The Natural Health Centre featured demonstrations of the Bowen Therapy tonight which was very interesting.

The Bowen Technique is a remedial, hands-on therapy that is applied using very gentle pressure. The practitioner uses thumbs and fingers on precise points of the body to perform Bowen’s unique sets of rolling-type moves which stimulate the muscles and soft tissue of the body. There is no manipulation or adjustment of hard tissue and no force is used. The experience of a treatment is gentle, subtle and relaxing. It is believed that the Bowen Technique prompts the body to reset, repair and balance itself and clients report the experience of pain relief, improvement of function and recovery of energy.

What Does It Treat?

What responds well to the Bowen Technique? In short, almost everything can respond well to Bowen treatment and this is why:

The Bowen Technique is a non-intrusive complementary hands-on therapy. The technique is based on the theory that gentle moves over precise points of the body can prompt the body’s innate ability to relieve pain, restriction and imbalance without the need for deep, manipulative or forceful treatment. Bowen practitioners work holistically with their clients and expect to work alongside allopathic health professionals to support optimum health for their clients. For example, one of the most common complaints for which people seek Bowen treatment is back pain.

The average number of treatments people have is three to four. There are always exceptions to any rule, and some people will need further or even on-going treatment.

 

Painful and restricted shoulders are also a particular favourite as are neck pain, respiratory conditions and headache patterns. Bowen is being widely used for sports injuries as well, with rugby clubs and premiership football clubs showing interest. Not only do sportsmen report fewer injuries when treated regularly but they also notice enhanced performance.

The Bowen Technique was developed in the 1950s by Australian Tom Bowen. Training courses in Mr Bowen’s technique were first offered in the late 1980s in Australia and came to the UK in 1993.

I am delighted I have found something good in the local area but unfortunately Elizabeth was not feeling well enough to come tonight.    Next time it will be best if she takes the Clozapine later as, after taking this, she has to lie down and never feels well.   Pity, as Elizabeth has missed out on a good evening but I intend to book her such treatment which in my opinion should be available on the NHS as a matter of choice and would do more good than harm, unlike the current treatment of enormous amounts of drugs which have not worked and are ruining her physical health.  What a waste of money that these chemicals are given to someone “treatment resistant” and with a diagnosis of PTSD when it is NOT recommended in NICE Guidelines.    If a diagnosis is in doubt like it is in Elizabeth’s case, no one in this area seems to care less and just wants to carry on drugging and drugging regardless and luckily I have looked into matters thoroughly and I now want thorough assessments done particularly when I can see what harm is being done and Doctors are supposed to do no harm.   I can prove that they are in fact doing harm.

Another good thing for Elizabeth would be the meditation classes run by a brilliant local Doctor which are in the evening at a time when I can bring her.
Elizabeth however is already worried about whether there are stairs as she is fearful of heights.  I can see these drugs are not doing her the slightest bit of good and have been told she is on too high a dosage but no one seems to care apart from the GP to be fair who at least is trying to help.     I have had once again had to delay the Neurologist appointment as Elizabeth would not go under the scanner.   Now I will probably be waiting months and months for an appointment for her to go under a bigger scannerin a hospital further away as another fear of Elizabeth is claustrophobia.

I am so delighted with the Natural Health Centre and thank God there are a few doctors who care about physical health and I have not come across many in my local area.  Anyway,  I am thinking of joining this excellent centre as I think it could benefit Elizabeth.

I see that the next meeting will feature Chakra Psychology – something I have not heard of before-  I am very interested in anything holistic and like the sound of this as well as the Bowen Technique –  (Naturopathy – Helping your body to heal itself)   http://www.chakrapsycology.co.uk – well this makes a change from the treatment of massive quantities of mind altering chemicals that Elizabeth has had under both NHS in this area and private sector care

On Saturdays we have now joined a new class doing Zumba.  I am keen to get Elizabeth out as much as possible to the point she can relax and enjoy herself  –  since coming home she refuses to go out alone despite having a key and knowing her way around.   She feels dizzy on this awful drug and is afraid of falling and can suffer panic attacks whilst out and that is because she has been incarcerated in “care” establishments where she as not got out enough.  Thankfully she is home now and I am doing my best along with my carers.  As regards the Zumba class, the people were so friendly and although Elizabeth did not feel up to joining in, towards the end of the session, she was starting to relax and get used to the people,   This is better than joining the gyms as the times of the classes were not good, could not make proper use of the facilities and this class is at a better time.   It is a very friendly class and held in a local social club where they have plenty going on and that will be good in rebuilding confidence.

As always I have been extremely busy over the weekend.

I attended the book launch of Bonnie Burstow’s wonderful new book called “Psychiatry and the Business of Madness”  – I did not expect to be beckoned to speak myself at this event but in the end could not resist!  Actually that is far from true.  Writing is one thing but speaking in front of people is another and I had nothing prepared so I just focussed on as much as possible but I was happy not to be in the limelight for very long.  I think I spoke about the amount of drugs given to Elizabeth and how they did not work and also about the ordeal we have been through with Court – it was a shame I did not have Elizabeth present on this occasion but one of my carers was with her that evening .

On Saturday I had a wonderful time with former school friends, one of whom has moved out away from my local area into a more rural location and we saw a show at the local theatre and walked from her house to the theatre and country town.   We are planning another day out very soon and a river trip to a nearby town.  Elizabeth has known my friends since she was very young as we all used to meet up regularly and go down to the coast – a whole crowd of us but with everything that has gone wrong –  I could not take part much in social events but now Elizabeth is back it is time to resume all of this and good to encourage her to get out and meet people and going out with a crowd is great fun.   We have set aside two weekends in the hope that the weather is fine.

We have appointments coming up to see the Neurologist but I am not sure whether to yet again cancel this as Elizabeth flatly refused to go under the scanner and now I need to take her to a hospital where they have a larger scanner.  In fact I must phone the GP this week.  There is more than one thing I need to discuss –  this appointment for one and also the referrals to the leading experts for the other diagnoses mentioned in the files.   If someone has more than one diagnosis it makes sense to me that each and every single diagnosis is thoroughly checked out by leading experts who specialise  in these fields and I have looked into this thoroughly and have suggested that Elizabeth is referred to one of the leading experts in PTSD as there is a strong probability Elizabeth has this diagnosis and nothing should be ruled out.   There must be no doubts about her diagnosis in my opinion otherwise the treatment may be doing more harm than good and this, in turn, is a complete waste of money.  It is cheaper in the long run to have a proper assessment done rather than just stick with one diagnosis just for the sake of convenience.  I am even more sceptical now since Elizabeth is home and feel her current diagnosis is completely wrong and as she is in the right environment (home) I have not witnessed any “symptoms” in over a year  relating to the diagnosis that the team think she has – what about the other two diagnoses made by two other highly qualified professionals?  These need further thorough investigations in my opinion and who better to do them than the leading experts who specialise in them.

I have had to contact world leading experts in order to get accurate scientifically backed assessments not even available in the UK.  I am delighted that hopefully this will lead to accurate treatment bearing in mind decline in physical health conditions. I do not wish to see anything more done on a trial and error basis and can only accept a diagnosis with evidence.    I am not only waiting to hear of the date of an appointments for all the assessments but also I am waiting to hear from various  Professionals who are looking into certain other matters for me right now.

I have ordered tickets for the conference in September I saw advertised on the C.E.P. website and will be bringing Elizabeth to this.   I am looking forward to meeting the Professionals who wish to see positive change,  there is a fantastic line-up of wonderful professionals speaking at this event to be held at Roehampton University.       http://cepuk.org/moreharmthangood/    –   all consultant psychiatrists should be listening to these experts and I would like to see this event widely publicised and this Government needs to listen to these professionals as myself and all the other mothers/parents are not happy with the treatment of maximum drugs.

There is also another event I would like to go run by ISPS:

Walking Alongside?

Navigating the tensions and opportunities for collaboration between lived and professional experience of psychosis.

10.00 – 4.30pm, Saturday 11 July 2015 @ Amnesty International,17-25 New Inn Yard, London, EC2A 3EA

Elizabeth will be going away on holiday shortly with the rest of the family and I have tickets for the Chilfest which I am looking forward to.

As regards holidays myself, I would not mind going to Ireland on holiday this year and am not planning to go away until later in the year.  I want to see how Elizabeth is with flying –   somewhere not too far away would be good at this stage as it has only been just over a year since Elizabeth has come home from the care home.

Many vulnerable/disabled people are not getting justice in a system where abuse is rife.   A previous solicitor said to me once  “you are up against a lot of power and I can now see what he means.    Certain organisations set up to investigate and protect vulnerable people are not doing so –  the CQC for instance are not interested in individual cases, and have limited powers.    This is a system that allows abuse to the weak and vulnerable ie, disabled, mental health patients and the elderly.  It is difficult to get legal backing in court unless you have plenty of money to pay for it and that rules out the disabled, elderly, mental health patients.  it is virtually impossible to get justice  in the case of clinical injury – if someone has been trapped in the system for say three years a solicitor will dismiss any claim for clinical injury if you suddenly discover things in the files.  This is wrong as how would you know about it when the team make it impossible to see the files and as I have discovered there is plenty to hide and cover up.

There are many tragic cases where young people are imprisoned for many years in shocking institutions worse than a prison where drugs are given  enormous quantities of mind altering chemicals, sometimes concomitantly prescribed and no-one seems to care – doctors who are supposed to do no harm are causing harm by prescribing in this way.   You do not get to read this about these cases in the papers but it is a fact that this abuse is going all over the UK..  Some of these young people are placed in care homes and other institutions hundreds of miles from home, making it difficult for relatives to visit and relatives are given no help in these situations.  The young people incarcerated in this way are often deprived of leave and drugged up.  Security is so tight that parents cannot spend time alone without being watched.  This is disgusting treatment when a patient is treated like a criminal and “written off” – how can anyone get better in some of these institutions.  How wrong these professionals are with their comments –   I am proof that having Elizabeth home has been the best thing of all even though we have no help or support.  I think that should come from Central Government as some Councils are wasting a lot of money with court cases and sending people to institutions long term instead of giving some extra money to the patient in the form of direct payments – these to be spent on activities and integration into society.  Direct payments worked well with my father who had Alzheimers but nothing is given to Elizabeth and I have to pay for taking her out, providing carers as drugs need collecting, blood tests need doing, activities include personal trainer twice a week.   When a parent complains the team can impose visiting restrictions or even ban contact like they did with me on more than one occasion.  They can go ever further by getting rid of you for their own convenience if you happen to the Nearest Relative.  They will say all sorts of things behind your back that you are putting the patient at risk and in my case it is all about the chemical Clozapine that social services themselves pushed and when Elizabeth refused she was sent to a hospital that has links to the Institute of Psychiatry where they favour Clozapine. This drug is affecting my daughter tremendously – she has gained huge weight and a leading professor says that is probably because it is too high a dosage and he knows all about the drugs unlike certain team members.

There are some very tragic cases I am in touch with where a mother or relative really cares and is in despair over seeing the decline of their son/daughter/relative but nothing is being done about it.  The Government must be aware of this situation and should personally visit without notice to these institutions and contact the relatives to assist as these young people who are trapped and imprisoned are suffering with their physical health as a result of the shocking treatment. It is very difficult to get someone off a section as the team will say that person is too unwell for instance like the consultant psychiatrist did at Cambian before she left suddenly and they can deprive leave in this way too.   So the team were looking at sending Elizabeth to an establishment recommended by  “professional” who thought this was the best option yet states that she does not know the family.  How can this woman recommend anything in that case?  This is a hospital more like prison or should I say worse than prison that I have read about where no phones are allowed and no doubt contact severely restricted.    Some patients end up being imprisoned for life and I know of some cases and they have decent caring families too –  the public are unaware of cases like this where patients are placed in such units at huge cost to the taxpayer yet they have not killed or done anything seriously wrong in many cases.   You would think someone placed in an establishment like this had killed someone but I believe such patients are sent to institutions like this when NHS care fails dismally and the reason being that patients are being drugged to the hilt – no tests done to see if they can metabolise the drugs and  I have all the evidence in the files to prove what is going on in the name of “care”..  A mother who I am in touch with recently told me her son had been refused leave with the excuse that he is too unwell to have any leave.   The same was said about Elizabeth not being allowed to come home from Cambian at Xmas but I would argue that the care provided is making patients unwell and at first when Elizabeth came home she was so reserved she hardly spoke to anyone and now we are seeing such an improvement.   These institutions are horrific places and I have been inside some to visit.  Patients are drugged enormously and kept without phones and cut off from the outside world.  It is all about control and there is money to be made of course, huge money and this could be better spent in other areas with more help in the community – the involvement of former patients where possible in peer support and inclusion of families like in Tornio, Finland where they have Open Dialogue.  Parents are understandably in despair and visiting rights are very strict – some patients have no leave at all.   When a parent dares to complain and criticise the level of drugs for instance the entire team stick together.   To lock someone away and drug them at huge levels for many years is against human rights especially when these people are not guilty of any serious incidents like you would expect –  they do not deserve to be in such places, where they have no rights and treated like an object rather than a patient. To think this is going on in the UK today.  Only a few cases come to public attention such as Winterbourne but there are many many more cases that are not even heard of. To those people who assume that these young people have done something terrible to end up in these institutions in the first place,  you are very wrong to assume the worst, judging by the cases I am in touch with.   I know only too well how lucky I am to have managed to overturn the Section 3 –  there needs to be proper assessments on physical health before prescribing these dangerous drugs and no tests are currently available to see if someone can metabolize the drug.  This is allowed to go on in the UK which is supposed to be a civilised country and I am fed up with hearing how short the NHS is of money when they waste so much on enormous quantities of drugs for mental health patients that do not work as some are treatment resistant ie non or poor metabolisers causing more harm than good.  They also waste enormous sums  on private sector placements hundreds of miles away from home and family that offer pretty much the same care of huge amounts of drugs but in a better setting.  However, when patients are sent miles away from home they are more vulnerable and stricter control is evident.    These hospitals are simply a dumping ground for those where care has failed.   Judging by the files Elizabeth was regarded as case of no hope and given enormous quantities of drugs which I can now see from the files.   Management personnel of these hospitals are in no hurry to see a patient leave and, if drugged up enough, the patient becomes so weakened that they are unable to request a tribunal, or deal with solicitors and they can remain stuck in the system for years or forever detained with the excuse given by certain professionals that the person is too ill or risk to themselves or others and that is far from true in some cases.  Elizabeth was becoming weakened in this way and felt stressed by the meetings with staff and refused to attend at times – this is how someone can end up stuck in the system under never ending control.   These young people are the forgotten people of the UK and there are some who wish to leave hospital but they are stuck and I know some who have caring parents who are very upset. I hope to highlight such cases and produce a “front page” newspaper template and pass it round to their parents so they can write an account of the abuse going on to their sons and daughters.   I wish to start this off by highlighting my daughter’s shocking treatment featuring my true story “Get Her Back We Are Paying For That”  –  this is an example of how power held by professionals can result in abuse.   I am not the only case where drugs have been deprived in a bid to force return that person to care  but if you deprive someone of a drug like Clozapine for several days, then that person can become seriously ill, can relapse then immediately the law can go against you and in favour of professionals who had only one concern to return my daughter to care.  It is highly dangerous to deprive drugs causing a steep withdrawal in this way and I would not attempt this myself.

Positions of Power:  

Central Government:

When you complain to Central Government you get nowhere and you get a standard letter referring you to the PHSO for instance or CQC.  The Organisations supposed to help such as PHSO or CQC do not have enough powers.   The PHSO (formerly Healthcare Commission) has upheld my complaint partially in the past.   I have to say though that the team were worried about a visit from the PHSO which I read about in the files but if anyone looks at the contents of these files they would get a very wrong impression when they read nasty comments.  Even past family history is incorrect.  Your name is like mud in the files when a team gangs up against you and if any organisation such as PHSO or CQC get involved and go by the files then it is no wonder no fair outcome is arrived at.   Everyone is protecting themselves.  There is a culture of bullying as I have seen and I reckon when you are labelled a “special” case this could go beyond social services as to take someone to court time and time again requires a lot of money.  This is how the system is – aimed at the protection of professionals at the expense of weak and vulnerable/disabled/elderly people.  This Government allows this to happen.  Here is some extracts from a letter going back to 2013 from the Dept of Health:  “The Government’s ambitious approach to tackling drug use is set out in our 2010 Drug Strategy, Reducing demand, Restricting Supply, Building Recovery: supporting people to live a drug free life.   http://www.homeoffice.gov.uk.  WHAT ABOUT THE DRUGS PUSHED AT PATIENTS BY CONSULTANT PSYCHIATRIST AND OTHER NONE MEDICAL PROFESSIONALS?  I also note your concerns about the prescription of medicines in mental healthcare settings.  An integrated approach is fundamental to the provision of high quality care to people with conditions such as depression, schizophrenia or dementia and treatment should take into account patients’ individual needs and preferences.  Medicines have their place in the treatment of mental health conditions.  For many this will be the most effective and appropriate treatment option.  However there are alternatives available such as counselling and cognitive behaviour therapy.  It is important that medicines are only prescribed to people with mental health conditions when necessary and are not used when non-pharmacological approaches can be equally effective.  Patients should have the opportunity to make informed decisions about their care and treatment, in partnership with their doctors.   Good communication between practitioners and patients is essential.  It should be supported by evidence-based information tailored to the patient’s needs.  If the patient agrees, families and carers should have the opportunity to be involved in decisions about treatment and care.  Families and carers should also be given the information and support they need.”    In four years since that letter was written and signed by Norman Lamb the quality of care is far from high and I do not see improvement especially with integrated care where non medical professionals have control and power over treatment so it would seem as in Elizabeth’s case and the treatment is mainly drugs and parents are not included, patients coerced into distancing themselves when a team do not like to be challenged.  Finally the letter ends by advising you contact the Ombudsman and then a judicial review after the Ombudsman’s final decision and suggests legal advice is obtained via law centre or Citizens Advice Bureau or contact a lawyer.

Chief Executive Officers -NHS or Council:  They back the staff defending everything, turning a blind eye to serious complaints and like to use words “excellent” or “satisfied that everything is OK.  Instead of doing a proper/thorough investigation they appoint say one person – that person then passes on the complaint to the very department whom the complaint is about, instead of investigating themselves eg. “you know the family better”  –  when someone is appointed to investigate a complaint they should look into matters themselves and it is extremely lazy to do this sort of thing.  This same person who was appointed to investigate the complaint of deprival of drugs contradicts herself –  she was happy to pass the complaint on to those the complaint was about for them to respond but at the same time was certain that Elizabeth should be sent to a secure type hospital.  This same woman could not understand why Elizabeth was so upset at being asked to choose between Mum and Dad and put pressure on to do so by the care home.  Not on a section or CTO, I immediately came to the conclusion of what was going on there and that they were planning to section Elizabeth.

Hospital Managers:  can delay tribunals/sever or restrict visits – refuse to give files to solicitors for the Manager’s Hearing –  why hurry when they are raking in pots of money – taxpayers money.  They can also make contact difficult for carers to see their relative – the less contact the better as abuse cannot be reported so easily and that person can end up under their institution for many years – no one can come near and staff all stick together and if something is wrong the family is the last to hear.  Not one person telephoned me to let me know that my daughter was severely ill whilst they titrated Clozapine which was against her wishes.  I did not get to hear of an incident at first hand where so many staff and patients fell ill with some kind of bug at another hospital.

Psychiatrists – apart from a few such as Dr Johnson, Dr Moncrieff and those involved with ISPS my experience is shocking of psychiatrists and I see them as professionals who do not care about physical health and push drugs at huge quantities without proper assessment on a trial and error basis.  One such psychiatrist has made huge mistakes in a court report and I want them altered.

Doctors – GP was helpful and gave a prescription when Elizabeth came home.    The only thing the GP could not help me with was my most recent request which I shall document in another blog.

Social workers – well I only have a good experience of social workers in relation to my father’s care – certainly not under mental health where they have used public funding again and again to get rid of me as the Nearest Relative and they have used bullying tactics to try to destroy my family.

Police  – have dealt fairly with my daughter though had no powers to intervene when we were being harassed and bullied

Solicitors

I am speaking about MH here –  solicitors can stay away from a vulnerable person who is unable to pick up the phone and deal with them.  Solicitors can delay tribunals by not responding to one another for instance.   Solicitors recommended by hospitals seem very friendly towards the staff and when one said “do you really want to go through with this my daughter backed down”   – that was because I got to find out about the Tribunal and took a day off work to attend.

Solicitors acting for the council are ruthless – they bombarded me with call after call in front of work colleagues and sent me legal papers at work stating I was being taken to court the next day –  I will add to this later on as I want to share more with you about how they operate.

Solicitors acting for Nearest Relative – well I had to ask them to step in when I heard that the team were all going to the tribunal without me.   Going back to when Elizabeth was at Cambian Solicitors refused to pay for the independent Psychiatrists attendance and report.  I still managed to overturn the section though as I had acquired substantial research and evidence to present to the Tribunal.  I don’t think they wanted the publicity of keeping hold of Elizabeth as they have people for up to three years apparently.

Court of Protection – solicitors acted in the case of deprival of drugs.

The case has ended in a way I do not consider to be fair.  Elizabeth has not even had her fares reimbursed.  We thought everything would be fairly settled at the next Hearing but there wasn’t to be a next Hearing. An independent Psychiatrist has made a huge mistake and despite my complaint the solicitors refuse to alter it.  The report states another Council as Applicant.   The solicitors responded to my complaint offering £100 goodwill gesture but this amount would cover her fares by taxi as Elizabeth was not well enough at the time to travel by public transport.   I do not accept that to be a fair settlement after what my daughter has been through.  The £100 offer has now been withdrawn from this major firm of solicitors who I feel like naming as I suggested that this sum should be for reimbursement of her fares.   If they were a caring firm instead of saying “all that needs to be sorted is our expenses then they would have thought of Elizabeth but no doubt they have gained their expenses and even when  you hear things like  “it is unlikely matters will go to court a second time” – this is not still definite with the word “unlikely” being used.   When asked when the date for the next Hearing would be there was little doubt the solicitors did not want us there “it will not be necessary for you to attend” and I said that we would be happy to come.    I think that a settlement was reached for them but nothing for Elizabeth.    Elizabeth is left with a report that is highly inaccurate and does not even name the correct Council and this is terrible in my opinion.  She is now severely disabled and is too afraid to go out alone and suffers from Agoraphobia.

Judges

It is not the Judges I have had problems with it is the solicitors as you can see from the above comments.   .

It has been over a year now and Elizabeth is doing well at home and slowly regaining her confidence.  I have taken her to some wonderful concerts and take her out at the weekends with me but today Elizabeth felt dizzy and unstable whilst walking.   It is going out she needs help with and there is no help from the team whatsoever.  Not one single incident has happened yet so terrible things are written in the files. This shows you cannot believe the files and their contents. We have just returned from a dental appointment for Elizabeth and a walk besides the River Thames which was very pleasant but Elizabeth was not feeling well to enjoy this.

I will keep you all informed as to how I get on with this dispute with the solicitors and the incorrect report.   I will also have some interesting things to share regarding care and treatment very soon especially in relation to these comments from above “It should be supported by evidence-based information tailored to the patient’s needs.

Finally I was glad someone got justice as per below.

woman wins £27,000 payout over care package row between council and NHS.

.

I post below amended leaflet and my story based on true facts.

psychiatric-abuse-leaflet-17.05.15

get-her-back-we-are-paying-for-that-17-05-15

I have not written a blog for sometime as I have been extremely busy.

LONG TERM DRUGGING – MORE HARM THAN GOOD:     I went to this debate with my two daughters and met other mothers and former patients there.  The most promising speeches came from Professor Gotzsche, Professor Timini and in the audience Dr Bob Johnson – who should have been invited on the panel in my opinion plus Sandra Breakspeare of Chy Sawel and others who have been badly affected by the shocking treatment of the UK.   I wished to speak and was disappointed that I did not get chosen and in the circumstances I would therefore take the opportunity to write what I would have liked to ask below:

“Why is it my daughter is being drugged for the rest of her life when she is “chronic treatment resistant”  – when she has physical conditions that I can prove in the files and with all the multiple diagnoses why hasn’t my daughter seen relevant experts in the field of PTSD, Aspergers for instance and more importantly why are drugs prescribed without any proper tests done beforehand and why “symptoms” are automatically thought to be that of mental health conditions when in fact it could be physical such as Endocrinal disorders and not everyone can metabolise the drugs.

It is not good enough that my daughter’s physical health is overlooked and that is why I have approached the leading experts who were only too happy to help.  The relevant tests have been agreed and I am so happy that the world’s leading expert in metabolism will carry out accurate tests and unlike in the UK, this could lead to better treatment that no one can overlook as this will be evidence based.    Every mother including myself has had enough of seeing the most shocking treatment to their vulnerable sons and daughters and wish for the dosage of drugs to be given at minimal levels.   There are no facilities to enable someone to withdraw from the drugs safely and what kind of Country is this that gives someone a lifetime of drugging and incarceration at huge cost to the taxpayer when they have developed  physical health conditions and injury due to faulty treatment given on a trial and error basis.   I know lots of cases where parents really do care and want something done about it and I hope to highlight such cases as this shoud be front page news in my opinion.   It should be of huge public interest especially at a time when services are cut and A&Es are shut down.  It is no wonder why because the mental health care is not working.    It is more important that the experts are involved that know how the drugs work so that accurate treatment at minimal levels can be given and also help to come off the drugs when serious physical conditions are discovered.  If a proper assessment had been done in the first place it would have been discovered that endocrinal disorder was the cause and not mental “illness” –  I have proven this fact at huge cost.  In the long term money would be saved if patients got the correct treatment rather than one drug after another on a trial and error basis and now there is talk that there is no such thing as Schizophrenia and I brought along my younger daughter to Institute of Psychatry as proof of this fact.

Here are the tests I am having done in Rotterdam:     CYP2D6, CYP2C9 and CYP2C19   –  However I will not know until next week whether the GP can help me but I have contacted Dr Moncrieff in any case and am prepared to take Elizabeth to Rotterdam myself in order that she can get the correct treatment as there is no treatment being given at all right now and with a diagnosis such as PTSD Clozapine is not even recommended for this.

As for the diagnosis of Schizophrenia:

Correspondence from the Head of the Canadian Health Service:

Dr. Supriya Sharma, Director General of Health Canada admitted : “For mental/psychiatric disorders in general, including depression, anxiety, schizophrenia and ADHD, there are no confirmatory gross, microscopic or chemical abnormalities that have been validated for objective physical diagnosis ” . 

It means there is no pathological cause of the so called ‘disease’ euphemistically described as schizophrenia.  No chemical imbalance, no lesion either biochemical or physical in nature. There are no disease markers (abnormalities) either at the microscopic or biochemical level.

Well that says it all THERE IS NO SUCH THING AS SCHIZOPHRENIA.   It is a good thing I am the Nearest Relative to look into such matters and to do something about it.

Anyway the one thing I was disappointed about with the Maudsley Debates apart from not being able to speak myself was that whilst Professor Gotzsche mentioned about providing facilities/helping people come off the drugs that do not work –  where is that help when lives are being put at risk. Surely this should be a main priority and that there should be something immediately done about this unsatisfactory situation.   You only have to express discontent and challenge a team of professionals on the subject of drugs to be on the receiving end of the kind of bullying that we have experienced as documented previously.

I went to the ISPS course on Open Dialogue in Liverpool on Friday 15th May which was an extremely well run event.  I shall write more about this in my next blog but we ending up doing Open Diaglogue in groups and myself and Elizabeth started off the discussion based upon real life experience.  It is one thing writing about it – I did not find it easy speaking in depth to a group of people I had never met before about this personal situation that Elizabeth and I endured with Court etc.  Elizabeth joined in the conversation herself which was very good as I am trying to get her to communicate and I have seen important in this respect since coming home.    I know that certain areas are doing pilot schemes on Open Dialogue which I think is brilliant.  All the former patients I meet with and parents would like to see this in place and it has been proven to work.  I am a good reason why open dialogue should be adopted as open and honest discussions on an equal basis are the best way to solve a situation and even avoid matters progressing to crisis point.    We spent all day at this Conference and later saw some of the live entertainment being held on the streets of Liverpool although Elizabeth was quite anxious and I could not watch the entertainment for long.  She settled down later and we went to the Cavern Club and on the way back we visited one of the mothers I have been writing to on social media.   This mother has a son in a care home like so many I know on huge amounts of drugs and we share in comment the fact that her son/my daughter spent time on the same ward and that we were placed in a situation where visiting was not easy due to distance.  Virtually no help is given to families so they can visit and if the placement is a long distance away from home that can lead to having to stay overnight which is very expensive.    We had so much to talk about and shared similar experiences and views on what we thought of the treatment and how physical health and injury to the patient was completely being overlooked.   For families such as this who really care and I am in touch with several, the answer is to offer more Carers Allowance and direct payments and the answer is not to keep someone on never ending sections but it is cheaper to give a budget to a family who is caring, who would spend that money wisely on helping the relative get better and the answer is integration, not exclusion and it would be cheaper than spending over £60000 a year on care homes and even more on private sector acute wards and something needs to be done about legal bills and taking families who care to court to deprive liberty.     Elizabeth was  thought to be a case that was of little hope judging by what I have read in the files.   I am very lucky to get her away from such treatment of long term incarceration and have her at home and now it has been a year.  A saving of £60000 a year is made to the local Council who provide nothing and who have wanted to destroy my family.   My daughter’s life was put at risk by professionals and the family nearly torn apart by them.   I am proof that things can work out at home despite the views of professionals who claim to know the family but even the Family History in the files is wrong.  For someone vulnerable like my daughter it has proven difficult to protect her within the care system and when things have gone wrong this is another reason why severing of contact is attempted to get rid of someone that could speak out.  What kind of a legal system do we have where a vulnerable person’s fares are not even refunded and where that person was left without “treatment” in breach of Human Rights Law and Mental Health Act.

“You will have to take the drugs for the rest of your life” –  this is the comment said to Elizabeth by two consultant psychiatrists who I feel like naming.

Now there is the debate coming up shortly of the Institute of Psychiatry (Maudsley Debates) below and it is at last being recognised that the drugs can do more harm than good.   So,  I hope that I will get the chance to speak at this debate or better still my younger daughter is happy to get up and speak on behalf of her sister who has been classed as a case of no hope yet I am about to prove otherwise to everyone.  Elizabeth’s sister has been diagnosed as having Schizophrenia as a child – can anyone explain why my younger daughter is on “top of the world” – well I put it down to the fact that  I managed to successfully get her off the poisonous chemical – Risperidone given to her locally by a child consultant psychiatrist.    It was not easy to get her off either- the drug made her more anxious than I’d ever seen before and caused enormous weight gain.  From seeing this, I became very much against the prescribing of drugs to children in fact not only to children but also to the elderly such as my father with Alzheimers and anyone in fact.  These drugs are not easy to come off and there is no help whatsoever and if someone tries to take themselves off these drugs instead of a doctor correctly recognising withdrawal symptoms they give a label and say there is a mental health problem so someone can easily be misdiagnosed like Elizabeth has been.   With no school to go to locally due to problems I wont go into here, I searched for a good school in another area and it is thanks to the school SusieEarnshaw Theatre School that my daughter is on top of the world.  Thank you so much.

With a father who had Alzheimers going downhill over a ten year period, that took up a good deal of my time to point it practically took over my life – suddenly I had other caring responsibilities for my younger daughter but I was determined not to put my father into a care home as this would have been against his wishes.   I wish I had questioned to begin with the drugs given to my elderly father, instead of trusting the doctors -how I wish I had looked into this thoroughly. I would urge anyone that has elderly parents not to just place their trust in these doctors but to look up the drugs themselves and to question matters – why put someone elderly on anti-psychotics.   My father was a placid man, this changed him into someone who could have mood swings – bouts of aggression like never before which of course doctors  never associate with the drugs given but put down to symptoms of illness –  this is rubbish.  I now recognise the “symptoms” in both my father’s case and my elder daughter’s case as caused directly by the drugs themselves.    The drugs caused my father to have a heart attack and were giving him no benefit whatsoever, just like the drug Clozapine is giving my elder daughter Elizabeth no benefit.   The drug Aricept “worked” in preserving my father’s ability to prolong a better state of life but when this was withdrawn my father went downhill rapidly and ended up in a wheelchair.  Never once did I wish to give up and put him into a home – constantly various staff members would say to me “why don’t you put your father into a home – he is taking over your life”   – well I did not see it like this at all.  Yes there were many sacrifices –  I was working part time –  I could not go far on holiday or even consider going abroad.  There were many problems when my father went into respite and staff would contact me as they could not always cope. On one occasion he went missing and somehow found his way back to his old home that was miles away.    Now the doctors have ruined Elizabeth’s  physical health and I want something done about that, not just a debate – they do not care less – what would they do if this was one of their relatives? – would they give the maximum of drugs if it was one of their relatives?   I can clearly see that Elizabeth is just a number to them – one more case of their enormous workload of MH patients left on long term drugging, prescribed drugs at the maximum levels and the care is not working and why – because emotional issues are not being addressed at all as described perfectly in the book Emotional Health by Dr Bob Johnson.  They want to drug Elizabeth for the rest of her life yet are ignoring serious physical conditions that I have seen in the files recently acquired and proven further by having private endocrinology tests done. They are supposed to do no harm and are protected by the law so when things go wrong who is going to find out if someone is in such a hospital where visits are restricted and so is contact with family.   Police and social services just back them to the hilt but I respect those who are against the system but understand how they just go along with it all because otherwise their jobs would be at risk.   I personally would take the opposite course as I could not go along with anything that was not right. An example of professionals not caring less – a Neurologist at Queen’s Square said “optimise the drugs” -surely a decent doctor would not wish to optimise the drugs, causing harm to the patient’s physical health but I can prove the harm they are causing and who is responsible for this.  The law protects them – the law is not helping people like my daughter.  I wish I could say more here but I will in due course.  So the Professionals that do care are afraid to speak out as it is more than their job is worth.   Well I am not afraid to speak out against this kind of abuse.

I have just been invited to the Legalex Exhibition but this is on the same day as the debate for institute of Psychiatry –  I do not know if I can get along to this but I have had the most shocking experience of solicitors and their handling of my daughter’s cases involving court-  I might just contact the organisers of this event –   I am far from happy by the way my daughter has been treated by the legal profession.   If there was anyone that can help me at this wonderful Exhibition I would be happy to attend with Elizabeth and her sister.

If any of you that follow me on Twitter are attending the Institute of Psychiatry Maudsley Debates I would be most happy to meet you and introduce my two daughters and all the other mothers.

52nd Maudsley Debate: More harm than good?

Location
Denmark Hill Campus, Institute of Psychiatry (Main Building)
Category
Public Talk
When
13/05/2015 (17:30-19:00)
Contact
nikki.whitelock@kcl.ac.uk
Description
Anatomical illustration of head

This house believes that the long term use of psychiatric medications is causing more harm than good.       And the House I hope is going to do the voting fairly this time and count votes properly from those in the overflow room.

This event and the waiting list are fully booked. To receive details of future events please join the mailing list.

Chair:  Professor Til Wykes, Professor of Clinical Psychology & Rehabilitation and Vice-Dean, Psychology & Systems Sciences, IoPPN

For
Professor Sami Timimi, Consultant Child & Adolescent Psychiatrist; Director of Postgraduate Education, NHS Lincolnshire; Visiting Professor of Child & Adolescent Psychiatry, University of Lincoln
Professor Peter Gøtzsche, Director, The Nordic Cochrane Centre, Denmark
Against
Professor Allan Young, Professor of Mood Disorders, IoPPN  )
Mr John Crace, Journalist, The Guardian                                 )   I am looking forward to showing you evidence and for you to hear from my daughters directly
Programme
17.30–18.00: Refreshments
18.00–19.15: Debate
19.15–20.30: Reception
I have attendedthese events before alone but this time it gives me great pleasure to be able to bring along both daughters.  I am looking forward to meeting Professor Timini and Professor Gotzsche and I hope my younger daughter gets the chance to speak – to my amazement Elizabeth took part in one of my recent conferences and got up to introduce herself to everyone – since coming home she is improving so maybe Elizabeth will wish say something herself at the Institute of Psychiatry and I as a mother am encouraging her to stand up for herself.
Myself, Elizabeth, her sister and my friends who are coming from so far away, those mothers who are badly affected with sons and daughters long term incarcerated in hell on earth hospitals worse than prison.   I would like to speak to Mr John Crace of the Guardian and to show him all the proof I have – how quick these professionals are to write someone off as having no hope when Elizabeth  is doing so well and I want the world to know.  I am shocked to seed that this journalist is Against.  He and Professor Young will not have anything to argue about as not only myself but they will be up against a lot of mothers who can provide actual evidence –  I am delighted to do this myself as I have acquired all the files and the reason the team did not wish me to see the files is because there is plenty to cover up.   I am happy to speak to as many journalists as possible not just in this country but internationally.    I am shocked to see that a journalist for the Guardian is Against – this would be the kind of thing I would expect from the Sun.
The reception at the end of the debate is good where you can speak to some of these professionals (those who are brave enough to stay and do not disappear in a rush) Some of these professional looked a bit uncomfortable to speak to me what with all the research and evidence I have acquired and now I have even more now to show     I now want to know who is going to help Elizabeth – how would they feel if they were told “you have to take the drugs for the rest of your life” especially when  there is no such thing as Schizophrenia.  It would seem to me like no one is wiling to take the risk to reduce someone off the drugs despite having the knowledge,  especially a drug like Clozapine  –   it would seem like instead of safeguarding my daughter they are safeguarding themselves.  I suppose this is in case of the likelihood that  someone is severely injured  so by giving them a lifetime of drugging makes things easier, a means of  convenience, less risk for themselves and of course it is very profitable to keep someone drugged up and I want the press to know about all my friends (who will be coming from a long distance to attend this debate) those who have sons and daughters long term on enormous quantities of drugs in the most dreadful of “hospitals” or care homes worse than any prison yet these young people are discarded like rubbish,  the public needs to be informed that these young people have been left to go downhill to the extent they give up –  I saw the effect on Elizabeth at one time.  The public need to know that these a lot of these young people are not those who have committed terrible crimes or killed someone – they are people who have been “put away” as a matter of convenience and drugged to the extent they no longer have a voice.  This is being done at the expense of other services that affect the public and must be costing a fortune.  In the event when someone does develop a serious blood disorder only then do these professionals act and taking someone off the drugs steeply is done in a horrendous way so I have heard. Seeing as the Guardian reporter is Against I wish for there to be other reporters to be involved as I want things reported fairly and I am very happy to speak to each and every newspaper and provide them with all the proof they need of what is really going on in the UK and I am not the only one who would like to talk to many reporters.
Last night at the Millfield was fabulous – the entertainment was brilliant.    It took my mind off everything unpleasant going on in my life.   Unfortunately Elizabeth took the drugs just before we left for the Millfield.  What an effect these powerful drugs have on her – one of the most noticeable effects is dizziness and she was clinging to my arm a lot.  The drugs make her tired and out of breath.    She is showing signs of TD but we are waiting for a referral to a hospital where they have a bigger scanner as twice Elizabeth refused to have the MRI scan which is needed for the Neurologist.  The GP has not bothered to ring me so I am going to have to chase this up.   Not once has the consultant psychiatrist picked up the phone and showed any concern at all.  We don’t even know the name of the consultant psychiatrist as the transfer of care meeting did not go ahead – Elizabeth did not want to come and neither did my carers and you cannot force Elizabeth to do something.  I quite understand especially when you read all the nasty comments said behind your back.  So social services wanted to see us first before seeing the psychiatrist.   We are waiting for some reassurance in respect of something mentioned in the files and due to the serious nature of this I cannot disclose for the time being until we hear further and the same goes for some very disturbing things in respect of the legal case for the time being.

An example of truly shocking care in the UK, not written by me, but sadly familiar as I have seen and visited people in  such awful places –  it is not always the case that these patients who are held like prisoners have committed atrocities and are of risk to the public yet this is going on today in the UK and I can provide examples of cases:

I wish to share with you an example of the shocking care and treatment on offer to MH patients in the UK –  this is not being publicised in the press as it should be  –    “I have no doubt a hospital environment would suit Elizabeth.” said a member of the team.  Well  how can this kind of environment be helpful to anyone?  Elizabeth has been in a place that she described as “prison” or “hell on earth” – I have visited someone else in another “hospital” just like the one described below – here is the description of this place: entitled “visited relative tribunal”

“I had to go there because my relative had a tribunal. –

The security precautions are worthy of a prison, very depressing, even the Judge said that sometimes in these places she cannot do her work because they take her laptop from her .  I nearly had an argument with the people who removed all my possessions as I went in.  The actual staff on the ward were very nice, I think it is just the regulations, so restricting they cannot possibly be conducive to recovery.  My relative has completely withdrawn, I feel that the psychiatric system itself is wrong, has made his condition worse.  Always presupposing the worst, more likely to get it.  My relative is stuck in there unable to go out unable to draw out any money, begging me for money, which I cannot afford.  Supposed to be rehabilitation but the people aren’t allowed to go online/have a mobile phone or tablet.  Maybe they have some real hard cases in there, for whom these restrictions are designed but my relative is not a criminal or dangerous – has the misfortune to be banged up with those who might be.  The grounds etc. all very nice but apparently no one is allowed out in them.  I would not like to work in that place or to be in there.  Ward staff as I said doing their best and in spite of everything managed to remain cheerful and positive.”

Visited in October 2014 – Posted on 17 October 2014.

You would think that a person put in this kind of place has killed or done something terrible but I can prove there are many cases where this does not apply at all and patients are just left to go downhill.   I am most disturbed at this so called expert who claims in the file not to know my family so well but passes my complaint to the department I have complained about feels “sure” that this very hospital mentioned above would suit Elizabeth.

There are lots of places like this in the UK.   Beautiful grounds which are not being used and facilities whilst patients are locked up on the wards and drugged up to their necks, often they are miles away from their families who cannot visit and no help is given to the families if they cannot afford to visit.    It is not the answer to have someone on the wards like this – many are admitted simply because they cannot manage in the community –  what kind of country allows this to go on?   Hospitals such as these are just dumping grounds and very hard to get someone out as I have discovered even when of no risk to self or others as I have proven.  And as for the files – they are a disgrace – here staff come out and write behind your back the most nasty comments and get away with it as they all stick together .  I have seen that there is a culture of bullying in a system that is failing to protect the weak and vulnerable.

If a care home cost £60000 a year God knows what a hospital like this would cost and it is no wonder why they do not wish to let people go as they are raking in the money – it is big business.   With this vast waste of public money it is no wonder why the NHS does not have funding for vital services that affect everyone and A&Es are being closed down, plus other things that affect everyone.  Vast sums of money are also being wasted on maximum enormous amounts of concomitantly prescribed drugs to psychiatric patients as well as court fees – long drawn out tribunals and solicitors are doing well out of it – many do not come near or visit someone vulnerable and  I have seen the most unprofessional behaviour on the parts of  solicitors which I will explain later.

With the forthcoming elections, I want to know what each of the political parties propose to do about this unsatisfactory situation.  I will be posting this blog and more comments later to all the political parties as I propose to take Elizabeth to vote in the forthcoming elections.  I would like to see an end to the abuse going on and an end to ECT and forced drugging – proper assessments  and before prescription of drugs looking at metabolism in depth and whether there are in fact physical conditions – assessments are not being properly carried out.

I do not have time to write further right now as I have to take Elizabeth for an appointment and then we are going to see the show “Sunny Afternoon” which I will tell you all about later

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