ward.

At the weekends there is nothing to do on the wards and today Elizabeth’s sister visited as it Mother’s Day tomorrow.  Elizabeth’s attitude at first was one of distress as she does not want to be on the ward and she displayed this through stating she did not  want to see her sister at first and of course as no visits are allowed, unlike care homes, the only way we can see her is through a slit in the glass of the ward door.

It is not good to deny fresh air and exercise leading to patients becoming obese.   It seems like on such wards physical health is completely overlooked.  Elizabeth would be better off in her flat right now.

I am now going to turn my attention to another Trust, namely Avon Wiltshire and Somerset MH Trust who are unbelievable in how they have treated a family I know.  They seem even worse than BEHMHTNHS and that is saying something!  For them especially I am going to write a separate blog featuring Avon and Wiltshire Partnership Trust but here is a short preview:

“I’m devastated, J just face-timed me ……….I’ve never seen him look so ill.   He is drooling, dribbling,  tells me he’s on haloperidol now too.  He is so fat  …..  his eyes he tells me he cannot close them……. I’ve been so ill myself I just don’t know what to do.

I am shocked to hear that the subject mentioned above, J, is even in hospital.   He was abducted from the family home based upon what appears to be malicious allegations that he and his brother were being neglected which was not true.  The allegations were claimed to derive from his sister who does not live at the family home and who is ill but this was not true.   The reason J had returned to the family home was because his accommodation was unsafe with squatters/drug dealers frequently breaking in.   I had visited the family home and saw no sign of neglect or mistreatment.  What kind of people turn up to the family home of elderly parents who were shielding with an unsigned warrant to take away their son who wanted to be with his family for Xmas based upon unfounded allegations from someone who is not “family” or living on the premises and so therefore cannot comment.   I am going to continue with this on a separate blog called AVON AND SOMERSET PARTNERSHIP TRUST.  

  

I visited Chase Farm Hospital Enfield Friday morning concerned that Elizabeth did not seem to know about the CETR arranged for that afternoon. I understood Advocates contacted Elizabeth at last minute and she seemed to know nothing about the meeting.

I printed out the two pages on what questions she is likely to be asked. Elizabeth hates both questions and meetings so much and this was due to go on for most of the afternoon so I thought the questions and boxes where she could write things down were a good idea.

I could not see anyone from the CQC invited so I advised the CQC since Elizabeth has been segregated for practically a year now with little/no family contact.

The CETR is all about Elizabeth or so it should be. It is for Elizabeth to decide her future and where she wants to live and now she has even more choice than ever. I managed to find good carers Enfield Community Rehab failed to in 2 years leaving Elizabeth to go downhill. It is up to Elizabeth or so it should be. However it is very wrong when a doctor puts words into Elizabeth’s head “you do like to be with people don’t you”. Both doctor and care coordinator do not want Elizabeth going back to her flat but into care and sent out of area to another locked facility to establish her greater on medication. Well she is on max levels as it is. This was promised to be reduced but it has not been.

All this fuss about the covid vaccination but does anyone question overmedicating and deprival of physical health checks? They say that people with LD/autism die young but this is down to overmedicating in my opinion which they put down to natural causes or just lately covid.

Thomas Rawnsley- No natural causes. | finolamoss (wordpress.com)

It says do you feel safe – how can you when possessions go missing and two of these happen to be Birthday presents Suffolk Ward still have not compensated for. For once, all Elizabeth’s possessions are safe in her very own flat and she has nice furniture, there are no bed bugs or other residents to steal phones and her possessions.

So I made a fuss about the CETR taking place without a CQC representative because there really needs to be more than just recommendations in this case but a resolution after all these years.

Covid has meant abuse no fresh air or exercise to many held under the MHA. There have been no visits allowed and no leave granted since Xmas.

I have been to the hospital just now to take Elizabeth the things she asked for. I again asked to speak to her through the slit of glass in the door but how could I speak, when a member of staff stood over us. This I encountered at Elysium Thornford Park which is intrusive and degrading when I have seen another parent being treated differently. I told them it was degrading and intrusive. I could only hand the bag of things plus the CETR notes to Elizabeth through the nurse and wanted to talk about the appointments for physical health. I then had to phone the ward. I was told “I am only a nurse here” – it is rules of Chase Farm Hospital. So I said I felt discriminated against. I would rather these nurses be honest and tell me we are not allowing this in your case. “Following the meeting Elizabeth and her mother continued to have leave together in the hospital grounds in line with Government Guidelines.  However, it was noted that they were sitting together in the car park eating food in the car and that Ms Bevis had take her back to her house.  Since that time all leave with her mother has had to be stopped ;due to the risk of introducing covid to the ward.” https://psychiatricabuseuk.com/2020/12/25/degrading-xmas-day-treatment-on-by-bed-management-at-chase-farm-hospital-enfield-suffolk-ward/

Anyway we are now waiting for a new date for the CETR as Elizabeth should have been given time and assistance to prepare for this, something about further assessments being done. I thought a CETR was meant to be fair and I am glad it is cancelled for the time being and an inspector from CQC should be invited too in a case like this where there has been good cause to complain.

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