Today has been a busy day getting together all the food for Elizabeth’s Birthday party and fortunately I had help in doing this.

I’d ordered pizzas, from Sainsburys vegetable curry and rice.  It is not the weather for cold food but I prepared  a Greek salad – a nice mixture of food and cakes and healthy drinks.

I was grateful for the assistance by a friend in carrying so many bags onto the ward and everyone sang Happy Birthday.  This was a bit overwhelming for Elizabeth.

Suffolk ward Chase Farm Hospital kindly allowed me to do the little party for Elizabeth and all her friends.  She has made some very nice friends in the short time that she has been back on the ward.

It was last week I received a text message from Elizabeth to ask me to call and see her that she had been taken from her home to Suffolk Ward a- warrant had been obtained. I do not agree with the way that recall to hospital is conducted as a result of negligence by non provision of any kind of care in the community.

I had received a phone call from a social worker claiming to be an AMHP about a week prior to say that 2 Drs and 1 AMHP had recommended Section 2.

Since July 2019, Elizabeth had been living in a very nice flat –   the only decent accommodation she has ever had in the local area.    The flat is spacious, she has all her possessions together and it is within walking distance of the family home which means I can help her at weekends when I am around but I had not been well since Xmas and for a few weeks was unable to go round to help Elizabeth.

Friendships Elizabeth had formed in the community have not been good and have brought her down.  Some of these friendships have been disastrous and Elizabeth who has a different way of interpretation can take things the wrong way and this can push friends away.  Very sadly this has led to isolation with no help and support in the community since July 2019 decline was evident.  At this time of year many people can feel affected by the weather which is miserable, bleak and cold.

With nothing provided to do in the community – no support worker/mentor Elizabeth was turning to Samaritans, to my friends, then sadly Police to talk to as well as myself of course.  Police not knowing Elizabeth personally would hear that she was desperate for f help/support.   She had never self-harmed before but may have said that she did not feel like living.   Police would call for an ambulance and she would end up in A&E when all she wanted was someone to talk to.  Sometimes she would get brutal treatment under the MH suite of the A&E.   The last time Elizabeth told me she was injected and that she was pinned down by several staff and overheard them talking about resusc. in another room as this was a face down restraint which is appalling.   When Elizabeth’s friendship had ceased, a toxic friendship which was detrimental to both,  Elizabeth made other friends who also had issues and lack of understanding can arise without any guidance in the community from the professionals involved.  This friendship also appeared to be a disaster which led to isolation, a feeling of desperation as Elizabeth had told me that she had trouble processing information and that no one understood her.  For instance she could say something and mean the opposite.

Elizabeth was under the Community MH team again and they were contacted presumably by Police or Ambulance who sent round the Crisis Team.    The Crisis Team just sit and chat and what is needed is a mentor or buddy or support worker to give practical help even it is simply to do with socialising and social skills.   I am quite astonished that this was once again not provided because it was certainly promised and documented in the care plan that Elizabeth had full support to maintain the tenancy, to budget, and other forms of support which was not true at all.  This was not being provided by her care coordinator.    She certainly needed help with budgeting and most things fell on me.

Elizabeth called in to the Learning Disibility/Autism Group office.      She had tried to get a referral and when I heard that she seemed to be getting nowhere with this I tried to help.     The GP referred her.   I then helped her complete the forms and everything seemed to be going OK.   Elizabeth was waiting for an assessment by them in the hope  some provision could be made in the form of a mentor in the community who could understand and communicate with her effectively.    The content of the form completed was applicable in every way to Elizabeth in terms of developmental disability which goes way back in the files and since Elizabeth was off all medication she spoke very clearly that she had problems that went way back to primary school not secondary school –  the problems she described were developmental and this had been identified when I provided private care for four months.

I was with Elizabeth at her flat when the care coordinator called along with the Responsible Clinician of the community care team who hardly ever sees Elizabeth.   Elizabeth was not calm in their presence and flared up when she saw them and unknown to her they were there for the purpose of doing a MHA assessment.  She had trusted them and let them into her flat.  I could hear them talking about recalling her back on the ward and supportive housing was mentioned but look at the shocking places that Elizabeth has been provided under the local area.    Elizabeth told me this was  not what she wanted but she did want support in the community.    The care plan stated  S117 aftercare but this was never provided.   I had managed to obtain the new care plan.

In the new/current care plan it says No to S117 which I have found out is illegal following  Section 3 and that she should be entitled to such care.

I had also heard an Agency was approached to work with Elizabeth but declined and this led me to believe that under a MH team Agencies they used may not have the specialist communication skills of say a Learning Disibility nurse and I have seen Paula McGowan’s campaign that such training should be made mandatory which I could not agree with more.   This is why we both wanted the referral to the other team as it is not impossible to find someone to work with Elizabeth but if they are not correctly trained and do not have the right communication skills then the effect of such professionals can be as  toxic as the  friendships Elizabeth had formed.

It is sad that she is back on the ward and the ward is no place long term for Elizabeth  who also suffers from complex PTSD.

The entire family put in effort to making her flat nicer so she can now listen to music, play videos, watch TV.  We have done this for her Birthday and now she is stuck on the ward again and we are back to square 1.

I think Elizabeth enjoyed the little party today and I have to commend Suffolk Ward for allowing this to take place.    There was music and staff got up and danced and so did the patients.  They provided her with a Birthday cake.   I saw Elizabeth smiling a lot and one consolation is the fact she has made some lovely friends on the ward.  When you talk to these friends I feel what on earth are they doing on the ward and many are highly intelligent.

My view is that such wards should not be used long term and many end up on the wards because of lack of community care and I think they become isolated in the community  with nothing to do except go shopping and in this awful weather too it can affect anyone not just those with mental health conditions.

I believe community care is lacking and totally lets people down – there needs to be more investment in this area.  A solution would be a network of peer support workers is  and open dialogue so that people like Elizabeth do not become isolated and go downhill.  If someone called on people like Elizabeth to take them out in the community, to help build up their social skills and confidence this would be brilliant.

There used to be a very nice group where Elizabeth would be picked up and taken out in the evening for quiz nights, meals –  a little social group and this is where funding should be going on, not court and displacement of the Nearest Relative cases.   Funding needs to be spent in the right way and a start would be finding out the right things that are required by giving every patient a questionnaire to see what they would like provided in the community, not just dumping them back to their schemes/accommodation unsupported in any way.   The answer is certainly not medication –  in Elizabeth’s case the answer is friendship and help in terms of friendship and socialising, then practical support which should have been given in the first instance.

My final comments go on the new care plan.   I do not feel it should be allowed that strangers such as admin officers make entries that are completely untrue and misleading.   Records need to be accurately maintained and the new care plan is a disgrace.

I am having to correct this new care plan as it is totally inaccurate.   The admin assistants work at St Ann’s Hospital and I have previously complained about the inaccuracy of the care plan and some disturbing false comments therein.     No-one has taken any notice and I have had to complain to the Chief Executive of the Trust.

I now want these comments taken out of the care plan completely and I am correct it myself to ensure total accuracy.

 

 

Today I spent an entire day trying to determine what was going on with Elizabeth’s referral to another team.  Nothing seemed to go right today and nothing was achieved but it is very effective if you go in person to these offices and to the GP in order to get things sorted.

First of all I visited the GP surgery and  enquired  how the referral was progressing.   I was told the referral had been made to Learning Disability/Autism Team based in the town.    I then visited this team and advised they knew nothing about any referral.  I requested to see a duty social worker but whilst waiting, the receptionist was really helpful and advised that the GP had failed to return a form  necessary in respect of  the referral.  She gave me the form which I commenced completing, leaving parts for the GP  as, after all, the referral was from them.  It was suggested I include relevant information I had so I then returned home and searched through the extensive records until I found the opinions of other professionals disputing the diagnosis of “paranoid schizophrenia” and stating LD/Aspergers.  Under this team there seemed more support than what was on offer under  the mental health who are providing nothing, despite producing a care plan stating incorrectly that Elizabeth was receiving assistance in budgeting, and numerous other areas which was not the case.  Whilst doing all this running about I was waiting for the Council’s heating and plumbing engineers T Brown to call me to say they were approaching Elizabeth’s flat but now it was getting late and I still had received no call from them.   So I contacted them on hearing they turned up and put a card through the door once again and this was the fourth time they had not acted upon instruction because I had explained that someone needed to be with Elizabeth when they visited.  Elizabeth now has to wait until the 20th and I wonder if the same thing will occur.

Due to no support in the community things are bound to go wrong like this but it has been stressful and on my day off not once have I had the chance to do anything other than run around chasing up appointments and things that had not been done.

I returned to the GP surgery one more time and presented them with the partially completed form and other papers to accompany this but the GP’s admin staff were not prepared to take a copy of  about three pages so I asked to speak to the manager and  the admin assistant told me she had suddenly left the premises.

Then came the numerous phone calls from Elizabeth who was distressed as she had been out in a crowded place which had affected her.  Sometimes out of fear she will react badly to certain situations such as the recent blood tests.   This is why she needs a support worker so if the team (Enfield Community Rehab) cannot provide any support then clearly she is within the wrong team.  To place someone like Elizabeth in the community with nothing is negligent.

I was so fed up that I visited solicitors – community care solicitors as no one is taking any notice and this whole situation has been dragging on since July.   I am the one who is doing all the things the care coordinator takes credit for.   I am the one helping with the shopping, trying to ensure her account does not go overdrawn in the absence of any necessary support in budgeting.  I am the one who took her to the blood test but we had to leave as she got in such a state.  I have not had a chance to see Elizabeth today as I’ve been so busy trying to sort out the non-existent community care and driving all over the place to see what the latest position was and requesting a referral to another more suitable team.

Enough is enough and I feel she should be with the other team but I have come across some extremely helpful staff today.    After I had returned to the LD/Autism offices and presented them with additional information that the GP surgery refused to copy,  I noticed some leaflets.  I was reading one called “Shared Lives”.   This seemed to be a very good project so  I telephoned them and again they were very helpful suggesting that Elizabeth could be re-assessed by the Adults social care  team.   I would be happy if there was a support worker just twice a week – that is not asking too much.  When they say S117 Aftercare is being provided –  what aftercare exactly?  Aftercare is in my opinion an assistant who can accompany Elizabeth out shopping, appointments midweek.  What good are assistants that just remain in the home as in supported living/housing.   The only thing that Elizabeth needs is someone of her choice that can support and help her attend appointments.  Even getting on a bus is stressful and lack of understanding/communication skills complicate matters further.

Now the heating cannot be looked at until the 20th Dec.   I am going to have to chase up the GP and check to ensure they have this time dealt effectively with the referral.

If I found this day of running around, chasing up things that should have been dealt with stressful, then how is someone like Elizabeth meant to cope.  Total lack of communication can arise and there should be good communication when it comes to dealing with people like Elizabeth.

None of these incidents would have arisen if Elizabeth had been allocated a support worker who MUST have experience of  Aspergers/LD in order to be able to communicate effectively.

 

 

They took her away last night.  Don’t know where.  Noone has phoned us as promised.  Not been able to sleep last night.  At 4 a.m went round to Elizabeth’s flat to make sure the lights were off and the door had been locked.

The team responsible for the neglect to my daughter are Enfield Community Rehab and they are based at Park Avenue in Bush Hill Park Enfield.

Elizabeth has been in her own flat since July and not a scrap of support has been provided leaving her to turn to emergency services.    I had been going round at the weekend to help her in the flat but I was astonished that nothing whatsoever was provided.    She is with the wrong team –   they have had ample time to put in a support worker and I have been trying to get direct payments so I can provide a “buddy” / support worker myself which I would have done well and truly before now.

All this had led to Elizabeth’s decline.   She has no support in going to get blood tests done, no support in budgeting, no support in going out to groups and expected to do everything on her own.   She is off medication after 14 years and suffering from chronic pain.   She is treatment resistant – a non metaboliser of the drugs.

Elizabeth has been sent to one private “prison” style hospital after another and all they have done is drug her.

Now I am most concerned as to where she is as no one tells you a thing.

I would like my daughter to be transferred to another team.  It is constantly mentioned throughout the files she is autistic and mild LD but at Huntercombe she was mentioned as having high spectrum aspergers.

It surely does not cost much to supply a support worker to someone who has suffered enormous abuse not only on their local wards and under private sector but under community care also.  At Moti Villa Elizabeth was dreadfully abused and this was covered up.  I have the files to prove it and then Enfield council tried to appoint the very social worker who has written nastily in the files about me as the Nearest Relative.

So Elizabeth was not on a section or CTO and living in the community for the first time had nice accommodation.  I’m absolutely heartbroken by the neglect of this team who have written so nastily in the files behind our back and done nothing to support Elizabeth as what was needed was a support worker and one who can communicate with someone who has aspergers.

It grieves me I am having to write this not even knowing where my daughter is right now.

Just to reflect Enfield Community Rehab is the team who have wasted so much public money with the emphasis on getting rid of me as Nearest Relative and trying to deprive liberty and even sever contact back in 2014.   Prior to the Ct of Protection case I had to threaten legal action against individuals because medication was being deprived for FOUR not 2 days.

They wanted her returned to a care home hundreds of miles away in Northampton where she had no food at the weekend and was expected to manage on £30 per week or else go without food.   CQC rated good and the inspector disgracefully put her own viewpoints down which is recorded in the files.

They were slated in the Ct of Protection – I wonder how much this cost.

Prior to this Bromley Court because I disagreed with Section 3.

Then Royal Ct of Justice where they tried to get rid of me as NR but I presented the Judge with enormous evidence of bullying and proved lies written in the court papers.   No Elizabeth’s sister was not consulted as mentioned.  I had to spend a lot of time altering these court papers and presenting my own when I represented myself in court.

All of these court Hearings and Tribunals cost a fortune.   To force Elizabeth onto a CTO was a waste of time and she went missing on both CTO and S3 from the hospital.

Elizabeth is so mixed up and damaged by drugging of 14 years or so and being drugged on a drug previously found to be allergic to that is Risperidone.   None of the Doctors seem to care.    The worst culprits were Huntercombe Roehampton where Drs were informed that not only was Elizabeth allergic to Risperidone and had to be taken off it but also that she was a poor non metaboliser because I had unique tests done (P450 liver enzyme).    They couldn’t have cared less and then the drugging continued on Suffolk Ward.

The drugs given at enormous dosage over many years have caused injury – this is not a case of “illness” but injury.

What I would like to happen now is that Elizabeth is discharged back to her flat with a support worker in place to begin with on a daily basis even if it is only a few hours a day.

The care provided in these schemes is not right.   There is a support worker within who dishes out medication yet they are not qualified nurses and have little idea and all they do is learn on line.  The support workers provided in schemes under MH do not accompany someone out in the community and this is what Elizabeth needs.   She needed someone to go out with her and help her in the community during the week.

At the weekend I was going round, helping her in the flat, taking her shopping.  I would also take her swimming.

Surely a support worker would be cheaper than a private prison style hospital or even the local ward where it is all about medication.

Not a word as to where Elizabeth is right now sadly.

It is coming up for Xmas and I hope she will not be detained on a ward during this time.

So 14 years of long term drugging at enormous quantities is bound to affect someone when suddenly they cannot think straight any more,  do not know who they are any more.   This is the effect of long term drugging and care available under both NHS and private sector and to force vulnerable patients to take drugs previously found to be allergic to is disgusting.

Frequent injection of addictive of lorazepam on Suffolk Ward has come to my attention.

Anyway all this could have been avoided if the team under ENFIELD COMMUNITY REHAB had provided the basics ie support worker but since July nothing.    Elizabeth just started psychology but had only been going on two occasions.    Why does it take so long to put the basics in place.

Shockingly I have an email stating “its all about proving yourself as CC as to why institutional care would benefit Elizabeth.   That was written to CC Monowara Ahmed by Norma Johnson.    Apalling because I suppose this is where they get out of paying anything whatsoever.

Then GP at Carlton Hse Surgery Enfield cannot find the blood test results.   The blood test centre went out of their way to help.

Parts of the NHS is working well.    The Paramedics, the Police even but what is failing so many people like Elizabeth is care in the community and something needs to be done about this urgently.

 

 

 

 

Following on from two previous blogs, finally matters have been resolved in relation to my dispute, although not quite.

To summarise, EE accused me of ordering/receiving an Ipad and iPhone 8 and to begin with the Communication Ombudsman took their side and agreed that EE had done nothing wrong.  I was treated like a criminal and liar by my mobile phone provider who I had been a loyal customer since 2013.

The only thing I did wrong was to trust EE and I should have been thoroughly checking my bill.  I have been swamped with caring responsibilities with Elizabeth in and out of hospital that unfortunately I did not check my bill  as I should have done but that is no excuse for EE to state “you should have checked your text messages and responded if the devices (Ipad and iPhone X) were not for you.”.  I did not receive such a text message as I looked back to see if I had.

One customer services officer after another from their Head Office in Hatfield accused me of ordering an iPhone X and Ipad and receiving these devices at my home address which I did not.   Unfortunately  I took out a contract in April this year which I deeply regret and took the opportunity to query my bill which was high and I thought that Elizabeth was running up the high bill as she hardly had any data.  I wanted a new phone and the upgrade was for an iPhone 8.  When I queried my bill at Oxford Circus Branch  I specifically queried why the bill was high and did I have anything added to my account I was unaware of?  I was not told the truth.  I was led to believe I would be making a saving.  I found out towards the end of the month via a local branch of EE that I had been not only paying for the two contracts I agreed to but also for an iPhone X and Ipad that I never received and when my bill shot up to extortionate levels I cancelled the  the direct debit which was for everything.   I was faced with shocking treatment.     I received threatening letters that my credit rating would be ruined by EE and then EE got debt collection agency Arvato involved who were sending me frequent text messages demanding payment and phone calls during the day when I could not talk.    The debt was accruing to circa £1000.  I realised my once good credit rating was ruined and went to Experian for a full report and of course the reason for this was down to EE and the disputed debt.

To begin with Communication Ombudsman took EE’s side and I had to complain at inaccuracies within their investigation.   They kept saying that the courier firm could not produce a signature as this went beyond the time that they as well as EE could produce any verbal recordings of agreement to the contract I was alleged to have taken out.

I had been offered a deal of paying £90 by EE to back out of the contract I never entered into for the iPhone X and Ipad which I refused.

So in desperation, after getting nowhere with so many different customer services officers all sticking together with the same opinion and ignoring that I constantly stated I had not received the devices, I turned to courier firm DPD who, unlike EE, keep brilliant records that go back to January 2018 of all deliveries made.    I obtained a case reference number and submitted this to the Communication Ombudsman but when I was still being bombarded with demands for payment I went back to DPD couriers and spoke to two more customer services officers who were most helpful and sent me two separate emails stating that nothing was ever delivered to my home address on the disputed date.

After this proof, the Communication Ombudsman backed down and demanded that EE repay the amounts of the two devices and backdate this payment and sever the lines free of charge for the iPhone X and my own personal line.    However I am stuck in a contract – being what I took out in April this year in order to get the iPhone 8.  I am stuck in this contract for two years and am also paying for Vodafone contracts which are for one year.  I would never have taken out the EE contract had I known about the devices.

I then get a cheque from EE for just £615 and had to go through and check their figures only to find that they owed me an extra £275 –  I then had to report again to the Ombudsman I had not received the £275 and they suggested giving EE another 7 days.    I would advise that still no cheque for £275 has been received from EE despite allowing for these extra 7 days.

https://psychiatricabuseuk.com/2019/05/19/latest-position-with-ee/

https://psychiatricabuseuk.com/2019/05/04/you-cant-be-serious-ee-my-former-mobile-contract-provider/

I have written on numerous occasions to  CEO Marc Allera only to have a response from yet another customer services agent.  Not once has he had the courtesy to respond himself.

My treatment by EE has surmounted to bullying and being called a liar and thief in not so many words.

The whole matter has been so stressful and upsetting having to prove your innocence and then have your credit rating ruined.  This has now been put right but the lengths I have had to go to in this matter and not once did EE budge and raise their hands and say sorry until they were forced to by the Ombudsman.

So if any of you are customers of EE I would advise strongly to check thoroughly your bills and if devices are not received the courier firm DPD  are brilliant and have been so helpful.   I understand that EE produce wrong paperwork sometimes and my case has not been the only case of devices going missing.

I now have two contracts –  I hardly use the EE contract but the data on my Vodafone contract is far greater.

It would have been nice if EE had made even the slightest gesture to compensate for the hours I have spent looking into this matter and checking their figures but they have only apologised because they were forced to by the Ombudsman then I get an email saying they would be guided by the Ombudsman “that’s that then!”.    NO IT ISNT EE –  YOU STILL OWE ME £275 and whilst this is not much money it is the principle that counts.  I feel that EE should do better than that.

I would compare EE to BEHMHT in the way I have been treated when I stood up against  Elizabeth’s shocking treatment of enormous quantities of mind altering chemicals.

I have also had to chase up the compensation for Elizabeth’s false detention and this amounts to £1.   The figure calculated was far more than this because this went back to 2012 and the illegal detentions under X v Finland so this is a case where professionals in the NHS are well and truly protected when a vulnerable person spends time imprisoned but since TW v LBE and the Bostridge case it looks like the £1 cannot be challenged however we have been told that it could take a long time to receive the cheque for £1 which I wish to frame as a souvenir.

Message to Marc Allera of EE:  If I do not receive the £275 I will be calling at your Head Office in person.   I would be nice if EE could support some good causes such as Working to Recovery and Chy-Sawel

Message to BEHMHT –  Elizabeth would like the cheque ASAP for £1 for hours of illegal detention.

 

 

 

 

 

 

I can only spend weekends with my daughter Elizabeth but try to make the most of it. I try and take her out places and yesterday was a brilliant day.  In the morning I had a few things to do and took Elizabeth along with me.   I went to BMW for my car to be booked in.   I took Elizabeth with me to the town and had various things to sort out.  I then tried to help Elizabeth with budgeting which she finds impossible to do.  It is all too easy to spend money in shops not realising how this can accumulate.  Elizabeth has never had to manage money before – care under supported housing/living schemes do not offer the right kind of care/support to those who have been institutionalised for years such as Elizabeth in order that they can  live an independent life in the community.      Staff mainly would stay in their private rooms/office and not engage with residents.  Elizabeth has communication difficulties in any case and can take things the wrong way.     If a vulnerable person did not ask for help they would not receive it.    Basics of in-house help are given, such as towards preparing and cooking meals if requested but nothing that is relevant for living in the community outside such as taking someone out shopping, helping them budget, helping them relate to other people particularly when I have been saying all along that my daughter is with the wrong team as she is autistic.

After a nice time looking round the town we drove to Barnet.  The shops were closing but there was still time to take Elizabeth shopping and as I am trying to help her with budgeting I took her to Waitrose.    There were so many things being sold at reduced prices and perfectly good.    I helped Elizabeth select the items she wanted but because Elizabeth has once again overspent so I am having to help her out.   She has generously brought presents as well as children’s items for Halloween, presents for her sister/for me and as a result she has no money.

Today I offered to take Elizabeth swimming even though I did not feel like this myself.    We went swimming to a lovely pool just outside our local area.   I was swimming in the lanes but noticed Elizabeth was not doing much swimming but talking to people.  I had remembered to bring her water as last time she flatly refused to go in and swim without any water.  I tried to explain to Elizabeth that people are there to swim not to chat and listen to the kind of talk Elizabeth can give which is quite heavy.   I had to put up with listening to depressing music in the car and Elizabeth was singing along to a band called Nightwish that I had taken her to see once and nearly got arrested because we had been conned by Viagogo for last minute tickets that were not accepted at the venue. I have written all about this in a separate blog.   I could see Elizabeth was not her happiest today and tried not to engage with in-depth conversation whilst we were out.  So I did my 20 lengths then went in the sauna/steam whilst Elizabeth waited for me.     After that Elizabeth wanted to go somewhere to get something to eat and I thought of a local sports centre nearby which I thought would be more peaceful as they have a terrace and a nice restaurant.  I bought lunch but had no appetite myself as Elizabeth was clearly not happy.  I decided to take her home after that – maybe she had not had a good night’s sleep –  this could be a trigger point.  Soon after I arrived home  I received a call from paramedics who had been called out once again.  I was in despair about this.   I have hardly had any time to myself this weekend but still feel better than if Elizabeth was back on a ward or in a distant care home or scheme.  I would rather give up what little time I have to keep Elizabeth where she is for the time being rather than her ending up in another dreadful supportive housing or living scheme or worse still a care home or hospital where they drug people like my daughter to the hilt.   So I spoke to the Paramedics and explained the situation.  Elizabeth already said she did not wish to go to hospital.    She is not a risk to self/others but needs company or something in terms of care that is for sure.

This whole situation is getting to be a nightmare and the problem is that the community mental health team do not recognise anything other than personality disorder or schizophrenia.    What is constantly being dismissed is “learning /developmental disability/Aspergers and she was told at Huntercombe Roehampton she had high spectrum Aspergers.

The paramedics and police have been marvellous in the London Borough of Enfield but the community mental health team combined with GP which is Carlton House Surgery Enfield should be referring Elizabeth for assessment for autism and placing her with a Learning Disibility/autism community team as Elizabeth says no one understands her and there clearly is no training under the MH to understand about autism/aspergers.   In fact the paramedics today suggested LD/team.

Despite the fact Elizabeth can look after herself and cook and shop she needs a team who will provide something in the community in terms of support and this is where the community MH team are failing.

So I believe that there has been a recent visit by her Psychiatrist Dr IM of Enfield Community Rehab Team plus care coordinator PM.   If this is true what Elizabeth told me I am saddened –  medication was suggested plus going back into supportive living/housing during their visit.    Also, the Crisis Team are supposed to visit regularly – they suggested going back to hospital and this is totally wrong.

Why should the above apply at all when it is quite simple what is needed and would be far less costly.   Elizabeth needs a group of young friends to go out with who might be students who study psychology or nursing or even social work.  I would personally pay for such a night out for everyone if they could include Elizabeth for one evening.  If these young  “friends” are studying to go into the profession I would like them to see at first hand how lack of care in the community is affecting someone like my daughter.

When it was suggested by Dr IM medication – the answer was clearly no.

When it was suggested by PM – care home/supported housing or living the answer was clearly no and just look at was Enfield have provided in that connection in the past.

When it was suggested to Elizabeth “do you need to go back into hospital – the answer was clearly no and Crisis Team the answer will always be NO.   This same answer has been given more than one time to Police and to paramedics.

So keeping someone like my daughter who has been so dreadfully damaged by the care provided to her over a period of 14 years in dreadful institutions is perhaps all too convenient for the team but it is not the answer at all.

No way would Elizabeth have once called out ambulances and police.   No way would she be so disabled as she is now had she not been prescribed so many concomitantly prescribed drugs at 2 x bnf level so it stated in the files.   It is the NHS under mental health care that has dished out the apalling “treatment” resulting in such disablement.  Then they palm her onto institutions such as Cygnet, Cambian, Bedlam, Huntercombe all offering enormous quantities of mind altering drugs and none of the local.

MESSAGE TO THE TEAM:

I would like my daughter assessed properly NOT BY YOUR DEPARTMENT, ENFIELD COMMUNITY REHAB, but by Specialists in LD/autism who can properly communicate with her.   As nothing is being provided for Elizabeth of the correct kind of care needed ie  budgeting, shopping, friendships etc according to your good care plan, the first reasonable care plan you have ever produced, then I would like Elizabeth transferred to a more appropriate team who can provide the very basics or could I have the direct payments so I can arrange myself.   The right care is NOT – taking Elizabeth away from her home and dumping back into supported housing and living where a Death Plan was produced by one,  cutting out her family.   The right care is also not a hospital or ATU when Elizabeth can do shopping, can clean, can cook – she has qualifications in this respect.    You know what help is required as identified in your care plan but you are failing to provide this.  Most of all my daughter needs an assessment that is carried out completely independent of your department and can only be done by experts in the field of  LD/Developmental Disbility/high spectrum aspergers.    This is mentioned many many times in the files AND not forgetting the wonderful Expert Witness report for Cambian by Dr Bob Johnson.    This report was deprived to Elizabeth and I got hold of a copy of it and showed it to her.   It says PTSD.  It recommended trauma therapy –  so Enfield Community Rehab team where is the specialist treatment my daughter needs as a result of the abuse she has suffered in certain community care home provisions?   Here is one of them RATED GOOD BY THE CQC  PHOENIX HOUSE STEPPING STONES NORTHAMPTON “Elizabeth must manage her foods as she will be without food at the weekend.”   I’ve got it all in writing and everyone’s conversation including the CQC inspector who I feel like naming right here on Twitter.


ILLEGAL DETENTION UNDER ENFIELD:


I  also wish to tell everyone how Elizabeth challenged her illegal detention under ENFIELD CHASE FARM HOSPITAL SUFFOLK WARD.   Elizabeth was detained 16 hrs illegally but, following the case of :

TW v Enfield Borough Council [2014] EWCA Civ 362, [2014 …

http://www.mentalhealthlaw.co.uk/TW_v_Enfield_Borough_Council_(2014)_EWCA_Civ…

TW v Enfield Borough Council [2014] EWCA Civ 362, [2014] MHLO 26. TW v LB Enfield [2013] EWHC 1180 (QB), [2013] MHLO 59; Appeal status. This claim was subsequently settled for £27,000. Thanks to Helen Curtis of Garden Court Chambers and Michael Paget of Cornerstone Chambers for providing this information (emails 9/6/16 and 10/6/16). ICLR

TW v LBE I was totally unaware –

To protect TrustS/lAs there has been changes in law which now makes it impossible to challenge further.  Below is the example.

https://www.weightmans.com/insights/bostridge-v-oxleas-nhs-foundation-trust/

Elizabeth was awarded £1 compensation for 16 hours illegal detention.

The above together with lack of humane mental health care sums up the disgrace of how the most vulnerable people are being treated and abused under the UK.

I do not want Police and Paramedics further bothered by Elizabeth’s calls when Elizabeth, a product of failure under the NHS care, should be receiving a proper assessment and being transferred to a team that can at least provide something in the community the current care plan recommends.    A visiting support worker who is properly trained in autism would be good,   even unqualified “friends” of about her age to take her out  who are studying for nursing/psychology.

To me there is nothing complex whatsoever in what is needed here.   Also it is much cheaper to provide the care my daughter needs in the community than send her off to horrific “prison” environments –  you have tried and failed at this so now Elizabeth needs something better provided and the kind of therapy that should be provided that worked in Scotland and Australia was psychotherapy and a perhaps EMDR should be tried.

Dr R D Laing’s colleague and former colleague told me he never ever used mind altering psychiatric drugs and that psychotherapy was all that was needed and he is absolutely right.  I thoroughly agreed with him and that is why I sought the correct care that I provided privately thanks to Working to Recovery.   More funding needs to be given to wonderful organisations such as this to set up therapeutic communities and recovery houses on a small scale throughout the UK.

I would commend Norway and Professor Peter Gotzsche –  it is a pity the UK is so behind the times when it comes to forced treatment.  Elizabeth was getting daily injections of Lorazepam on Suffolk Ward and it is no wonder she has suffered such trauma all down to an area of the NHS that is not working and could learn from Norway’s wonderful example and not forgetting Working to Recovery.

Forced Drugging with Antipsychotics is Against the Law …

https://www.madinamerica.com/2019/05/forced-drugging-antipsychotics-against-law

In Norway, the Ombudsman concluded in December 2018, with reference to the Psychiatry Act, that it violated the law to use forced treatment with an antipsychotic in a concrete case.

  • Author: Peter Gøtzsche, MD

This is where the funding should be directed to organisations like Chy-Sawel and Working to Recovery in order to provide the correct care and a community involvement to help people like Elizabeth from feeling isolated and abandoned then instead of providing what is right they say “how about hospital or how about a care home or how about supported living.”

 

The way Elizabeth has been treated is a disgrace but the Paramedics and the Police have been wonderful in ENFIELD.

 

Since July 2019, Elizabeth has been living in a flat of her very own which is the very best accommodation she has ever had independently.  She is 32 now and has been disabled by her shocking treatment which I will write more about separately.

I am astonished that after all this time nothing whatsoever has been provided to Elizabeth who desperately needs some support in the community.

I was expecting an Agency to be involved providing carers.

The flat was not even ready when she was discharged into the community.

The Community Mental Health Team involved is Enfield Community Rehab.  This team have in the past refused direct payments which I think is a brilliant idea.  I had this for my father and was able to provide care which worked very well and enabled him to live in the community for many years.

Elizabeth does not need much.   However, absolutely nothing is being provided and this is neglect on their part.    I’ve heard all about shortage of money but this team have spent a fortune on taking me to court time and time again in their many attempts to get rid of me and to  displace me as the Nearest Relative/Next of kin.   So the money is being mis-spent as I see it as what should be done, is to work with the family and provide the necessary care and support in the community but this is not being done.

The current care plan this time does not include the previous pack of lies written by Admin Assistants based at St Ann’s Hospital.  This time, the care plan identifies her needs however these needs are not being  met/provided for.  Reading the care plan you would think that she is getting support from the team themselves but in fact it is me as a mother who is giving that support at the weekends when I try to help her with shopping, other problems and take her swimming.

Elizabeth needs counselling so why not provide it with a counsellor of her choice?

The counselling Elizabeth needs is of a very specialist nature and because of communication difficulties Elizabeth needs someone who can understand and communicate with her like Baroness Hollins.

Elizabeth is not on a CTO or on any mind altering chemicals and the care plan states that what is needed is psychological help but NOTHING is being provided.

It is clear that Elizabeth has been brain damaged by her treatment and is suffering from  CBI (Chronic Brain Inury) but when I turned to the Charity “Headways” I could not believe it – I was told Elizabeth did not fit their criteria so I argued that she had been brain injured by her treatment but they were adamant that this was the wrong kind of brain injury.  I found this quite ridiculous as the only category they would accept was brain injury at birth and as a result of accident but it is a known fact that injury can be caused by excessive drugging of psychiatric drugs – it takes years to recover from.   I was hoping for a team who would understand Elizabeth and be able to communicate with her and thought Headway would employ staff who deal with vulnerable people who suffer from anger issues/communication issues because of brain injury caused by psychiatric drugs prescribed by psychiatrists as I have read from certain files “above BNF levels”.

In the care plan it identifies the need for anger management and now that Elizabeth is drug free she does need help in this area.  The anger issues are definitely in need of help

Relationships/friendships – yes another correctly identified area

Budgeting –  this is very important.    This is all falling on me and Elizabeth is turning to emergency services for support in the absence of any care being provided and this has been going on far too long.  I have patiently waited all this time for Enfield Community Rehab to provide the right support but they are doing nothing.

There is no way Elizabeth is well enough to get a job or even go to college right now.  She is getting more and more distressed and what is needed is a personal assistant or young people to be involved who are studying for nursing in the area of mental health and psychology.   Please do get in touch if anyone wishes to gain invaluable experience and I am more than happy to even have someone come and stay in the family home as they can see the full picture.     What is lacking is a team that work together with the family and not against.

Elizabeth would benefit by being invited out with a group of sensible, responsible, young people and I will contact local universities to find out if there are any students who would like to gain brilliant experience working open dialogue style with myself and Elizabeth.

Elizabeth does not require consultant Psychiatrists or doctors in respect of  pushing poisonous mind altering chemicals.  What Elizabeth does need is psychotherapy, help and guidance with friendships and education in terms of any kind of relationship and encouraged to integrate into society.

Instead Elizabeth is signposted to the local community mental health centres and Mind which is not even in the nearby locality.  What should be done is help in integrating Elizabeth into society.  What should be provided is someone to accompany Elizabeth to some appointments such as MRI scan or blood tests.  Elizabeth needs hormone tests as identified by a recent tribunal.   I have always thought Elizabeth had underlying physical health problems but doctors have ignored the DSM – I have read that a mental health diagnosis should be discounted when drug induced –  yes Prozac induced psychosis and when there are underlying physical health conditions which I have proven.  I am contacting Baroness Blackwood as the balancing problems are of concern.  I have just had the genetic test results and these are most interesting and highlight a condition that should not be ignored.  There are some “rare” genetic causes that can be mistaken for mental health condition when all along it is physical.  Instead of “lets rule out anything organic” I now want things done properly.

So the other things that need to be considered is “she does not want to be overwhelmed with too many activities”.    Overwhelmed by what????  This is laughable when what is being provided – ABSOLUTELY NOTHING.    It is mentioned art therapy or music therapy –  where is this Enfield Community Rehab?  I think these two things would be a great idea.

So art therapy and music therapy and psychotherapy is what I provided in unique care featured on  Rightful Lives Exhibition.  All of this benefitted Elizabeth and being in a natural environment of stunning beauty with animals.   We didn’t recognise her when she came back in December 2016 and now I am not happy as Elizabeth is left to go downhill by this team who have spent a fortune on court action against me and refused to provide any care when Elizabeth was at home.

I never get a response to my emails – these are  ignored.

So today I get a call from the Police that Elizabeth contacted in distress.   That distress is not a matter that should concern the Police but should have been dealt with under community care.  That issue was that her bank card was declined but the limit on her card had been well and truly exceeded.  There is no guidance towards budgeting and all I have been doing is getting regular statements and posting it to Elizabeth keeping her informed of her balance. However, because Elizabeth has nothing to do all day long and no company Elizabeth has been going out shopping.  Today her bank allowed for her to exceed her limit on her card and Elizabeth who has no support under community care regarding finances has overspent which means not only will I have to help her again but also confiscate her card otherwise she will go overdrawn.  Elizabeth will see this as abuse but she has  exceeded her limit and this would not have occurred if she had a personal assistant to help her in the community.

It would be so nice if one person can come round once a week, sit down with Elizabeth and explain and try to help as regards finances.

I make sure I pay her bills at the end of the month.  Everything is up straight.

Elizabeth also needs someone to go with her to blood tests.

It is most upsetting to see such neglect towards my daughter as if she had a little direct payments provided I would most certainly have arranged at least one activity such as the art therapy which she said she would like to do as well as someone to help her budget.

I have written again today to the team and I will let you all know if I get any response.

What I have seen is decline of my daughter who once had a job,  was going to r College regularly, who had a car, was learning to drive etc.    Instead Elizabeth has been made disabled by her appalling treatment.

Now that Elizabeth has bought a new guitar (this time an electric guitar) I would like to see her with at least one activity and with the abundance of money CMHT have spent in the wrong direction it would nice to see them spend the money in the right direction.   It is cheaper to have Elizbeth in the community rather than on an acute ward or even worse in private prison style Assessment Treatment Units costing £13000 a week.

Her needs are simple and do not cost a lot but ENFIELD COMMUNITY TREATMENT TEAM are failing to provide the basics in terms of care and this is falling on emergency services such as police and ambulance when Elizabeth becomes distressed and overwhelmed with loneliness and isolation in the community.

I have read so many accounts of parents who want their sons and daughters out their in the community from these terrible institutions but I can see that Elizabeth has been damaged beyond recognition and has come out of the system completely disabled and just dumped into the community.  The appalling reality is there is no care in the community to someone who has come out of the system damaged and injured.

MESSAGE TO ENFIELD COMMUNITY REHAB TEAM –  It is not the flat that is the problem as you keep asking where else do you want to live.   The flat is situated in an area familiar to Elizabeth but I as a mother am the only person helping her.    What the problem is TOTAL LACK OF PROVISION OF ACTIVITIES AND CARE AND YOUR REFUSAL TO PROVIDE DIRECT PAYMENTS – as I would most definitely have something in place for Elizabeth after all this length of time.

I would praise local emergency services both Police and Ambulance for their tolerance and support in terms of this neglect to my daughter.

 

 

Elizabeth has not long since moved into a new flat.  It’s local and close us.  It is a lovely flat and in an area that is familiar to Elizabeth.

Elizabeth was recently released from Section 3, prior to that a CTO where she was under the team of Enfield Community Rehab but the system of forcing people to engage is wrong and not “care” in my opinion.   Both CTO and S17 leave and underlying terms were completely ineffective with Elizabeth and waste of time and money.   It was used like a form of punishment ie “if you don’t do what we say you will end up back in hospital”.

Moving to a new flat was never going to be easy for Elizabeth and has been complicated by a friendship she made through the local mental health resource centre where people like Elizabeth are encouraged to go and engage with services but not everyone wishes to engage which could well be due to lack of trust.

What should be provided is assistance in respect of integration into society and people under mental health care become isolated to the point they just go downhill.   There seems to be no care in the community.   What is provided all too often is substandard accommodation provided by private landlords with “care” provided by untrained support workers who dish out medication.   When it comes to a case like Elizabeth who suffers from complex PTSD and attachment issues it is not untrained support workers that Elizabeth should be working with but qualified experienced professionals offering psychotherapy.

Elizabeth had a dreadful time under section 3 at Chase Farm Hospital Enfield (Suffolk Ward) where main care provided is “medication”.   She was given frequent lorazepam injections on the ward due to becoming distressed.  Not once was Elizabeth referred for an MRI scan or receive any referrals for physical health.  At a recent tribunal it was suggested she had assessments on hormone imbalance which I believe most certainly is an underlying cause or perhaps a damaged Thymus but nothing has been done.  I’ve already proven there are other issues that are underlying such as endocrine disorder having spent £1000 on tests privately.   Physical health under Enfield is ignored in favour of a mental health diagnosis as this is the easy way out.

Elizabeth was discharged into an unfinished/partially furnished flat in the community.    The bed was not even properly assembled. I had arranged for her possessions to be delivered to the new address which is a beautiful one bedroom flat in a block.  The flat looked fabulous once carpets were laid.   I bought a Chinese rug.  I spent a lot of time and money bringing together Elizabeth’s possessions for the first time as these were all over the place because there was nowhere to put such possessions.  All Elizabeth had been offered previously was one room in a shared house full of others suffering from MH problems.    The most recent scheme did not even have a proper kitchen or lounge to sit down and watch TV and was  situated in Wood Green, a fair distance away.   Elizabeth was unhappy there.   Prior to that, a bed bug infested scheme called Reservoir House situated in a nice area of Oakwood and they tried to blame Elizabeth for bringing in the bed bugs.   Prior to that, Mays Cottage – one small room in a shared house, whose Landlords were Inclusion Housing and the “care” provided by Craegmoor (part of the Priory Group).   Care consisted of support workers that stayed upstairs in an office.  I have on several occasions taken Elizabeth away from care and had her at home but there have been issues with other family members and I could not sleep because Elizabeth needed someone to talk to and kept coming in and out to discuss her confusion which is always the same thing “who am I, what am I, why am I here.   This is the outcome of so many years of being prescribed powerful mind altering chemicals that have done nothing to help Elizabeth.

I do not think the bulk of supported housing/living schemes are adequate or understanding towards someone like Elizabeth.   Vulnerable people are just dumped together in such schemes that have complex problems and they are not integrated into society leaving them isolated which is so very wrong.

Now for the first time Elizabeth has a lovely flat.   This is the first accommodation that is comfortable, not shared with others resulting in possessions going missing and with Elizabeth having to share accommodation with untrained support workers, not all of whom knew how to communicate with her.   The first thing they do when someone is distressed is to call the Police and then that person once again ends up sectioned, on a ward where brutal treatment goes on adding further to the trauma of that person.

On Suffolk Ward Chase Farm Hospital, there were daily injections of Lorazepam to the point I called the CQC.   When I heard of this treatment and how it was affecting Elizabeth this I tried my best to get the flat up and running without support from Enfield Community Rehab.   I spent my lunch hours trying to sort out benefits in order to obtain Housing Benefit which you can only get if you qualify for if you get Severe Disability Premium but this was not easy to obtain as you could not get through on the phones.  Then having to deal with endless email correspondence and be assessed for the council tax payments of which a portion goes to social care.  None of this has been easy to get   in place.

So carpets were laid, possessions delivered.  I’d given Elizabeth her bed from home.  I bought a small table and two chairs for her balcony.    I bought pigeon netting as the balcony, despite being cleaned by the Council, had become filthy with pigeons nesting.   I then had to clean the balcony myself as re-cleaning refused.  I then had to sort out the electricity supply and had trouble getting hot water up and running.  There was no cooker -despite Enfield Community Rehab stating a grant had been applied absolutely nothing was provided for Elizabeth and when I recently that I should expect nothing to be provided.   So I have had to purchase essential things for the flat myself such as cooker and I recently bought from a company called Made.com a nice sofa bed so that other members of the family who have moved away can come and stay.

So far, only Elizabeth’s sister has been to visit the flat briefly when she came down for my Birthday.

The next essential appliance is a washing machine which I will get next month as it has been expensive to provide all of this myself without any assistance.  She already has a fridge but I want to get a fridge freezer also.   I also would like to make the balcony look beautiful like a little garden with artificial grass and plants.   I bought some paint yesterday to paint the balcony.

Elizabeth’s is in distress:

Despite the lovely flat, Elizabeth has been in distress lately.   She has nothing provided in care by ENFIELD COMMUNITY REHAB – a mental health team whose emphasis has been on court action in the matters concerning displacement of me as Nearest Relative.

Encouraged to attend the mental health resource centre at Park Avenue Elizabeth made a new friend there.   The two friends kept going missing all the time.  It didn’t matter whether Elizabeth was on CTO or even on Section 17 leave.  Neither were happy in their temporary schemes so I was so happy when Elizabeth finally won a bid for the one bedroom council flat of which she had been assessed months ago however by this time Elizabeth had gone downhill due to being in temporary accommodation where she was unhappy.    Elizabeth’s friend also moved locally to a MH scheme where emphasis was on “medication” and she was not happy there.  This friend was spending more and more time at the flat both kept stopping medication and Elizabeth has now been off the drugs for quite some time.     These friends seemed to be looking after one another and supporting, or trying to support, one another but both had complex issues.  Without guidance or assistance such friendship can end up being destructive and, unfortunately,  when things are not going well with the friendship Elizabeth has gone downhill.  To  act as a “carer” for someone else when that person has complex PTSD and has issues of their own is not an easy thing and when faced with additional physical disabilities such as for instance epilepsy this is not a good situation.

Yesterday, I went round to visit Elizabeth who was on her alone at the flat.  She was not happy and I gathered that things were not going well with regard to her friendship.  Because Elizabeth had been constantly attending A&E because of her friend crying out for attention to physical health this led to one/both being sectioned.

I despair, as now, only yesterday, Elizabeth’s front door was been broken by Police who because of a phone call allegedly from Elizabeth stating she felt “half dead” but Elizabeth is autistic (though it was pointed out by care coordinator PM she had never had a formal diagnosis).   I then pointed out that throughout the files  it was  consistently mentioned  “learning/developmental disability” and there is a report by Dr Bob Johnson on complex PTSD totally dismissed by Enfield Community MH Rehab team leading to totally wrong treatment of psychiatric drugs.   I visited Elizabeth’s flat yesterday because she needed a padlock to lock the front door.    Yesterday there was drama.  A family friend had gone round to the flat to assist for access for workmen to attend but  Elizabeth then discovered that she had been locked in completely with a padlock secured to the front door.   The care coordinator explained instructions were given to break down the door because of reports Elizabeth felt half dead when in actual fact she was not in but out with her friend.    It is a shame the front door was broken down when spare keys to the flat were available locally with a family friend that could have been contacted to avoid this situation.    The front door which has been badly damaged is another thing I have to sort out during the week.   I might get a key box in order to avoid any reoccurrences.  When Elizabeth says she feels half dead in actual fact this is not the case and dialling 111 should not have to mean an ambulance being called out when in fact all she needs is someone to talk to which is what I  tried to do yesterday.  I went round to her flat bringing plenty of food.  I offered to take her for a drive in the country.  I got the impression that Elizabeth had not slept well or had eaten anything.  Not sleeping or eating is a trigger point.   Elizabeth kept phoning to see where I was but I was sorting out the padlock and was in B&Q and when I arrived she was sounding distressed.  It really is bad the way she has been discharged from hospital without a single thing in place.

Elizabeth has the best accommodation in terms of the flat she could ever wish for – not just a tiny room in a shared house full of other disturbed vulnerable people where possessions go missing and there is likelihood of her clashing with other people.    She is very close by but I cannot be around every second and that is why I am so disappointed with care provided under Enfield and feel she is under the wrong team as it is not the first time that nothing whatsoever has been provided and all they do is drag her back to hospital time and time again and refused to give anything in the community.  I have now turned to the GP as I feel Elizabeth’s physical health all along has been ignored especially when Elizabeth has called at A&E with joint pains, back pain and even her eyesight  – blurred vision and pain which is not mental illness –  this is what you get when you have been on psychiatric drugs for so many years and develop chronic pain then Doctors then try to prescribe another drug to counteract this.   We all believe Elizabeth has chronic brain impairment caused by her treatment.     Like never before Elizabeth suffers from anger issues whereas once she was pleasant, polite – a quiet person who had friends.  Then along come a team of MH professionals  who start writing in nasty terms about family background when these professionals do not see the full picture and do not communicate in a decent manner with the family.

Yesterday, after seeing Elizabeth I called to see the GP who is open Saturday and Sundays.    They operate a service called “The Hub” but this service is like a skeleton service.    It might sound good on the surface but it is not because a Doctor cannot access  notes written by the regular team of Doctors so what good is this?   I have told Elizabeth about The Hub and that it would be best for her to visit the local GP surgery than make calls to Police and 111.  At least Elizabeth can talk to a properly trained doctor to address her anxiety about her physical health.  This doctor made notes which will go to her regular GP.      A service such as this should have full access to all the computer file records -something should be done about this.    Just like the new Urgent Care Centre at the local hospital, replacement for what was once an A&E department, whilst it is a nice modern newly-built facility they are very limited to what they can do to help people and that means travelling a fair distance to another hospital which does have full facilities.

I have written several emails to Carlton House Surgery because Elizabeth is not getting basic care in the community and a lot of trust has been lost in mental health services.  the local MH team which is  (Enfield Community Rehab) are providing nothing and have refused direct payments on numerous occasions. Elizabeth wishes for her physical health to be examined thoroughly.  She does not want to be drugged up once again on psychiatric drugs which do not work.   Calling emergency services is a cry for help and Elizabeth is a product of NHS failure under MENTAL HEALTH CARE.   So now I have requested a referral to another team ie HEADWAYS or similar that deal with chronic brain injury which is what we all feel she has.   They provide support in the community.  The GP should also look at her neglected physical health needs and examination of a cyst in her head that has been neglected for years, ignoring the recommendations of the recent Tribunal for hormonal tests.   The last I heard that they were having another meeting but priority now needs to be given to correct assessments as having read the DSM no psychiatric labels should be given until a full and thorough physical test assessment is done.    We cannot accept a MH diagnosis because in the first instance Elizabeth came under MH services because of Prozac induced psychosis caused by withdrawal of this highly dangerous drug which led to false label after false label.

I have requested countless times direct payments in order that I can provide what Elizabeth wants.  At least she would have some care in place if I was arranging it like I did for my father with Alzheimers who had a good team of social workers who worked with not against the family as they have done under MH for Elizabeth.   I had 24 hour care with my father in his own flat which benefitted him.  This was better that ending up in a care home or any kind of hospital.

It is cheaper to provide a bit of support in the community than just keep admitting someone like Elizabeth to hospital and placing them on section after section when all along the community mental health teams are not providing what is necessary and where is the money going?   I think the money is being wasted – a waste of money going on legal action and waste of professionals time in attending tribunal after tribunal when all that is needed is direct payments to provide a companion for someone like Elizabeth as she can do things for herself in the house and can go shopping but needs help with budgeting and especially help when it comes to forming friendships –  someone to talk to and confide in and to gain valuable advice when it comes to friendship is what I feel is needed.

What would be good is for the students of around Elizabeth’s age to be involved – those   studying for mental health nursing and psychology would be of more benefit than a “mainstream” psychiatrist.  The answer is not to supply yet more drugs but to provide the very basics –  the right kind of friendship that could give valuable guidance by other young people, not by a team who wish to push drug after drug which is clearly not the answer in Elizabeth’s case.

 

 

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